Re: [QUAD-L] Phones
Thanks everyone for all the ideas about the phones gives me a lot of choice's to look into thanks again. Toby Sent from my iPad > On Jun 2, 2015, at 5:36 AM, Danny wrote: > > What about a smartphone with dragon on it? > http://www.dragonmobileapps.com/android/ “I haven’t tried it yet” > What about a Bluetooth ear pieces that I’ve used and was able to push the > button using my entire limp hand to push it as a c2/c4 asymmetric incomplete > quadriplegic. It may be trial and error trying to find one that your able to > push the button on and is comfortable “extremely important” but the one I > used had one large button that if you pushed one would listen for voice > commands like “call Toby” or someone else in your address book or “new > contact” to add someone etc… > I think I tried four until I found one I was able to hit and didn’t start > hurting me after a few hours. > > -Danny > > From: Jeanne Salvini [mailto:jesalv...@hotmail.com] > Sent: Monday, June 01, 2015 9:25 PM > To: Toby Ausbun; > Subject: RE: [QUAD-L] Phones > > Hi Toby..My son is a C3-4...he has found a system that works great..he uses > an I phoneshoot him a message at HereandNowProject.org...or look it up on > facebook. > > Let me know if you can't get through.. > > Jeanne > > > Sent from my Verizon Wireless 4G LTE smartphone > > > Original message > From: Toby Ausbun > Date: 06/01/2015 3:57 PM (GMT-08:00) > To: "" > Subject: [QUAD-L] Phones > > Does anyone no about any voice activated phones a c4 complete with no use of > hands?? Just been looking and cant info any > > Sent from my iPad
Re: [QUAD-L] Oops, trying again (new here)
Hi Erin, Ryon is describing the exact pain I had, lower right abdomen. I am a T10 complete paraplegic, 30 years post injury. The pain came on suddenly about 6 years ago. I had all the tests Ryon did over a period of a couple of years and the doc’s were baffled. Then my primary care doc ordered a blood panel and it showed I was anemic. I had an endoscopy—tiny camera fed down the throat into the stomach and small intestine and it showed I have celiac disease—an auto immune disease where your body attacks the small intestine if it detects gluten—a protein found in wheat, barley, and rye. A blood test confirms this. Although it is unlikely that this is what is going on with Ryon—celiac disease has nothing to do with spinal cord injury and only 1 out of ever 133 people have it—but I just thought I’d throw my experience out there. It is easy to test for—a blood test—and rule out. Just a thought. Bob V > On Jun 2, 2015, at 3:19 PM, Erin Shackelford wrote: > > Thank you so much everyone. > > Ryon is pretty sure that it is not neurological pain... But I'm not convinced > it isn't. He always shows the doctors where the pain is and how it feels. I > try my best to allow him to speak for himself at the doctor, but I always > clarify to the doctor that we don't know for sure if he is really feeling the > pain where he thinks he is, because his injury level is c4. > > He has been being treated for neurological pain for over a year now. First > gabapentin, then slowly increased the dose, then lyrica and then that dosage > maxed out as well. We stayed on the lyrica for over a year, but I finally > asked the doctor to take him off of it, because I was paying $75/month for > it. > > The spasticity does increase when the pain increases. The pain never worsens > or betters when eating or drinking more or less. The types of food he eats > doesn't have any effect. > > We are from a small town in the northeast corner of Kansas, called Elwood. We > are about 40 minutes north of Kansas City. We are right on the Missouri River > and receive all of our medical care in St. Joseph, MO. This has just recently > caused us problems. When Kansas Medicaid changed a couple years ago... All of > the specialist we previously saw in St. Joseph are no longer covered by our > new insurance. Medicaid is Ryons secondary, blue cross blue shield primary, > but it's easier for the doctors to accept both insurances. > > We are currently trying to form a new team of doctors at KU med, but the > problem with that is that it is an hour south of us and we don't have the > most reliable van to get there. But we will make do. > > We go back to Craig July 10th. Hopefully we can get some help this year. They > weren't helpful last year, they acted like it wasn't a big deal, but now it's > been 2 years of pain and I have got to get something figured out for him. > > Whoever asked about my parents being alive... They both are still. I think my > dad is anyway, I haven't seen her for 4 years or so. Remember... I moved out > when I was 16 and never looked back. > >> On Jun 2, 2015, at 12:28 AM, Erin Shackelford wrote: >> >> I'm not sure if this posted the other day. I didn't know there were rules. >> My first message had images... Oops! >> >> Hello all. I subscribed to this list a while back and very much enjoy >> getting the emails and reading the responses. I figured I better introduce >> myself instead of lurking in the darkness. >> >> First off my name is Erin Shackelford, I'm 29 years old, married to my >> wonderful husband Bret, we have an 18 month old daughter named Bria. I >> myself am not a quadriplegic, but I take care of my little brother who is a >> c4-c7, incomplete quad. >> >> Our journey: We had a pretty rough life growing up. I moved out on my own >> when I was 16, was homeless at times, slept in my car at times, have been >> working my ass off since I was 16 and dropped out of college after my >> freshman year to work even more so that I could get my own place and take >> care of my brother, who was 16 at the time. Ok, so I get him through high >> school, into college, and after two years, he decided college wasn't for >> him. He signed up for the Air Force in 2011, at the age of 21 and was >> waiting for his call, to go to boot camp. He went to a party on June 14th, >> 2011 and dove into a shallow swimming pool, almost drowned and was taken by >> ambulance to a hospital and treated for intoxication and fluid in his lungs. >> He was sedated and intubated. After 12 hours, they removed the tubes and >> asked him if he wanted a drink. The nurse became frustrated when he wouldn't >> grab a cup from her. He informed her that he couldn't move his hands and >> couldn't feel his legs. He was rushed off for an MRI... He fractured c4 & c7 >> and crushed c5 & c6. His spinal cord was only bruised. After being in the >> hospital for 2 weeks, he was transferred by an air a
Re: [QUAD-L] Oops, trying again (new here)
Just to clarify... The lyrica or gabapentin did nothing for his pain. If it did... I would have paid any amount of money. Erin Shackelford > On Jun 2, 2015, at 5:19 PM, Erin Shackelford wrote: > > Thank you so much everyone. > > Ryon is pretty sure that it is not neurological pain... But I'm not convinced > it isn't. He always shows the doctors where the pain is and how it feels. I > try my best to allow him to speak for himself at the doctor, but I always > clarify to the doctor that we don't know for sure if he is really feeling the > pain where he thinks he is, because his injury level is c4. > > He has been being treated for neurological pain for over a year now. First > gabapentin, then slowly increased the dose, then lyrica and then that dosage > maxed out as well. We stayed on the lyrica for over a year, but I finally > asked the doctor to take him off of it, because I was paying $75/month for > it. > > The spasticity does increase when the pain increases. The pain never worsens > or betters when eating or drinking more or less. The types of food he eats > doesn't have any effect. > > We are from a small town in the northeast corner of Kansas, called Elwood. We > are about 40 minutes north of Kansas City. We are right on the Missouri River > and receive all of our medical care in St. Joseph, MO. This has just recently > caused us problems. When Kansas Medicaid changed a couple years ago... All of > the specialist we previously saw in St. Joseph are no longer covered by our > new insurance. Medicaid is Ryons secondary, blue cross blue shield primary, > but it's easier for the doctors to accept both insurances. > > We are currently trying to form a new team of doctors at KU med, but the > problem with that is that it is an hour south of us and we don't have the > most reliable van to get there. But we will make do. > > We go back to Craig July 10th. Hopefully we can get some help this year. They > weren't helpful last year, they acted like it wasn't a big deal, but now it's > been 2 years of pain and I have got to get something figured out for him. > > Whoever asked about my parents being alive... They both are still. I think my > dad is anyway, I haven't seen her for 4 years or so. Remember... I moved out > when I was 16 and never looked back. > >> On Jun 2, 2015, at 12:28 AM, Erin Shackelford wrote: >> >> I'm not sure if this posted the other day. I didn't know there were rules. >> My first message had images... Oops! >> >> Hello all. I subscribed to this list a while back and very much enjoy >> getting the emails and reading the responses. I figured I better introduce >> myself instead of lurking in the darkness. >> >> First off my name is Erin Shackelford, I'm 29 years old, married to my >> wonderful husband Bret, we have an 18 month old daughter named Bria. I >> myself am not a quadriplegic, but I take care of my little brother who is a >> c4-c7, incomplete quad. >> >> Our journey: We had a pretty rough life growing up. I moved out on my own >> when I was 16, was homeless at times, slept in my car at times, have been >> working my ass off since I was 16 and dropped out of college after my >> freshman year to work even more so that I could get my own place and take >> care of my brother, who was 16 at the time. Ok, so I get him through high >> school, into college, and after two years, he decided college wasn't for >> him. He signed up for the Air Force in 2011, at the age of 21 and was >> waiting for his call, to go to boot camp. He went to a party on June 14th, >> 2011 and dove into a shallow swimming pool, almost drowned and was taken by >> ambulance to a hospital and treated for intoxication and fluid in his lungs. >> He was sedated and intubated. After 12 hours, they removed the tubes and >> asked him if he wanted a drink. The nurse became frustrated when he wouldn't >> grab a cup from her. He informed her that he couldn't move his hands and >> couldn't feel his legs. He was rushed off for an MRI... He fractured c4 & c7 >> and crushed c5 & c6. His spinal cord was only bruised. After being in the >> hospital for 2 weeks, he was transferred by an air ambulance to Craig >> Specialty Hospital in Denver, Colorado. >> >> While at Craig, Ryon had two surgeries on his neck, and rehabbed from June >> to October. We are forever thankful for the treatment we received at Craig >> and still go back yearly for re-evaluations. >> >> While I was in Denver with my brother, my husband worked his butt off making >> our home accessible for my brother. Ryon came home to an accessible home and >> still lives with me to this day. I wouldn't have it any other way. >> >> I am his only caretaker and it can be quite challenging at times. I no >> longer work outside of my home and even managed to care for him throughout >> my entire 9 months of pregnancy. In September of last year, when my daughter >> was 9 months old, we discovered
Re: [QUAD-L] Oops, trying again (new here)
Thank you so much everyone. Ryon is pretty sure that it is not neurological pain... But I'm not convinced it isn't. He always shows the doctors where the pain is and how it feels. I try my best to allow him to speak for himself at the doctor, but I always clarify to the doctor that we don't know for sure if he is really feeling the pain where he thinks he is, because his injury level is c4. He has been being treated for neurological pain for over a year now. First gabapentin, then slowly increased the dose, then lyrica and then that dosage maxed out as well. We stayed on the lyrica for over a year, but I finally asked the doctor to take him off of it, because I was paying $75/month for it. The spasticity does increase when the pain increases. The pain never worsens or betters when eating or drinking more or less. The types of food he eats doesn't have any effect. We are from a small town in the northeast corner of Kansas, called Elwood. We are about 40 minutes north of Kansas City. We are right on the Missouri River and receive all of our medical care in St. Joseph, MO. This has just recently caused us problems. When Kansas Medicaid changed a couple years ago... All of the specialist we previously saw in St. Joseph are no longer covered by our new insurance. Medicaid is Ryons secondary, blue cross blue shield primary, but it's easier for the doctors to accept both insurances. We are currently trying to form a new team of doctors at KU med, but the problem with that is that it is an hour south of us and we don't have the most reliable van to get there. But we will make do. We go back to Craig July 10th. Hopefully we can get some help this year. They weren't helpful last year, they acted like it wasn't a big deal, but now it's been 2 years of pain and I have got to get something figured out for him. Whoever asked about my parents being alive... They both are still. I think my dad is anyway, I haven't seen her for 4 years or so. Remember... I moved out when I was 16 and never looked back. > On Jun 2, 2015, at 12:28 AM, Erin Shackelford wrote: > > I'm not sure if this posted the other day. I didn't know there were rules. My > first message had images... Oops! > > Hello all. I subscribed to this list a while back and very much enjoy getting > the emails and reading the responses. I figured I better introduce myself > instead of lurking in the darkness. > > First off my name is Erin Shackelford, I'm 29 years old, married to my > wonderful husband Bret, we have an 18 month old daughter named Bria. I myself > am not a quadriplegic, but I take care of my little brother who is a c4-c7, > incomplete quad. > > Our journey: We had a pretty rough life growing up. I moved out on my own > when I was 16, was homeless at times, slept in my car at times, have been > working my ass off since I was 16 and dropped out of college after my > freshman year to work even more so that I could get my own place and take > care of my brother, who was 16 at the time. Ok, so I get him through high > school, into college, and after two years, he decided college wasn't for him. > He signed up for the Air Force in 2011, at the age of 21 and was waiting for > his call, to go to boot camp. He went to a party on June 14th, 2011 and dove > into a shallow swimming pool, almost drowned and was taken by ambulance to a > hospital and treated for intoxication and fluid in his lungs. He was sedated > and intubated. After 12 hours, they removed the tubes and asked him if he > wanted a drink. The nurse became frustrated when he wouldn't grab a cup from > her. He informed her that he couldn't move his hands and couldn't feel his > legs. He was rushed off for an MRI... He fractured c4 & c7 and crushed c5 & > c6. His spinal cord was only bruised. After being in the hospital for 2 > weeks, he was transferred by an air ambulance to Craig Specialty Hospital in > Denver, Colorado. > > While at Craig, Ryon had two surgeries on his neck, and rehabbed from June to > October. We are forever thankful for the treatment we received at Craig and > still go back yearly for re-evaluations. > > While I was in Denver with my brother, my husband worked his butt off making > our home accessible for my brother. Ryon came home to an accessible home and > still lives with me to this day. I wouldn't have it any other way. > > I am his only caretaker and it can be quite challenging at times. I no longer > work outside of my home and even managed to care for him throughout my entire > 9 months of pregnancy. In September of last year, when my daughter was 9 > months old, we discovered that she was bilaterally, profoundly deaf. So for > the past 9 months we have been very busy with her. She received bilateral > cochlear implants in February and is now almost 3 months post activation. She > is progressing leaps and bounds. Ryon has luckily remained healthy, for the > most part since my daughter was
Re: [QUAD-L] Oops, trying again (new here)
Hello Erin, Dealing with pain, neurologic or SCI, is always a challenge. Being one of those people who have pain with no discernible source I have been reluctantly reticent in fighting the pain through opioids. I believed the amount I was being prescribed would affect both my short-term and long-term memory. I was wrong. Once the pain becomes manageable one can maintain a decent quality of life. I have friends with SCI who deal with pain on a daily basis again without pinpointing the source. If you have gone through all the diagnostics and have presented the evidence to multiple reliable physicians (physiatrysts @Craig are probably the best) you may have to go through pain management. Be sure to go to a physician who understands SCI. Good luck and God bless Billy Lang > On Jun 2, 2015, at 4:56 PM, Joan Anglin wrote: > > Welcome to our world. You have definitely taken on a challenge and it > appears that you are learning to handle it with diplomacy and tenacity. My > hat is off to you. My daughter was 15 when I broke my neck, and she has been > my rock, even though she has not always been my caregiver she has great > imagination and the ability to solve problems that come up with my > wheelchair (or with me LOL). > There are others on this board who have already offered you some ideas, and > hopefully something will click and you will be able to find the source of > his problem. > It's a steep learning curve, and each person is so very different. Not just > our levels, but what kind of medical problems we have. You are fortunate > that he went to Craig, and that you are still following up with them. > Good luck, and god bless. Joan >
RE: [QUAD-L] Oops, trying again (new here)
Welcome to our world. You have definitely taken on a challenge and it appears that you are learning to handle it with diplomacy and tenacity. My hat is off to you. My daughter was 15 when I broke my neck, and she has been my rock, even though she has not always been my caregiver she has great imagination and the ability to solve problems that come up with my wheelchair (or with me LOL). There are others on this board who have already offered you some ideas, and hopefully something will click and you will be able to find the source of his problem. It's a steep learning curve, and each person is so very different. Not just our levels, but what kind of medical problems we have. You are fortunate that he went to Craig, and that you are still following up with them. Good luck, and god bless. Joan
RE: [QUAD-L] Phones
Im using a Samsung galaxy S4, which I can use entirely without touching anything by voice. I cannot play games, surf the Internet, but I can call and receive phone calls, text messages, check the weather, navigate to a location, and several other options. Because I am getting hard of hearing-nothing to do with SCI, just old age-I use a Bluetooth with it that is also an amplified hearing support. I had to make some modifications when I upgraded the old S4 system which no longer supported dragon mobile assistant. I bought an extra long life battery off Amazon and had to download an app that allows the phone to stay on all day. I prefer dragon mobile assistant to either the S voice or google, but it will not work on my phone anymore. Evidently it works on newer galaxies however. If you have any questions just let me know. Joan -Original Message- From: Toby Ausbun [mailto:tobyle.aus...@icloud.com] Sent: Monday, June 01, 2015 3:58 PM To: Subject: [QUAD-L] Phones Does anyone no about any voice activated phones a c4 complete with no use of hands?? Just been looking and cant info any Sent from my iPad
Fwd: [QUAD-L] Oops, trying again (new here)
So glad to hear from you, Erin. You sound like a very special person. Welcome to the gang. Most of us have been on here for several years and it is always great to welcome new folks. I am a c5 quad as a result of.are you readya diving accident. I was 19 and it was 1971. I assume you guys have checked for gall bladder, appendicitis, diverticulosis, hernia. Finding a pain source is a pain. God bless you and your family, congrats on the wee one, and my best to your brother. We will all be expecting regular postings. We really do care about each other on the quad-list. Larry Larry Willis Retired and proud of it Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: Erin Shackelford > Date: June 2, 2015 at 1:28:07 AM EDT > To: "" > Subject: [QUAD-L] Oops, trying again (new here) > > I'm not sure if this posted the other day. I didn't know there were rules. My > first message had images... Oops! > > Hello all. I subscribed to this list a while back and very much enjoy getting > the emails and reading the responses. I figured I better introduce myself > instead of lurking in the darkness. > > First off my name is Erin Shackelford, I'm 29 years old, married to my > wonderful husband Bret, we have an 18 month old daughter named Bria. I myself > am not a quadriplegic, but I take care of my little brother who is a c4-c7, > incomplete quad. > > Our journey: We had a pretty rough life growing up. I moved out on my own > when I was 16, was homeless at times, slept in my car at times, have been > working my ass off since I was 16 and dropped out of college after my > freshman year to work even more so that I could get my own place and take > care of my brother, who was 16 at the time. Ok, so I get him through high > school, into college, and after two years, he decided college wasn't for him. > He signed up for the Air Force in 2011, at the age of 21 and was waiting for > his call, to go to boot camp. He went to a party on June 14th, 2011 and dove > into a shallow swimming pool, almost drowned and was taken by ambulance to a > hospital and treated for intoxication and fluid in his lungs. He was sedated > and intubated. After 12 hours, they removed the tubes and asked him if he > wanted a drink. The nurse became frustrated when he wouldn't grab a cup from > her. He informed her that he couldn't move his hands and couldn't feel his > legs. He was rushed off for an MRI... He fractured c4 & c7 and crushed c5 & > c6. His spinal cord was only bruised. After being in the hospital for 2 > weeks, he was transferred by an air ambulance to Craig Specialty Hospital in > Denver, Colorado. > > While at Craig, Ryon had two surgeries on his neck, and rehabbed from June to > October. We are forever thankful for the treatment we received at Craig and > still go back yearly for re-evaluations. > > While I was in Denver with my brother, my husband worked his butt off making > our home accessible for my brother. Ryon came home to an accessible home and > still lives with me to this day. I wouldn't have it any other way. > > I am his only caretaker and it can be quite challenging at times. I no longer > work outside of my home and even managed to care for him throughout my entire > 9 months of pregnancy. In September of last year, when my daughter was 9 > months old, we discovered that she was bilaterally, profoundly deaf. So for > the past 9 months we have been very busy with her. She received bilateral > cochlear implants in February and is now almost 3 months post activation. She > is progressing leaps and bounds. Ryon has luckily remained healthy, for the > most part since my daughter was born, but we have been struggling with a > small issue, which isn't life threatening, but aggravating. He's taken a > backseat during the past 9 months, but things have finally started to slow > down and we have become accustomed to our hectic life. > > Ryon has been having a stomach pain for the past 2 years and it is getting > progressively worse. He's had X-rays, ultrasounds, ct scans, and been treated > for neurological nerve pain. To no avail. It is in his lower right abdomen, > definitely not bladder or kidneys, all of his blood tests come back normal, > he's not septic, his white blood count is normal, it doesn't correlate with > eating, or bowl programs. > > We are at a complete loss for what it is. When I say that he's been dealing > with this for two years, we have seen many doctors and specialist, a > neurosurgeon, urologist, gi... Just about anyone you can think of. Has anyone > experienced anything like this? > > Thank you all for letting me be apart of this group. > > Erin Shackelford
RE: [QUAD-L] Oops, trying again (new here)
Glad you are here Erin. While I can't be of any help on this subject I hope someone here can help. This is a great group but gets slow in the summer :) Nicki C5/6 -Original Message- From: Erin Shackelford [mailto:erin...@me.com] Sent: Tuesday, June 02, 2015 12:28 AM To: Subject: [QUAD-L] Oops, trying again (new here) I'm not sure if this posted the other day. I didn't know there were rules. My first message had images... Oops! Hello all. I subscribed to this list a while back and very much enjoy getting the emails and reading the responses. I figured I better introduce myself instead of lurking in the darkness. First off my name is Erin Shackelford, I'm 29 years old, married to my wonderful husband Bret, we have an 18 month old daughter named Bria. I myself am not a quadriplegic, but I take care of my little brother who is a c4-c7, incomplete quad. Our journey: We had a pretty rough life growing up. I moved out on my own when I was 16, was homeless at times, slept in my car at times, have been working my ass off since I was 16 and dropped out of college after my freshman year to work even more so that I could get my own place and take care of my brother, who was 16 at the time. Ok, so I get him through high school, into college, and after two years, he decided college wasn't for him. He signed up for the Air Force in 2011, at the age of 21 and was waiting for his call, to go to boot camp. He went to a party on June 14th, 2011 and dove into a shallow swimming pool, almost drowned and was taken by ambulance to a hospital and treated for intoxication and fluid in his lungs. He was sedated and intubated. After 12 hours, they removed the tubes and asked him if he wanted a drink. The nurse became frustrated when he wouldn't grab a cup from her. He informed her that he couldn't move his hands and couldn't feel his legs. He was rushed off for an MRI... He fractured c4 & c7 and crushed c5 & c6. His spinal cord was only bruised. After being in the hospital for 2 weeks, he was transferred by an air ambulance to Craig Specialty Hospital in Denver, Colorado. While at Craig, Ryon had two surgeries on his neck, and rehabbed from June to October. We are forever thankful for the treatment we received at Craig and still go back yearly for re-evaluations. While I was in Denver with my brother, my husband worked his butt off making our home accessible for my brother. Ryon came home to an accessible home and still lives with me to this day. I wouldn't have it any other way. I am his only caretaker and it can be quite challenging at times. I no longer work outside of my home and even managed to care for him throughout my entire 9 months of pregnancy. In September of last year, when my daughter was 9 months old, we discovered that she was bilaterally, profoundly deaf. So for the past 9 months we have been very busy with her. She received bilateral cochlear implants in February and is now almost 3 months post activation. She is progressing leaps and bounds. Ryon has luckily remained healthy, for the most part since my daughter was born, but we have been struggling with a small issue, which isn't life threatening, but aggravating. He's taken a backseat during the past 9 months, but things have finally started to slow down and we have become accustomed to our hectic life. Ryon has been having a stomach pain for the past 2 years and it is getting progressively worse. He's had X-rays, ultrasounds, ct scans, and been treated for neurological nerve pain. To no avail. It is in his lower right abdomen, definitely not bladder or kidneys, all of his blood tests come back normal, he's not septic, his white blood count is normal, it doesn't correlate with eating, or bowl programs. We are at a complete loss for what it is. When I say that he's been dealing with this for two years, we have seen many doctors and specialist, a neurosurgeon, urologist, gi... Just about anyone you can think of. Has anyone experienced anything like this? Thank you all for letting me be apart of this group. Erin Shackelford
RE: [QUAD-L] just waiting
Good luck, hopefully that will clear up some problems. LOL, pun intended. Joan From: Quadius [mailto:quad...@gmail.com] Sent: Monday, June 01, 2015 6:52 PM To: quad-list Subject: [QUAD-L] just waiting Well, I had my colostomy surgery on Thursday everything went pretty well. So far my lungs have remained clear and hopefully they will continue to do so. Anyway, I can't leave the hospital until my bowels start to work. The doctors decided to start me on a regular diet today, but I'm not supposed to eat too much. Anyway, I'm just sitting here waiting for the bowels to start working so I can try to get out of here shortly thereafter. Quadius
Fwd: [QUAD-L] Re: just waiting
Quadius, may you poop with authority and fart with feeling from this day forward! God bless, my friend. Larry Willis Retired and proud of it Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: Quadius > Date: June 2, 2015 at 10:06:41 AM EDT > To: quad-list > Subject: [QUAD-L] Re: just waiting > > I forgot to mention that my bowels are producing gas and have some bowel > sounds. My bowels better today after eating a very small amount. Hopefully > they will let me get up in my chair in a couple of days so I can get ready to > get out of here shortly. > > Thanks for the positive thoughts. > Quadius > >> On Mon, Jun 1, 2015 at 9:51 PM, Quadius wrote: >> Well, I had my colostomy surgery on Thursday everything went pretty well. So >> far my lungs have remained clear and hopefully they will continue to do so. >> Anyway, I can't leave the hospital until my bowels start to work. >> >> The doctors decided to start me on a regular diet today, but I'm not >> supposed to eat too much. Anyway, I'm just sitting here waiting for the >> bowels to start working so I can try to get out of here shortly thereafter. >> >> Quadius >
Re: [QUAD-L] Re: just waiting
Hi Quadius? Wishing you a speedy recovery an love your way... On Tue, Jun 2, 2015 at 9:13 AM, john vamp wrote: > Hi Quadius? Wishing you a speedy recovery an love your way. > > On Tue, Jun 2, 2015 at 9:06 AM, Quadius wrote: > >> I forgot to mention that my bowels are producing gas and have some bowel >> sounds. My bowels better today after eating a very small amount. Hopefully >> they will let me get up in my chair in a couple of days so I can get ready >> to get out of here shortly. >> >> Thanks for the positive thoughts. >> Quadius >> >> On Mon, Jun 1, 2015 at 9:51 PM, Quadius wrote: >> >>> Well, I had my colostomy surgery on Thursday everything went pretty >>> well. So far my lungs have remained clear and hopefully they will continue >>> to do so. Anyway, I can't leave the hospital until my bowels start to work. >>> >>> The doctors decided to start me on a regular diet today, but I'm not >>> supposed to eat too much. Anyway, I'm just sitting here waiting for the >>> bowels to start working so I can try to get out of here shortly thereafter. >>> >>> Quadius >>> >> >> > > > -- > Peace and Love. > -- Peace and Love.
[QUAD-L] Re: just waiting
I forgot to mention that my bowels are producing gas and have some bowel sounds. My bowels better today after eating a very small amount. Hopefully they will let me get up in my chair in a couple of days so I can get ready to get out of here shortly. Thanks for the positive thoughts. Quadius On Mon, Jun 1, 2015 at 9:51 PM, Quadius wrote: > Well, I had my colostomy surgery on Thursday everything went pretty well. > So far my lungs have remained clear and hopefully they will continue to do > so. Anyway, I can't leave the hospital until my bowels start to work. > > The doctors decided to start me on a regular diet today, but I'm not > supposed to eat too much. Anyway, I'm just sitting here waiting for the > bowels to start working so I can try to get out of here shortly thereafter. > > Quadius >
RE: [QUAD-L] Oops, trying again (new here)
First thing does he know if its physical pain or neuropathic pain? Is he on anything for neuropathic pain such as lyrica? Is his spasticity increasing as well? I'm able to tell the difference but if he thinks its physical pain it probably is. I've had my gallbladder removed because it was causing me pain on my right side as well and it eventually it started making me sick by producing sludge but most things with the gallbladder cause pain like gallstones or make you sick. Honestly though a doctor is best at finding the cause and more specifically one with experience treating spinal cord injured patients. Did his spasticity increase as well? Does it get worse after eating certain types of food? Did they look for kidney stones? Does increasing water intake change anything like make it better or worse? Does it look like there's anything wrong with his urine? Have you guys called the Craig nurse hotline asking for suggestions? I wish I could help more but am not a doctor and only able to offer suggestions based on my experience which will be massively different than him. I went to Craig as well by the way and loved it and sadly miss it especially the outings lol. -Danny -Original Message- From: Erin Shackelford [mailto:erin...@me.com] Sent: Monday, June 01, 2015 10:28 PM To: Subject: [QUAD-L] Oops, trying again (new here) I'm not sure if this posted the other day. I didn't know there were rules. My first message had images... Oops! Hello all. I subscribed to this list a while back and very much enjoy getting the emails and reading the responses. I figured I better introduce myself instead of lurking in the darkness. First off my name is Erin Shackelford, I'm 29 years old, married to my wonderful husband Bret, we have an 18 month old daughter named Bria. I myself am not a quadriplegic, but I take care of my little brother who is a c4-c7, incomplete quad. Our journey: We had a pretty rough life growing up. I moved out on my own when I was 16, was homeless at times, slept in my car at times, have been working my ass off since I was 16 and dropped out of college after my freshman year to work even more so that I could get my own place and take care of my brother, who was 16 at the time. Ok, so I get him through high school, into college, and after two years, he decided college wasn't for him. He signed up for the Air Force in 2011, at the age of 21 and was waiting for his call, to go to boot camp. He went to a party on June 14th, 2011 and dove into a shallow swimming pool, almost drowned and was taken by ambulance to a hospital and treated for intoxication and fluid in his lungs. He was sedated and intubated. After 12 hours, they removed the tubes and asked him if he wanted a drink. The nurse became frustrated when he wouldn't grab a cup from her. He informed her that he couldn't move his hands and couldn't feel his legs. He was rushed off for an MRI... He fractured c4 & c7 and crushed c5 & c6. His spinal cord was only bruised. After being in the hospital for 2 weeks, he was transferred by an air ambulance to Craig Specialty Hospital in Denver, Colorado. While at Craig, Ryon had two surgeries on his neck, and rehabbed from June to October. We are forever thankful for the treatment we received at Craig and still go back yearly for re-evaluations. While I was in Denver with my brother, my husband worked his butt off making our home accessible for my brother. Ryon came home to an accessible home and still lives with me to this day. I wouldn't have it any other way. I am his only caretaker and it can be quite challenging at times. I no longer work outside of my home and even managed to care for him throughout my entire 9 months of pregnancy. In September of last year, when my daughter was 9 months old, we discovered that she was bilaterally, profoundly deaf. So for the past 9 months we have been very busy with her. She received bilateral cochlear implants in February and is now almost 3 months post activation. She is progressing leaps and bounds. Ryon has luckily remained healthy, for the most part since my daughter was born, but we have been struggling with a small issue, which isn't life threatening, but aggravating. He's taken a backseat during the past 9 months, but things have finally started to slow down and we have become accustomed to our hectic life. Ryon has been having a stomach pain for the past 2 years and it is getting progressively worse. He's had X-rays, ultrasounds, ct scans, and been treated for neurological nerve pain. To no avail. It is in his lower right abdomen, definitely not bladder or kidneys, all of his blood tests come back normal, he's not septic, his white blood count is normal, it doesn't correlate with eating, or bowl programs. We are at a complete loss for what it is. When I say that he's been dealing with this for two years, we have seen many doctors and specialist, a neurosurgeon, urologist, gi... Just about anyone you can think of. Has anyone experienced
RE: [QUAD-L] Phones
What about a smartphone with dragon on it? http://www.dragonmobileapps.com/android/ “I haven’t tried it yet” What about a Bluetooth ear pieces that I’ve used and was able to push the button using my entire limp hand to push it as a c2/c4 asymmetric incomplete quadriplegic. It may be trial and error trying to find one that your able to push the button on and is comfortable “extremely important” but the one I used had one large button that if you pushed one would listen for voice commands like “call Toby” or someone else in your address book or “new contact” to add someone etc… I think I tried four until I found one I was able to hit and didn’t start hurting me after a few hours. -Danny From: Jeanne Salvini [mailto:jesalv...@hotmail.com] Sent: Monday, June 01, 2015 9:25 PM To: Toby Ausbun; Subject: RE: [QUAD-L] Phones Hi Toby..My son is a C3-4...he has found a system that works great..he uses an I phoneshoot him a message at HereandNowProject.org...or look it up on facebook. Let me know if you can't get through.. Jeanne Sent from my Verizon Wireless 4G LTE smartphone Original message From: Toby Ausbun mailto:tobyle.aus...@icloud.com> > Date: 06/01/2015 3:57 PM (GMT-08:00) To: "mailto:quad-list@eskimo.com> >" mailto:quad-list@eskimo.com> > Subject: [QUAD-L] Phones Does anyone no about any voice activated phones a c4 complete with no use of hands?? Just been looking and cant info any Sent from my iPad
