Re: [CMLHope] Breathing Difficulties [Dasatinib]
Yes I have heard they have to drain the fluid off. Good luck. My Motto: Faith and Pills With Love Jeanie 🐠free 18’s to Marty Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL Taking 0.05mg 50 mcg levothyroxine July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal > On Jul 29, 2018, at 12:35 AM, bkbarney via CMLHope > wrote: > > Yes Ragavan, I too had the same problem. I can only take a small dose of > Dasatanib because I get the plural effusions and swelling around the heart > from the medication. It is a known side effect that can creep up any time. > Many patients do just fine on a very specific dose, if they raise it, it can > cause this problem you are describing. These TKi's can also impact the heart > in other ways, but I strongly suggest that you see your doc and ask for a > cardio-oncologist to help you. Those are cardiologists that specialize in how > these cancer drugs impact the heart. The standard for sprycel patients, is > that we do an echo cardiogram at least twice a year to make sure the heart > is pumping well and there is no sign of PE etc. > > I do not know when you next appointment is scheduled, but I would not wait to > long to get in to see your doc. It could be from the medication increase, it > could be something else, but knowing is important, because swift action is > needed so you do not under attend a potential big problem. If you cannot > take a deep breath, and this is NOT your baseline, then that's a big problem. > > Sometimes we must push our doctors and fight to advocate for ourselves, to > get the right testing, etc... > > If your doctor chose to push up your dose based upon your BCR-ABl testing, > then talk with them. There are several TKI's out there and two in trials... > > Sending you strength, and peacego see your doc!!! > > Worried about you in Chicago.. > > Love to all, > > 18's Beth. > -Original Message- > From: Joyce Mesnarich > To: cmlhope > Sent: Sat, Jul 28, 2018 3:22 pm > Subject: Re: [CMLHope] Breathing Difficulties [Dasatinib] > > Gopalsamy, > I suggest you make an appointment with your CML specialist right now. My > husband had the same experience with Dasatinib. Turned out it had caused > fluid around his heart. Please get this checked out immediately. > > Joyce in Southern Illinois (USA) > > > On Jul 28, 2018, at 8:26 AM, Gopalsamy Ragavan wrote: > > I was taking 50mg Dasatinib per day. An year back it was increased to 75mg. > For the last few months breathing difficulty is keep increasing. I am not > able to take full breath. It is always half breath. I will discuss with my > doctor in the coming visit. > > Did anybody else face the same problem? How did you handle? Please help. > > thanks, > Ragavan > > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHop
Re: [CMLHope] Siggy
Thanks Joyce. She’s a treasure too My Motto: Faith and Pills With Love Jeanie 🐠free 18’s to Marty Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL Taking 0.05mg 50 mcg levothyroxine July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal > On Jul 28, 2018, at 4:19 PM, Joyce Mesnarich wrote: > > Your daughter is a very gifted artist. Great job. Thanks for sharing. > Joyce in Southern Illinois > > >> On Jul 28, 2018, at 12:24 PM, 'Jeanie' via CMLHope >> wrote: >> >> My granddaughter is an artist. This is her rendition of Siggy as we call >> him. >> Have a great Evening everyone. >> >> >> >> >> My Motto: >> Faith and Pills >> With Love >> Jeanie >> 🐠free >> 18’s to Marty >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/ 2015 15 mg >> New Doctor--Dr Martine Extermann >> Moffitt Cancer center sept 2017 >> Dr Balducci retired >> Dr Gedia PCD >> 0 CBL. ABL >> Taking 0.05mg 50 mcg levothyroxine >> July 2018 dx with thyroid disease tsh 13 >> T4-normal t3-normal >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Breathing Difficulties [Dasatinib]
Yes! My Motto: Faith and Pills With Love Jeanie 🐠free 18’s to Marty Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL Taking 0.05mg 50 mcg levothyroxine July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal > On Jul 28, 2018, at 4:22 PM, Joyce Mesnarich wrote: > > Gopalsamy, > I suggest you make an appointment with your CML specialist right now. My > husband had the same experience with Dasatinib. Turned out it had caused > fluid around his heart. Please get this checked out immediately. > > Joyce in Southern Illinois (USA) > > >> On Jul 28, 2018, at 8:26 AM, Gopalsamy Ragavan wrote: >> >> I was taking 50mg Dasatinib per day. An year back it was increased to 75mg. >> For the last few months breathing difficulty is keep increasing. I am not >> able to take full breath. It is always half breath. I will discuss with my >> doctor in the coming visit. >> >> Did anybody else face the same problem? How did you handle? Please help. >> >> thanks, >> Ragavan >> >> >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
