[QUAD-L] Senators Look To Expand ABLE Program - Disability Scoop

[Jim Lubin]

https://www.disabilityscoop.com/2019/03/06/senators-expand-able-program/26125/

Legislation introduced this week by a bipartisan group of senators would
raise the eligibility age for ABLE accounts.

Under the plan known as the ABLE Age Adjustment Act, S. 651, individuals
with disabilities that present by age 46 could open the accounts. Current
law limits ABLE accounts to those with disabilities that onset prior to age
26.

Re: [QUAD-L] Colostomy

[Aaron Mann]

I found the biggest concern is "consistency". Too firm, it'll push the
wafer right off, too loose, you'll be changing bags twice a day. My answer
is *fiber gummies* (I get mine on Amazon or at Wally World), I eat two
every morning and it keeps things in order, consistency-wise. The number
needed completely depends on your diet and water intake.

Aaron Mann


On Thu, Feb 28, 2019 at 8:30 AM Michelle Kephart 
wrote:

> Thank you so much, Aaron and Greg!  I think I’m going to do it. I’m
> waiting right now to see if my insurance will pre-approve the procedure.
> I’m nervous but also excited to not have to keep such a strict schedule. I
> very much appreciate your tips and tricks!
>
> Michelle
>
>
> On Wed, Feb 27, 2019 at 11:56 AM Aaron Mann  wrote:
>
>> Quad of 29 years, I've had my colostomy for 5 years now. Wish I'd done it
>> sooner.
>> Upsides:
>> No hour(s) long bowel program
>> Simple bag change in minutes anywhere, when needed
>> No issues getting stool in any skin abrasions on bottom (causes major
>> issues)
>> Greatly reduced chance "accidents" requiring a complete change of
>> clothing and shower
>> It's reversible if you really don't like the life of having a colostomy
>>
>> Downsides:
>> "Farts' are louder because it's out of your belly rather than being
>> "muffled" under your rear
>> Needing to "vent" air from the bag (can be difficult depending on your
>> functional abilities)
>> Dealing with the "colostomy bulge" in between bag replacements ( I wear
>> loose clothing to help hide)
>> "Blowouts" can be messy (I've found the right amount of fiber to add to
>> my diet to keep consistency "just right")
>>
>>
>> I've got a few tips and tricks to share if you go with the colostomy
>> route.
>>
>>
>> Aaron Mann
>>
>>
>> On Wed, Jan 23, 2019 at 7:40 PM Michelle Kephart <
>> michelle.keph...@gmail.com> wrote:
>>
>>> Hi everyone,
>>>
>>> I’m usually pretty quiet on this list, but I’m looking for a wide
>>> variety of input about colostomies and I hope you all can help me. I’m
>>> wondering if it’s the right option for me. Does anyone on here have a
>>> colostomy? If so, what do you think about it? If you previously did a bowel
>>> program, which would you prefer (a bowel program or a colostomy)?
>>>
>>> Thanks for your input!
>>>
>>> Michelle
>>>
>>>

Re: [QUAD-L] Pressure Mapped

[Eric Olson]

Most people over-inflate their cushions because they're worried about
bottoming out.  Too much air can be as bad as too little

On Fri, Mar 8, 2019 at 10:40 AM Greg  wrote:

> Just got my chair cushion pressure mapped. I was worried I didn't have
> enough air in it, but they took out sooo much more. I feel so low, sunk in.
> Butt, the map went from 2 dark red areas to no red. Its great to see real
> time pressure. So I can move my legrest around and see exactly where the
> pressure moves, see what position has the least pressure. Its really
> interesting.
> They suggest mapping every 6 months.
>
> Greg
>

[QUAD-L] Pressure Mapped

[Greg]

Just got my chair cushion pressure mapped. I was worried I didn't have 
enough air in it, but they took out sooo much more. I feel so low, sunk 
in. Butt, the map went from 2 dark red areas to no red. Its great to see 
real time pressure. So I can move my legrest around and see exactly 
where the pressure moves, see what position has the least pressure. Its 
really interesting.

They suggest mapping every 6 months.

Greg