Re: [QUAD-L] Ditropan

[Robert Vogel]

Hi Larry and all,

Yes, dry mouth does set up a situation that *can* lead to bad teeth.  Here is 
an article I wrote
on Medication, Dry Mouth, and How to Save Your Teeth for New Mobility:
http://www.newmobility.com/2013/09/sci-medication-dry-mouth-and-tooth-decay/ 


Bob V

> On Nov 5, 2015, at 7:08 AM, Larry Willis  wrote:
> 
> I think the bad teeth are a byproduct of dry mouth.
> 
> Larry Willis
> Retired and proud of it
> 
> 
> Begin forwarded message:
> 
>> From: cviewe...@aol.com 
>> Date: November 5, 2015 at 8:09:25 AM EST
>> To: lwillis82...@gmail.com 
>> Subject: Re: [QUAD-L] Ditropan
>> 
>> I have never heard of ditropan causing bad teeth. My teeth are fine, I went 
>> to the dentist a few weeks ago for a cleaning. It was a good checkup too.  
>> Do you take calcium pills? Maybe that's why my teeth have not been damaged. 
>> Rose
>>  
>> In a message dated 11/4/2015 10:30:21 P.M. Eastern Standard Time, 
>> lwillis82...@gmail.com  writes:
>> I have been on it for almost 20 years. Dry mouth, sore tongue, but the worst 
>> is damage to my teeth! They are broken, yellow, decayed and all that bad 
>> stuff. And I have spent a fortune on them.reminds me of a meth users teeth. 
>> ACT is the only toothpaste I can useand Biotene rinse. I just can't 
>> tolerate constant cold sweats.
>> 
>> Larry Willis
>> Retired and proud of it
>> 
>> 
>> Begin forwarded message:
>> 
>>> From: cviewe...@aol.com 
>>> Date: November 4, 2015 at 8:42:06 PM EST
>>> To: e...@teamjeved.com , lwillis82...@gmail.com 
>>> 
>>> Cc: quad-list@eskimo.com 
>>> Subject: Re: [QUAD-L] Ditroplan
>>> 
>>> I have been on ditropan or the generic for more than 30 years...no 
>>> problems. It still works.I have not had any signs of dementia or other 
>>> problems.  Rose
>>>  
>>> In a message dated 11/4/2015 5:08:13 P.M. Eastern Standard Time, 
>>> e...@teamjeved.com  writes:
>>>  My big worry now about Ditropan is recent research showing it increases 
>>> risk of developing dementia/Alzheimer's/cognitive health problems. I've 
>>> been taking it for a decade. I was also a long-term regular user of 
>>> Benadryl for chronic allergies. Benadryl was identified in that same 
>>> research as another high risk factor.
>>> 
>>> All of this becomes super scary for me, because Alzheimer's runs and 
>>> family. My father is in the late stages of the disease.
>>> 
>>> At 48, I have to be focusing on preventative measures.  with 30 years of 
>>> quadriplegia under my belt I can't assume I'll be dead before I get into my 
>>> 60s and 70s when Alzheimer's risk is increasingly common.
>>> 
>>> I've asked my urologist for alternatives to Ditropan. he says there are 
>>> some but he has to research them – – that was months ago.
>>> 
>>> Have any of you been on a similar drug that was as effective as Ditropan? 
>>> 
>>> Thanks everybody
>>> 
>>> Ed
>>> 
>>> Ed Tessier 
>>> Mobile: (909) 994-5900
>>> 
>>> Jeved Management, Inc. 
>>> 
>>> On Mon, Nov 2, 2015 at 5:06 AM, Larry Willis >> >
>>>  wrote:
>>> It doesn't give me dreams, but the dry mouth is terrible. But it's a trade 
>>> off - dry mouth or cold sweats. The sweats just kill me. Can't win.
>>> 
>>> 
>>> -- Forwarded message --
>>> From: greg >> >
>>> Date: Sunday, November 1, 2015
>>> Subject: [QUAD-L] Ditroplan
>>> To: quad-list@eskimo.com 
>>> 
>>> 
>>> 
>>> I took Ditropan for awhile, but it gave me very weird dreams, almost panic 
>>> dreams. I'd wake up startled out of breath.
>>> I had to stop. Plus a very dry mouth.
>>> Greg
>>> 
>>> 
>>> > I take 20 mg ditropan in the morning, then cath at about 7am and 10
>>> > pm. I try to balance fluid intake with that routine.
>>> 
>>> 
>>> 
>> =

Re: [QUAD-L] Gallbladder problems?

[jume9999]

Nicki, I don't understand, do you have a colostomy now? BTW, how much is 
involved with getting the surgery to have a colostomy? How long does the 
recovery take? Do you have to stay in the hospital? Why do you think this is 
your gall bladder? 

Meredith 


- Original Message -

From: "nichole rohling"  
To: "greg" , "quad-list"  
Sent: Wednesday, November 4, 2015 4:37:04 PM 
Subject: RE: [QUAD-L] Gallbladder problems? 

I had a major hemorrhoidectomy last December and considered a colostomy 
then. 

The amount of feces coming out at night would probably blow a colostomy bag 
offseriously. 
However, I am having pain when sitting on shower chair and I think it's my 
rear (hemorrhoids), we just don't see any prolapsed yet. 

I will again be considering a colostomy if more problems present. 

Nicki 

-Original Message- 
From: greg [mailto:g...@eskimo.com] 
Sent: Wednesday, November 04, 2015 6:08 PM 
To: nichole rohling 
Subject: Re: [QUAD-L] Gallbladder problems? 

I was having issues like that, also about 1 or 2 times a week I was leaking 
just enough to leave a mark and smell. I was embarrassed every time I had to 
get lifted out of my chair. I finely got a colostomy. I only wish I would 
have gotten it 30 years ago. I put it off thinking it would be embarrassing, 
but it was s much nicer. Fast, easy, clean, 2 minutes a day, 5 minutes 
once a week or so. And that's over estimating. I recommend looking into it 
and asking your Doc. 
Greg 


> For about 3 ½ months I have been having problems w/ having to call one 
> of my caregivers to come and get me up on my shower chair at night 
> about 3.5 to 4 hours after I eat dinner. 
> 
> 
> It was once a week then I quit taking Culterelle and I've been going 
> about 10 to 14 days in between episodes. No particular type of food 
> sets it off, Monday night it was stew. 
> 
> 
> The stool isn't watery but lacks form, kind of like a cow 
> patty...I know, gross. 
> 
> 
> I do bowel program on M W F and it has been both on bowel program days 
> and not on bowel program days. 
> 
> 
> Open to any and all experiences or suggestions..calling dr in the 
> morning. 
> 
> 
> Nicki 
> 
> C5/6 

Re: [QUAD-L] Medicaid?

[Jim Lubin]

I checked the invoice for the wheelchair I got in 2010. Cost $31,085,
patient portion $0.

I don't know how it is assessed in other states, in Washington it is based
on how you score on Personal Care Assessment Key shown here
https://www.dshs.wa.gov/altsa/home-and-community-services/information-clients

this page show the types of in-home services available
https://www.dshs.wa.gov/altsa/home-and-community-services/home-care-adults

I have both agency nurses and independent private duty nurses who contract
directly with the state, my choice who I hire.

On Thu, Nov 5, 2015 at 1:10 PM, greg  wrote:

> Those with Medicaid, AZ if it matters. How much of a wheelchair does it
> cover?
> Medicare is 80%
> If I put my assets in a Trust, my SS is small enough I'd qualify. But is
> it worth changing from Medicare to Medicaid?
>
> Does Medicaid help with caregivers? If so, can you pick who, or does it
> have to be an agency?
>
> Thanks, Greg
>

Re: [QUAD-L] Ditroplan

[jume9999]

There is always Probantheline which also causes dry mouth but I don't think it 
causes Alzheimers. 

- Original Message -

From: cviewe...@aol.com 
To: e...@teamjeved.com, lwillis82...@gmail.com 
Cc: "quad-list"  
Sent: Wednesday, November 4, 2015 5:42:06 PM 
Subject: Re: [QUAD-L] Ditroplan 

I have been on ditropan or the generic for more than 30 years...no problems. It 
still works.I have not had any signs of dementia or other problems. Rose 
In a message dated 11/4/2015 5:08:13 P.M. Eastern Standard Time, 
e...@teamjeved.com writes: 









My big worry now about Ditropan is recent research showing it increases risk of 
developing dementia/Alzheimer's/cognitive health problems. I've been taking it 
for a decade. I was also a long-term regular user of Benadryl for chronic 
allergies. Benadryl was identified in that same research as another high risk 
factor. 

All of this becomes super scary for me, because Alzheimer's runs and family. My 
father is in the late stages of the disease. 

At 48, I have to be focusing on preventative measures. with 30 years of 
quadriplegia under my belt I can't assume I'll be dead before I get into my 60s 
and 70s when Alzheimer's risk is increasingly common. 

I've asked my urologist for alternatives to Ditropan. he says there are some 
but he has to research them – – that was months ago. 

Have any of you been on a similar drug that was as effective as Ditropan? 

Thanks everybody 

Ed 




Ed Tessier 
Mobile: (909) 994-5900 


Jeved Management, Inc. 



On Mon, Nov 2, 2015 at 5:06 AM, Larry Willis < lwillis82...@gmail.com > 
wrote: 


It doesn't give me dreams, but the dry mouth is terrible. But it's a trade off 
- dry mouth or cold sweats. The sweats just kill me. Can't win. 


-- Forwarded message -- 
From: greg < g...@eskimo.com > 
Date: Sunday, November 1, 2015 
Subject: [QUAD-L] Ditroplan 
To: quad-list@eskimo.com 


I took Ditropan for awhile, but it gave me very weird dreams, almost panic 
dreams. I'd wake up startled out of breath. 
I had to stop. Plus a very dry mouth. 
Greg 


> I take 20 mg ditropan in the morning, then cath at about 7am and 10 
> pm. I try to balance fluid intake with that routine. 

Re: [QUAD-L] Medicaid?

[jume9999]

Medicaid helps with caregivers in California. How does assets in a trust not be 
considered monthly income? 

Meredith 

- Original Message -

From: "greg"  
To: "quad-list"  
Sent: Thursday, November 5, 2015 1:10:13 PM 
Subject: [QUAD-L] Medicaid? 

Those with Medicaid, AZ if it matters. How much of a wheelchair does it cover? 
Medicare is 80% 
If I put my assets in a Trust, my SS is small enough I'd qualify. But is it 
worth changing from Medicare to Medicaid? 

Does Medicaid help with caregivers? If so, can you pick who, or does it have to 
be an agency? 

Thanks, Greg 

Re: [QUAD-L] Medicaid?

[RONALD L PRACHT]

If you get a special needs trust through a lawyer any money within the trust 
doesn't have to be claimed and is essentially hidden. 
Ron


 On Thursday, November 5, 2015 4:37 PM, "jume9...@comcast.net" 
 wrote:
   

 Medicaid helps with caregivers in California. How does assets in a trust not 
be considered monthly income?

Meredith

From: "greg" 
To: "quad-list" 
Sent: Thursday, November 5, 2015 1:10:13 PM
Subject: [QUAD-L] Medicaid?

Those with Medicaid, AZ if it matters. How much of a wheelchair does it cover?
Medicare is 80%
If I put my assets in a Trust, my SS is small enough I'd qualify. But is it 
worth changing from Medicare to Medicaid?

Does Medicaid help with caregivers? If so, can you pick who, or does it have to 
be an agency?

Thanks, Greg




  

[QUAD-L] Medicaid?

[greg]

Those with Medicaid, AZ if it matters. How much of a wheelchair does it cover?
Medicare is 80%
If I put my assets in a Trust, my SS is small enough I'd qualify. But is it 
worth changing from Medicare to Medicaid?

Does Medicaid help with caregivers? If so, can you pick who, or does it have to 
be an agency?

Thanks, Greg

[QUAD-L] Mole Nerve Endings

[greg]

I have an issue with my shoulder. Right by my shoulder blade. I had a mole that 
hurt when touched or had pressure on my mattress. They removed it, but now it 
hurts worse. It feels like a knife is stabbing me, so bad I can feel sick. But 
then some days no pain at all. Even though I have no feeling in most of my arm, 
none in fingers. It often feels like I have a numb nerve going down my arm. And 
my middle 3 fingers feel numb, like when you bang your elbow. Though they have 
no real feeling. I would swear a knife is stuck in my shoulder blade. Nothing 
seems to help, Ibuprofen, my pain meds MS-Contin don't phase it, Cortisone 
shot. It can be gone 4 or 5 days, then back for weeks. My doc thinks its the 
mole's nerve ending, and don't think much can help. But there has to be 
something. Kill the nerve or something.
I'm sure not SCI related, but anyone else have anything like this?
Greg

[QUAD-L] Doc Referral

[greg]

I finely got an appointment with a rehab doc. It's not for 2 months though. I 
could see the nurse practitioner sooner, but think I need to see the top dog 
first. It took so long to just get the correct referral sent in, mainly because 
my primary docs nurses kept screwing up. I had names, addresses, everything 
typed up that they needed to know. I had the word Physiatrist written on it. 
They wrote the referral to the correct doctor's name, address, etc., but wrote 
psychiatrist on it. So they could not except it. So I called them back, but 2 
days later, they did the exact same thing. It too 3 more days before they 
finely got the correct referral sent in.

Greg

Fwd: [QUAD-L] Ditropan

[Larry Willis]

I think the bad teeth are a byproduct of dry mouth.

Larry Willis
Retired and proud of it


Begin forwarded message:

> From: cviewe...@aol.com
> Date: November 5, 2015 at 8:09:25 AM EST
> To: lwillis82...@gmail.com
> Subject: Re: [QUAD-L] Ditropan
> 
> I have never heard of ditropan causing bad teeth. My teeth are fine, I went 
> to the dentist a few weeks ago for a cleaning. It was a good checkup too.  Do 
> you take calcium pills? Maybe that's why my teeth have not been damaged. Rose
>  
> In a message dated 11/4/2015 10:30:21 P.M. Eastern Standard Time, 
> lwillis82...@gmail.com writes:
> I have been on it for almost 20 years. Dry mouth, sore tongue, but the worst 
> is damage to my teeth! They are broken, yellow, decayed and all that bad 
> stuff. And I have spent a fortune on them.reminds me of a meth users teeth. 
> ACT is the only toothpaste I can useand Biotene rinse. I just can't 
> tolerate constant cold sweats.
> 
> Larry Willis
> Retired and proud of it
> 
> 
> Begin forwarded message:
> 
>> From: cviewe...@aol.com
>> Date: November 4, 2015 at 8:42:06 PM EST
>> To: e...@teamjeved.com, lwillis82...@gmail.com
>> Cc: quad-list@eskimo.com
>> Subject: Re: [QUAD-L] Ditroplan
>> I have been on ditropan or the generic for more than 30 years...no problems. 
>> It still works.I have not had any signs of dementia or other problems.  Rose
>>  
>> In a message dated 11/4/2015 5:08:13 P.M. Eastern Standard Time, 
>> e...@teamjeved.com writes:
>>  My big worry now about Ditropan is recent research showing it increases 
>> risk of developing dementia/Alzheimer's/cognitive health problems. I've been 
>> taking it for a decade. I was also a long-term regular user of Benadryl for 
>> chronic allergies. Benadryl was identified in that same research as another 
>> high risk factor.
>> 
>> All of this becomes super scary for me, because Alzheimer's runs and family. 
>> My father is in the late stages of the disease.
>> 
>> At 48, I have to be focusing on preventative measures.  with 30 years of 
>> quadriplegia under my belt I can't assume I'll be dead before I get into my 
>> 60s and 70s when Alzheimer's risk is increasingly common.
>> 
>> I've asked my urologist for alternatives to Ditropan. he says there are some 
>> but he has to research them – – that was months ago.
>> 
>> Have any of you been on a similar drug that was as effective as Ditropan? 
>> 
>> Thanks everybody
>> 
>> Ed
>> 
>> Ed Tessier 
>> Mobile: (909) 994-5900
>> 
>> Jeved Management, Inc. 
>> 
>> On Mon, Nov 2, 2015 at 5:06 AM, Larry Willis  wrote:
>>> It doesn't give me dreams, but the dry mouth is terrible. But it's a trade 
>>> off - dry mouth or cold sweats. The sweats just kill me. Can't win.
>>> 
>>> 
>>> -- Forwarded message --
>>> From: greg 
>>> Date: Sunday, November 1, 2015
>>> Subject: [QUAD-L] Ditroplan
>>> To: quad-list@eskimo.com
>>> 
>>> 
>>> I took Ditropan for awhile, but it gave me very weird dreams, almost panic 
>>> dreams. I'd wake up startled out of breath.
>>> I had to stop. Plus a very dry mouth.
>>> Greg
>>> 
>>> 
>>> > I take 20 mg ditropan in the morning, then cath at about 7am and 10
>>> > pm. I try to balance fluid intake with that routine.
>> 
> =