Re: [QUAD-L] Its Not About The Number Of Years...
Hi Greg , I'm so sorry to hear about the experience of your grandmother. I encourage everybody to write about the new labor laws that drastically affect people on self-directed care. It will cut The Number of Hours a Caregiver Can Work. Caregivers have to work extra hours, because Of the Difficulty of finding people who will work for the hourly rate paid for the caregivers on state programs. States Do Not have the money to pay time and a half. This is Really an important issue To contact your legislators about. These laws have been waived in the past reguarding consumer directed care programs. Does this affect their anyone else on the Quad-list? Dana Sent from my iPhone On Sep 18, 2013, at 11:18 PM, RONALD L PRACHT wrote: > I agree, if you live to be 90 sitting in a nursing home, unable to get a > drink of waterwaiting to die, life can be worse than death itself. My > grandma just died in a nursing home at 89 yrs old of thirst. they wouldnt > even give her drinks of water throughout the day. Imagine the hell of that, > with a pitcher sitting on the table near you. People will save a rabies > infested dog quicker than they would help an old personthe > world is getting sick. There has to be a better way to deal with old and > disabled folks without family support. I told my mom, can you imagine if you > put a hidden camera in each room at nursing homes. She said that wouldnt work > because every attendent and nurse would be fired, lol. > > Ron > > From: "wheelch...@aol.com" > To: quad...@gmail.com; r.pra...@sbcglobal.net > Cc: quad-list@eskimo.com > Sent: Wednesday, September 18, 2013 8:09 PM > Subject: [QUAD-L] Its Not About The Number Of Years... > > Its Not About The Number Of Years you get. Its all about how you spend those > hours, minutes and seconds. Enjoy life to your fullest. > Best Wishes > > In a message dated 9/18/2013 5:03:14 P.M. Central Daylight Time, > quad...@gmail.com writes: > I had no idea that Dave passed away. Now I'm bummed out. I'm glad he had a > wonderful life. > > > > > >
Re: [QUAD-L] Its Not About The Number Of Years...
I agree, if you live to be 90 sitting in a nursing home, unable to get a drink of waterwaiting to die, life can be worse than death itself. My grandma just died in a nursing home at 89 yrs old of thirst. they wouldnt even give her drinks of water throughout the day. Imagine the hell of that, with a pitcher sitting on the table near you. People will save a rabies infested dog quicker than they would help an old personthe world is getting sick. There has to be a better way to deal with old and disabled folks without family support. I told my mom, can you imagine if you put a hidden camera in each room at nursing homes. She said that wouldnt work because every attendent and nurse would be fired, lol. Ron From: "wheelch...@aol.com" To: quad...@gmail.com; r.pra...@sbcglobal.net Cc: quad-list@eskimo.com Sent: Wednesday, September 18, 2013 8:09 PM Subject: [QUAD-L] Its Not About The Number Of Years... Its Not About The Number Of Years you get. Its all about how you spend those hours, minutes and seconds. Enjoy life to your fullest. Best Wishes In a message dated 9/18/2013 5:03:14 P.M. Central Daylight Time, quad...@gmail.com writes: I had no idea that Dave passed away. Now I'm bummed out. I'm glad he had a wonderful life. > > > > >
Re: [QUAD-L] I'm 60 years old today
Thank you So much for the information it was so correct. To remember our Quad-list members who have passed and appreciate their lives And what they shared with us . Dana Sent from my iPhone On Sep 18, 2013, at 2:37 AM, RONALD L PRACHT wrote: > I was told in 98 when I was 21 to expect to live 20 yrs past the point of > injury. They told me this was good considering b4 ww2 people with spinal > injuries lived about 2 yrs post. I realized this was probally bullshit at the > time. How long a quad lives depends on so many factors its unreal. > Realisticly, I believe if I do a good job with myself, I think for me being > 21 at injury, c6-7, taking pretty good care of myselfI should reach > 60 yrs old..40 yrs post injury b4 my death. There are so many things to > get you as a quad thoughskin breakdown, pnemonia, blood clots, > getting run over, caregiver abuse, depression, obesity, cancer, just plain > bad luck.and 1000 more. The main factor is at what age you receive > your injury, obviously if your 50 when you get paralyzed your chances at > living old are greater.I think Dave Occonnel was the poster child for > quadom.he got it at 17 on a balance beam showing off for some > girlshe was a teacher many years, then worked at some big company on > computers forever, had a family, kids, housemany cars. I remember him > telling me his first car was a 67 caddillac. He lived life, had plenty of > love and took pretty good care of himself. I think he was 64 upon his passing. > > Ron > > From: Dana Wray > To: greg > Cc: "" > Sent: Tuesday, September 17, 2013 11:43 PM > Subject: Re: [QUAD-L] I'm 60 years old today > > > Hi Greg, > So you celebrate your anniversary as your birthday? I guess I like to > celebrate both occasions. Saw post on the Quad-list on Facebook about the > oldest living Quadriplegic, 86 years I think. > Tried to click on it but there was no story about her. > > Does anyone know her story? > Dana > Sent from my iPhone > > On Sep 17, 2013, at 6:11 PM, greg wrote: > >> I'm 49 and 32 years post. I always feel like my birthday is my accident date >> now. >> Greg >> >> > Belated congratulations on your birthday. I myself am 49 and 18 >> > years post. I'm hoping to make it to 80. > >
[QUAD-L] Its Not About The Number Of Years...
Its Not About The Number Of Years you get. Its all about how you spend those hours, minutes and seconds. Enjoy life to your fullest. Best Wishes In a message dated 9/18/2013 5:03:14 P.M. Central Daylight Time, quad...@gmail.com writes: I had no idea that Dave passed away. Now I'm bummed out. I'm glad he had a wonderful life.
Re: [QUAD-L] new Ironside series
It might make it, but I didn't really care for it too much. On Tue, Sep 17, 2013 at 7:35 PM, Ben Mattlin wrote: > Any of you guys catch this? It's the pilot episode of the new series > about a paraplegic badass cop (the reboot of the 1960s-70s series), online > before it airs on NBC. Opinions? > > ** ** > > http://www.nbc.com/ironside/video/pilot/n40076 > > __ > > Ben Mattlin > > www.BenMattlin.com > > www.MiracleBoyGrowsUp.com > > ** ** >
Re: [QUAD-L] I'm 60 years old today
I had no idea that Dave passed away. Now I'm bummed out. I'm glad he had a wonderful life. On Wed, Sep 18, 2013 at 3:37 AM, RONALD L PRACHT wrote: > I was told in 98 when I was 21 to expect to live 20 yrs past the point of > injury. They told me this was good considering b4 ww2 people with spinal > injuries lived about 2 yrs post. I realized this was probally bullshit at > the time. How long a quad lives depends on so many factors its unreal. > Realisticly, I believe if I do a good job with myself, I think for me being > 21 at injury, c6-7, taking pretty good care of myselfI should reach > 60 yrs old..40 yrs post injury b4 my death. There are so many things to > get you as a quad thoughskin breakdown, pnemonia, blood clots, > getting run over, caregiver abuse, depression, obesity, cancer, just plain > bad luck.and 1000 more. The main factor is at what age you receive > your injury, obviously if your 50 when you get paralyzed your chances at > living old are greater.I think Dave Occonnel was the poster child for > quadom.he got it at 17 on a balance beam showing off for some > girlshe was a teacher many years, then worked at some big company > on computers forever, had a family, kids, housemany cars. I > remember him telling me his first car was a 67 caddillac. He lived life, > had plenty of love and took pretty good care of himself. I think he was 64 > upon his passing. > > Ron > >*From:* Dana Wray > *To:* greg > *Cc:* "" > *Sent:* Tuesday, September 17, 2013 11:43 PM > *Subject:* Re: [QUAD-L] I'm 60 years old today > > > Hi Greg, > So you celebrate your anniversary as your birthday? I guess I like to > celebrate both occasions. Saw post on the Quad-list on Facebook about the > oldest living Quadriplegic, 86 years I think. > Tried to click on it but there was no story about her. > > Does anyone know her story? > Dana > Sent from my iPhone > > On Sep 17, 2013, at 6:11 PM, greg wrote: > > I'm 49 and 32 years post. I always feel like my birthday is my accident > date now. > Greg > > > Belated congratulations on your birthday. I myself am 49 and 18 > > years post. I'm hoping to make it to 80. > > > >
RE: [QUAD-L] I'm 60 years old today
I also celebrate both, I figure that I have earned the right to have more than one celebration per year. J I try very hard to live in a healthy manner up to a point. There are certain things I'm not giving up, brandy, Rum, wine, Margaritas, Irish whiskey, Kahlua,--oh, you guys were talking about healthy living, let me see, darn, I can't think of anything. LOL. I'm always reminded of the story of a little couple who were in their nineties, really into organic food, working out, and generally living an exemplary life with church and volunteering. On the way home from church one day they were T-boned by a large truck and died on the scene. They immediately found themselves in front of Saint Peter and the Pearly Gates, who gave them a warm welcome an escorted them to their new home. He told the husband that he knew he loved golf, so their new home was on a golf course. The husband asks "what is this going to cost me" and Saint Peter replies "nothing, you have earned this, you're in Heaven now". The next morning the husband gets up, plays nine holes of golf and sits down to a beautiful breakfast. Saint Peter comes to see how they are settling in, and the husband asks "what is this going to cost me" and Saint Peter replies "nothing, you have earned this, you're in Heaven now" the husband raises his eyebrows but says nothing. Later in the afternoon after a nice long nap, Saint Peter appears and asks if they would like to go visit those who had gone before them. They eagerly agreed and went outside to find a beautiful Mercedes convertible, lovely sunshine, and of course the perfect amount of breeze to keep it cool. The old man goes over to the car, checks out the leather seats, turns and asks Saint Peter "what is this going to cost me"? Saint Peter replies "nothing, you have earned this, you're in Heaven now". The old man turns to his wife, kicks her in the butt and she falls down to her knees. She looks up at him and says "what was that for?" The old man replies "If it wasn't for your damn healthy food, and perfect life we could've been here many years ago". Like others have said I'm going through those pearly gates yelling "WOW, what a ride that was"! I hope you all have a great day, and make somebody laugh as it's contagious. Joan
Re: [QUAD-L] I'm 60 years old today
I've been a quad since 1968 - 45 years and I am 61 years old. Don't limit yourself ... take it day by day. You might be surprised at the number of years you have left!! Dave Oc was a wonderful man. I miss him! From: RONALD L PRACHT To: "quad-list@eskimo.com" Sent: Wednesday, September 18, 2013 3:37 AM Subject: Re: [QUAD-L] I'm 60 years old today I was told in 98 when I was 21 to expect to live 20 yrs past the point of injury. They told me this was good considering b4 ww2 people with spinal injuries lived about 2 yrs post. I realized this was probally bullshit at the time. How long a quad lives depends on so many factors its unreal. Realisticly, I believe if I do a good job with myself, I think for me being 21 at injury, c6-7, taking pretty good care of myselfI should reach 60 yrs old..40 yrs post injury b4 my death. There are so many things to get you as a quad thoughskin breakdown, pnemonia, blood clots, getting run over, caregiver abuse, depression, obesity, cancer, just plain bad luck.and 1000 more. The main factor is at what age you receive your injury, obviously if your 50 when you get paralyzed your chances at living old are greater.I think Dave Occonnel was the poster child for quadom.he got it at 17 on a balance beam showing off for some girlshe was a teacher many years, then worked at some big company on computers forever, had a family, kids, housemany cars. I remember him telling me his first car was a 67 caddillac. He lived life, had plenty of love and took pretty good care of himself. I think he was 64 upon his passing. Ron From: Dana Wray To: greg Cc: "" Sent: Tuesday, September 17, 2013 11:43 PM Subject: Re: [QUAD-L] I'm 60 years old today Hi Greg, So you celebrate your anniversary as your birthday? I guess I like to celebrate both occasions. Saw post on the Quad-list on Facebook about the oldest living Quadriplegic, 86 years I think. Tried to click on it but there was no story about her. Does anyone know her story? Dana Sent from my iPhone On Sep 17, 2013, at 6:11 PM, greg wrote: I'm 49 and 32 years post. I always feel like my birthday is my accident date now. >Greg > > >> Belated congratulations on your birthday. I myself am 49 and 18 >> years post. I'm hoping to make it to 80.
[QUAD-L] Non-UTI Problems Common with Urethral Catheters
http://www.renalandurologynews.com/non-uti-problems-common-with-urethral-catheters/article/311531/# May cause bladder stones if improperly inserted.
Re: [QUAD-L] I'm 60 years old today
I also celebrate both. I saw that on Facebook too ... had to google it: http://www.columbiamissourian.com/a/165418/longest-living-quadriplegic-dies-one-month-before-85th-birthday/ Nan From: Dana Wray To: greg Cc: "" Sent: Wednesday, September 18, 2013 12:43 AM Subject: Re: [QUAD-L] I'm 60 years old today Hi Greg, So you celebrate your anniversary as your birthday? I guess I like to celebrate both occasions. Saw post on the Quad-list on Facebook about the oldest living Quadriplegic, 86 years I think. Tried to click on it but there was no story about her. Does anyone know her story? Dana Sent from my iPhone On Sep 17, 2013, at 6:11 PM, greg wrote: I'm 49 and 32 years post. I always feel like my birthday is my accident date now. >Greg > > >> Belated congratulations on your birthday. I myself am 49 and 18 >> years post. I'm hoping to make it to 80.
Re: [QUAD-L] Tilt Squeal
Sounds like the actuator to me. I've replaced 2 on my old, comfortable chair. If your chair is still under warranty having it replaced shouldn't be an issue. Nan From: greg To: quad-list@eskimo.com Sent: Tuesday, September 17, 2013 7:08 PM Subject: [QUAD-L] Tilt Squeal After I tilt back, as I am coming back up, my chair just squeals loudly. My helper tried spraying all the moving areas with WD40, but it made no difference. She said the noise was coming from the tilt motor. There is no way to get inside it to spray. Do you think it needs lubed some how, or could it be battery related? I know my ceiling lift squeals just like that when it's battery is going dead. But my chair is not dead. Though I know the chair has 2 batteries. Not sure if 1 battery is for the driving and 1 for the tilt and reclining system. Or if they drain from both batteries together at the same time. Do you think I need a new tilt motor or new batteries? If it's batteries, it would probably cost me less to buy them myself at he battery store. Thanks, Greg
Dave (was Re: [QUAD-L] I'm 60 years old today)
Dave worked at Honeywell. Patty, his wife, was a sweetie, too. https://www.facebook.com/davegmail.oconnell Eric W Rudd c5sc...@gmail.com - Original Message - From: RONALD L PRACHT To: quad-list@eskimo.com Sent: Wednesday, September 18, 2013 2:37 AM Subject: Re: [QUAD-L] I'm 60 years old today I was told in 98 when I was 21 to expect to live 20 yrs past the point of injury. They told me this was good considering b4 ww2 people with spinal injuries lived about 2 yrs post. I realized this was probally bullshit at the time. How long a quad lives depends on so many factors its unreal. Realisticly, I believe if I do a good job with myself, I think for me being 21 at injury, c6-7, taking pretty good care of myselfI should reach 60 yrs old..40 yrs post injury b4 my death. There are so many things to get you as a quad thoughskin breakdown, pnemonia, blood clots, getting run over, caregiver abuse, depression, obesity, cancer, just plain bad luck.and 1000 more. The main factor is at what age you receive your injury, obviously if your 50 when you get paralyzed your chances at living old are greater.I think Dave Occonnel was the poster child for quadom.he got it at 17 on a balance beam showing off for some girlshe was a teacher many years, then worked at some big company on computers forever, had a family, kids, housemany cars. I remember him telling me his first car was a 67 caddillac. He lived life, had plenty of love and took pretty good care of himself. I think he was 64 upon his passing. Ron From: Dana Wray To: greg Cc: "" Sent: Tuesday, September 17, 2013 11:43 PM Subject: Re: [QUAD-L] I'm 60 years old today Hi Greg, So you celebrate your anniversary as your birthday? I guess I like to celebrate both occasions. Saw post on the Quad-list on Facebook about the oldest living Quadriplegic, 86 years I think. Tried to click on it but there was no story about her. Does anyone know her story? Dana Sent from my iPhone On Sep 17, 2013, at 6:11 PM, greg wrote: I'm 49 and 32 years post. I always feel like my birthday is my accident date now. Greg > Belated congratulations on your birthday. I myself am 49 and 18 > years post. I'm hoping to make it to 80.
Re: [QUAD-L] I'm 60 years old today
I was told in 98 when I was 21 to expect to live 20 yrs past the point of injury. They told me this was good considering b4 ww2 people with spinal injuries lived about 2 yrs post. I realized this was probally bullshit at the time. How long a quad lives depends on so many factors its unreal. Realisticly, I believe if I do a good job with myself, I think for me being 21 at injury, c6-7, taking pretty good care of myselfI should reach 60 yrs old..40 yrs post injury b4 my death. There are so many things to get you as a quad thoughskin breakdown, pnemonia, blood clots, getting run over, caregiver abuse, depression, obesity, cancer, just plain bad luck.and 1000 more. The main factor is at what age you receive your injury, obviously if your 50 when you get paralyzed your chances at living old are greater.I think Dave Occonnel was the poster child for quadom.he got it at 17 on a balance beam showing off for some girlshe was a teacher many years, then worked at some big company on computers forever, had a family, kids, housemany cars. I remember him telling me his first car was a 67 caddillac. He lived life, had plenty of love and took pretty good care of himself. I think he was 64 upon his passing. Ron From: Dana Wray To: greg Cc: "" Sent: Tuesday, September 17, 2013 11:43 PM Subject: Re: [QUAD-L] I'm 60 years old today Hi Greg, So you celebrate your anniversary as your birthday? I guess I like to celebrate both occasions. Saw post on the Quad-list on Facebook about the oldest living Quadriplegic, 86 years I think. Tried to click on it but there was no story about her. Does anyone know her story? Dana Sent from my iPhone On Sep 17, 2013, at 6:11 PM, greg wrote: I'm 49 and 32 years post. I always feel like my birthday is my accident date now. >Greg > > >> Belated congratulations on your birthday. I myself am 49 and 18 >> years post. I'm hoping to make it to 80.
