Re: [QUAD-L] source for wheelchair friendly clothing
http://www.blvd.com has links under adaptive clothing/men and women, some stuff is a bit costly though From: Dave Krehbiel davekrehb...@earthlink.net To: quad-list@eskimo.com Sent: Monday, October 7, 2013 11:43 AM Subject: [QUAD-L] source for wheelchair friendly clothing Where do you suggest that I look for things like shirts and windbreakers and ponchos designed for folks in wheelchairs? Thanks, Dave Krebbiel
[QUAD-L] anniversary
blah blah blah, 26 years, blah blah. on to the next one... this got me thinking though what i've done in that 26 years, starting from a 17yr old kid... -finished high school with my class -went to college -got a van to drive -drove across country -opened a business (closed a business) -got a computer job -got laid off and rehired 3x -found a better computer job -got married (divorced) -had child -bought house (foreclosed) -found better computer job So now just working and parenting a 10-yr old and up to my ears in debt. I suppose there are a few things I would have done differently! Todd D C6
Re: [QUAD-L] Paralyzed man rescued from burning van
I drove a Quad friend of mine home, years ago, from where we got our vans converted. He needed to drop off his van and of course the keys. When we got over to the key drop-box we realized it was the type one needs to push with one hand the lid open and with the other hand drop the key in the box. After some discussion we decided John would park his chair right next to the drop-box to drop his key and I would park my chair as close to his as possible and reach over to open the lid with one hand while hooking my other hand on the push handles. Well, we BOTH got our Quad fists hands stuck in the drop-box. It was the type of situation where the harder you pull the tighter the trap. After laughing for 10 minutes or so we started trying to figure out how we were going to get help on a Sunday afternoon on the side of a big warehouse building. Oh, BTW it was drizzling lightly. Out of curiosity - what would had all you guys have done in that situation? I'll tell you what we did later. LOL.Bobbie Smile Everyday On Oct 7, 2013, at 10:03 PM, lwillis...@yahoo.com wrote: Don, that very same thing happened to me two years ago, three days before Christmas. I thought I was gonna die for over an hour until some passerby heard me yelling. You better believe I fasten lap and chest belts every time now. Sent from my iPad Begin forwarded message: Resent-From: quad-list@eskimo.com From: Don Price donpric...@yahoo.com Date: October 7, 2013 at 1:42:19 PM EDT To: Todd Daugherty todd.daughe...@gmail.com, quad list quad-list@eskimo.com Subject: Re: [QUAD-L] Paralyzed man rescued from burning van Reply-To: Don Price donpric...@yahoo.com Very lucky guy! I once fell out of my wheelchair inside my full-size van, parked in a store parking lot, engine running, doors closed and radio on. I layed there for almost half an hour before a passer-by heard me yelling for help. He lifted me back into my chair and I thanked him profusely. I was unhurt except for carpet burns all over my face from laying facedown on the floor. It was one of the scariest things I've ever experienced and from that day forward I've always worn a seatbelt while in my chair. This also reminds me of the wheelchair user who survived the Minnesota bridge collapse a few years back. If you haven't seen the picture, check it out here!: http://www.mobilitysupportsystems.com/stories.aspx?a=1 Don. From: Todd Daugherty todd.daughe...@gmail.com To: quad list quad-list@eskimo.com Sent: Monday, October 7, 2013 9:09 AM Subject: [QUAD-L] Paralyzed man rescued from burning van http://www.wsbtv.com/news/news/local/major-crash-causes-big-delays-ga400/nZq9d/ This happened a few miles from my home. A Yaris hit a tractor trailer then hit an Econoline van that was being driven by a paralyzed man. Van caught fire and three guys were able to get him out.
Re: [QUAD-L] source for wheelchair friendly clothing
I have used a military's type of poncho from the very beginning, the main thing you want to do is to keep it from blowing up like over your head. I use a couple metal spring clamps to hold it down in front of me and then tuck the sides under my elbows. Many online retailers and a few local military surplus stores should have them for about $20. From: Dave Krehbiel davekrehb...@earthlink.net To: quad-list@eskimo.com Sent: Monday, October 7, 2013 2:43 PM Subject: [QUAD-L] source for wheelchair friendly clothing Where do you suggest that I look for things like shirts and windbreakers and ponchos designed for folks in wheelchairs? Thanks, Dave Krebbiel
[QUAD-L] Suprapubic catheter question
I had a a scare with autonomic dysreflexia earlier. My blood pressure was 200/111 with a heart rate of 43. Now I'm fine though at133/76 75 but still I'd rather not start my day that way. Luckily my nurse caught before something really bad happened!. My catheter stopped draining last month also... :( Has anyone else had their catheter stop out of the blue even though your output is clear? What do you do to prevent it? I would hate to irrigate more often because I'm at the limit my insurance medi/medi covers. I drink crystal light also..
Re: [QUAD-L] Suprapubic catheter question
The only way mine has ever stopped was due to, sediment buildup-bladder stones or a kink in the line. Be sure your drinking enough also. Dan H** From: Danny Espinoza da...@immortaldesigns.co To: quad-list@eskimo.com Sent: Tuesday, October 8, 2013 2:35 PM Subject: [QUAD-L] Suprapubic catheter question I had a a scare with autonomic dysreflexia earlier. My blood pressure was 200/111 with a heart rate of 43. Now I'm fine though at133/76 75 but still I'd rather not start my day that way. Luckily my nurse caught before something really bad happened!. My catheter stopped draining last month also... L Has anyone else had their catheter stop out of the blue even though your output is clear? What do you do to prevent it? I would hate to irrigate more often because I'm at the limit my insurance medi/medi covers. I drink crystal light also..
RE: [QUAD-L] Suprapubic catheter question
Ya I am I've also left my doctor a message telling him what happened and asked about getting a UA. From: Danny Hearn [mailto:ddh...@sbcglobal.net] Sent: Tuesday, October 08, 2013 1:58 PM To: da...@immortaldesigns.co; quad-list@eskimo.com Subject: Re: [QUAD-L] Suprapubic catheter question The only way mine has ever stopped was due to, sediment buildup-bladder stones or a kink in the line. Be sure your drinking enough also. Dan H** From: Danny Espinoza da...@immortaldesigns.co mailto:da...@immortaldesigns.co To: quad-list@eskimo.com mailto:quad-list@eskimo.com Sent: Tuesday, October 8, 2013 2:35 PM Subject: [QUAD-L] Suprapubic catheter question I had a a scare with autonomic dysreflexia earlier. My blood pressure was 200/111 with a heart rate of 43. Now I'm fine though at133/76 75 but still I'd rather not start my day that way. Luckily my nurse caught before something really bad happened!. My catheter stopped draining last month also... :( Has anyone else had their catheter stop out of the blue even though your output is clear? What do you do to prevent it? I would hate to irrigate more often because I'm at the limit my insurance medi/medi covers. I drink crystal light also..
[QUAD-L] door motor
I have a 2002 dodge grand caravan ims rampvan conversion. door motor went out and it's 1225.00 for the new one. my dad thinks I can go online and get it cheaper.curious if anyone ever has. I know wheelchair has to know J nickii c5/6
[QUAD-L] bed question
Just browsing for a better bed... Anyone know a way to raise and lower an entire queen sized bed? The flexfit plus that sleep number sells only does the head and foot of the bed because I need that functionality. Also my current mattress is a rotating pressure mattress to prevent bed sores. What is everyone's thought on sleep number beds? I currently have a hospital bed that can raise and lower the head, foot and entire bed. I've been sleeping in an adjustable hospital bed for the last seven and a half years and would really like a bigger bed that isn't a little hospital bed.
Re: [QUAD-L] door motor
I dont have a dodge van. I have found door motors for my chevy express, gmc safari and ford e150 by cross referencing the numbers online and then ordering the motor either from ebay or advanced auto. I got my last motor on ebay for 26.00. It depends if your caravan came with the door motor from the factory or its an older van that still has a power window motor running it. I believe on an 02 its not a factory option. The first step is pull the door panel off and remove the motor to look for the part number. All my vans the door motor is actually just a power window motor made to operate a door. Once the motor ia removed look for a part number. Then remember there is a left side motor or right side..thats easy to determine. Go online and order the motor. If you get the motor out , I can help you locate the number. Ron From: nichole rohling zoocr...@windstream.net To: quad-list@eskimo.com Sent: Tuesday, October 8, 2013 5:20 PM Subject: [QUAD-L] door motor I have a 2002 dodge grand caravan ims rampvan conversion. door motor went out and it’s 1225.00 for the new one. my dad thinks I can go online and get it cheaper…curious if anyone ever has. I know wheelchair has to know J nickii c5/6
Re: [QUAD-L] door motor
I paid closer to 1,500.00 Meredith - Original Message - From: nichole rohling zoocr...@windstream.net To: quad-list@eskimo.com Sent: Tuesday, October 8, 2013 3:20:58 PM Subject: [QUAD-L] door motor I have a 2002 dodge grand caravan ims rampvan conversion. door motor went out and it’s 1225.00 for the new one. my dad thinks I can go online and get it cheaper…curious if anyone ever has. I know wheelchair has to know J nickii c5/6
Re: [QUAD-L] bed question
I just bought an Easy Rest queen size that has the functions your describing. Head and knees AND bed has the Hi Low function. Bobbie Smile Everyday On Oct 8, 2013, at 7:10 PM, Danny Espinoza da...@immortaldesigns.co wrote: Just browsing for a better bed... Anyone know a way to raise and lower an entire queen sized bed? The flexfit plus that sleep number sells only does the head and foot of the bed because I need that functionality. Also my current mattress is a rotating pressure mattress to prevent bed sores. What is everyone’s thought on sleep number beds? I currently have a hospital bed that can raise and lower the head, foot and entire bed. I’ve been sleeping in an adjustable hospital bed for the last seven and a half years and would really like a bigger bed that isn’t a little hospital bed…
Re: [QUAD-L] door motor
Have you tried the bone yard? Best Wishes In a message dated 10/8/2013 5:21:24 P.M. Central Daylight Time, zoocr...@windstream.net writes: I have a 2002 dodge grand caravan ims rampvan conversion. door motor went out and it’s 1225.00 for the new one. my dad thinks I can go online and get it cheaper…curious if anyone ever has. I know wheelchair has to know J nickii c5/6
Re: [QUAD-L] door motor
I don't believe IMS made door motors. It was a vendor'd item purchased from a company that made motors, for them and other companies. Is it a Delco motor? Best Wishes In a message dated 10/8/2013 6:33:53 P.M. Central Daylight Time, jume9...@comcast.net writes: I paid closer to 1,500.00 Meredith From: nichole rohling zoocr...@windstream.net To: quad-list@eskimo.com Sent: Tuesday, October 8, 2013 3:20:58 PM Subject: [QUAD-L] door motor I have a 2002 dodge grand caravan ims rampvan conversion. door motor went out and it’s 1225.00 for the new one. my dad thinks I can go online and get it cheaper…curious if anyone ever has. I know wheelchair has to know J nickii c5/6
Re: [QUAD-L] door motor
I looked it up and it seems as though an 02 dodge has a factory power sliding door. You can read all about it on the dodge caravan forums. The motor needs to be pulled out and tested, then go from there. Tons of people are going through this issue. All my vans had added on power doors, but its the same principle. Ron From: wheelch...@aol.com wheelch...@aol.com To: jume9...@comcast.net; quad-list@eskimo.com Sent: Tuesday, October 8, 2013 8:17 PM Subject: Re: [QUAD-L] door motor I don't believe IMS made door motors. It was a vendor'd item purchased from a company that made motors, for them and other companies. Is it a Delco motor? Best Wishes In a message dated 10/8/2013 6:33:53 P.M. Central Daylight Time, jume9...@comcast.net writes: I paid closer to 1,500.00 Meredith From: nichole rohling zoocr...@windstream.net To: quad-list@eskimo.com Sent: Tuesday, October 8, 2013 3:20:58 PM Subject: [QUAD-L] door motor I have a 2002 dodge grand caravan ims rampvan conversion. door motor went out and it’s 1225.00 for the new one. my dad thinks I can go online and get it cheaper…curious if anyone ever has. I know wheelchair has to know J nickii c5/6
Re: [QUAD-L] Spouse as Caregiver?
My caregiver history includes many different scenarios. As a C4-5 quad, It started out of rehab with my parents. They did everything from chauffeur to bowel/bladder care. I was very fortunate to have my Mom @ home fiull-time to take care of me on top of everyday family of 5 stuff. Over the 4-5 years there were very challenging times because I was 15 and all of the crap surrounding my new quad life came out on them. Both Mom Dad did very well not venting on me, but I'm certain it added stress into their relationship. Off to college for the next 4-5 years where I hired on average 2 new attendants every semester. (no, I was not Richie Rich, every dollar came from the state Vocational Rehab) My secret was and is, develop a routine for everything and stick to it. Then, just plug willing people into the routine. Make them follow your routine or fire them. Yes, it's hard, but, for me, it's what I had to do to be as independent as I wanted to be. At the end of college I married my first wife. It was actually a condition for her to marry me that we have at least one attendant. She claimed that it was to keep her from thinking of me as a job. Ten years later; a sexless, turbulent relationship, ending in her cheating and my moving out. It was a constant trial to keep good attendants when they see my wife not doing what they considered wifely duties. Lesson to learn here... do not marry under conditions or prenup. They bring a black cloud into the relationship. One year later I re-married to a woman who cares for me year-round. There are days when she is tired mentally and/or physically, but we push through with communication and love. The best thing I've learned, just as we learned in rehab; do as much for yourself as you possibly can. Looking back over the past 25 years I have had over a hundred caregivers. I'll continue to do what is necessary remain independent and so should you. Get connected to your state's Voc Rehab and get as many assistive devices as you can to take the pressure off your caregiver; lifts, chairs, etc. Get employed, there's something out there for everyone. Aaron Mann On Sun, Oct 6, 2013 at 3:34 PM, Danny Hearn ddh...@sbcglobal.net wrote: Well said, Don ! *From:* donald scott rollingl...@yahoo.com *To:* quad-list@eskimo.com quad-list@eskimo.com *Sent:* Saturday, October 5, 2013 8:44 PM *Subject:* Re: [QUAD-L] Spouse as Caregiver? Hi group, I'm not comfortable saying much about my relationship status here because it doesn't just stay within the community and not end up on the web. I can say I have much experience in this area. Basically It comes down to no matter who cares for you be it a wife, parent, love one, or stranger do everything possible that you can do yourself. For the things you can't do yourself be patient, understanding, and grateful to those who are helping you. That doesn't mean you have to just let them do as they please with your care. Be clear with them what your full needs are. Be organized and make things go as easy as possible. IF AT ALL POSSIBLE GET OUTSIDE HELP. If you can pay someone else or get state help to do even small stuff, I think it's a great idea. Anything you can do to give your primary caregiver a break is recommended. Especially if it's someone you care about being in your life for a long time. If your in a dating or marriage situation and want it to last you must do as I said previously. As well as continually tell them how special and glad you are that they are willing to share all aspects of your life together. Being disabled means we have to work twice as hard to be romantic, sexually creative, and just plain nicer than normal people if we want love to last. Divert the care they have to do with fun, love, and laughs. Oh, and during your care periods try to keep things lite and fun when ever possible. When your together not doing quad and house stuff try really hard to make those times special. Those times can out way the quad times. My 2 cents, Donald C5-C6 22 years post
Re: [QUAD-L] Suprapubic catheter question
This did happen to me a multitude of times. Did your nurse have to change the catheter or was she able to get the flow going without changing it? The times where mine has stopped flowing and there was no problems with sediment, it was because the catheter had become attached to the wall of my bladder and my bladder had atrophied so badly that this became a serious problem for me. The advantage I had was I can feel when my bladder gets backed up, so I can call for help much quicker. This happened when I was in the wheelchair and in the bed. You can tell if it is a problem with atrophy of the bladder is you can simply lift up the bag or the tube and the catheter starts draining right away. Q On Tue, Oct 8, 2013 at 3:35 PM, Danny Espinoza da...@immortaldesigns.cowrote: I had a a scare with autonomic dysreflexia earlier. My blood pressure was 200/111 with a heart rate of 43. Now I'm fine though at133/76 75 but still I'd rather not start my day that way. Luckily my nurse caught before something really bad happened!. My catheter stopped draining last month also... L Has anyone else had their catheter stop out of the blue even though your output is clear? What do you do to prevent it? I would hate to irrigate more often because I'm at the limit my insurance medi/medi covers. I drink crystal light also..
Re: [QUAD-L] Survival Manual Suggestions
Here in San Antonio, I'm on a list for the SCI units to call when they have a new SCI patient getting ready to go home. I act as a mentor and provide the patient and family as much advice as requested. If it's not already in place, push for it, do it yourself. I tried creating a catch-all book, but it's difficult to encompass all ages and all levels of injury. I encourage all of you here with 5 or more years experience, reach out to your local CIL, SCI units, rehabs. Be the mentor you wish you'd had upon going home. Aaron Mann On Wed, Oct 2, 2013 at 1:42 PM, Don Price donpric...@yahoo.com wrote: GREAT suggestions ALL! Thank you [and keep 'em coming]! Don. -- *From:* Danny Hearn ddh...@sbcglobal.net *To:* RONALD L PRACHT r.pra...@sbcglobal.net; quad-list@eskimo.com quad-list@eskimo.com *Sent:* Wednesday, October 2, 2013 10:53 AM *Subject:* Re: [QUAD-L] Survival Manual Suggestions Wow, Ron- you summed it up pretty good ! when I got injured they had a hospital class that taught us a lot of those things but I think it depends what area or state you live as to what they know or teach you. I was like you and had to go the 1st - 3 years with bed baths, then I had to get a supra-pubic catheter and voc-rehab set me up with a contractor that helped a bit with my bathroom remodel and overhead ceiling bed lift. (they paid a small portion and I refinanced my home to pay the rest ) Our life got soo much better after that ! thank god for any resourses that can help in any ways or give suggestions. Dan H.*** *From:* RONALD L PRACHT r.pra...@sbcglobal.net *To:* quad-list@eskimo.com quad-list@eskimo.com *Sent:* Tuesday, October 1, 2013 9:37 PM *Subject:* Re: [QUAD-L] Survival Manual Suggestions The first thing any therapist or doctor has to address with a newly injured person is thebut Im going to walksyndrome. People naturally are scared to do anything that may be inferring that they are accepting the fact they may not walk again. The best way to deal with that is to go around the issue. The main things people need to do right out of the gate are Figure out if current living arrangement can accomadate a wheelchair, if so start findind resources to build a ramp Apply for social security Widen doors at current house, bedroom and bathroom are a must..possibly drop hinges. If possible start looking into installing a roll in shower.( I had five years of hell without one) Get all need handicap equipment ordered b4 leaving hospital Learn about dysreflexia and how to prevent urinary tract infections, pressure sores. Make sure family is trained on help with catherizations, bowell routines, transfers Learn as much as you possibly can b4 you leave the hospital Once the person is out of rehab there will be a shock period to learn how to live in the real world in a chair. The hospital setting is set up for a paralyed individual, its scary at first going home which is normal. Start investigating going to school and getting a van to drive or ride in Ron *From:* Don Price donpric...@yahoo.com *To:* quad-list@eskimo.com quad-list@eskimo.com *Sent:* Tuesday, October 1, 2013 1:09 PM *Subject:* [QUAD-L] Survival Manual Suggestions Think back to right after your accident; you and your family were in the hospital, clueless, trying to figure out what was going to happen and how life was going to be from now on. It was a crazy, scary, emotional time for everyone: you, your family and your friends. Imagine if someone were to hand you--or more likely your family--a Disability Survival Manual that was intended to give you some advice from people who had been there before. What would it include? My Center for Independent Living (CIL) is currently working on such a manual. I'm tasked with writing an article on things that FAMILY and FRIENDS should know. So, I'm reaching out to you, my friends on quadlist, and asking for your input. What do you wish someone had told your family and friends right after your injury? I APPRECIATE any input you may have. Don Tempe, AZ C5-6 32 years
Fwd: [QUAD-L] ultracet,
Has anybody used Ultracet for muscle spasms?? I've tried zanaflex ,baclofin,soma, use to use darvacet before it was taken off the market yrs ago. Can't find anything to use but pain pills. Does anybody have any suggestions would be greatly appreciated??? Sent from my iPad Begin forwarded message: Resent-From: quad-list@eskimo.com From: RONALD L PRACHT r.pra...@sbcglobal.net Date: October 8, 2013 8:56:08 PM CD To: quad-list@eskimo.com quad-list@eskimo.com Subject: Re: [QUAD-L] door motor Reply-To: RONALD L PRACHT r.pra...@sbcglobal.net I looked it up and it seems as though an 02 dodge has a factory power sliding door. You can read all about it on the dodge caravan forums. The motor needs to be pulled out and tested, then go from there. Tons of people are going through this issue. All my vans had added on power doors, but its the same principle. Ron From: wheelch...@aol.com wheelch...@aol.com To: jume9...@comcast.net; quad-list@eskimo.com Sent: Tuesday, October 8, 2013 8:17 PM Subject: Re: [QUAD-L] door motor I don't believe IMS made door motors. It was a vendor'd item purchased from a company that made motors, for them and other companies. Is it a Delco motor? Best Wishes In a message dated 10/8/2013 6:33:53 P.M. Central Daylight Time, jume9...@comcast.net writes: I paid closer to 1,500.00 Meredith From: nichole rohling zoocr...@windstream.net To: quad-list@eskimo.com Sent: Tuesday, October 8, 2013 3:20:58 PM Subject: [QUAD-L] door motor I have a 2002 dodge grand caravan ims rampvan conversion. door motor went out and it’s 1225.00 for the new one. my dad thinks I can go online and get it cheaper…curious if anyone ever has. I know wheelchair has to know J nickii c5/6
Re: [QUAD-L] Suprapubic catheter question
I don't know if it works but I take an anabiotic every day for my urinary. I have that ileal conduit. I also take a probiotic called Proural everyday made by Farr Laboratories That my kidney doctor recommended a couple years ago. Do you have kidney stones or bladder stonesl I have two kidneys sounds but they are not hampering my urine flow.I Had 3 kidney lithotripsy, but it did not get rid of the stones. I sometimes get a teeny tiny stone in my ileal conduit bag. I don't Want to go under anesthetic for surgery. Dana Sent from my iPhone On Oct 8, 2013, at 2:35 PM, Danny Espinoza da...@immortaldesigns.co wrote: I had a a scare with autonomic dysreflexia earlier. My blood pressure was 200/111 with a heart rate of 43. Now I'm fine though at133/76 75 but still I'd rather not start my day that way. Luckily my nurse caught before something really bad happened!. My catheter stopped draining last month also... L Has anyone else had their catheter stop out of the blue even though your output is clear? What do you do to prevent it? I would hate to irrigate more often because I'm at the limit my insurance medi/medi covers. I drink crystal light also..
