Re: [QUAD-L] Bowel Problems

[alcibiates2]

Considering all the problems and pain does anyone here ever think of getting a 
colostomy?
Best wishes,John s. 

 Original message 
From: greg  
Date: 12/04/2015  11:28 AM  (GMT-05:00) 
To: quad-list@eskimo.com 
Subject: Re: [QUAD-L] Bowel Problems 

Mine got so bad, 2+ hours of non stop sweating, constant worries about it, I 
finely "Just bagged it". I wish I'd done it from the beginning. Sooo much 
easier, faster, less worries, no accidents. reg


> I have hated BM days for yrs due to the sweats, nausea etc. Milk of
> Magnesia or sennekot is what I use.

RE: [QUAD-L] Bowel Problems

[nichole rohling]

I am seriously considering it. My mom is having neck surgery in January so
I'm giving my body until after that to be back to normal. If it's still
messed up then I'm seeing a surgeon. 

Seems that everyone who has had a colostomy say they wish they had done it
sooner.

Nicki  

 

From: greg [mailto:g...@eskimo.com] 
Sent: Thursday, December 03, 2015 2:13 PM
To: nichole rohling
Subject: Re: [QUAD-L] Bowel Problems

 

I had so many bowel issue the last few years, mostly leaking, I finely got
colotomy. Best thing I've done. Bowel rutine was taking 2 hours of non stop
sweating. I finely did it... Makes life so much easier, fewer worries, way
faster, easier on my body. 90sec a day.

Greg

> Back in August my bowels started deciding they wanted to empty

> (consistency of cow poop for lack of better term) in the evenings

> about 2 hrs after going to bed. I get chills, etc and generally

> caregiver gets here and gets me on the shower chair before it's too

> late. This went on about once a week for a month or so. I had been

> taking Culturelle since last December so I stopped taking it. My

> body is still doing the same thing - but only about once every 2

> weeks if I'm lucky. No particular food triggers it. Went to the dr

> yesterday, all labs came back fine.

> 

> Of course bowel program is jacked up because there's nothing there,

> sometimes it happens on evenings when I do bowel program that

> morning and sometimes it is on non-bowel program evenings.

> 

> No rhyme or reason for it.

> 

> 

> I'm up for suggestions and anyone else had this happen?

> 

> 

> Nicki

Re: [QUAD-L] Bowel Problems

[greg]

Mine got so bad, 2+ hours of non stop sweating, constant worries about it, I finely "Just bagged it". I wish I'd done it from the beginning. Sooo much easier, faster, less worries, no accidents. reg
> I have hated BM days for yrs due to the sweats, nausea etc. Milk of
> Magnesia or sennekot is what I use.

[QUAD-L] Recommendations for a trackball please

[Dave Krehbiel]

I can move my arms but not my fingers, and I am using Dragon
NaturallySpeaking with Windows 8. In some cases, it can be tedious or
difficult or impossible to move the mouse pointer using Dragon
NaturallySpeaking. Does anyone use a trackball which they recommend?

 

Thanks so much,

Dave Krehbiel

[QUAD-L] Update

[greg]

I wasn't feeling great so I wanted IV fluids. At first my doc said yes, but changed his mind. The hospital records said my urologist ordered the home IV antibiotics, so my primary said he wouldn't, that the urologist needs to. But I hadn't seen the urologist. Only made an appointment. He wouldn't because he hadn't seen me. The hospital said they wont. They will set up home IV meds, but not just fluids. So I ended up back in ER just for fluids. Now the ER just called to see how I was doing.  I say I feel about 80% better, but still body very sore, spasms, etc. They say the cultures came back and the IV meds are the wrong kind. They wanted me to get admitted until home nursing got everything changed. I said no, I feel good enough to wait until tomorrow. If not set up by then, I'll go in for an IV, but not admitted.
 
All I know is next time I go in, I'm bringing a bunch of those heating pads and an electric blanket. I was just freezing.
 
At least I feel lots better even if wron meds, Greg

[QUAD-L] Prayers etc

[lwillis82153]

Guys, my beloved wife Melissa is having some serious health problems. She is in 
heart failure; her left ventricle has an ejection factor of 15%. Anything below 
40 is considered very serious. She struggles to breathe because of fluid around 
her heart. The doc wants to give her a defibrillator to regulate her heartbeat. 
It beats extremely fast and won't slow down like it should. It about kills her 
taking care of me. I feel so guilty and useless because I know I'm making it 
worse. She is only 45. If anything happens to her, I pray that I follow. I have 
reached my limit guys. Would you please send up a prayer or just a good thought 
for us. God bless each of you for your support and friendship.






Sent from Surface

RE: [QUAD-L] Update

[nichole rohling]

prayers your better soon

 

From: greg [mailto:g...@eskimo.com] 
Sent: Friday, December 04, 2015 4:47 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Update

 

I wasn't feeling great so I wanted IV fluids. At first my doc said yes, but
changed his mind. The hospital records said my urologist ordered the home IV
antibiotics, so my primary said he wouldn't, that the urologist needs to.
But I hadn't seen the urologist. Only made an appointment. He wouldn't
because he hadn't seen me. The hospital said they wont. They will set up
home IV meds, but not just fluids. So I ended up back in ER just for fluids.
Now the ER just called to see how I was doing.  I say I feel about 80%
better, but still body very sore, spasms, etc. They say the cultures came
back and the IV meds are the wrong kind. They wanted me to get admitted
until home nursing got everything changed. I said no, I feel good enough to
wait until tomorrow. If not set up by then, I'll go in for an IV, but not
admitted.

 

All I know is next time I go in, I'm bringing a bunch of those heating pads
and an electric blanket. I was just freezing.

 

At least I feel lots better even if wron meds, Greg

Re: [QUAD-L] Recommendations for a trackball please

[Quadius]

Dave,
I use a mouse stick and Dragon, not to mention my trackball. I have been
using the same trackball for a good eight years now. I simply got one from
logic Tech and it had no problem with it whatsoever. In fact I don't really
like the newer models, so I've stuck with the old one. Even though it is
wired.

The really not that expensive and they are much better than a mouse, in my
opinion.
q

On Fri, Dec 4, 2015 at 2:43 PM, Dave Krehbiel 
wrote:

> I can move my arms but not my fingers, and I am using Dragon
> NaturallySpeaking with Windows 8. In some cases, it can be tedious or
> difficult or impossible to move the mouse pointer using Dragon
> NaturallySpeaking. Does anyone use a trackball which they recommend?
>
>
>
> Thanks so much,
>
> Dave Krehbiel
>

RE: [QUAD-L] Bowel Problems

[Danny Espinoza]

I've never known anything else since my accident forced me to have a
colostomy.

-Danny

 

From: nichole rohling [mailto:zoocr...@windstream.net] 
Sent: Friday, December 4, 2015 9:14 AM
To: 'greg' ; quad-list@eskimo.com
Subject: RE: [QUAD-L] Bowel Problems

 

I am seriously considering it. My mom is having neck surgery in January so
I'm giving my body until after that to be back to normal. If it's still
messed up then I'm seeing a surgeon. 

Seems that everyone who has had a colostomy say they wish they had done it
sooner.

Nicki  

 

From: greg [mailto:g...@eskimo.com] 
Sent: Thursday, December 03, 2015 2:13 PM
To: nichole rohling
Subject: Re: [QUAD-L] Bowel Problems

 

I had so many bowel issue the last few years, mostly leaking, I finely got
colotomy. Best thing I've done. Bowel rutine was taking 2 hours of non stop
sweating. I finely did it... Makes life so much easier, fewer worries, way
faster, easier on my body. 90sec a day.

Greg

> Back in August my bowels started deciding they wanted to empty

> (consistency of cow poop for lack of better term) in the evenings

> about 2 hrs after going to bed. I get chills, etc and generally

> caregiver gets here and gets me on the shower chair before it's too

> late. This went on about once a week for a month or so. I had been

> taking Culturelle since last December so I stopped taking it. My

> body is still doing the same thing - but only about once every 2

> weeks if I'm lucky. No particular food triggers it. Went to the dr

> yesterday, all labs came back fine.

> 

> Of course bowel program is jacked up because there's nothing there,

> sometimes it happens on evenings when I do bowel program that

> morning and sometimes it is on non-bowel program evenings.

> 

> No rhyme or reason for it.

> 

> 

> I'm up for suggestions and anyone else had this happen?

> 

> 

> Nicki