Re: [CMLHope] To Kathy

['Icandoallttc' via CMLHope]

Thanks Marty and thanks for all the uplifts.   
During my fight I have seen several of my gg grandchildren come into this world 
and have been on many trips with my children.
I have celebrated 11 birthdays with my children.   Is it worth it??? Yes it is. 
Kathy I am not saying it's going to be easy!! Gleevec through everything it had 
at me and I fought on.  Take your Gleevec with a large mild meal.  I liked to 
take it with my breakfast as that is a mild meal.  Try to stay away from 
spices.
Gleevec never put me in remission and after 5 years quit on me.  However, there 
are a lot of people in this list that are still on Gleevec and doing good.  We 
are all unique and so have to listen to our bodies and never give up!!! 
Good luck.

My Motto: Faith and Pills❤️
With Jeanie 18,s 
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna  9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center

> On Jan 18, 2016, at 6:02 PM, Marty Gartenberg  wrote:
> 
> Hi Jeanie,
> 
> I just felt it appropriate to make only one comment to something that you said
> 
> First let me read part of your comment
> 
> "This is my 12 th year fighting cml and yes it was worth it."
> 
> Yes Jeanie it was worth every second of it.
> 
> You know me and that is probably why I am still alive. EVERY SECOND OF IT.
> 
> A word to the "newbies" If you ever become depressed or wonder why this is 
> happening to any of you then I want you to thing about 13 of 14 years into 
> the past when there was nothing. Now just look at all of you. You have your 
> life back. Remember worth every second of it.
> 
> And Jeanie You shine. Oh yes you do.
> 
> By the way, if any of you are interested gmail has it own web conferencing 
> program built in to it. As long as you have a gmail account and a webcam you 
> can get on and have a video conference with up to I think 10 other people.
> 
> If you look on way the bottom of your screen you will see a ittle man then 
> right next to it a " in a little black circle and next to that a symbol of a 
> telephone receiver.
> 
> 18's,
> 
> Marty
> 
> 
> 
>> On Sun, Jan 17, 2016 at 7:42 AM, 'Icandoallttc' via CMLHope 
>>  wrote:
>> 
>> Hi Kathy
>> This is my 12 th year fighting cml and yes it was worth it.  I know what you 
>> are going through as I remember my first year in Gleevec.   We have many 
>> more choices now so if it gets too bad talk to your dr about changing tkis.  
>>  
>> Make sure you are going to a specialty cml onc as I made the mistake in the 
>> beginning of going to an onc that didn't know what he was doing. Stay strong 
>> and stay connected.  
>> ❤️
>> My Motto: Faith and Pills❤️
>> With Jeanie 18,s 
>> Dx 1/2004. CML Leukemia
>> Started Gleevec 2/2004
>> Started Tasigna  9/2009
>> Started Sprycel 11/2009
>> Started Ponatinib January 2015
>> Dr Balducci Moffitt Cancer Center
>> 
>>> On Jan 16, 2016, at 1:27 PM, kathy walls  
>>> wrote:
>>> 
>>> Today is my 1 yr anniversary of being diagnosed with CML, I'm here but not 
>>> happily.  So many side effects. Makes you wonder if it's worth it
>>> 
>>> Sent from my iPhone
>>> 
 On Jan 16, 2016, at 12:23 AM, Pete Pabon  wrote:
 
 Diagnosed 1999
 Gleevec 2000
 15 years still no phillies found
 
 
 Date: Fri, 15 Jan 2016 10:18:43 -0500
 Subject: Re: [CMLHope] Am I strong? Are we all strong? Read on...
 From: wa2...@gmail.com
 To: cmlhope@googlegroups.com
 
 Well now I got a much refreshing title. Being that everyone is a leader of 
 this group so does it go to help all of us together.
 
 You know that it's been so long that I forgot about Rob. I do hope to hear 
 from him. I also had no idea about his mother having leukemia and I hope 
 that she is doing well. 
 
 So many new things have happened since we were members and as I remember 
 this group was in fact a yahoo group but I just can't put my finger if it 
 was for sure. Some time has passed and my memory has not been my greatest 
 asset so I would really like to hear from Rob.
 
 Just think look at some of the people that were still around then (like 
 yourself) that are still around now. Hey what ever happened to CML will be 
 only be around for 5 years until the "Lukie Dragon" will come and get you. 

 
 Do you remember that saying a very long time ago? Well that for sure has 
 has changed with all of these advancements using these TKI's and what is 
 coming down the pipe next.
 
 I'm telling you it will be that, no matter what you are and what you 
 believe in there will come a time near to now that this "Dragon" will meet 
 it's demise.  
 
 You mark my words.
 
 18's,
 
 Marty
 
 On Fri, Jan 15, 2016 at 7:02 AM, 'Icandoallttc' via CMLHope 
 

Re: [CMLHope] To Kathy

[Marty Gartenberg]

Hi Jeanie,

I just felt it appropriate to make only one comment to something that you
said

First let me read part of your comment

"This is my 12 th year fighting cml and yes it was worth it."

Yes Jeanie it was worth every second of it.

You know me and that is probably why I am still alive. EVERY SECOND OF IT.

A word to the "newbies" If you ever become depressed or wonder why this is
happening to any of you then I want you to thing about 13 of 14 years into
the past when there was nothing. Now just look at all of you. You have your
life back. Remember worth every second of it.

And Jeanie You shine. Oh yes you do.

By the way, if any of you are interested gmail has it own web conferencing
program built in to it. As long as you have a gmail account and a webcam
you can get on and have a video conference with up to I think 10 other
people.

If you look on way the bottom of your screen you will see a ittle man then
right next to it a " in a little black circle and next to that a symbol of
a telephone receiver.

18's,

Marty



On Sun, Jan 17, 2016 at 7:42 AM, 'Icandoallttc' via CMLHope <
cmlhope@googlegroups.com> wrote:

>
> Hi Kathy
> This is my 12 th year fighting cml and yes it was worth it.  I know what
> you are going through as I remember my first year in Gleevec.   We have
> many more choices now so if it gets too bad talk to your dr about changing
> tkis.
> Make sure you are going to a specialty cml onc as I made the mistake in
> the beginning of going to an onc that didn't know what he was doing. Stay
> strong and stay connected.
> ❤️
> My Motto: Faith and Pills❤️
> With Jeanie 18,s
> Dx 1/2004. CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna  9/2009
> Started Sprycel 11/2009
> Started Ponatinib January 2015
> Dr Balducci Moffitt Cancer Center
>
> On Jan 16, 2016, at 1:27 PM, kathy walls 
> wrote:
>
> Today is my 1 yr anniversary of being diagnosed with CML, I'm here but not
> happily.  So many side effects. Makes you wonder if it's worth it
>
> Sent from my iPhone
>
> On Jan 16, 2016, at 12:23 AM, Pete Pabon  wrote:
>
> *Diagnosed 1999*
> *Gleevec 2000*
>
> *15 years still no phillies found*
>
> --
> Date: Fri, 15 Jan 2016 10:18:43 -0500
> Subject: Re: [CMLHope] Am I strong? Are we all strong? Read on...
> From: wa2...@gmail.com
> To: cmlhope@googlegroups.com
>
> Well now I got a much refreshing title. Being that everyone is a leader of
> this group so does it go to help all of us together.
>
> You know that it's been so long that I forgot about Rob. I do hope to hear
> from him. I also had no idea about his mother having leukemia and I hope
> that she is doing well.
>
> So many new things have happened since we were members and as I remember
> this group was in fact a yahoo group but I just can't put my finger if it
> was for sure. Some time has passed and my memory has not been my greatest
> asset so I would really like to hear from Rob.
>
> Just think look at some of the people that were still around then (like
> yourself) that are still around now. Hey what ever happened to CML will be
> only be around for 5 years until the "Lukie Dragon" will come and get you.
>
>
> Do you remember that saying a very long time ago? Well that for sure has
> has changed with all of these advancements using these TKI's and what is
> coming down the pipe next.
>
> I'm telling you it will be that, no matter what you are and what you
> believe in there will come a time near to now that this "Dragon" will meet
> it's demise.
>
> You mark my words.
>
> 18's,
>
> Marty
>
> On Fri, Jan 15, 2016 at 7:02 AM, 'Icandoallttc' via CMLHope <
> cmlhope@googlegroups.com> wrote:
>
> Hi Marty and good to hear from you.  We were wondering what happened.
> I believe the founder and narrator of this group is Rob.  His mother had
> leukemia.  Are you there Rob???
> Most of us have been here a long time.  I believe the group was once a
> yahoo group.
> We are all warriors and help each other when we can.
> This makes my 12 th year and I joined the group early on.
> And yes we are all leaders in our own way and pioneers with the tkis so
> that've can give our knowledge to the new warriors.
> I fight with faith and pills and I am a Christian.
> Much love.
> [image: Kiss mark][image: Smiling Face with Halo][image: Heavy black
> heart]️[image: Heart with ribbon][image: Growing heart]
>
> My Motto: Faith and Pills
> Jeanie [image: Fish][image: Fish]18,s
> Dx 1/2004. CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna  9/2009
> Started Sprycel 11/2009
> Started Ponatinib January 2015
> Dr Balducci Moffitt Cancer Center
>
> On Jan 13, 2016, at 12:38 AM, Marty Gartenberg  wrote:
>
> For some reason my message did not come out so I am trying it once more, I
> do hope it does come through
>
> This is directed to Sandi and everyone else.
>
> Dearest Sandi, and I really mean that, but for a very special reason. It
> is not the words