[QUAD-L]
hi guys you,ve been very helpful and nice,but i would like to unsubscribe from the list now! thank you very much!
Re: [QUAD-L]
Helpful n nice ?? Is that all? Anyway, you have my permission. Eric will advise you how to do it. He is also very helpful and nice. Best Wishes In a message dated 4/26/2010 4:21:38 A.M. Central Daylight Time, mekall...@abv.bg writes: hi guys you,ve been very helpful and nice,but i would like to unsubscribe from the list now! thank you very much!
Re: [QUAD-L]
List-Unsubscribe: mailto:quad-list-requ...@eskimo.com?subject=unsubscribe Eric W Rudd c5sc...@gmail.com - Original Message - From: kalin iordanov To: quad-list@eskimo.com Sent: Monday, April 26, 2010 4:21 AM Subject: [QUAD-L] hi guys you,ve been very helpful and nice,but i would like to unsubscribe from the list now! thank you very much!
[QUAD-L] Pen Holder
Those of you that use pen holders, what kind do you use and where did/do you get it? Dan
Re: [QUAD-L] Pen Holder
The best thing I ever found is the Wanchick Writer It will hold a pen or pencil in a real natural position. Plus it is the best thing for holding forks and spoons. I just tape my fork on it. They are not cheap, but very good. I could never use the universal velcro cuff for anything but typing. http://www.allegromedical.com/$28 http://www.amazon.com/$29 Greg Those of you that use pen holders, what kind do you use and where did/do you get it? Dan
RE: [QUAD-L] Quadriplegic needing employment ideas
The computer is a great leveler of the playing field of employment. Personally I been occupied in the field of Information Technology. Generally, I have done technical support and network administration. But this has included designing and managing network projects, managing teams of people, and anything else that computer use presents. I have always responded to similar questions and in conversations with any person with a disability in this way: Do not let others limit your future based on their presumptions of what you are capable of. I've known people with far worse disabilities than my own do far more than I would have ever expected they were capable. From: Ismael [mailto:ismael.cava...@att.net] Sent: Saturday, April 24, 2010 8:21 PM To: quad-list@eskimo.com Subject: [QUAD-L] Quadriplegic needing employment ideas I have a friend who is quadriplegic and wants to know what types of jobs that he can do through the computer. Does anyone have any ideas? Thank you.
[QUAD-L] new to group with lots of questions
Hi, I was walking with my children 2 yrs ago was struck by a teen who went off the road struck me as I was bent over. I am c4, 5 6 incomplete with feeling to the toes, just very altered sensation. I was in the hospital for almost 1 yr. I use a manual chair to amazement, I have bladder sensation bowels. Although I have my share of spasms (I take 10mg ditropn b.i.d), leakages at night and my bowels respond every 2-3 days with no added help. Pre-accident was normally every day. I have lots of tone/spasticity in L. leg am considering baclofen pump. I only take 20mg now of baclofen which does nothing. Any higher dose tires me liver function tests go abnormal. I am hooked on 25mcg fentanyl patches q48 hrs and still have pain. I refuse to add more meds. I do not ever sleep for more than an hr. every night. Waking in the a.m. is horrible - never used to be. I want to wean off fentanyl. Since I transfer to toilet with the transfer board (lots of work), I would love to find pants that help b/c I can't pull them up under me. This injury has caused our world to turn upside down some days it is so overwhelming. My kids keep me going God's healing. I feel like I'm the only mom in the world going thru this. At the time of the accident, I was 5wks from grad. college (RN). Since then, I graduated passed boards. Now what I LOVE nursing it's not easy to find it from a w/c. If I am assisted to stand, I can hold a walker for 5-10 mins a few steps - left leg hinders advancing it so dr. wants me to consider pump. I have great use of my dominant hand arm, left fingers are closed. Anyway, I could go on forever, so thanks for listening.
Re: [QUAD-L] new to group with lots of questions
Welcome to the list Karen. I know there are many people here who can give you better advice than me, so I'll let them chime in whenever they feel the need. As for a baclofen pump, I wouldn't go that route until you have exhausted other spasticity medication. Almost all of them leave you somewhat fatigued, but I have been able to function pretty well on a lot more spasticity medications than you have mentioned. Talk to your doctor about all the other options available. A baclofen pump should be a last resort. At least in my opinion. Quadius On Mon, Apr 26, 2010 at 7:58 PM, karan alexander kabea...@optonline.netwrote: Hi, I was walking with my children 2 yrs ago was struck by a teen who went off the road struck me as I was bent over. I am c4, 5 6 incomplete with feeling to the toes, just very altered sensation. I was in the hospital for almost 1 yr. I use a manual chair to amazement, I have bladder sensation bowels. Although I have my share of spasms (I take 10mg ditropn b.i.d), leakages at night and my bowels respond every 2-3 days with no added help. Pre-accident was normally every day. I have lots of tone/spasticity in L. leg am considering baclofen pump. I only take 20mg now of baclofen which does nothing. Any higher dose tires me liver function tests go abnormal. I am hooked on 25mcg fentanyl patches q48 hrs and still have pain. I refuse to add more meds. I do not ever sleep for more than an hr. every night. Waking in the a.m. is horrible - never used to be. I want to wean off fentanyl. Since I transfer to toilet with the transfer board (lots of work), I would love to find pants that help b/c I can't pull them up under me. This injury has caused our world to turn upside down some days it is so overwhelming. My kids keep me going God's healing. I feel like I'm the only mom in the world going thru this. At the time of the accident, I was 5wks from grad. college (RN). Since then, I graduated passed boards. Now what I LOVE nursing it's not easy to find it from a w/c. If I am assisted to stand, I can hold a walker for 5-10 mins a few steps - left leg hinders advancing it so dr. wants me to consider pump. I have great use of my dominant hand arm, left fingers are closed. Anyway, I could go on forever, so thanks for listening.
Re: [QUAD-L] Unidentified subject!
I've been using my new Permobile rear wheel drive C350 for about seven weeks now and I have finally gotten used to the Magitek enough to be able to drive it at full speed in my community now. I don't try it on the sidewalks, but I'd definitely use the roads (one of the perks to living in a very small community). Right now my chair only does around 5 mph, but I can probably turn it up some. I do, however, think the Magitek dampens down the ability to drive to much faster than 6 or 7 mph. BTW, it took me quite a while to get used to the magitek. In fact, I still mess up at least a couple of times a day, but I'm getting better every day. Switching over from the Peachtree was a lot more difficult than I thought it would be, a chin control would have been a little too hard for me to use. That's just me though, there are more people using chin controls than magitek. I didn't realize until a couple of weeks after I started using the new chair that the magitek forces me to use a few different muscles in the shoulder and neck then I was using with the Peachtree. Q On Sun, Apr 25, 2010 at 11:26 PM, Joan Anglin poaj...@sbcglobal.net wrote: That is why I chose to go with the chin controller mounted on the collar around my neck. I really have excellent control and it cannot bounce away from me. I was warned that the sip and puff would have problems in our Reno climate. Plus I could not see myself bouncing around on a dirt road trying to hang on to something in my mouth. :-) I don't usually go very fast-6-7 miles per hour is about my limit. I often have one, two, or three grandchildren on or about my chair. The omega trac can have the hitch installed on the back so you can pull the garden cart. We just hook that cart onto the back and off we go. Great fun. Joan
[QUAD-L] Magitek
I just spent some time looking at Magitek. I know nothing about this, and their website does not show how it is used. Would you mind explaining how it works and how you utilize it? I notice the website is woefully not up to date. J I sometimes complain that my neck and shoulders hurt, and why does it have to be the part that I feel that hurts-course the rest of my body might hurt worse when I just can't feel it. LOL Joan In the reno's very undecided spring weather-75 yesterday, 46 for Wednesday and snow how great it is!