[QUAD-L] inspire surgery for sleep apnea

[Edward Tessier]

hi team

 my sleep apnea has been getting worse and being a quadrature doesn't help. 
Dental devices  and CPAP is no longer effective-- for example I can't keep the 
CPAP mask on when I have bad night spasms and dysreflexia

 after a long battle my insurer  is approve me for surgery this July 30 to  
install the Inspire system. Which is a pacemaker type device that is surgically 
implanted to send electrical signals  to the back of the throat that basically 
bypasses interrupted breathing. The recovery and training the system will take 
months.

 I'm wondering if anybody else has gone through this yet?  if you know how our 
quad bodies respond? Apparently it's pretty common in Europe but it's just 
taking off here in the states.

Ed Tessier
 C-5 – six, 40 years post injury

Re: [QUAD-L] https://www.amazon.com/Orthopedic-Cushion-Haemorrhoids-Suitable-Wheelchair/dp/B07WWN6933/ref=sr_1_7?dib=eyJ2IjoiMSJ9.1GIYkUexyNJ_5G8FHaBiHpiOKc70Us6r4iV3NYFnV8iOoImDWy0uufcBcD28PWIFy8s7Vp

[Edward Tessier]

in my younger years as a quad I did fine on rojo  and Jay cushions – – 
pneumatic and gel respectively.

 At 30 years post my body had had enough and I developed a sore that kept me in 
bed for a year

 I tried more than 20 different products on the market

 the only cushion that worked dependably for long hours of sitting in with no 
breakdown were the Ride Cushions.   highly customized and highly durable and 
absolute miracle workers  in that it enabled me to go back to work and be more 
active raising my kids

https://www.ridedesigns.com/wheelchair-cushions

From: Jeffrey Gaede 
Sent: Tuesday, April 9, 2024 10:33 AM
To: quad-list@eskimo.com ; Dan G. ; 
Daniel Gove ; wheel...@centurylink.net 

Subject: Re: [QUAD-L] 
https://www.amazon.com/Orthopedic-Cushion-Haemorrhoids-Suitable-Wheelchair/dp/B07WWN6933/ref=sr_1_7?dib=eyJ2IjoiMSJ9.1GIYkUexyNJ_5G8FHaBiHpiOKc70Us6r4iV3NYFnV8iOoImDWy0uufcBcD28PWIFy8s7VpJuynUbLzQT0pK9b_ylEuea7JwedZpPM4BSXKifeaAtE-d86HvuMY...

True

On Tuesday, April 9, 2024 at 10:26:34 AM PDT, wheel...@centurylink.net 
 wrote:


i bought one like this and it made me so unbalance that i could not sit on it.
i am thinking of designing and making my own cushion with cutout for groin area.
get really thick memory foam or other material and cut out a hole.
or use donut cushion with other material around it.

there is a cushion made that does have hole in middle but i think it is custom 
made and/or you must have company measure & build it just for you.
there is no reason that so many wheelchair cushion companies cannot make a 
cushion that pressure maps good and prevents pressure sores. no excuses.
derrick

On 4/7/24 5:08 PM, Jeffrey Gaede wrote:
One thing I was warned about this type of objects a long time ago was that, 
while you are relieving pressure to the area in the middle, the outside rings 
can be cutting off at least some blood flow to where you are relieving 
pressure. Not saying that it shouldn't be used. Just say be careful.
 Jeff

On Sunday, April 7, 2024 at 01:58:12 PM PDT, Daniel Gove 
 wrote:


https://www.amazon.com/Orthopedic-Cushion-Haemorrhoids-Suitable-Wheelchair/dp/B07WWN6933/ref=sr_1_7?dib=eyJ2IjoiMSJ9.1GIYkUexyNJ_5G8FHaBiHpiOKc70Us6r4iV3NYFnV8iOoImDWy0uufcBcD28PWIFy8s7VpJuynUbLzQT0pK9b_ylEuea7JwedZpPM4BSXKifeaAtE-d86HvuMY3s3MC9EdpBsUyQrNykJ71W3Bnd-vyfDMwh1gjQfhEhU9isZbe5wVmoFCw_F8-o1lwL5wfpqhN0a4QkDq6z9D-wuFGfiZ6mdn3R94UBx9-BCirGURFIW-0XLNP9UjpsMM7k1qUhpIXcSxZaZPAKnIG8VqjcvsWxYMEMQZeFvO-HDYNEvjg.1YOuLscoXvK2DMW93r338UpPsO8eikCB8TwsnJC1Hes_tag=se=foam%2BDoughnut%2Bcushion=1712522866=hpc=1-7


Dan G.
quadz...@optonline.net

Re: [QUAD-L] Question about lockdown systems.

[Edward Tessier]

I've been using permobile wheelchairs and they have been very dependable, and 
work well with my EZ lock systems in my vans

ed

From: Shelly Kerchner 
Sent: Tuesday, February 20, 2024 3:01 PM
To: wheel...@centurylink.net ; quad-list@eskimo.com 
; Nichole Rohling 
Subject: Re: [QUAD-L] Question about lockdown systems.

Thank you Nicki & EVERYONE ! All input is very much appreciated!

Shelly
c5-c6-c7

On Tuesday, February 20, 2024 at 05:52:11 PM EST, Nichole Rohling 
 wrote:



I’ve had 3 Invacare chairs over over 25 years….I refuse to change to any other 
brand.

https://pro.invacare.com/Mobility/Powered-Wheelchairs/Rear-Wheel-Drive/c/Rear-Wheel-Drive



Nicki

C5/6



From: wheel...@centurylink.net [mailto:wheel...@centurylink.net]
Sent: Tuesday, February 20, 2024 1:11 PM
To: wheelch...@aol.com; Shelly Kerchner; Quad-list; SHIRLEY BELL
Subject: Re: [QUAD-L] Question about lockdown systems.



I am going through process of getting new electric wheelchair and trying to get 
a model that has an ezlock for it.

I have invacare storm series but invacare went bankrupt, and dealer wants me to 
switch to Quantum R-TRAK rear wheel drive.Does anybody with ezlock have one for 
quantum chair?



I heard that ezlock is making one for R-TRAK  but I do not see it on their list 
of wheelchairs.

Here is list from Ezlock.

https://www.ezlock.net/wp-content/uploads/2018/05/bkt_cht_no_pricing_chart_only_fax_2015-2016.pdf



Shelly, you can check out their list of wheelchairs on list at the link above.



Derrick W in cold ass PA.



On 2/19/24 5:53 PM, wheelch...@aol.com wrote:

Greetings,

I've never seen a manual wheelchair, using a single post on an EZ Lock System, 
for driving or riding.   I have seen double wheel securement for riding 
wheelchairs.  The design of an EZ lock system was designed for drivers and 
riders using powered chairs.  I would consider going directly to EZ Lock 
Securement and getting an answer directly from them rather than a dealer.

Best Wishes.





On Monday, February 19, 2024 at 03:33:35 PM CST, SHIRLEY BELL 
 wrote:





Hi Shelly, are you in the new England area?

On 02/19/2024 2:40 PM EST Shelly Kerchner 
 wrote:





hi to all ! Past two years been having health issues/skin breakdown, rotator 
cuff surgery, recovery, etc. so I have been absent from this group! I hope 
everyone is well!



Currently, I’m driving my motorized chair using the easy lock system.



I want to be able to use my manual chair and was advised that I would need the 
new Q straint lock down system ( state agreed to install and pay for the pin 
for my manual chair. ) the reason being because the easy lock does not make a 
pin for my manual chair.



One last thought, the salesman/company who recommended the new lock down system 
at First told me it be no problem for me to use my current motorized chair with 
the new system( qstraint)



Then weeks later flipped on me and said because of liability the only chair I 
could drive from would be my manual chair, and could no longer  use the 
motorized chair……….



( many months ago also he told me this is just between you and I, but we looked 
at the pins and there’s no difference between the pens except colors and the 
only trouble I may run into is if I had an accident and tried to come back on 
the company who made the pin because I had did not have the pin the 
manufacturer requires us to use.



It’s a cumbersome process to navigate so I would appreciate any one willing to 
share their experience and would appreciate some assistance!



Thanks ahead of time !!



Shelly Kerchner





Sent from Yahoo Mail for 
iPad

Re: [QUAD-L] Leg Fracture - Above knee

[Edward Tessier]

sorry for my typo! I'll be a quad 40 years this August

From: Edward Tessier 
Sent: Wednesday, January 3, 2024 4:22 PM
To: Tod Santee ; Philip Wells 
Cc: quad-list 
Subject: Re: [QUAD-L] Leg Fracture - Above knee

hey Philip and Todd,

Thank you so much for posting about osteoporosis. I have not been tested for it 
for over 20 years so seeing what you posted was a great reminder to check in 
with my body and see how it's doing. For a change, my HMO didn't even complain 
about the expense.

By the way, I'm also 56, C5/6,  and will be a quad for four years this year (a 
surfing accident in 1984). I know all of us on here are black swans who have 
survived the odds for a long time. But it was extra cool to hear about two of 
you who have had such a similar journey…

Cheers,

Ed Tessier

From: Tod Santee 
Sent: Wednesday, January 3, 2024 4:15 PM
To: Philip Wells 
Cc: quad-list 
Subject: Re: [QUAD-L] Leg Fracture - Above knee

Hi Philip,
I'm 56, (C5/6 for 40 yrs) and broke my femur --just above the knee-- in a 
car accident 2 yrs ago.  Even with my advanced osteoporosis it healed well with 
no bracing needed.  I also had a burst fracture at L4 that was a whole 
different story.  We thought my leg was causing autonomic dysreflexia (AD) but 
I insisted it wasn't because the AD changed depending on the position of my 
back.  I pressed my docs enough for back x-rays that once a broken vertebra was 
found (1.5 months after the accident) they decided to do a full spine CT.  
Vertebrae were too fragile for plates & screws so I had a cement injected into 
the cracks to stabilize the vertebra and it helped A LOT.  (Did this on a 
sacral vertebra in '08 after a  bad transfer caused a nerve pinch.)  I still 
had slight AD & sweating after the lumbar procedure so I'm still getting 
epidural cortisone & lidocaine injections at a spine clinic every 3 months to 
control the remaining AD symptoms.

Good luck & best wishes,
--Tod

On Wed, Dec 27, 2023 at 2:23 AM Philip Wells 
mailto:philipdwe...@gmail.com>> wrote:
Evening Disabled Community

Hey a few days ago I fall from my chair, slo mo fall onto footpath.

X-ray yesterday showed the break, Doctors not confident its going to heal.

I have it in a brace to keep knee joint at 60 degrees.

Anyone have experience of  a 40+ year vet breaking his leg ?

All doctors here Ive spoken to have 0 SCI knowledge.

Some outcomes sounding a little scary.

Many thanks.


Best

Philip Wells

Re: [QUAD-L] Leg Fracture - Above knee

[Edward Tessier]

hey Philip and Todd,

Thank you so much for posting about osteoporosis. I have not been tested for it 
for over 20 years so seeing what you posted was a great reminder to check in 
with my body and see how it's doing. For a change, my HMO didn't even complain 
about the expense.

By the way, I'm also 56, C5/6,  and will be a quad for four years this year (a 
surfing accident in 1984). I know all of us on here are black swans who have 
survived the odds for a long time. But it was extra cool to hear about two of 
you who have had such a similar journey…

Cheers,

Ed Tessier

From: Tod Santee 
Sent: Wednesday, January 3, 2024 4:15 PM
To: Philip Wells 
Cc: quad-list 
Subject: Re: [QUAD-L] Leg Fracture - Above knee

Hi Philip,
I'm 56, (C5/6 for 40 yrs) and broke my femur --just above the knee-- in a 
car accident 2 yrs ago.  Even with my advanced osteoporosis it healed well with 
no bracing needed.  I also had a burst fracture at L4 that was a whole 
different story.  We thought my leg was causing autonomic dysreflexia (AD) but 
I insisted it wasn't because the AD changed depending on the position of my 
back.  I pressed my docs enough for back x-rays that once a broken vertebra was 
found (1.5 months after the accident) they decided to do a full spine CT.  
Vertebrae were too fragile for plates & screws so I had a cement injected into 
the cracks to stabilize the vertebra and it helped A LOT.  (Did this on a 
sacral vertebra in '08 after a  bad transfer caused a nerve pinch.)  I still 
had slight AD & sweating after the lumbar procedure so I'm still getting 
epidural cortisone & lidocaine injections at a spine clinic every 3 months to 
control the remaining AD symptoms.

Good luck & best wishes,
--Tod

On Wed, Dec 27, 2023 at 2:23 AM Philip Wells 
mailto:philipdwe...@gmail.com>> wrote:
Evening Disabled Community

Hey a few days ago I fall from my chair, slo mo fall onto footpath.

X-ray yesterday showed the break, Doctors not confident its going to heal.

I have it in a brace to keep knee joint at 60 degrees.

Anyone have experience of  a 40+ year vet breaking his leg ?

All doctors here Ive spoken to have 0 SCI knowledge.

Some outcomes sounding a little scary.

Many thanks.


Best

Philip Wells

Re: [QUAD-L] Leg Fracture - Above knee

[Edward Tessier]

From: Tod Santee 
Sent: Wednesday, January 3, 2024 4:15 PM
To: Philip Wells 
Cc: quad-list 
Subject: Re: [QUAD-L] Leg Fracture - Above knee

Hi Philip,
I'm 56, (C5/6 for 40 yrs) and broke my femur --just above the knee-- in a 
car accident 2 yrs ago.  Even with my advanced osteoporosis it healed well with 
no bracing needed.  I also had a burst fracture at L4 that was a whole 
different story.  We thought my leg was causing autonomic dysreflexia (AD) but 
I insisted it wasn't because the AD changed depending on the position of my 
back.  I pressed my docs enough for back x-rays that once a broken vertebra was 
found (1.5 months after the accident) they decided to do a full spine CT.  
Vertebrae were too fragile for plates & screws so I had a cement injected into 
the cracks to stabilize the vertebra and it helped A LOT.  (Did this on a 
sacral vertebra in '08 after a  bad transfer caused a nerve pinch.)  I still 
had slight AD & sweating after the lumbar procedure so I'm still getting 
epidural cortisone & lidocaine injections at a spine clinic every 3 months to 
control the remaining AD symptoms.

Good luck & best wishes,
--Tod

On Wed, Dec 27, 2023 at 2:23 AM Philip Wells 
mailto:philipdwe...@gmail.com>> wrote:
Evening Disabled Community

Hey a few days ago I fall from my chair, slo mo fall onto footpath.

X-ray yesterday showed the break, Doctors not confident its going to heal.

I have it in a brace to keep knee joint at 60 degrees.

Anyone have experience of  a 40+ year vet breaking his leg ?

All doctors here Ive spoken to have 0 SCI knowledge.

Some outcomes sounding a little scary.

Many thanks.


Best

Philip Wells

Re: [QUAD-L] Ileostomy

[Edward Tessier]

Wow, what a journey Dana

So glad you are still with us

From: Dana 
Sent: Wednesday, December 6, 2023 10:39 PM
To: Eric Olson 
Cc: Quad List ; Val Cleroux 
Subject: Re: [QUAD-L] Ileostomy

I had my first Ileo-conduit in 1986 from bladder cancer. Then In 2014 I kept 
having UTIs all the time. The kidney doctor didn’t know how to do the surgery 
that was needed to make another ileo-conduit. She wanted to put me on hospice. 
We started calling every kidney doctor and that was able to do the surgery. he 
got me on the table within two weeks. we had to have a long talk and explain to 
me 2.out 3 die during the surgery. So I was a blessed to survive. it took six 
months to get over the surgery. I was in the hospital three weeks. I continue 
to have UTIs and kidney stones. This allows you to get more bacteria causing 
kidney stones. I really liked the information I read on the

On Wed, Oct 11, 2023 at 12:09 PM Eric Olson 
mailto:whee...@wi.rr.com>> wrote:
There was a person on the list that had a syrinx, but sadly, she passed away.  
She had a shunt put in that let the fluid in the syrinx drain continuously into 
her stomach.  Since you're doing research anyway, perhaps do some research on a 
shunt.  Neither is a no joke surgery.  Are you sure your digestive issues are 
from the syrinx and not something more common like IBS?

On Mon, Oct 9, 2023 at 1:08 PM Val Cleroux 
mailto:vcler...@rogers.com>> wrote:
Hi everyone:

I am a C3/4 quad from a motor vehicle accident in 2000. I have a syrinx which 
is a cyst that fills up with cerebral fluid and stretches down the spine. This 
cyst affects how the messages are sent from the brain to the organs in order to 
make them work properly. So far it has affected my digestive system and I am 
very limited as to what I can eat.

My surgeon is suggesting an ileostomy and I am now researching to see if this 
would be beneficial or not? Is there anyone out there that has an ileostomy 
that I could speak with?

Thanks in advance for anyone that can help me with information so that I can 
make my decision which a yes of a no?

Val Cleroux
www.whyped.ca
"Communication is the key to success"

Re: [QUAD-L] Ileostomy

[Edward Tessier]

Sorry, I just saw this email from months ago. Have you made a decision on what 
to do?

My late best friend had her ileostomy after years of incontinence, occasional 
impactions,  and discomfort with every bowel movement. She hated the idea of 
the colostomy bag, so she resisted her doctor's advice for years.

When she finally just had to have the procedure, she was really astonished. The 
care of the bag was an annoyance, and she was very insecure about its impact on 
her sex life (fortunately, on this latter issue, her FWB was very accepting of 
it),  But otherwise, it was such a relief she wished she had done it years 
earlier.  She had much less pain, much less disruption, and regained all of 
those hours she lost to bowel care.

Until I found the peristeen bowel irrigation system, my next option was going 
to be an ileostomy. My friend's experience greatly reduced my resistance to the 
procedure.  if that's what's needed someday, I've made my peace with it.

 Ed




From: Val Cleroux 
Sent: Monday, October 9, 2023 11:08 AM
To: Quad List 
Subject: [QUAD-L] Ileostomy

Hi everyone:

I am a C3/4 quad from a motor vehicle accident in 2000. I have a syrinx which 
is a cyst that fills up with cerebral fluid and stretches down the spine. This 
cyst affects how the messages are sent from the brain to the organs in order to 
make them work properly. So far it has affected my digestive system and I am 
very limited as to what I can eat.

My surgeon is suggesting an ileostomy and I am now researching to see if this 
would be beneficial or not? Is there anyone out there that has an ileostomy 
that I could speak with?

Thanks in advance for anyone that can help me with information so that I can 
make my decision which a yes of a no?

Val Cleroux
www.whyped.ca
"Communication is the key to success"

Re: [QUAD-L] nighttime alert

[Edward Tessier]

Oh and one more great feature of the Amazon/Alexa smart speakers

Being able to intercom hands-free to my attendant, no matter where in the house 
 she is

Also, when my wife and kids are not around, I know my wife appreciates the fact 
that I can use the Alexa to call anybody hands-free, or call 911

From: Edward Tessier 
Sent: Thursday, October 12, 2023 1:29 PM
To: Ben Mattlin ; 'Noel' 
Cc: 'Jeffrey Gaede' ; 'Eric Olson' ; 
'Quad List' 
Subject: Re: [QUAD-L] nighttime alert

What   nest products were you thinking of using? Just a thermostat? Cameras? 
Doorbell?

We've had a lot of luck with smart things, Which is basically the Samsung home 
ecosystem

We use Amazon smart speakers as the control in each room because they are so 
affordable

https://www.samsung.com/us/smart-home/smartthings/b2bapp/
[http://image-us.samsung.com/SamsungUS/home/samsung-logo-191-1.jpg]<https://www.samsung.com/us/smart-home/smartthings/b2bapp/>
Samsung SmartThings: Smart Home Automation | Samsung 
US<https://www.samsung.com/us/smart-home/smartthings/b2bapp/>
Check in on your home anytime with home security systems that you can view from 
your smartphone. Set up motion and audio alerts so you don’t miss a thing.
www.samsung.com



From: Ben Mattlin 
Sent: Thursday, October 12, 2023 11:25 AM
To: Edward Tessier ; 'Noel' 
Cc: 'Jeffrey Gaede' ; 'Eric Olson' ; 
'Quad List' 
Subject: RE: [QUAD-L] nighttime alert


Thanks for the feedback and advice, everyone! What a great community!



From: Edward Tessier 
Sent: Wednesday, October 11, 2023 10:35 PM
To: Ben Mattlin ; 'Noel' 
Cc: 'Jeffrey Gaede' ; 'Eric Olson' ; 
'Quad List' 
Subject: Re: [QUAD-L] nighttime alert



We tried nest. Lots of glitches and updates and not connecting well to Wi-Fi.



From: Ben Mattlin mailto:benmatt...@gmail.com>>
Sent: Tuesday, October 10, 2023 3:14 PM
To: 'Noel' mailto:swl...@gmail.com>>
Cc: 'Jeffrey Gaede' mailto:jsga...@yahoo.com>>; 'Eric Olson' 
mailto:whee...@wi.rr.com>>; 'Quad List' 
mailto:quad-list@eskimo.com>>
Subject: RE: [QUAD-L] nighttime alert



Anybody tried Google Nest?



From: Noel mailto:swl...@gmail.com>>
Sent: Tuesday, October 10, 2023 11:20 AM
To: Ben Mattlin mailto:benmatt...@gmail.com>>
Cc: Jeffrey Gaede mailto:jsga...@yahoo.com>>; Eric Olson 
mailto:whee...@wi.rr.com>>; Quad List 
mailto:quad-list@eskimo.com>>
Subject: Re: [QUAD-L] nighttime alert



Surprisingly yes, it even whispers back.



On Tue, Oct 10, 2023 at 11:58 AM Ben Mattlin 
mailto:benmatt...@gmail.com>> wrote:

You mean Alexa or Echo can hear even a whisper? Definitely have to check it 
out. I haven't made the plunge into "smart" devices yet. Thanks for the good 
ideas, everyone!



From: Jeffrey Gaede mailto:jsga...@yahoo.com>>
Sent: Tuesday, October 10, 2023 10:01 AM
To: Noel mailto:swl...@gmail.com>>; Eric Olson 
mailto:whee...@wi.rr.com>>
Cc: Ben Mattlin mailto:benmatt...@gmail.com>>; Quad List 
mailto:quad-list@eskimo.com>>
Subject: Re: [QUAD-L] nighttime alert



You get a couple of the cheapest Amazon Echos, assuming you have Internet, and 
turn the volume up because that's both the speaker and the microphone, and keep 
it nearby. Should work fine



On Tuesday, October 10, 2023 at 09:58:35 AM PDT, Eric Olson 
mailto:whee...@wi.rr.com>> wrote:





I go low tech and just use a baby monitor.



On Mon, Oct 9, 2023 at 3:11 PM Noel mailto:swl...@gmail.com>> 
wrote:

I use an Amazon Echo, it can hear me whisper at night for controlling the TV. 
Can make phone calls, or drop in on other echo devices



On Mon, Oct 9, 2023 at 1:20 PM Ben Mattlin 
mailto:benmatt...@gmail.com>> wrote:

I have basically no muscle or movement and not much voice. Trying to figure out 
how to alert someone who is in another room if I need help at night, when I am 
in bed and not mobile. A baby monitor? A very sensitive voice-activated cell 
phone? Not sure what would work. All suggestions welcome!

Thanks.

Ben

Re: [QUAD-L] nighttime alert

[Edward Tessier]

What   nest products were you thinking of using? Just a thermostat? Cameras? 
Doorbell?

We've had a lot of luck with smart things, Which is basically the Samsung home 
ecosystem

We use Amazon smart speakers as the control in each room because they are so 
affordable

https://www.samsung.com/us/smart-home/smartthings/b2bapp/
[http://image-us.samsung.com/SamsungUS/home/samsung-logo-191-1.jpg]<https://www.samsung.com/us/smart-home/smartthings/b2bapp/>
Samsung SmartThings: Smart Home Automation | Samsung 
US<https://www.samsung.com/us/smart-home/smartthings/b2bapp/>
Check in on your home anytime with home security systems that you can view from 
your smartphone. Set up motion and audio alerts so you don’t miss a thing.
www.samsung.com



From: Ben Mattlin 
Sent: Thursday, October 12, 2023 11:25 AM
To: Edward Tessier ; 'Noel' 
Cc: 'Jeffrey Gaede' ; 'Eric Olson' ; 
'Quad List' 
Subject: RE: [QUAD-L] nighttime alert


Thanks for the feedback and advice, everyone! What a great community!



From: Edward Tessier 
Sent: Wednesday, October 11, 2023 10:35 PM
To: Ben Mattlin ; 'Noel' 
Cc: 'Jeffrey Gaede' ; 'Eric Olson' ; 
'Quad List' 
Subject: Re: [QUAD-L] nighttime alert



We tried nest. Lots of glitches and updates and not connecting well to Wi-Fi.



From: Ben Mattlin mailto:benmatt...@gmail.com>>
Sent: Tuesday, October 10, 2023 3:14 PM
To: 'Noel' mailto:swl...@gmail.com>>
Cc: 'Jeffrey Gaede' mailto:jsga...@yahoo.com>>; 'Eric Olson' 
mailto:whee...@wi.rr.com>>; 'Quad List' 
mailto:quad-list@eskimo.com>>
Subject: RE: [QUAD-L] nighttime alert



Anybody tried Google Nest?



From: Noel mailto:swl...@gmail.com>>
Sent: Tuesday, October 10, 2023 11:20 AM
To: Ben Mattlin mailto:benmatt...@gmail.com>>
Cc: Jeffrey Gaede mailto:jsga...@yahoo.com>>; Eric Olson 
mailto:whee...@wi.rr.com>>; Quad List 
mailto:quad-list@eskimo.com>>
Subject: Re: [QUAD-L] nighttime alert



Surprisingly yes, it even whispers back.



On Tue, Oct 10, 2023 at 11:58 AM Ben Mattlin 
mailto:benmatt...@gmail.com>> wrote:

You mean Alexa or Echo can hear even a whisper? Definitely have to check it 
out. I haven't made the plunge into "smart" devices yet. Thanks for the good 
ideas, everyone!



From: Jeffrey Gaede mailto:jsga...@yahoo.com>>
Sent: Tuesday, October 10, 2023 10:01 AM
To: Noel mailto:swl...@gmail.com>>; Eric Olson 
mailto:whee...@wi.rr.com>>
Cc: Ben Mattlin mailto:benmatt...@gmail.com>>; Quad List 
mailto:quad-list@eskimo.com>>
Subject: Re: [QUAD-L] nighttime alert



You get a couple of the cheapest Amazon Echos, assuming you have Internet, and 
turn the volume up because that's both the speaker and the microphone, and keep 
it nearby. Should work fine



On Tuesday, October 10, 2023 at 09:58:35 AM PDT, Eric Olson 
mailto:whee...@wi.rr.com>> wrote:





I go low tech and just use a baby monitor.



On Mon, Oct 9, 2023 at 3:11 PM Noel mailto:swl...@gmail.com>> 
wrote:

I use an Amazon Echo, it can hear me whisper at night for controlling the TV. 
Can make phone calls, or drop in on other echo devices



On Mon, Oct 9, 2023 at 1:20 PM Ben Mattlin 
mailto:benmatt...@gmail.com>> wrote:

I have basically no muscle or movement and not much voice. Trying to figure out 
how to alert someone who is in another room if I need help at night, when I am 
in bed and not mobile. A baby monitor? A very sensitive voice-activated cell 
phone? Not sure what would work. All suggestions welcome!

Thanks.

Ben

Re: [QUAD-L] nighttime alert

[Edward Tessier]

We tried nest. Lots of glitches and updates and not connecting well to Wi-Fi.

From: Ben Mattlin 
Sent: Tuesday, October 10, 2023 3:14 PM
To: 'Noel' 
Cc: 'Jeffrey Gaede' ; 'Eric Olson' ; 
'Quad List' 
Subject: RE: [QUAD-L] nighttime alert


Anybody tried Google Nest?



From: Noel 
Sent: Tuesday, October 10, 2023 11:20 AM
To: Ben Mattlin 
Cc: Jeffrey Gaede ; Eric Olson ; Quad 
List 
Subject: Re: [QUAD-L] nighttime alert



Surprisingly yes, it even whispers back.



On Tue, Oct 10, 2023 at 11:58 AM Ben Mattlin 
mailto:benmatt...@gmail.com>> wrote:

You mean Alexa or Echo can hear even a whisper? Definitely have to check it 
out. I haven't made the plunge into "smart" devices yet. Thanks for the good 
ideas, everyone!



From: Jeffrey Gaede mailto:jsga...@yahoo.com>>
Sent: Tuesday, October 10, 2023 10:01 AM
To: Noel mailto:swl...@gmail.com>>; Eric Olson 
mailto:whee...@wi.rr.com>>
Cc: Ben Mattlin mailto:benmatt...@gmail.com>>; Quad List 
mailto:quad-list@eskimo.com>>
Subject: Re: [QUAD-L] nighttime alert



You get a couple of the cheapest Amazon Echos, assuming you have Internet, and 
turn the volume up because that's both the speaker and the microphone, and keep 
it nearby. Should work fine



On Tuesday, October 10, 2023 at 09:58:35 AM PDT, Eric Olson 
mailto:whee...@wi.rr.com>> wrote:





I go low tech and just use a baby monitor.



On Mon, Oct 9, 2023 at 3:11 PM Noel mailto:swl...@gmail.com>> 
wrote:

I use an Amazon Echo, it can hear me whisper at night for controlling the TV. 
Can make phone calls, or drop in on other echo devices



On Mon, Oct 9, 2023 at 1:20 PM Ben Mattlin 
mailto:benmatt...@gmail.com>> wrote:

I have basically no muscle or movement and not much voice. Trying to figure out 
how to alert someone who is in another room if I need help at night, when I am 
in bed and not mobile. A baby monitor? A very sensitive voice-activated cell 
phone? Not sure what would work. All suggestions welcome!

Thanks.

Ben

Re: [QUAD-L] ABDOMINAL SPASMS

[Edward Tessier]

I've never used functional electrical stimulation that way. However, when I was 
using the FES REGIS bicycle to get a lower limb/cardio workout, I noticed an 
overall decrease in core spasticity. It could have been from stretching muscle 
groups that often trigger,  or it could have been the electrical current 
interfering with spastic releases. In either case,  while I was on that system, 
I had very low spasticity.

  I'd say, give it a try. TENS  is a very mainstream technology now and 
shouldn't cause any harm to try.

Ed Tessier

From: Eric Olson 
Sent: Monday, August 28, 2023 2:43 PM
To: Paul Jacobson 
Cc: quad-list 
Subject: Re: [QUAD-L] ABDOMINAL SPASMS

I have never used a TENS unit for spasms nor have I ever heard of anyone using 
TENS for spasms.  Spasms are usually handled systematically using medication 
like Baclofen.  That said,there is no risk  in trying it.  If it truly is 
localized to the abdomen maybe Botox or acupuncture

On Mon, Aug 28, 2023 at 3:13 PM Paul Jacobson 
mailto:pjacob...@san.rr.com>> wrote:

Hi, Has anyone ever used a TENS unit for

abdominal spasms? If so, can you please

share your thoughts.



THANK YOU!

Paul  c5/6

Re: [QUAD-L] Support groups

[Edward Tessier]

Thanks Don, all of us need support now and then. We appreciate your offer.

A lot of you probably already saw this article in new mobility. I think it's 
worth posting the link here because it focuses exclusively on long-term SCI.  
the article sounded, at least to me, as a bunch of wise quads and para sharing 
the benefits of their experience with people more recent to their disability.   
I would've liked to hear more advice specifically geared towards managing 
long-term disability, along the lines of many conversations on quad list. 
still, it was reaffirming for the magazine to simply gather people with 
long-term SCI-- a population that often goes overlooked or worse, is assumed 
not to exist at all.

https://newmobility.com/best-advice-for-people-with-sci-from-people-with-sci/?mc_cid=dc8e2691df_eid=e1907d9c04
[https://newmobility.com/wp-content/uploads/2023/03/theobraddy-fb.jpg]
Best Advice For People with SCI From People with 
SCI
When I was a newly minted T10 para, I recall a conversation with a friend who 
was three years post-injury, a T6 para, who had also become a mentor. He flew 
hang gliders, sailed, water skied…
newmobility.com


From: Don Price 
Sent: Tuesday, March 28, 2023 3:57 PM
To: quad-list@eskimo.com 
Subject: [QUAD-L] Support groups

Hello all,

It's been very quiet in this group. I hope everyone is doing well. I think that 
now that the pandemic has passed things are getting back to normal, mostly.

The one silver-lining i found was that it forced us to embrace technology to 
maintain our social connections. I had never even heard of Zoom, and suddenly i 
was scheduling meetings and support groups using this new tool.

To that point, if anyone on here is ever feeling isolated please know there are 
online support groups you can join to get that interaction that is so 
important. I host a Men's Disability group via zoom every Thursday at 4pm AZ 
time. I'm sure there are other groups out there as well.

If anyone is interested feel free to email me directly: d...@ability360.org

Best wishes to you all,

Don.

[QUAD-L] sharing game changing products

[Edward Tessier]

In a recent post I mentioned some of the products that have been essential to  
successfully living my life as a quad (C5 –6, 38 years post surfing injury). I 
wanted to expand upon and share my list with everybody. I think it would be 
really interesting to hear everybody else's list as well.

Products that change my life:

Sure Hands Lift – – I'm still using the lift I bought 20 some years ago when 
doing board and pivot transfers became too rough on me and my attendants.  it 
has never broken down and only needed a replacement battery once.  nothing gets 
me in and out of bed faster-- no Hoyer type sling. It also places me in exactly 
the right spot in my wheelchair.  I only wish they had a travel version.

Peristeen Bowel management program--  there is more about this my last post, 
but basically it is made my   bowel program faster, more dependable, easier on 
my body, and easier on my attendants.

 Dragon dictation system-- I use this every single day and if I didn't have it 
I wouldn't be able to work, right creatively, keep up with friends, etc.

 Ride wheelchair cushion – –  I lost a year to pressure sores when every other 
wheelchair cushion failed me.  I tried EVERYTHING.  The ride cushion ( which, 
counterintuitively, is made of hard foam) is fully customized to each user. It 
got me back in my wheelchair and back to  work,  spending time with my kids, 
and enjoying life.

 Alexa for smart home control--  turning on lights, controlling my bedroom fan, 
calling attendants hands-free, listening to music,  ordering groceries, etc. 
etc. etc.it's amazing being able to do so many things by voice that once 
forced me to constantly ask for help.

 accessible minivan with EZ lock--  after my wheelchair and I fell off of an 
old school van lift, the ability to just quickly roll up the ramp and into a 
self locking  tiedown was revolutionary. I take it too much for granted.

 Fully tilting power wheelchair--  my Permobile  300's tilt function has 
extended my functional time in my chair and made pressure relief much less of a 
hassle. It's also been my most dependable wheelchair ever. It's going strong at 
10 years and has never needed anything more than batteries and replacement 
cushioning on my armrests.

 Lithotripsy kidney stone removal--  like many quads I have chronic kidney 
stones and this tech replaced difficult surgery. now, every 2 to 3 years, I go 
for a cleaning and I'm up at around in a week.

  iPhone/ iPad and Siri--  the touchscreen, and later the voice assistant, 
changed everything about communication, making me much more productive at work. 
apps made so many life management tasks incredibly easier-- banking, shopping, 
reading books, listening to books, tracking my kids, scheduling help, paying 
bills,  ordering meds, taking family pictures...  couldn't we all go on and on 
here?

 Viagra and Ferticare  vibrator--  getting erections and ejaculating aren't 
required to have a lot of fun in bed, but they sure are nice.

 wheelchair accessible RV by Newmar--  our first accessible RV was a DIY 
project that mostly worked, but wasn't all that comfortable. Newmar's  line of 
wheelchair accessible RVs were designed from the ground up for comfort and ease 
of use.  they are by far the best product on the market.  the family excursions 
it enables have given me some of my favorite memories


 thank goodness for these products and technology. I hope they stay on the 
market forever.  so, now it's your turn. WHAT IS YOUR LIST OF 
CAN'T-LIVE-WITHOUT PRODUCTS?

 Ed Tessier

Re: [QUAD-L] New Bowel Management System - Peristeen Plus

[Edward Tessier]

I've been using Peristeen since it first came out. My traditional program of 
suppositories and fleets gradually become more and more time consuming until it 
lasted for hours, was painful, and   triggered dysreflexia. it was also leaving 
me with bowel accident so often I was afraid to leave the house. Peristeen has 
been a complete game changer.  It's not as messy so using it is easier on my 
attendants.  it does not trigger dysreflexia for me.  it's not painful, unless 
I have a hemorrhoid (regular hemorrhoid cream the night before is taking care 
of that).  it takes the predictable amount of time and is comparatively speedy 
(about 45 minutes beginning to end every other day), so I can add it to my 
morning routine without it messing up my busy schedule.

Perhaps most importantly, it is EFFECTIVE.  It actually cleans me out and I 
almost never have bowel mishaps, anymore.  this has been a humongous benefit to 
going out, making travel plans (It's very portable, fitting in a midsized 
purse), my love life ( it not only eliminated untimely accidents it removed the 
mood to killing anxiety of potential accidents), etc.   I hadn't really 
realized how my old bowel management program had compromised my quality of life 
until I saw the difference Peristeen made.   In fact, I would say it was at the 
very top of the list of the products that have made my quadriplegia manageable, 
along with a Sure Hands lift,  a Ride wheelchair cushion,  accessible minivan, 
and Alexa as a smart home controller.

The only downside I experienced with Peristeen was its cost.  Since it wasn't 
covered initially by my insurance, I had to pay out-of-pocket around $300 A 
MONTH.  This was rough to handle but since it dramatically increased the time I 
had for work, and allowed me to go to the office without racing home from bowel 
accidents, it was worth it financially.  it took a few years but eventually I 
found a doctor in my network (Kaiser Permanente) that believed in the benefits 
of Peristeen  to advocate for it internally. Late last year, my insurance 
decided to cover it completely.

If Peristeen had not come out when it did, I probably would've ended up with a 
colostomy bag.  I understand they can work wonders for some people, but I was 
dreading it. Peristeen  gave me options, and a huge boost to my quality of 
life.  I rave about it to every Quad and Para I meet. my wife jokes that I'm 
trying to get a job at Coloplast (the manufacturer).

 I've been happy to see that Peristeen is is being strongly supported by 
Coloplast.  they just came out with an upgraded design that makes the reusable 
pump last longer.

 if anybody has more questions about it, please reach out.

Ed Tessier




From: Don Price 
Sent: Wednesday, October 12, 2022 12:57 PM
To: Shala Silverstein ; Dana 
Cc: quad-list@eskimo.com 
Subject: [QUAD-L] New Bowel Management System - Peristeen Plus

Hi everyone!

I've been a c5 quad for 40 years now. Bowel programs are the most difficult 
thing for most of us. Grr
Recently I was at a conference and talked to the Coloplast rep regarding their 
new(ish) bowel product, Peristeen Plus. It's an enema system (nothing new 
there), but the design of it and the way it works seems like a real 
improvement. Check out the YouTube video.

Disclaimer: I have not tried this product. I don't work for Coloplast or have 
any affiliation with them.


Peristeen Plus is an effective alternative to conservative bowel management 
methods. It can be administered either on your own or with assistance, and 
enables you to decide when and where you want to empty your bowel. Used 
routinely, daily or every other day, it can help reduce the physical discomfort 
and worry that fecal incontinence and constipation bring.
When the recommended amount of water is introduced into the bowel, water and 
stool are emptied into the toilet.
Peristeen Plus can be used by a wide range of people with neurogenic bowel 
dysfunction (NBD), from children to adults. The patient must receive thorough 
instructions from a qualified healthcare professional before using this product.

How to Use Peristeen® Plus (Adult)


[https://s.yimg.com/nq/storm/assets/enhancrV2/23/logos/youtube.png]
How to Use Peristeen® Plus (Adult)


https://products.coloplast.us/coloplast/continence-care/peristeen/peristeen-plus-tai/peristeen-plus-transanal-irrigation-system/

Re: [QUAD-L] 33 years

[Edward Tessier]

Congratulations, Don. You and your wonderful lady friend are doing a fantastic 
job keeping you in good shape.

 At 38 years post-injury, I'm also testimony to good medical care and even 
better home care thanks to my wife  and  attendants,

 cheers, Brother

From: Don Price 
Sent: Tuesday, May 24, 2022 2:18 PM
To: Quad-list Post ; Jim Lubin 
Subject: Re: [QUAD-L] 33 years

Jim,

I'm so glad you're in good health and loving life.

You're a good man and you've made a difference.

May you enjoy MANY more years!

Don.

On Tuesday, May 17, 2022, 05:20:06 PM MST, Jim Lubin  wrote:


Today marks 33 years since my transverse myelitis onset. I woke up with a pain 
in my shoulder. Two hours later I could not remain able to stand and then 
stopped breathing. I have been paralyzed from the neck down and dependent on a 
ventilator to breathe to keep me alive ever since. I am otherwise in great 
health and not in pain, so life is good.

Re: [QUAD-L] Zoom Meet-up April 7

[Edward Tessier]

 sounds cool, Don

I'll be there

Ed Tessier

From: Don Price 
Sent: Tuesday, March 29, 2022 1:18 PM
To: Quad-list Post 
Subject: [QUAD-L] Zoom Meet-up April 7

Don Price is inviting you to a scheduled Zoom meeting.

Topic: Quadlist Meet-up
Time: Apr 7, 2022 02:00 PM Arizona

Join Zoom Meeting
https://us02web.zoom.us/j/88278086373

Meeting ID: 882 7808 6373
One tap mobile
+12532158782,,88278086373# US (Tacoma)
+13462487799,,88278086373# US (Houston)

Dial by your location
+1 253 215 8782 US (Tacoma)
+1 346 248 7799 US (Houston)
+1 669 900 6833 US (San Jose)
+1 301 715 8592 US (Washington DC)
+1 312 626 6799 US (Chicago)
+1 929 205 6099 US (New York)
Meeting ID: 882 7808 6373
Find your local number: https://us02web.zoom.us/u/k4ZHzsZZ

Re: [QUAD-L] Quadlist Zoom Meeting, 3/15

[Edward Tessier]

How did the zoom go last night?

Unfortunately I have a funeral to attend.

From: Don Price 
Sent: Tuesday, March 15, 2022 4:29 PM
To: Greg ; quad-list@eskimo.com 
Subject: RE: [QUAD-L] Quadlist Zoom Meeting, 3/15


Still on…. Starting soon.



From: Greg
Sent: Tuesday, March 15, 2022 4:09 PM
To: Don Price; 
quad-list@eskimo.com
Subject: Re: [QUAD-L] Quadlist Zoom Meeting, 3/15



I hope the meeting is still on. Did I miss it, or is it an hour later than 
advertised?



Greg





On Mon, Mar 7, 2022 at 4:57 PM Don Price 
mailto:donpric...@yahoo.com>> wrote:

Hey all!



We did a Quadlist Zoom meeting a few weeks ago, and even though only four of us 
attended it was still very enjoyable. I finally got to see and talk to my hero, 
Jim Lubin, the man who started the Quadlist.



Anyhow, I want to schedule another meeting, and rather than trying to get a 
consensus on date/time, i'm just going to schedule it for Tuesday, March  15th 
at 5pm AZ time. That's:

7pm ET

6pm CT

5pm MT

4pm PT





Topic: Quad-List Chat

Time: Mar 15, 2022 05:00 PM Arizona



Join Zoom Meeting

https://us02web.zoom.us/j/85753852801



One tap mobile

+16699006833,,85753852801# US (San Jose)



Join if you can!!!



Don.

Re: [QUAD-L] Quadlist Zoom Meeting, 3/15

[Edward Tessier]

Don, I so appreciate you doing this

I very much enjoyed the first  zoom

Unfortunately, at that very time on the 15th, I have a funeral service to attend

I do hope there is a third quad zoom! Can't wait to visit with everybody

Ed



From: Don Price 
Sent: Monday, March 7, 2022 2:56 PM
To: quad-list@eskimo.com 
Cc: quad-list@eskimo.com 
Subject: [QUAD-L] Quadlist Zoom Meeting, 3/15

Hey all!

We did a Quadlist Zoom meeting a few weeks ago, and even though only four of us 
attended it was still very enjoyable. I finally got to see and talk to my hero, 
Jim Lubin, the man who started the Quadlist.

Anyhow, I want to schedule another meeting, and rather than trying to get a 
consensus on date/time, i'm just going to schedule it for Tuesday, March  15th 
at 5pm AZ time. That's:
7pm ET
6pm CT
5pm MT
4pm PT


Topic: Quad-List Chat
Time: Mar 15, 2022 05:00 PM Arizona

Join Zoom Meeting
https://us02web.zoom.us/j/85753852801

One tap mobile
+16699006833,,85753852801# US (San Jose)

Join if you can!!!

Don.

Re: [QUAD-L] Constant sweating

[Edward Tessier]

Every time I have had chronic sweating it has been due to low grade autonomic 
dysreflexia (AD) cause by some source of irritation or trauma below my injury 
line. It can be the most maddening and scary situation to know something is 
profoundly wrong and have absolutely no idea how to pinpoint it and correct it. 
The fact that most healthcare professionals know little if anything about AD, 
or how debilitating it can be over time, always makes me feel even more 
helpless and hopeless.

Consistently, my worst trigger has been kidney stones.  For two years in the 
late 80s I was suffering both low-grade and flareup episodes of AD, and my 
inexperienced medical team did not pick up on some of the simplest warning 
signs, like chronic bladder infections and blood in the urine.  This was early 
in my post-accident years and I was too trusting of medical experts to demand 
that everybody aggressively pursue every possible source of the problem.   It 
almost cost me my life when I had post-surgery complications from removing two 
massive staghorn stones. Also, the   stones/infections/surgeries did 
irreparable nerve damage leaving me with chronic urethral burning – – which is 
the single biggest cause of suffering, depression, and reduced quality of life 
I experience.

Other AD triggers of mine I've had to track down include hemorrhoids, early 
bedsore breakdown on my heels, a spider bite, severe constipation, and fabric 
pressure points in my groin. Something like a dislocated shoulder or gallstones 
could absolutely be the cause of your sweating. You have to get those problems 
addressed (meaning treated!) to have any hope of tracking down the real culprit.

I've come to have a love-hate relationship with AD symptoms such as sweating, 
flushing, chills and body ache. On the hate side, they are immediately 
uncomfortable and distracting. If they persist, they become all-consuming, a 
constant source of worry and real physical distress. However, on the love side 
(maybe love overstates the case; maybe appreciate is more appropriate), without 
its warnings I would constantly be developing far worse physical problems. I am 
so in tune with that now, that the various combinations of AD symptoms can help 
me accurately discern between say, a moving kidney stone, and a hemorrhoid.

So, my advice is to please listen to your sweating. Don't stop until you 
eliminate, one by one, any source of irritation or trauma below your injury 
line.

Ed Tessier



From: Eric Olson 
Sent: Monday, February 21, 2022 10:26 AM
To: Toby Ausbun 
Cc: Quad-list Post 
Subject: Re: [QUAD-L] Constant sweating

Any one of those things could cause sweating.  For me, sweating is usually a 
sign of AD.  My gallbladder is full of stones too.  Has been for 35 years.  My 
doctor said, "ff you're ever really sick and they don't know why, tell them you 
have gallstones."  Gee thanks.  I know at some point, it will start causing me 
problems.  For now, if it ain't broke, don't fix it right?  Your shoulder 
situation is a little scary.  It could definitely cause sweating, but if you're 
not in pain... I wonder if the inaction on your shoulder is because you're a 
quad.  I think if you were able bodied, they would try to fix it.  Nobody wants 
to have surgery, but if it impacts your quality of life... Tough call.

On Sun, Feb 20, 2022 at 9:58 PM Toby Ausbun 
mailto:tobyle.aus...@icloud.com>> wrote:
My body has been sweating constantly for a yr now some days aren’t terrible in 
my chair but I’ve got a lot of things wrong with me my arm is dislocated and 
they can’t put it back in because of arthritis,rotator cuff’s torn in 
half,gallbladderfull of stones what do i do I’ve been a c4 complete and cant 
take it much longer like this would take any suggestions???

Sent from my iPad

Re: [QUAD-L] wondering about people

[Edward Tessier]

Hey Jeff,

 I tested positive in September. I also have diminished lung capacity (half of 
my left lung is scar tissue from a pulmonary infection a year after my accident 
in 1985)

 thanks to the vaccine, my symptoms were very mild-- fatigue, shortness of 
breath, dizziness.  and I'm so thankful it wasn't worse.   for example, my 
wife's acute infection was much worse and she has some long covid symptoms.

 while I am sure I dodged a bullet, my primary attendant has pointed out that 
the shortness of breath and dizziness never went away completely. I still 
haven't been able to return to a regular exercise program because just a few 
minutes of weight work and the room starts spinning.

 I can hardly complain, all things considered. I really haven't told my wife 
and family. It would just make them worry and what good could it do?

ed

From: Jeffrey Gaede 
Sent: Sunday, February 20, 2022 9:13 PM
To: Q-List 
Subject: Re: [QUAD-L] wondering about people

I'm curious if any quads that got Covid had breathing issues before acquiring 
the virus? I lost all muscle tone in my diaphragm during my original injury 
and, naturally, could only build it back so much. I breathe on my own but 
probably have 50% or less lung capacity than the average able-bodied person, 
and Covid is a respiratory virus.
Jeff

On Sunday, February 20, 2022, 07:41:48 PM PST, Toby Ausbun 
 wrote:




Sent from my iPad

On Sep 7, 2021, at 3:22 PM, Nichole Rohling  wrote:



Thank you Don for replying.

I originally asked if any Quads had gotten Covid, etc.



Nicki

C5/6



From: Don Price [mailto:donpric...@yahoo.com]
Sent: Tuesday, September 7, 2021 2:28 PM
To: Quad-list@eskimo.com
Subject: Re: [QUAD-L] wondering about people



Hello all!



I haven't been on the quadlist for a while, but i'm checking in today.



I'm so sorry to hear about Lori. She was a nice woman who went through a lot. 
My condolences to her family and friends.



Somebody asked about quads and covid. I know three quads who caught it. All 
three got through it without being hospitalized, although one of them resided 
in a nursing home when he caught it.



I've been vaccinated and even went in for a booster third shot recently. I got 
the Moderna vax, and as discussed I had slight fever and yuckiness for about 24 
hours after the second shot. No such reaction after the third shot.



I wish you all happiness and good health!



Don.

c5-6, Tempe, AZ



On Tuesday, September 7, 2021, 08:02:29 AM MST, Shirley Bell  
wrote:





Thanks Nicki, so sad indeed about Lori. We never knew how Bobbie Humphies died 
either. Miss them  both. Also wonder how Joan and Larry are?? I am good here in 
RI trying to find a way to drive again, hard on many levels. Shirley

Re: [QUAD-L] REMINDER--QUAD-LIST ZOOM TODAY (2/15/22)

[Edward Tessier]

Really enjoyed it guys

 Don, thanks again.  definitely up to doing it again

 next time I'm going through Phoenix  I'll look you up

From: Jim Lubin 
Sent: Tuesday, February 15, 2022 6:26 PM
To: Don Price 
Cc: Quad-list Post 
Subject: Re: [QUAD-L] REMINDER--QUAD-LIST ZOOM TODAY (2/15/22)

Thanks for setting this up Don. It was nice to see you guys. We'll have to do 
it again some time.

On Tue, Feb 15, 2022 at 11:13 AM Don Price 
mailto:donpric...@yahoo.com>> wrote:
I hope to meet some of you today!
5pm Eastern
4pm Central
3pm AZ and Mountain
2pm pacific

I've set up this Zoom meeting. Join if you can. It would be fun to connect 
faces with names!

Don Price is inviting you to a scheduled Zoom meeting.

Topic: Quadlist Meetup Zoom
Time: Feb 15, 2022 03:00 PM Arizona

Join Zoom Meeting
https://us02web.zoom.us/j/81350063298

Meeting ID: 813 5006 3298
One tap mobile
+12532158782,,81350063298# 
US (Tacoma)
+13462487799,,81350063298# 
US (Houston)

Dial by your location
+1 253 215 8782  US 
(Tacoma)
+1 346 248 7799  US 
(Houston)
+1 669 900 6833  US 
(San Jose)
+1 301 715 8592  US 
(Washington DC)
+1 312 626 6799  US 
(Chicago)
+1 929 205 6099  US 
(New York)
Meeting ID: 813 5006 3298
Find your local number: https://us02web.zoom.us/u/kboTHzy9Ma

[QUAD-L] Re: Quadlist Zoom Meetup, 2/15, 3pm AZ Time

[Edward Tessier]

Thanks Don!

 Can't wait to finally see everybody

 Ed Tessier

From: Don Price 
Sent: Tuesday, February 8, 2022 1:29 PM
To: Quad-list Post ; Edward Tessier 

Subject: Quadlist Zoom Meetup, 2/15, 3pm AZ Time

I've set up this Zoom meeting. Join if you can. It would be fun to connect 
faces with names!

Don Price is inviting you to a scheduled Zoom meeting.

Topic: Quadlist Meetup Zoom
Time: Feb 15, 2022 03:00 PM Arizona

Join Zoom Meeting
https://us02web.zoom.us/j/81350063298

Meeting ID: 813 5006 3298
One tap mobile
+12532158782,,81350063298# US (Tacoma)
+13462487799,,81350063298# US (Houston)

Dial by your location
+1 253 215 8782 US (Tacoma)
+1 346 248 7799 US (Houston)
+1 669 900 6833 US (San Jose)
+1 301 715 8592 US (Washington DC)
+1 312 626 6799 US (Chicago)
+1 929 205 6099 US (New York)
Meeting ID: 813 5006 3298
Find your local number: https://us02web.zoom.us/u/kboTHzy9Ma

Re: [QUAD-L] Re: Testing my email

[Edward Tessier]

Hey team,

 Ed Tessier here.

 C5 – 6, 38 years post injury, surfing accident

 I'm married (20 years) and have four teenage boys (two the old-fashioned way 
and two adopted)

 we live in Pomona California, which is about 30 miles east of downtown LA

 I work as a real estate developer in a family firm.

 in general terms my health is decent but I do have chronic problems:

From: Don Price 
Sent: Monday, January 31, 2022 12:25 PM
To: Quad-list Post 
Subject: Re: [QUAD-L] Re: Testing my email

Hello all!

Don Price, C5-6, 40 years post-injury. Diving accident.
Tempe, AZ.

I don't post to this group very often but I try to read the emails. I hope 
you're all well.

I have a Zoom account and would be happy to set up a Zoom meeting if you all 
want to meet online sometime.

Best wishes,
Don.

On Wednesday, January 26, 2022, 01:47:43 AM MST, Dana Wray  
wrote:


I am Dana Wray  C 4- 5
Complete quadriplegic, tracheostomy, ILEO-conduit from bladder cancer  and I 
also had colon cancer. I have a lot of problems with kidney stones.

I have learned much from everybody also and I really enjoyed the group. Thank 
you all for posting so we can Reconnect. I am 68 years old and 47 years post. I 
am on Facebook under my name.Prairie Village, Kansas .Suburb up Kansas City. I 
pray that everyone is well and not in the hospital, the worst place to be. I 
just lost a good friend to COVID-19. It was such a shock.

On Sat, Jan 15, 2022 at 4:59 PM Michelle Kephart 
mailto:michelle.keph...@gmail.com>> wrote:
Hello from Colorado! I’m a C5 quad, 13 years post. I don’t speak up often but 
I’ve learned so much from all of you and I appreciate this group. ❤️

Michelle


On Sat, Jan 15, 2022 at 2:00 PM radnbada...@aol.com<mailto:radnbada...@aol.com> 
mailto:radnbada...@aol.com>> wrote:
Ray (radnbadatpj) Still here  c/5 Prescott Valley AZ 20yrs post, miss all the 
old timers:( Jim who started this site, I think he’s still here,  W (Wheelchair 
who’s son was a quad) and he always gave awesome advice and just knew a bunch 
of stuff. Eric who’s still here, Dave from Phoenix injured during gymnastics 
meet (I think), Jim ( he did donkey trails little inspirational quotes on 
here.) Mark who was Quad Pirate, Silas, the farmer, Houston the gangster, who 
was going to college, Little Quad can’t remember her name, Lori who just 
recently passed away,  Dave from Texas, Boyd who at the time was the oldest 
member on the quad list, I think he was a pilot,  Joan can’t remember if it was 
her or Nancy who raised miniature horses. Greg he also lives in Arizona. These 
are just a few of the names that come to mind:-) I found this site a couple 
years after my accident and have followed it through the years. Sorry for 
rambling on, anyway I pray everyone is off to a great New Year and good health 
keep the post’s coming



Sent from the all new AOL app for 
iOS<https://apps.apple.com/us/app/aol-news-email-weather-video/id646100661>



On Saturday, January 15, 2022, 11:07 AM, Carla Aarssen 
mailto:caars...@hotmail.com>> wrote:

I am still here. 42yr old female C5 quadriplegic from Ontario, Canada 

Get Outlook for Android<https://aka.ms/AAb9ysg>

From: Eric Olson mailto:whee...@wi.rr.com>>
Sent: Saturday, January 15, 2022 12:41:59 PM
To: Jeffrey Gaede mailto:jsga...@yahoo.com>>
Cc: Edward Tessier mailto:e...@artecopartners.com>>; 
quad-list@eskimo.com<mailto:quad-list@eskimo.com> 
mailto:quad-list@eskimo.com>>
Subject: Re: [QUAD-L] Re: Testing my email

I just meant how many people are actually subscribed to the list.  I think most 
of the people that were on the list at one time have moved on to social media.  
Shame.

On Fri, Jan 14, 2022 at 11:22 AM Jeffrey Gaede 
mailto:jsga...@yahoo.com>> wrote:
As in? Quadriplegics? Tetraplegics?

On Friday, January 14, 2022, 09:18:05 AM PST, Eric Olson 
mailto:whee...@wi.rr.com>> wrote:


I often wonder how many of us there are.

On Thu, Jan 13, 2022 at 10:03 PM Edward Tessier 
mailto:e...@artecopartners.com>> wrote:
My message got through.

 Thanks everybody!

From: Edward Tessier
Sent: Thursday, January 13, 2022 7:52 PM
To: quad-list@eskimo.com<mailto:quad-list@eskimo.com> 
mailto:quad-list@eskimo.com>>
Subject: Testing my email

I haven't posted in a long time that I want to make sure it still works with my 
current email.   If anybody sees this, just give me a quick howdy.

 Thanks

[QUAD-L] Re: Testing my email

[Edward Tessier]

My message got through.

 Thanks everybody!

From: Edward Tessier
Sent: Thursday, January 13, 2022 7:52 PM
To: quad-list@eskimo.com 
Subject: Testing my email

I haven't posted in a long time that I want to make sure it still works with my 
current email.   If anybody sees this, just give me a quick howdy.

 Thanks

[QUAD-L] Testing my email

[Edward Tessier]

I haven't posted in a long time that I want to make sure it still works with my 
current email.   If anybody sees this, just give me a quick howdy.

 Thanks