[QUAD-L] Congress Finally Passes The Disability Integration Act (DIA) – Rolling Without Limits: Your mobility may be limited. Your voice, boundless.

[Jim Lubin]

https://www.transfermaster.com/blog/view-post/Congress-Finally-Passes-The-Disability-Integration-Act-DIA

Congress Finally Passes The Disability Integration Act (DIA)

Disability rights advocates explained that only the passage of the Disability
Integration Act (DIA)

can
guarantee enough protection for Americans with disabilities.

Over the past 3 years, disability rights advocates have lobbied for the
passage of the Disability Integration Act (DIA)

 by Congress
.
The DIA

was
finally passed by Congress in June 2019. The act was first introduced into
Congress

by
Sen. Chuck Schumer (D-NY) and into the House by Representatives

Jim
Sensenbrenner (R-WI).

People with disabilities who need long-term services and supports are still
forced to live in institutions and are losing their civil rights. The act
is aimed at protecting the civil right of people with disabilities.
Although the provision of community-based services is the most
cost-effective way to support people with disabilities, institutional bias
remain within the Medicaid

system,
specifically where the federal government requires states to pay for
institutional care, and where coverage of most community-based services is
considered optional.

John Griffin, a member of the Independent Living Centre of South California

said,
"[The] Disability Integration Act (DIA) will help people with disabilities
across the United States to enjoy more independence and accessibility."

With the passage of the Disability Integration Act (DIA), people who are
eligible for long-term rehab services and supports would have the right to
live in their homes and receive these services, rather than live in
institutions. In other words, people with disabilities will have the legal
right to decide how they receive services and support as well as where they
are provided (i.e., in their home or institutional setting).

The DIA would also require states to increase affordable and accessible
housing for people with disabilities.

Shawn Paul, a member of United Spinal

said,
"The DIA will help governors in paying more attention to accessibility
across their various states."

The Disability Integration Act (DIA) will help secure Americans with
disabilities and help strengthen the Medicaid

 and Medicare

.

Re: [QUAD-L] anniversary

[Eric Olson]

I'm actually glad you posted.  May I ask what your disability is?  SCI?  If
so, what level?  With all the bad news lately, something positive is
welcome

On Wed, Jul 10, 2019 at 3:29 PM glenn henry  wrote:

>
>  I wasn't going to post, but I guess I will. At this time 53 years ago I
> was in surgery. I think I made it, at least on your now. The last year has
> been very rough, but we keep plugging on.
>
> Why be able to post 54, we will see.
>
> Glenn Henry/ Pennsylvania
>

Re: [QUAD-L] how is Greg?

[Judy Meredith]

I am sorry to hear about Bobbie and Greg. I too am battling a severe sore.
I don't post much lately, however they both have touched my life.

Meredith

On Sun, Jun 16, 2019, 12:12 PM Lori Michaelson 
wrote:

> I read most of this from Greg's mom on Facebook. But nothing was said
> about what he went in there for (which was deadly serious itself) -
> terrible infection that went right down to the bone from the wound he had
> that was so very deep. A wound that bad has to be seriously addressed as we
> all know. I know he was going to see a wound doctor but not sure that he
> was staying off of it as much as he should have. Anyway, I am wondering how
> that is because that infection that is body is trying to fight along with
> everything else...  :-(
>
> *Light and thoughts* (that Greg's mother requested) going to him and his
> family!
>
> On Sat, Jun 15, 2019 at 1:04 PM Jim Lubin  wrote:
>
>> I contacted Greg's mom. She told Greg the quadlist was asking how he is
>> doing. She said Greg wanted me to pass this along.
>> Thanks for everyone's concern. In a nutshell...
>> His kidney biopsy reveals that they have completely shut down and no meds
>> can reverse it. So he will probably need dialysis 3 times a week for life,
>> but there is always hope that things will reverse. They continually need to
>> drain fluid from around his lungs. Almost 2 liters on two different
>> occasions and almost one on another. They recently inserted a semi
>> permanent valve to make it easier and less invasive to drain fluid if
>> needed. He  might need to come home with a trach. The lung dr seems to
>> think so, but might only need to be hooked up to a respirator at night. He
>> looks better today. We don't know how long he will be in hospital.
>>
>> On Sat, Jun 15, 2019 at 9:58 AM Eric Olson  wrote:
>>
>>> I was also wondering how he's doing
>>>
>>> On Sat, Jun 15, 2019 at 10:40 AM Shirley Bell  wrote:
>>>
 Does anyone know how Greg is doing??

>>>
>
> --
> "Petting, scratching and cuddling a dog could be soothing to the mind and
> heart and deep meditation and almost as good for the soul as prayer." ~Dean
> Koontz
>

Re: [QUAD-L] anniversary

[Jim Lubin]

Wow 53 years. Enjoy your life!

On Wed, Jul 10, 2019 at 1:29 PM glenn henry  wrote:

>
>  I wasn't going to post, but I guess I will. At this time 53 years ago I
> was in surgery. I think I made it, at least on your now. The last year has
> been very rough, but we keep plugging on.
>
> Why be able to post 54, we will see.
>
> Glenn Henry/ Pennsylvania
>

Re: [QUAD-L] Concerns about fellow quads...

[Carla Aarssen]

My sincerest condolences to friends and family of Bobbie.
I have surgery booked next month to have very large kidney stones removed from 
both kidneys (pcnl)
Anybody have any experience with this or undergoing anesthesia? Any thoughts, 
opinions and/or suggesstions would be greatly appreciated.
Thanks,
Carla
C 4/5 Quad

Get Outlook for Android


From: Rose Chase 
Sent: Tuesday, July 9, 2019 10:46:11 PM
To: Lori Michaelson
Cc: Jim Lubin; quad-list
Subject: Re: [QUAD-L] Concerns about fellow quads...

Sorry, to hear about Bobbie Thoughts and prayers to Pete and family...Rose

On Mon, Jul 8, 2019 at 11:49 PM Lori Michaelson 
mailto:lorilivin...@gmail.com>> wrote:
I thought something might be not right with her not responding to me; 
especially after my 2nd e-mail simply saying "Are you okay?"  I was hoping she 
was because the last time we corresponded her wound (wounds) were much much 
better and one had healed completely while the other one was 99% healed.

That is a very very nice and sweet obituary. May peace and light be with her 
family and her "Sweet Pete" of so many years. Thank you for letting us know Jim.

~Lori

On Mon, Jul 8, 2019 at 8:21 PM Jim Lubin 
mailto:jlu...@eskimo.com>> wrote:
Well this sucks. I looked up Bobbie on facebook. Messages from her family she 
passed away April 12. Here is her obituary 
https://www.legacy.com/obituaries/dailyrecord/obituary.aspx?n=barbara-jean-humphreys-bobbie&pid=192614187&;

Take care all.

On Mon, Jul 8, 2019 at 6:13 PM Danny Hearn 
mailto:ddh...@sbcglobal.net>> wrote:
Yes, I Think We all wonder about each other, especially when some are sick or 
in hospital, I joined this list of Jim's back in 1998years back this list 
was so busy, almost too busy to keep up with, lolSo many of us are 
getting older and so many of us have passed---( remember some time back we were 
listing names of many that used to be on here that are now gone )  Dave from 
Arizona- Dave from Texas- Jimmy Who ran the White Donkey Tracks Flyer- Houston 
who was from Indiana I think...plus many more !   There don't seem to be a lot 
of new comers the last few years, Maybe the newer folks are on another type 
quad list??
Dan Hearn C-6  Car Accident  August 3rd 1997. ***
On Monday, July 8, 2019, 04:18:07 PM PDT, Lori Michaelson 
mailto:lorilivin...@gmail.com>> wrote:


Yes, I have certainly been wondering about Greg (who lives just 90 minutes 
north of me or so), Steve Oldaker (who I have remained great friends with for 
years and knew that he had an infection that went septic and had to be in the 
hospital and then had to be on a ventilator and going into a rehab facility for 
quadriplegics trying to get off ventilators) and Bobbie Humphrey's who I have 
e-mailed twice with no response.

It's now been since last September that I have heard from Steve. The last 
information I got was from Bobbie who gave me the latest update of him being in 
a rehab  facility but that has been a while now. I called Steve's home today 
which I have been meaning to do for a long time now but I had to leave a 
message. His parents take care of him for the most part.

I don't want this to be a gossip type e-mail but I am truly concerned about 
Greg, Steve and Bobbie (who have all had bad wounds) now. So I guess if they 
want us to know (or their family members) they will let us.

We lost Billy Kimberlin (from Florida) awhile back and the Quad list has been 
pretty quiet. I am just busy keeping alive in trying to keep up with bills 
which is getting tougher and tougher.

Hope everyone else is having a good or fair summer wherever you are!

~Lori

On Mon, Jul 8, 2019 at 2:09 PM Jim Lubin 
mailto:jlu...@eskimo.com>> wrote:
I haven't heard anything more yet. I messaged his mom on facebook.

On Mon, Jul 8, 2019 at 2:02 PM Eric Olson 
mailto:whee...@wi.rr.com>> wrote:
I just asked Jim the same thing.  I guess he's on everyone's minds.

[https://ipmcdn.avast.com/images/icons/icon-envelope-tick-round-orange-animated-no-repeat-v1.gif]
Virus-free. 
www.avast.com

On Mon, Jul 8, 2019 at 3:45 PM Don Price 
mailto:donpric...@yahoo.com>> wrote:
Does anyone have an update on Greg?

Thanks,
Don


--
“Petting, scratching, and cuddling a dog could be as soothing to the mind and 
heart as deep meditation and almost as good for the soul as prayer.” ― Dean 
Koontz


--
“Petting, scratching, and cuddling a dog could be as soothing to the mind and 
heart as deep meditation and almost as good for the soul as prayer.” ― Dean 
Koontz

[QUAD-L] anniversary

[glenn henry]

 I wasn't going to post, but I guess I will. At this time 53 years ago I
was in surgery. I think I made it, at least on your now. The last year has
been very rough, but we keep plugging on.

Why be able to post 54, we will see.

Glenn Henry/ Pennsylvania