Re: [CMLHope] To Susan Zimmerman
Hi. Marcie.Did your platelets also bottom out with your red cells?A year ago April I lost almost every single platelet, and also needed 6 blood transfusions in a week. The specialists had blamed it on my lupus. I recovered and strangely lost a LOT of hairbut I have been very well since then. My hair is growing back.Have been in remission from CML since July 2001. I have been off Gleevec for 10 months now. So far so good.With a tag-team like leukemia and lupus, one never knows what to expect next.Anyway, Life is good. No complaints.Angie in Canada From: 'Marcie Goodman' via CMLHope To: cmlhope@googlegroups.com Sent: Thursday, March 24, 2016 5:07 PM Subject: Re: [CMLHope] To Susan Zimmerman Susan, as always, I have you and Roy in my prayers. Please let us know how your test turns out. I just got out of hospital because my red cells bottomed out and I became very sick. So some transfusions and several days later, just came home. I will be undergoing more tests, might have gallbladder problem which arose after I was discharged, naturally! Ultrasound tomorrow. Never dull but always interesting! Marcie Sent from my iPhone On Mar 24, 2016, at 5:01 PM, 'Susan Zimmerman' via CMLHope wrote: Thanks for the encouragement. I may write him but not confident he would have any different answers. Dr. Jessica Altman is completely on top of things for me. I"ve been to two other specialists at Nwestern to dig into causesnothing unusual except cavernous malformations turns up. Have checked everything at least three times over the yrs. So again off meds hopefully for a long time unless #'s go high. Tomorrow getting tested again w bcr/abl. Best answers are through prayer!!!Hope all is well with you!Susan F. Zimmerman "All who humble themselves before the Lord shall be given every blessing, and shall have wonderful peace." Ps.37:11 On Thursday, March 17, 2016 'Susan Rosenthal' via CMLHope wrote: Susan: Are you able to have an appointment with Dr. Druker in Portland, Oregon? At least email him Hugs, Susan Rosenthal Have a wonderful day -- -- [CMLHope] A support group of http://cmlhope.com/ - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com/ - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com/ - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Re: CMLHope] Re: Dizzy all day
Hi Richard, I just got my pacemaker and will go to the hospital this Monday morning to have my staples removed. What a difference that pacemaker has on me. No more a-fibs but the ones that are still there are very mild and the doctor tells me I shouldn't worry and not to be concerned. 18's, Marty On Wed, Mar 23, 2016 at 11:48 PM, Richard H wrote: > I don't call ins. I have a pacemaker machine I use and call in the report > (electronic recording of what it is doing) every 3 months and I go to the > office once a year for a face to face with the big machine to have it read > by a technician.. > > Richard H. > > On Wednesday, March 23, 2016 at 9:34:39 AM UTC-5, Icandoallttc wrote: >> >> Hi Richard and thanks for the update. I didn't know they still did call >> ins. >> I feel my mom wouldn't be here if she hadn't had her pacemaker. >> She never had to have the battery replaced. >> She was overweight when she had it put in and the doctor told her to lose >> weight. He said it was like putting a volts wagon battery in a Cadillac. >> She did lose weight after being overweight all her life. Just changed her >> way of eating. >> Good luck all. >> >> My Motto: Faith and Pills❤️ >> With 💗Jeanie 🐟🐟18,s Chi >> Dx 1/2004. CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib January 2015 >> Dr Balducci Moffitt Cancer Center >> >> On Mar 22, 2016, at 11:50 PM, Richard H wrote: >> >> Welcome to the pacemaker club. I have had one for about 8 years. Scar >> tissue built up in my heart from 5 by-passes in1991. I see my heart Dr. >> Thursday and I will hear about the battery life left. I think it is about >> 2 years left and I have to report in by phone 3 times and 1 visit a year.. >> Wonderful piece of engineering. >> >> I found an increase in energy by the I got home (overnight stay)). >> >> We'll just keep on keeping on. >> >> 18's >> >> Richard H. >> >> On Monday, March 21, 2016 at 11:48:00 PM UTC-5, wa2yyx wrote: >>> >>> Hi Susan, >>> >>> Yes I am finally home. Left the hospital at 3:00 PM and it took my wife >>> about one hour to drive back home. The pacemaker is in and adjusted and >>> fine tuned. Amazing how these work. No more fainting spells which only >>> would last for only 2 seconds so I haven't actually fainted. I was always >>> been able to keep my eyes open and hear as well as even hearing and talking >>> Have some pain where they made the incision but some Tylenol PM should >>> help me sleep, nothing I can't handle. >>> >>> Thank you for asking about me. >>> >>> 18's, >>> >>> Marty >>> >>> On Mon, Mar 21, 2016 at 7:25 PM, 'Susan Zimmerman' via CMLHope < >>> cml...@googlegroups.com> wrote: >>> Love you to pieces, Marty! Hope you comfortably home by now. An update for me, please! 18's, Susan F. Zimmerman "All who humble themselves before the Lord shall be given every blessing, and shall have wonderful peace." Ps.37:11 -- On Monday, March 21, 2016 Myvety2k via CMLHope wrote: Marty, got my fingers crossed. greenie In a message dated 3/21/2016 8:41:14 A.M. Eastern Daylight Time, wa2...@gmail.com writes: Hi Beth, I am actually still in the hospital but maybe today I will be getting out just have to wait for the doctors when they make their rounds. I will keep everyone updated. 18's, Marty bkbarney via CMLHope wrote: Dear Marty, So glad you are out of the hospital! And Peg, you are so right about what you said to Jeanie...Hope everyone is doing as well as possible. Thinking of all of you...love, and 18's Beth -Original Message- From: 'Icandoallttc' via CMLHope To: peg Cc: CMLHope Sent: Fri, Mar 18, 2016 11:19 am Subject: [CMLHope] Re: Dizzy all day Thanks Peg, You are so right. I was reading the side effects of ponatinib and i was thinking I have to take this??! Well yes I do and blood clots and heart problems are right up there high on the list. My potassium tends to be high also and you can get heart problems from that. Just have to fight on and thanks again. My Motto: Faith and Pills❤️ With 💗Jeanie 🐟🐟18,s Chi Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center On Mar 18, 2016, at 12:00 PM, peg wrote: Hi Jeanie, I was traveling on business this week and just checked in and am wondering if you are feeling better? I had to caution another cancer patient recently not to write off sudden changes as normal...caused by treatment, age, etc. The new generation of meds to treat CML and other cancers can have side effects that can be deadly i
Re: [CMLHope] To Susan Zimmerman
Hi Susan and thanks so much. My side pain is still bad but tests show nothing. Just treating the pain. I read something about an MS hug. My side pain has a lot of similarities to that. I think the tkis caused this as it got worse when I had to go on Tasigna. My Creatine was up but it seems to go up and down along with potassium. I've been on Ponatinib for 12 months now. No test planned thank Heavens. Have to go back in 3 months. They take PCR every 3 months. I forgot to get my last results. Thanks again. My Motto: Faith and Pills❤️ With 💗Jeanie 🐟🐟18,s Chi Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center > On Mar 24, 2016, at 5:30 PM, 'Susan Zimmerman' via CMLHope > wrote: > > Thank you so much, Jeanie!!! You are special to us all. How's the sideache > and any more tests about it specifically? > 18"s, > > > Susan F. Zimmerman > "All who humble themselves before the Lord shall be given every blessing, and > shall have wonderful peace." Ps.37:11 > > > > On Thursday, March 24, 2016 'Icandoallttc' via CMLHope > wrote: > > Hi Susan and Marcie > Prayers for both of you. Sorry for your hospital stay but we need them when > we get sick. I hope you find the root of your problems. > I had my gallbladder out many years ago. That's some bad pain. Good luck. > Susan good luck off meds. Hang in there and fight. Blessings > > My Motto: Faith and Pills❤️ > With 💗Jeanie 🐟🐟18,s Chi > Dx 1/2004. CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib January 2015 > Dr Balducci Moffitt Cancer Center > > On Mar 24, 2016, at 5:07 PM, 'Marcie Goodman' via CMLHope > wrote: > > Susan, as always, I have you and Roy in my prayers. Please let us know how > your test turns out. > > I just got out of hospital because my red cells bottomed out and I became > very sick. So some transfusions and several days later, just came home. I > will be undergoing more tests, might have gallbladder problem which arose > after I was discharged, naturally! Ultrasound tomorrow. Never dull but > always interesting! > > Marcie > > > > Sent from my iPhone > > On Mar 24, 2016, at 5:01 PM, 'Susan Zimmerman' via CMLHope > wrote: > > Thanks for the encouragement. I may write him but not confident he would have > any different answers. Dr. Jessica Altman is completely on top of things for > me. I"ve been to two other specialists at Nwestern to dig into > causesnothing unusual except cavernous malformations turns up. Have > checked everything at least three times over the yrs. So again off meds > hopefully for a long time unless #'s go high. > > Tomorrow getting tested again w bcr/abl. Best answers are through prayer!!! > > Hope all is well with you! > > Susan F. Zimmerman > "All who humble themselves before the Lord shall be given every blessing, and > shall have wonderful peace." Ps.37:11 > > > > On Thursday, March 17, 2016 'Susan Rosenthal' via CMLHope > wrote: > > Susan: > > Are you able to have an appointment with Dr. Druker in Portland, Oregon? > > At least email him > > Hugs, > Susan Rosenthal > > Have a wonderful day > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send
Re: [CMLHope] To Susan Zimmerman
Thank you so much, Jeanie!!! You are special to us all. How's the sideache and any more tests about it specifically? 18"s, Susan F. Zimmerman "All who humble themselves before the Lord shall be given every blessing, and shall have wonderful peace." Ps.37:11 On Thursday, March 24, 2016 'Icandoallttc' via CMLHope wrote: Hi Susan and Marcie Prayers for both of you. Sorry for your hospital stay but we need them when we get sick. I hope you find the root of your problems. I had my gallbladder out many years ago. That's some bad pain. Good luck. Susan good luck off meds. Hang in there and fight. Blessings My Motto: Faith and Pills❤️ With 💗Jeanie 🐟🐟18,s Chi Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center On Mar 24, 2016, at 5:07 PM, 'Marcie Goodman' via CMLHope wrote: Susan, as always, I have you and Roy in my prayers. Please let us know how your test turns out. I just got out of hospital because my red cells bottomed out and I became very sick. So some transfusions and several days later, just came home. I will be undergoing more tests, might have gallbladder problem which arose after I was discharged, naturally! Ultrasound tomorrow. Never dull but always interesting! Marcie Sent from my iPhone On Mar 24, 2016, at 5:01 PM, 'Susan Zimmerman' via CMLHope wrote: Thanks for the encouragement. I may write him but not confident he would have any different answers. Dr. Jessica Altman is completely on top of things for me. I"ve been to two other specialists at Nwestern to dig into causesnothing unusual except cavernous malformations turns up. Have checked everything at least three times over the yrs. So again off meds hopefully for a long time unless #'s go high. Tomorrow getting tested again w bcr/abl. Best answers are through prayer!!! Hope all is well with you! Susan F. Zimmerman "All who humble themselves before the Lord shall be given every blessing, and shall have wonderful peace." Ps.37:11 On Thursday, March 17, 2016 'Susan Rosenthal' via CMLHope wrote: Susan: Are you able to have an appointment with Dr. Druker in Portland, Oregon? At least email him Hugs, Susan Rosenthal Have a wonderful day -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails
Re: [CMLHope] To Susan Zimmerman
Marcie, I'm hoping for some quiet time for you and your hubby. Not exactly dull, but peaceful! Susan F. Zimmerman "All who humble themselves before the Lord shall be given every blessing, and shall have wonderful peace." Ps.37:11 On Thursday, March 24, 2016 'Marcie Goodman' via CMLHope wrote: Susan, as always, I have you and Roy in my prayers. Please let us know how your test turns out. I just got out of hospital because my red cells bottomed out and I became very sick. So some transfusions and several days later, just came home. I will be undergoing more tests, might have gallbladder problem which arose after I was discharged, naturally! Ultrasound tomorrow. Never dull but always interesting! Marcie Sent from my iPhone On Mar 24, 2016, at 5:01 PM, 'Susan Zimmerman' via CMLHope wrote: Thanks for the encouragement. I may write him but not confident he would have any different answers. Dr. Jessica Altman is completely on top of things for me. I"ve been to two other specialists at Nwestern to dig into causesnothing unusual except cavernous malformations turns up. Have checked everything at least three times over the yrs. So again off meds hopefully for a long time unless #'s go high. Tomorrow getting tested again w bcr/abl. Best answers are through prayer!!! Hope all is well with you! Susan F. Zimmerman "All who humble themselves before the Lord shall be given every blessing, and shall have wonderful peace." Ps.37:11 On Thursday, March 17, 2016 'Susan Rosenthal' via CMLHope wrote: Susan: Are you able to have an appointment with Dr. Druker in Portland, Oregon? At least email him Hugs, Susan Rosenthal Have a wonderful day -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] To Susan Zimmerman
So sorry to hear about a hospital stay. These are not places we want to hang outlow red cells does not sound good, but I'm sure you have great docs. Was that low a gradual thing or quick? Seems they should or could have caught it before you bottomed out if it was gradual. I sure hope it turns out the gallbladder is fine. He still heals today so I'll pray! You could have gotten time off work in an easier way, I'm sure. Hope you gets lots of extra tlc and consider this part of it!!! You are special to me and many others on here! Keep us updated!!! 18's and fight on, Susan F. Zimmerman "All who humble themselves before the Lord shall be given every blessing, and shall have wonderful peace." Ps.37:11 On Thursday, March 24, 2016 'Marcie Goodman' via CMLHope wrote: Susan, as always, I have you and Roy in my prayers. Please let us know how your test turns out. I just got out of hospital because my red cells bottomed out and I became very sick. So some transfusions and several days later, just came home. I will be undergoing more tests, might have gallbladder problem which arose after I was discharged, naturally! Ultrasound tomorrow. Never dull but always interesting! Marcie Sent from my iPhone On Mar 24, 2016, at 5:01 PM, 'Susan Zimmerman' via CMLHope wrote: Thanks for the encouragement. I may write him but not confident he would have any different answers. Dr. Jessica Altman is completely on top of things for me. I"ve been to two other specialists at Nwestern to dig into causesnothing unusual except cavernous malformations turns up. Have checked everything at least three times over the yrs. So again off meds hopefully for a long time unless #'s go high. Tomorrow getting tested again w bcr/abl. Best answers are through prayer!!! Hope all is well with you! Susan F. Zimmerman "All who humble themselves before the Lord shall be given every blessing, and shall have wonderful peace." Ps.37:11 On Thursday, March 17, 2016 'Susan Rosenthal' via CMLHope wrote: Susan: Are you able to have an appointment with Dr. Druker in Portland, Oregon? At least email him Hugs, Susan Rosenthal Have a wonderful day -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] To Susan Zimmerman
Hi Susan and Marcie Prayers for both of you. Sorry for your hospital stay but we need them when we get sick. I hope you find the root of your problems. I had my gallbladder out many years ago. That's some bad pain. Good luck. Susan good luck off meds. Hang in there and fight. Blessings My Motto: Faith and Pills❤️ With 💗Jeanie 🐟🐟18,s Chi Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center > On Mar 24, 2016, at 5:07 PM, 'Marcie Goodman' via CMLHope > wrote: > > Susan, as always, I have you and Roy in my prayers. Please let us know how > your test turns out. > > I just got out of hospital because my red cells bottomed out and I became > very sick. So some transfusions and several days later, just came home. I > will be undergoing more tests, might have gallbladder problem which arose > after I was discharged, naturally! Ultrasound tomorrow. Never dull but > always interesting! > > Marcie > > > > Sent from my iPhone > >> On Mar 24, 2016, at 5:01 PM, 'Susan Zimmerman' via CMLHope >> wrote: >> >> Thanks for the encouragement. I may write him but not confident he would >> have any different answers. Dr. Jessica Altman is completely on top of >> things for me. I"ve been to two other specialists at Nwestern to dig into >> causesnothing unusual except cavernous malformations turns up. Have >> checked everything at least three times over the yrs. So again off meds >> hopefully for a long time unless #'s go high. >> >> Tomorrow getting tested again w bcr/abl. Best answers are through prayer!!! >> >> Hope all is well with you! >> >> Susan F. Zimmerman >> "All who humble themselves before the Lord shall be given every blessing, >> and shall have wonderful peace." Ps.37:11 >> >> >> >> On Thursday, March 17, 2016 'Susan Rosenthal' via CMLHope >> wrote: >> >> Susan: >> >> Are you able to have an appointment with Dr. Druker in Portland, Oregon? >> >> At least email him >> >> Hugs, >> Susan Rosenthal >> >> Have a wonderful day >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com.
Re: [CMLHope] To Susan Zimmerman
Susan, as always, I have you and Roy in my prayers. Please let us know how your test turns out. I just got out of hospital because my red cells bottomed out and I became very sick. So some transfusions and several days later, just came home. I will be undergoing more tests, might have gallbladder problem which arose after I was discharged, naturally! Ultrasound tomorrow. Never dull but always interesting! Marcie Sent from my iPhone > On Mar 24, 2016, at 5:01 PM, 'Susan Zimmerman' via CMLHope > wrote: > > Thanks for the encouragement. I may write him but not confident he would have > any different answers. Dr. Jessica Altman is completely on top of things for > me. I"ve been to two other specialists at Nwestern to dig into > causesnothing unusual except cavernous malformations turns up. Have > checked everything at least three times over the yrs. So again off meds > hopefully for a long time unless #'s go high. > > Tomorrow getting tested again w bcr/abl. Best answers are through prayer!!! > > Hope all is well with you! > > Susan F. Zimmerman > "All who humble themselves before the Lord shall be given every blessing, and > shall have wonderful peace." Ps.37:11 > > > > On Thursday, March 17, 2016 'Susan Rosenthal' via CMLHope > wrote: > > Susan: > > Are you able to have an appointment with Dr. Druker in Portland, Oregon? > > At least email him > > Hugs, > Susan Rosenthal > > Have a wonderful day > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
RE: [CMLHope] To Susan Zimmerman
Thanks for the encouragement. I may write him but not confident he would have any different answers. Dr. Jessica Altman is completely on top of things for me. I"ve been to two other specialists at Nwestern to dig into causesnothing unusual except cavernous malformations turns up. Have checked everything at least three times over the yrs. So again off meds hopefully for a long time unless #'s go high. Tomorrow getting tested again w bcr/abl. Best answers are through prayer!!! Hope all is well with you! Susan F. Zimmerman "All who humble themselves before the Lord shall be given every blessing, and shall have wonderful peace." Ps.37:11 On Thursday, March 17, 2016 'Susan Rosenthal' via CMLHope wrote: Susan: Are you able to have an appointment with Dr. Druker in Portland, Oregon? At least email him Hugs, Susan Rosenthal Have a wonderful day -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Hi Everyone its been awhile
Hi Shannon and great to hear from you. So happy Gleevec is working. It quit working for me after 5 years as you probably remember. I am now on one of the new generation of drugs called Ponatinib. It is working for me for one year now. You are still a young chick. Keep fighting and taking pictures. Your son sounds wonderful. Love and happy Easter to you!!! My Motto: Faith and Pills❤️ With 💗Jeanie 🐟🐟18,s Chi Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center > On Mar 24, 2016, at 6:41 AM, Shannon L wrote: > > I checked out a few posts good to see a few I remember. I hope everyone is > doing well. > I was dx 1998 sone was 15mths he is now 19 turning 20 at the end of the year > I have just past my 18yr of CML. > Im since on Glivec 400mg and still in remission ( with a few problems as to > be expected. > > I will have some major financial decisions to make soon but I have seen my > son complete high school and he is now studying for a yr at TAFE and working > part time now if he would only get his car licence but I will probably worry > more when he gets it. > > I have my own photography business which I work around my health as much as I > can I find as I get older now 56 I do find it harder I recently had the worst > chest infection that I can remember. > > I am still dreaming of doing some travelling OS and around Australia so I > hope I can make this happen > > I wish everyone a safe easter > love to all Shannon xo > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
[CMLHope] Hi Everyone its been awhile
I checked out a few posts good to see a few I remember. I hope everyone is doing well. I was dx 1998 sone was 15mths he is now 19 turning 20 at the end of the year I have just past my 18yr of CML. Im since on Glivec 400mg and still in remission ( with a few problems as to be expected. I will have some major financial decisions to make soon but I have seen my son complete high school and he is now studying for a yr at TAFE and working part time now if he would only get his car licence but I will probably worry more when he gets it. I have my own photography business which I work around my health as much as I can I find as I get older now 56 I do find it harder I recently had the worst chest infection that I can remember. I am still dreaming of doing some travelling OS and around Australia so I hope I can make this happen I wish everyone a safe easter love to all Shannon xo -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
