Hi Beth My flu drug on too. Do you have a lot of mucus? I was in bed for a month it seemed. Get better. Drink lots of water.
My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center > On Jul 17, 2016, at 11:37 PM, bkbarney via CMLHope <cmlhope@googlegroups.com> > wrote: > > Thanks Jeanie....Marty..please respond so we know what is going on. we are > thinking of you!!! > > Hope all is well with everyone...still dragging with this ongoing virus..am > going to restart sprycel cell very soon...will keep everyone updated..love, > Beth > > > -----Original Message----- > From: 'Jeanie' via CMLHope <cmlhope@googlegroups.com> > To: cmlhope <cmlhope@googlegroups.com> > Sent: Fri, Jul 15, 2016 11:30 am > Subject: Re: [CMLHope] Fatigue side effect testing nilotinib > > Hi Beth and so sorry you have been so ill. I too had an awful virus that > started with a sore throat. I had to take round of antibiotics but was so > full of mucus and sick for weeks. Maybe it's a new type of virus because I > had all my flu shots. > I still have this awful side pain so another rounds of scans soon. They show > nothing so far. > I'm in MMR but still have some detectable cells. Fight in sweet warrior. We > are worried about Marty. Marty are you there??? > > My Motto: > Faith and Pills > With Love > 🐠18's > Dx 1/2004 CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib 1/2015 > Doctor Balducci Moffitt Cancer Center > > On Jul 13, 2016, at 1:36 PM, bkbarney via CMLHope <cmlhope@googlegroups.com> > wrote: > > Dear Jeanie, > > Hope you are feeling better...and staying positive! Sorry it took so long for > me to write back to you and everyone. I got really sick....virus that morphed > into a bacterial infection...it was scary...103 fever for close to a week. I > am at week five, and finally feel about 80 percent better. My BCR Abl results > came back not showing on June 6th and on June 8th I got sick..so I went off > sprycel for a drug holiday during this illness....now preparing to re-uptake > meds this weekend. I did another BCR-ABl one month later..last week..still > waiting to see the results of that one..wondering if this illness could have > any effect on cancer. We will find out... > > Otherwise, status quo, very high CPK, exhausted all the time from it...but > choosing not to go on high dose steroids or immune suppressing drugs at this > time...so, while I may change my mind in the future, for now...I remain > positive and trying to fight the good fight. If CPK goes over 1000 then it > starts kidney damage and thus, I will have no choice but to do one of the > above interventions. > > that's my story, trying to stay cool, and feel better from this virus and get > back to work. I have 6000 emails waiting...unbelievable...I lost 6 weeks in a > blink! > > Hope life has calmed down for those struggling this summer and that we all > can find some joy in the weeks to come! I hear there are some sweet movies > out guaranteed to make you smile...so I am going to look into this.......:) > > Warmest regards and 18'as Beth. > > -----Original Message----- > From: 'Jeanie' via CMLHope <cmlhope@googlegroups.com> > To: cmlhope <cmlhope@googlegroups.com> > Sent: Tue, Jul 12, 2016 11:04 am > Subject: Re: [CMLHope] Fatigue side effect testing nilotinib > > Anyone there. Testing > > My Motto: > Faith and Pills > With Love > 🐠18's > Dx 1/2004 CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib 1/2015 > Doctor Balducci Moffitt Cancer Center > > On Jul 6, 2016, at 7:12 PM, Ricardo Gadelha <ricardodgade...@gmail.com> wrote: > > Thank you all for the feedback. I am trying acupunture and guaraná. > Em 28 de jun de 2016 11:39, "'Jeanie' via CMLHope" <cmlhope@googlegroups.com> > escreveu: >> When I was first in Gleevec I wanted to go visit my daughter. She called >> and I told her I was too tired to pack. She said don't pack get some rest. >> So my advise to you is don't do anything you don't have to do. Rest as much >> as you can. Your body is fighting a horrible disease and its tired. Listen >> to your body. Try to exercise some it don't over due. Good luck. >> >> My Motto: >> Faith and Pills >> With Love >> 🐠18's >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/2015 >> Doctor Balducci Moffitt Cancer Center >> >> On Jun 27, 2016, at 8:39 PM, kathy walls <cand...@originalsbykate.com> wrote: >> >> I hear you!!! I had the fatigue the whole time I was on the drug. When I >> changed drugs because of the multitude of side effects I had the fatigue >> lessened dramatically. I'm on gleevec 200mg daily and while I'm not >> considered in remission I feel soooo much better I'll take the #'s I got and >> run >> >> Sent from my iPhone >> >> On Jun 27, 2016, at 7:54 PM, Ricardo Gadelha <ricardodgade...@gmail.com> >> wrote: >> >> Hi folks, >> Does anyone know how to deal with fatigue that comes with nilotinib 400 mg >> bid? >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to 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