Hi, Greg. I was also wondering something after speaking with someone about
your email over the weekend. You mention going back to this ablation and how it
seems like everything started after that procedure approximately 8 months ago.
Then at the bottom you mentioned that you get exhausted and haven't been able
to go out for almost 3 years. I'm just curious about the tie-in of the ablation
8 months ago but having this difficulty breathing to the point of not going out
for 3 years? Jeff
On Monday, January 10, 2022, 08:49:16 AM PST, Aaron Mann
wrote:
Greg, so sorry to hear you're going through this. I can't remember if I
brought it up before, but have you had a MRI of your injury site done? Looking
for possible spurs growing into your spinal cord. Probably 25 years ago a buddy
of mine was having issues with his arms and breathing. After looking at over
everything they did a MRI of his spine where he had his injury and found that
there were bone spurs growing into his spinal cord at the injury site.
Apparently, this is something that can occur on some of us.
I will definitely keep you in my prayers and hope that our doctors keep on
hunting for what may be going on. Have you reached out to actual rehab centers
to try to get their specialists involved?
Aaron Mann
On Tue, Jan 4, 2022 at 1:20 PM Eric Olson wrote:
How frustrating! I wish I had answers or even suggestions. When you first
told us about this, I thought it was a heart problem. I'd suggest a second
opinion, but it sounds like you've already done that. I know this doesn't help
but I'm praying for you
On Mon, Jan 3, 2022 at 6:53 PM Greg wrote:
Just spent another three days in the hospital because of my breathing problem.
I'm having a hard time inhaling without there being heavy pressure. And
breathing like I just run a marathon. This time they did another CAT scan and
at least found out my lung blood clots are gone. They also did a heart Echo, an
ultrasound of my heart and it came out fine. They also did a sniff test, and it
showed my diaphragm was pretty good. When I breathe feels like a rubber band
around my chest. Then I start breathing very heavy and my shoulders go up and
down just cuz it's so hard to breathe. It started seven or eight months ago,
right after I had an ablation of my heart to fix a flutter. I had to be
intubated, and right when I came out I was breathing like this and they thought
I had too much CO2. So I was on a respirator for a week or so. But after that I
still have the breathing issues. Since then I've had to be on a respirator at
night just to help me breathe easy enough to sleep.
I've been to at least three lung doctors, a couple different heart doctors,
the neurologist, a blood doctor, the quad doctor. No one can figure it out.
I thought maybe it was just getting older, muscles and lungs getting old, and
my spine is curving a bit, but it happened so fast right after the heart
ablation.
I am scheduled for one more test, a stress test on my heart, I just hope they
can find something. I can't keep breathing like this it's constantly hard to
breathe and then gets really hard times. Like I've run a marathon with someone
sitting on my chest.
About 3 years ago I had a pleural effusion, where fluid fills up between your
lungs. It kept coming back and I wood drain about a liter and a half a fluid
once or twice a week. But I had a procedure to fix it. I keep saying that's
what it feels like, but they all keep saying there's no fluid anymore in there.
I get so exhausted just typing a few words, haven't been able to go out for
almost 3 years. Just too tired and breathe too hard.
Any ideas,
thanks Greg
