Re: [CMLHope] Beth

2018-05-10 Thread bkbarney via CMLHope
Just beautiful Marty!!! I love the stained glass...


thanks for sharing!!



-Original Message-
From: Marty Gartenberg 
To: cmlhope 
Sent: Wed, May 9, 2018 8:40 am
Subject: Re: [CMLHope] Beth







On Wed, May 9, 2018 at 9:38 AM, Marty Gartenberg  wrote:

Beth, Jeanie your learning from eachother and i am also learning from the both 
of you as you are learning from me. This is what it is. I always say that life 
is a learning process and well, it is. You must learn something new every day 
of your life.


Now i would like to send you some pictures that i took of some of my projects 
that me and my wife did together mostly when i wasn't feeling very well, but i 
still did it. Shelly did the cutting for the most part and i did the grinding 
and fitting and the soldering, sometimes switching off but we did it together. 
And it made both of us feel that much better. 


Everything that you may see in these three pictures are things that we 
personally accomplished by ourselves including the crown moldings as well as 
the moldings on the ceiling. Both of us never said that maybe  we should stop, 
but sat down and rested for a while and had lunch or watched TV and then got 
back to "business". Sure it sometimes taxed me out but i still continued on for 
weeks at a time or even months. 


There is a point to all of this, just get your priorities together and there is 
nothing that you can't accomplish.


18's,


Marty 




On Wed, May 9, 2018 at 6:40 AM, 'Jeanie' via CMLHope  
wrote:

Hi Beth and all 
I know exactly what you mean Beth.  Sometimes I just want to go back to bed and 
do nothing. 
I have found however if you make a plan of what you want to accomplish that day 
it helps a lot. Even write it down.  Start on it even if you don’t feel like 
finishing it.  
One time I made a plan to read the Bible again all the way through. I have read 
it before but this was just another plan. So each day I read a little and soon 
I had accomplished my plan. Well not soon but I did it. 
Getting through Job is difficult but well worth it especially since he fought 
disease daily. He had boils all over his body. Can you imagine!
I love the part where it got to Leviathan.   My granddaughter even drew me a 
picture of him.  
Now today is walking and gardening as long as I feel like it. If I get tired or 
weary I just rest.  
I remember when I was in the hospital and they wheeled that big old blood 
cleansing machine in my room I was in for it. They would hook it up and I had 
to my still for about 4 hours while my blood ran through this machine. I 
thought it would never be over.  It never did any good. The next day my 
platelets and whites were right back up. I learned from Moffitt they don’t even 
do that. They just give you the pills and hope for the best.  
This last chemo Ponatinib has been the best chemo yet with the least side 
effects except for hair falling out. 
What do you take?  I developed mutants to all the other chemo
Just each day at a time and make a plan. Prayers. 
You have helped me a lot Beth. 
❤️


My Motto:
Faith and Pills
With Love
🐠18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015
New Doctor--Dr Martine Extermann
Moffitt Cancer  center


0 CBL. ABL



On May 8, 2018, at 11:40 PM, Marty Gartenberg  wrote:



Just look at what your writing...
Each and every day is another day so keep on blessing your medication because 
without it then it wouldn't be another day. Don't despair because you may feel 
like life is trying to give you a difficult time but then there are other days 
that that will restore your faith. 


I have been there and what i found out is that i am still here and by the way 
so are you.


I have always told everyone that Leukemia is a powerful disease and so it is 
BUT so is your mind... Use it! 


18's,


Marty


PS why do you think that all of my posts ends up with 18's?


Because it means LIFE.



On Tue, May 8, 2018 at 10:52 PM, bkbarney via CMLHope 
 wrote:

Dear Marty,




I sing praises every dayfor my life and for sprycel. I even bless my 
medication in my hand before I take it each night.. my little ritual.  the side 
effects of the medication coupled with the two botched surgeries have left me 
with a great deal to navigate daily. I know I am blessed. But today I am just 
very very very weary. Tomorrow is another day...


Hope everyone is well and enjoying spring...one day at a time...breath in the 
flowers and enjoy!!!


Love to each and every one of you...and thanks for reading..


18's B





-Original Message-
From: 'Jeanie' via CMLHope 
To: cmlhope 
Sent: Tue, May 8, 2018 2:21 pm
Subject: Re: [CMLHope] Beth


Hi Beth and great news. Are you any pain?  Marty I wanted to asked you if you 
they gave you any meds for pain?  Did you ever have to take anything for 
leukemia ever again? Can you walk well?  
My daughter bought me a wheel chair just in case I get to tired of walking.  
D

Re: [CMLHope] Beth

2018-05-10 Thread Marty Gartenberg
Hi Beth,

Believe me once you put your mind to it there isn't anything that you can't
do. All that you have to do is to try it. Yes at first you may fail but
once you get it into your head you will thieve.
It is a matter of will.
A story for you: Several years ago right after my kidney transplant my wife
and i went furniture shopping when i suddenly felt dizzy and clasped to the
floor, i tried to get up but i just managed to crawl on the floor. Shelly
was really trying to help me to a seat and the manager came over and told
us that he just called 911. Within less then ten minutes i was in an
ambulance on my way to the hospital. When one of the paramedics asked me
how i was feeling i didn't know what he was saying, it was like someone was
mumbling to me. Once they got me to the hospital they seemed to be moving
there mouths but all that i heard were these funny sounds coming out of
their mouths. When i came out of my coma i couldn't understand English. In
my mind i was trying to ask for a glass of water but didn't know how to say
it

It was very frustrating and i knew in my mind that i could talk but not
anything with English but i did remember that i was still able to speak and
understand five different foreign languages and the Morse Code because ever
since i was a young man i was a ham radio operator, but how could i try to
convey it to anyone. I was in bed and badly needed some water. So i started
yelling in different languages and tapping on the table with my fingers in
Morse Code but only my right hand would work, until one of the nurses
understood what i was asking for in Hungarian one of the languages that my
parents taught me when i was a young child. From that day on while i was
still in the hospital there was always a pitcher of cold water on my table.

It took me over a year to teach myself how to learn English again, and i
did it all by myself. An usual thing happened to me when i went to see my
ophthalmologist because he was checking for any symptom that the stroke may
have caused to my eyes, but he found nothing thank GOD. I then mentioned to
him what had happened to me when i could not speak
English This is what he told me. He has another patient that also had a
similar stroke in the same region of the brain that i had mine in. He then
tells me that this man suddenly started speaking words with a heavy French
accent but not French but English with a heavy French accent. This lasted
for about almost two years and he is back to normal. Amazing what can
happen.

So this is another example of what your mind can do. All you have to do it
to try and help yourself.

To my understanding the human brain uses about 10% of it's capacity, more
or less. If you know to the contrary please let me know.

18's,

Marty

On Thu, May 10, 2018 at 9:59 PM, bkbarney via CMLHope <
cmlhope@googlegroups.com> wrote:

> Just beautiful Marty!!! I love the stained glass...
>
> thanks for sharing!!
>
>
>
> -Original Message-
> From: Marty Gartenberg 
> To: cmlhope 
> Sent: Wed, May 9, 2018 8:40 am
> Subject: Re: [CMLHope] Beth
>
>
>
> On Wed, May 9, 2018 at 9:38 AM, Marty Gartenberg  wrote:
>
> Beth, Jeanie your learning from eachother and i am also learning from the
> both of you as you are learning from me. This is what it is. I always say
> that life is a learning process and well, it is. You must learn something
> new every day of your life.
>
> Now i would like to send you some pictures that i took of some of my
> projects that me and my wife did together mostly when i wasn't feeling very
> well, but i still did it. Shelly did the cutting for the most part and i
> did the grinding and fitting and the soldering, sometimes switching off but
> we did it together. And it made both of us feel that much better.
>
> Everything that you may see in these three pictures are things that we
> personally accomplished by ourselves including the crown moldings as well
> as the moldings on the ceiling. Both of us never said that maybe  we should
> stop, but sat down and rested for a while and had lunch or watched TV and
> then got back to "business". Sure it sometimes taxed me out but i still
> continued on for weeks at a time or even months.
>
> There is a point to all of this, just get your priorities together and
> there is nothing that you can't accomplish.
>
> 18's,
>
> Marty
>
> On Wed, May 9, 2018 at 6:40 AM, 'Jeanie' via CMLHope <
> cmlhope@googlegroups.com> wrote:
>
> Hi Beth and all
> I know exactly what you mean Beth.  Sometimes I just want to go back to
> bed and do nothing.
> I have found however if you make a plan of what you want to accomplish
> that day it helps a lot. Even write it down.  Start on it even if you don’t
> feel like finishing it.
> One time I made a plan to read the Bible again all the way through. I have
> read it before but this was just another plan. So each day I read a little
> and soon I had accomplished my plan. Well not soon but I did it.
> Getting through Job is difficult but well wort