Re: [CMLHope] ultrasound of abominal aorta ?

2013-02-08 Thread ICANDOALLTTC
Hi Beth and thanks so much.  I am in for a check up in March so I will  see 
how it goes.  I have been in PCRU for about 3 years now, ever since I  went 
on Sprycel. but it has been knocking me out lately.  We will see how  it 
goes.  Thanks again, Blessings Jeanie<3
 
 
In a message dated 2/4/2013 7:54:35 P.M. Eastern Standard Time,  
bkbar...@aol.com writes:

jeanie, I just took off two months from sprycel,  after two years on it and 
elevated CPK the whole time.It took that long  for my numbers to right 
themselves, but am now out of  maj. molec.  remission so back on meds I 
go...we decided to try bosutinib...starting  tomorrow...there  is also 
ponatinib...so there are more resources options  out there... you are a CML 
warrior...but even warriors hold the wish for you  and all of us..major 
molecular 
remissionon going without too many  side effects...
take good care, Beth

-Original  Message-
From: ICANDOALLTTC 
To: cmlhope  
Sent: Mon, Feb 4, 2013 10:13  am
Subject: Re: [CMLHope] ultrasound of abominal aorta ?


Hi Beth, good to hear from you.  No I have never taken a med holiday  but 
was taken off Tasi for a week when I had to have blood transfusions.   I am 
on Sprycel  now, and was thinking about asking my onc if I could go  on a 
holiday.  It's just that I've been out of remission so bad that I've  had to 
have those awful blood cleanings and I don't like that at all.   Yes, we all 
have reactions to these meds and have to handle the side effects  as best we 
can.  Thanks for thinking of me.
Jeanie<3
 
 
In a message dated 1/27/2013 6:23:44 P.M. Eastern Standard Time, 
_bkbarney@aol.com_ (mailto:bkbar...@aol.com)  writes:


Dear Jeanie,
 
I am sorry you are having difficulties. I wanted to throw my two cents  in 
and say I concur with Patrick. My oncologist has had me do twice yearly  
echocardiograms while on these meds when not symptomatic, more frequntly  when 
symptomatic along with 
ECG's...These meds can affect the  heart, or it could be totally 
unrelated...but important to see a heart  specialist you can trust...thinking 
of you 
.am wondering when or if you  have had a drug holiday...to give your body 
a rest from meds?and see if the  pain goes away without the drug??  If your 
symptoms got worse  after uptaking Tasigna, what about talking to your 
oncologist about the  other options now available? Just a thought. 
Take good care.. 
 
Beth


-Original  Message-
From: patrickemailguard-goog <_patrickemailguard-goog@yahoo.com_ 
(mailto:patrickemailguard-g...@yahoo.com) >
To:  cmlhope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) >
Sent:  Sun, Jan 27, 2013 4:50 pm
Subject: Re: [CMLHope] ultrasound of abominal  aorta ?

   Jeanie,  
Since you've taken it  you know they do ECG's on Tasigna patients 
excessively. That's because  Tasigna can cause prolonged QT syndrome  which 
basically 
means the heart is still in the relaxed  phase of its cycle when the next 
signal to contract comes.  This can cause atrial fibrillation commonly  
referred to as a heart attack.
I think it would be  prudent for your oncologist (or you) to refer you to a 
cardiovascular  specialist.

Patrick

--- On Sun, 1/27/13, _ICANDOALLTTC@aol.com_ (mailto:icandoall...@aol.com)  
<_ICANDOALLTTC@aol.com_ (mailto:icandoall...@aol.com) > wrote:


From:  _ICANDOALLTTC@aol.com_ (mailto:icandoall...@aol.com)  
<_ICANDOALLTTC@aol.com_ (mailto:icandoall...@aol.com) >
Subject:  Re: [CMLHope] ultrasound of abominal aorta ?
To: _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) 
Date:  Sunday, January 27, 2013, 3:21 PM


 
Hi Marty and will do.  He does an ultrasound of my heart  yearly but don't 
know if that includes the aorta scan or   not.  I'll ask him.  He is aware 
of my heart beat and  pain; just can't figure it out.  I have heard that a 
bulging  aorta can cause those symptoms also.  Actually the pain go  really 
bad right after I went on Tasigna.  The doctor put me on  Tramodol for pain 
and did a MRI.  Nothing showed up.  It  strange.  Maybe the aorta scan might 
show  something. 
Thanks again,
Jeanie<3
 
 
In a message dated 1/26/2013 11:35:24 P.M. Eastern Standard  Time, 
_wa2yyx@gmail.com_ (mailto:wa2...@gmail.com)  writes:

Hi Jeanie,

The Warferin did make that beating go  away. It wasn't so much the pain 
just like a very uncomfortable  feeling.

I think that you should discuss this with your  doctor. You should get an 
ultrasound to see what if anything is  going on.

18's

Marty

On Sat, Jan 26, 2013 at 3:07  PM,  wrote:



Hi Marty, did the warferin take care of your problem and  did the beating 
in your abdomen go away?  I also have pain  in that area?  Did you have pain? 
 Just wondering if  all will go away if that's the problem.  Thanks so  
much.
Jeanie<3
 
In a message dated 1/26/2013 10:34:11 A.M. Eastern Standard  Time, 
icandoall...@aol.co

Re: [CMLHope] ultrasound of abominal aorta ?

2013-02-04 Thread bkbarney
jeanie, I just took off two months from sprycel, after two years on it and 
elevated CPK the whole time.It took that long for my numbers to right 
themselves, but am now out of  maj. molec. remission so back on meds I go...we 
decided to try bosutinib...starting tomorrow...there  is also ponatinib...so 
there are more resources options out there... you are a CML warrior...but even 
warriors hold the wish for you and all of us..major molecular 
remissionon going without too many side effects...
take good care, Beth


-Original Message-
From: ICANDOALLTTC 
To: cmlhope 
Sent: Mon, Feb 4, 2013 10:13 am
Subject: Re: [CMLHope] ultrasound of abominal aorta ?


Hi Beth, good to hear from you.  No I have never taken a med holiday but was 
taken off Tasi for a week when I had to have blood transfusions.  I am on 
Sprycel  now, and was thinking about asking my onc if I could go on a holiday.  
It's just that I've been out of remission so bad that I've had to have those 
awful blood cleanings and I don't like that at all.  Yes, we all have reactions 
to these meds and have to handle the side effects as best we can.  Thanks for 
thinking of me.
Jeanie<3
 

In a message dated 1/27/2013 6:23:44 P.M. Eastern Standard Time, 
bkbar...@aol.com writes:


Dear Jeanie,
 
I am sorry you are having difficulties. I wanted to throw my two cents in and 
say I concur with Patrick. My oncologist has had me do twice yearly 
echocardiograms while on these meds when not symptomatic, more frequntly when 
symptomatic along with 
ECG's...These meds can affect the heart, or it could be totally unrelated...but 
important to see a heart specialist you can trust...thinking of you .am 
wondering when or if you have had a drug holiday...to give your body a rest 
from meds?and see if the pain goes away without the drug??  If your symptoms 
got worse after uptaking Tasigna, what about talking to your oncologist about 
the other options now available? Just a thought. 
Take good care.. 
 
Beth


-Original Message-
From: patrickemailguard-goog 
To: cmlhope 
Sent: Sun, Jan 27, 2013 4:50 pm
Subject: Re: [CMLHope] ultrasound of abominal aorta ?




Jeanie, 
Since you've taken it you know they do ECG's on Tasigna patients excessively. 
That's because Tasigna can cause prolonged QT syndrome which basically means 
the heart is still in the relaxed phase of its cycle when the next signal to 
contract comes. This can cause atrial fibrillation commonly referred to as a 
heart attack.
I think it would be prudent for your oncologist (or you) to refer you to a 
cardiovascular specialist.

Patrick

--- On Sun, 1/27/13, icandoall...@aol.com  wrote:


From: icandoall...@aol.com 
Subject: Re: [CMLHope] ultrasound of abominal aorta ?
To: cmlhope@googlegroups.com
Date: Sunday, January 27, 2013, 3:21 PM



Hi Marty and will do.  He does an ultrasound of my heart yearly but don't know 
if that includes the aorta scan or  not.  I'll ask him.  He is aware of my 
heart beat and pain; just can't figure it out.  I have heard that a bulging 
aorta can cause those symptoms also.  Actually the pain go really bad right 
after I went on Tasigna.  The doctor put me on Tramodol for pain and did a MRI. 
 Nothing showed up.  It strange.  Maybe the aorta scan might show something. 
Thanks again,
Jeanie<3
 

In a message dated 1/26/2013 11:35:24 P.M. Eastern Standard Time, 
wa2...@gmail.com writes:
Hi Jeanie,

The Warferin did make that beating go away. It wasn't so much the pain just 
like a very uncomfortable feeling.

I think that you should discuss this with your doctor. You should get an 
ultrasound to see what if anything is going on.

18's

Marty


On Sat, Jan 26, 2013 at 3:07 PM,  wrote:


 
Hi Marty, did the warferin take care of your problem and did the beating in 
your abdomen go away?  I also have pain in that area?  Did you have pain?  Just 
wondering if all will go away if that's the problem.  Thanks so much.
Jeanie<3

In a message dated 1/26/2013 10:34:11 A.M. Eastern Standard Time, 
icandoall...@aol.com writes:

Wow! that is good to know.  Thanks so much.  I will have the ultrasound and see 
what it shows.  Sounds like a good plan.
Thanks again,
Jeanie<3
 

In a message dated 1/25/2013 3:50:48 P.M. Eastern Standard Time, 
wa2...@gmail.com writes:
HI JEANIE,

THERE WAS A TIME THAT I ALSO FELT MY HEART BEATING IN MY ABDOMEN. IT DROVE ME 
CRAZY UNTIL I HAD AN ULTRASOUND OF MY ABDOMINAL AORTA
THERE WAS A SMALL BLOCKAGE THAT WAS TAKEN CARE OF BY WARFERIN. WHICH IS A BLOOD 
THINNER.

18'S

MARTY


On Fri, Jan 25, 2013 at 10:59 AM,  wrote:


Hi Doris, Yes I have had all those symptoms and much more.  I never reached 
remission on Gleevec and had a terrible time until I went on Sprycel.  My blood 
pressure always runs a little high; doc wants me to take BP meds but I have 
tried them and don't do well on them.  The last one I took was Aetenol; gave me 
h

Re: [CMLHope] ultrasound of abominal aorta ?

2013-02-04 Thread ICANDOALLTTC
Hi Beth, good to hear from you.  No I have never taken a med holiday  but 
was taken off Tasi for a week when I had to have blood transfusions.  I  am 
on Sprycel  now, and was thinking about asking my onc if I could go on a  
holiday.  It's just that I've been out of remission so bad that I've had to  
have those awful blood cleanings and I don't like that at all.  Yes, we all  
have reactions to these meds and have to handle the side effects as best we  
can.  Thanks for thinking of me.
Jeanie<3
 
 
In a message dated 1/27/2013 6:23:44 P.M. Eastern Standard Time,  
bkbar...@aol.com writes:


Dear Jeanie,
 
I am sorry you are having difficulties. I wanted to throw my two cents in  
and say I concur with Patrick. My oncologist has had me do twice yearly  
echocardiograms while on these meds when not symptomatic, more frequntly when  
symptomatic along with 
ECG's...These meds can affect the heart, or it  could be totally 
unrelated...but important to see a heart specialist you can  trust...thinking 
of you 
.am wondering when or if you have had a drug  holiday...to give your body 
a rest from meds?and see if the pain goes away  without the drug??  If your 
symptoms got worse after uptaking  Tasigna, what about talking to your 
oncologist about the other options now  available? Just a thought. 
Take good care.. 
 
Beth


-Original  Message-
From: patrickemailguard-goog  
To: cmlhope  
Sent: Sun, Jan 27, 2013 4:50  pm
Subject: Re: [CMLHope] ultrasound of abominal aorta ?

   Jeanie,  
Since you've taken it you  know they do ECG's on Tasigna patients 
excessively. That's because  Tasigna can cause prolonged QT syndrome which 
basically 
means  the heart is still in the relaxed phase of its cycle when the next  
signal to contract comes. This can  cause atrial fibrillation commonly 
referred to as a heart  attack.
I think it would be  prudent for your oncologist (or you) to refer you to a 
cardiovascular  specialist.

Patrick

--- On Sun, 1/27/13, _ICANDOALLTTC@aol.com_ (mailto:icandoall...@aol.com)  
<_ICANDOALLTTC@aol.com_ (mailto:icandoall...@aol.com) > wrote:


From:  _ICANDOALLTTC@aol.com_ (mailto:icandoall...@aol.com)  
<_ICANDOALLTTC@aol.com_ (mailto:icandoall...@aol.com) >
Subject:  Re: [CMLHope] ultrasound of abominal aorta ?
To: _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) 
Date:  Sunday, January 27, 2013, 3:21 PM


 
Hi Marty and will do.  He does an ultrasound of my heart  yearly but don't 
know if that includes the aorta scan or   not.  I'll ask him.  He is aware 
of my heart beat and pain;  just can't figure it out.  I have heard that a 
bulging aorta can  cause those symptoms also.  Actually the pain go really bad 
right  after I went on Tasigna.  The doctor put me on Tramodol for pain  
and did a MRI.  Nothing showed up.  It strange.  Maybe  the aorta scan might 
show something. 
Thanks again,
Jeanie<3
 
 
In a message dated 1/26/2013 11:35:24 P.M. Eastern Standard Time,  
_wa2yyx@gmail.com_ (mailto:wa2...@gmail.com)  writes:

Hi Jeanie,

The Warferin did make that beating go  away. It wasn't so much the pain 
just like a very uncomfortable  feeling.

I think that you should discuss this with your  doctor. You should get an 
ultrasound to see what if anything is  going on.

18's

Marty

On Sat, Jan 26, 2013 at 3:07 PM,   wrote:



Hi Marty, did the warferin take care of your problem and did  the beating 
in your abdomen go away?  I also have pain in  that area?  Did you have pain? 
 Just wondering if all  will go away if that's the problem.  Thanks so much.
Jeanie<3
 
In a message dated 1/26/2013 10:34:11 A.M. Eastern Standard  Time, 
icandoall...@aol.com writes:

Wow! that is good to know.  Thanks so much.  I  will have the ultrasound 
and see what it shows.  Sounds  like a good plan.
Thanks again,
Jeanie<3
 
 
In a message dated 1/25/2013 3:50:48 P.M. Eastern Standard  Time, 
wa2...@gmail.com writes:

HI JEANIE,

THERE WAS A TIME THAT I ALSO FELT  MY HEART BEATING IN MY ABDOMEN. IT DROVE 
ME CRAZY UNTIL I HAD  AN ULTRASOUND OF MY ABDOMINAL AORTA
THERE WAS A SMALL  BLOCKAGE THAT WAS TAKEN CARE OF BY WARFERIN. WHICH IS A 
BLOOD  THINNER.

18'S

MARTY

On Fri, Jan 25, 2013 at  10:59 AM,  wrote:


Hi Doris, Yes I have had all those symptoms and much  more.  I never 
reached remission on Gleevec and had a  terrible time until I went on Sprycel.  
My 
blood  pressure always runs a little high; doc wants me to take BP  meds 
but I have tried them and don't do well on them.   The last one I took was 
Aetenol; gave me heart pains.   Have you tried walking and diet.  Walking seems 
to  help.  A diet low in animal foods, with lots of fish,  fruit and 
veggies may help also.  Exercise in  moderation is good.  One side effect that 
I 
had right  before my dx was that I could feel my heart beating in my  tummy 
on the right side.  It still does, and they don't  know why

Re: [CMLHope] ultrasound of abominal aorta ?

2013-02-04 Thread ICANDOALLTTC
Thanks Patrick, Yes I had those done quite often on Tasi.  I do need  to go 
to a heart specialist but my heart ultrasounds are always good.  I am  
going soon and thanks.
Jeanie<3
 
 
In a message dated 1/27/2013 5:50:16 P.M. Eastern Standard Time,  
patrickemailguard-g...@yahoo.com writes:

Jeanie,  
Since you've taken it you  know they do ECG's on Tasigna patients 
excessively. That's because  Tasigna can cause prolonged QT syndrome which 
basically 
means  the heart is still in the relaxed phase of its cycle when the next  
signal to contract comes. This can  cause atrial fibrillation commonly 
referred to as a heart  attack.
I think it would be  prudent for your oncologist (or you) to refer you to a 
cardiovascular  specialist.

Patrick

--- On Sun, 1/27/13,  icandoall...@aol.com  wrote:


From:  icandoall...@aol.com 
Subject: Re:  [CMLHope] ultrasound of abominal aorta ?
To:  cmlhope@googlegroups.com
Date: Sunday, January 27, 2013, 3:21  PM


 
Hi Marty and will do.  He does an ultrasound of my heart  yearly but don't 
know if that includes the aorta scan or   not.  I'll ask him.  He is aware 
of my heart beat and pain;  just can't figure it out.  I have heard that a 
bulging aorta can  cause those symptoms also.  Actually the pain go really bad 
right  after I went on Tasigna.  The doctor put me on Tramodol for pain  
and did a MRI.  Nothing showed up.  It strange.  Maybe  the aorta scan might 
show something. 
Thanks again,
Jeanie<3
 
 
In a message dated 1/26/2013 11:35:24 P.M. Eastern Standard Time,  
wa2...@gmail.com writes:

Hi Jeanie,

The Warferin did make that beating go  away. It wasn't so much the pain 
just like a very uncomfortable  feeling.

I think that you should discuss this with your  doctor. You should get an 
ultrasound to see what if anything is  going on.

18's

Marty

On Sat, Jan 26, 2013 at 3:07 PM,  <_ICANDOALLTTC@aol.com_ 
(mip://09b621a0/mc/compose?to=icandoall...@aol.com) >  wrote:



Hi Marty, did the warferin take care of your problem and did  the beating 
in your abdomen go away?  I also have pain in  that area?  Did you have pain? 
 Just wondering if all  will go away if that's the problem.  Thanks so much.
Jeanie<3
 
In a message dated 1/26/2013 10:34:11 A.M. Eastern Standard  Time, 
_ICANDOALLTTC@aol.com_ (mip://09b621a0/mc/compose?to=icandoall...@aol.com)   
writes:

Wow! that is good to know.  Thanks so much.  I  will have the ultrasound 
and see what it shows.  Sounds  like a good plan.
Thanks again,
Jeanie<3
 
 
In a message dated 1/25/2013 3:50:48 P.M. Eastern Standard  Time, 
_wa2yyx@gmail.com_ (mip://09b621a0/mc/compose?to=wa2...@gmail.com)   writes:

HI JEANIE,

THERE WAS A TIME THAT I ALSO FELT  MY HEART BEATING IN MY ABDOMEN. IT DROVE 
ME CRAZY UNTIL I HAD  AN ULTRASOUND OF MY ABDOMINAL AORTA
THERE WAS A SMALL  BLOCKAGE THAT WAS TAKEN CARE OF BY WARFERIN. WHICH IS A 
BLOOD  THINNER.

18'S

MARTY

On Fri, Jan 25, 2013 at  10:59 AM, <_ICANDOALLTTC@aol.com_ 
(mip://09b621a0/mc/compose?to=icandoall...@aol.com) >  wrote:


Hi Doris, Yes I have had all those symptoms and much  more.  I never 
reached remission on Gleevec and had a  terrible time until I went on Sprycel.  
My 
blood  pressure always runs a little high; doc wants me to take BP  meds 
but I have tried them and don't do well on them.   The last one I took was 
Aetenol; gave me heart pains.   Have you tried walking and diet.  Walking seems 
to  help.  A diet low in animal foods, with lots of fish,  fruit and 
veggies may help also.  Exercise in  moderation is good.  One side effect that 
I 
had right  before my dx was that I could feel my heart beating in my  tummy 
on the right side.  It still does, and they don't  know why.
Good luck and so glad you are in remission.
Jeanie<3
 
 
In a message dated 1/24/2013 11:01:12 A.M. Eastern  Standard Time, 
_dorisbmt@aol.com_ (mip://09b621a0/mc/compose?to=doris...@aol.com)   writes:

Hi, my name is Doris   
I don't get on that much but I read often.  I'm  having trouble with my 
blood pressure.  On gleevec  100mg six a day. Been in remission since 2002. Now 
my  blood pressure out of control. Dr just up my lisinopril to  10mg twice 
a day with a water pill. The lowest its been so  far is156/84.I get dizzy. 
Light headed and racing heart  rate. I totally. Feel weird. And can tell when 
it spikes.  Anyone else having this  problems.



-- 
-- 
[CMLHope]
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You  received this message because you are subscribed to the  Google Groups 
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To post to this group,  send email to _CMLHope@googlegroups.com_ 
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For  more opti

Re: [CMLHope] ultrasound of abominal aorta ?

2013-01-27 Thread bkbarney


Dear Jeanie,

I am sorry you are having difficulties. I wanted to throw my two cents in and 
say I concur with Patrick. My oncologist has had me do twice yearly 
echocardiograms while on these meds when not symptomatic, more frequntly when 
symptomatic along with 
ECG's...These meds can affect the heart, or it could be totally unrelated...but 
important to see a heart specialist you can trust...thinking of you .am 
wondering when or if you have had a drug holiday...to give your body a rest 
from meds?and see if the pain goes away without the drug??  If your symptoms 
got worse after uptaking Tasigna, what about talking to your oncologist about 
the other options now available? Just a thought. 
Take good care.. 

Beth


-Original Message-
From: patrickemailguard-goog 
To: cmlhope 
Sent: Sun, Jan 27, 2013 4:50 pm
Subject: Re: [CMLHope] ultrasound of abominal aorta ?




Jeanie,
Since you've taken it you know they do ECG's on Tasigna patients excessively. 
That's because Tasigna can cause prolonged QT syndrome which basically means 
the heart is still in the relaxed phase of its cycle when the next signal to 
contract comes. This can cause atrial fibrillation commonly referred to as a 
heart attack.
I think it would be prudent for your oncologist (or you) to refer you to a 
cardiovascular specialist.

Patrick

--- On Sun, 1/27/13, icandoall...@aol.com  wrote:


From: icandoall...@aol.com 
Subject: Re: [CMLHope] ultrasound of abominal aorta ?
To: cmlhope@googlegroups.com
Date: Sunday, January 27, 2013, 3:21 PM



Hi Marty and will do.  He does an ultrasound of my heart yearly but don't know 
if that includes the aorta scan or  not.  I'll ask him.  He is aware of my 
heart beat and pain; just can't figure it out.  I have heard that a bulging 
aorta can cause those symptoms also.  Actually the pain go really bad right 
after I went on Tasigna.  The doctor put me on Tramodol for pain and did a MRI. 
 Nothing showed up.  It strange.  Maybe the aorta scan might show something. 
Thanks again,
Jeanie<3
 

In a message dated 1/26/2013 11:35:24 P.M. Eastern Standard Time, 
wa2...@gmail.com writes:
Hi Jeanie,

The Warferin did make that beating go away. It wasn't so much the pain just 
like a very uncomfortable feeling.

I think that you should discuss this with your doctor. You should get an 
ultrasound to see what if anything is going on.

18's

Marty


On Sat, Jan 26, 2013 at 3:07 PM,  wrote:


 
Hi Marty, did the warferin take care of your problem and did the beating in 
your abdomen go away?  I also have pain in that area?  Did you have pain?  Just 
wondering if all will go away if that's the problem.  Thanks so much.
Jeanie<3

In a message dated 1/26/2013 10:34:11 A.M. Eastern Standard Time, 
icandoall...@aol.com writes:

Wow! that is good to know.  Thanks so much.  I will have the ultrasound and see 
what it shows.  Sounds like a good plan.
Thanks again,
Jeanie<3
 

In a message dated 1/25/2013 3:50:48 P.M. Eastern Standard Time, 
wa2...@gmail.com writes:
HI JEANIE,

THERE WAS A TIME THAT I ALSO FELT MY HEART BEATING IN MY ABDOMEN. IT DROVE ME 
CRAZY UNTIL I HAD AN ULTRASOUND OF MY ABDOMINAL AORTA
THERE WAS A SMALL BLOCKAGE THAT WAS TAKEN CARE OF BY WARFERIN. WHICH IS A BLOOD 
THINNER.

18'S

MARTY


On Fri, Jan 25, 2013 at 10:59 AM,  wrote:


Hi Doris, Yes I have had all those symptoms and much more.  I never reached 
remission on Gleevec and had a terrible time until I went on Sprycel.  My blood 
pressure always runs a little high; doc wants me to take BP meds but I have 
tried them and don't do well on them.  The last one I took was Aetenol; gave me 
heart pains.  Have you tried walking and diet.  Walking seems to help.  A diet 
low in animal foods, with lots of fish, fruit and veggies may help also.  
Exercise in moderation is good.  One side effect that I had right before my dx 
was that I could feel my heart beating in my tummy on the right side.  It still 
does, and they don't know why.
Good luck and so glad you are in remission.
Jeanie<3
 

In a message dated 1/24/2013 11:01:12 A.M. Eastern Standard Time, 
doris...@aol.com writes:
Hi, my name is Doris  
I don't get on that much but I read often.  I'm having trouble with my blood 
pressure.  On gleevec 100mg six a day. Been in remission since 2002. Now my 
blood pressure out of control. Dr just up my lisinopril to 10mg twice a day 
with a water pill. The lowest its been so far is156/84.I get dizzy. Light 
headed and racing heart rate. I totally. Feel weird. And can tell when it 
spikes.  Anyone else having this problems.


-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-
 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr

Re: [CMLHope] ultrasound of abominal aorta ?

2013-01-27 Thread patrickemailguard-goog
Jeanie,Since you've taken it you know they do ECG's on Tasigna patients 
excessively. That's because Tasigna can cause prolonged QT syndrome which 
basically means the heart is still in the relaxed phase of its cycle when the 
next signal to contract comes. This can cause atrial fibrillation commonly 
referred to as a heart attack.I think it would be prudent for your oncologist 
(or you) to refer you to a cardiovascular specialist.
Patrick
--- On Sun, 1/27/13, icandoall...@aol.com  wrote:

From: icandoall...@aol.com 
Subject: Re: [CMLHope] ultrasound of abominal aorta ?
To: cmlhope@googlegroups.com
Date: Sunday, January 27, 2013, 3:21 PM



 
 

Hi Marty and will do.  He does an ultrasound of my heart yearly but 
don't know if that includes the aorta scan or  not.  I'll ask 
him.  He is aware of my heart beat and pain; just can't figure it 
out.  I have heard that a bulging aorta can cause those symptoms 
also.  Actually the pain go really bad right after I went on Tasigna.  
The doctor put me on Tramodol for pain and did a MRI.  Nothing showed 
up.  It strange.  Maybe the aorta scan might show 
something. 
Thanks again,
Jeanie<3
 

In a message dated 1/26/2013 11:35:24 P.M. Eastern Standard Time, 
wa2...@gmail.com writes:
Hi 
  Jeanie,

The Warferin did make that beating go away. It wasn't so much 
  the pain just like a very uncomfortable feeling.

I think that you 
  should discuss this with your doctor. You should get an ultrasound to see 
what 
  if anything is going on.

18's

Marty


  On Sat, Jan 26, 2013 at 3:07 PM,  wrote:

  

 
Hi Marty, did the warferin take care of your problem and did the 
beating in your abdomen go away?  I also have pain in that area?  
Did you have pain?  Just wondering if all will go away if that's the 
problem.  Thanks so much.
Jeanie<3

In a message dated 1/26/2013 10:34:11 A.M. Eastern Standard Time, 
icandoall...@aol.com writes:

  Wow! that is good to know.  Thanks so much.  I will have 
  the ultrasound and see what it shows.  Sounds like a good plan.
  Thanks again,
  Jeanie<3
   
  
  In a message dated 1/25/2013 3:50:48 P.M. Eastern Standard Time, 
wa2...@gmail.com writes:
  HI 
JEANIE,

THERE WAS A TIME THAT I ALSO FELT MY HEART BEATING IN MY 
ABDOMEN. IT DROVE ME CRAZY UNTIL I HAD AN ULTRASOUND OF MY ABDOMINAL 
AORTA
THERE WAS A SMALL BLOCKAGE THAT WAS TAKEN CARE OF BY WARFERIN. 
WHICH IS A BLOOD THINNER.

18'S

MARTY


On Fri, Jan 25, 2013 at 10:59 AM,  wrote:


  
  Hi Doris, Yes I have had all those symptoms and much more.  
  I never reached remission on Gleevec and had a terrible time until I 
  went on Sprycel.  My blood pressure always runs a little high; 
  doc wants me to take BP meds but I have tried them and don't do well 
  on them.  The last one I took was Aetenol; gave me heart 
  pains.  Have you tried walking and diet.  Walking seems to 
  help.  A diet low in animal foods, with lots of fish, fruit and 
  veggies may help also.  Exercise in moderation is good.  One 
  side effect that I had right before my dx was that I could feel my 
  heart beating in my tummy on the right side.  It still does, and 
  they don't know why.
  Good luck and so glad you are in remission.
  Jeanie<3
   
  
  In a message dated 1/24/2013 11:01:12 A.M. Eastern Standard Time, 
  doris...@aol.com writes:
  Hi, 
my name is Doris  
I don't get on that much but I read often.  I'm having 
trouble with my blood pressure.  On gleevec 100mg six a day. 
Been in remission since 2002. Now my blood pressure out of control. 
Dr just up my lisinopril to 10mg twice a day with a water pill. The 
lowest its been so far is156/84.I get dizzy. Light headed and 
racing 
heart rate. I totally. Feel weird. And can tell when it spikes. 
 Anyone else having this 
  problems.
  -- 
-- 
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-
 
You 
  received this message because you are subscribed to the Google Groups 
  "CMLHope" group.
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Re: [CMLHope] ultrasound of abominal aorta ?

2013-01-27 Thread ICANDOALLTTC
KK so the ultrasound of the heart wouldn't do the abdominal aorta.   
Thanks, I'll see my doctor soon.  Time for the yearly checkup.  Did  you have 
to 
go to a specialist to have this done?
Jeanie<3
 
 
In a message dated 1/27/2013 4:27:01 P.M. Eastern Standard Time,  
wa2...@gmail.com writes:

Hi  Jeanie,

I'm not talking about the aorta of the heart but rather the  abdominal 
aorta.

18's,

Marty

On Sun, Jan 27, 2013 at 4:21 PM, <_ICANDOALLTTC@aol.com_ 
(mailto:icandoall...@aol.com) > wrote:


Hi Marty and will do.  He does an ultrasound of my heart yearly  but don't 
know if that includes the aorta scan or  not.  I'll ask  him.  He is aware 
of my heart beat and pain; just can't figure it  out.  I have heard that a 
bulging aorta can cause those symptoms  also.  Actually the pain go really bad 
right after I went on  Tasigna.  The doctor put me on Tramodol for pain and 
did a MRI.   Nothing showed up.  It strange.  Maybe the aorta scan might 
show  something. 
Thanks again,
Jeanie<3
 
 
In a message dated 1/26/2013 11:35:24 P.M. Eastern Standard Time, 
_wa2yyx@gmail.com_ (mailto:wa2...@gmail.com)  writes:

Hi  Jeanie,

The Warferin did make that beating go away. It wasn't so  much the pain 
just like a very uncomfortable feeling.

I think that  you should discuss this with your doctor. You should get an 
ultrasound to  see what if anything is going on.

18's

Marty

On Sat, Jan 26, 2013 at 3:07 PM, <_ICANDOALLTTC@aol.com_ 
(mailto:icandoall...@aol.com) > wrote:



Hi Marty, did the warferin take care of your problem and did the  beating 
in your abdomen go away?  I also have pain in that  area?  Did you have pain? 
 Just wondering if all will go away  if that's the problem.  Thanks so much.
Jeanie<3
 
In a message dated 1/26/2013 10:34:11 A.M. Eastern Standard Time,  
_ICANDOALLTTC@aol.com_ (mailto:icandoall...@aol.com)  writes:

Wow! that is good to know.  Thanks so much.  I will  have the ultrasound 
and see what it shows.  Sounds like a good  plan.
Thanks again,
Jeanie<3
 
 
In a message dated 1/25/2013 3:50:48 P.M. Eastern Standard Time,  
_wa2yyx@gmail.com_ (mailto:wa2...@gmail.com)  writes:

HI  JEANIE,

THERE WAS A TIME THAT I ALSO FELT MY HEART BEATING IN  MY ABDOMEN. IT DROVE 
ME CRAZY UNTIL I HAD AN ULTRASOUND OF MY  ABDOMINAL AORTA
THERE WAS A SMALL BLOCKAGE THAT WAS TAKEN CARE OF  BY WARFERIN. WHICH IS A 
BLOOD  THINNER.

18'S

MARTY

On Fri, Jan 25, 2013 at 10:59 AM, <_ICANDOALLTTC@aol.com_ 
(mailto:icandoall...@aol.com) > wrote:


Hi Doris, Yes I have had all those symptoms and much  more.  I never 
reached remission on Gleevec and had a  terrible time until I went on Sprycel.  
My 
blood pressure  always runs a little high; doc wants me to take BP meds but 
I have  tried them and don't do well on them.  The last one I took  was 
Aetenol; gave me heart pains.  Have you tried walking and  diet.  Walking seems 
to help.  A diet low in animal  foods, with lots of fish, fruit and veggies 
may help also.   Exercise in moderation is good.  One side effect that I 
had  right before my dx was that I could feel my heart beating in my  tummy on 
the right side.  It still does, and they don't know  why.
Good luck and so glad you are in remission.
Jeanie<3
 
 
In a message dated 1/24/2013 11:01:12 A.M. Eastern Standard  Time, 
_dorisbmt@aol.com_ (mailto:doris...@aol.com)   writes:

Hi, my name is Doris   
I don't get on that much but I read often.  I'm having  trouble with my 
blood pressure.  On gleevec 100mg six a  day. Been in remission since 2002. Now 
my blood pressure out of  control. Dr just up my lisinopril to 10mg twice a 
day with a  water pill. The lowest its been so far is156/84.I get dizzy.  
Light headed and racing heart rate. I totally. Feel weird. And  can tell when 
it spikes.  Anyone else having this  problems.



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Re: [CMLHope] ultrasound of abominal aorta ?

2013-01-27 Thread Marty Gartenberg
Hi Jeanie,

I'm not talking about the aorta of the heart but rather the abdominal aorta.

18's,

Marty

On Sun, Jan 27, 2013 at 4:21 PM,  wrote:

> **
> Hi Marty and will do.  He does an ultrasound of my heart yearly but don't
> know if that includes the aorta scan or  not.  I'll ask him.  He is aware
> of my heart beat and pain; just can't figure it out.  I have heard that a
> bulging aorta can cause those symptoms also.  Actually the pain go really
> bad right after I went on Tasigna.  The doctor put me on Tramodol for pain
> and did a MRI.  Nothing showed up.  It strange.  Maybe the aorta scan might
> show something.
> Thanks again,
> Jeanie<3
>
>  In a message dated 1/26/2013 11:35:24 P.M. Eastern Standard Time,
> wa2...@gmail.com writes:
>
> Hi Jeanie,
>
> The Warferin did make that beating go away. It wasn't so much the pain
> just like a very uncomfortable feeling.
>
> I think that you should discuss this with your doctor. You should get an
> ultrasound to see what if anything is going on.
>
> 18's
>
> Marty
>
> On Sat, Jan 26, 2013 at 3:07 PM,  wrote:
>
>> **
>>
>> Hi Marty, did the warferin take care of your problem and did the beating
>> in your abdomen go away?  I also have pain in that area?  Did you have
>> pain?  Just wondering if all will go away if that's the problem.  Thanks so
>> much.
>> Jeanie<3
>>  In a message dated 1/26/2013 10:34:11 A.M. Eastern Standard Time,
>> icandoall...@aol.com writes:
>>
>> Wow! that is good to know.  Thanks so much.  I will have the ultrasound
>> and see what it shows.  Sounds like a good plan.
>> Thanks again,
>> Jeanie<3
>>
>>  In a message dated 1/25/2013 3:50:48 P.M. Eastern Standard Time,
>> wa2...@gmail.com writes:
>>
>> HI JEANIE,
>>
>> THERE WAS A TIME THAT I ALSO FELT MY HEART BEATING IN MY ABDOMEN. IT
>> DROVE ME CRAZY UNTIL I HAD AN ULTRASOUND OF MY ABDOMINAL AORTA
>> THERE WAS A SMALL BLOCKAGE THAT WAS TAKEN CARE OF BY WARFERIN. WHICH IS A
>> BLOOD THINNER.
>>
>> 18'S
>>
>> MARTY
>>
>> On Fri, Jan 25, 2013 at 10:59 AM,  wrote:
>>
>>> **
>>> Hi Doris, Yes I have had all those symptoms and much more.  I never
>>> reached remission on Gleevec and had a terrible time until I went on
>>> Sprycel.  My blood pressure always runs a little high; doc wants me to take
>>> BP meds but I have tried them and don't do well on them.  The last one I
>>> took was Aetenol; gave me heart pains.  Have you tried walking and diet.
>>> Walking seems to help.  A diet low in animal foods, with lots of fish,
>>> fruit and veggies may help also.  Exercise in moderation is good.  One side
>>> effect that I had right before my dx was that I could feel my heart beating
>>> in my tummy on the right side.  It still does, and they don't know why.
>>> Good luck and so glad you are in remission.
>>> Jeanie<3
>>>
>>>  In a message dated 1/24/2013 11:01:12 A.M. Eastern Standard Time,
>>> doris...@aol.com writes:
>>>
>>> Hi, my name is Doris
>>> I don't get on that much but I read often.  I'm having trouble with my
>>> blood pressure.  On gleevec 100mg six a day. Been in remission since 2002.
>>> Now my blood pressure out of control. Dr just up my lisinopril to 10mg
>>> twice a day with a water pill. The lowest its been so far is156/84.I get
>>> dizzy. Light headed and racing heart rate. I totally. Feel weird. And can
>>> tell when it spikes.  Anyone else having this problems.
>>>
>>> --
>>> --
>>> [CMLHope]
>>> A support group of http://cmlhope.com
>>> -
>>>
>>> You received this message because you are subscribed to the Google
>>> Groups "CMLHope" group.
>>> To post to this group, send email to CMLHope@googlegroups.com
>>> To unsubscribe from this group, send email to
>>> cmlhope-unsubscr...@googlegroups.com
>>> For more options, visit this group at
>>> http://groups.google.com/group/CMLHope
>>>
>>>
>>>
>>
>> --
>> --
>> [CMLHope]
>> A support group of http://cmlhope.com
>> -
>>
>> You received this message because you are subscribed to the Google Groups
>> "CMLHope" group.
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>> http://groups.google.com/group/CMLHope
>>
>>
>>
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>> -
>>
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Re: [CMLHope] ultrasound of abominal aorta ?

2013-01-27 Thread ICANDOALLTTC
Hi Marty and will do.  He does an ultrasound of my heart yearly but  don't 
know if that includes the aorta scan or  not.  I'll ask  him.  He is aware 
of my heart beat and pain; just can't figure it  out.  I have heard that a 
bulging aorta can cause those symptoms  also.  Actually the pain go really bad 
right after I went on Tasigna.   The doctor put me on Tramodol for pain and 
did a MRI.  Nothing showed  up.  It strange.  Maybe the aorta scan might 
show  something. 
Thanks again,
Jeanie<3
 
 
In a message dated 1/26/2013 11:35:24 P.M. Eastern Standard Time,  
wa2...@gmail.com writes:

Hi  Jeanie,

The Warferin did make that beating go away. It wasn't so much  the pain 
just like a very uncomfortable feeling.

I think that you  should discuss this with your doctor. You should get an 
ultrasound to see what  if anything is going on.

18's

Marty

On Sat, Jan 26, 2013 at 3:07 PM, <_ICANDOALLTTC@aol.com_ 
(mailto:icandoall...@aol.com) > wrote:



Hi Marty, did the warferin take care of your problem and did the  beating 
in your abdomen go away?  I also have pain in that area?   Did you have pain? 
 Just wondering if all will go away if that's the  problem.  Thanks so much.
Jeanie<3
 
In a message dated 1/26/2013 10:34:11 A.M. Eastern Standard Time, 
_ICANDOALLTTC@aol.com_ (mailto:icandoall...@aol.com)  writes:

Wow! that is good to know.  Thanks so much.  I will have  the ultrasound 
and see what it shows.  Sounds like a good plan.
Thanks again,
Jeanie<3
 
 
In a message dated 1/25/2013 3:50:48 P.M. Eastern Standard Time, 
_wa2yyx@gmail.com_ (mailto:wa2...@gmail.com)  writes:

HI  JEANIE,

THERE WAS A TIME THAT I ALSO FELT MY HEART BEATING IN MY  ABDOMEN. IT DROVE 
ME CRAZY UNTIL I HAD AN ULTRASOUND OF MY ABDOMINAL  AORTA
THERE WAS A SMALL BLOCKAGE THAT WAS TAKEN CARE OF BY WARFERIN.  WHICH IS A 
BLOOD THINNER.

18'S

MARTY

On Fri, Jan 25, 2013 at 10:59 AM, <_ICANDOALLTTC@aol.com_ 
(mailto:icandoall...@aol.com) > wrote:


Hi Doris, Yes I have had all those symptoms and much more.   I never 
reached remission on Gleevec and had a terrible time until I  went on Sprycel.  
My 
blood pressure always runs a little high;  doc wants me to take BP meds but 
I have tried them and don't do well  on them.  The last one I took was 
Aetenol; gave me heart  pains.  Have you tried walking and diet.  Walking seems 
to  help.  A diet low in animal foods, with lots of fish, fruit and  veggies 
may help also.  Exercise in moderation is good.  One  side effect that I 
had right before my dx was that I could feel my  heart beating in my tummy on 
the right side.  It still does, and  they don't know why.
Good luck and so glad you are in remission.
Jeanie<3
 
 
In a message dated 1/24/2013 11:01:12 A.M. Eastern Standard Time,  
_dorisbmt@aol.com_ (mailto:doris...@aol.com)  writes:

Hi,  my name is Doris   
I don't get on that much but I read often.  I'm having  trouble with my 
blood pressure.  On gleevec 100mg six a day.  Been in remission since 2002. Now 
my blood pressure out of control.  Dr just up my lisinopril to 10mg twice a 
day with a water pill. The  lowest its been so far is156/84.I get dizzy. 
Light headed and racing  heart rate. I totally. Feel weird. And can tell when 
it spikes.  Anyone else having this  problems.



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Re: [CMLHope] ultrasound of abominal aorta ?

2013-01-26 Thread Marty Gartenberg
Hi Jeanie,

The Warferin did make that beating go away. It wasn't so much the pain just
like a very uncomfortable feeling.

I think that you should discuss this with your doctor. You should get an
ultrasound to see what if anything is going on.

18's

Marty

On Sat, Jan 26, 2013 at 3:07 PM,  wrote:

> **
>
> Hi Marty, did the warferin take care of your problem and did the beating
> in your abdomen go away?  I also have pain in that area?  Did you have
> pain?  Just wondering if all will go away if that's the problem.  Thanks so
> much.
> Jeanie<3
>  In a message dated 1/26/2013 10:34:11 A.M. Eastern Standard Time,
> icandoall...@aol.com writes:
>
> Wow! that is good to know.  Thanks so much.  I will have the ultrasound
> and see what it shows.  Sounds like a good plan.
> Thanks again,
> Jeanie<3
>
>  In a message dated 1/25/2013 3:50:48 P.M. Eastern Standard Time,
> wa2...@gmail.com writes:
>
> HI JEANIE,
>
> THERE WAS A TIME THAT I ALSO FELT MY HEART BEATING IN MY ABDOMEN. IT DROVE
> ME CRAZY UNTIL I HAD AN ULTRASOUND OF MY ABDOMINAL AORTA
> THERE WAS A SMALL BLOCKAGE THAT WAS TAKEN CARE OF BY WARFERIN. WHICH IS A
> BLOOD THINNER.
>
> 18'S
>
> MARTY
>
> On Fri, Jan 25, 2013 at 10:59 AM,  wrote:
>
>> **
>> Hi Doris, Yes I have had all those symptoms and much more.  I never
>> reached remission on Gleevec and had a terrible time until I went on
>> Sprycel.  My blood pressure always runs a little high; doc wants me to take
>> BP meds but I have tried them and don't do well on them.  The last one I
>> took was Aetenol; gave me heart pains.  Have you tried walking and diet.
>> Walking seems to help.  A diet low in animal foods, with lots of fish,
>> fruit and veggies may help also.  Exercise in moderation is good.  One side
>> effect that I had right before my dx was that I could feel my heart beating
>> in my tummy on the right side.  It still does, and they don't know why.
>> Good luck and so glad you are in remission.
>> Jeanie<3
>>
>>  In a message dated 1/24/2013 11:01:12 A.M. Eastern Standard Time,
>> doris...@aol.com writes:
>>
>> Hi, my name is Doris
>> I don't get on that much but I read often.  I'm having trouble with my
>> blood pressure.  On gleevec 100mg six a day. Been in remission since 2002.
>> Now my blood pressure out of control. Dr just up my lisinopril to 10mg
>> twice a day with a water pill. The lowest its been so far is156/84.I get
>> dizzy. Light headed and racing heart rate. I totally. Feel weird. And can
>> tell when it spikes.  Anyone else having this problems.
>>
>> --
>> --
>> [CMLHope]
>> A support group of http://cmlhope.com
>> -
>>
>> You received this message because you are subscribed to the Google Groups
>> "CMLHope" group.
>> To post to this group, send email to CMLHope@googlegroups.com
>> To unsubscribe from this group, send email to
>> cmlhope-unsubscr...@googlegroups.com
>> For more options, visit this group at
>> http://groups.google.com/group/CMLHope
>>
>>
>>
>
> --
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>
>
>
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>
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[CMLHope] ultrasound of abominal aorta ?

2013-01-26 Thread ICANDOALLTTC

Hi Marty, did the warferin take care of your problem and did the beating in 
 your abdomen go away?  I also have pain in that area?  Did you have  pain? 
 Just wondering if all will go away if that's the problem.   Thanks so much.
Jeanie<3
 
In a message dated 1/26/2013 10:34:11 A.M. Eastern Standard Time,  
icandoall...@aol.com writes:

Wow! that is good to know.  Thanks so much.  I will have the  ultrasound 
and see what it shows.  Sounds like a good plan.
Thanks again,
Jeanie<3
 
 
In a message dated 1/25/2013 3:50:48 P.M. Eastern Standard Time,  
wa2...@gmail.com writes:

HI  JEANIE,

THERE WAS A TIME THAT I ALSO FELT MY HEART BEATING IN MY  ABDOMEN. IT DROVE 
ME CRAZY UNTIL I HAD AN ULTRASOUND OF MY ABDOMINAL  AORTA
THERE WAS A SMALL BLOCKAGE THAT WAS TAKEN CARE OF BY WARFERIN.  WHICH IS A 
BLOOD THINNER.

18'S

MARTY

On Fri, Jan 25, 2013 at 10:59 AM, <_ICANDOALLTTC@aol.com_ 
(mailto:icandoall...@aol.com) > wrote:


Hi Doris, Yes I have had all those symptoms and much more.  I  never 
reached remission on Gleevec and had a terrible time until I went on  Sprycel.  
My 
blood pressure always runs a little high; doc wants me  to take BP meds but 
I have tried them and don't do well on them.  The  last one I took was 
Aetenol; gave me heart pains.  Have you tried  walking and diet.  Walking seems 
to help.  A diet low in animal  foods, with lots of fish, fruit and veggies 
may help also.  Exercise  in moderation is good.  One side effect that I had 
right before my dx  was that I could feel my heart beating in my tummy on 
the right  side.  It still does, and they don't know why.
Good luck and so glad you are in remission.
Jeanie<3
 
 
In a message dated 1/24/2013 11:01:12 A.M. Eastern Standard Time, 
_dorisbmt@aol.com_ (mailto:doris...@aol.com)  writes:

Hi, my  name is Doris   
I don't get on that much but I read often.  I'm having trouble  with my 
blood pressure.  On gleevec 100mg six a day. Been in  remission since 2002. Now 
my blood pressure out of control. Dr just up  my lisinopril to 10mg twice a 
day with a water pill. The lowest its been  so far is156/84.I get dizzy. 
Light headed and racing heart rate. I  totally. Feel weird. And can tell when 
it spikes.  Anyone else  having this  problems.



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