[QUAD-L] unsubscribe

[Dr. Bo Machado]

Please unsubscribe me. Thanks.
 
 
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From: linda...@comcast.net [mailto:linda...@comcast.net] 
Sent: Sunday, June 12, 2011 1:07 PM
To: Joan Anglin
Cc: quad-list
Subject: Re: [QUAD-L] Mouthstick
 
joan how do you attach the plastic mouthpiece?
Thanks Lindaf

RE: [QUAD-L] but at least I'm here to ask this question

[Dr. Bo Machado]

 
Oxygen will resolve the "low oxygen" component of sleep apnea, but not the
retained (high) CO2 component of sleep apnea. CPAP does better with
ventilation needed to reduce CO2. 
Your doctor can discuss both with you, and their significance in your case.
 
In Him,
Bo
 
 
The information contained in this email and any data files attached to this
email are to be considered confidential and for the sole use of the intended
recipient. Use, disclosure, or dissemination of the information contained in
this email by persons other than the intended recipient is prohibited by
law. If you have received this email in error, please notify the sender
immediately and delete the original from your system. All emails are
confidential and use of this email or any of it's contents in anyway not
beneficial to HealthFirst is strictly forbidden.
  _  

From: Derrick [mailto:whe...@cvn.net] 
Sent: Wednesday, April 13, 2011 7:59 PM
To: gah17...@aol.com; quad-list@eskimo.com
Subject: Re: [QUAD-L] but at least I'm here to ask this question
 
I have severe sleep apena and use a cpap machine w/ quanto mask.
It sucks wearing the mask.I've tried many masks and one that you bite.
 
I put key rings on the bottom straps so that I can take it on and off but I
still have troubles getting it to not leak.
I might wear it all night a few nights per week. Depends on tiredness.I live
alone.
 
I think oxygen would be much easier to deal with. I did not know it was an
option for apena.
Derrick c/5
 
- Original Message - 
From: gah17...@aol.com 
To: quad-list@eskimo.com 
Sent: Wednesday, April 13, 2011 3:50 PM
Subject: [QUAD-L] but at least I'm here to ask this question
 
Whow, what a wild ride.  I have not been feeling good for the last few weeks
and on Saturday evening after getting into bed I felt short of breath.  My
wife was in the kitchen, and ask if I was okay, but was able to take on much
conversation.  As the moments when on it was clear I needed to call an
ambulance.  After losing consciousness, I finally came to in the ambulance
as we went to the hospital.
 
Well, one doctor thinks pneumonia the other bronchitis.  Thinking was that
my airway got clogged with mucus and I could not breathe.  Now, the stupid
doctors have me on or medications that I can name, a nebulizer and oxygen
while I sleep.
 
I've never had any issues like this in the past, and I don't expect to have
another, but then again that may change.  Can anyone give me a little
insight into the following:
 
Does anyone use oxygen while they sleep?  The doctor says I have sleep apnea
and that I need it.  My injury is C-5/6.
 
Anybody have issues with a lot of mucus eventually shutting off your
breathing?
 
Also would like to hear what medications you are on
 
 
Thanks,
 
Glenn Henry

RE: [QUAD-L] but at least I'm here to ask this question

[Dr. Bo Machado]

 
Glen, 
Pneumonia is really just Bronchitis that is a bit farther down in the lungs
(in the alveoli, not just the bronchus). Pneumonia has closer access to the
blood stream (in the capillaries of the alveoli) and has a greater affect on
oxygen exchange between air and blood, therefore can be more dangerous
(sepsis and low oxygen levels respectively) than bronchitis.
 
If your oxygen levels were low, but rebounded to your normal after
treatment, then you had pneumonia (most likely). Remember, the difference
between pneumonia and Bronchitis is mostly semantics in that the treatment
is essentially identical. Same or similar meds, etc.
If your oxygen levels are always lower at night due to s. apnea, then
dangerously low oxygen levels are even easier to occur with lung infection.
If your blood pressure dropped too low (and caused your unconsciousness),
then sepsis may have been present as well.
If your BP is normally low (common w/ SCI), then its even easier to drop BP
levels to "pass out" levels- even without sepsis.
 
Your mucous plug theory would likely cause elevated CO2 (ventilation issue)
but usually doesn't cause low oxygen levels unless the plugging is very
significant.
 
I am glad to discuss your meds if you are concerned. It sounds like your
docs have nailed everything perfectly. The nebulizers help clear secretions/
mucous and the infection. If you docs have done something particular to
cause you to doubt them, let me know if I can help clear up thise doubts.
You deserve the best. Your courage alone deserves honor.
 
In Him,
Bo
 
 
The information contained in this email and any data files attached to this
email are to be considered confidential and for the sole use of the intended
recipient. Use, disclosure, or dissemination of the information contained in
this email by persons other than the intended recipient is prohibited by
law. If you have received this email in error, please notify the sender
immediately and delete the original from your system. All emails are
confidential and use of this email or any of it's contents in anyway not
beneficial to HealthFirst is strictly forbidden.
  _  

From: Eric W Rudd [mailto:c5sc...@gmail.com] 
Sent: Wednesday, April 13, 2011 7:44 PM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] but at least I'm here to ask this question
 
can u raise the head of the bed? or use pillows to elevate ur upper body?
 
Eric W Rudd
c5sc...@gmail.com
- Original Message - 
From: gah17...@aol.com 
To: quad-list@eskimo.com 
Sent: Wednesday, April 13, 2011 2:50 PM
Subject: [QUAD-L] but at least I'm here to ask this question
 
Whow, what a wild ride.  I have not been feeling good for the last few weeks
and on Saturday evening after getting into bed I felt short of breath.  My
wife was in the kitchen, and ask if I was okay, but was able to take on much
conversation.  As the moments when on it was clear I needed to call an
ambulance.  After losing consciousness, I finally came to in the ambulance
as we went to the hospital.
 
Well, one doctor thinks pneumonia the other bronchitis.  Thinking was that
my airway got clogged with mucus and I could not breathe.  Now, the stupid
doctors have me on or medications that I can name, a nebulizer and oxygen
while I sleep.
 
I've never had any issues like this in the past, and I don't expect to have
another, but then again that may change.  Can anyone give me a little
insight into the following:
 
Does anyone use oxygen while they sleep?  The doctor says I have sleep apnea
and that I need it.  My injury is C-5/6.
 
Anybody have issues with a lot of mucus eventually shutting off your
breathing?
 
Also would like to hear what medications you are on
 
 
Thanks,
 
Glenn Henry

RE: [QUAD-L] but at least I'm here to ask this question

[Dr. Bo Machado]

Glen, 
Pneumonia is really just Bronchitis that is a bit farther down in the lungs
(in the alveoli, not just the bronchus). Pneumonia has closer access to the
blood stream (in the capillaries of the alveoli) and has a greater affect on
oxygen exchange between air and blood, therefore can be more dangerous
(sepsis and low oxygen levels respectively) than bronchitis.
 
If your oxygen levels were low, but rebounded to your normal after
treatment, then you had pneumonia (most likely). Remember, the difference
between pneumonia and Bronchitis is mostly semantics in that the treatment
is essentially identical. Same or similar meds, etc.
If your oxygen levels are always lower at night due to s. apnea, then
dangerously low oxygen levels are even easier to occur with lung infection.
If your blood pressure dropped too low (and caused your unconsciousness),
then sepsis may have been present as well.
If your BP is normally low (common w/ SCI), then its even easier to drop BP
levels to "pass out" levels- even without sepsis.
 
Your mucous plug theory would likely cause elevated CO2 (ventilation issue)
but usually doesn't cause low oxygen levels unless the plugging is very
significant.
 
I am glad to discuss your meds if you are concerned. It sounds like your
docs have nailed everything perfectly. The nebulizers help clear secretions/
mucous and the infection. If you docs have done something particular to
cause you to doubt them, let me know if I can help clear up thise doubts.
You deserve the best. Your courage alone deserves honor.
 
In Him,
Bo
 
 
The information contained in this email and any data files attached to this
email are to be considered confidential and for the sole use of the intended
recipient. Use, disclosure, or dissemination of the information contained in
this email by persons other than the intended recipient is prohibited by
law. If you have received this email in error, please notify the sender
immediately and delete the original from your system. All emails are
confidential and use of this email or any of it's contents in anyway not
beneficial to HealthFirst is strictly forbidden.
  _  

From: Eric W Rudd [mailto:c5sc...@gmail.com] 
Sent: Wednesday, April 13, 2011 7:44 PM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] but at least I'm here to ask this question
 
can u raise the head of the bed? or use pillows to elevate ur upper body?
 
Eric W Rudd
c5sc...@gmail.com
- Original Message - 
From: gah17...@aol.com 
To: quad-list@eskimo.com 
Sent: Wednesday, April 13, 2011 2:50 PM
Subject: [QUAD-L] but at least I'm here to ask this question
 
Whow, what a wild ride.  I have not been feeling good for the last few weeks
and on Saturday evening after getting into bed I felt short of breath.  My
wife was in the kitchen, and ask if I was okay, but was able to take on much
conversation.  As the moments when on it was clear I needed to call an
ambulance.  After losing consciousness, I finally came to in the ambulance
as we went to the hospital.
 
Well, one doctor thinks pneumonia the other bronchitis.  Thinking was that
my airway got clogged with mucus and I could not breathe.  Now, the stupid
doctors have me on or medications that I can name, a nebulizer and oxygen
while I sleep.
 
I've never had any issues like this in the past, and I don't expect to have
another, but then again that may change.  Can anyone give me a little
insight into the following:
 
Does anyone use oxygen while they sleep?  The doctor says I have sleep apnea
and that I need it.  My injury is C-5/6.
 
Anybody have issues with a lot of mucus eventually shutting off your
breathing?
 
Also would like to hear what medications you are on
 
 
Thanks,
 
Glenn Henry

RE: [QUAD-L] but at least I'm here to ask this question

[Dr. Bo Machado]

Oxygen will resolve the "low oxygen" component of sleep apnea, but not the
retained (high) CO2 component of sleep apnea. CPAP does better with
ventilation needed to reduce CO2. 
Your doctor can discuss both with you, and their significance in your case.
 
In Him,
Bo
 
 
The information contained in this email and any data files attached to this
email are to be considered confidential and for the sole use of the intended
recipient. Use, disclosure, or dissemination of the information contained in
this email by persons other than the intended recipient is prohibited by
law. If you have received this email in error, please notify the sender
immediately and delete the original from your system. All emails are
confidential and use of this email or any of it's contents in anyway not
beneficial to HealthFirst is strictly forbidden.
  _  

From: Derrick [mailto:whe...@cvn.net] 
Sent: Wednesday, April 13, 2011 7:59 PM
To: gah17...@aol.com; quad-list@eskimo.com
Subject: Re: [QUAD-L] but at least I'm here to ask this question
 
I have severe sleep apena and use a cpap machine w/ quanto mask.
It sucks wearing the mask.I've tried many masks and one that you bite.
 
I put key rings on the bottom straps so that I can take it on and off but I
still have troubles getting it to not leak.
I might wear it all night a few nights per week. Depends on tiredness.I live
alone.
 
I think oxygen would be much easier to deal with. I did not know it was an
option for apena.
Derrick c/5
 
- Original Message - 
From: gah17...@aol.com 
To: quad-list@eskimo.com 
Sent: Wednesday, April 13, 2011 3:50 PM
Subject: [QUAD-L] but at least I'm here to ask this question
 
Whow, what a wild ride.  I have not been feeling good for the last few weeks
and on Saturday evening after getting into bed I felt short of breath.  My
wife was in the kitchen, and ask if I was okay, but was able to take on much
conversation.  As the moments when on it was clear I needed to call an
ambulance.  After losing consciousness, I finally came to in the ambulance
as we went to the hospital.
 
Well, one doctor thinks pneumonia the other bronchitis.  Thinking was that
my airway got clogged with mucus and I could not breathe.  Now, the stupid
doctors have me on or medications that I can name, a nebulizer and oxygen
while I sleep.
 
I've never had any issues like this in the past, and I don't expect to have
another, but then again that may change.  Can anyone give me a little
insight into the following:
 
Does anyone use oxygen while they sleep?  The doctor says I have sleep apnea
and that I need it.  My injury is C-5/6.
 
Anybody have issues with a lot of mucus eventually shutting off your
breathing?
 
Also would like to hear what medications you are on
 
 
Thanks,
 
Glenn Henry

RE: [QUAD-L] The 10 Best Hospitals for Wheelchair Users

[Dr. Bo Machado]

KK,
I practice in Charleston, SC. My father fell in July, sustaining a near
complete C4 SCI. My sister and I spent months at his bedside, trying to get
Dad the best care possible. Sadly, it was difficult to succeed. Dad's case
is severe and difficult, and taxed the dedication, experience, and devotion
of the rehab hospitals we had him in (3 in total, due to Medicare time
restraints). I have CCed my sister, Ann. She may be able to add to my
comments. We were in and near the Woodlands hospitals for months ending in
Nov, 2010.
 
I would say that Dr Hire ("Dr Hear") at Reliant Hospital was the best for
SCI. DR Latta, at Health South and at Triumph Hospital was a very close
second, and either could care for me anytime. Dr Latta was very good at
personally investing in my Dad's story and case. DR Hire may have had a bit
more experience w/ SCI complications, but the 2 are so close, it becomes a
matter of preference, and not science.
 
Relient was the best of the 3 hospitals, I believe. All 3 failed to perform
at my practice standards, forgetting to keep pressure off the wound, head
above bed by 30 degrees, etc. The minor details matter to me. I believe in
saving pennies and I believe in aiming for perfection. In both cases, the
little things can add up to wins for my Dad's recovery. Scientifically, that
may be hard to prove, but I still try to give every detail my best, while
majoring on the majors.
 
The PT at Triumph was dismal, due to a ego disorder in the PT director.
Speech was poor there as well. The ST was going thru a divorce and missed
treatments on my Dad, a patient who lost his only means of communication
(speech) due to a post operative stroke.
 
PT at HealthSouth was pretty good, except that there is a systematic flaw in
the way that Rehab hospitals do rounds. See below. PT/OT at HS included
Joseph Becker (director), and others. Speech there was weak until we got
them to bring in Ann McDonald, and independent Speech Therapist (not near
Bryan, Texas?).
 
Rounds at all 3 Rehab Hospitals I experienced have a fatal flaw. (I believe
this flaw is present in 99% to 100% of Rehab Hospitals. I know it is present
in TIRR as well). The fatal flaw = The therapist treating the patient write
reports that are read and summarized by the director during rounds.
Decisions are made by the Rehab Doctor using this second hand, nonverbal
communication. Medicare and private insurance companies also rely on this
poor communication method to deny care. I do not allow second hand
communication in my ER. (If Mary saw a complication in a case, I need to
hear it from Mary, and see her face as she relates what she saw. Written
charts will NEVER replace that level of communication).
 
The senator will probably do well, and that was a major reason TIRR took
her. She will recover well and they will get the credit and the federal
grants. It would have been politically dangerous to refuse this case, no
matter what the prognosis. I believe she would have been accepted in any
case, even if she had sustained the much more deadly bilateral injury. 
 
In summary, Heaven is aware of the burden and oppression that exist for SCI
pts. God will more than make up for the suffering endured at the hands of a
broken world. Jodi Erickson Tada can speak to this with more authority than
I. Until Heaven, I would trust the above doctors and Health South therapist
(except ST). Reliant therapist may be just as good. Avoid Triumph therapist
until their emotional ills are resolved and the patients become more
important than themselves.
 
In His Reliable Grip,
Dr Bo
 
  _  

From: KK [mailto:kkba...@yahoo.com] 
Sent: Monday, January 31, 2011 9:57 AM
To: Dr. Bo Machado; MS Quads
Subject: Re: [QUAD-L] The 10 Best Hospitals for Wheelchair Users
 
Dr Bo,

Are you in the Houston area?  I figured the senator got to TIRR because her
husband was a NASA employee & had big news following.

I am in The Woodlands, above Houston.  Haven't had much luck finding help in
my area.

KK
 
  _  

From: Dr. Bo Machado 
To: KK ; MS Quads ;
quad-list@eskimo.com
Sent: Mon, January 31, 2011 8:30:50 AM
Subject: RE: [QUAD-L] The 10 Best Hospitals for Wheelchair Users
I have personal experience w/ TIRR in Houston. Here are the sobering facts:
*   TIRR boast great success because they turn down patients that have a
poorer prognosis. For example, they have a wound team but will not take
patients with a wound. This is a fact I have PERSONNALY witnessed.
o   Athletes, younger patients, no wounds,.
*   Good numbers leads to good grants and federal funding and US News
and World Reports top 10.
This an unhealthy cycle IF you are excluded from admission. It could be a
blessing if you get accepted, but I am not scientifically convinced they
have better skills and results due to the patient selection bias. They DO
have more and newer gizmos, but gizmos often do change outcome.
The best care will come from a team that PERSONALLY invest in y

RE: [QUAD-L] The 10 Best Hospitals for Wheelchair Users

[Dr. Bo Machado]

I have personal experience w/ TIRR in Houston. Here are the sobering facts:
*   TIRR boast great success because they turn down patients that have a
poorer prognosis. For example, they have a wound team but will not take
patients with a wound. This is a fact I have PERSONNALY witnessed.
o   Athletes, younger patients, no wounds,.
*   Good numbers leads to good grants and federal funding and US News
and World Reports top 10.

This an unhealthy cycle IF you are excluded from admission. It could be a
blessing if you get accepted, but I am not scientifically convinced they
have better skills and results due to the patient selection bias. They DO
have more and newer gizmos, but gizmos often do change outcome.

The best care will come from a team that PERSONALLY invest in you AND has
LOTS OF EXPERIENCE with your type of injury. That could be in any town!!

You all are often in my prayers,
Bo Machado MD

-Original Message-
From: KK [mailto:kkba...@yahoo.com] 
Sent: Monday, January 31, 2011 9:18 AM
To: MS Quads; quad-list@eskimo.com
Subject: [QUAD-L] The 10 Best Hospitals for Wheelchair Users

http://www.wheelchairpride.com/2011/01/10-best-hospitals-for-wheelchair-user
s.html
*

This is only part of the article.


So, what were the top ten hospitals for wheelchair users according to
rehabilitation physicians selected by US News and World Report?

1. Rehabilitation Institute of Chicago, Chicago Ill


2. Kessler Institute for Rehabilitation, West Orange, NJ


3. University of Washington Medical Center, Seattle, WA


4. Spaulding Rehabilitation Hospital, Boston, MA


5. TIRR Memorial Hermann, Houston, TX


6. Mayo Clinic, Rochester, MN


7. Craig Hospital, Englewood, CO


8. Rusk Institute, NYU Langone Medical Center, New York, NY


9. Shepherd Center, Atlanta, GA


10. Moss Rehab, Elkins Park, PA

[QUAD-L] Temporary removal from list.

[Dr. Bo Machado]

To whom it may concern- May I be temporarily removed off the mailing list? I
am traveling until 11/22. I will be forwarding my emails to my phone and my
phone cannot handle the volume of emails that my lap top can.
I would like to be "re-instated" on 11/22 if possible. 
In His Grip,
Bo Machado MD
 
  _  

From: Lori Michaelson [mailto:lorilivin...@gmail.com] 
Sent: Monday, November 08, 2010 6:19 PM
To: Eric W Rudd; quad-list
Subject: Re: [QUAD-L] Permobil or Invacare
 
Oh, I most definitely did not think you did not do your research! I know you
better than that. :-)
I am just curious (and I am sure that many other people are for when they
need new chairs) WHAT chairs people are choosing and WHY.
That is great that you are getting a leg bag opener put on it!!!
What color did you pick? The DEMO that my husband brought back today is a
shiny red color around the base and the tire rims. I like the red color but
not sure right now what color I will end up choosing.
Again, thanks again for your information! And hope you get it sooner than
later!
Lori
 
On Mon, Nov 8, 2010 at 3:59 PM, Eric W Rudd  wrote:
The closer dealer is not 'permobil authorized' & the previous permobil
dealer went under.  Believe me I've done alot of research, including
wheelchairjunkie.
 
lol it surely can't be 2 much longer til it arrives...he has it but was
waiting for my legbag emptier.
 
Eric W Rudd
  c5sc...@gmail.com
- Original Message - 
From:   Lori Michaelson 
To:   quad-list 
Sent: Monday, November 08, 2010 2:48 PM
Subject: Re: [QUAD-L] Permobil or Invacare
 
Hi Eric,
If you "much prefer your Permobiles over your Invacare solely due to
reliability" I would be very leery of changing.  ESPECIALLY after having TWO
Permobiles to more or less prove that.
Even though the dealer for A Quantum is much closer... just curious as to
why you would want to change?  Because I would put reliability first or
before getting another chair.
For example, my dealer/vendor is not exactly close by for WHICHEVER chair I
use ... but I surely want one that I know has been reliable <--- to avoid
going to the shop x-number of times.
Any idea when your Quantum will arrive?  I know these days that it takes 6+
months to GET any new chair so it is just a waiting game for you or can you
call someone every once in a while to get an idea of when to expect it?
Thanks in advance!
Lori
On Mon, Nov 8, 2010 at 12:21 PM, Eric W Rudd  wrote:
Personally, I much prefer my Permobils over my Invacare solely due to
reliability.  After having 2 Permobils I've decided to try a Quantum due to
a very close dealer.
 
Eric W Rudd
  c5sc...@gmail.com
- Original Message - 
From:   Derrick 
To:   quad-list@eskimo.com 
Sent: Monday, November 08, 2010 1:07 PM
Subject: [QUAD-L] Permobil or Invacare
 
I have had electric Invacare wheelchairs all my years with c/5 sci.
 
I hear Permobil is better and my vendor is bringing one for evaluation.
Which do you prefer and why?
 
Any suggested questions that I should ask?
Thanks,
Derrick
Ps:if you get a message from my spamblocker whenn replying -do not worry
i'll get your message
 
 



-- 
Lori 
Age - 46
C4/5 complete quad, 31 years post
Tucson, AZ



-- 
Lori 
Age - 46
C4/5 complete quad, 31 years post
Tucson, AZ

RE: [QUAD-L] RE: Quiet vs Loud

[Dr. Bo Machado]

Thanks to all the replies. You all are a God-Send. 
I have an abd binder in hand to show Speech Tx in the am. 
In His Grip,
Bo
 
  _  

From: wheelch...@aol.com [mailto:wheelch...@aol.com] 
Sent: Tuesday, September 28, 2010 9:44 PM
To: quad...@gmail.com; quad-list@eskimo.com
Subject: Re: [QUAD-L] RE: Quiet vs Loud
 
Ab Binders also do well in helping coughing assist too.
Best Wishes
 
In a message dated 9/28/2010 5:31:14 P.M. Central Daylight Time,
quad...@gmail.com writes:
Abdominal binders have had a tremendous impact on my ability to talk
effectively and breathe better.  Not to mention that it helps significantly
with posture.  I never get up without an abdominal binder on.
Q
On Mon, Sep 27, 2010 at 9:00 AM,  wrote:
Yes, but keep in mind that it is most difficult to make a computer health
suggestion in a totally blind situation.  Your Dad's doctors, nurses and
therapists are more aware of your Dad's physical health and conditions.  I'm
merely tossing darts, into the wind and guessing.
I hope your dad continue to make enough progress..
Best Wishes
 
In a message dated 9/27/2010 7:57:04 A.M. Central Daylight Time,
d...@hf-rc.com writes:
Thank you for your comments. Abdominal binder has not been mentioned in 2
months of rehab hospital, I will ask.
So, If I understand you correctly, many c5 CSIs have weak expiratory force
and no voice. My Dad's case is not uncommon, and the solution is PT,
?binder, and TIME, TIME, TIME,
 
Let me know if I have it, 
In Him,
Bo
 

  _  

From: wheelch...@aol.com [mailto:wheelch...@aol.com] 
Sent: Monday, September 27, 2010 8:48 AM
To: d...@hf-rc.com; static...@roadrunner.com; swl...@gmail.com;
quad-list@eskimo.com
Subject: Quiet vs Loud
 
Hi Bo,  the healing process differs greatly among those with spinal cord
injuries.  The nerves to your Dad's diaphragm were damaged, thus the quiet
voice.  As time passes, with good physical therapy and some return function
his voice should become stronger.  Ask his doctor about an abdominal binder
to lift the diaphragm and support it.  His physical therapist should be
advising you on this and whether it may work with your Dad.
 
Best Wishes
 
In a message dated 9/26/2010 11:10:33 P.M. Central Daylight Time,
d...@hf-rc.com writes:
My dad has a recent c5 Fx and is not vent dependant, but has too little
breath to have voice. It that typical of C5 level quadriplegia? Many of you
have higher injuries. Do you have enough expiratory force to create voice?
In Him,
Bo
 

  _  

From: Daniel Espinoza [mailto:static...@roadrunner.com] 
Sent: Sunday, September 26, 2010 11:56 PM
To: 'Fragile'; 'quad-list'
Subject: RE: [QUAD-L] pain
 
I take 200mg per day 
 
Danny Espinoza 27/m/California
Occupation before accident:
Network engineer / SR. Network security engineer
What happened:
I broke my c2,c6,c7 in a horrible car accident
Traumatic brain injury from blood going to central cortex from spinal cord
not vent dependendent anymore. :]
My website: 
http://www.thespinalcordinjured.net  
 My social networking sites:
http://www.myspace.com/DannyLNX
http://www.facebook.com/DannyLNX
 
 
From: Fragile [mailto:swl...@gmail.com] 
Sent: Saturday, September 25, 2010 5:06 PM
To: quad-list
Subject: Re: [QUAD-L] pain
 
Lyrica 800 mg twice a day?  I take 300 mg twice a day and I can't think
straight.  Was told 900 mg per day was the max.
On Sat, Sep 25, 2010 at 4:59 PM,  wrote:
Dana, I take Vicodin four times a day, Lyrica 800 mg twice a day, Cymbalta
60 mg once a day, and 150 mcg of Duragesic pain patch. What is causing the
pain in his shoulder? I ask because I have a two finger subluxation in my
right shoulder, and it's very painful. All the arm braces I have tried,
cause pain somewhere else.
In a message dated 9/24/2010 12:55:45 P.M. Eastern Daylight Time,
daa...@aol.com writes:
 
What do any of you take for pain and the inability to sleep? Is there any
kind of shot for shoulder pain?
 
Thank you,
Dana
C-4-5, 36 years post, Prairie Village, Kansas
 
 

RE: [QUAD-L] Hand numbness

[Dr. Bo Machado]

Dan- ISI3 study = only 3% of MIs have tingling, 85% have Pain. Tingling is
NOT a common sign of MI. Stroke are usually PAIN free. They typically have
motor loss, not pain. I would never give you bad information.
 
The folks on this forum have been very kind and helpful to me since my
father's fall and quadriplegia. I was just trying to repay the favor.
 
Hope that clarifies a common myth.
In Him,
Bo Machado MD, FACEP
 
 
  _  

From: Dan [mailto:d...@unh.edu] 
Sent: Monday, September 27, 2010 9:13 PM
To: quad-list@eskimo.com
Subject: RE: [QUAD-L] Hand numbness
 
Is it just me that thanks Dr. BO must have received his medical degree
through the Internet? For a doctor he doesn't seem to know a whole lot.

Through his fingers,

Dan

At 04:51 PM 9/27/2010, Dr. Bo Machado said something that elicited my
response:
 


Tingling is NOT usually a s/s of a stroke or heart attack. Do not be worried
about that. Focus on Peripheral Nerve issues, like compression of the Ulnar
Nerve as it becomes more superficial at the elbow.
Hope that relieves some worry,
Dr Bo
 
  _  

From: diannal...@aol.com [ mailto:diannal...@aol.com
<mailto:diannal...@aol.com> ] 
Sent: Monday, September 27, 2010 1:47 PM
To: todd.daughe...@gmail.com; quad-list@eskimo.com
Subject: Re: [QUAD-L] Hand numbness
 
In a message dated 9/27/2010 10:42:58 AM Eastern Daylight Time,
todd.daughe...@gmail.com writes:
I am C-6 Inc and six days ago my pinky finger as well as the side of my hand
all the way to the wrist has gone numb. There is no swelling or bruising,
and i still can do everything i need throughout the day. 
Todd,
I get this and sometimes my finger tips feel like a thousand needle pricks.
Symptoms of heart attack or stroke. I think it's just from being a quad. The
next day something else is bugging me.
Dianna
 

RE: [QUAD-L] Hand numbness

[Dr. Bo Machado]

Tingling is NOT usually a s/s of a stroke or heart attack. Do not be worried
about that. Focus on Peripheral Nerve issues, like compression of the Ulnar
Nerve as it becomes more superficial at the elbow.
Hope that relieves some worry,
Dr Bo
 
  _  

From: diannal...@aol.com [mailto:diannal...@aol.com] 
Sent: Monday, September 27, 2010 1:47 PM
To: todd.daughe...@gmail.com; quad-list@eskimo.com
Subject: Re: [QUAD-L] Hand numbness
 
In a message dated 9/27/2010 10:42:58 AM Eastern Daylight Time,
todd.daughe...@gmail.com writes:
I am C-6 Inc and six days ago my pinky finger as well as the side of my hand
all the way to the wrist has gone numb. There is no swelling or bruising,
and i still can do everything i need throughout the day. 
Todd,
I get this and sometimes my finger tips feel like a thousand needle pricks.
Symptoms of heart attack or stroke. I think it's just from being a quad. The
next day something else is bugging me.
Dianna
 

RE: [QUAD-L] Hand numbness

[Dr. Bo Machado]

Probably put pressure on Ulnar Nerve and that resulted in the numbness.
Should resolve is pressure is not repeated.
Bo

-Original Message-
From: todd.daughe...@gmail.com [mailto:todd.daughe...@gmail.com] 
Sent: Monday, September 27, 2010 10:43 AM
To: Quad-List
Subject: [QUAD-L] Hand numbness

I am C-6 Inc and six days ago my pinky finger as well as the side of my hand
all the way to the wrist has gone numb. There is no swelling or bruising,
and i still can do everything i need throughout the day. 

I'm on an hsa so trying to avoid hospital. 

Todd

RE: [QUAD-L] voice

[Dr. Bo Machado]

How long, after off the vent, did it take for your voice to be heard above a
whisper?
In His Grip,
Bo

-Original Message-
From: Mark BB [mailto:m...@jamtanker.co.uk] 
Sent: Monday, September 27, 2010 10:01 AM
To: quad-list@eskimo.com
Cc: Dr. Bo Machado
Subject: Fwd: [QUAD-L] voice

Same for me here

I'm C3/4 half of my diaphragm is paralyzed. I was on a ventilator 6 months
and was slowly taken off of it. I do have a quiet  voice and cannot be heard
in loud places

Regards, Mark

Age 46
C3/4 Complete since 1986

http://www.markbb.co.uk


Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: "Daniel Espinoza" 
> Date: 27 September 2010 12:42:45 GMT+01:00
> To: "', "'Fragile'" , "'quad-list'"

> Subject: RE: [QUAD-L] pain
> 
> Yes however the injury was asymmetrical so half of my diaphragm is
paralyzed. I was on a ventilator when I went for my rehabilitation at Craig
hospital and was slowly taken off of it. I do have a quiet  voice and cannot
really yell either..
> What's your fathers functional injury level?
>  
> Danny Espinoza 27/m/California
> Occupation before accident:
> Network engineer / SR. Network security engineer
> What happened:
> I broke my c2,c6,c7 in a horrible car accident
> Traumatic brain injury from blood going to central cortex from spinal cord
> not vent dependendent anymore. :]
> My website:
> http://www.thespinalcordinjured.net
>  My social networking sites:
> http://www.myspace.com/DannyLNX
> http://www.facebook.com/DannyLNX
>  
>  
> From: Dr. Bo Machado [mailto:d...@hf-rc.com] 
> Sent: Sunday, September 26, 2010 9:10 PM
> To: 'Daniel Espinoza'; 'Fragile'; 'quad-list'
> Subject: RE: [QUAD-L] pain
>  
> My dad has a recent c5 Fx and is not vent dependant, but has too little
breath to have voice. It that typical of C5 level quadriplegia? Many of you
have higher injuries. Do you have enough expiratory force to create voice?
> In Him,
> Bo
>  
> From: Daniel Espinoza [mailto:static...@roadrunner.com] 
> Sent: Sunday, September 26, 2010 11:56 PM
> To: 'Fragile'; 'quad-list'
> Subject: RE: [QUAD-L] pain
>  
> I take 200mg per day
>  
> Danny Espinoza 27/m/California
> Occupation before accident:
> Network engineer / SR. Network security engineer
> What happened:
> I broke my c2,c6,c7 in a horrible car accident
> Traumatic brain injury from blood going to central cortex from spinal cord
> not vent dependendent anymore. :]
> My website:
> http://www.thespinalcordinjured.net
>  My social networking sites:
> http://www.myspace.com/DannyLNX
> http://www.facebook.com/DannyLNX
>  
>  
> From: Fragile [mailto:swl...@gmail.com] 
> Sent: Saturday, September 25, 2010 5:06 PM
> To: quad-list
> Subject: Re: [QUAD-L] pain
>  
> Lyrica 800 mg twice a day?  I take 300 mg twice a day and I can't think
straight.  Was told 900 mg per day was the max.
> 
> On Sat, Sep 25, 2010 at 4:59 PM,  wrote:
> Dana, I take Vicodin four times a day, Lyrica 800 mg twice a day, Cymbalta
60 mg once a day, and 150 mcg of Duragesic pain patch. What is causing the
pain in his shoulder? I ask because I have a two finger subluxation in my
right shoulder, and it's very painful. All the arm braces I have tried,
cause pain somewhere else.
> In a message dated 9/24/2010 12:55:45 P.M. Eastern Daylight Time,
daa...@aol.com writes:
>  
> What do any of you take for pain and the inability to sleep? Is there any
kind of shot for shoulder pain?
>  
> Thank you,
> Dana
> C-4-5, 36 years post, Prairie Village, Kansas
>  

RE: [QUAD-L] pain

[Dr. Bo Machado]

His functional level is C5 or so. He has shoulder shrug, and had L bicepts
and tricepts, but less now. 
In His Grip,
Bo
 
  _  

From: Daniel Espinoza [mailto:static...@roadrunner.com] 
Sent: Monday, September 27, 2010 7:43 AM
To: 'Dr. Bo Machado'; 'Fragile'; 'quad-list'
Subject: RE: [QUAD-L] pain
 
Yes however the injury was asymmetrical so half of my diaphragm is
paralyzed. I was on a ventilator when I went for my rehabilitation at Craig
hospital and was slowly taken off of it. I do have a quiet  voice and cannot
really yell either..
What's your fathers functional injury level?
 
Danny Espinoza 27/m/California
Occupation before accident:
Network engineer / SR. Network security engineer
What happened:
I broke my c2,c6,c7 in a horrible car accident
Traumatic brain injury from blood going to central cortex from spinal cord
not vent dependendent anymore. :]
My website: 
http://www.thespinalcordinjured.net <http://www.thespinalcordinjured.net/> 
 My social networking sites:
http://www.myspace.com/DannyLNX
http://www.facebook.com/DannyLNX
 
 
From: Dr. Bo Machado [mailto:d...@hf-rc.com] 
Sent: Sunday, September 26, 2010 9:10 PM
To: 'Daniel Espinoza'; 'Fragile'; 'quad-list'
Subject: RE: [QUAD-L] pain
 
My dad has a recent c5 Fx and is not vent dependant, but has too little
breath to have voice. It that typical of C5 level quadriplegia? Many of you
have higher injuries. Do you have enough expiratory force to create voice?
In Him,
Bo
 
  _  

From: Daniel Espinoza [mailto:static...@roadrunner.com] 
Sent: Sunday, September 26, 2010 11:56 PM
To: 'Fragile'; 'quad-list'
Subject: RE: [QUAD-L] pain
 
I take 200mg per day 
 
Danny Espinoza 27/m/California
Occupation before accident:
Network engineer / SR. Network security engineer
What happened:
I broke my c2,c6,c7 in a horrible car accident
Traumatic brain injury from blood going to central cortex from spinal cord
not vent dependendent anymore. :]
My website: 
http://www.thespinalcordinjured.net <http://www.thespinalcordinjured.net/> 
 My social networking sites:
http://www.myspace.com/DannyLNX
http://www.facebook.com/DannyLNX
 
 
From: Fragile [mailto:swl...@gmail.com] 
Sent: Saturday, September 25, 2010 5:06 PM
To: quad-list
Subject: Re: [QUAD-L] pain
 
Lyrica 800 mg twice a day?  I take 300 mg twice a day and I can't think
straight.  Was told 900 mg per day was the max.
On Sat, Sep 25, 2010 at 4:59 PM,  wrote:
Dana, I take Vicodin four times a day, Lyrica 800 mg twice a day, Cymbalta
60 mg once a day, and 150 mcg of Duragesic pain patch. What is causing the
pain in his shoulder? I ask because I have a two finger subluxation in my
right shoulder, and it's very painful. All the arm braces I have tried,
cause pain somewhere else.
In a message dated 9/24/2010 12:55:45 P.M. Eastern Daylight Time,
daa...@aol.com writes:
 
What do any of you take for pain and the inability to sleep? Is there any
kind of shot for shoulder pain?
 
Thank you,
Dana
C-4-5, 36 years post, Prairie Village, Kansas
 

[QUAD-L] RE: Quiet vs Loud

[Dr. Bo Machado]

Thank you for your comments. Abdominal binder has not been mentioned in 2
months of rehab hospital, I will ask.
So, If I understand you correctly, many c5 CSIs have weak expiratory force
and no voice. My Dad's case is not uncommon, and the solution is PT,
?binder, and TIME, TIME, TIME,
 
Let me know if I have it, 
In Him,
Bo
 
  _  

From: wheelch...@aol.com [mailto:wheelch...@aol.com] 
Sent: Monday, September 27, 2010 8:48 AM
To: d...@hf-rc.com; static...@roadrunner.com; swl...@gmail.com;
quad-list@eskimo.com
Subject: Quiet vs Loud
 
Hi Bo,  the healing process differs greatly among those with spinal cord
injuries.  The nerves to your Dad's diaphragm were damaged, thus the quiet
voice.  As time passes, with good physical therapy and some return function
his voice should become stronger.  Ask his doctor about an abdominal binder
to lift the diaphragm and support it.  His physical therapist should be
advising you on this and whether it may work with your Dad.
 
Best Wishes
 
In a message dated 9/26/2010 11:10:33 P.M. Central Daylight Time,
d...@hf-rc.com writes:
My dad has a recent c5 Fx and is not vent dependant, but has too little
breath to have voice. It that typical of C5 level quadriplegia? Many of you
have higher injuries. Do you have enough expiratory force to create voice?
In Him,
Bo
 

  _  

From: Daniel Espinoza [mailto:static...@roadrunner.com] 
Sent: Sunday, September 26, 2010 11:56 PM
To: 'Fragile'; 'quad-list'
Subject: RE: [QUAD-L] pain
 
I take 200mg per day 
 
Danny Espinoza 27/m/California
Occupation before accident:
Network engineer / SR. Network security engineer
What happened:
I broke my c2,c6,c7 in a horrible car accident
Traumatic brain injury from blood going to central cortex from spinal cord
not vent dependendent anymore. :]
My website: 
http://www.thespinalcordinjured.net  
 My social networking sites:
http://www.myspace.com/DannyLNX
http://www.facebook.com/DannyLNX
 
 
From: Fragile [mailto:swl...@gmail.com] 
Sent: Saturday, September 25, 2010 5:06 PM
To: quad-list
Subject: Re: [QUAD-L] pain
 
Lyrica 800 mg twice a day?  I take 300 mg twice a day and I can't think
straight.  Was told 900 mg per day was the max.
On Sat, Sep 25, 2010 at 4:59 PM,  wrote:
Dana, I take Vicodin four times a day, Lyrica 800 mg twice a day, Cymbalta
60 mg once a day, and 150 mcg of Duragesic pain patch. What is causing the
pain in his shoulder? I ask because I have a two finger subluxation in my
right shoulder, and it's very painful. All the arm braces I have tried,
cause pain somewhere else.
In a message dated 9/24/2010 12:55:45 P.M. Eastern Daylight Time,
daa...@aol.com writes:
 
What do any of you take for pain and the inability to sleep? Is there any
kind of shot for shoulder pain?
 
Thank you,
Dana
C-4-5, 36 years post, Prairie Village, Kansas
 

RE: [QUAD-L] pain

[Dr. Bo Machado]

My dad has a recent c5 Fx and is not vent dependant, but has too little
breath to have voice. It that typical of C5 level quadriplegia? Many of you
have higher injuries. Do you have enough expiratory force to create voice?
In Him,
Bo
 
  _  

From: Daniel Espinoza [mailto:static...@roadrunner.com] 
Sent: Sunday, September 26, 2010 11:56 PM
To: 'Fragile'; 'quad-list'
Subject: RE: [QUAD-L] pain
 
I take 200mg per day 
 
Danny Espinoza 27/m/California
Occupation before accident:
Network engineer / SR. Network security engineer
What happened:
I broke my c2,c6,c7 in a horrible car accident
Traumatic brain injury from blood going to central cortex from spinal cord
not vent dependendent anymore. :]
My website: 
http://www.thespinalcordinjured.net  
 My social networking sites:
http://www.myspace.com/DannyLNX
http://www.facebook.com/DannyLNX
 
 
From: Fragile [mailto:swl...@gmail.com] 
Sent: Saturday, September 25, 2010 5:06 PM
To: quad-list
Subject: Re: [QUAD-L] pain
 
Lyrica 800 mg twice a day?  I take 300 mg twice a day and I can't think
straight.  Was told 900 mg per day was the max.
On Sat, Sep 25, 2010 at 4:59 PM,  wrote:
Dana, I take Vicodin four times a day, Lyrica 800 mg twice a day, Cymbalta
60 mg once a day, and 150 mcg of Duragesic pain patch. What is causing the
pain in his shoulder? I ask because I have a two finger subluxation in my
right shoulder, and it's very painful. All the arm braces I have tried,
cause pain somewhere else.
In a message dated 9/24/2010 12:55:45 P.M. Eastern Daylight Time,
daa...@aol.com writes:
 
What do any of you take for pain and the inability to sleep? Is there any
kind of shot for shoulder pain?
 
Thank you,
Dana
C-4-5, 36 years post, Prairie Village, Kansas
 

RE: [QUAD-L] Face Off

[Dr. Bo Machado]

He may be developing Cushing Syndrome, or maybe the atrophy of flaccid limbs
make his face look big.
Bo
 
  _  

From: HOSNI AL-KHATIB [mailto:hosnialkha...@hotmail.com] 
Sent: Friday, September 17, 2010 1:53 PM
To: Quad-List
Subject: [QUAD-L] Face Off
 



Hi My Friends
 
I Want To Ask You About The Faces of The Quads...
It's Bigger Than Normal...What Do You Think?
I'm a Thin Person,But My Face Is Big I Don't Know Why?
Is It a Normal Thing F! or Quads?
What Can I Do To Solve This Problem?
 
Thank You
God Bless You

[QUAD-L] Meeting today about transfer away from Rehab into LTAC

[Dr. Bo Machado]

 
Dear Friends, 
We have a family conference regarding my Dad's discharge from the Rehab
hospital. "His Medicare days are up", according to them. Dad seems to be
benefiting from ST, PT and OT there, and we feel he should stay longer. They
want his to go to a LTAC facility, but that means starting over with a new
speech pathologist and all.
*  Any suggestions for the meeting today
*  Can we get an extension of days and if so, how?
*  We have not seen a wheel chair or communication device for him (his
voice is just a whisper, his swallowing is poor)- can he be discharged
before the right solutions are found for mobility and communication?
 
Looking for experience before we learn the hard way.
In Him,
Bo
PS- did you find that home ST and PT was better than at Rehab hospital or
LTAC?
 



> Dear Friends,
> 
> My Dad is a new C5 quad WITH some aphasia. I would love your advice
> and suggestions regarding selecting his first chair and some
> communication device. He can move his head and can puff/suck, but
> has very minimal arm use.
> 
> In Him,
> 
> Bo Machado MD

RE: [QUAD-L] Dad's first chair

[Dr. Bo Machado]

What an amazing reply. Thank you so much.
In His Amazing Grip,
Bo
 
  _  

From: wheelch...@aol.com [mailto:wheelch...@aol.com] 
Sent: Friday, September 03, 2010 12:58 PM
To: d...@hf-rc.com; quad-list@eskimo.com
Cc: spike...@comcast.net
Subject: Re: [QUAD-L] Dad's first chair
 
1st chairs are never enough, just ask any second or third chair owner.  So
much will/may change Post-Injury as time goes on.  Some good and some not so
good.  Much has to do with his daily care and physical therapy if it is
continued.  ROM is important.  Same with the Med Regiment.
1st chair is the result of a group effort, including the patient, working
with the Occupational Therapist, Rehab Doctor, Physical Therapist, ATS,
Patient Advocate and the DME.
 
If you have the time on your side, I would suggest that you make plans to
attend the 2010 MedTrade Show, in Atlanta, Georgia next month.  The show is
a sensory overload on equipment available for those in need.  It is a
professional invite show.  For info:  www.medtrade.com
 
Attending the show, will offer you a greater insight to what is available on
this planet and what may be available in the next 4-5 years with those
prototypes being introduced at the show.
 
I hope this helps.
Best Wishes
 
In a message dated 9/3/2010 11:49:51 A.M. Central Daylight Time,
d...@hf-rc.com writes:
Dear Friends, 
My Dad is a new C5 quad WITH some aphasia. I would love your advice and
suggestions regarding selecting his first chair and some communication
device. He can move his head and can puff/suck, but has very minimal arm
use. 
In Him,
Bo Machado MD

[QUAD-L] Dad's first chair

[Dr. Bo Machado]

Dear Friends, 
My Dad is a new C5 quad WITH some aphasia. I would love your advice and
suggestions regarding selecting his first chair and some communication
device. He can move his head and can puff/suck, but has very minimal arm
use. 

In Him,
Bo Machado MD

[QUAD-L] Chair selection

[Dr. Bo Machado]

Dear Cullen,
My dad is a new C5 quad (2mo ago) and we are soon to pick out his first
chair. He has little arm use, but can use neck and can puff.
Any words of advice or encouragement re chairs for Dad to regain some
independence?
In Him,
Bo
 
  _  

From: Cullen [mailto:c3q...@gmail.com] 
Sent: Friday, September 03, 2010 12:25 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] flying back east
 
I have a c500 permobil and am on a vent. We have to fly back east. I have
never flown with this chair or this vent, what can I expect from the airline
and what should I be doing to prepare.
 
Cullen
C3

RE: [QUAD-L] Pain Pump

[Dr. Bo Machado]

Correct- sort of. It is not a fine line, but a moderate line. We call that
the Therapeutic Margin. Baclofen has a pretty good T Margin. As you have
learned, too much of any drug will cause issues, so use only as much as you
must.
Hope that helps,
Dr M
 
  _  

From: Monty [mailto:aa999...@yahoo.com] 
Sent: Tuesday, August 31, 2010 10:08 PM
To: Dr. Bo Machado; quadriplegic
Subject: Re: [QUAD-L] Pain Pump
 
but there is a level of toxicity with baclofen what happened to me after too
much of it! So there is a fine line in between spasms and pain relief?
 
  _  

From: Dr. Bo Machado 
To: Dadsw Angel ; ladyno...@aol.com;
quad-list@eskimo.com; tmic-l...@eskimo.com
Sent: Tue, August 31, 2010 7:42:54 PM
Subject: RE: [QUAD-L] Pain Pump
Replacing the pump for baclofen is a much better plan than for pain meds
(narcotics). Baclofen does not cause any toletance that I am aware of, and
will help you with far less side effects.
In Him,
Dr M
 
  _  

From: Dadsw Angel [mailto:dadswan...@yahoo.com] 
Sent: Tuesday, August 31, 2010 6:44 PM
To: ladyno...@aol.com; quad-list@eskimo.com; tmic-l...@eskimo.com
Subject: Re: [QUAD-L] Pain Pump
 
I have a bachoflen pump. I have pain med/bachoflen in it. Last yr i had too
remove it for three wks because of a infection from the site. My doc said I
could get it back in anytime. I was in a hurry because I had severe with
drawels without it in.
 
  _  

From: "ladyno...@aol.com" 
To: quad-list@eskimo.com; tmic-l...@eskimo.com
Sent: Mon, August 30, 2010 1:02:06 AM
Subject: [QUAD-L] Pain Pump




I had a baclofen pump removed last September 11, due to complications with
it. At the time of removal, I was told that I could not have it put back in.
But what I did not know at the time, was that I could get pain medicine put
directly into the pump also. Now I'm considering having the pump put back in
just for the pain medicine. My question is, has anyone ever had the pump
removed and reinstalled? I would normally be concerned about them fooling
around with my spinal cord, but I'm already a quadriplegic, completely
paralyzed on the right side and minimal, nonfunctional, use on the left
side. My only concern would be that they would something affect my brain.

Naomi.
 
 

RE: [QUAD-L] Pain Pump

[Dr. Bo Machado]

Replacing the pump for baclofen is a much better plan than for pain meds
(narcotics). Baclofen does not cause any toletance that I am aware of, and
will help you with far less side effects.
In Him,
Dr M
 
  _  

From: Dadsw Angel [mailto:dadswan...@yahoo.com] 
Sent: Tuesday, August 31, 2010 6:44 PM
To: ladyno...@aol.com; quad-list@eskimo.com; tmic-l...@eskimo.com
Subject: Re: [QUAD-L] Pain Pump
 
I have a bachoflen pump. I have pain med/bachoflen in it. Last yr i had too
remove it for three wks because of a infection from the site. My doc said I
could get it back in anytime. I was in a hurry because I had severe with
drawels without it in.
 
  _  

From: "ladyno...@aol.com" 
To: quad-list@eskimo.com; tmic-l...@eskimo.com
Sent: Mon, August 30, 2010 1:02:06 AM
Subject: [QUAD-L] Pain Pump



I had a baclofen pump removed last September 11, due to complications with
it. At the time of removal, I was told that I could not have it put back in.
But what I did not know at the time, was that I could get pain medicine put
directly into the pump also. Now I'm considering having the pump put back in
just for the pain medicine. My question is, has anyone ever had the pump
removed and reinstalled? I would normally be concerned about them fooling
around with my spinal cord, but I'm already a quadriplegic, completely
paralyzed on the right side and minimal, nonfunctional, use on the left
side. My only concern would be that they would something affect my brain.

Naomi.
 

RE: [QUAD-L] Pain Pump

[Dr. Bo Machado]

Dear Naomi,
The main risk would be infection (even meningitis), the same as when the
pump was placed the first time.
Remember that anytime you take narcotic pain meds, even from a pump, the
gradually seem less powerful, eventally have far less pain relief than you
may need. This is called "Tolerance" and is the main reason to be cautious.
Some patients eventally require such high doses to get the same relief that
small doses provoded before, that complications like constipation, itching,
confusion are guaranteed.
 
You and your doctor need to discuss LONG term pain relief plans before you
go too far down the narcotic road.
 
In Him,
Bo Machado MD, FACEP
 
  _  

From: ladyno...@aol.com [mailto:ladyno...@aol.com] 
Sent: Monday, August 30, 2010 2:02 AM
To: quad-list@eskimo.com; tmic-l...@eskimo.com
Subject: [QUAD-L] Pain Pump
 
I had a baclofen pump removed last September 11, due to complications with
it. At the time of removal, I was told that I could not have it put back in.
But what I did not know at the time, was that I could get pain medicine put
directly into the pump also. Now I'm considering having the pump put back in
just for the pain medicine. My question is, has anyone ever had the pump
removed and reinstalled? I would normally be concerned about them fooling
around with my spinal cord, but I'm already a quadriplegic, completely
paralyzed on the right side and minimal, nonfunctional, use on the left
side. My only concern would be that they would something affect my brain.

Naomi.