Re: [QUAD-L] Bad AD
Greg, so very sorry you have shingles. It just dosn't seem fare. It should last a little over a month, maybe less. Hang in there, I'm thinking of you. Everybody else GET YOUR SHINGLES VACCINE!!! I did, it was easy. A pharmacist did it with a shot in the arm ... .thats it. Bobbie Smile Everyday > On Nov 24, 2015, at 9:57 PM, greg wrote: > > I just found out what I thought was an inflamed burn in my crotch was not. > It's now seeping and blistering. It's a bad outbreak of Shingles. It's so > painful, just touching the area sends me into bad AD. Like my head is going > to explode. I have to sit up right away or I'm sure my eyes are going to pop > out of my head. I knew I had Shingle, but thought it was just a small rash > area. That cleared up right away with some cream. Hopefully between the cream > and anti viral meds, it clears up fast. > > AD is so strange. Touching my crotch causes spasms. That causes my chest to > feel heavy and tight. Then my head pounds. Then something in my abdomen area > groans, relieving pressure, and my headache starts going away. What's > groaning. I understand pain causing AD headaches. But why my intestines > groaning. Same thing when I hurt my toe. > > Greg >
[QUAD-L] Bad AD
I just found out what I thought was an inflamed burn in my crotch was not. It's now seeping and blistering. It's a bad outbreak of Shingles. It's so painful, just touching the area sends me into bad AD. Like my head is going to explode. I have to sit up right away or I'm sure my eyes are going to pop out of my head. I knew I had Shingle, but thought it was just a small rash area. That cleared up right away with some cream. Hopefully between the cream and anti viral meds, it clears up fast. AD is so strange. Touching my crotch causes spasms. That causes my chest to feel heavy and tight. Then my head pounds. Then something in my abdomen area groans, relieving pressure, and my headache starts going away. What's groaning. I understand pain causing AD headaches. But why my intestines groaning. Same thing when I hurt my toe. Greg
Re: [QUAD-L] Help
Larry, i'm not sure how to help this, i take ditropan also but don't get that problemhave you tried a mouth rinse called BIOTENE, it is supposed to stop dry mouth, not sure but may be worth a try. If you have any bad teeth I would ask a dentist if pulling them may help? I know you have had this for a while, let us know if you get any relief . Dan H** On Tuesday, November 24, 2015 8:23 PM, Larry Willis wrote: Since about April I have had a painful case of burning mouth syndrome. I'm wondering if it is a response to ditropan. Even toothpaste sets me on fire. Anyone have any knowledge about this? So far, nothing helps.
[QUAD-L] Help
Since about April I have had a painful case of burning mouth syndrome. I'm wondering if it is a response to ditropan. Even toothpaste sets me on fire. Anyone have any knowledge about this? So far, nothing helps.
Re: [QUAD-L] SP Cath size
I used 22 French and 24 fr when I have a suprapubic. Have you tried putting a little bit more fluid in the balloon? Also you might want to try getting some sort of device to tether the catheter to your body. I had a great success with this when I had my suprapubic. Q On Tuesday, November 24, 2015, greg wrote: > Those with a SP cath, what size do you use? After how many years? > > For about 15 years I used a 16F, but it started leaking around the cath > itself, through the incision. So I changed to a 18F. But after only a few > years, it's leaking again. Only at night. No idea why. Not blocked, not > plugged, no junk in it, no sweating. In the morning everything is wet, > night bag 1/4 full. So it's draing some, but not backing up causing AD or > anything. I don't want to keep going up in size. How often do you go up in > size? > > Thanks, Greg >
Re: [QUAD-L] SP Cath size
22fr On 11/24/2015 5:07 PM, greg wrote: Those with a SP cath, what size do you use? After how many years? For about 15 years I used a 16F, but it started leaking around the cath itself, through the incision. So I changed to a 18F. But after only a few years, it's leaking again. Only at night. No idea why. Not blocked, not plugged, no junk in it, no sweating. In the morning everything is wet, night bag 1/4 full. So it's draing some, but not backing up causing AD or anything. I don't want to keep going up in size. How often do you go up in size? Thanks, Greg This email has been sent from a virus-free computer protected by Avast. www.avast.com
Re: [QUAD-L] Ryzodomy
I use lyrica for stiffness...works great! 100 mg a day. On Nov 23, 2015, at 9:52 PM, jume9...@comcast.net wrote: Hi guys, Those of you who have had a ryzodomy, can you tell me does it just help with spasms? I guess it doesn't help with pain but what about stiffness? I really would love some details??? Thanks Meredith -Original Message- From: jume To: Gmail ; quad-list Sent: Tue, Nov 24, 2015 3:53 pm Subject: Re: [QUAD-L] Ryzodomy Thank you Bobbie, Two other questions, was it permanent? Was it like an office visit where you left the same day? From: "Gmail" To: jume9...@comcast.net Cc: "quad-list" Sent: Tuesday, November 24, 2015 11:13:59 AM Subject: Re: [QUAD-L] Ryzodomy I got the ryzodomy in 1988 because of spazams and the surgery stopped the spazams completely. Bobbie Smile Everyday On Nov 23, 2015, at 9:52 PM, jume9...@comcast.net wrote: Hi guys, Those of you who have had a ryzodomy, can you tell me does it just help with spasms? I guess it doesn't help with pain but what about stiffness? I really would love some details??? Thanks Meredith
[QUAD-L]
Here's a great article about ryzodomy (sp) for cerebral palsy and children, but lots of facts. http://www.stlouischildrens.org/our-services/center-cerebral-palsy-spasticit y/about-selective-dorsal-rhizotomy-sdr
Re: [QUAD-L] SP Cath size
My Doc. Put me on a 24 French, way back in the beginning and been on it since I got the supra-pubic over 15 years ago...this size will allow sediment through easier, I never have a problem, good luck Greg---Dan H*** On Tuesday, November 24, 2015 5:07 PM, greg wrote: Those with a SP cath, what size do you use? After how many years? For about 15 years I used a 16F, but it started leaking around the cath itself, through the incision. So I changed to a 18F. But after only a few years, it's leaking again. Only at night. No idea why. Not blocked, not plugged, no junk in it, no sweating. In the morning everything is wet, night bag 1/4 full. So it's draing some, but not backing up causing AD or anything. I don't want to keep going up in size. How often do you go up in size? Thanks, Greg
[QUAD-L] SP Cath size
Those with a SP cath, what size do you use? After how many years? For about 15 years I used a 16F, but it started leaking around the cath itself, through the incision. So I changed to a 18F. But after only a few years, it's leaking again. Only at night. No idea why. Not blocked, not plugged, no junk in it, no sweating. In the morning everything is wet, night bag 1/4 full. So it's draing some, but not backing up causing AD or anything. I don't want to keep going up in size. How often do you go up in size? Thanks, Greg
Re: [QUAD-L] Ryzodomy
Oh, yeah it was permanent and I was in the hospital for 5 days BUT This was in 1988. Smile Everyday > On Nov 24, 2015, at 3:52 PM, jume9...@comcast.net wrote: > > Thank you Bobbie, Two other questions, was it permanent? Was it like an > office visit where you left the same day? > > From: "Gmail" > To: jume9...@comcast.net > Cc: "quad-list" > Sent: Tuesday, November 24, 2015 11:13:59 AM > Subject: Re: [QUAD-L] Ryzodomy > > I got the ryzodomy in 1988 because of spazams and the surgery stopped the > spazams completely. > Bobbie > > Smile Everyday > > On Nov 23, 2015, at 9:52 PM, jume9...@comcast.net wrote: > > Hi guys, > > Those of you who have had a ryzodomy, can you tell me does it just help with > spasms? I guess it doesn't help with pain but what about stiffness? I really > would love some details??? Thanks > > Meredith > > >
Re: [QUAD-L] Ryzodomy
Thank you Bobbie, Two other questions, was it permanent? Was it like an office visit where you left the same day? - Original Message - From: "Gmail" To: jume9...@comcast.net Cc: "quad-list" Sent: Tuesday, November 24, 2015 11:13:59 AM Subject: Re: [QUAD-L] Ryzodomy I got the ryzodomy in 1988 because of spazams and the surgery stopped the spazams completely. Bobbie Smile Everyday On Nov 23, 2015, at 9:52 PM, jume9...@comcast.net wrote: Hi guys, Those of you who have had a ryzodomy, can you tell me does it just help with spasms? I guess it doesn't help with pain but what about stiffness? I really would love some details??? Thanks Meredith
Re: [QUAD-L] Ryzodomy
I got the ryzodomy in 1988 because of spazams and the surgery stopped the spazams completely. Bobbie Smile Everyday > On Nov 23, 2015, at 9:52 PM, jume9...@comcast.net wrote: > > Hi guys, > > Those of you who have had a ryzodomy, can you tell me does it just help with > spasms? I guess it doesn't help with pain but what about stiffness? I really > would love some details??? Thanks > > Meredith > >
[QUAD-L] Thanksgiving song
Hello my friends have a happy Thanksgiving everyone you and your family if you are traveling be careful and God bless everyone now check out this link https://www.youtube.com/watch?v=sAIbwodgoU8
