[QUAD-L] Oops, trying again (new here)
I'm not sure if this posted the other day. I didn't know there were rules. My first message had images... Oops! Hello all. I subscribed to this list a while back and very much enjoy getting the emails and reading the responses. I figured I better introduce myself instead of lurking in the darkness. First off my name is Erin Shackelford, I'm 29 years old, married to my wonderful husband Bret, we have an 18 month old daughter named Bria. I myself am not a quadriplegic, but I take care of my little brother who is a c4-c7, incomplete quad. Our journey: We had a pretty rough life growing up. I moved out on my own when I was 16, was homeless at times, slept in my car at times, have been working my ass off since I was 16 and dropped out of college after my freshman year to work even more so that I could get my own place and take care of my brother, who was 16 at the time. Ok, so I get him through high school, into college, and after two years, he decided college wasn't for him. He signed up for the Air Force in 2011, at the age of 21 and was waiting for his call, to go to boot camp. He went to a party on June 14th, 2011 and dove into a shallow swimming pool, almost drowned and was taken by ambulance to a hospital and treated for intoxication and fluid in his lungs. He was sedated and intubated. After 12 hours, they removed the tubes and asked him if he wanted a drink. The nurse became frustrated when he wouldn't grab a cup from her. He informed her that he couldn't move his hands and couldn't feel his legs. He was rushed off for an MRI... He fractured c4 & c7 and crushed c5 & c6. His spinal cord was only bruised. After being in the hospital for 2 weeks, he was transferred by an air ambulance to Craig Specialty Hospital in Denver, Colorado. While at Craig, Ryon had two surgeries on his neck, and rehabbed from June to October. We are forever thankful for the treatment we received at Craig and still go back yearly for re-evaluations. While I was in Denver with my brother, my husband worked his butt off making our home accessible for my brother. Ryon came home to an accessible home and still lives with me to this day. I wouldn't have it any other way. I am his only caretaker and it can be quite challenging at times. I no longer work outside of my home and even managed to care for him throughout my entire 9 months of pregnancy. In September of last year, when my daughter was 9 months old, we discovered that she was bilaterally, profoundly deaf. So for the past 9 months we have been very busy with her. She received bilateral cochlear implants in February and is now almost 3 months post activation. She is progressing leaps and bounds. Ryon has luckily remained healthy, for the most part since my daughter was born, but we have been struggling with a small issue, which isn't life threatening, but aggravating. He's taken a backseat during the past 9 months, but things have finally started to slow down and we have become accustomed to our hectic life. Ryon has been having a stomach pain for the past 2 years and it is getting progressively worse. He's had X-rays, ultrasounds, ct scans, and been treated for neurological nerve pain. To no avail. It is in his lower right abdomen, definitely not bladder or kidneys, all of his blood tests come back normal, he's not septic, his white blood count is normal, it doesn't correlate with eating, or bowl programs. We are at a complete loss for what it is. When I say that he's been dealing with this for two years, we have seen many doctors and specialist, a neurosurgeon, urologist, gi... Just about anyone you can think of. Has anyone experienced anything like this? Thank you all for letting me be apart of this group. Erin Shackelford
RE: [QUAD-L] Phones
Hi Toby..My son is a C3-4...he has found a system that works great..he uses an I phoneshoot him a message at HereandNowProject.org...or look it up on facebook. Let me know if you can't get through.. Jeanne Sent from my Verizon Wireless 4G LTE smartphone Original message From: Toby Ausbun Date: 06/01/2015 3:57 PM (GMT-08:00) To: "" Subject: [QUAD-L] Phones Does anyone no about any voice activated phones a c4 complete with no use of hands?? Just been looking and cant info any Sent from my iPad
Re: [QUAD-L] just waiting
Good luck I know mine was a life saver!! Sent from my iPad > On Jun 1, 2015, at 9:10 PM, Danny Hearn wrote: > > Good luck, get well quick ! Dan H* > > > > On Monday, June 1, 2015 8:51 PM, Quadius wrote: > > > Well, I had my colostomy surgery on Thursday everything went pretty well. So > far my lungs have remained clear and hopefully they will continue to do so. > Anyway, I can't leave the hospital until my bowels start to work. > > The doctors decided to start me on a regular diet today, but I'm not supposed > to eat too much. Anyway, I'm just sitting here waiting for the bowels to > start working so I can try to get out of here shortly thereafter. > > Quadius > >
Re: [QUAD-L] just waiting
I will be thinking of you. I had Urostomy and have a little bit of an idea of how your feeling. Be well, Bobbie Smile Everyday > On Jun 1, 2015, at 9:51 PM, Quadius wrote: > > Well, I had my colostomy surgery on Thursday everything went pretty well. So > far my lungs have remained clear and hopefully they will continue to do so. > Anyway, I can't leave the hospital until my bowels start to work. > > The doctors decided to start me on a regular diet today, but I'm not supposed > to eat too much. Anyway, I'm just sitting here waiting for the bowels to > start working so I can try to get out of here shortly thereafter. > > Quadius
Re: [QUAD-L] just waiting
Good luck, get well quick ! Dan H* On Monday, June 1, 2015 8:51 PM, Quadius wrote: Well, I had my colostomy surgery on Thursday everything went pretty well. So far my lungs have remained clear and hopefully they will continue to do so. Anyway, I can't leave the hospital until my bowels start to work. The doctors decided to start me on a regular diet today, but I'm not supposed to eat too much. Anyway, I'm just sitting here waiting for the bowels to start working so I can try to get out of here shortly thereafter. Quadius
[QUAD-L] just waiting
Well, I had my colostomy surgery on Thursday everything went pretty well. So far my lungs have remained clear and hopefully they will continue to do so. Anyway, I can't leave the hospital until my bowels start to work. The doctors decided to start me on a regular diet today, but I'm not supposed to eat too much. Anyway, I'm just sitting here waiting for the bowels to start working so I can try to get out of here shortly thereafter. Quadius
Re: [QUAD-L] Phones
I dont use one either but I use this on an ipad http://gettecla.com/pages/tecla works with any ios device. here is a more pricy option http://www.broadenedhorizons.com/vocalize/ On Mon, Jun 1, 2015 at 5:19 PM, Larry Willis wrote: > I don't use one but I know some of the people on here do. Can you google > it? I'll google it for you if you like. Larry > > Larry Willis > Retired and proud of it > > > Begin forwarded message: > > *Resent-From:* quad-list@eskimo.com > *From:* Toby Ausbun > *Date:* June 1, 2015 at 6:57:41 PM EDT > *To:* "" > *Subject:* *[QUAD-L] Phones* > > Does anyone no about any voice activated phones a c4 complete with no use > of hands?? Just been looking and cant info any > > Sent from my iPad > >
Fwd: [QUAD-L] Phones
I don't use one but I know some of the people on here do. Can you google it? I'll google it for you if you like. Larry Larry Willis Retired and proud of it Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: Toby Ausbun > Date: June 1, 2015 at 6:57:41 PM EDT > To: "" > Subject: [QUAD-L] Phones > > Does anyone no about any voice activated phones a c4 complete with no use of > hands?? Just been looking and cant info any > > Sent from my iPad
[QUAD-L] Phones
Does anyone no about any voice activated phones a c4 complete with no use of hands?? Just been looking and cant info any Sent from my iPad
[QUAD-L] RE: post
it posted J From: gah17...@aol.com [mailto:gah17...@aol.com] Sent: Monday, June 01, 2015 3:46 PM To: zoocr...@windstream.net Subject: post Afternoon, I just reposted. Could you let me know if it went through? I think it might be AOL. Thanks, GA
[QUAD-L] pressure mapping
Other than pressure mapping has anyone ever used wedges, holes cut in foam pad or a wood seat pan? Interested in hearing your experiences. GA
Re: [QUAD-L] new to this
hi my name Steve 44 a c,7 quad from illinois. my accident happened 25yrs ago after getting hit in the back of my head. i have 3brothers r. none of them wants me to live close to them because of that burden theory i call it. i'am looking for any help in finding a place to live like cali,arizona,NM. 2 of my brothers live in florida, other in alabama. they in a round about way dont want me to move there. yes its terrible but i would love to show them i can go back to living on my own. i just dont like winters no show caregivers 6mothes of being stuck inside. i have money saved up i'am not rich who is. section 8 is to long. by the way i'am living with my 80 dad/mom in their 80'show dpressing that is.eveyone has there problems i try to make it short. if anyone can please let me know. my e-mail _sjg1073@aol.com_ (mailto:sjg1...@aol.com) or through this chain letter. thank you In a message dated 5/25/2015 5:10:16 P.M. Central Daylight Time, wheelch...@aol.com writes: Hiya Sonny! Welcome to this chat board. Tell us a little about yourself. Best Wishes In a message dated 5/25/2015 11:00:36 A.M. Central Daylight Time, sonny11...@gmail.com writes: Hi, My name is Sonny. I am new to all this and just wondering how it works. I sit in this home all day, no one to chat to because I am unable to speak but I have my common sense.
