Re: [CMLHope] Am I strong? Are we all strong? Read on...

2016-02-02 Thread 'Icandoallttc' via CMLHope
That was great Marty.  I'm a great Believer in that. I know from personal 
experience that this is true.  
When I was young I went off to play with friends. My mom decided to send my 
brother who was 2 years older than to go and walk me home. 
On the way to get me he stopped at a store to asked if they had any quick jobs 
that he could do. They told him no so he started out on the walk to get me. He 
hadn't walked very far when a speeding car came up behind him. They honked 
their horn but instead of it warning him it startled him and he jumped in front 
of the car.  He was killed instantly.  He was my best friend and I la lost a 
lot that day.  If he hadn't stopped at the store he would never have been in 
the spot that killed him.  I take comfort in knowing that I will see him in 
heaven. 
β€οΈπŸ’‹πŸ˜‡πŸ©πŸ˜€πŸ“πŸ©πŸ©πŸŽΌ

My Motto: Faith and Pills❀️
With πŸ’—Jeanie 🐟🐟18,s 
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna  9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center

> On Feb 1, 2016, at 5:53 PM, Marty Gartenberg  wrote:
> 
> Hi Everyone,
> 
> I have a question for everyone. Do you know where GOD wants us all to be? I 
> am sending you an attachment and it has to due with a personal experience 
> that I had with a very close friend of mine, and how he was saved when the 
> world trade center went down. We are all here for a reason.
> 
> 18's
> 
> Marty
> 
>> On Wed, Jan 20, 2016 at 11:31 PM, Richard H  wrote:
>> No I have not heard of this.  If this is true then I just collected another 
>> odd duck in my collection.  I still have my appendix. 
>> 
>>> On Wednesday, January 20, 2016 at 12:46:52 PM UTC-6, Icandoallttc wrote:
>>> Yes I had the rash and boils and ect.  Then I was put in Tasigna.  It was 
>>> awful for me.  Sprycel was the best as far as side effects. 
>>> I just saw a show that your appendix was your immune systems fighter and if 
>>> you didn't have one you could get leukemia and ect.  My appendix was taken 
>>> out when I had my gall bladder removed.  Anyone else heard this!!?
>>> 
>>> 
>>> My Motto: Faith and Pills❀️
>>> With πŸ’—Jeanie 🐟🐟18,s 
>>> Dx 1/2004. CML Leukemia
>>> Started Gleevec 2/2004
>>> Started Tasigna  9/2009
>>> Started Sprycel 11/2009
>>> Started Ponatinib January 2015
>>> Dr Balducci Moffitt Cancer Center
>>> 
>>>> On Jan 20, 2016, at 1:18 PM, perk  wrote:
>>>> 
>>>> When I was first diagnosed, I was put on Gleevec and I broke out in a 
>>>> severe rash, as well as many other uncomfortable side effects. I was then 
>>>> put on Sprycel and while it has some of the same side effects, it is 
>>>> manageable and tolerable. I have lived with it for 7 years. Now there are 
>>>> other options. Find one that works for you and have a good life!
>>>> 
>>>> JD in TX 
>>>> 
>>>>> On Saturday, January 16, 2016 at 12:27:27 PM UTC-6, candles wrote:
>>>>> Today is my 1 yr anniversary of being diagnosed with CML, I'm here but 
>>>>> not happily.  So many side effects. Makes you wonder if it's worth it
>>>>> 
>>>>> Sent from my iPhone
>>>>> 
>>>>>> On Jan 16, 2016, at 12:23 AM, Pete Pabon  wrote:
>>>>>> 
>>>>>> Diagnosed 1999
>>>>>> Gleevec 2000
>>>>>> 15 years still no phillies found
>>>>>> 
>>>>>> 
>>>>>> Date: Fri, 15 Jan 2016 10:18:43 -0500
>>>>>> Subject: Re: [CMLHope] Am I strong? Are we all strong? Read on...
>>>>>> From: wa2...@gmail.com
>>>>>> To: cml...@googlegroups.com
>>>>>> 
>>>>>> Well now I got a much refreshing title. Being that everyone is a leader 
>>>>>> of this group so does it go to help all of us together.
>>>>>> 
>>>>>> You know that it's been so long that I forgot about Rob. I do hope to 
>>>>>> hear from him. I also had no idea about his mother having leukemia and I 
>>>>>> hope that she is doing well. 
>>>>>> 
>>>>>> So many new things have happened since we were members and as I remember 
>>>>>> this group was in fact a yahoo group but I just can't put my finger if 
>>>>>> it was for sure. Some time has passed and my memory has not been my 
>>>>>> greatest asset so I would really like to hear from Rob.
>>>>>> 
>>&g

Re: [CMLHope] Am I strong? Are we all strong? Read on...

2016-01-21 Thread Marty Gartenberg
Well my compliments to you, having an appendix is part of your immune
system. I still have mine but no tonsils or spleen and I am severely immune
compromised because of my BMT many years ago. So the answer is yes about
having an appendix.

Did you also know that saliva, tears, sweat even your skin not to mention
more, are parts of your immune system? As far as getting cancer specially
CML as you mentioned, I suppose that it's possible (from any cancer)
forming.

18's,

Marty



No I have not heard of this.  If this is true then I just collected another
odd duck in my collection.  I still have my appendix.

On Wed, Jan 20, 2016 at 11:31 PM, Richard H  wrote:

> No I have not heard of this.  If this is true then I just collected
> another odd duck in my collection.  I still have my appendix.
>
> On Wednesday, January 20, 2016 at 12:46:52 PM UTC-6, Icandoallttc wrote:
>>
>> Yes I had the rash and boils and ect.  Then I was put in Tasigna.  It was
>> awful for me.  Sprycel was the best as far as side effects.
>> I just saw a show that your appendix was your immune systems fighter and
>> if you didn't have one you could get leukemia and ect.  My appendix was
>> taken out when I had my gall bladder removed.  Anyone else heard this!!?
>>
>>
>> My Motto: Faith and Pills❀️
>> With πŸ’—Jeanie 🐟🐟18,s
>> Dx 1/2004. CML Leukemia
>> Started Gleevec 2/2004
>> Started Tasigna  9/2009
>> Started Sprycel 11/2009
>> Started Ponatinib January 2015
>> Dr Balducci Moffitt Cancer Center
>>
>> On Jan 20, 2016, at 1:18 PM, perk  wrote:
>>
>> When I was first diagnosed, I was put on Gleevec and I broke out in a
>> severe rash, as well as many other uncomfortable side effects. I was then
>> put on Sprycel and while it has some of the same side effects, it is
>> manageable and tolerable. I have lived with it for 7 years. Now there are
>> other options. Find one that works for you and have a good life!
>>
>> JD in TX
>>
>> On Saturday, January 16, 2016 at 12:27:27 PM UTC-6, candles wrote:
>>>
>>> Today is my 1 yr anniversary of being diagnosed with CML, I'm here but
>>> not happily.  So many side effects. Makes you wonder if it's worth it
>>>
>>> Sent from my iPhone
>>>
>>> On Jan 16, 2016, at 12:23 AM, Pete Pabon  wrote:
>>>
>>> *Diagnosed 1999*
>>> *Gleevec 2000*
>>>
>>> *15 years still no phillies found*
>>>
>>> --
>>> Date: Fri, 15 Jan 2016 10:18:43 -0500
>>> Subject: Re: [CMLHope] Am I strong? Are we all strong? Read on...
>>> From: wa2...@gmail.com
>>> To: cml...@googlegroups.com
>>>
>>> Well now I got a much refreshing title. Being that everyone is a leader
>>> of this group so does it go to help all of us together.
>>>
>>> You know that it's been so long that I forgot about Rob. I do hope to
>>> hear from him. I also had no idea about his mother having leukemia and I
>>> hope that she is doing well.
>>>
>>> So many new things have happened since we were members and as I remember
>>> this group was in fact a yahoo group but I just can't put my finger if it
>>> was for sure. Some time has passed and my memory has not been my greatest
>>> asset so I would really like to hear from Rob.
>>>
>>> Just think look at some of the people that were still around then (like
>>> yourself) that are still around now. Hey what ever happened to CML will be
>>> only be around for 5 years until the "Lukie Dragon" will come and get you.
>>>
>>>
>>> Do you remember that saying a very long time ago? Well that for sure has
>>> has changed with all of these advancements using these TKI's and what is
>>> coming down the pipe next.
>>>
>>> I'm telling you it will be that, no matter what you are and what you
>>> believe in there will come a time near to now that this "Dragon" will meet
>>> it's demise.
>>>
>>> You mark my words.
>>>
>>> 18's,
>>>
>>> Marty
>>>
>>> On Fri, Jan 15, 2016 at 7:02 AM, 'Icandoallttc' via CMLHope <
>>> cml...@googlegroups.com> wrote:
>>>
>>> Hi Marty and good to hear from you.  We were wondering what happened.
>>> I believe the founder and narrator of this group is Rob.  His mother had
>>> leukemia.  Are you there Rob???
>>> Most of us have been here a long time.  I believe the group was once a
>>> yahoo group.
>>&g

Re: [CMLHope] Am I strong? Are we all strong? Read on...

2016-01-20 Thread Richard H
No I have not heard of this.  If this is true then I just collected another 
odd duck in my collection.  I still have my appendix. 

On Wednesday, January 20, 2016 at 12:46:52 PM UTC-6, Icandoallttc wrote:
>
> Yes I had the rash and boils and ect.  Then I was put in Tasigna.  It was 
> awful for me.  Sprycel was the best as far as side effects. 
> I just saw a show that your appendix was your immune systems fighter and 
> if you didn't have one you could get leukemia and ect.  My appendix was 
> taken out when I had my gall bladder removed.  Anyone else heard this!!?
>
>
> My Motto: Faith and Pills❀️
> With πŸ’—Jeanie 🐟🐟18,s 
> Dx 1/2004. CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna  9/2009
> Started Sprycel 11/2009
> Started Ponatinib January 2015
> Dr Balducci Moffitt Cancer Center
>
> On Jan 20, 2016, at 1:18 PM, perk > wrote:
>
> When I was first diagnosed, I was put on Gleevec and I broke out in a 
> severe rash, as well as many other uncomfortable side effects. I was then 
> put on Sprycel and while it has some of the same side effects, it is 
> manageable and tolerable. I have lived with it for 7 years. Now there are 
> other options. Find one that works for you and have a good life!
>
> JD in TX 
>
> On Saturday, January 16, 2016 at 12:27:27 PM UTC-6, candles wrote:
>>
>> Today is my 1 yr anniversary of being diagnosed with CML, I'm here but 
>> not happily.  So many side effects. Makes you wonder if it's worth it
>>
>> Sent from my iPhone
>>
>> On Jan 16, 2016, at 12:23 AM, Pete Pabon  wrote:
>>
>> *Diagnosed 1999*
>> *Gleevec 2000*
>>
>> *15 years still no phillies found*
>>
>> --
>> Date: Fri, 15 Jan 2016 10:18:43 -0500
>> Subject: Re: [CMLHope] Am I strong? Are we all strong? Read on...
>> From: wa2...@gmail.com
>> To: cml...@googlegroups.com
>>
>> Well now I got a much refreshing title. Being that everyone is a leader 
>> of this group so does it go to help all of us together.
>>
>> You know that it's been so long that I forgot about Rob. I do hope to 
>> hear from him. I also had no idea about his mother having leukemia and I 
>> hope that she is doing well. 
>>
>> So many new things have happened since we were members and as I remember 
>> this group was in fact a yahoo group but I just can't put my finger if it 
>> was for sure. Some time has passed and my memory has not been my greatest 
>> asset so I would really like to hear from Rob.
>>
>> Just think look at some of the people that were still around then (like 
>> yourself) that are still around now. Hey what ever happened to CML will be 
>> only be around for 5 years until the "Lukie Dragon" will come and get you. 
>>
>>
>> Do you remember that saying a very long time ago? Well that for sure has 
>> has changed with all of these advancements using these TKI's and what is 
>> coming down the pipe next.
>>
>> I'm telling you it will be that, no matter what you are and what you 
>> believe in there will come a time near to now that this "Dragon" will meet 
>> it's demise.  
>>
>> You mark my words.
>>
>> 18's,
>>
>> Marty
>>
>> On Fri, Jan 15, 2016 at 7:02 AM, 'Icandoallttc' via CMLHope <
>> cml...@googlegroups.com> wrote:
>>
>> Hi Marty and good to hear from you.  We were wondering what happened.  
>> I believe the founder and narrator of this group is Rob.  His mother had 
>> leukemia.  Are you there Rob??? 
>> Most of us have been here a long time.  I believe the group was once a 
>> yahoo group.  
>> We are all warriors and help each other when we can. 
>> This makes my 12 th year and I joined the group early on.  
>> And yes we are all leaders in our own way and pioneers with the tkis so 
>> that've can give our knowledge to the new warriors. 
>> I fight with faith and pills and I am a Christian. 
>> Much love.  
>> [image: Kiss mark][image: Smiling Face with Halo][image: Heavy black 
>> heart]️[image: Heart with ribbon][image: Growing heart]
>>
>> My Motto: Faith and Pills
>> Jeanie [image: Fish][image: Fish]18,s 
>> Dx 1/2004. CML Leukemia
>> Started Gleevec 2/2004
>> Started Tasigna  9/2009
>> Started Sprycel 11/2009
>> Started Ponatinib January 2015
>> Dr Balducci Moffitt Cancer Center
>>
>> On Jan 13, 2016, at 12:38 AM, Marty Gartenberg  wrote:
>>
>> For some reason my message did not come out so I am trying it once more, 
>> I do hope it does

Re: [CMLHope] Am I strong? Are we all strong? Read on...

2016-01-20 Thread 'Icandoallttc' via CMLHope
My doctor early on told me he had a patient on Gleevec that had his bones 
aching so bad he couldn't stand it.  

My Motto: Faith and Pills❀️
With πŸ’—Jeanie 🐟🐟18,s 
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna  9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center

> On Jan 20, 2016, at 1:18 PM, perk  wrote:
> 
> When I was first diagnosed, I was put on Gleevec and I broke out in a severe 
> rash, as well as many other uncomfortable side effects. I was then put on 
> Sprycel and while it has some of the same side effects, it is manageable and 
> tolerable. I have lived with it for 7 years. Now there are other options. 
> Find one that works for you and have a good life!
> 
> JD in TX 
> 
>> On Saturday, January 16, 2016 at 12:27:27 PM UTC-6, candles wrote:
>> Today is my 1 yr anniversary of being diagnosed with CML, I'm here but not 
>> happily.  So many side effects. Makes you wonder if it's worth it
>> 
>> Sent from my iPhone
>> 
>>> On Jan 16, 2016, at 12:23 AM, Pete Pabon  wrote:
>>> 
>>> Diagnosed 1999
>>> Gleevec 2000
>>> 15 years still no phillies found
>>> 
>>> 
>>> Date: Fri, 15 Jan 2016 10:18:43 -0500
>>> Subject: Re: [CMLHope] Am I strong? Are we all strong? Read on...
>>> From: wa2...@gmail.com
>>> To: cml...@googlegroups.com
>>> 
>>> Well now I got a much refreshing title. Being that everyone is a leader of 
>>> this group so does it go to help all of us together.
>>> 
>>> You know that it's been so long that I forgot about Rob. I do hope to hear 
>>> from him. I also had no idea about his mother having leukemia and I hope 
>>> that she is doing well. 
>>> 
>>> So many new things have happened since we were members and as I remember 
>>> this group was in fact a yahoo group but I just can't put my finger if it 
>>> was for sure. Some time has passed and my memory has not been my greatest 
>>> asset so I would really like to hear from Rob.
>>> 
>>> Just think look at some of the people that were still around then (like 
>>> yourself) that are still around now. Hey what ever happened to CML will be 
>>> only be around for 5 years until the "Lukie Dragon" will come and get you.  
>>>   
>>> 
>>> Do you remember that saying a very long time ago? Well that for sure has 
>>> has changed with all of these advancements using these TKI's and what is 
>>> coming down the pipe next.
>>> 
>>> I'm telling you it will be that, no matter what you are and what you 
>>> believe in there will come a time near to now that this "Dragon" will meet 
>>> it's demise.  
>>> 
>>> You mark my words.
>>> 
>>> 18's,
>>> 
>>> Marty
>>> 
>>> On Fri, Jan 15, 2016 at 7:02 AM, 'Icandoallttc' via CMLHope 
>>>  wrote:
>>> Hi Marty and good to hear from you.  We were wondering what happened.  
>>> I believe the founder and narrator of this group is Rob.  His mother had 
>>> leukemia.  Are you there Rob??? 
>>> Most of us have been here a long time.  I believe the group was once a 
>>> yahoo group.  
>>> We are all warriors and help each other when we can. 
>>> This makes my 12 th year and I joined the group early on.  
>>> And yes we are all leaders in our own way and pioneers with the tkis so 
>>> that've can give our knowledge to the new warriors. 
>>> I fight with faith and pills and I am a Christian. 
>>> Much love.  
>>> ️
>>> 
>>> My Motto: Faith and Pills
>>> Jeanie 18,s 
>>> Dx 1/2004. CML Leukemia
>>> Started Gleevec 2/2004
>>> Started Tasigna  9/2009
>>> Started Sprycel 11/2009
>>> Started Ponatinib January 2015
>>> Dr Balducci Moffitt Cancer Center
>>> 
>>> On Jan 13, 2016, at 12:38 AM, Marty Gartenberg  wrote:
>>> 
>>> For some reason my message did not come out so I am trying it once more, I 
>>> do hope it does come through
>>> 
>>> This is directed to Sandi and everyone else.
>>> 
>>> Dearest Sandi, and I really mean that, but for a very special reason. It is 
>>> not the words that I wright but it is my meaning. You and everyone else 
>>> here are only here because all of us are meant to be here. Am I strong well 
>>> maybe I am or I probably wouldn't be here right now. 
>>> 
>>> 
>>> My

Re: [CMLHope] Am I strong? Are we all strong? Read on...

2016-01-20 Thread 'Icandoallttc' via CMLHope
Yes I had the rash and boils and ect.  Then I was put in Tasigna.  It was awful 
for me.  Sprycel was the best as far as side effects. 
I just saw a show that your appendix was your immune systems fighter and if you 
didn't have one you could get leukemia and ect.  My appendix was taken out when 
I had my gall bladder removed.  Anyone else heard this!!?


My Motto: Faith and Pills❀️
With πŸ’—Jeanie 🐟🐟18,s 
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna  9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center

> On Jan 20, 2016, at 1:18 PM, perk  wrote:
> 
> When I was first diagnosed, I was put on Gleevec and I broke out in a severe 
> rash, as well as many other uncomfortable side effects. I was then put on 
> Sprycel and while it has some of the same side effects, it is manageable and 
> tolerable. I have lived with it for 7 years. Now there are other options. 
> Find one that works for you and have a good life!
> 
> JD in TX 
> 
>> On Saturday, January 16, 2016 at 12:27:27 PM UTC-6, candles wrote:
>> Today is my 1 yr anniversary of being diagnosed with CML, I'm here but not 
>> happily.  So many side effects. Makes you wonder if it's worth it
>> 
>> Sent from my iPhone
>> 
>>> On Jan 16, 2016, at 12:23 AM, Pete Pabon  wrote:
>>> 
>>> Diagnosed 1999
>>> Gleevec 2000
>>> 15 years still no phillies found
>>> 
>>> 
>>> Date: Fri, 15 Jan 2016 10:18:43 -0500
>>> Subject: Re: [CMLHope] Am I strong? Are we all strong? Read on...
>>> From: wa2...@gmail.com
>>> To: cml...@googlegroups.com
>>> 
>>> Well now I got a much refreshing title. Being that everyone is a leader of 
>>> this group so does it go to help all of us together.
>>> 
>>> You know that it's been so long that I forgot about Rob. I do hope to hear 
>>> from him. I also had no idea about his mother having leukemia and I hope 
>>> that she is doing well. 
>>> 
>>> So many new things have happened since we were members and as I remember 
>>> this group was in fact a yahoo group but I just can't put my finger if it 
>>> was for sure. Some time has passed and my memory has not been my greatest 
>>> asset so I would really like to hear from Rob.
>>> 
>>> Just think look at some of the people that were still around then (like 
>>> yourself) that are still around now. Hey what ever happened to CML will be 
>>> only be around for 5 years until the "Lukie Dragon" will come and get you.  
>>>   
>>> 
>>> Do you remember that saying a very long time ago? Well that for sure has 
>>> has changed with all of these advancements using these TKI's and what is 
>>> coming down the pipe next.
>>> 
>>> I'm telling you it will be that, no matter what you are and what you 
>>> believe in there will come a time near to now that this "Dragon" will meet 
>>> it's demise.  
>>> 
>>> You mark my words.
>>> 
>>> 18's,
>>> 
>>> Marty
>>> 
>>> On Fri, Jan 15, 2016 at 7:02 AM, 'Icandoallttc' via CMLHope 
>>>  wrote:
>>> Hi Marty and good to hear from you.  We were wondering what happened.  
>>> I believe the founder and narrator of this group is Rob.  His mother had 
>>> leukemia.  Are you there Rob??? 
>>> Most of us have been here a long time.  I believe the group was once a 
>>> yahoo group.  
>>> We are all warriors and help each other when we can. 
>>> This makes my 12 th year and I joined the group early on.  
>>> And yes we are all leaders in our own way and pioneers with the tkis so 
>>> that've can give our knowledge to the new warriors. 
>>> I fight with faith and pills and I am a Christian. 
>>> Much love.  
>>> ️
>>> 
>>> My Motto: Faith and Pills
>>> Jeanie 18,s 
>>> Dx 1/2004. CML Leukemia
>>> Started Gleevec 2/2004
>>> Started Tasigna  9/2009
>>> Started Sprycel 11/2009
>>> Started Ponatinib January 2015
>>> Dr Balducci Moffitt Cancer Center
>>> 
>>> On Jan 13, 2016, at 12:38 AM, Marty Gartenberg  wrote:
>>> 
>>> For some reason my message did not come out so I am trying it once more, I 
>>> do hope it does come through
>>> 
>>> This is directed to Sandi and everyone else.
>>> 
>>> Dearest Sandi, and I really mean that, but for a very special reason. It is 
>>> not the words that I wright but it 

Re: [CMLHope] Am I strong? Are we all strong? Read on...

2016-01-20 Thread perk
When I was first diagnosed, I was put on Gleevec and I broke out in a 
severe rash, as well as many other uncomfortable side effects. I was then 
put on Sprycel and while it has some of the same side effects, it is 
manageable and tolerable. I have lived with it for 7 years. Now there are 
other options. Find one that works for you and have a good life!

JD in TX 

On Saturday, January 16, 2016 at 12:27:27 PM UTC-6, candles wrote:
>
> Today is my 1 yr anniversary of being diagnosed with CML, I'm here but not 
> happily.  So many side effects. Makes you wonder if it's worth it
>
> Sent from my iPhone
>
> On Jan 16, 2016, at 12:23 AM, Pete Pabon > 
> wrote:
>
> *Diagnosed 1999*
> *Gleevec 2000*
>
> *15 years still no phillies found*
>
> --
> Date: Fri, 15 Jan 2016 10:18:43 -0500
> Subject: Re: [CMLHope] Am I strong? Are we all strong? Read on...
> From: wa2...@gmail.com 
> To: cml...@googlegroups.com 
>
> Well now I got a much refreshing title. Being that everyone is a leader of 
> this group so does it go to help all of us together.
>
> You know that it's been so long that I forgot about Rob. I do hope to hear 
> from him. I also had no idea about his mother having leukemia and I hope 
> that she is doing well. 
>
> So many new things have happened since we were members and as I remember 
> this group was in fact a yahoo group but I just can't put my finger if it 
> was for sure. Some time has passed and my memory has not been my greatest 
> asset so I would really like to hear from Rob.
>
> Just think look at some of the people that were still around then (like 
> yourself) that are still around now. Hey what ever happened to CML will be 
> only be around for 5 years until the "Lukie Dragon" will come and get you. 
>
>
> Do you remember that saying a very long time ago? Well that for sure has 
> has changed with all of these advancements using these TKI's and what is 
> coming down the pipe next.
>
> I'm telling you it will be that, no matter what you are and what you 
> believe in there will come a time near to now that this "Dragon" will meet 
> it's demise.  
>
> You mark my words.
>
> 18's,
>
> Marty
>
> On Fri, Jan 15, 2016 at 7:02 AM, 'Icandoallttc' via CMLHope <
> cml...@googlegroups.com > wrote:
>
> Hi Marty and good to hear from you.  We were wondering what happened.  
> I believe the founder and narrator of this group is Rob.  His mother had 
> leukemia.  Are you there Rob??? 
> Most of us have been here a long time.  I believe the group was once a 
> yahoo group.  
> We are all warriors and help each other when we can. 
> This makes my 12 th year and I joined the group early on.  
> And yes we are all leaders in our own way and pioneers with the tkis so 
> that've can give our knowledge to the new warriors. 
> I fight with faith and pills and I am a Christian. 
> Much love.  
> [image: Kiss mark][image: Smiling Face with Halo][image: Heavy black 
> heart]️[image: Heart with ribbon][image: Growing heart]
>
> My Motto: Faith and Pills
> Jeanie [image: Fish][image: Fish]18,s 
> Dx 1/2004. CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna  9/2009
> Started Sprycel 11/2009
> Started Ponatinib January 2015
> Dr Balducci Moffitt Cancer Center
>
> On Jan 13, 2016, at 12:38 AM, Marty Gartenberg  > wrote:
>
> For some reason my message did not come out so I am trying it once more, I 
> do hope it does come through
>
> This is directed to Sandi and everyone else.
>
> Dearest Sandi, and I really mean that, but for a very special reason. It 
> is not the words that I wright but it is my meaning. You and everyone else 
> here are only here because all of us are meant to be here. Am I strong well 
> maybe I am or I probably wouldn't be here right now. 
>
>
> My question to you and everyone else that may be reading this are you also 
> strong. You know what? You have to be because you are battling an awful 
> disease, but my friends just like me am I still here, and are you. You bet 
> we are.
>
>
>
> So no matter how strong I may be and no matter how strong any of you may 
> be, guess what? We are still here together and until "uncle GOD" 
> determinants otherwise this is where we stay.
>
>
> How many times have I been at deaths door? Now look at what you have. You 
> have life, just as I do and do you know why it's really very simple because 
> about a bit more then a decade ago some mortal man discovered a pill that 
> changed the course of your lives. You, all of you are living proof. 
>
>
>
> So I am not what anyone thinks about me because

Re: [CMLHope] Am I strong? Are we all strong? Read on...

2016-01-16 Thread Richard H
 Congratulations for attaining the first year.  None of this group want to 
be a part of this group.  We joined to learn what we about this thing 
called CML.  Yes most of us have many side effects of these heavy drugs.  
The only thing we can do is try to improve our outlook to the sunny side of 
life.  If we can do this then the side effects (little obstacles) will 
slide into the background.  I woke this morning and the sun was shining, 
What a great day it has been.  When the clouds come that only means we will 
get some moisture to make the flowers show off their glory in their time.  

I do have several issues that are major, but it is not time for me to quit.

As our Marty states 18's (that means life)

Richard H.

On Saturday, January 16, 2016 at 12:27:27 PM UTC-6, candles wrote:
>
> Today is my 1 yr anniversary of being diagnosed with CML, I'm here but not 
> happily.  So many side effects. Makes you wonder if it's worth it
>
> Sent from my iPhone
>
> On Jan 16, 2016, at 12:23 AM, Pete Pabon > 
> wrote:
>
> *Diagnosed 1999*
> *Gleevec 2000*
>
> *15 years still no phillies found*
>
> --
> Date: Fri, 15 Jan 2016 10:18:43 -0500
> Subject: Re: [CMLHope] Am I strong? Are we all strong? Read on...
> From: wa2...@gmail.com 
> To: cml...@googlegroups.com 
>
> Well now I got a much refreshing title. Being that everyone is a leader of 
> this group so does it go to help all of us together.
>
> You know that it's been so long that I forgot about Rob. I do hope to hear 
> from him. I also had no idea about his mother having leukemia and I hope 
> that she is doing well. 
>
> So many new things have happened since we were members and as I remember 
> this group was in fact a yahoo group but I just can't put my finger if it 
> was for sure. Some time has passed and my memory has not been my greatest 
> asset so I would really like to hear from Rob.
>
> Just think look at some of the people that were still around then (like 
> yourself) that are still around now. Hey what ever happened to CML will be 
> only be around for 5 years until the "Lukie Dragon" will come and get you. 
>
>
> Do you remember that saying a very long time ago? Well that for sure has 
> has changed with all of these advancements using these TKI's and what is 
> coming down the pipe next.
>
> I'm telling you it will be that, no matter what you are and what you 
> believe in there will come a time near to now that this "Dragon" will meet 
> it's demise.  
>
> You mark my words.
>
> 18's,
>
> Marty
>
> On Fri, Jan 15, 2016 at 7:02 AM, 'Icandoallttc' via CMLHope <
> cml...@googlegroups.com > wrote:
>
> Hi Marty and good to hear from you.  We were wondering what happened.  
> I believe the founder and narrator of this group is Rob.  His mother had 
> leukemia.  Are you there Rob??? 
> Most of us have been here a long time.  I believe the group was once a 
> yahoo group.  
> We are all warriors and help each other when we can. 
> This makes my 12 th year and I joined the group early on.  
> And yes we are all leaders in our own way and pioneers with the tkis so 
> that've can give our knowledge to the new warriors. 
> I fight with faith and pills and I am a Christian. 
> Much love.  
> [image: Kiss mark][image: Smiling Face with Halo][image: Heavy black 
> heart]️[image: Heart with ribbon][image: Growing heart]
>
> My Motto: Faith and Pills
> Jeanie [image: Fish][image: Fish]18,s 
> Dx 1/2004. CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna  9/2009
> Started Sprycel 11/2009
> Started Ponatinib January 2015
> Dr Balducci Moffitt Cancer Center
>
> On Jan 13, 2016, at 12:38 AM, Marty Gartenberg  > wrote:
>
> For some reason my message did not come out so I am trying it once more, I 
> do hope it does come through
>
> This is directed to Sandi and everyone else.
>
> Dearest Sandi, and I really mean that, but for a very special reason. It 
> is not the words that I wright but it is my meaning. You and everyone else 
> here are only here because all of us are meant to be here. Am I strong well 
> maybe I am or I probably wouldn't be here right now. 
>
>
> My question to you and everyone else that may be reading this are you also 
> strong. You know what? You have to be because you are battling an awful 
> disease, but my friends just like me am I still here, and are you. You bet 
> we are.
>
>
>
> So no matter how strong I may be and no matter how strong any of you may 
> be, guess what? We are still here together and until "uncle GOD" 
> determinants otherwise this is where we stay.
>
>
> How many times

Re: [CMLHope] Am I strong? Are we all strong? Read on...

2016-01-16 Thread kathy walls
Today is my 1 yr anniversary of being diagnosed with CML, I'm here but not 
happily.  So many side effects. Makes you wonder if it's worth it

Sent from my iPhone

> On Jan 16, 2016, at 12:23 AM, Pete Pabon  wrote:
> 
> Diagnosed 1999
> Gleevec 2000
> 15 years still no phillies found
> 
> 
> Date: Fri, 15 Jan 2016 10:18:43 -0500
> Subject: Re: [CMLHope] Am I strong? Are we all strong? Read on...
> From: wa2...@gmail.com
> To: cmlhope@googlegroups.com
> 
> Well now I got a much refreshing title. Being that everyone is a leader of 
> this group so does it go to help all of us together.
> 
> You know that it's been so long that I forgot about Rob. I do hope to hear 
> from him. I also had no idea about his mother having leukemia and I hope that 
> she is doing well. 
> 
> So many new things have happened since we were members and as I remember this 
> group was in fact a yahoo group but I just can't put my finger if it was for 
> sure. Some time has passed and my memory has not been my greatest asset so I 
> would really like to hear from Rob.
> 
> Just think look at some of the people that were still around then (like 
> yourself) that are still around now. Hey what ever happened to CML will be 
> only be around for 5 years until the "Lukie Dragon" will come and get you.
> 
> Do you remember that saying a very long time ago? Well that for sure has has 
> changed with all of these advancements using these TKI's and what is coming 
> down the pipe next.
> 
> I'm telling you it will be that, no matter what you are and what you believe 
> in there will come a time near to now that this "Dragon" will meet it's 
> demise.  
> 
> You mark my words.
> 
> 18's,
> 
> Marty
> 
> On Fri, Jan 15, 2016 at 7:02 AM, 'Icandoallttc' via CMLHope 
>  wrote:
> Hi Marty and good to hear from you.  We were wondering what happened.  
> I believe the founder and narrator of this group is Rob.  His mother had 
> leukemia.  Are you there Rob??? 
> Most of us have been here a long time.  I believe the group was once a yahoo 
> group.  
> We are all warriors and help each other when we can. 
> This makes my 12 th year and I joined the group early on.  
> And yes we are all leaders in our own way and pioneers with the tkis so 
> that've can give our knowledge to the new warriors. 
> I fight with faith and pills and I am a Christian. 
> Much love.  
> ️
> 
> My Motto: Faith and Pills
> Jeanie 18,s 
> Dx 1/2004. CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna  9/2009
> Started Sprycel 11/2009
> Started Ponatinib January 2015
> Dr Balducci Moffitt Cancer Center
> 
> On Jan 13, 2016, at 12:38 AM, Marty Gartenberg  wrote:
> 
> For some reason my message did not come out so I am trying it once more, I do 
> hope it does come through
> 
> This is directed to Sandi and everyone else.
> 
> Dearest Sandi, and I really mean that, but for a very special reason. It is 
> not the words that I wright but it is my meaning. You and everyone else here 
> are only here because all of us are meant to be here. Am I strong well maybe 
> I am or I probably wouldn't be here right now. 
> 
> 
> My question to you and everyone else that may be reading this are you also 
> strong. You know what? You have to be because you are battling an awful 
> disease, but my friends just like me am I still here, and are you. You bet we 
> are.
> 
> 
> 
> So no matter how strong I may be and no matter how strong any of you may be, 
> guess what? We are still here together and until "uncle GOD" determinants 
> otherwise this is where we stay.
> 
> 
> How many times have I been at deaths door? Now look at what you have. You 
> have life, just as I do and do you know why it's really very simple  because 
> about a bit more then a decade ago some mortal man discovered a pill that 
> changed the course of your lives. You, all of you are living proof. 
> 
> 
> 
> So I am not what anyone thinks about me because your living proof just as I 
> am we are all strong in spite of what you think.
> 
> 
> Am I a leader of this group perhaps I am, however  what about each and 
> everyone else. Please try to understand people that are in a group are the 
> power of that group.
> 
> 
> OK so lately I have a little more activity in my life health wise then normal 
> (whatever that may be) 
> 
> 
> 
> So please lets everyone stop calling me the leader of this group because we 
> all are some a little more some a little bit less but when we all come 
> together we are a force to recon with.
> 
> 
> Remember 18's Have you ever noticed t

Re: [CMLHope] Am I strong? Are we all strong? Read on...

2016-01-16 Thread Myvety2k via CMLHope
Richard H.   I agree, well said.  I started  Gleevec the first week in 
Janurary 2000 16 years ago and I'm still pumping  blood.  Of course the way 
these people drive here in Southwest Florida it's  like driving in the Indy 500 
with blindfolds on.
 
greenie
 
In a message dated 1/16/2016 12:47:03 A.M. Eastern Standard Time,  
rbhuffm...@gmail.com writes:

Marti it is good to hear your (voice) and see you here.  I  agree with you 
and Jeanie.  I'll start my 14th year the first of March  with this wonderful 
group of loving and caring friends.  This history we  give can only be 
given thru leadership of having been there fighting the  fight.  But leadership 
always needs a significant special leader  (General, Admiral) too narrow our 
path so that we can win the current  battle.  Thanks for keeping us looking 
up to the sunrise of a new day and  helping wash away all the doubt, fear, 
and other dark thoughts that detract us  from fulfilling this life we have 
on Planet Earth.

18's

Richard  H.  

On Friday, January 15, 2016 at 6:03:03 AM UTC-6, Icandoallttc  wrote:  
 
Hi Marty and good to hear from you.  We were wondering what  happened.  
I believe the founder and narrator of this group is Rob.  His  mother had 
leukemia.  Are you there Rob??? 
Most of us have been here a long time.  I believe the group was  once a 
yahoo group.  
We are all warriors and help each other when we can. 
This makes my 12 th year and I joined the group early on.  
And yes we are all leaders in our own way and pioneers with the tkis so  
that've can give our knowledge to the new warriors. 
I fight with faith and pills and I am a Christian. 
Much love.  
πŸ’‹πŸ˜‡β€οΈπŸ’πŸ’—

My Motto: Faith and Pills  
Jeanie 🐟🐟18,s   
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna  9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center



On Jan 13, 2016, at 12:38 AM, Marty Gartenberg <_wa2...@gmail.com_ 
(javascript:) >  wrote:




 
For some reason my message did not come out so I am trying it once  more, I 
do hope it does come through


This is directed to  Sandi and everyone else.

Dearest Sandi, and I really mean that, but for a very special reason.  It 
is not the words that I wright but it is my meaning. You and everyone  else 
here are only here because all of us are meant to be here. Am I  strong well 
maybe I am or I probably wouldn't be here right now.  

My question to you and everyone else that may be reading this are you  also 
strong. You know what? You have to be because you are battling an  awful 
disease, but my friends just like me am I still here, and are you.  You bet we 
are.

So no matter how strong I may be and no matter how strong any of you  may 
be, guess what? We are still here together and until "uncle GOD"  
determinants otherwise this is where we stay. 

How many times have I been at deaths door? Now look at what you have.  You 
have life, just as I do and do you know why it's really very simple  because 
about a bit more then a decade ago some mortal man discovered a  pill that 
changed the course of your lives. You, all of you are living  proof. 

So I am not what anyone thinks about me because your living proof just  as 
I am we are all strong in spite of what you think. 

Am I a leader of this group perhaps I am, however  what about each  and 
everyone else. Please try to understand people that are in a group are  the 
power of that group. 

OK so lately I have a little more activity in my life health wise then  
normal (whatever that may be) 

So please lets everyone stop calling me the leader of this group  because 
we all are some a little more some a little bit less but when we  all come 
together we are a force to recon with. 

Remember 18's Have you ever noticed that I have never left it out  before? 
Who knows maybe there is a reason. 18's is life, at least in my  book. 

Marty

-- 
-- 
[CMLHope]
A support group of _http://cmlhope.com_ (http://cmlhope.com/) 
-

You  received this message because you are subscribed to the Google Groups  
"CMLHope" group.
To post to this group, send email to _CML...@googlegroups.com_ 
(javascript:) 
To  unsubscribe from this group, send email to 
_CMLHope-u...@CMLHope-u...@http://groups.google.com/http://groups_ 
(http://groups.google.com/group/CMLHope) 
---  
You received this message because you are subscribed to the Google  Groups 
"CMLHope" group.
To unsubscribe from this group and stop  receiving emails from it, send an 
email to _cmlhope+u...@cmlhope+u...@https://groups.google.com/d/https:_ 
(https://groups.google.com/d/optout) .





-- 
-- 
[CMLHope]
A support group of _http://cmlhope.com_ (http://cmlhope.com/) 
-

You  received this message because you are subscribed to the Google Groups  
"CMLHope" group.
To post to this group, send email to  CMLHope@googlegroups.com
To unsubscribe from this group, send email to  
cmlhope

Re: [CMLHope] Am I strong? Are we all strong? Read on...

2016-01-15 Thread Richard H
Marti it is good to hear your (voice) and see you here.  I agree with you 
and Jeanie.  I'll start my 14th year the first of March with this wonderful 
group of loving and caring friends.  This history we give can only be given 
thru leadership of having been there fighting the fight.  But leadership 
always needs a significant special leader (General, Admiral) too narrow our 
path so that we can win the current battle.  Thanks for keeping us looking 
up to the sunrise of a new day and helping wash away all the doubt, fear, 
and other dark thoughts that detract us from fulfilling this life we have 
on Planet Earth.

18's

Richard H.  

On Friday, January 15, 2016 at 6:03:03 AM UTC-6, Icandoallttc wrote:
>
> Hi Marty and good to hear from you.  We were wondering what happened.  
> I believe the founder and narrator of this group is Rob.  His mother had 
> leukemia.  Are you there Rob??? 
> Most of us have been here a long time.  I believe the group was once a 
> yahoo group.  
> We are all warriors and help each other when we can. 
> This makes my 12 th year and I joined the group early on.  
> And yes we are all leaders in our own way and pioneers with the tkis so 
> that've can give our knowledge to the new warriors. 
> I fight with faith and pills and I am a Christian. 
> Much love.  
> πŸ’‹πŸ˜‡β€οΈπŸ’πŸ’—
>
> My Motto: Faith and Pills
> Jeanie 🐟🐟18,s 
> Dx 1/2004. CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna  9/2009
> Started Sprycel 11/2009
> Started Ponatinib January 2015
> Dr Balducci Moffitt Cancer Center
>
> On Jan 13, 2016, at 12:38 AM, Marty Gartenberg  > wrote:
>
> For some reason my message did not come out so I am trying it once more, I 
> do hope it does come through
>
> This is directed to Sandi and everyone else.
>
> Dearest Sandi, and I really mean that, but for a very special reason. It 
> is not the words that I wright but it is my meaning. You and everyone else 
> here are only here because all of us are meant to be here. Am I strong well 
> maybe I am or I probably wouldn't be here right now. 
>
>
> My question to you and everyone else that may be reading this are you also 
> strong. You know what? You have to be because you are battling an awful 
> disease, but my friends just like me am I still here, and are you. You bet 
> we are.
>
>
> So no matter how strong I may be and no matter how strong any of you may 
> be, guess what? We are still here together and until "uncle GOD" 
> determinants otherwise this is where we stay.
>
>
> How many times have I been at deaths door? Now look at what you have. You 
> have life, just as I do and do you know why it's really very simple because 
> about a bit more then a decade ago some mortal man discovered a pill that 
> changed the course of your lives. You, all of you are living proof. 
>
>
> So I am not what anyone thinks about me because your living proof just as 
> I am we are all strong in spite of what you think.
>
>
> Am I a leader of this group perhaps I am, however  what about each and 
> everyone else. Please try to understand people that are in a group are the 
> power of that group.
>
>
> OK so lately I have a little more activity in my life health wise then 
> normal (whatever that may be) 
>
>
> So please lets everyone stop calling me the leader of this group because 
> we all are some a little more some a little bit less but when we all come 
> together we are a force to recon with.
>
>
> Remember 18's Have you ever noticed that I have never left it out before? 
> Who knows maybe there is a reason. 18's is life, at least in my book.
>
>
> Marty
>
> -- 
> -- 
> [CMLHope]
> A support group of http://cmlhope.com
> -
>  
> You received this message because you are subscribed to the Google Groups 
> "CMLHope" group.
> To post to this group, send email to cml...@googlegroups.com 
> To unsubscribe from this group, send email to 
> cmlhope-u...@googlegroups.com 
> For more options, visit this group at 
> http://groups.google.com/group/CMLHope
> --- 
> You received this message because you are subscribed to the Google Groups 
> "CMLHope" group.
> To unsubscribe from this group and stop receiving emails from it, send an 
> email to cmlhope+u...@googlegroups.com .
> For more options, visit https://groups.google.com/d/optout.
>
>

-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-

You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope
--- 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To unsubscribe from this group and stop receiving emails from it, send an email 
to cmlhope+unsubscr...@googlegroups.com.
For more options, visit https://groups

RE: [CMLHope] Am I strong? Are we all strong? Read on...

2016-01-15 Thread Pete Pabon
Diagnosed 1999Gleevec 200015 years still no phillies found

Date: Fri, 15 Jan 2016 10:18:43 -0500
Subject: Re: [CMLHope] Am I strong? Are we all strong? Read on...
From: wa2...@gmail.com
To: cmlhope@googlegroups.com

Well now I got a much refreshing title. Being that everyone is a leader of this 
group so does it go to help all of us together.
You know that it's been so long that I forgot about Rob. I do hope to hear from 
him. I also had no idea about his mother having leukemia and I hope that she is 
doing well. 
So many new things have happened since we were members and as I remember this 
group was in fact a yahoo group but I just can't put my finger if it was for 
sure. Some time has passed and my memory has not been my greatest asset so I 
would really like to hear from Rob.
Just think look at some of the people that were still around then (like 
yourself) that are still around now. Hey what ever happened to CML will be only 
be around for 5 years until the "Lukie Dragon" will come and get you.
Do you remember that saying a very long time ago? Well that for sure has has 
changed with all of these advancements using these TKI's and what is coming 
down the pipe next.
I'm telling you it will be that, no matter what you are and what you believe in 
there will come a time near to now that this "Dragon" will meet it's demise.  
You mark my words.
18's,
Marty
On Fri, Jan 15, 2016 at 7:02 AM, 'Icandoallttc' via CMLHope 
 wrote:
Hi Marty and good to hear from you.  We were wondering what happened.  I 
believe the founder and narrator of this group is Rob.  His mother had 
leukemia.  Are you there Rob??? Most of us have been here a long time.  I 
believe the group was once a yahoo group.  We are all warriors and help each 
other when we can. This makes my 12 th year and I joined the group early on.  
And yes we are all leaders in our own way and pioneers with the tkis so that've 
can give our knowledge to the new warriors. I fight with faith and pills and I 
am a Christian. Much love.  πŸ’‹πŸ˜‡β€οΈπŸ’πŸ’—

My Motto: Faith and PillsJeanie 🐟🐟18,s Dx 1/2004. CML LeukemiaStarted Gleevec 
2/2004Started Tasigna  9/2009Started Sprycel 11/2009Started Ponatinib January 
2015Dr Balducci Moffitt Cancer Center
On Jan 13, 2016, at 12:38 AM, Marty Gartenberg  wrote:

For some reason my message did not come out so I am trying it once more, I do 
hope it does come through

This is directed to Sandi and everyone else.

Dearest Sandi, and I really mean
 that, but for a very special reason. It is not the words that I wright 
but it is my meaning. You and everyone else here are only here because 
all of us are meant to be here. Am I strong well maybe I am or I 
probably wouldn't be here right now. 


My
 question to you and everyone else that may be reading this are you also
 strong. You know what? You have to be because you are battling an awful
 disease, but my friends just like me am I still here, and are you. You 
bet we are.



So
 no matter how strong I may be and no matter how strong any of you may 
be, guess what? We are still here together and until "uncle GOD" 
determinants otherwise this is where we stay.


How
 many times have I been at deaths door? Now look at what you have. You 
have life, just as I do and do you know why it's really very simple 
because about a bit more then a decade ago some mortal man discovered a 
pill that changed the course of your lives. You, all of you are living 
proof. 



So I am not what anyone thinks about me because your living proof just as I am 
we are all strong in spite of what you think.


Am
 I a leader of this group perhaps I am, however  what about each and 
everyone else. Please try to understand people that are in a group are 
the power of that group.


OK so lately I have a little more activity in my life health wise then normal 
(whatever that may be) 



So
 please lets everyone stop calling me the leader of this group because 
we all are some a little more some a little bit less but when we all 
come together we are a force to recon with.


Remember
 18's Have you ever noticed that I have never left it out before? Who 
knows maybe there is a reason. 18's is life, at least in my book.


Marty





-- 

-- 

[CMLHope]

A support group of http://cmlhope.com

-

 

You received this message because you are subscribed to the Google Groups 
"CMLHope" group.

To post to this group, send email to CMLHope@googlegroups.com

To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com

For more options, visit this group at http://groups.google.com/group/CMLHope

--- 

You received this message because you are subscribed to the Google Groups 
"CMLHope" group.

To unsubscribe from this group and stop receiving emails from it, send an email 
to cmlhope+unsubscr...@googlegroups.com.

For more 

Re: [CMLHope] Am I strong? Are we all strong? Read on...

2016-01-15 Thread Marty Gartenberg
Well now I got a much refreshing title. Being that everyone is a leader of
this group so does it go to help all of us together.

You know that it's been so long that I forgot about Rob. I do hope to hear
from him. I also had no idea about his mother having leukemia and I hope
that she is doing well.

So many new things have happened since we were members and as I remember
this group was in fact a yahoo group but I just can't put my finger if it
was for sure. Some time has passed and my memory has not been my greatest
asset so I would really like to hear from Rob.

Just think look at some of the people that were still around then (like
yourself) that are still around now. Hey what ever happened to CML will be
only be around for 5 years until the "Lukie Dragon" will come and get you.


Do you remember that saying a very long time ago? Well that for sure has
has changed with all of these advancements using these TKI's and what is
coming down the pipe next.

I'm telling you it will be that, no matter what you are and what you
believe in there will come a time near to now that this "Dragon" will meet
it's demise.

You mark my words.

18's,

Marty

On Fri, Jan 15, 2016 at 7:02 AM, 'Icandoallttc' via CMLHope <
cmlhope@googlegroups.com> wrote:

> Hi Marty and good to hear from you.  We were wondering what happened.
> I believe the founder and narrator of this group is Rob.  His mother had
> leukemia.  Are you there Rob???
> Most of us have been here a long time.  I believe the group was once a
> yahoo group.
> We are all warriors and help each other when we can.
> This makes my 12 th year and I joined the group early on.
> And yes we are all leaders in our own way and pioneers with the tkis so
> that've can give our knowledge to the new warriors.
> I fight with faith and pills and I am a Christian.
> Much love.
> πŸ’‹πŸ˜‡β€οΈπŸ’πŸ’—
>
> My Motto: Faith and Pills
> Jeanie 🐟🐟18,s
> Dx 1/2004. CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna  9/2009
> Started Sprycel 11/2009
> Started Ponatinib January 2015
> Dr Balducci Moffitt Cancer Center
>
> On Jan 13, 2016, at 12:38 AM, Marty Gartenberg  wrote:
>
> For some reason my message did not come out so I am trying it once more, I
> do hope it does come through
>
> This is directed to Sandi and everyone else.
>
> Dearest Sandi, and I really mean that, but for a very special reason. It
> is not the words that I wright but it is my meaning. You and everyone else
> here are only here because all of us are meant to be here. Am I strong well
> maybe I am or I probably wouldn't be here right now.
>
>
> My question to you and everyone else that may be reading this are you also
> strong. You know what? You have to be because you are battling an awful
> disease, but my friends just like me am I still here, and are you. You bet
> we are.
>
>
> So no matter how strong I may be and no matter how strong any of you may
> be, guess what? We are still here together and until "uncle GOD"
> determinants otherwise this is where we stay.
>
>
> How many times have I been at deaths door? Now look at what you have. You
> have life, just as I do and do you know why it's really very simple because
> about a bit more then a decade ago some mortal man discovered a pill that
> changed the course of your lives. You, all of you are living proof.
>
>
> So I am not what anyone thinks about me because your living proof just as
> I am we are all strong in spite of what you think.
>
>
> Am I a leader of this group perhaps I am, however  what about each and
> everyone else. Please try to understand people that are in a group are the
> power of that group.
>
>
> OK so lately I have a little more activity in my life health wise then
> normal (whatever that may be)
>
>
> So please lets everyone stop calling me the leader of this group because
> we all are some a little more some a little bit less but when we all come
> together we are a force to recon with.
>
>
> Remember 18's Have you ever noticed that I have never left it out before?
> Who knows maybe there is a reason. 18's is life, at least in my book.
>
>
> Marty
>
> --
> --
> [CMLHope]
> A support group of http://cmlhope.com
> -
>
> You received this message because you are subscribed to the Google Groups
> "CMLHope" group.
> To post to this group, send email to CMLHope@googlegroups.com
> To unsubscribe from this group, send email to
> cmlhope-unsubscr...@googlegroups.com
> For more options, visit this group at
> http://groups.google.com/group/CMLHope
> ---
> You received this message because you are subscribed to the Google Groups
> "CMLHope" group.
> To unsubscribe from this group and stop receiving emails from it, send an
> email to cmlhope+unsubscr...@googlegroups.com.
> For more options, visit https://groups.google.com/d/optout.
>
> --
> --
> [CMLHope]
> A support group of http://cmlhope.com
> -
>
> You received this message because you are subscribed to the 

Re: [CMLHope] Am I strong? Are we all strong? Read on...

2016-01-15 Thread 'Icandoallttc' via CMLHope
Hi Marty and good to hear from you.  We were wondering what happened.  
I believe the founder and narrator of this group is Rob.  His mother had 
leukemia.  Are you there Rob??? 
Most of us have been here a long time.  I believe the group was once a yahoo 
group.  
We are all warriors and help each other when we can. 
This makes my 12 th year and I joined the group early on.  
And yes we are all leaders in our own way and pioneers with the tkis so that've 
can give our knowledge to the new warriors. 
I fight with faith and pills and I am a Christian. 
Much love.  
πŸ’‹πŸ˜‡β€οΈπŸ’πŸ’—

My Motto: Faith and Pills
Jeanie 🐟🐟18,s 
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna  9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center

> On Jan 13, 2016, at 12:38 AM, Marty Gartenberg  wrote:
> 
> For some reason my message did not come out so I am trying it once more, I do 
> hope it does come through
> 
> This is directed to Sandi and everyone else.
> 
> Dearest Sandi, and I really mean that, but for a very special reason. It is 
> not the words that I wright but it is my meaning. You and everyone else here 
> are only here because all of us are meant to be here. Am I strong well maybe 
> I am or I probably wouldn't be here right now.
> 
> 
> 
> My question to you and everyone else that may be reading this are you also 
> strong. You know what? You have to be because you are battling an awful 
> disease, but my friends just like me am I still here, and are you. You bet we 
> are.
> 
> 
> 
> So no matter how strong I may be and no matter how strong any of you may be, 
> guess what? We are still here together and until "uncle GOD" determinants 
> otherwise this is where we stay.
> 
> 
> 
> How many times have I been at deaths door? Now look at what you have. You 
> have life, just as I do and do you know why it's really very simple  because 
> about a bit more then a decade ago some mortal man discovered a pill that 
> changed the course of your lives. You, all of you are living proof. 
> 
> 
> 
> So I am not what anyone thinks about me because your living proof just as I 
> am we are all strong in spite of what you think.
> 
> 
> 
> Am I a leader of this group perhaps I am, however  what about each and 
> everyone else. Please try to understand people that are in a group are the 
> power of that group.
> 
> 
> 
> OK so lately I have a little more activity in my life health wise then normal 
> (whatever that may be) 
> 
> 
> 
> So please lets everyone stop calling me the leader of this group because we 
> all are some a little more some a little bit less but when we all come 
> together we are a force to recon with.
> 
> 
> 
> Remember 18's Have you ever noticed that I have never left it out before? Who 
> knows maybe there is a reason. 18's is life, at least in my book.
> 
> 
> 
> Marty
> -- 
> -- 
> [CMLHope]
> A support group of http://cmlhope.com
> -
>  
> You received this message because you are subscribed to the Google Groups 
> "CMLHope" group.
> To post to this group, send email to CMLHope@googlegroups.com
> To unsubscribe from this group, send email to 
> cmlhope-unsubscr...@googlegroups.com
> For more options, visit this group at http://groups.google.com/group/CMLHope
> --- 
> You received this message because you are subscribed to the Google Groups 
> "CMLHope" group.
> To unsubscribe from this group and stop receiving emails from it, send an 
> email to cmlhope+unsubscr...@googlegroups.com.
> For more options, visit https://groups.google.com/d/optout.

-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-

You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope
--- 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To unsubscribe from this group and stop receiving emails from it, send an email 
to cmlhope+unsubscr...@googlegroups.com.
For more options, visit https://groups.google.com/d/optout.


[CMLHope] Am I strong? Are we all strong? Read on...

2016-01-12 Thread Marty Gartenberg
For some reason my message did not come out so I am trying it once more, I
do hope it does come through

This is directed to Sandi and everyone else.

Dearest Sandi, and I really mean that, but for a very special reason. It is
not the words that I wright but it is my meaning. You and everyone else
here are only here because all of us are meant to be here. Am I strong well
maybe I am or I probably wouldn't be here right now.


My question to you and everyone else that may be reading this are you also
strong. You know what? You have to be because you are battling an awful
disease, but my friends just like me am I still here, and are you. You bet
we are.


So no matter how strong I may be and no matter how strong any of you may
be, guess what? We are still here together and until "uncle GOD"
determinants otherwise this is where we stay.


How many times have I been at deaths door? Now look at what you have. You
have life, just as I do and do you know why it's really very simple because
about a bit more then a decade ago some mortal man discovered a pill that
changed the course of your lives. You, all of you are living proof.


So I am not what anyone thinks about me because your living proof just as I
am we are all strong in spite of what you think.


Am I a leader of this group perhaps I am, however  what about each and
everyone else. Please try to understand people that are in a group are the
power of that group.


OK so lately I have a little more activity in my life health wise then
normal (whatever that may be)


So please lets everyone stop calling me the leader of this group because we
all are some a little more some a little bit less but when we all come
together we are a force to recon with.


Remember 18's Have you ever noticed that I have never left it out before?
Who knows maybe there is a reason. 18's is life, at least in my book.


Marty

-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-

You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope
--- 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To unsubscribe from this group and stop receiving emails from it, send an email 
to cmlhope+unsubscr...@googlegroups.com.
For more options, visit https://groups.google.com/d/optout.