Re: [QUAD-L] Another question for SP users
Are you in a different position during the day? When is your next catheter change? On Sat, May 1, 2021 at 12:54 PM Lori Michaelson wrote: > Definitely Eric and I hope my next catheter change will make a difference. > Why it does not happen during the day is beyond us including me. > > On Sat, May 1, 2021 at 10:51 AM Eric Olson wrote: > >> Nothing worse than waking up in a puddle of your own piss. I think that >> sometimes the catheter gets up against the bladder wall in a funky way and >> just doesn't drain well. I always start simple by changing the catheter. >> >> On Fri, Apr 30, 2021 at 3:22 PM Danny Hearn wrote: >> >>> Wow, Lori that does sound strangedo you think the catheter is in >>> place correctly and the little balloon that holds it in bladder is inflated >>> right? I'm a male so not sure if there is a difference with the SP or not. >>> We change my catheter about once a month or at 5-6 weeks at longest. You >>> have probably already tried a fresh catheter change but if not perhaps that >>> could help? Hope you can get it figured out...Us Quads have enough to worry >>> about as it is. Dan H.*** >>> >>> On Friday, April 30, 2021, 03:06:41 PM CDT, Lori Michaelson < >>> lorilivin...@gmail.com> wrote: >>> >>> >>> When I went to my urologist's office for my January 22nd of this year >>> (as expected for my every 6 month appointment with him) and he said that >>> everything looked great and instead of seeing him every 6 months I should >>> not need to see him for another year. I was going to him every 6 months to >>> see him and have him do a cystoscopy to make sure there were no more >>> 'growths' or 'polyps' that was found several years ago and was superficial >>> bladder cancer. I did not feel bad or expect the following: >>> >>> Less than 2 months later and me not having any problems... on April 16 >>> in the morning I was laying in a bunch of pee. Just out of the blue and >>> absolutely no reason for it. And it kept coming and mostly in the evening >>> after laying down and we never knew what to expect the following morning. >>> For one example, as I was doing my care this morning, I felt the pressure >>> of me not urinating through the catheter and, sure enough, it was like a >>> fountain in the air. >>> >>> I made an appointment on April 21st to see my urologist and he was as >>> surprised as I was. I have always taken oxybutynin 5mg extended release 3 >>> times a day. On Wednesday before my appointment at the end of January of >>> this year I was doing great (physically for the most part) and had no >>> problems with my bladder, spasms or anything else. I have really enjoyed >>> this urologist and he is great. Another member of the Quad list has him and >>> he likes him too. >>> >>> He gave me several boxes of Toviaz to try (which I did for a good week) >>> but it did not help. >>> >>> I was the symptomatic of a UTI but they wanted me to take a couple of >>> antibiotics for what was in my urine and had been off and on for years. >>> This week they said they were going to: antibiotic but never did. Then >>> wrote out a script for Myrbetrig (another script for bladder spasms) and >>> the co-pay for that was over $300!!! >>> >>> I asked my insurance what was the most inexpensive bladder spasm >>> medications and they said it would be Tolterodine 4 mg extended release >>> once a day. My co-pay was around $31 for 30 days. I started it yesterday at >>> dinner time. >>> >>> Last evening there was some leaking but not like this morning which was >>> having it spurt up in the air like a fountain of urine. >>> >>> I have never experienced this before. I need 2 chux on my bed, a large >>> heavy duty paper and one ABD pad that I was going to stop ordering because >>> I had always been having large amounts of vaginal discharge but that >>> discontinued quite a while ago. Now I need them. >>> >>> Have any of you with SP catheters experienced this? I am actually >>> stunned with this coming on so quickly and continuing. >>> >>> Thanks! >>> >>> -- >>> “Petting, scratching, and cuddling a dog could be as soothing to the >>> mind and heart as deep meditation and almost as good for the soul as >>> prayer.” ― Dean Koontz >>> >> > > -- > “Petting, scratching, and cuddling a dog could be as soothing to the mind > and heart as deep meditation and almost as good for the soul as prayer.” > ― Dean Koontz >
Re: [QUAD-L] Another question for SP users
Definitely Eric and I hope my next catheter change will make a difference. Why it does not happen during the day is beyond us including me. On Sat, May 1, 2021 at 10:51 AM Eric Olson wrote: > Nothing worse than waking up in a puddle of your own piss. I think that > sometimes the catheter gets up against the bladder wall in a funky way and > just doesn't drain well. I always start simple by changing the catheter. > > On Fri, Apr 30, 2021 at 3:22 PM Danny Hearn wrote: > >> Wow, Lori that does sound strangedo you think the catheter is in >> place correctly and the little balloon that holds it in bladder is inflated >> right? I'm a male so not sure if there is a difference with the SP or not. >> We change my catheter about once a month or at 5-6 weeks at longest. You >> have probably already tried a fresh catheter change but if not perhaps that >> could help? Hope you can get it figured out...Us Quads have enough to worry >> about as it is. Dan H.*** >> >> On Friday, April 30, 2021, 03:06:41 PM CDT, Lori Michaelson < >> lorilivin...@gmail.com> wrote: >> >> >> When I went to my urologist's office for my January 22nd of this year (as >> expected for my every 6 month appointment with him) and he said that >> everything looked great and instead of seeing him every 6 months I should >> not need to see him for another year. I was going to him every 6 months to >> see him and have him do a cystoscopy to make sure there were no more >> 'growths' or 'polyps' that was found several years ago and was superficial >> bladder cancer. I did not feel bad or expect the following: >> >> Less than 2 months later and me not having any problems... on April 16 in >> the morning I was laying in a bunch of pee. Just out of the blue and >> absolutely no reason for it. And it kept coming and mostly in the evening >> after laying down and we never knew what to expect the following morning. >> For one example, as I was doing my care this morning, I felt the pressure >> of me not urinating through the catheter and, sure enough, it was like a >> fountain in the air. >> >> I made an appointment on April 21st to see my urologist and he was as >> surprised as I was. I have always taken oxybutynin 5mg extended release 3 >> times a day. On Wednesday before my appointment at the end of January of >> this year I was doing great (physically for the most part) and had no >> problems with my bladder, spasms or anything else. I have really enjoyed >> this urologist and he is great. Another member of the Quad list has him and >> he likes him too. >> >> He gave me several boxes of Toviaz to try (which I did for a good week) >> but it did not help. >> >> I was the symptomatic of a UTI but they wanted me to take a couple of >> antibiotics for what was in my urine and had been off and on for years. >> This week they said they were going to: antibiotic but never did. Then >> wrote out a script for Myrbetrig (another script for bladder spasms) and >> the co-pay for that was over $300!!! >> >> I asked my insurance what was the most inexpensive bladder spasm >> medications and they said it would be Tolterodine 4 mg extended release >> once a day. My co-pay was around $31 for 30 days. I started it yesterday at >> dinner time. >> >> Last evening there was some leaking but not like this morning which was >> having it spurt up in the air like a fountain of urine. >> >> I have never experienced this before. I need 2 chux on my bed, a large >> heavy duty paper and one ABD pad that I was going to stop ordering because >> I had always been having large amounts of vaginal discharge but that >> discontinued quite a while ago. Now I need them. >> >> Have any of you with SP catheters experienced this? I am actually stunned >> with this coming on so quickly and continuing. >> >> Thanks! >> >> -- >> “Petting, scratching, and cuddling a dog could be as soothing to the mind >> and heart as deep meditation and almost as good for the soul as prayer.” >> ― Dean Koontz >> > -- “Petting, scratching, and cuddling a dog could be as soothing to the mind and heart as deep meditation and almost as good for the soul as prayer.” ― Dean Koontz
Re: [QUAD-L] Another question for SP users
Nothing worse than waking up in a puddle of your own piss. I think that sometimes the catheter gets up against the bladder wall in a funky way and just doesn't drain well. I always start simple by changing the catheter. On Fri, Apr 30, 2021 at 3:22 PM Danny Hearn wrote: > Wow, Lori that does sound strangedo you think the catheter is in place > correctly and the little balloon that holds it in bladder is inflated > right? I'm a male so not sure if there is a difference with the SP or not. > We change my catheter about once a month or at 5-6 weeks at longest. You > have probably already tried a fresh catheter change but if not perhaps that > could help? Hope you can get it figured out...Us Quads have enough to worry > about as it is. Dan H.*** > > On Friday, April 30, 2021, 03:06:41 PM CDT, Lori Michaelson < > lorilivin...@gmail.com> wrote: > > > When I went to my urologist's office for my January 22nd of this year (as > expected for my every 6 month appointment with him) and he said that > everything looked great and instead of seeing him every 6 months I should > not need to see him for another year. I was going to him every 6 months to > see him and have him do a cystoscopy to make sure there were no more > 'growths' or 'polyps' that was found several years ago and was superficial > bladder cancer. I did not feel bad or expect the following: > > Less than 2 months later and me not having any problems... on April 16 in > the morning I was laying in a bunch of pee. Just out of the blue and > absolutely no reason for it. And it kept coming and mostly in the evening > after laying down and we never knew what to expect the following morning. > For one example, as I was doing my care this morning, I felt the pressure > of me not urinating through the catheter and, sure enough, it was like a > fountain in the air. > > I made an appointment on April 21st to see my urologist and he was as > surprised as I was. I have always taken oxybutynin 5mg extended release 3 > times a day. On Wednesday before my appointment at the end of January of > this year I was doing great (physically for the most part) and had no > problems with my bladder, spasms or anything else. I have really enjoyed > this urologist and he is great. Another member of the Quad list has him and > he likes him too. > > He gave me several boxes of Toviaz to try (which I did for a good week) > but it did not help. > > I was the symptomatic of a UTI but they wanted me to take a couple of > antibiotics for what was in my urine and had been off and on for years. > This week they said they were going to: antibiotic but never did. Then > wrote out a script for Myrbetrig (another script for bladder spasms) and > the co-pay for that was over $300!!! > > I asked my insurance what was the most inexpensive bladder spasm > medications and they said it would be Tolterodine 4 mg extended release > once a day. My co-pay was around $31 for 30 days. I started it yesterday at > dinner time. > > Last evening there was some leaking but not like this morning which was > having it spurt up in the air like a fountain of urine. > > I have never experienced this before. I need 2 chux on my bed, a large > heavy duty paper and one ABD pad that I was going to stop ordering because > I had always been having large amounts of vaginal discharge but that > discontinued quite a while ago. Now I need them. > > Have any of you with SP catheters experienced this? I am actually stunned > with this coming on so quickly and continuing. > > Thanks! > > -- > “Petting, scratching, and cuddling a dog could be as soothing to the mind > and heart as deep meditation and almost as good for the soul as prayer.” > ― Dean Koontz >
