[QUAD-L] Re: aides or caregivers
Perhaps we should name this book EXCUSES caregivers give to not show up for work. With another chapter about reasons they need to leave early. I'm so exhausted from taking care of all the paperwork I don';t have time to write a book But if any of you decide to write this book I can give you a list of experiences we have had. also my other son is a writer for a newspaper. He is a good writer, can proof read anything you want to write. Maybe instead of a book it could be an ongoing series in a large newspaper. Actually I think it is the work ethic of today's people in this line of work. For each good person you find there will be at least 10 bad ones. Just my observations, Carol in KY
[QUAD-L] Wednesday 25 May 2005 The legislation would make human trafficking a felony of
Wednesday 25 May 2005 The legislation would make human trafficking a felony offense in California. It also would provide restitution and services for victims. San Francisco - As concerns over human trafficking build nationwide, a California coalition is pushing what appears to be the most comprehensive state effort to combat forced labor. Proposed legislation that goes to the Assembly Appropriations Committee today would make human trafficking a felony offense in California and enable victims to sue their captors in state court years after they were freed. It would also expedite federal benefits such as counseling, housing and visa assistance for victims, who tend to be undocumented immigrants with little education. The bill was crafted with support from established community groups working with trafficked victims as well as with the sponsorship of San Francisco Dist. Atty. Kamala Harris, who has won backing for the legislation from the California District Attorneys Assn. A recently released report found that 10,000 people in the United States at any given time are being forced to work against their will under threat of violence. As an entryway for undocumented immigrants, California is particularly affected: Research released in February by UC Berkeley's Human Rights Center identified 57 forced labor operations in a dozen California cities between 1998 and 2003. The bill's principal author, Assemblywoman Sally Lieber (D-Mountain View), became interested as a city official after Mountain View police broke up a $6-million trafficking ring that forced Chinese women to work off debts in massage parlors. California's proposed law is part of a shift nationwide to acknowledge the status of victims rather than subject them to arrest, Lieber said. However, she conceded that "our main challenge right now is getting a bill that costs money out of the Legislature." The bill has won bipartisan support, including from Appropriations Committee vice chairwoman Sharon Runner (R-Lancaster). Its estimated annual cost to the state of $700,000 in increased incarceration has not posed a particular barrier so far, Runner said, although she is pressing for civil liability limits. Opposition has been lodged only by the California Public Defenders Assn., which could not be reached for comment. Trafficking often involves women and girls coerced to work in the sex trade, but also plagues the domestic worker, garment and agricultural industries, among others. California's most notorious case: the 71 Thai workers liberated from virtual slavery in an El Monte sweatshop in 1995. That case spawned the Los Angeles-based Coalition to Abolish Slavery and Trafficking, a national voice on the issue. Among recent clients is 33-year-old Florencia Molina, lured in 2002 from Puebla, Mexico, to Los Angeles with promises of good pay and room and board. Instead she spent 40 days imprisoned in a garment shop where she worked from 5:30 a.m. to midnight, was fed only rice and beans and never allowed to shower. Molina eventually escaped. Her captor was prosecuted under a federal anti-trafficking law. "She told me, 'Dogs have more rights in this country than you,' " Molina, who received a special visa to remain here, said in a phone interview. The state law would ensure help for others, said Molina, who hopes to serve as the victims' representative on an advisory committee that the legislation would create. California's penal code currently does not address human trafficking, so cases must be prosecuted federally under the Victims of Trafficking and Violence Protection Act of 2000 or charged as kidnappings, false imprisonment, pimping and pandering or other state crimes. The pending bill, AB22, would make trafficking in people for forced labor or services, as well as trafficking in minors , felonies under California law. It would provide for victim restitution and protect communications between victims and counselors as privileged. While the federal statute outlaws trafficking across state lines, the state law would cover movement within the state. It also would define coercion more subtly than the federal law. Prosecutors would maintain the ability to refer cases for federal prosecution - as they do in gun and drug cases - if stiffer penalties would result, Harris said. In addition, Harris said the new law would spur local law enforcement to "take ownership" of a crime that has long been overlooked and misunderstood. Federal officials recently funneled grants to local police departments - including in Los Angeles and Oakland - to train officers who are often oblivious to signs of trafficking when they come into contact with victims. To enhance enforcement efforts, the U.S. Department of Justice last fall began encouraging states to add trafficking felonies to state penal codes. Washington, Minnesota, Arizona, Missouri and Texas had already passed limited laws - although no
Re: [QUAD-L] surgery and mags citrate
Thanks for the support. My idea so I would be better by my bday. Memorial weekend is my 4yr anniversay. I'm not much for celebrating memorial weekend anyhow. Just brings tourists and makes this place crowded as hell. Locals stay home while they take over our beach. LOL!!! Stacy - Original Message - From: David K. Kelmer To: Stacy Harim ; Quad-List Sent: Wednesday, May 25, 2005 8:30 PM Subject: Re: [QUAD-L] surgery and mags citrate Hi Stacy, Whose idea was it to do the surgery so you'd be in the hospital on Memorial Day Weekend? I hope all goes better this year for you, this being your 5 year Quadiversary! You'll be in my prayers. As far as the Magnesium Citrate, it made me go fast and cleaned me out great. You take care and stay strong! :-) With Love, CtrlAltDel aka DaveC4/5 Complete - 29 Years PostTexas, USA Stacy Harim <[EMAIL PROTECTED]> wrote: I'm going for my surgery for the stoma/mitrofanoff on Thursday. I'm a bit nervous about it but really nervous about taking this Magnesium Citrate. I convinced them to let me go in the hospital a day early so I don't have to worry about going 2 and 1/2 to Baltimore after taking it. What are your experiences with it? Did you end up going to the bathroom a long time? Thanks in advance, Stacy
Re: [QUAD-L] surgery and mags citrate
Thanks. I'm getting ready to go now. Just one last over my email. cya yall in a week or so. Dumb me scheduled it on my 4 yr anniversary but at least it's my choice to go in the hospital this time. LOL. Take care, Stacy - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; Quad-List@eskimo.com Sent: Wednesday, May 25, 2005 10:36 PM Subject: Re: [QUAD-L] surgery and mags citrate Hey Stacey, I wish you the very best in surgery. I hope you can enjoy your stay there. Your in my prayers. john
[QUAD-L] Fwd: Today - National Call/Fax Day for Stem Cell Research!
I did a day late, website provIdes letter. Dana (C4-5, 30 years post, 51, KC) --- Begin Message --- Title: Untitled Document Urgent Action Alert! HOUSE VOTE ON STEM CELLS SCHEDULED FOR Tuesday, May 24th!! The House of Representatives soon will be voting on HR 810, The Stem Cell Research Enhancement Act of 2005. CAMR is joining with patient, research and health organizations across the country to hold a NATIONAL CONGRESSIONAL CALL & FAX DAY in SUPPORT of HR 810. PLEASE CALL OR FAX YOUR CONGRESSIONAL REPRESENTATIVES TODAY Monday, May 23rd Urge Them to Vote in Favor of the Stem Cell Research Enhancement Act, HR 810 All Members of Congress even those who are supportive need to hear from constituents about the importance of passing this critical bill. These calls and faxes can and will make a difference. Now is the time to call your Representative using the talking points provided below and to ask your family, friends, neighbors, coworkers, and anyone else you can think of to call in, too. Representatives need to know that people back home care deeply about this issue. Make your support of Embryonic Stem Cell Research known - call and/or fax your Representative TODAY, Monday, May 23rd! To fax a letter to your Representative, go to www.camradvocacy.org, and follow the steps to Contact Congress . To find out who your Representative is and what her/his phone number is, go to www.camradvocacy.org and follow the steps in Find Your Rep. TALKING POINTS FOR YOUR CALL: I am calling because HR 810, The Stem Cell Research Enhancement Act, will be considered by the House this week; As your constituent, I want you to know that your support for this bill is important to me ( you can explain why, give your personal story ); Embryonic stem cells hold the potential to develop therapies and cures for many diseases and afflictions, which would benefit millions of Americans; HR810 would allow scientists to conduct research on additional stem cell lines that have been created within the ethical framework that President Bush established in 2001; I understand there will also be a vote on cord blood research this week. Although I support that legislation, I want to be clear that it is NOT a substitute for expanding the federal policy on embryonic stem cell research as HR 810 would do. I will be watching the debate and the vote on HR 810 and I hope that I can count on Representative __'s support of the bill. BACKGROUND POINTS: When President Bush announced his stem cell policy in August 2001, we did not foresee that the 78 lines available for research at that time would not be sufficient. The problems with the current restrictive policy include the following. While it originally appeared that 78 embryonic stem cell lines would be available for research under the federal policy, now nearly four years after August 9, 2001, only 22 are currently available to researchers. All of those lines are contaminated with mouse feeder cells, making their therapeutic use for humans uncertain. Scientists are reporting that it is increasingly difficult to attract new scientists to this area of research because of concerns that funding restrictions will keep this research from being successful. This promising field of research is moving overseas. We have already seen researchers move to countries such as the United Kingdom, South Korea, Singapore, Israel, Sweden, and Australia, which have more supportive policies. --- End Message ---
Re: [QUAD-L] Is the stuff U all talkin, really possible?
hi alley101, Im john,49, c-5 spinal injury with a touch of brain damage. 29 years post. I don't know if I have any valuable advice. Sort of taking care of problems as they happen. Glad to have you on the list. john
Re: [QUAD-L] Fwd: Good news amid the gloom and doom
Now I want to move out of ohio.. john
Re: [QUAD-L] surgery and mags citrate
Hey Stacey, I wish you the very best in surgery. I hope you can enjoy your stay there. Your in my prayers. john
Re: [QUAD-L] hbtm
Hi Dave, I don't know what kind of man you would have been if you didn't break your neck, but I'm proud to call you my friend today. You've done a lot and have a lot of love in your family, and I believe you deserve to be proud of it all. Stay strong. With Love, CtrlAltDel aka DaveC4/5 Complete - 29 Years PostTexas, USA dave oconnell <[EMAIL PROTECTED]> wrote: May 24, 1967.. A day I shall remember. I'm not particularly sad or hateful about what happened that Wednesday night, it's just curious as to where I am now as a result. My mom said it was a good thing I broke my neck because otherwise I'd have killed myself. (10 feet tall and bullet proof don't ya know...age 19 ) I have done many things I never thought I could have. Wife, kids, job, responsibility, house, inlaws, ... all that stuff. I don't think I'd have killed myself - but would have slowed down by some other means. I'm rather proud of my accomplishments all things considered and feel I won't have too many things to answer to the MAN for what I've done here. I feel we are all dealt the hands we are currently playing and our job is to do the best we can with what we have. Absolute measurements are crap - only things relative to our situations matter. Be proud fellow quads. We are wa! ! lking where mere mortal men fear to go. 38 down, ??? to go. DaveDave(what's a quad?) Do You Yahoo!?Yahoo! Small Business - Try our new Resources site!
[QUAD-L] Is the stuff U all talkin, really possible?
Hey guys, I've been readin' & I do not even know if I'm doing this right? Please, bare with me, I'm green! And, I'm not technically a (quad) but I am a 29 yr old, multiple, stroke victim. Which has left me basically parallyzed in all limbs & speech diffs. I didn't even know there were such concerns! I've been totally ignored. I had a little movement in all my limbs at first.I don't know if I could've ever gotten it all back. But it was definately possible at first. They just shoved me in a nursing home, where I've been for 5 years with no therapy.(for a min. maybe) & I was making progress then! Hell, I could stand. Now, they've left me alone altogether, & my feet have curled up in little balls, like the " wicked witch of the East" when the house fell on her! And U know what else? I let them... I guess the moral is I had no idea you people were out here, living normal or trying anyway, to live normal lives! I'm finding it hard to beleive it can happen. But I'm gonna keep on readin'.& slowly but surely I'll catch on. ANY & ALL ADVICE WILL BE HEEDED! I thank anyone whom read all this. Thanks, Alley101-Ky
Re: [QUAD-L] Yes, we have no bananas ... :-)
Hi Lori, I don't know about everyone else but I was just referring to spasms that caused leg cramps. The potassium will help with that. :) With Love, CtrlAltDel aka DaveC4/5 Complete - 29 Years PostTexas, USA .Lori Michaelson <[EMAIL PROTECTED]> wrote: Never stop trying what seems to be working! However, to mine and my husband's knowledge.. there is nothing in bananas (even potassium) that get to joints, etc. Glucosamine (for dogs & humans) has proven to help lubricate joints and pains. Both my dog (hip dysplasia) and my husband (knee joint pain/arthritis) take it daily. It's an over-the-counter supplement. Lori ---Original Message--- From: David K. Kelmer Date: 05/23/05 20:16:12 To: William Willis; quad-list@eskimo.com Subject: Re: [QUAD-L] About Spasms...hey John Hi Larry, Bananas are high in potassium so they would help with leg cramps. With Love, CtrlAltDel aka DaveC4/5 Complete - 29 Years PostTexas, USAWilliam Willis <[EMAIL PROTECTED]> wrote: John,Do bananas actually help? I've tried baclofen, but it totally destroys me.hallucinations, dizziness, disorientation. Bad stuff. Bananas sound apeeling.(couldn't help it!) Larry>From: "Silas Shelburne" <[EMAIL PROTECTED]>>To: <[EMAIL PROTECTED]>, <[EMAIL PROTECTED]>, >>Subject: Re: [QUAD-L] About Spasms>Date: Mon, 23 May 2005 14:08:20 -0700>>Hey John,>I mite try quinine, it helped my leg cramps before I got hurt.>Silas> - Original Message -> From: [EMAIL PROTECTED]> To: [EMAIL PROTECTED] ; quad-list@eskimo.com> Sent: Monday, May 23, 2005 1:46 PM> Subject: Re: [QUAD-L] About Spasms>>> I usually eat a banana when spasms are particularly annoying. I have >diazepam to take also. I th! ink m! ost folks get baclophen. (however it is >spelled) If I'm getting a lot of leg spasms usually, I'm sitting on a >wrinkle or something is irritating me somewhere. Some days, the spasms are >just worse and I don't know why.> good luck> john
[QUAD-L] Fwd: Good news amid the gloom and doom
Dana (C4-5, 30 years post, 51, KC) --- Begin Message --- > The new MEDSTAT Medicaid numbers are out for 2004 (SEE BELOW) > > It may be slower than we want, but we are making a big difference!! > > TOTAL LONG TERM CARE SPENDING FY 2004 - $89.32 billion > Institutional Spending - 64.5% > $57.60 billion > Community-Based Spending - 35.5% $31.72 billion The formatting below may get messed up so first comes your states name then the first number is the percent of dollars your state spends on institutional services, the second number (may be on the next line but before the next state's name) is the percent of dollars spent on community services... > > RANKING OF STATES INSTITUTIONAL COMMUNITY > > OREGON29.5%70.5% > NEWMEXICO32.4% 67.6% > ALASKA 39.9%62.1% > VERMONT42.3% 57.7% > MINNESOTA44.1% 55.9% > WASHINGTON45.3%54.7% > WYOMING46.6% 53.4% > COLORADO 51.5% 48.5% > MAINE53.1%46.9% > KANSAS 53.1%46.9% > CALIFORNIA55.4% 44.6% > NEWYORK56.6% 43.4% > RHODEISLAND57.9%42.1% > UTAH 58.7% 41.3% > IDAHO59.2%40.8% > WISCONSIN 60.6% 39.4% > WESTVIRGINIA 61.2% 38.8% > NORTHCAROLINA 61.2% 38.8% > NEWHAMPSHIRE 61.8% 38.2% > MARYLAND 62.3% 37.7% > CONNECTICUT 62.6% 37.4% > SOUTHDAKOTA63.0% 37.0% > OKLAHOMA 63.2% 36.8% > HAWAII 63.7%36.3% > TEXAS64.0% 36.0% > MONTANA 64.2%35.8% > MISSOURI 64.5%35.5% > MASSACHUSETTS 64.6%35.4% > NEBRASKA68.2% 31.8% > VIRGINIA 68.3%31.7% > NEWJERSEY 68.4% 31.6% > IOWA 68.9%31.1% > SOUTHCAROLINA 69.4% 30.6% > NEVADA 69.9%30.1% > KENTUCKY70.3% 29.7% > DELWARE 71.0% 29.0% > MICHIGAN 71.8% 28.2% > INDIANA 73.3% 26.7% > ILLINOIS73.4%26.6% > FLORIDA 74.0%26.0% > ALABAMA74.6% 25.4% > ARIZONA 74.9%25.1% > GEORGIA 75.2%24.8% > NORTHDAKOTA77.5% 22.5% > LOUISIANA 77.6%23.4% > PENNSYLVANIA 77.7% 22.3% > OHIO 78.4% 21.6% > ARKANSAS 78.5%21.5% > TENNESSEE 82.7%17.3% > WASHINGTONDC 88.3% 11.7% > MISSISSIPPI 94.8% 5.2% In order of best to worst. Institutional services are nursing homes and ICFs MR. Community services are Personal Care, Waivers, & Home Health. NATIONAL ADAPT MAILING LIST - Adapt MiCASA List http://www.adapt.org --- End Message ---
Re: [QUAD-L] surgery and mags citrate
Hi Stacy, Whose idea was it to do the surgery so you'd be in the hospital on Memorial Day Weekend? I hope all goes better this year for you, this being your 5 year Quadiversary! You'll be in my prayers. As far as the Magnesium Citrate, it made me go fast and cleaned me out great. You take care and stay strong! :-) With Love, CtrlAltDel aka DaveC4/5 Complete - 29 Years PostTexas, USA Stacy Harim <[EMAIL PROTECTED]> wrote: I'm going for my surgery for the stoma/mitrofanoff on Thursday. I'm a bit nervous about it but really nervous about taking this Magnesium Citrate. I convinced them to let me go in the hospital a day early so I don't have to worry about going 2 and 1/2 to Baltimore after taking it. What are your experiences with it? Did you end up going to the bathroom a long time? Thanks in advance, Stacy
Re: [QUAD-L] Aides again
This sounds great like it always does--but who is going to pay for the wage they deserve? I certainly cannot afford it. Should I win the Lottery, then yes, I could pay as much as was needed to get the best people. I could build a few home-like apartment group homes and screen the tenants well. But that takes money. The PCA program I am on pays more than the agencies do, but still cannot fill my positions right now--not even to cook supper mon.--fri. I have 2 attendants, one is leaving for a week on a vacation then will start school and will not be working the weekends or nights anymore. The other gal puts me to bed and works for 2 agencies during the day. Part of the problem is the amount of hours--like you said, its not enough to make it feasible and people are getting stingy with gas prices, so driving here for 1 hour then coming back 3 hours later for another 1 hour, is just not worth it. Dana [EMAIL PROTECTED] - Original Message - From: "Aaron Mann" <[EMAIL PROTECTED]> To: "Quad" Sent: Wednesday, May 25, 2005 3:15 PM Subject: RE: [QUAD-L] Aides again I've been pulling together information on what might be involved in creating a Personal Care Attendant (PCA) business funded by private sponsors / Medicaid / Medicare / Insurance. I want to create a business that is founded and run by the people that actually use the services. I believe that, combined, we have enough successful approaches to finding the right people. In my experiences the road blocks are in the inexperienced Home Health Agency or other "fill in the blank" programs created by often times non-disabled individuals. They don't recruit properly, don't train properly, and remove too much control from the patient. My approach has been entirely outside of any agency or other organization. I find people through advertisements in papers, local colleges and at local medical centers. I pay what I think is fair for this type of work and detail out every aspect of what my expectations are. My biggest problem is that I cannot provide a full-time job for these people. I've run across some great people who, if they could get more hours, would take this on as a profession. In my ideal company I'd keep it privatized. This way each "client" could have their own customized care program. Attendants would get paid the rates they deserve. Ultimately this would get us the quality care we deserve. _ From: Lori Michaelson [mailto:[EMAIL PROTECTED] Sent: Wednesday, May 25, 2005 2:56 PM To: Quad Subject: [QUAD-L] Aides again DANA WROTE: "People keep telling me I should write a book too. We should flood the market with therxse books and name names to show how we are "really" treated! There should be a chapter on good aides too, or something so that they do not go un-noticed. Maybe a 2 set book--The Bad, and The Good! Dana [EMAIL PROTECTED]" Just yesterday my husband mentioned I should write a book on all this too. But I am so exhausted on the subject... thinking of writing it all feels like me climbing Mt Everest as a quad! *sigh* I just wrote a heavy heated letter to the corporate office of my home health agency. They should have it today so we'll see what type of shit hits the fan or whether it was done in vain. Lori
RE: [QUAD-L] A REALLY great new SCI book "Roll Models"
Title: Message That's the second rave I've read here. That's the book Bobbie mentioned in which she was profiled. CONGRATULATIONS, KIDDO where ever you are -Cameron W -Original Message-From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Wednesday, May 25, 2005 5:06 PMTo: quad-list@eskimo.comSubject: [QUAD-L] A REALLY great new SCI book "Roll Models" Click here: Amazon.com: Books: Roll Models I HIGHLY recommend "Roll Models" by Richard Holicky People Who Live Successfully Following Spinal Cord Injury and How They Do It. This book can only be obtained through Amazon.com [back page reads] Why do some spinal cord injury survivors succeed after injury and others spiral into inactivity and depression? Richard Holicky, himself a survivor, talks to spinal cord injured people throughout the country and comes up with answers. What do these people have in common? What enables them to be happy? Roll Models contains profiles of 53 people how are successfully coping with spinal cord injury, and examines how they met the challenges of living with paralysis and it's impact on their lives. Their stories are accompanied by an analysis of how they dealt with fears, obstacles, and problems common to such life altering circumstance. Roll Models is filled with questions, answers, information and resources, all the essential building blocks nessary to make success in the broader sense - work, marriage, materiel comfort - a reality.
[QUAD-L] A REALLY great new SCI book "Roll Models"
Click here: Amazon.com: Books: Roll Models I HIGHLY recommend "Roll Models" by Richard Holicky People Who Live Successfully Following Spinal Cord Injury and How They Do It. This book can only be obtained through Amazon.com [back page reads] Why do some spinal cord injury survivors succeed after injury and others spiral into inactivity and depression? Richard Holicky, himself a survivor, talks to spinal cord injured people throughout the country and comes up with answers. What do these people have in common? What enables them to be happy? Roll Models contains profiles of 53 people how are successfully coping with spinal cord injury, and examines how they met the challenges of living with paralysis and it's impact on their lives. Their stories are accompanied by an analysis of how they dealt with fears, obstacles, and problems common to such life altering circumstance. Roll Models is filled with questions, answers, information and resources, all the essential building blocks nessary to make success in the broader sense - work, marriage, materiel comfort - a reality.
Re: [QUAD-L] also, your opinion could help
Hi, I'm not sure what you mean by "invisible careers"? or do you mean invisible care takers? because they sure do not show up! I am still looking for a supper person a weekend, and.3 nights a week person. Have been for a couple of months now. I have not gotten "stuck" yet, but time is running out fast! Dana [EMAIL PROTECTED] - Original Message - From: <[EMAIL PROTECTED]> To: <[EMAIL PROTECTED]>; Sent: Wednesday, May 25, 2005 11:41 AM Subject: Re: [QUAD-L] also, your opinion could help Hey Dana, How are you? How comes you keep getting sent these invisible careers Have you ever got stuck because of them?? Hope you get sent another decent career soon! Love Smurf xxx In a message dated 13/05/2005 01:33:31 GMT Standard Time, [EMAIL PROTECTED] writes: Just this a.m. my "new" attendant called and said she would be here and bring something from McDonalds with her. She never showed up. In the past 2-3 weeks I have had 2-3 "new" aides come and go. I have 2 excellent ones now, but one is going to Florida in june for a week. Another 'interviewee' called and wanted to change her interview until Sunday--she forgot her husband was having a colostomy and urostomy today--what! People keep telling me I should write a book too. We should flood the market with therxse books and name names to show how we are "really" treated! There should be a chapter on good aides too, or something so that they do not go un-noticed. Maybe a 2 set book--The Bad, and The Good! Dana [EMAIL PROTECTED] - Original Message - From: "Silas Shelburne" <[EMAIL PROTECTED]> To: "Lori Michaelson" <[EMAIL PROTECTED]>; "Quad" Sent: Thursday, May 12, 2005 4:32 PM Subject: Re: [QUAD-L] also, your opinion could help Oh man! You wouldn't believe the trouble ive had with nursing and aids, been through 6 in 3 years. One ive got now comes in every morning with alcahol on her breath even drinks through the day. It doesn't seem to bother her so I haven't said anything, hell I may not find another nurse. Thats how despert I am for help. Lol. Thats just the tip of the iceberg that ive been through with help, im real easy too get along with to. That was the trouble with one nurse, she wonted to marry me. Lol. When I said no she ran back to her husband the next week, and quit not long after. Sounds kind of fishey don't it. Oh ill tell you more later, im going to write a book about my trials with help. Lol. Silas - Original Message - From: Lori Michaelson To: Quad Sent: Wednesday, May 11, 2005 1:35 PM Subject: Re: [QUAD-L] also, your opinion could help Believe you me, Stacy, DO consider yourself fortunate! All us quads have faced the low caliber of character that so many aides have. They want the job, then they don't. Many are thieves. My latest (via my MediCARE agency) began about a month ago. At first I thought she had it all together. NOT! She's dating a guy in jail and is a single mom to 4 kids under age 11! In the last 12 days of work here ... she's called in FIVE times with car trouble. I just don't know how people like them can survive themselves let alone have a conscience. Lori ---Original Message--- From: Stacy Harim Date: 05/11/05 13:04:02 To: Quad; Dana Miller Subject: Re: [QUAD-L] also, your opinion could help wow, the experiences you all are going through with aides makes me sick to my stomach. Makes me realize how lucky I am to have the independence I have. My friend/neighbor is my aide and I mostly just use her for chores. She does more while I am going to school. When I first got home from rehab and needed more personal care, my aides were 2 women one in her 40's and the other early 50's. they bother were very dependable. One got on my nerves once she got comfortable. She stayed longer than I needed her just so she could get overtime so she just sat around. That is minimal compared to what you all are going through. I'm so fortunate that I was physically able to learn to take care of my personal care. I think you would definitely benefit from the waiver. Stacy - Original Message - From: Dana Miller To: Quad Sent: Wednesday, May 11, 2005 1:34 PM Subject: Re: [QUAD-L] also, your opinion could help For a long time I was on Medicare only. Then noticed Medicaid began to pick up things for 3 months if I happened to be in the hospital. I started getting involved in the 'spenddown' just to get my meds paid for. My attendant program is paid by the state--but had to wait 4 years for it. I had private insurance before that. It took me a few years to figure out what medicaid was and how to use the spenddown. Then my case worker from senior services (a more politically correct term, ugh) came to do his yearly review and somehow--I don't ask--came up with 6 hours a week for homemaker services. They come 3 times a week for 2 hours. They do cleaning, shopping and
RE: [QUAD-L] Aides again
I've been pulling together information on what might be involved in creating a Personal Care Attendant (PCA) business funded by private sponsors / Medicaid / Medicare / Insurance. I want to create a business that is founded and run by the people that actually use the services. I believe that, combined, we have enough successful approaches to finding the right people. In my experiences the road blocks are in the inexperienced Home Health Agency or other "fill in the blank" programs created by often times non-disabled individuals. They don't recruit properly, don't train properly, and remove too much control from the patient. My approach has been entirely outside of any agency or other organization. I find people through advertisements in papers, local colleges and at local medical centers. I pay what I think is fair for this type of work and detail out every aspect of what my expectations are. My biggest problem is that I cannot provide a full-time job for these people. I've run across some great people who, if they could get more hours, would take this on as a profession. In my ideal company I'd keep it privatized. This way each "client" could have their own customized care program. Attendants would get paid the rates they deserve. Ultimately this would get us the quality care we deserve. From: Lori Michaelson [mailto:[EMAIL PROTECTED] Sent: Wednesday, May 25, 2005 2:56 PMTo: QuadSubject: [QUAD-L] Aides again DANA WROTE: "People keep telling me I should write a book too. We should flood the market with therxse books and name names to show how we are "really" treated! There should be a chapter on good aides too, or something so that they do not go un-noticed. Maybe a 2 set book--The Bad, and The Good!Dana[EMAIL PROTECTED]" Just yesterday my husband mentioned I should write a book on all this too. But I am so exhausted on the subject... thinking of writing it all feels like me climbing Mt Everest as a quad! *sigh* I just wrote a heavy heated letter to the corporate office of my home health agency. They should have it today so we'll see what type of shit hits the fan or whether it was done in vain. Lori
[QUAD-L] Well they passed it!
Now we'll see if the majority of Americans means anything. Mark House Approves a Stem Cell Research Bill Opposed by Bush WASHINGTON, May 24 - The House passed a bill on Tuesday to expand federal financing for embryonic stem cell research, defying a veto threat from President Bush, who appeared at the White House with babies and toddlers born of test-tube embryos and warned the measure "would take us across a critical ethical line." President Bush made his opposition to the stem cell bill known yesterday at the White House, showing off month-old Trey Jones, who was born as a result of one couples donation of frozen embryos to another. Susan Walsh/Associated Press President Bush appeared at the White House with babies and toddlers born of test-tube embryos, some wearing shirts that read "former embryo." The vote, 238 to 194 with 50 Republicans in favor, fell far short of the two-thirds majority required to overturn a presidential veto, setting up a possible showdown between Congress and Mr. Bush, who has never exercised his veto power. An identical bill has broad bipartisan support in the Senate; moments after the House vote, the Senate sponsors wrote to the Republican leader, Bill Frist, urging him to put it on the agenda. The House action is the first vote on embryonic stem cell research since August 2001, when Mr. Bush opened the door to taxpayer financing for the studies, but only with strict limits. The new bill permits the government to pay for studies involving human embryos that are in frozen storage at fertility clinics, so long as couples conceiving the embryos certified that they had made a decision to discard them. "The White House cannot ignore this vote," said the bill's chief Republican backer, Representative Michael N. Castle of Delaware, adding, "I'm elated." But opponents also said they were elated. Representative Joseph R. Pitts, Republican of Pennsylvania, said: "I hate to lose, but I feel pretty good about this vote. We beat a veto-proof margin by 50 votes." The big question now is what will happen in the Senate. Dr. Frist, a heart surgeon from Tennessee who supports the existing policy, is already facing intense pressure from conservatives over the issue of Mr. Bush's judicial nominees and does not seem eager to schedule a vote on stem cell research. He said last week that he wanted to check with his colleagues before doing so. The House vote followed an impassioned lobbying campaign by advocates for patients, including Nancy Reagan. Mrs. Reagan, who became a strong backer of stem cell research as her husband struggled with Alzheimer's disease, telephoned fellow Republicans this week urging a yes vote, Mr. Castle said. But Mr. Bush countered with a powerful one-two punch, throwing the full weight of the White House behind the opposition. On Friday, he issued a rare threat to veto the Castle bill. On Tuesday, just hours before the vote, he appeared in the East Room of the White House with families created by a rare but growing practice in which one couple donates its frozen embryos to another. "The children here today remind us that there is no such thing as a spare embryo," Mr. Bush said, amid the squeals and coos of babies cradled in their mothers' arms. "Every embryo is unique and genetically complete, like every other human being. And each of us started out our life this way. These lives are not raw material to be exploited, but gifts." The parents, who worked through a Christian adoption agency, applauded enthusiastically. When Mr. Bush said that "every human life is a precious gift of matchless love," a mother behind him on stage mouthed the word "Amen." The White House event, on what conservative Christians and the president call an important "culture of life" issue, demonstrated just how far Mr. Bush is willing to assert himself on policy that goes to what he considers the moral heart of his presidency. In another sign of how important the issue is to conservatives, the House Republican leader, Tom DeLay of Texas, managed the opposition to the bill, also casting it in stark moral terms. "An embryo is a person, a distinct internally directed, self-integrating human organism," Mr. DeLay said, adding, "We were all at one time embryos ourselves. So was Abraham. So was Muhammad. So was Jesus of Nazareth." He went on: "The choice to protect a human embryo from federally funded destruction is not, ultimately, about the human embryo. It is about us, and our rejection of the treacherous notion that while all human lives are sacred, some are more sacred than others." Human embryonic stem cells, isolated from human embryos for the first time in 1998, have the potential to grow into any cell or tissue in the body, and so hold great promise for treatment of disease. But the embryos are destroyed when the cells are extracted. So Mr. Bush, intending to discourage further embryo destruction, insisted in 2001 that federal financing be limited to studies of those stem cell coloni
[QUAD-L] Aides again
DANA WROTE: "People keep telling me I should write a book too. We should flood the market with therxse books and name names to show how we are "really" treated! There should be a chapter on good aides too, or something so that they do not go un-noticed. Maybe a 2 set book--The Bad, and The Good!Dana[EMAIL PROTECTED]" Just yesterday my husband mentioned I should write a book on all this too. But I am so exhausted on the subject... thinking of writing it all feels like me climbing Mt Everest as a quad! *sigh* I just wrote a heavy heated letter to the corporate office of my home health agency. They should have it today so we'll see what type of shit hits the fan or whether it was done in vain. Lori
Re: [QUAD-L] Font
Another great free font website is www.fontfreak.com they've got loads on there! Hope it helps, Love Smurf xxx In a message dated 20/05/2005 02:01:50 GMT Standard Time, [EMAIL PROTECTED] writes: CotillionDiskus D MedEmbassy ETEnglish111 VivaceRage ItalicSignatureStaccato222SurferTypo UprightWeddingText BTFind free Fonts at:http://www.freewarehome.com/http://www.sover.net/~wysiwygx/index.htmlStunt> > Anyone have any suggestions for a nice looking cursive font to use for > invitations? > > Eric> > > -- Freedom: United States Constitution© 1791 All Rights PreservedMy first Domainhttp://nw-in.com/index.htmlhttp://quads.nw-in.com/quad-enter.htmlPicshttp://quads.nw-in.com/quad-list/quad-list1.htmHome page. http://tnthompson0.tripod.com/homeincyberspace/Computer Graphics portfolio. http://tnthompson1.tripod.com/index.htm
Re: [QUAD-L] Regaining movement
Hey Little Quad, I wouldn't say your recovery is amazing, no way. I would describe it as being super duper amazing!! To non injuried people moving 3 toes is minor. But to people in our situation, moving three toes is a huge milestone, so WELL DONE and CONGRATULATIONS!! Have you tried speaking to either your GP about it, or maybe even try getting in contact with a physio? Take care, Love Smurf xxx In a message dated 19/05/2005 18:03:46 GMT Standard Time, [EMAIL PROTECTED] writes: I don’t know how many of you are incomplete, but can you feel your muscles when they twitch etc? I have regained the movement of 3 toes in the last 6 years. I can feel the muscles in both of my legs twitching when I try moving them. My mom can put her hand on my leg/foot and feel the muscles flexing. So the question is: what kind of doctor should I go see? The current one doesn’t seem impressed! This is amazing to me. What do you think?? Thanks, littlequad http://fly.to/littlequad Yahoo ID - littlequad
Re: [QUAD-L] pain
Hey there, Hell yeah I've had that problem I also had it for a year before I was diagnosed with having RSD. I use to tell them that my leg hurt, but I couldn't pinpoint where exactly the pain was, nor could I describe it. Typical really! Take care, Love Smurf xxx In a message dated 15/05/2005 17:12:45 GMT Standard Time, [EMAIL PROTECTED] writes: Hello people,Just wondering if any of you ever met a doctor whodidn't believe you really had pain below your injurylevel.I have a hard time explaining the pain to them.D.E.WHAT A LONG STRANGETRIP IT'S BEEN __ Yahoo! Mail Mobile Take Yahoo! Mail with you! Check email on your mobile phone. http://mobile.yahoo.com/learn/mail
Re: [QUAD-L] also, your opinion could help
Hey Dana, How are you? How comes you keep getting sent these invisible careers Have you ever got stuck because of them?? Hope you get sent another decent career soon! Love Smurf xxx In a message dated 13/05/2005 01:33:31 GMT Standard Time, [EMAIL PROTECTED] writes: Just this a.m. my "new" attendant called and said she would be here and bring something from McDonalds with her. She never showed up. In the past 2-3 weeks I have had 2-3 "new" aides come and go. I have 2 excellent ones now, but one is going to Florida in june for a week.Another 'interviewee' called and wanted to change her interview until Sunday--she forgot her husband was having a colostomy and urostomy today--what!People keep telling me I should write a book too. We should flood the market with therxse books and name names to show how we are "really" treated! There should be a chapter on good aides too, or something so that they do not go un-noticed. Maybe a 2 set book--The Bad, and The Good!Dana[EMAIL PROTECTED]- Original Message - From: "Silas Shelburne" <[EMAIL PROTECTED]>To: "Lori Michaelson" <[EMAIL PROTECTED]>; "Quad" Sent: Thursday, May 12, 2005 4:32 PMSubject: Re: [QUAD-L] also, your opinion could helpOh man!You wouldn't believe the trouble ive had with nursing and aids, been through 6 in 3 years. One ive got now comes in every morning with alcahol on her breath even drinks through the day. It doesn't seem to bother her so I haven't said anything, hell I may not find another nurse. Thats how despert I am for help. Lol. Thats just the tip of the iceberg that ive been through with help, im real easy too get along with to. That was the trouble with one nurse, she wonted to marry me. Lol. When I said no she ran back to her husband the next week, and quit not long after. Sounds kind of fishey don't it. Oh ill tell you more later, im going to write a book about my trials with help. Lol.Silas - Original Message - From: Lori Michaelson To: Quad Sent: Wednesday, May 11, 2005 1:35 PM Subject: Re: [QUAD-L] also, your opinion could help Believe you me, Stacy, DO consider yourself fortunate! All us quads have faced the low caliber of character that so many aides have. They want the job, then they don't. Many are thieves. My latest (via my MediCARE agency) began about a month ago. At first I thought she had it all together. NOT! She's dating a guy in jail and is a single mom to 4 kids under age 11! In the last 12 days of work here ... she's called in FIVE times with car trouble. I just don't know how people like them can survive themselves let alone have a conscience. Lori ---Original Message--- From: Stacy Harim Date: 05/11/05 13:04:02 To: Quad; Dana Miller Subject: Re: [QUAD-L] also, your opinion could help wow, the experiences you all are going through with aides makes me sick to my stomach. Makes me realize how lucky I am to have the independence I have. My friend/neighbor is my aide and I mostly just use her for chores. She does more while I am going to school. When I first got home from rehab and needed more personal care, my aides were 2 women one in her 40's and the other early 50's. they bother were very dependable. One got on my nerves once she got comfortable. She stayed longer than I needed her just so she could get overtime so she just sat around. That is minimal compared to what you all are going through. I'm so fortunate that I was physically able to learn to take care of my personal care. I think you would definitely benefit from the waiver. Stacy - Original Message - From: Dana Miller To: Quad Sent: Wednesday, May 11, 2005 1:34 PM Subject: Re: [QUAD-L] also, your opinion could help For a long time I was on Medicare only. Then noticed Medicaid began to pick up things for 3 months if I happened to be in the hospital. I started getting involved in the 'spenddown' just to get my meds paid for. My attendant program is paid by the state--but had to wait 4 years for it. I had private insurance before that. It took me a few years to figure out what medicaid was and how to use the spenddown. Then my case worker from senior services (a more politically correct term, ugh) came to do his yearly review and somehow--I don't ask--came up with 6 hours a week for homemaker services. They come 3 times a week for 2 hours. They do cleaning, shopping and laundry. I used to have to pay my attendants to do that. Now they can concentrate on my care. These people come from agencies and I have gone thru a bunch of th
Re: [QUAD-L] About Spasms..
talk about the best cure for spasms. maye a few during build up, but the after effect is nice...can sleep all nighthaha[EMAIL PROTECTED] wrote: Sex? I only get spasms. Tell me about sex? lol
Re: [QUAD-L] About Spasms..
Mabey what you need is a nice big BANANA , Like they have mentioned lately. LOL !
