HISTORY DATA SET IN EPR

2003-08-11 Thread aniket Joshi
Dear All,
In HISTORY DATA SET,if seen carefully,the data can be
divided into two broad categories.
a.The format.
b.The descriptive data.
The history format is more or less structured all over
the world.
The descriptive part is mainly in the 
History of Present Illness in which the Onset Duration
and Progess(ODP) of each complaint is given in
chronological order.
The rest of the history format is not so descriptive
and can be easily strucutured.
In History of present illness if we assign a
indentifier for each Chief compliant which is going to
be described later in terms of ONSET DURATION PROGESS,
we have already been able to structure a large part of
history.
Again a sypmtom list classified according to the
systems can be provided.
I have already incorporated this in the system which I
have designed.
Plus if we incorporate CPGs in the system we will be
to provide a smaller but comprehensive symptom set.

I leave the thread OPEN for discussion.
DR ANIKET JOSHI

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HISTORY DATA SET IN EPR

2003-08-11 Thread Christopher Feahr
Great comments... It's always good to see this whole mess from the point
of view of the most concerned eyeballs: those of patients.  Often, the
disconnect that patients perceive between their reported problems and
prescribed solutions, is due to them having been intentionally insulated
from a reasoning process that most would not understand anyway.
Personally, I prefer to gauge each patient's ability to understand my
medical reasoning... by feeding a little of it to them and seeing what
sort of response it elicits.  There are many reasons why patients often
WANT to remain insulated from the medical decision making... but the
ones who want/demand to be included have a right to be.

I believe that the patient view of one's medical record should include
a patient-understandable view of not just what had been ordered for
them... i.e., done to them... but of the reasoning that led to it.
How much to show them, of course, is the $64K question.  Doctors are
nervous about this whole subject area... as are their malpractice
insurers.  But we cannot ignore the steadily increasing level of
sophistication within the patient community... of patient access through
the Internet to best practice guidelines.  Some patients arrive
nowadays, armed with pretty darned good differential diagnosis lists
to accompany their well-articulated complaints and symptoms.  Some even
have very good understandings of each possible diagnosis and the state
of the art treatment protocols.

For this reason, the Institute of Medicine content recommendations
(reflected in the present version 1.0 of the HL7 EHR ballot) includes 4
main care settings: in-patient, out-patient, nursing home, and personal
health record.  The last is the patient's view of the record...
presumably with certain write privileges for address, contact
information, etc., and in the reporting of symptoms and complaints.
This is bold new territory for us... but I think that we will all win
with greater and more informed participation from the patients who
desire it.  Without a robust patient-view of the EHR to point them to,
however, these type patients are likely to drive doctors nuts with
questions.  Hence, the doctor's inclination to keep them well-insulated
from his medical thinking.

Regards,
-Chris

Christopher J. Feahr, O.D.
Optiserv Consulting (Vision Industry)
Office: (707) 579-4984
Cell: (707) 529-2268
http://Optiserv.com
http://VisionDataStandard.org
- Original Message - 
From: Thomas Clark lakew...@copper.net
To: Christopher Feahr chris at optiserv.com
Cc: Karsten Hilbert Karsten.Hilbert at gmx.net;
openehr-technical at openehr.org
Sent: Monday, August 11, 2003 10:25 AM
Subject: Re: HISTORY DATA SET IN EPR


 Hi Christopher,

 Good response. Comments in text.

 -ThomasClark

 Christopher Feahr wrote:

 Thomas,
 When I said I thought the SNOMED people had already modeled
complaints,
 signs/symptoms, diagnosis, treatment plans prognosis, outcomes... the
 whole 9 yards I was using the term model in the sense of a
 representation of those individual concepts... for example, to
 represent in a computer-understandable way, the fact that Mrs. Jones
is
 complaining that her neck hurts.   I was not suggesting, that we
 could/should try to model the relationship between her coded symptoms
 and her eventual treatment plan.
 
 'model' conveys different information to different communities. A
 Patient Process Diagram would be interesting whereby current and
 historical Patient information is combined with Healthcare Industry
 available information and the interaction between Patient and Provider
 and compared with the results of the 'visit' and subsequent 'results'
to
 determine possible and actual 'outcomes'.

 To me 'model' infers a static process whereby known data sets are
 processed to obtain known results. A Process Diagram, a component in a
 larger dynamic structure, should what information is available, how it
 is process and what the 'outcomes' are. This in turn should be
compared
 with the 'outcomes' that actually occur, the measurement occurring at
a
 later stage (from Control Systems).

   The doctor in your example must still
 record the fact of her neck pain and the fact of his Rx order for
 Prozac.  Standard practice guidelines also suggest that he record the
 medical reasoning he used to support his [apparent] diagnosis of
 depression.  If I were handling the case, I would probably also
record
 the fact that she requested pain medication and my reasoning for not
 prescribing it.
 
 
 Somehow the Patient's input does not get integrated with the
 Provider-related information which is why many issues arise between
 Patients and Providers. Looked at from the Patient's perspective, the
 Healthcare Industry is like a machine with a microphone that one can
 talk into and perhaps get a response in the form of a list of drug
 prescriptions and advice (take more aspirin).

 Consistency can be missing, presuming an on-going condition(s), and
 cause the Patient 

HISTORY DATA SET IN EPR

2003-08-11 Thread Bill Walton
Hi Christopher,

Christopher Feahr wrote:

 For this reason, the Institute of Medicine content recommendations
 (reflected in the present version 1.0 of the HL7 EHR ballot) includes 4
 main care settings: in-patient, out-patient, nursing home, and personal
 health record.  The last is the patient's view of the record...

I think I'm a little lost here.  I've read HIPPA, the regs and the preample,
and my understanding is that the patient now has a legal right to copies of
his medical record and a right to contest the contents of that record.  Are
you saying that the IOM / HL7 are taking the position that the physician can
decide to withhold portions of that record?  Where can I find out more about
this?

Best regards,
Bill

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Hazards and risks of large central data repositories

2003-08-11 Thread Tim Churches
Apropos my recent post to this list about the large hazards to
confidentiality posed by large, centralised health data repositories
[1], see this report of a serious security breach at the data centre of
Acxiom, one of the world's largest consumer database companies, with a
multi-billion dollar turnover and an undoubtedly large IT security
budget:
http://www.charlotte.com/mld/observer/business/6483972.htm

Note that it was an insider job - the consensus is that the insider
threat model is the one to really worry about, as unpalatable as that
is.

Tim C

[1] The risk of a security breach is no less, and may be much greater in
smaller health data repositories, but the collective hazard is less
because the records of a much smaller number of people are stored in
such smaller repositories.
 


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HISTORY DATA SET IN EPR

2003-08-11 Thread Christopher Feahr
RE: Are you saying that the IOM / HL7 are taking the position that the
physician can decide to withhold portions of that record?

No... not at all!  You can read the HL7 ballot package and join the
ballot pool at www.hl7.org/ehr (reduced fee for non-HL7 members of $100
to join the pool... reading/downloading the documents is free.)

IOM and HL7 were essentially asked (this Spring) by CMS/HHS to
collaborate on an EHR standard.  IOM released it's recommendations a
couple weeks ago regarding content requirements for the EHR.  4
principal record-views were contemplated by IOM and included as care
setting profiles in the HL7 ballot.  One of these would be a
patient-view of his own EHR, with the ability to change/add certain
data.  This does not alter the HIPAA mandate in any way... although
direct patient access to an up-to-date EHR would probably cut down on
requests to providers for paper copies of health records.

The issue of who could/should/would have read/write access to ANY EHR is
still very much a matter of discussion.   There is nothing about rights
of access or stewardship or any other security issues in the present
EHR ballot.

Christopher J. Feahr, O.D.
Optiserv Consulting (Vision Industry)
Office: (707) 579-4984
Cell: (707) 529-2268
http://Optiserv.com
http://VisionDataStandard.org
- Original Message - 
From: Bill Walton bill.wal...@jstats.com
To: openehr-technical at openehr.org
Sent: Monday, August 11, 2003 1:53 PM
Subject: Re: HISTORY DATA SET IN EPR


 Hi Christopher,

 Christopher Feahr wrote:

  For this reason, the Institute of Medicine content recommendations
  (reflected in the present version 1.0 of the HL7 EHR ballot)
includes 4
  main care settings: in-patient, out-patient, nursing home, and
personal
  health record.  The last is the patient's view of the record...

 I think I'm a little lost here.  I've read HIPPA, the regs and the
preample,
 and my understanding is that the patient now has a legal right to
copies of
 his medical record and a right to contest the contents of that record.
Are
 you saying that the IOM / HL7 are taking the position that the
physician can
 decide to withhold portions of that record?  Where can I find out more
about
 this?

 Best regards,
 Bill

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HISTORY DATA SET IN EPR

2003-08-11 Thread Christopher Feahr
Hi Karsten,  please see comments in-line.  thanks.

Christopher J. Feahr, O.D.
Optiserv Consulting (Vision Industry)
Office: (707) 579-4984
Cell: (707) 529-2268
http://Optiserv.com
http://VisionDataStandard.org
- Original Message - 
From: Karsten Hilbert karsten.hilb...@gmx.net
To: openehr-technical at openehr.org
Sent: Monday, August 11, 2003 3:53 PM
Subject: Re: HISTORY DATA SET IN EPR


  form.  I think this is the promise of SNOMED CT.  Doctors will
likely
  support such a system if it allows them to easily put MORE
information
  in the record than they do today...
 Does *more* information also mean *more information that's
 accurate* ? Likely not if data providers are significantly
 limited by a restricted set of codes. Reasoning for this in
 Slee, Slee, Schmid The endangered Medical Record.

My proposal is to structure what is possible to structure... but to do
it with a standard.  Any health information that is still too fuzzy for
the chosen structure will have to be written freehand, as we do now.

  Eventually, they should reprogram their adjudication systems to
consume
  the doctor's coded information, as it exists natively in the EHR.
Not
  only will the content be richer and more potentially useful to the
  payer, but instead of sending a traditional claim, the doctor
could
  simply send the payer a standard invoice for services, with a
pointer
  to the EHR data... if the payer cared to look at it.
 While technically enticing, practically, uhm, no, no way (lest
 I misunderstand your intent).

Well... yes... I'm dreaming a little... I'll grant you that.  But we
should be attempting to increase/improve the structure of our records
and data anyway... in order to improve care.  Even if this still has to
be mapped to the payer's old 5-character dumb codes,  the claim-coding
process will be potentially more automatic and better supported by the
record in the event of payer audit.  If we could point today (in the US)
to the system that I am imagining... one in which payers could reach out
as needed and query EHR systems for data to support adjudication, then
payers would be hard-pressed to justify the enormous provider-expense of
serving this information to them on silver claim-platters.  By the end
of 2003 I suspect that we will have more payer-specific variants of the
HIPAA 837 transaction than we ever had of the NSF and UB92 combined.  At
the end of the day, each payer wants a virtually unique data set to
support its claims.  I think we should point them to the EHR-landfill
and hand them a shovel... I have patients to see!


  but doctors should be able to agree on just the right degree of
  precision to support the medical job...
 What, doctors agreeing on something ? Yes, I'm being cynical :-)

I'll admit... doctors do not make this easy!  But doctors have agreed
in the sense that they have not objected to standards of care concepts
and evidence based clinical practice guidelines.  I believe that the
acceptable minimum level of precision is documentable from existing
literature.  Practitioners can always add non-structured notes and
information as necessary to beef up the precision of any
structured/coded record information.

  I' assuming that whatever precision level
  makes the doctors happy will also be sufficient for payers and
  governments.
 That I tend to agree to.

  and I'm suggesting that information should be
  reduced as much as possible to a standard set of codes.
 If that means to reduce what I can put in my clinical notes
 then No, thanks. I use the fuzziness of German when writing
 progress notes to myself in order to capture the degree of
 fuzziness of the specific ailment at hand and augment that with
 commonly used scales (GCS, APGAR, Janda, ...) to map my notes
 to more standard values when writing referral letters etc being
 sent to colleagues. Of course I am not perfect in this and
 could make use of a tool that facilitates my correctly
 applying standard scales.

 Karsten
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