date:20060417



I have one and tis great. Set up wireless internet and surf anywhere your 
heart desires (in the house). Of course, my heart desires Hawaii and Halle 
Berry, but that's another story!




From: "David K. Kelmer" <[EMAIL PROTECTED]>
Reply-To: [EMAIL PROTECTED]
To: Quad-List , scilist <[EMAIL PROTECTED]>,  
DOA <[EMAIL PROTECTED]>

Subject: [scilist] Laptops & Quads
Date: Mon, 17 Apr 2006 16:53:17 -0700 (PDT)

Hi Gang,

  I'm looking at getting a laptop computer and any info/feedback, pro or 
con, concerning Quads using them would be greatly appreciated!



  With Love,

CtrlAltDel aka Dave
C4/5 Complete - 29 Years Post
Texas, USA

FW: [QUAD-L] Steph's letter to Administrator

Sounds great, Steph. Very professional.

From: "S. Dial" <[EMAIL PROTECTED]>
Reply-To: "S. Dial" <[EMAIL PROTECTED]>
To: 
Subject: [QUAD-L] Steph's letter to Administrator
Date: Mon, 17 Apr 2006 20:40:47 -0400

How's this y'all?
April 17, 2006
Rebecca Matheny, Administrator

Ms. Matheny:

I am writing in hopes that you can help me resolve the situation I was 
faced with today. As you may or may not be aware of my condition requires 
that I receive full assistance with all ADL's. When one is in this 
vulnerable position you hope not only to be cared for by competent people 
but by people you like and trust and that you have confidence in will 
conduct your care with respect and warmth. What a person of my 
vulnerability hopes not to encounter is a hostile or resentful caretaker 
which would make for an unpleasant life that no one disabled deserves. In 
my four years as a resident here I've enjoyed a pleasant life and gotten 
along well with the nursing and cna staff with the exception of Ms. Shelia 
Thompson a.k.a. Poochie.

Our problems began during my first year when I filed a grievance against 
her for neglect and refusal of care. It was my understanding then that Ms. 
Thompson would continue to work here but would no longer be assigned to me. 
I was satisfied with this arrangement. Later Ms. Thompson was fired and it 
became a moot point. In all this time I have never filed another grievance 
nor had problems with any other aides. And I believe it's fair to say I'm a 
well-liked person that's considered easy to work with and that I've been a 
good resident of this nursing home.

Today I discovered Ms. Thompson had been assigned to my hall and that she 
had refused to enter my room, feed or help in any way with my care. This 
part I have no problem with and actually am in agreement with Ms. Thompson 
about, however, it meant other aides from a different hall were obliged to 
do my care which they did with compassion and grace and I'm very 
appreciative of Meagan Johns and Donna Harris for their help. It is my 
request that Ms. Thompson not be assigned to my hall or me again in any 
capacity - this way no extra burden is imposed on the staff who do enjoy 
working with me and I them. As it stands Ms. Thompson is scheduled to be on 
my hall for two weeks and I feel very uneasy and stressed about how my care 
is to be managed. It is my hope we can resolve this quickly and without 
further incidence.

Thank you for your time.

Sincerely,

Stephanie Dial

Re: [QUAD-L] Steph's letter to Administrator

2006-04-17 Thread Tim Thompson

Looks good.
Stunt

On 4/17/06, S. Dial <[EMAIL PROTECTED]> wrote:
>
> How's this y'all?
> April 17, 2006
>
>
> Rebecca Matheny, Administrator
>
> Ms. Matheny:
>
> I am writing in hopes that you can help me resolve the situation I was faced
> with today. As you may or may not be aware of my condition requires that I
> receive full assistance with all ADL's. When one is in this vulnerable
> position you hope not only to be cared for by competent people but by people
> you like and trust and that you have confidence in will conduct your care
> with respect and warmth. What a person of my vulnerability hopes not to
> encounter is a hostile or resentful caretaker which would make for an
> unpleasant life that no one disabled deserves. In my four years as a
> resident here I've enjoyed a pleasant life and gotten along well with the
> nursing and cna staff with the exception of Ms. Shelia Thompson a.k.a.
> Poochie.
>
> Our problems began during my first year when I filed a grievance against her
> for neglect and refusal of care. It was my understanding then that Ms.
> Thompson would continue to work here but would no longer be assigned to me.
> I was satisfied with this arrangement. Later Ms. Thompson was fired and it
> became a moot point. In all this time I have never filed another grievance
> nor had problems with any other aides. And I believe it's fair to say I'm a
> well-liked person that's considered easy to work with and that I've been a
> good resident of this nursing home.
>
> Today I discovered Ms. Thompson had been assigned to my hall and that she
> had refused to enter my room, feed or help in any way with my care. This
> part I have no problem with and actually am in agreement with Ms. Thompson
> about, however, it meant other aides from a different hall were obliged to
> do my care which they did with compassion and grace and I'm very
> appreciative of Meagan Johns and Donna Harris for their help. It is my
> request that Ms. Thompson not be assigned to my hall or me again in any
> capacity - this way no extra burden is imposed on the staff who do enjoy
> working with me and I them. As it stands Ms. Thompson is scheduled to be on
> my hall for two weeks and I feel very uneasy and stressed about how my care
> is to be managed. It is my hope we can resolve this quickly and without
> further incidence.
>
> Thank you for your time.
>
> Sincerely,
>
> Stephanie Dial

RE: RE: [QUAD-L] leg spazams

2006-04-17 Thread Eric W Rudd

Ahhh man..I wanna hallucinate :-p

Eric W Rudd
[EMAIL PROTECTED]


-Original Message-
From: William Willis [mailto:[EMAIL PROTECTED] 
Sent: Monday, April 17, 2006 5:03 PM
To: quad-list@eskimo.com
Subject: FW: RE: [QUAD-L] leg spazams



Baclofen knocks me out cold. I even hallucinate on it.


>From: "Eric W Rudd" <[EMAIL PROTECTED]>
>To: 
>Subject: RE: [QUAD-L] leg spazams
>Date: Mon, 17 Apr 2006 11:54:26 -0500
>
>Baclofen & Dantrium no sides :-p
>
>Eric W Rudd
>[EMAIL PROTECTED]
>
>
>-Original Message-
>From: Johnny [mailto:[EMAIL PROTECTED]
>Sent: Monday, April 17, 2006 11:47 AM
>To: QUAD-LIST@eskimo.com
>Subject: [QUAD-L] leg spazams
>
>
>Hi friends,
>ive been a Quad for bout 30 years [ wow, where does the time go ]. i 
>have had leg spazams on and off before nothing to bad ,  always 
>deepends on any infections or if the bowel is too full. But lately they

>have been more severe in the legs. My questions is,what meds does 
>anyone take for spasims, and are there any side effects. thanks Johnny
>
>Johnny
>
>
>

[QUAD-L] Steph's letter to Administrator




How's this y'all?
April 17, 2006

Rebecca Matheny, Administrator
Ms. Matheny:
I am writing in hopes that you can help me resolve the situation I was faced 
with today. As you may or may not be aware of my condition requires that I 
receive full assistance with all ADL's. When one is in this vulnerable position 
you hope not only to be cared for by competent people but by people you like and 
trust and that you have confidence in will conduct your care with respect and 
warmth. What a person of my vulnerability hopes not to encounter is a hostile or 
resentful caretaker which would make for an unpleasant life that no one disabled 
deserves. In my four years as a resident here I've enjoyed a pleasant life and 
gotten along well with the nursing and cna staff with the exception of Ms. 
Shelia Thompson a.k.a. Poochie. 
Our problems began during my first year when I filed a grievance against her 
for neglect and refusal of care. It was my understanding then that Ms. Thompson 
would continue to work here but would no longer be assigned to me. I was 
satisfied with this arrangement. Later Ms. Thompson was fired and it became a 
moot point. In all this time I have never filed another grievance nor had 
problems with any other aides. And I believe it's fair to say I'm a well-liked 
person that's considered easy to work with and that I've been a good 
resident of this nursing home. 
Today I discovered Ms. Thompson had been assigned to my hall and that she had 
refused to enter my room, feed or help in any way with my care. This part I have 
no problem with and actually am in agreement with Ms. Thompson about, however, 
it meant other aides from a different hall were obliged to do my care which they 
did with compassion and grace and I'm very appreciative of Meagan Johns and 
Donna Harris for their help. It is my request that Ms. Thompson not be assigned 
to my hall or me again in any capacity - this way no extra burden is imposed on 
the staff who do enjoy working with me and I them. As it stands Ms. Thompson is 
scheduled to be on my hall for two weeks and I feel very uneasy and stressed 
about how my care is to be managed. It is my hope we can resolve this quickly 
and without further incidence. 
Thank you for your time.
Sincerely,
Stephanie Dial

Re: [QUAD-L] broken leg Dr. wrong?

2006-04-17 Thread DeLiMiTeD4

raloxifene, (not sure bout the spelling) but it has been awhile. It probably was clear in or original post but I take meds that make me "hard o' thinkin' at times.
I do wish you the best and please let me know how things go.
I felt like the magnets helped but I couldn't prove it. Sounds silly but the side effects were really minimal.
john
My primary sent me to an ortho, he's the one who put the soft cast on the leg etc...I have no issues with him. I have issues with the primary who dropped the ball 3 times. I thought that was clear in my original post.

Anyway, can you tell me what you took for osteoporosis? My concerns were exactly the ones you mentioned.

Thanks for the dialogue!

On Apr 17, 2006, at 5:05 PM, [EMAIL PROTECTED] wrote:

Then again, you know what they call the worst doctor to graduate medical school?
Doctor!
I get those tiny fractures from the way the bones deformed after the accident when I broke my neck. Actually,, the broken neck was only one of many things broken. A lot of the bones didn't and won't heal right. I have had a few operations to remove bone growing through the skin and to refit screws and hardware.
I thought the soft cast was a given. I didn't imagine you not getting a velcrow leg splint and told to immobilize it etc.
It hadn't occured to me your doctor just kissed it and told you it'l be ok. I thought you were upset over her lack of enthusiasm. I really thought she splinted it and warneed you about the circulatory problems.
You might ask her if she's too busy to see you since she's obviously hasn't the time to think about your case. I thought you meant your doctor was busy, not stupid, I you were right.
I took a drug that was meant to help heal the osteoperosis and stop the decalcification, it led to bone spurs growning faster and bladder stones forming fast.
john
In a message dated 4/16/2006 7:39:54 PM Eastern Daylight Time, [EMAIL PROTECTED] writes:

On Apr 15, 2006, at 8:18 PM, [EMAIL PROTECTED] wrote:

is little any doctor can do that will improve how it heals.

That's simply not true. My ortho put a soft cast on it and wants me to elevate as much as possible. Plus the was concern about a blood clot in the beginning.

I like doctors that are brutally honest.

Me too, I would have preferred honesty to what seemed to me to be neglectful.

You do need to improve communications with your doctors.

It is very difficult to speak with her by simply calling the office. She ignored my call to her cell when she was on call.

To anyone reading this, our bones are often like chalk.
They have medicines now that will actually promote new bone growth. No one told me about that until I saw this new DR. and questioned her about the osteoporosis. She then READ MY CHART (imagine that) and saw that 3 yrs ago
my arthiritis DR ( I also have rheumatoid) recommended a full osteoporosis workup. Old Dr. never mentioned it.

They break very easily and prevention is the only way to address the problem. I have actual "foot" plates that protect my toes from hooking on corners and twisting my legs.
Where did you get those?

I know how frustrating it is but ask your doctor for something for the anxiety, calm down.

That's not really an issue for me, maybe my partner...she hates seeing me get hurt and the treatment by the DR really upset her.

These hurdles can help develope a better relationship with your doctor.
That's a stretch for me to consider. I do like her as a person and think I have mentioned how happy I am with her on this list. But the other DR has mentioned several concerns she has about my bloodwork and now the Osteoporosis, that the old DR never mentioned.

Peace,

River

john C-5 complete, post 30 years.
In a message dated 4/15/2006 6:25:29 PM Eastern Daylight Time, [EMAIL PROTECTED] writes:

Hi everyone,

Re: [QUAD-L] Need Advice





In a message dated 4/17/2006 5:41:21 PM Central Standard Time, 
[EMAIL PROTECTED] writes:

  When mine came in they nearly sh*t their pants even though he was there 
  for something else he wanted to see my records which  you can ask for too 
  and read everything they write down on you. You'd be surprised how they 
  protect their ass by writing lies in your file. 
  Do what you say though or they'll never comply.
   
  Mark
  PS the one we wrote up was fired that day!

 
Sounds like Mark had a better idea than mine.  And it was tried and 
tested too!
Go fir it and Geterdone!
W

Re: [QUAD-L] Need Advice

Title: Re: [QUAD-L] Need Advice



They should have your resident rights posted. With #’s 2 state & ombudsman on it. If not ask 4 it they’ll have to get it 4 U. or you can do as I did go 2 the nurses station and ask them 2 dial it 4 U :) that gets responses from the DON, & ADON immediately :)

On 4/17/06 7:18 PM, "[EMAIL PROTECTED]" <[EMAIL PROTECTED]> wrote:

Two words that most nursing facilities fear worse than the name of GOD.
Facts and Ombusman.  Make sure that you note and record the facts and make sure that you have the telephone number of the State Ombusman or person in your region.
A personal visit might be just what you need.  The name and telephone number of the Ombusman/person should be clearly displayed on the front board as you enter the waiting room of your facility.
Best Wishes
W
 
 
In a message dated 4/17/2006 3:45:06 PM Central Standard Time, [EMAIL PROTECTED] writes:
 

What can I do to solve this situation without undue drama that keeps this  person away from me?
 

Scared & Sad,
 

Steph

Re: [QUAD-L] Today in my 33rd Anniversary




You are truly a "Star of Survival"  
  Wear it proudly and enjoy yourself like your life depended on 
it.
Best Wishes
W
 
 
 
Today is my 33rd Anniversary at 4:15pm I am so ready for 
  a tilt chair. I'm going out to celebrate with a friend of mine I've known 
  since before my motor cross jumping 
  accident.Bobbie

Re: [QUAD-L] My new chair

2006-04-17 Thread tahouston




http://www.invacare.com/cgi-bin/imhqprd/inv_catalog/prod_cat.jsp?s=0&catOID=-536885218
 
T Houston

  - Original Message - 
  From: 
  [EMAIL PROTECTED] 
  To: quad-list@eskimo.com 
  Sent: Monday, April 17, 2006 3:10 
PM
  Subject: [QUAD-L] My new chair
  
  I'm getting an Invacare Arrow Series   Dose anybody 
  know their web site? I typed invacare.com but need a pass word to see 
  chairs.
     Bobbie

Re: [QUAD-L] Need Advice





Two words that most nursing facilities fear worse than the name of 
GOD.
Facts and Ombusman.  Make sure that you note and record the facts and 
make sure that you have the telephone number of the State Ombusman or person in 
your region.
A personal visit might be just what you need.  The name and telephone 
number of the Ombusman/person should be clearly displayed on the front board as 
you enter the waiting room of your facility.
Best Wishes
W
 
 
In a message dated 4/17/2006 3:45:06 PM Central Standard Time, 
[EMAIL PROTECTED] writes:

  What can I do to solve this situation without undue drama that keeps this 
  person away from me?
  Scared & Sad,
  Steph

Re: [QUAD-L] What's in a name? Lol

Title: Re: [QUAD-L] What's in a name? Lol



Poochie is a nickname I have a cousin named Poochie my aunt said she reminded her of a cute little pooch :) ask the charge nurse her Poochies name. But if she’s not to enter your room than whoever's assigned your room is 2 be wrote up. 

On 4/17/06 6:58 PM, "S. Dial" <[EMAIL PROTECTED]> wrote:

I'm composing a letter to administrator but as to owner, insurance carrier, etc, I've got no idea of how to find this info out? As for her name I assume it's cause she goes around with her lip pooched out? Lol, I dunno, I've often wondered myself about that!

Re: [QUAD-L] Mr Boyd I Presume





Actually, I tried to buzz Mr. Boyd at his old email or last email address 
and Damon sent it back.  Here I thought he went to heaven for being such a 
nice guy.  What do ya think?
W
 
 
 
In a message dated 4/17/2006 3:40:09 PM Central Standard Time, 
[EMAIL PROTECTED] writes:

  Hi Boyd,
   
  Nice to see you buzz through the List again.  :)

Re: [QUAD-L] Its That Time of the Season- Organ Donations





Just remember that he was ours, before he got smart and left Indiana and 
all its Bloomington.
I still have my "Its kNIGHT COUNTRY" sweatshirt, lol.
W
 
 
 
In a message dated 4/17/2006 4:48:30 PM Central Standard Time, 
[EMAIL PROTECTED] writes:

  My whole body will go to Texas Tech (Home of Bobby Knight's Red Raiders 
  basketball team) when my spirit moves on to better things.  ;-)
   
   
  With Love,
  CtrlAltDel aka DaveC4/5 Complete - 29 Years PostTexas, 
  USA

Re: [QUAD-L] What's in a name? Lol

2006-04-17 Thread ~LittleQuad~

does she have rolls or an ass that pooches out?? hehe  "S. Dial" <[EMAIL PROTECTED]> wrote:  I'm composing a letter to administrator but as to owner, insurance carrier, etc, I've got no idea of how to find this info out? As for her name I assume it's cause she goes around with her lip pooched out? Lol, I dunno, I've often wondered myself about that!

Re: [QUAD-L] Need Advice




How do I get in contact with State Dept? You're 
right about ombudsman - they're just nursing home lackeys, imo. Also, I've asked 
to look at my files several times over last 4 years and been put off or ignored. 

 
Steph

[QUAD-L] What's in a name? Lol




I'm composing a letter to administrator but as 
to owner, insurance carrier, etc, I've got no idea of how to find this info out? 
As for her name I assume it's cause she goes around with her lip pooched out? 
Lol, I dunno, I've often wondered myself about that!

Re: [QUAD-L] Need Advice

2006-04-17 Thread ~LittleQuad~

When i was in inpatient therapy 6 years ago, there was a nurse who was headstrong and stupid... i told her one night that i need to do my bprogram, she refused cause it was off routine..Well the next day in therapy guess what? So i went back to my room, she was back on shift by then...when she was told i needed her for that reason she waited 2 hours, YES 2 HOURS! Finally my other aides helped me... i was supposed to stay in bed but hell no this was not getting away...i got up and went right down to the admin office, was onsite...waited just few minutes till the CEO was available..(I go straight to the top or nobody will tell them) i went in his office and told him exactly what happened...do
you know what it is like to be 21 and have to sit in that shit for over 2 hours Now i have a rash and it got in other places it shouldn't have??? Do you know how humiliating that is??? Needless to say he accompanied me back upstairs to question her, and she said well I had other patients who needed meds oh you could see the fumes from both of them. She finished the shift, not as my nurse and was fired! I was so relieved. It wasnt the 1st argument she and I had had. NEVER let is go over 12 hours, do it that day if possible
and take witnesses with you. if you dont defend yourself, no one else will. Okay I'm done ranting haha"S. Dial" <[EMAIL PROTECTED]> wrote:Hey Gang, I'm having a problem and need to know what you think I should do. During my first year in this nursing home I had a problem with an aide named Poochie who I ended up filing a grievance on for neglect and refusal of care who was from then on not assigned to me, she was later caught sleeping on the job and let go, but has been hired
back in recent weeks. Since her return I've been told of comments from her such as "You know I don't go in Stephanie's room!" regarding answering my light or coming in to care for my roommate. This doesn't bother as I prefer her as far away from me as possible, but today she and her partner, a young man named Jeremy, were assigned to my hall. An aide from another hall had to come feed me and informed me that Poochie had been assigned to feed me and do my care and had refused so that was why she was feeding me. Between having Poochie and this male aide on my hall I would have been effectively without care if it wasn't for the kindness of Meagan who fed me and then after finishing her people's care came back and got me up. I did complain to the charge nurse, Adam, and tell him what had transpired in the past and today and that basically I'd rather not have any dealings with this person and he said he'd file a
grievance against her. I also tried contacting my social worker, Bambi Barber, to see if she could help my situation only to discover she isn't in today. I'm feeling really stressed and vulnerable over how my care is going to be managed over the next 2 weeks which is how long she'll be on my hall, if management won't agree to switch her. What can I do to solve this situation without undue drama that keeps this person away from me? Scared & Sad, Steph

[QUAD-L] Laptops & Quads

Hi Gang,     I'm looking at getting a laptop computer and any info/feedback, pro or con, concerning Quads using them would be greatly appreciated!        With Love,  CtrlAltDel aka DaveC4/5 Complete - 29 Years PostTexas, USA

Re: [QUAD-L] Need Advice




Hahaha, good one, Bobbie! 
 
Steph

Re: [QUAD-L] Need Advice

2006-04-17 Thread radnbadatpj


 THATS TO FUNNY :-) -Original Message-From: [EMAIL PROTECTED]To: [EMAIL PROTECTED]; quad-list@eskimo.comSent: Mon, 17 Apr 2006 19:17:49 EDTSubject: Re: [QUAD-L] Need Advice


Death to Poochie ~ I mean smoochie   lol

Re: [QUAD-L] Need Advice

Hi Steph, Check these sites for more info. The FL State Ombudsman can be reached at: [EMAIL PROTECTED] http://www.providersweb.com/gov.aspx http://www.qualitycheck.org/?src=""> I hope these help you. If not give a us 'shout-out' again! With Love, CtrlAltDel aka DaveC4/5 Complete - 29 Years PostTexas, USA "S. Dial" <[EMAIL PROTECTED]> wrote:Hey
Gang, I'm having a problem and need to know what you think I should do. During my first year in this nursing home I had a problem with an aide named Poochie who I ended up filing a grievance on for neglect and refusal of care who was from then on not assigned to me, she was later caught sleeping on the job and let go, but has been hired back in recent weeks. Since her return I've been told of comments from her such as "You know I don't go in Stephanie's room!" regarding answering my light or coming in to care for my roommate. This doesn't bother as I prefer her as far away from me as possible, but today she and her partner, a young man named Jeremy, were assigned to my hall. An aide from another hall had to come feed me and informed me that Poochie had been assigned to feed me and do my care and had refused so that was why she was feeding me. Between having Poochie
and this male aide on my hall I would have been effectively without care if it wasn't for the kindness of Meagan who fed me and then after finishing her people's care came back and got me up. I did complain to the charge nurse, Adam, and tell him what had transpired in the past and today and that basically I'd rather not have any dealings with this person and he said he'd file a grievance against her. I also tried contacting my social worker, Bambi Barber, to see if she could help my situation only to discover she isn't in today. I'm feeling really stressed and vulnerable over how my care is going to be managed over the next 2 weeks which is how long she'll be on my hall, if management won't agree to switch her. What can I do to solve this situation without undue drama that keeps this person away from me? Scared & Sad, Steph

Re: [QUAD-L] Today in my 33rd Annivarsary

2006-04-17 Thread DAANOO





Congratulations Bobbie.  Hoping you'll get your tilt chair, ASAP and 
everything will be perfectly.  So glad you have a celebration planned. It 
is important to celebrate everything we can as life can be short!  We might 
as well celebrate, you cannot change it.  I always try to plan going to a 
concert or something I really enjoyed doing.
 
Dana
 
  A message dated 4/17/2006 3:28:08 P.M. Central Standard Time, 
[EMAIL PROTECTED] writes:
Happy 
  Survivor Day!My 10th is this Wed approx 10PM MST. April 19th, a date with 
  bad history. HmmmSeems a number of us joined the club during the mo. of 
  April.Hope the new chair gets delivered soon.StuntOn 4/17/06, 
  [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote:>> Today is my 
  33rd Anniversary at 4:15pm I am so ready for a tilt chair. I'm> going 
  out to celebrate with a friend of mine I've known since before my> 
  motor cross jumping accident.>     
Bobbie

Re: [QUAD-L] Need Advice

2006-04-17 Thread Bobbie299


Death to Poochie ~ I mean smoochie   lol

Re: [QUAD-L] Today in my 33rd Annivarsary

Hi Bobbie,     I hope you enjoy going out with your friend.  Thirty-three is quite a sequential number in the cycle of time.  You can be proud to see it roll into your journey.     With Love,  CtrlAltDel aka DaveC4/5 Complete - 29 Years PostTexas, USA  [EMAIL PROTECTED] wrote:  Today is my 33rd Anniversary at 4:15pm I am so ready for a tilt chair. I'm going out to celebrate with a friend of mine I've known since before my motor cross jumping accident.      Bobbie

Re: [QUAD-L] Today in my 33rd Annivarsary

2006-04-17 Thread QuadPirate







Well glad you made another one with many to come.
 
 
 
Mark
 
---Original Message---
 

From: [EMAIL PROTECTED]
Date: 04/17/06 15:14:57
To: quad-list@eskimo.com
Subject: [QUAD-L] Today in my 33rd Annivarsary
 
Today is my 33rd Anniversary at 4:15pm I am so ready for a tilt chair. I'm going out to celebrate with a friend of mine I've known since before my motor cross jumping accident.
    Bobbie

Re: [QUAD-L] leg spazams

Hi Johnny,     I've been a Quad about 30 years, too.  I do ROM for my leg spasms, and take 30mg Diazepam to help with the spasms.  I started taking 15mg of Diazepam 30 years ago and have increased to 30 over that time with no side effects.  I would see the side effects if I stopped the Diazepam.  If the spasms get too bad I will start to look for something wrong causing them.     With Love,  CtrlAltDel aka DaveC4/5 Complete - 29 Years PostTexas, USA    Johnny <[EMAIL PROTECTED]> wrote:  Hi friends,ive been a Quad for bout 30 years [ wow, where does the time go ].i have had leg spazams on and off before nothing to bad , always deepends on any infections or if the bowel is too full.But lately they have
 been more severe in the legs.My questions is,what meds does anyone take for spasims, and are there any side effects.thanksJohnnyJohnny

Re: [QUAD-L] Need Advice

2006-04-17 Thread Steve Wickwar

Title: Re: [QUAD-L] Need Advice



That's such BS Find someone who 
will advocate for you. I would suggest using your computer to send a few 
e-mails. Start with the lead nurse on duty, no response, go higher...owner of 
nursing home, Insurance carrier, News channels. Get their attention and you'll 
see results. Don't let them or her make you a victim. What the hell kinda name 
is "POOCHIE" anyways???
 
Steve W
 
C6 Texas

  - Original Message - 
  From: 
  Houston809 
  To: S. Dial ; quadlist 
  Sent: Monday, April 17, 2006 5:02 
PM
  Subject: Re: [QUAD-L] Need Advice
  You can try 
  contacting the ombudsmen or the state dept of health. I understand her not 
  coming in your room went through the same thing with half the aids working at 
  the nursing home I was in. had the state out there so much they found me an 
  apt. helped me with finding agency and everything. Not saying thats the best 
  solution. I got a lot of staff fired because the aides and nurses come in with 
  attitudes preconceived from coworkers and Id let them have it with both 
  barrels. Looking back those 2yrs I spent in nursing home were the worse 2yrs 
  of me being a quad.On 4/17/06 3:43 PM, "S. Dial" 
  <[EMAIL PROTECTED]> wrote:
  Hey 
Gang, I'm having a problem and need to know what you think I 
should do. During my first year in this nursing home I had a problem with an 
aide named Poochie who I ended up filing a grievance on for neglect and 
refusal of care who was from then on not assigned to me, she was later 
caught sleeping on the job and let go, but has been hired back in recent 
weeks. Since her return I've been told of comments from her such as 
"You know I don't go in Stephanie's room!" regarding answering my light or 
coming in to care for my roommate. This doesn't bother as I prefer 
her as far away from me as possible, but today she and her partner, a young 
man named Jeremy, were assigned to my hall. An aide from another hall had to 
come feed me and informed me that Poochie had been assigned to feed me and 
do my care and had refused so that was why she was feeding me. 
Between having Poochie and this male aide on my hall I would have 
been effectively without care if it wasn't for the kindness of Meagan who 
fed me and then after finishing her people's care came back and got me up. 
I did complain to the charge nurse, Adam, and tell him what had 
transpired in the past and today and that basically I'd rather not have any 
dealings with this person and he said he'd file a grievance against her. I 
also tried contacting my social worker, Bambi Barber, to see if she could 
help my situation only to discover she isn't in today. I'm feeling really 
stressed and vulnerable over how my care is going to be managed over the 
next 2 weeks which is how long she'll be on my hall, if management won't 
agree to switch her. What can I do to solve this situation without undue 
drama that keeps this person away from me?Scared & 
Sad,Steph

Re: [QUAD-L] Need Advice

2006-04-17 Thread QuadPirate







Ok Steph,
I've been in your "exact" situation.
First don't call an Omsbudsman a waste of time they know everyone by name in charge.
Write a letter first explaining your's and any one elses problem with  her and remind them of the neglect.
Have any one else there write a letter also if they're having problems also and the more the merrier. Bring it or them to your D.O.N A and let them read it and tell them you don't want any contact with this person whatsoever! Have a family  member there with you if possible for a witness. Let them know if she is in charge of your care you have no choice but to send a complaint to your states board of health who will come down and do their own assesment of your care and get this and everybody elses care too by a surprise inspection, they have to come regardless but don't tell her that because she already knows and if that doesn't work call a lawyer and tell him what's going on.  When mine came in they nearly sh*t their pants even though he was there for something else he wanted to see my records which  you can ask for too and read everything they write down on you. You'd be surprised how they protect their ass by writing lies in your file. 
Do what you say though or they'll never comply.
 
Mark
PS the one we wrote up was fired that day!
 
---Original Message---
 

From: S. Dial
Date: 04/17/06 15:44:25
To: quad-list@eskimo.com
Subject: [QUAD-L] Need Advice
 

Hey Gang, 
I'm having a problem and need to know what you think I should do. During my first year in this nursing home I had a problem with an aide named Poochie who I ended up filing a grievance on for neglect and refusal of care who was from then on not assigned to me, she was later caught sleeping on the job and let go, but has been hired back in recent weeks. 
Since her return I've been told of comments from her such as "You know I don't go in Stephanie's room!" regarding answering my light or coming in to care for my roommate. 
This doesn't bother as I prefer her as far away from me as possible, but today she and her partner, a young man named Jeremy, were assigned to my hall. An aide from another hall had to come feed me and informed me that Poochie had been assigned to feed me and do my care and had refused so that was why she was feeding me. 
Between having Poochie and this male aide on my hall I would have been effectively without care if it wasn't for the kindness of Meagan who fed me and then after finishing her people's care came back and got me up. 
I did complain to the charge nurse, Adam, and tell him what had transpired in the past and today and that basically I'd rather not have any dealings with this person and he said he'd file a grievance against her. I also tried contacting my social worker, Bambi Barber, to see if she could help my situation only to discover she isn't in today. I'm feeling really stressed and vulnerable over how my care is going to be managed over the next 2 weeks which is how long she'll be on my hall, if management won't agree to switch her. What can I do to solve this situation without undue drama that keeps this person away from me?
Scared & Sad,
Steph

Re: [QUAD-L] broken leg Dr. wrong?

Hi River, My femur broke in '81 and a Titanium rod was inserted unto the femur through the pelvic and the break was wired in two places around the bone. After it healed the Drs decided it was better to leave the rod in than to do another surgery to remove it. It sounded like the best idea at the time. No one mentioned the risk of Osteomyelitis. That came up in '87 when the femur became infected. Five surgeries and two year later the femur had to be removed from the pelvic to keep any infection from spreading into my body. Make sure you ask your Dr. any question that comes to you about your leg. With Love, CtrlAltDel aka DaveC4/5 Complete - 29 Years PostTexas, USARiver Wolfe <[EMAIL PROTECTED]> wrote: On Apr 15, 2006, at 8:18 PM, [EMAIL PROTECTED] wrote: These hurdles can help develope a better relationship with your doctor. That's a stretch for me to consider. I do like her as a person and think I have mentioned how happy I am with her on this list. But the other DR has mentioned several concerns she has about my bloodwork and now the Osteoporosis, that the old DR never mentioned. Peace,River john C-5 complete, post 30
years. In a message dated 4/15/2006 6:25:29 PM Eastern Daylight Time, [EMAIL PROTECTED] writes:Hi everyone,I'll try to keep this short. I recently broke my leg and 4th metatarsal. I didn't know I had broken them until two or three days after it happened. My foot was black and blue and my leg was swollen more than usual. I called my Dr. and she fit me in that day. She saw my leg and sent me to have an x-ray and venous doppler (blod clot test) that
afternoon. I had both tests and was released. I asked about the x-ray and was informed that since my Dr. hadn't ordered a "wet read" the results would be sent to her in 3-5 days. I was a bit puzzled - what if my leg was broken? I was told that the x-ray wouldn't be read that night. The doppler was negative. I went home and thought maybe the Dr. would hear the results if it was broken but no one called me that night. The next day I called the Dr. on call (before the practice opened) and it was my Dr. I left a msg on her cell about what had happened. It was her day off that day. She never called me and again I was puzzled but assumed that it was ok since I heard from no one. But in the back of my mind I knew something had to be wrong for my leg to so swollen and my foot so bruised. Next day I called as soon as the practice opened and was put through to my Dr's nurse who told em I had a spiral fx of the distal tibia and 4th metatarsal. I about flipped! she put the Dr. on the phone and I was polite but very upset. She was apologetic and tried to blame the x-ray staff until I told her what they had told me about her orders. She then admitted she should've ordered a "wet read" but asssumed if it was broken they would page her anyway. I asked her about the msg I sent her on her cell and she flat out admitted she "forgot all about it". Needless to say folks I was fuming and upset. Then guess what happened next??? Dr. said she would schedule me with an orthopod and call me back within the hour. I got a call back from the nurse and she told me I had an appt in 5 days!!! I flipped again and the nurse said "it's only a small fx". To which I replied that I wanted the Dr. to call me back immediately. The Dr. was very quiet on the phone and said she would find an appt for that day, which she did.Folks I had some stressful nights deciding whether to return to this Dr, or find another one at another practice, or stay in the practice with another Dr. who I have seen on several occasions. I decided to make an appt with the Dr. I had seen on several occasions and request that she become my
primary. I just couldn't return to the Dr. that made not one but THREE mistakes. So I saw the other Dr. who is "good friends" with the old Dr. She was a bit defensive for her friend and collegue but agreed to check with the manager to see if she can be my primary.Two days later I received a call from the practice manager who said that I cannot change Dr's. It's against the practice by-laws. I was pretty upset but polite. Why was it I who was being punished for something I did not do? I explained that I'm a paraplegic and have been with the practice over 4 years and it's really difficult for me to change primary care Dr's for continuity purposes. That by staying in the practice it made it much easier for me. I like the office staff I really like the Dr.
who screwed up, but perhaps she's too busy for the complex needs I have. She insisted that they follow practice guidelines. I begged her to speak to the Dr. who made the mistake before she makes a decision and that perhaps this time they could bend the rules?She said she would call me on Monday after speaking to my old primary. The Dr. I want to be my new primary told me that the other Dr. said she would be surprised if I returned to th

Re: [QUAD-L] I'm Baaaack Gang .... STL is home now :)

Title: Re: [QUAD-L] I'm Bck Gang  STL is home now :)



Thnx Dave

On 4/17/06 3:50 PM, "David K. Kelmer" <[EMAIL PROTECTED]> wrote:

Hi Houston,
  
 
  
Welcome back to the Quad-List.  We hit 100F the 15th and are at 100F today, but it's real dry here so feels pretty nice in the A/C house.  I hope the State of MO gets in action and you get the supplies you need.  
  
 
  
It's really nice to have you back with us!  Stay strong.  :)
  
 
  

With Love,
  

CtrlAltDel aka Dave
C4/5 Complete - 29 Years Post
Texas, USA    

Houston809 <[EMAIL PROTECTED]> wrote:
  
4 everyone that’s wondered where I've been. I moved 2 St. Louis. Just got
DSL back. Hot here last couple days going 2 be a lot 2 get used 2 I don't do
heat well.
Medicaid is different 2 my axid which in Indiana was only $3.00 co-pay here
in STL not  covered it's $54.00. I got a pressure sore on my heal gauze pads
& keflex not covered had 2 buy over the counter. Still waiting on state 2
send someone 2 assess me 2 see how many hrs I qualify 4. I'm sure there's a
lot of other thing's I'll learn of missouri medicaid vs indiana medicaid
over the next few mnths. Accessable housing waiting lists about the same
3mnths - 1 1/2 yrs

FW: RE: [QUAD-L] leg spazams

Baclofen knocks me out cold. I even hallucinate on it.

From: "Eric W Rudd" <[EMAIL PROTECTED]>
To: 
Subject: RE: [QUAD-L] leg spazams
Date: Mon, 17 Apr 2006 11:54:26 -0500

Baclofen & Dantrium no sides :-p

Eric W Rudd
[EMAIL PROTECTED]

-Original Message-
From: Johnny [mailto:[EMAIL PROTECTED]
Sent: Monday, April 17, 2006 11:47 AM
To: QUAD-LIST@eskimo.com
Subject: [QUAD-L] leg spazams

Hi friends,
ive been a Quad for bout 30 years [ wow, where does the time go ]. i
have had leg spazams on and off before nothing to bad ,  always deepends
on any infections or if the bowel is too full. But lately they have been
more severe in the legs. My questions is,what meds does anyone take
for spasims, and are there any side effects. thanks Johnny

Johnny

Re: [QUAD-L] Need Advice

Title: Re: [QUAD-L] Need Advice



You can try contacting the ombudsmen or the state dept of health. I understand her not coming in your room went through the same thing with half the aids working at the nursing home I was in. had the state out there so much they found me an apt. helped me with finding agency and everything. Not saying that’s the best solution. I got a lot of staff fired because the aides and nurses come in with attitudes preconceived from coworkers and I’d let them have it with both barrels. Looking back those 2yrs I spent in nursing home were the worse 2yrs of me being a quad.


On 4/17/06 3:43 PM, "S. Dial" <[EMAIL PROTECTED]> wrote:

Hey Gang, 

I'm having a problem and need to know what you think I should do. During my first year in this nursing home I had a problem with an aide named Poochie who I ended up filing a grievance on for neglect and refusal of care who was from then on not assigned to me, she was later caught sleeping on the job and let go, but has been hired back in recent weeks. 

Since her return I've been told of comments from her such as "You know I don't go in Stephanie's room!" regarding answering my light or coming in to care for my roommate. 

This doesn't bother as I prefer her as far away from me as possible, but today she and her partner, a young man named Jeremy, were assigned to my hall. An aide from another hall had to come feed me and informed me that Poochie had been assigned to feed me and do my care and had refused so that was why she was feeding me. 

Between having Poochie and this male aide on my hall I would have been effectively without care if it wasn't for the kindness of Meagan who fed me and then after finishing her people's care came back and got me up. 

I did complain to the charge nurse, Adam, and tell him what had transpired in the past and today and that basically I'd rather not have any dealings with this person and he said he'd file a grievance against her. I also tried contacting my social worker, Bambi Barber, to see if she could help my situation only to discover she isn't in today. I'm feeling really stressed and vulnerable over how my care is going to be managed over the next 2 weeks which is how long she'll be on my hall, if management won't agree to switch her. What can I do to solve this situation without undue drama that keeps this person away from me?

Scared & Sad,

Steph

Re: [QUAD-L] Need Advice




I will but the aide told me my 
wing's D.O.N. was spoken to, her suggestion? That Poochie and another 
female come in here! I was shocked. 
 
 
Ask to talk t the director of 
nursing and then the administrator.

Re: [QUAD-L] Today in my 33rd Annivarsary




Hope you keep going strong, Bobbie!
 
Steph

Re: [QUAD-L] Its That Time of the Season- Organ Donations

Hi Houston, My whole body will go to Texas Tech (Home of Bobby Knight's Red Raiders basketball team) when my spirit moves on to better things. ;-) With Love, CtrlAltDel aka DaveC4/5 Complete - 29 Years PostTexas, USAHouston809 <[EMAIL PROTECTED]> wrote: Its funny I rode motorcycles for about 20yrs. Its ironic I was on my bike when I became a quad. But I was shot in the neck while on my bike. I only wore my helmet when in states that required it. But I was an organ donor. :) and am a donor now if anyone could use anything other than my eyes. My internal organs are probably useless :)On 4/16/06 12:20 PM, "[EMAIL PROTECTED]" <[EMAIL PROTECTED]>
wrote: You are right John. But you get the geist of my campaign. Think and think again.If you don't think, you could become another organ donor. Someone has to stop this crazy madness of stupity. If we don't who will?W In a message dated 4/16/2006 12:17:17 PM Central Standard Time, DeLiMiTeD4 writes: The trouble is thy still require next of kin to sign off unless you have it in a written document such as a living will. I do think that helmetless motorcycle riders, base jumpers and hang glider pilots, should all be considered automatically donors but lawyers would never allow that. They have people trained to request organ donations from grievng families but thay actually only get to less than a third of
the people they should be askng around the Cincinnati area. I have a sister that works with kidney transplants and she was telling me how nobody could reach those"professionals" from December thru the end of January. I agree they deserve vacations, but thats a busy time of year for car wrecks and gun shots. I'm sure theyd get more donations if they were more active about asking. john

Re: [QUAD-L] broken leg Dr. wrong?

2006-04-17 Thread River Wolfe

My primary sent me to an ortho, he's the one who put the soft cast on the leg etc...I have no issues with him. I have issues with the primary who dropped the ball 3 times. I thought that was clear in my original post.Anyway, can you tell me what you took for osteoporosis? My concerns were exactly the ones you mentioned.Thanks for the dialogue!ROn Apr 17, 2006, at 5:05 PM, [EMAIL PROTECTED] wrote: Then again, you know what they call the worst doctor to graduate medical school? Doctor! I get those tiny fractures from the way the bones deformed after the accident when I broke my neck. Actually,, the broken neck was only one of many things broken. A lot of the bones didn't and won't heal right. I have had a few operations to remove bone growing through the skin and to refit screws and hardware. I thought the soft cast was a given. I didn't imagine you not getting a velcrow leg splint and told to immobilize it etc. It hadn't occured to me your doctor just kissed it and told you it'l be ok. I thought you were upset over her lack of enthusiasm. I really thought she splinted it and warneed you about the circulatory problems. You might ask her if she's too busy to see you since she's obviously hasn't the time to think about your case. I thought you meant your doctor was busy, not stupid, I you were right. I took a drug that was meant to help heal the osteoperosis and stop the decalcification, it led to bone spurs growning faster and bladder stones forming fast. john In a message dated 4/16/2006 7:39:54 PM Eastern Daylight Time, [EMAIL PROTECTED] writes: On Apr 15, 2006, at 8:18 PM, [EMAIL PROTECTED] wrote: is little any doctor can do that will improve how it heals. That's simply not true. My ortho put a soft cast on it and wants me to elevate as much as possible. Plus the was concern about a blood clot in the beginning. I like doctors that are brutally honest. Me too, I would have preferred honesty to what seemed to me to be neglectful. You do need to improve communications with your doctors. It is very difficult to speak with her by simply calling the office. She ignored my call to her cell when she was on call. To anyone reading this, our bones are often like chalk. They have medicines now that will actually promote new bone growth. No one told me about that until I saw this new DR. and questioned her about the osteoporosis. She then READ MY CHART (imagine that) and saw that 3 yrs ago my arthiritis DR ( I also have rheumatoid) recommended a full osteoporosis workup. Old Dr. never mentioned it. They break very easily and prevention is the only way to address the problem. I have actual "foot" plates that protect my toes from hooking on corners and twisting my legs. Where did you get those? I know how frustrating it is but ask your doctor for something for the anxiety, calm down. That's not really an issue for me, maybe my partner...she hates seeing me get hurt and the treatment by the DR really upset her. These hurdles can help develope a better relationship with your doctor. That's a stretch for me to consider. I do like her as a person and think I have mentioned how happy I am with her on this list. But the other DR has mentioned several concerns she has about my bloodwork and now the Osteoporosis, that the old DR never mentioned. Peace, River john C-5 complete, post 30 years. In a message dated 4/15/2006 6:25:29 PM Eastern Daylight Time, [EMAIL PROTECTED] writes: Hi everyone, I'll try to keep this short. I recently broke my leg and 4th metatarsal. I didn't know I had broken them until two or three days after it happened. My foot was black and blue and my leg was swollen more than usual. I called my Dr. and she fit me in that day. She saw my leg and sent me to have an x-ray and venous doppler (blod clot test) that afternoon. I had both tests and was released. I asked about the x-ray and was informed that since my Dr. hadn't ordered a "wet read" the results would be sent to her in 3-5 days. I was a bit puzzled - what if my leg was broken? I was told that the x-ray wouldn't be read that night. The doppler was negative. I went home and thought maybe the Dr. would hear the results if it was broken but no one called me that night. The next day I called the Dr. on call (before the practice opened) and it was my Dr. I left a msg on her cell about what had happened. It was her day off that day. She never called me and again I was puzzled but assumed that it was ok since I heard from no one. But in the back of my mind I knew something had to be wrong for my leg to so swollen and my foot so bruised. Next day I called as soon as the practice opened and was put through to my Dr's nurse who told em I had a spiral fx of the distal tibia and 4th metatarsal. I about flipped! she put the Dr. on the phone and I was polite but very upset. She was apologetic and tried to blame the x-ray staff until I told her what they had told me about her orders. She then admit

Re: [QUAD-L] Today in my 33rd Anniversary

Title: Re: [QUAD-L] Today in my 33rd Anniversary



Happy Anniversary 

On 4/17/06 3:14 PM, "[EMAIL PROTECTED]" <[EMAIL PROTECTED]> wrote:

Today is my 33rd Anniversary at 4:15pm I am so ready for a tilt chair. I'm going out to celebrate with a friend of mine I've known since before my motor cross jumping accident.
Bobbie

Re: [QUAD-L] broken leg Dr. wrong?

Hi River, I'm really sorry to hear about your broken bones. I'm mad about the way they were treated by the medical community treated them. It seems that the medical community has a, "Well, they're not WALKING on the leg so its no big deal"! I saw that a lot after I broke my femur. Medicare goes easier on the clinics as far as what they can get away with. I suggest speaking with someone who can tell you what all of your option are before this goes any further. With Love, CtrlAltDel aka DaveC4/5 Complete - 29 Years PostTexas, USA River Wolfe <[EMAIL PROTECTED]> wrote:Hi everyone,I'll try to keep this short. I recently broke my leg and 4th metatarsal. I didn't know I had broken them until two or three days after it happened. My foot was black and blue and my leg was swollen more than usual. I called my Dr. and she fit me in that day. She saw my leg and sent me to have an x-ray and venous doppler (blod clot test) that afternoon. I had both tests and was released. I asked about the x-ray and was informed that since my Dr. hadn't ordered a "wet read" the results would be sent to her in 3-5 days. I was a bit puzzled - what if my leg was broken? I was told that the x-ray wouldn't be read that night. The doppler was negative. I went home and thought maybe the Dr. would hear the results if it was broken but no one
called me that night. The next day I called the Dr. on call (before the practice opened) and it was my Dr. I left a msg on her cell about what had happened. It was her day off that day. She never called me and again I was puzzled but assumed that it was ok since I heard from no one. But in the back of my mind I knew something had to be wrong for my leg to so swollen and my foot so bruised. Next day I called as soon as the practice opened and was put through to my Dr's nurse who told em I had a spiral fx of the distal tibia and 4th metatarsal. I about flipped! she put the Dr. on the phone and I was polite but very upset. She was apologetic and tried to blame the x-ray staff until I told her what they had
told me about her orders. She then admitted she should've ordered a "wet read" but asssumed if it was broken they would page her anyway. I asked her about the msg I sent her on her cell and she flat out admitted she "forgot all about it". Needless to say folks I was fuming and upset. Then guess what happened next??? Dr. said she would schedule me with an orthopod and call me back within the hour. I got a call back from the nurse and she told me I had an appt in 5 days!!! I flipped again and the nurse said "it's only a small fx". To which I replied that I wanted the Dr. to call me back immediately. The Dr. was very quiet on the phone
and said she would find an appt for that day, which she did.Folks I had some stressful nights deciding whether to return to this Dr, or find another one at another practice, or stay in the practice with another Dr. who I have seen on several occasions. I decided to make an appt with the Dr. I had seen on several occasions and request that she become my primary. I just couldn't return to the Dr. that made not one but THREE mistakes. So I saw the other Dr. who is "good friends" with the old Dr. She was a bit defensive for her friend and collegue but agreed to check with the manager to see if she can be my primary.Two days later I received a call from the practice manager who said that I cannot change Dr's. It's against the practice by-laws. I was pretty upset but polite. Why was it I who was being punished for something I did not do? I explained that I'm a paraplegic and have been with the practice over 4 years and it's really difficult for me to change primary care Dr's for continuity purposes. That by staying in the practice it made it much easier for me. I like the office staff I really like the Dr. who screwed up, but perhaps she's too busy for the complex needs I have. She insisted that they follow practice guidelines. I begged her to speak to the Dr. who made the mistake before she makes a decision and that perhaps this time they could bend the rules?She said she would call me on Monday after speaking to my old primary. The Dr. I want to be my new primary told me that the other Dr. said she would be surprised if I returned to the practice at all. After speaking with the office manager I don't want to go back. Why would any practice do this sort of thing ? I understand the "no compete clause" but this is a special circumstance. The old primary's caseload is full-she's not accepting new patients, her overflow goes to the Dr. I want to take over. I just don't see the
problem.I need some input !!! Thanks,River

FW: [QUAD-L] Need Advice



Steph, if possible document every single incident with date and description. 
When you have sufficient info and witnesses, go after her ass with a 
pitchfork. You'll be doing yourself and many others a service. Go to the top 
if necessary. Have courage, good luck, and God bless.



From: "S. Dial" <[EMAIL PROTECTED]>
Reply-To: "S. Dial" <[EMAIL PROTECTED]>
To: 
Subject: [QUAD-L] Need Advice
Date: Mon, 17 Apr 2006 16:43:35 -0400

Hey Gang,

I'm having a problem and need to know what you think I should do. During my 
first year in this nursing home I had a problem with an aide named Poochie 
who I ended up filing a grievance on for neglect and refusal of care who 
was from then on not assigned to me, she was later caught sleeping on the 
job and let go, but has been hired back in recent weeks.


Since her return I've been told of comments from her such as "You know I 
don't go in Stephanie's room!" regarding answering my light or coming in to 
care for my roommate.


This doesn't bother as I prefer her as far away from me as possible, but 
today she and her partner, a young man named Jeremy, were assigned to my 
hall. An aide from another hall had to come feed me and informed me that 
Poochie had been assigned to feed me and do my care and had refused so that 
was why she was feeding me.


Between having Poochie and this male aide on my hall I would have been 
effectively without care if it wasn't for the kindness of Meagan who fed me 
and then after finishing her people's care came back and got me up.


I did complain to the charge nurse, Adam, and tell him what had transpired 
in the past and today and that basically I'd rather not have any dealings 
with this person and he said he'd file a grievance against her. I also 
tried contacting my social worker, Bambi Barber, to see if she could help 
my situation only to discover she isn't in today. I'm feeling really 
stressed and vulnerable over how my care is going to be managed over the 
next 2 weeks which is how long she'll be on my hall, if management won't 
agree to switch her. What can I do to solve this situation without undue 
drama that keeps this person away from me?


Scared & Sad,

Steph

Re: [QUAD-L] Need Advice

2006-04-17 Thread Bill_J




Ask to talk t the director of 
nursing and then the administrator.  They have to 
listen.
 
Bill age 55C6 Incomplete since 
7/20/68Leesburg, FLYou know sometimes I get the sudden urge to run 
around naked. But then I just drink some Windex. It keeps me from 
streaking.

  - Original Message - 
  From: 
  S. Dial 
  To: quad-list@eskimo.com 
  Sent: Monday, April 17, 2006 4:43 
PM
  Subject: [QUAD-L] Need Advice
  
  
  Hey Gang, 
  I'm having a problem and need to know what you think I should do. During my 
  first year in this nursing home I had a problem with an aide named Poochie who 
  I ended up filing a grievance on for neglect and refusal of care who was 
  from then on not assigned to me, she was later caught sleeping on the job 
  and let go, but has been hired back in recent weeks. 
  Since her return I've been told of comments from her such as "You 
  know I don't go in Stephanie's room!" regarding answering my light or coming 
  in to care for my roommate. 
  This doesn't bother as I prefer her as far away from me as possible, but 
  today she and her partner, a young man named Jeremy, were assigned to my hall. 
  An aide from another hall had to come feed me and informed me that Poochie had 
  been assigned to feed me and do my care and had refused so that was why she 
  was feeding me. 
  Between having Poochie and this male aide on my hall I would have been 
  effectively without care if it wasn't for the kindness of Meagan who fed me 
  and then after finishing her people's care came back and got me up. 
  I did complain to the charge nurse, Adam, and tell him what had transpired 
  in the past and today and that basically I'd rather not have any dealings with 
  this person and he said he'd file a grievance against her. I also tried 
  contacting my social worker, Bambi Barber, to see if she could help my 
  situation only to discover she isn't in today. I'm feeling really stressed and 
  vulnerable over how my care is going to be managed over the next 2 weeks which 
  is how long she'll be on my hall, if management won't agree to switch her. 
  What can I do to solve this situation without undue drama that keeps this 
  person away from me?
  Scared & Sad,
  Steph

Re: [QUAD-L] Today in my 33rd Annivarsary

2006-04-17 Thread Bill_J




Happy Anniversary, 
Bobbie.
 
Bill age 55C6 
Incomplete since 7/20/68Leesburg, FLYou know sometimes I get the sudden 
urge to run around naked. But then I just drink some Windex. It keeps me from 
streaking.

  - Original Message - 
  From: 
  [EMAIL PROTECTED] 
  To: quad-list@eskimo.com 
  Sent: Monday, April 17, 2006 4:14 
PM
  Subject: [QUAD-L] Today in my 33rd 
  Annivarsary
  
  Today is my 33rd Anniversary at 4:15pm I am so ready for a tilt 
  chair. I'm going out to celebrate with a friend of mine I've known since 
  before my motor cross jumping accident.
      Bobbie

Re: [QUAD-L] broken leg Dr. wrong?

Hi River, I'm really sorry to hear about your broken bones. I'm mad about the way they were treated by the medical community treated them. It seems that the medical community has a, "Well, they're not WALKING on the leg so its no big deal"! I saw that a lot after I broke my femur. Medicare goes easier on the clinics as far as what they can get away with. I suggest speaking with someone who can tell you what all of your option are before this goes any further. Stay strong. With Love, CtrlAltDel aka DaveC4/5 Complete - 29 Years PostTexas, USA River Wolfe <[EMAIL PROTECTED]> wrote:Hi everyone,I'll try to keep this short. I recently broke my leg and 4th metatarsal. I didn't know I had broken them until two or three days after it happened. My foot was black and blue and my leg was swollen more than usual. I called my Dr. and she fit me in that day. She saw my leg and sent me to have an x-ray and venous doppler (blod clot test) that afternoon. I had both tests and was released. I asked about the x-ray and was informed that since my Dr. hadn't ordered a "wet read" the results would be sent to her in 3-5 days. I was a bit puzzled - what if my leg was broken? I was told that the x-ray wouldn't be read that night. The doppler was negative. I went home and thought maybe the Dr. would hear the results if it was
broken but no one called me that night. The next day I called the Dr. on call (before the practice opened) and it was my Dr. I left a msg on her cell about what had happened. It was her day off that day. She never called me and again I was puzzled but assumed that it was ok since I heard from no one. But in the back of my mind I knew something had to be wrong for my leg to so swollen and my foot so bruised. Next day I called as soon as the practice opened and was put through to my Dr's nurse who told em I had a spiral fx of the distal tibia and 4th metatarsal. I about flipped! she put the Dr. on the phone and I was polite but very upset. She was apologetic and tried to blame the x-ray staff until I told
her what they had told me about her orders. She then admitted she should've ordered a "wet read" but asssumed if it was broken they would page her anyway. I asked her about the msg I sent her on her cell and she flat out admitted she "forgot all about it". Needless to say folks I was fuming and upset. Then guess what happened next??? Dr. said she would schedule me with an orthopod and call me back within the hour. I got a call back from the nurse and she told me I had an appt in 5 days!!! I flipped again and the nurse said "it's only a small fx". To which I replied that I wanted the Dr. to call me back immediately. The Dr. was very
quiet on the phone and said she would find an appt for that day, which she did.Folks I had some stressful nights deciding whether to return to this Dr, or find another one at another practice, or stay in the practice with another Dr. who I have seen on several occasions. I decided to make an appt with the Dr. I had seen on several occasions and request that she become my primary. I just couldn't return to the Dr. that made not one but THREE mistakes. So I saw the other Dr. who is "good friends" with the old Dr. She was a bit defensive for her friend and collegue but agreed to check with the manager to see if she can be my primary.Two days later I received a call from the practice manager who said that I cannot change Dr's. It's against the practice by-laws. I was pretty upset but polite. Why was it I who was being punished for something I did not do? I explained that I'm a paraplegic and have been with the practice over 4 years and it's really difficult for me to change primary care Dr's for continuity purposes. That by staying in the practice it made it much easier for me. I like the office staff I really like the Dr. who screwed up, but perhaps she's too busy for the complex needs I have. She insisted that they follow practice guidelines. I begged her to speak to the Dr. who made the mistake before she makes a decision and that perhaps this time they could bend the rules?She said she would call me on Monday after speaking to my old primary. The Dr. I want to be my new primary told me that the other Dr. said she would be surprised if I returned to the practice at all. After speaking with the office manager I don't want to go back. Why would any practice do this sort of thing ? I understand the "no compete clause" but this is a special circumstance. The old primary's caseload is full-she's not accepting new patients, her overflow goes to the Dr. I want to take over. I just don't see the
problem.I need some input !!! Thanks,River

Re: [QUAD-L] broken leg Dr. wrong?

2006-04-17 Thread DeLiMiTeD4

On Apr 15, 2006, at 8:18 PM, [EMAIL PROTECTED] wrote:

is little any doctor can do that will improve how it heals.

That's simply not true. My ortho put a soft cast on it and wants me to elevate as much as possible. Plus the was concern about a blood clot in the beginning.

I like doctors that are brutally honest.

Me too, I would have preferred honesty to what seemed to me to be neglectful.

You do need to improve communications with your doctors.

It is very difficult to speak with her by simply calling the office. She ignored my call to her cell when she was on call.

They break very easily and prevention is the only way to address the problem. I have actual "foot" plates that protect my toes from hooking on corners and twisting my legs.
Where did you get those?

I know how frustrating it is but ask your doctor for something for the anxiety, calm down.

That's not really an issue for me, maybe my partner...she hates seeing me get hurt and the treatment by the DR really upset her.

Peace,

River

john C-5 complete, post 30 years.
In a message dated 4/15/2006 6:25:29 PM Eastern Daylight Time, [EMAIL PROTECTED] writes:

Hi everyone,

I'll try to keep this short. I recently broke my leg and 4th metatarsal. I didn't know I had broken them until two or three days after it happened. My foot was black and blue and my leg was swollen more than usual. I called my Dr. and she fit me in that day. She saw my leg and sent me to have an x-ray and venous doppler (blod clot test) that afternoon. I had both tests and was released. I asked about the x-ray and was informed that since my Dr. hadn't ordered a "wet read" the results would be sent to her in 3-5 days. I was a bit puzzled - what if my leg was broken? I was told that the x-ray wouldn't be read that night. The doppler was negative. I went home and thought maybe the Dr. would hear the results if it was broken but no one called me that night. The next day I called the Dr. on call (before the practice opened) and it was my Dr. I left a msg on her cell about what had happened. It was her day off that day. She never called me and again I was puzzled but assumed that it was ok since I heard from no one. But in the back of my mind I knew something had to be wrong for my leg to so swollen and my foot so bruised. Next day I called as soon as the practice opened and was put through to my Dr's nurse who told em I had a spiral fx of the distal tibia and 4th metatarsal. I about flipped!
she put the Dr. on the phone and I was polite but very upset. She was apologetic and tried to blame the x-ray staff until I told her what they had told me about her orders. She then admitted she should've ordered a "wet read" but asssumed if it was broken they would page her anyway. I asked her about the msg I sent her on her cell and she flat out admitted she "forgot all about it".

Needless to say folks I was fuming and upset. Then guess what happened next??? Dr. said she would schedule me with an orthopod and call me back within the hour. I got a call back from the nurse and sh

Re: [QUAD-L] I'm Baaaack Gang .... STL is home now :)

Hi Houston,     Welcome back to the Quad-List.  We hit 100F the 15th and are at 100F today, but it's real dry here so feels pretty nice in the A/C house.  I hope the State of MO gets in action and you get the supplies you need.       It's really nice to have you back with us!  Stay strong.  :)     With Love,  CtrlAltDel aka DaveC4/5 Complete - 29 Years PostTexas, USA    Houston809 <[EMAIL PROTECTED]> wrote:  4 everyone that¹s wondered where I've been. I moved 2 St. Louis. Just gotDSL back. Hot here last couple days going 2 be a lot 2 get used 2 I don't doheat well.Medicaid is different 2 my axid which in Indiana was only $3.00 co-pay herein STL not
 covered it's $54.00. I got a pressure sore on my heal gauze pads& keflex not covered had 2 buy over the counter. Still waiting on state 2send someone 2 assess me 2 see how many hrs I qualify 4. I'm sure there's alot of other thing's I'll learn of missouri medicaid vs indiana medicaidover the next few mnths. Accessable housing waiting lists about the same3mnths - 1 1/2 yrs

[QUAD-L] Need Advice





Hey Gang, 
I'm having a problem and need to know what you think I should do. During my 
first year in this nursing home I had a problem with an aide named Poochie who I 
ended up filing a grievance on for neglect and refusal of care who was from 
then on not assigned to me, she was later caught sleeping on the job and 
let go, but has been hired back in recent weeks. 
Since her return I've been told of comments from her such as "You 
know I don't go in Stephanie's room!" regarding answering my light or coming in 
to care for my roommate. 
This doesn't bother as I prefer her as far away from me as possible, but 
today she and her partner, a young man named Jeremy, were assigned to my hall. 
An aide from another hall had to come feed me and informed me that Poochie had 
been assigned to feed me and do my care and had refused so that was why she was 
feeding me. 
Between having Poochie and this male aide on my hall I would have been 
effectively without care if it wasn't for the kindness of Meagan who fed me and 
then after finishing her people's care came back and got me up. 
I did complain to the charge nurse, Adam, and tell him what had transpired in 
the past and today and that basically I'd rather not have any dealings with this 
person and he said he'd file a grievance against her. I also tried contacting my 
social worker, Bambi Barber, to see if she could help my situation only to 
discover she isn't in today. I'm feeling really stressed and vulnerable over how 
my care is going to be managed over the next 2 weeks which is how long she'll be 
on my hall, if management won't agree to switch her. What can I do to solve this 
situation without undue drama that keeps this person away from me?
Scared & Sad,
Steph

Re: [QUAD-L] Mr Boyd I Presume

Hi Boyd,     Nice to see you buzz through the List again.  :)     With Love,  CtrlAltDel aka DaveC4/5 Complete - 29 Years PostTexas, USA  [EMAIL PROTECTED] wrote:  Hello Mr Boyd!     Wheelie

Re: [QUAD-L] kidney stones

Hi Carolyn,     In almost 30 years as a Quad, I've had bladder stones removed once using shock wave lithotripsy.  To my knowledge I've passed only one pea-sized stone from my left kidney.  I do drink a lot of water every day so I'm sure that helps me keep the stones down.     I found this info on treatment options.  I hope they will help.  I will keep you in my prayers.  Stay strong. http://www.urologystone.com/CH07TreatmentOptions/swlFrame.html     With Love,  Dave Kelmer, Texas Representative for SCIC Grouphttp://health.groups.yahoo.com/group/scic/C-4/5 Complete04/25/1976 - At the Age of 22Wichita Falls, TXFather & GrandfatherYahoo ID: davekelmer 
    [EMAIL PROTECTED] wrote:  Who on the list has had kidney stones and what treatment did you recieve? I had some removed through surgery a few years ago and now I have more stones.  I've been putting off going back to the Dr.  since August because I'm afraid of surgery again.  They are to big for electric zaps..any suggestions? Can I get into trouble by leaving them and doing nothing.  Carolyn c2/3 quad, 61, 41 years post, Tamarac, FL

Re: [QUAD-L] Today in my 33rd Annivarsary

2006-04-17 Thread Tim Thompson

Happy Survivor Day!
My 10th is this Wed approx 10PM MST. April 19th, a date with bad history. Hmmm
Seems a number of us joined the club during the mo. of April.
Hope the new chair gets delivered soon.
Stunt

On 4/17/06, [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote:
>
> Today is my 33rd Anniversary at 4:15pm I am so ready for a tilt chair. I'm
> going out to celebrate with a friend of mine I've known since before my
> motor cross jumping accident.
> Bobbie

[QUAD-L] Today in my 33rd Annivarsary

2006-04-17 Thread Bobbie299



Today is my 33rd Anniversary at 4:15pm I am so ready for a tilt chair. I'm going out to celebrate with a friend of mine I've known since before my motor cross jumping accident.
    Bobbie

[QUAD-L] My new chair

2006-04-17 Thread Bobbie299



I'm getting an Invacare Arrow Series   Dose anybody know their web site? I typed invacare.com but need a pass word to see chairs.
   Bobbie

Re: [QUAD-L] transfers

2006-04-17 Thread Robert Brennan

I'm  not a big fan of hoists Mr Lubin,hence incorrect procedure during my  nearly 5 year stay in an aged care facility at the tender age of  32.(Sad isn't it?) Buckled my hips to the point of no return.(Talk  about contractures). Give me top and tail any day,provided you have 2 willing people to assist.I guess i'm lucky in that respect. yours.      Robert Brennan.   
   Send instant messages to your online friends http://au.messenger.yahoo.com

Re: [QUAD-L] leg spazams

2006-04-17 Thread Jkrocks



 

I just take 80 milligrams of Baclofen per day for my spasms but my rectum 
dictates how severe my spasms are going to be.  If I took a good bowel 
movement I'm basically spasms free all day but if it's getting close to another 
bowel movement then my spasms increase.
 
Jim

Re: [QUAD-L] transfers

2006-04-17 Thread Jim Lubin



I'm a C2 quad on a ventilator. For the past 17 years we do a
quad pivot transfer, where I wear a neck brace to support my head and the
person doing the transfer leans me over their shoulder with their head
under my arm.
Now that my care givers are getting older and I'm putting on more weight
it's been getting more difficult to do, so we started looking for a
transfer device. We have a hoyer lift but it's not each for one person to
use, rolling it far enough to get pass the wheelchair while not too far
to disconnect the ventilator.
Called the dealer to try the Easypivot. Looked like it would work but had
the same problem with needing roll it without disconnecting the vent.
This might be a good option for you though.
The overhead lift looked like it would work. All I was finding was the
ceiling lifts, which would be difficult to try before purchasing. I came
across the Guardian Voyager portable lift and Easytrack system from
Sunrise Medical. The video on the web site looked like just what we
needed. Called a local distributor and asked for an in-home
demonstration. The distributor brought over the 3-post Easytrack system,
set it up in my bedroom in about 30 minutes and let us try it for a few
days. It works great! I still wear my neck brace but my care givers just
lean me forward, slide the 6-point sling in back of me, pull the 2 straps
under my legs and attach the 6 straps to the lift. It lifts me straight
up out of my chair,  very easily push me over my bed and lower me.
It's very easy for 1 person to do. 
The whole system is about $5000. I found it for around $4000 through an
online site but buying it locally the state might pay for at least part
of it. Still waiting to hear back on that. It's nice that the system is
portable, easy to setup and easy to use. 
 

Jim
Lubin  

[EMAIL PROTECTED]
http://makoa.org/jim

disAbility Resources:
http://www.makoa.org
Please Help: Inkjet & Toner
Cartridge Recycling 
At 05:20 PM 4/16/2006, [EMAIL PROTECTED] wrote:
Hi Everyone,
 
I am a C5/6 complete quad.I cannot transfer without help.Can you share
how you exactly do it.I have no triceps and weight with the quad
belly.Thanks,Paul

RE: [QUAD-L] leg spazams

2006-04-17 Thread Eric W Rudd

Baclofen & Dantrium no sides :-p

Eric W Rudd
[EMAIL PROTECTED]

-Original Message-
From: Johnny [mailto:[EMAIL PROTECTED] 
Sent: Monday, April 17, 2006 11:47 AM
To: QUAD-LIST@eskimo.com
Subject: [QUAD-L] leg spazams

Hi friends,
ive been a Quad for bout 30 years [ wow, where does the time go ]. i
have had leg spazams on and off before nothing to bad ,  always deepends
on any infections or if the bowel is too full. But lately they have been
more severe in the legs. My questions is,what meds does anyone take
for spasims, and are there any side effects. thanks Johnny

Johnny

[QUAD-L] leg spazams

2006-04-17 Thread Johnny

Hi friends,
ive been a Quad for bout 30 years [ wow, where does the time go ].
i have had leg spazams on and off before nothing to bad ,  always deepends on 
any infections or if the bowel is too full.
But lately they have been more severe in the legs.
My questions is,what meds does anyone take for spasims, and are there any 
side effects.
thanks
Johnny

Johnny

Re: [QUAD-L] broken leg Dr. wrong?

2006-04-17 Thread Oconnelldb





I disagree with giving this Dr. another chance.  Some times Drs get 
too busy to do what needs doing for each patient under their care, some just 
aren't savvy at personal relations at all, and some are just plain incompetent 
(oh yes - and most are smart, competent and very 
capable.).   It's tough that you and I who have never been to 
medical school have the responsibility of policing the medical community to 
guarantee our own safety.  When I find that a Dr just isn't making common 
sense decisions or is blowing me off because of their busy schedule, I switch as 
soon as I can.  Drs seem to be a dime a dozen these days and there is only 
yourself to blame for staying with one who doesn't provide you with satisfactory 
care.  Us in the spinal injury crowd have special needs with which 
most doctors aren't well versed.  It turns out that all too often WE end up 
teaching the doctors more than they teach us.  This is a tough job to do 
correctly but keep in mind that success is the primary goal and anything WE can 
do to help THEM keep us healthy serves all purposes well.  (I am especially 
impressed with Lori's bug knowledge - you go girl!)  Best of luck with your 
broken bones and doctors River, I know you can get things right if you put your 
all into it.
Dave
 
 
 
In a message dated 4/15/2006 5:19:10 P.M. US Mountain Standard Time, 
[EMAIL PROTECTED] writes:

  
  Dear River, 
  Broken bones and fractures in areas that we can't feel are tricky. There 
  really isn't a hurry especially after the 1st 24 hours. If it isn't causing AD 
  then there is little any doctor can do that will improve how it heals. Keep 
  weight off of it and try not to agrevate it. Watch your urinary output.(my 
  kidneys began shutting down after a more serious fracture to my left 
leg)
  I like doctors that are brutally honest. Changing doctors usually won't 
  help. You do need to improve communications with your doctors. Express your 
  concerns and be sure there is no risk of loosing the leg. In 1992 a series of 
  x-rays showed that I had repeatedly fractured the bone just below the knee in 
  the mantal area. Nine separate fractures of different ages were visable and 
  none were completely healed. 
  Your body isn't going to heal it very well anyway. Bones grow spurs where 
  you don't want them and those fractures may not heal right no matter who you 
  see or when. 
  To anyone reading this, our bones are often like chalk. They break very 
  easily and prevention is the only way to address the problem. I have actual 
  "foot" plates that protect my toes from hooking on corners and twisting my 
  legs. The "heel"plates on most wheelchairs are not enough. 
  The important thing for you now is to be sure the bone stays healthy and 
  don't reinjure it. I know how frustrating it is but ask your doctor for 
  something for the anxiety, calm down. These heal like bedsores. Ask her what 
  you can do. I think your doctor was trying to keep you from getting too upset 
  by being nonchalant about it. Discuss your feelings with her. 
  I do hope it heals well. I wish you the very best. 
  These hurdles can help develope a better relationship with your doctor. 
  Avoid loosing your temper and remember, you are a tough case. Your doctor has 
  to treat all of you, not just your leg. She obviously feels you doing what can 
  be done. 
  I placed electro magnets beside my knee. (home made using rechargable 
  AA's, 6 volts on each side.) Can't really tell if it helped, but it was my own 
  way to feel less helpless.
   
  john C-5 complete, post 30 years. 
   
  In a message dated 4/15/2006 6:25:29 PM Eastern Daylight Time, 
  [EMAIL PROTECTED] writes:
  
Hi 
everyone,

I'll try to keep 
this short. I recently broke my leg and 4th metatarsal. I didn't know I had 
broken them until two or three days after it happened. My foot was black and 
blue and my leg was swollen more than usual. I called my Dr. and she fit me 
in that day. She saw my leg and sent me to have an x-ray and venous doppler 
(blod clot test) that afternoon. I had both tests and was released. I asked 
about the x-ray and was informed that since my Dr. hadn't ordered a "wet 
read" the results would be sent to her in 3-5 days. I was a bit puzzled - 
what if my leg was broken? I was told that the x-ray wouldn't be read that 
night. The doppler was negative. I went home and thought maybe the Dr. would 
hear the results if it was broken but no one called me that night. The next 
day I called the Dr. on call (before the practice opened) and it was my Dr. 
I left a msg on her cell about what had happened. It was her day off that 
day. She never called me and again I was puzzled but assumed that it was ok 
since I heard from no one. But in the back of my mind I knew something had 
to be wrong for my leg to so swollen and my foot so bruised. Next day I 
called as soon as the practice opened a

[QUAD-L] broken leg Dr. wrong?