http://www.dotplanet.com/news/article.asp?aid=687429

Mass. passes strong genetic privacy law Thursday, August 03, 2000 2:32:06 PM

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BOSTON, Aug. 3 (UPI) - The Massachusetts Senate Thursday completed legislative action 
on what is considered among the strongest genetic privacy laws in the nation.

While not giving privacy advocates all they wanted, the measure establishes strict 
prohibitions against genetic discrimination in banking, housing, health insurance and 
employment.

It also gives patients almost total control over who can view their genetic test 
results.

The measure requires written consent from a patient before anyone other than attending 
physicians can view the test results.

Life insurance companies had argued against the bill, saying it would deprive them of 
an important tool to calculate the risk of covering people. Lawmakers addressed such 
concerns by not giving people permission to block life insurers from accessing genetic 
test results. Instead, a commission would be set up to study the issue for two years.

Genetic tests may one day be able to predict a person's susceptibility to certain 
diseases and personality disorders, and are already able to identify people at risk of 
getting certain cancers and some other illnesses.

The Boston Globe said privacy advocates are concerned the increasing use of such tests 
could result in discrimination against people viewed as costly medical risks, 
potentially disruptive or otherwise undesirable.

The legislation, the result of a five-year effort by a broad coalition of groups, was 
approved earlier this week by the state House and by the Senate Thursday afternoon.

It was not immediately clear whether Gov. Paul Cellucci would sign it, but several 
agencies in his administration have been pushing for its passage.

Senate Majority Leader Linda J. Melconian, D-Springfield, said lawmakers were spurred 
to action on the bill by the announcement in July that much of the human genetic code 
had been mapped.

"It became pretty clear this was serious business, that it was 21st-century technology 
that needed consumer protections," she said.

She said the measure "sets the prototype for the rest of the nation" to ban genetic 
discrimination.

-- Copyright 2000 by United Press International. All rights reserved. --



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~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
The end is in the means as the tree is in the seed.
- Mahatma Ghandi
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Abraham Lincoln, letter to Wm. F. Elkins  Nov. 21 1864
Arthur Shaw ed.  The Lincoln Encyclopedia  40  {1950}

"We may congratulate ourselves that this cruel war is nearing
it's end.  It has cost a vast amount of treasure and
blood.........It has indeed been a trying hour for the
Republic, but I see in the near future a crisis approaching
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of my country.  As a result of the war, corporations have been
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prolong it's reign by working on the prejudices of the
people until all wealth is aggregated in a few hands and the
Republic is destroyed.  I feel at this moment more anxiety
for the safety of my country than ever before, even in the
midst of war."
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