Re: [QUAD-L] Question for the ladies
In a message dated 7/9/2011 12:06:42 AM Eastern Daylight Time, wheelch...@aol.com writes: Thanks Dianna. I've had a few discussions with OB/GYN and Fertility Specialist and some theory of pregnancy with a bacteria infection or UTI. Somehow, it still happens. I don't understand, but accept that which was offered. Best Wishes I meant sex hasn't caused me to have a uti. Infections are surley possible w/the foley. Are we on the same page!??! :-) At any rate, I hope the poster finds her answer.
Re: [QUAD-L] burning sensation in bladder
hi, Quadius--I use latex also--they are more flexible than the stiffer silicone ones. Yes, if you did not have a lot of sediment, it is probably stones, I had a large one removed 4 1/2 years ago. If you get stopped due to any stonesjust have your caregiver slightly move the catheter out a bit or flush. Dan H. From: Quadius To: Dave Krehbiel Cc: Dollbug ; quad-list@eskimo.com Sent: Fri, July 8, 2011 3:38:39 PM Subject: Re: [QUAD-L] burning sensation in bladder Sorry I didn't mention this sooner, but I have a suprapubic catheter which is Latex, but I am allergic to silicone catheters. Whenever I have a silicone catheter in my bladder it spasms so bad that I'm not able to do anything.Hopefully by Tuesday I'll be able to figure out what's going on. Today the catheter clogged and when we cleared it there was not one bit of sediment. I really think there are some stones in there. Thanks for the feedback. Quadius On Thu, Jul 7, 2011 at 6:47 PM, Dave Krehbiel wrote: I am sorry to hear about these problems you're having. > >The only thing I can think of is... is this a latex catheter? Could you be >allergic to latex? > >Dave > >From:Quadius [mailto:quad...@gmail.com] >Sent: Thursday, July 07, 2011 6:41 PM >To: Dollbug >Cc: quad-list@eskimo.com >Subject: Re: [QUAD-L] burning sensation in bladder > >Sorry I am responding so late, but I have been having several complications >because of a terrible burning in my bladder. I have been experiencing this >problem since September of last year. The doctors seem to think it is caused >by >my catheter rubbing up against the back of my bladder. I have tried to tether >the catheter to my abdomen so it won't rub up against the back, but I still >have >a burning sensation, most likely caused because the catheter is to taut. > >I have been able to take some medication which has helped significantly with >the >burning pain, but I have noticed that when I am sitting more upright in my >wheelchair the burning pain is definitely exacerbated. Therefore I have been >opening the hip angle of my chair using my recline feature on my wheelchair. >This has helped, but I have been spending too much of my time till to back >because of the pain and ended up getting a pressure ulcer just above my tail >bone. > >After nine days in bed to remedy this problem, I developed a problem with my >lungs and almost had to be hospitalized for a lengthy stay because of >pneumonia. I'm on the road to recovery and have a cystoscopy (I think that's >the name for it) scheduled on July 12. I also suspect there might be some >stones floating around in my bladder, but they have not shown on sonograms or >CAT scans as of yet. > > >As for the medication that helps, I can't recall the name right now, but it >does >have its limitations. It can only be taken for a couple of days at a time, >however, it does enable me to do things except sit around the house in misery. >Take care and I'll hope your son is able to remedy a situation soon. >Quadius >On Wed, Jun 15, 2011 at 2:00 AM, Dollbug wrote: >My 24 yr old son has been a quad almost 3 yrs. He got a super pubic catheter >about 6 months after he became a quad. He started to get a horrible burning >pain almost 24/7 around his bladder about 3 months ago. He has had burning >before but never this bad. They found he had bladder stones, did laser surgery >about a month ago and some came out. More pieces have come out in urine since >surgery. The urologist told him the burning pain would never go away though. >Has >anyone had this and if so do you still have the horrible pain? How do you >deal >with it? He is beside himself and is ready to end his life - please help. > >Bless you, >Connie >
Re: [QUAD-L] burning sensation in bladder
Sorry I didn't mention this sooner, but I have a suprapubic catheter which is Latex, but I am allergic to silicone catheters. Whenever I have a silicone catheter in my bladder it spasms so bad that I'm not able to do anything. Hopefully by Tuesday I'll be able to figure out what's going on. Today the catheter clogged and when we cleared it there was not one bit of sediment. I really think there are some stones in there. Thanks for the feedback. Quadius On Thu, Jul 7, 2011 at 6:47 PM, Dave Krehbiel wrote: > I am sorry to hear about these problems you're having. > > ** ** > > The only thing I can think of is... is this a latex catheter? Could you be > allergic to latex? > > ** ** > > Dave > > ** ** > > *From:* Quadius [mailto:quad...@gmail.com] > *Sent:* Thursday, July 07, 2011 6:41 PM > *To:* Dollbug > *Cc:* quad-list@eskimo.com > *Subject:* Re: [QUAD-L] burning sensation in bladder > > ** ** > > Sorry I am responding so late, but I have been having several complications > because of a terrible burning in my bladder. I have been experiencing this > problem since September of last year. The doctors seem to think it is > caused by my catheter rubbing up against the back of my bladder. I have > tried to tether the catheter to my abdomen so it won't rub up against the > back, but I still have a burning sensation, most likely caused because the > catheter is to taut. > > I have been able to take some medication which has helped significantly > with the burning pain, but I have noticed that when I am sitting more > upright in my wheelchair the burning pain is definitely exacerbated. > Therefore I have been opening the hip angle of my chair using my recline > feature on my wheelchair. This has helped, but I have been spending too > much of my time till to back because of the pain and ended up getting a > pressure ulcer just above my tail bone. > > After nine days in bed to remedy this problem, I developed a problem with > my lungs and almost had to be hospitalized for a lengthy stay because of > pneumonia. I'm on the road to recovery and have a cystoscopy (I think > that's the name for it) scheduled on July 12. I also suspect there might be > some stones floating around in my bladder, but they have not shown on > sonograms or CAT scans as of yet. > > > As for the medication that helps, I can't recall the name right now, but it > does have its limitations. It can only be taken for a couple of days at a > time, however, it does enable me to do things except sit around the house in > misery. > Take care and I'll hope your son is able to remedy a situation soon. > Quadius > > On Wed, Jun 15, 2011 at 2:00 AM, Dollbug wrote: > > My 24 yr old son has been a quad almost 3 yrs. He got a super pubic > catheter about 6 months after he became a quad. He started to get a > horrible burning pain almost 24/7 around his bladder about 3 months ago. He > has had burning before but never this bad. They found he had bladder stones, > did laser surgery about a month ago and some came out. More pieces have come > out in urine since surgery. The urologist told him the burning pain would > never go away though. Has anyone had this and if so do you still have the > horrible pain? How do you deal with it? He is beside himself and is ready > to end his life - please help. > > > > Bless you, > > Connie > > ** ** >
Re: [QUAD-L] Question for the ladies
For a limited few,(and I mean few) it can be done. But consider all the bacteria in that area plus and friction causing internal abrasion and further infections. Surprising, you are not the first to ask or inquire. I've heard of partners catching an infection from a partner or spouse who had a budding infection and didn't realize it. A SP, helps with having sex as it clears the way with no obstructions. Best Wishes In a message dated 7/8/2011 11:06:41 A.M. Central Daylight Time, scaryide...@yahoo.com writes: How hard is it for any of you ladies to have sex with a Foley still in? I'm getting quite discouraged.
[QUAD-L] iBility Stick for Touchscreen Devices
For quads who have wanted to utilize an iPad, iPhone, or other tablet or smartphone touchscreen device but have been unable to or unsure as to how to do so, there is at least one solution available. It's called the iBility Stick. You can learn more about it at: https://www.facebook.com/pages/IBilityStick/112730578809399 Steve - C4, 23 years
Re: [QUAD-L] burning sensation in bladder
Have you tried a Foley just to see if it makes a difference as the cath's balloon would be located in a different location. Dan At 06:40 PM 7/7/2011, Quadius said something that elicited my response: Sorry I am responding so late, but I have been having several complications because of a terrible burning in my bladder. I have been experiencing this problem since September of last year. The doctors seem to think it is caused by my catheter rubbing up against the back of my bladder. I have tried to tether the catheter to my abdomen so it won't rub up against the back, but I still have a burning sensation, most likely caused because the catheter is to taut. I have been able to take some medication which has helped significantly with the burning pain, but I have noticed that when I am sitting more upright in my wheelchair the burning pain is definitely exacerbated. Therefore I have been opening the hip angle of my chair using my recline feature on my wheelchair. This has helped, but I have been spending too much of my time till to back because of the pain and ended up getting a pressure ulcer just above my tail bone. After nine days in bed to remedy this problem, I developed a problem with my lungs and almost had to be hospitalized for a lengthy stay because of pneumonia. I'm on the road to recovery and have a cystoscopy (I think that's the name for it) scheduled on July 12. I also suspect there might be some stones floating around in my bladder, but they have not shown on sonograms or CAT scans as of yet. As for the medication that helps, I can't recall the name right now, but it does have its limitations. It can only be taken for a couple of days at a time, however, it does enable me to do things except sit around the house in misery. Take care and I'll hope your son is able to remedy a situation soon. Quadius The greatest transgression of war is making heroes of our children.
[QUAD-L] Question for the ladies
How hard is it for any of you ladies to have sex with a Foley still in? I'm getting quite discouraged.
