How frustrating! I wish I had answers or even suggestions. When you first told us about this, I thought it was a heart problem. I'd suggest a second opinion, but it sounds like you've already done that. I know this doesn't help but I'm praying for you
On Mon, Jan 3, 2022 at 6:53 PM Greg <g...@eskimo.com> wrote: > > Just spent another three days in the hospital because of my breathing > problem. I'm having a hard time inhaling without there being heavy > pressure. And breathing like I just run a marathon. This time they did > another CAT scan and at least found out my lung blood clots are gone. They > also did a heart Echo, an ultrasound of my heart and it came out fine. They > also did a sniff test, and it showed my diaphragm was pretty good. When I > breathe feels like a rubber band around my chest. Then I start breathing > very heavy and my shoulders go up and down just cuz it's so hard to > breathe. It started seven or eight months ago, right after I had an > ablation of my heart to fix a flutter. I had to be intubated, and right > when I came out I was breathing like this and they thought I had too much > CO2. So I was on a respirator for a week or so. But after that I still have > the breathing issues. Since then I've had to be on a respirator at night > just to help me breathe easy enough to sleep. > > I've been to at least three lung doctors, a couple different heart > doctors, the neurologist, a blood doctor, the quad doctor. No one can > figure it out. > > I thought maybe it was just getting older, muscles and lungs getting old, > and my spine is curving a bit, but it happened so fast right after the > heart ablation. > > I am scheduled for one more test, a stress test on my heart, I just hope > they can find something. I can't keep breathing like this it's constantly > hard to breathe and then gets really hard times. Like I've run a marathon > with someone sitting on my chest. > > About 3 years ago I had a pleural effusion, where fluid fills up between > your lungs. It kept coming back and I wood drain about a liter and a half a > fluid once or twice a week. But I had a procedure to fix it. I keep saying > that's what it feels like, but they all keep saying there's no fluid > anymore in there. > > I get so exhausted just typing a few words, haven't been able to go out > for almost 3 years. Just too tired and breathe too hard. > > Any ideas, > thanks Greg > >
