[QUAD-L] HEMORRHOID BANDING

[Paul Jacobson]

Hi, I have 3 hemorrhoids, one internal and two external.

I am considering banding the internal hemorrhoid.

 

Has anyone ever done this and what were the results?

How long did your pain last and would you do it again,

if need be?

 

Thank you,

Paul Jacobson c5/6 complete

RE: [QUAD-L] https://www.amazon.com/Orthopedic-Cushion-Haemorrhoids-Suitable-Wheelchair/dp/B07WWN6933/ref=sr_1_7?dib=eyJ2IjoiMSJ9.1GIYkUexyNJ_5G8FHaBiHpiOKc70Us6r4iV3NYFnV8iOoImDWy0uufcBcD28PWIFy8s7Vp

[Paul Jacobson]

RIDE SYSTEM:  You get your butt and hips mapped and wherever there

Aae bony prominences, the areas where wounds occur, the cushion is cut out so 

there is no pressure, friction or touching.  These bony prominences,  just 
float 

and are free from pressure.

 

The cushion is individualized to you.  Hope this helps.

Paul

 

From: Ben Mattlin  
Sent: Thursday, April 11, 2024 10:44 AM
To: 'Jeffrey Gaede' ; quad-list@eskimo.com; 'Dan G.' 
; 'Daniel Gove' ; 
wheel...@centurylink.net; 'Edward Tessier' 
Subject: RE: [QUAD-L] 
https://www.amazon.com/Orthopedic-Cushion-Haemorrhoids-Suitable-Wheelchair/dp/B07WWN6933/ref=sr_1_7?dib=eyJ2IjoiMSJ9.1GIYkUexyNJ_5G8FHaBiHpiOKc70Us6r4iV3NYFnV8iOoImDWy0uufcBcD28PWIFy8s7VpJuynUbLzQT0pK9b_ylEuea7JwedZpPM4BSXKifeaAtE-d86HvuMY...

 

Can anyone explain why the Ride cushion is different/better? I'm currently in 
bed because of a scrotum pressure wound, and I've been using a Roho Quadtro for 
the past several years (after many more years on memory foam cushions). Thanks, 
everyone, for your wisdom and good advice.

-Ben (age 61, quad from spinal muscular atrophy)

 

From: Jeffrey Gaede mailto:jsga...@yahoo.com> > 
Sent: Wednesday, April 10, 2024 8:44 PM
To: quad-list@eskimo.com  ; Dan G. 
mailto:dng47...@gmail.com> >; Daniel Gove 
mailto:quadz...@optonline.net> >; 
wheel...@centurylink.net  ; Edward Tessier 
mailto:e...@artecopartners.com> >
Subject: Re: [QUAD-L] 
https://www.amazon.com/Orthopedic-Cushion-Haemorrhoids-Suitable-Wheelchair/dp/B07WWN6933/ref=sr_1_7?dib=eyJ2IjoiMSJ9.1GIYkUexyNJ_5G8FHaBiHpiOKc70Us6r4iV3NYFnV8iOoImDWy0uufcBcD28PWIFy8s7VpJuynUbLzQT0pK9b_ylEuea7JwedZpPM4BSXKifeaAtE-d86HvuMY...

 

Same here. Roho was fine when younger. Now it's Ride. 

 

On Wednesday, April 10, 2024 at 01:49:33 PM PDT, Edward Tessier 
mailto:e...@artecopartners.com> > wrote: 

 

 

in my younger years as a quad I did fine on rojo  and Jay cushions – – 
pneumatic and gel respectively.

 

 At 30 years post my body had had enough and I developed a sore that kept me in 
bed for a year

 

 I tried more than 20 different products on the market

 

 the only cushion that worked dependably for long hours of sitting in with no 
breakdown were the Ride Cushions.   highly customized and highly durable and 
absolute miracle workers  in that it enabled me to go back to work and be more 
active raising my kids

 

https://www.ridedesigns.com/wheelchair-cushions

  _  

From: Jeffrey Gaede mailto:jsga...@yahoo.com> >
Sent: Tuesday, April 9, 2024 10:33 AM
To: quad-list@eskimo.com   mailto:quad-list@eskimo.com> >; Dan G. mailto:dng47...@gmail.com> >; Daniel Gove mailto:quadz...@optonline.net> >; wheel...@centurylink.net 
  
Subject: Re: [QUAD-L] 
https://www.amazon.com/Orthopedic-Cushion-Haemorrhoids-Suitable-Wheelchair/dp/B07WWN6933/ref=sr_1_7?dib=eyJ2IjoiMSJ9.1GIYkUexyNJ_5G8FHaBiHpiOKc70Us6r4iV3NYFnV8iOoImDWy0uufcBcD28PWIFy8s7VpJuynUbLzQT0pK9b_ylEuea7JwedZpPM4BSXKifeaAtE-d86HvuMY...
 

 

True

 

On Tuesday, April 9, 2024 at 10:26:34 AM PDT, wheel...@centurylink.net 
  mailto:wheel...@centurylink.net> > wrote: 

 

 

i bought one like this and it made me so unbalance that i could not sit on it. 

i am thinking of designing and making my own cushion with cutout for groin area.

get really thick memory foam or other material and cut out a hole.

or use donut cushion with other material around it.

 

there is a cushion made that does have hole in middle but i think it is custom 
made and/or you must have company measure & build it just for you.

there is no reason that so many wheelchair cushion companies cannot make a 
cushion that pressure maps good and prevents pressure sores. no excuses.

derrick 

 

On 4/7/24 5:08 PM, Jeffrey Gaede wrote:

One thing I was warned about this type of objects a long time ago was that, 
while you are relieving pressure to the area in the middle, the outside rings 
can be cutting off at least some blood flow to where you are relieving 
pressure. Not saying that it shouldn't be used. Just say be careful.

 Jeff

 

On Sunday, April 7, 2024 at 01:58:12 PM PDT, Daniel Gove  
  wrote: 

 

 

https://www.amazon.com/Orthopedic-Cushion-Haemorrhoids-Suitable-Wheelchair/dp/B07WWN6933/ref=sr_1_7?dib=eyJ2IjoiMSJ9.1GIYkUexyNJ_5G8FHaBiHpiOKc70Us6r4iV3NYFnV8iOoImDWy0uufcBcD28PWIFy8s7VpJuynUbLzQT0pK9b_ylEuea7JwedZpPM4BSXKifeaAtE-d86HvuMY3s3MC9EdpBsUyQrNykJ71W3Bnd-vyfDMwh1gjQfhEhU9isZbe5wVmoFCw_F8-o1lwL5wfpqhN0a4QkDq6z9D-wuFGfiZ6mdn3R94UBx9-BCirGURFIW-0XLNP9UjpsMM7k1qUhpIXcSxZaZPAKnIG8VqjcvsWxYMEMQZeFvO-HDYNEvjg.1YOuLscoXvK2DMW93r338UpPsO8eikCB8TwsnJC1Hes_tag=se=foam%2BDoughnut%2Bcushion=1712522866=hpc=1-7

 

 

Dan G.
quadz...@optonline.net  

 

 

RE: [QUAD-L] CNA rates?

[Paul Jacobson]

Hi Aaron, I completely understand your point of view.  In my 20 SCI years,

I found that it is best to pay more than the going rate.  It lets me keep my

Caregivers for longer.  

 

Turnover is the worst….losing that knowledge, having to interview and 

retrain is just awful.  I pay between $27 - $30/hr.  It seems to work.

 

Thank you,

Paul  c5/6

 

From: Aaron Mann  
Sent: Monday, January 29, 2024 3:41 PM
To: Eric Olson 
Cc: Dana ; Daniel Gove ; 
quad-list@eskimo.com
Subject: Re: [QUAD-L] CNA rates?

 

I know the rate that we pay our attendants can vary based on where we live, but 
I have a hard time seeing more than $25 an hour being the top end. Especially 
just for basic ADLs. If you are paying $30 an hour, I sure hope your 
expectation of care is stellar. I mean immaculate care, always on time, doing 
things above and beyond the basic or even more than that. I still pay today 
starting at $15 an hour. It takes working for me at least six months before I 
will bump that up to $20 an hour where I expect timeliness, thoroughness, and a 
cheery attitude. If I'm going to go to $25/hr, they better do things beyond 
ADLs. Things like vacuuming, mopping, organizing all of my things without 
asking.

 

I think that what you may be feeling is "what would I want to be paid if I did 
this job". You really have to get out of this mindset, because there are many 
things I asked to be done that personally I probably would not do it unless it 
was a direct loved one. Today most starting jobs are $15 an hour and they are 
expected to do more work than what we expect for ADLs. I know it's hard not to 
feel guilty, especially when they are a nice person and probably have a family. 
People who we have even considered family because of how closely they work with 
us. I have been through over 300 attendants in my 34 years. While I may have 
felt very closely to those who stuck with me through years and invited to 
family events and worked with the children. In the end, they were not actually 
family. They had to move on and live their lives based on what they needed.

 

What may help is setting up a bonus plan. Set their pay and a base of $20 an 
hour and list or just give bonuses each pay period based on stellar or above 
the normal work. This would allow you to give a bonus of nothing or hundreds of 
dollars if they were especially helpful one pay period.

 

Hope this helps, your brother in SCI.


 

Aaron Mann

 

 

On Sat, Jan 27, 2024 at 1:30 PM Eric Olson mailto:whee...@wi.rr.com> > wrote:

I agree.  $30/hour seems awfully generous even if your cares were extensive and 
more complex.  Doing just basic ADL'S seems like a pretty easy gig especially 
for that money 

 

On Sat, Jan 27, 2024 at 5:54 AM Dana mailto:wraydan...@gmail.com> > wrote:

That is way above the average pay a CNA makes.  They should not be asking for a 
raise if so I try to find other people.  That's just my opinion.  It will be 
great to hear, what others have to say from the list.  Thank you for asking 
pertinent questions.

Dana

 

On Thu, Jan 25, 2024 at 3:18 PM Daniel Gove mailto:quadz...@optonline.net> > wrote:

Hello everyone, 

A question for all on the list who use private duty CNA/Home Health Aide Care 
and pay for it 

out of pocket, how much you pay your CNA/Home health aide  per hour?   I have 
two 

excellent CIA's and both are complaining that they are not earning enough.  
Thing is, 

I gave them both raises are a few months ago, from $28.00 to $30.00 an hour.  I 
know 

that's not a lot but at the time that's all I could afford but my financial 
situation 

Changed for the better and now I can afford a little more and am wondering what 
a 

a good hourly rate is to pay an excellent CNA?  Below are my morning 

and evening Care plans: 

Morning care plan: 

Sponge bath, upper body (no legs or feet) Done in bed, six days a week, whole 
body 7 days a week. 

Getting dressed (also done in bed) I usually wear nylon running pants, 

no underpants so just involves changing the pants. 

Sliding board transfer into power chair.  

She makes a breakfast which usually consists of brewed coffee & microwave 
pancakes or 

waffles done in toaster oven.  On Fridays and only Friday she'll make scrambled 
eggs 

and a toasted English muffin. 

3 days a week she'll make a wrap sandwich.  

Quite a few little side jobs like checking and opening my mail, opening any 
boxes or packages I may receive. 

 

 

Night time care plan: 

Mixing and serving me metamucil. 

Getting undressed, 99% of time only involves taking off shirt. 

Sliding board transfer into bed. 

Range of motion exercises on legs, takes about 10 minutes. 

Prepare night snack, usually just 2 apple slices & 2 prunes.  The 

Moving wheelchair into place by bed (power chair, heavy, not very easy to move) 

Also occasional little side jobs like checking & opening my mail, opening any 
boxes or packages I may receive.  

 

Sorry for such long list, just wanted you all to get a 

[QUAD-L] PROLIA

[Paul Jacobson]

Getting my first PROLIA injection next week to increase bone density. 

Is it a good idea? What are the initial side effects?

 

Thank you,

Paul c5/6  20 yrs post

[QUAD-L] BONE DENISITY

[Paul Jacobson]

Has anyone taken PROLIA for better bone density? Can you 

share your results and thoughts? Thank you!

 

Paul c5/6

San Diego, CA

[QUAD-L] Prolia to treat osteoporosis

[Paul Jacobson]

Hi,

 

Has anyone ever tried Prolia or anything similar to treat osteoporosis? 

What were your results and concerns.

 

Thanks, 

Paul  c5/6

[QUAD-L] PLAN F PLANS

[Paul Jacobson]

Hi, it is that time of the year where I need to renew Plan F.

Does anyone know where I can find simple cost comparisons?

 

Thank you,

 

Paul

C5/6  Injured 11/05/03

 

[QUAD-L] BACLOFEN PUMP

[Paul Jacobson]

Hi, anyone using one open to sharing your experience with the pump with me
privately?

Strongly thinking about it as abdominal/leg spasms have become very
disruptive.

 

Thank you,

Paul c5/6 complete

[QUAD-L] PROLIA INJECTIONS - BONE LOSS

[Paul Jacobson]

Has anyone had PROLIA injections for bone loss? If so, how did it work for
you? 

Any side effects? 

 

Thank you! Paul c5/6

[QUAD-L] EASY TO TRANSFER TO SHOWER CHAIR

[Paul Jacobson]

Hi, wonder if anyone has ever tried this….super interesting!

 

Thanks,

Paul  c5/6 complete

 

Bedside Commode Lift JT-2020K
https://www.discovermymobility.com/store/bathroomlifts/discover/bedside-commode-lift-jt-2020k/index.html?gclid=CjwKCAjw38SoBhB6EiwA8EQVLoJpATEzS8slo7U87n63xWVjBeP3JZHPuPSk1fWef8l1e30ST3PzkhoCKI0QAvD_Bw

 

 

 

 

Sent from my T-Mobile 5G Device

 

[QUAD-L] ABDOMINAL SPASMS

[Paul Jacobson]

Hi, Has anyone ever used a TENS unit for 

abdominal spasms? If so, can you please 

share your thoughts. 

 

THANK YOU!

Paul  c5/6

Re: [QUAD-L] Fingers crossed that I'm doing this properly. If not just send it back. Thanks.

[Paul Jacobson]

Hi Lissette, 

I am exactly like youhemorrhoids, back sleeper and spasms when I first lay 
down.  
I am in tons of discomfort during the BP.  It always takes me 2 – 3 hours to 
feel 
better.  After the BP, it always feels like I still have to go but that 
resolves.

I take Miralax every other day, Benifiber each day, D-Mannose  each day and 
fiber 
pills each day. Stay away from using creams for prolonged use, as this can thin 
the
skin, which would make matters worse.

I did look into hemorrhoid banding but decided to pass.  This could be a 
solution.

Wish you well,
pj

From: Danny Hearn 
Sent: Sunday, October 2, 2022 3:37 PM
To: Carla Aarssen ; Shala Silverstein ; quad-list@eskimo.com ; Lissette 
Whitehead 
Subject: Re: [QUAD-L] Fingers crossed that I'm doing this properly. If not just 
send it back. Thanks.

The method used to help clear bowels is Digital Stimulation, True most Quads 
get hemorrhoids, some need to get them treated or removedso far I have been 
okay with  creams when they get bad. AS far as the problem when doing bowel 
routine...many Quads told me that Miralax can really help and can be taken 
regularly if needed, also was told fiber can help . Dan ***

On Sunday, October 2, 2022 at 05:06:21 PM CDT, Lissette Whitehead 
 wrote: 


Sorry, I meant to reply to Shala but thanks for your input Carla!  

Lissette Whitehead
(949)505-8005



From: Lissette Whitehead 
Sent: Sunday, October 2, 2022 3:03:26 PM
To: Carla Aarssen ; Shala Silverstein 
; quad-list@eskimo.com 
Subject: Re: [QUAD-L] Fingers crossed that I'm doing this properly. If not just 
send it back. Thanks. 

Hello Carla, I recently discovered that I have hemorrhoids as well, I guess 
from so much constipation and didge shimming. I also noticed increased spasms, 
especially when I’m in bed, it’s not too bad, it’s usually just when I first 
lay down and then they calm down. I think my mattress helps a lot, it’s a gel 
mattress, however I do have a big butt which probably helps too. I can’t sleep 
on my side because my shoulders start hurting after 15-20 minutes, so I sleep 
on my back all night. I’ve tried hemorrhoid creams but didn’t help much. I read 
that taking an anti-inflammatory could help, I haven’t tried it yet but I think 
the best thing to do is to address the hemorrhoids. I think also fiber rich 
diet might help. Also, not sure if the hemorrhoids are obstructing my bowels 
from coming out, because I've been having the hardest time lately. Maybe seeing 
a doctor for the hemorrhoid issue it's not a bad idea.

Lissette Whitehead
(949)505-8005



From: Carla Aarssen 
Sent: Sunday, October 2, 2022 10:02:23 AM
To: Shala Silverstein ; quad-list@eskimo.com 

Subject: Re: [QUAD-L] Fingers crossed that I'm doing this properly. If not just 
send it back. Thanks. 

Do you have an air mattress? Because they are awesome for relieving pressure. 
Most of the time I set mine to float but if I have a pressure sore I set it to 
alternate and it will move air side to side kind of like you are doing with 
pillow but more often and while you sleep.
I also have issues with hemorrhoids I spent 4yrs every 3 months having them 
banded (rubber bands caught off blood supply) and they would fall off within 4 
days. But Dr told me we would never get ahead this way so he finally referred 
me to a surgeon to have them removed. That was at the beginning of Covid 
unfortunately I am still on waiting list for surgery. 
Anyway I am same level quad as you and my accident was in 2002 so almost as 
many years post injury as well. If you would like to share with eachother my 
email is caars...@hotmail.com. You can also find me on Facebook.
Wishing you all the best!
Carla Aarssen

Get Outlook for Android



From: Shala Silverstein 
Sent: Sunday, October 2, 2022 12:28:47 AM
To: quad-list@eskimo.com 
Subject: [QUAD-L] Fingers crossed that I'm doing this properly. If not just 
send it back. Thanks. 

Hello my name is Shala & I had a car accident in 1999 that left me a complete 
C-4,5 & 6 quadriplegic. Since then I've had a couple bumps in the road but 
nothing major. Now almost 24 years later, I think some things are taking a toll 
on my body & I've come to a crossroad & am looking for some experienced advice. 
That being said let me tell you about my situation, I'm sure most quads will 
understand when I say that bowel movements can be tough, we need assistance. 
I've heard it referred to as "ditch stem", & manual disimpaction. Well after 
doing things this way for usually 5 days out of the week, I've ended up with 
some hemorrhoids. So when nighttime comes I'm unable to lay flat on my back not 
only because of the hemorrhoids but because of my bony coccyx. For the last 10 
years I've used a pregnancy pillow, and to 

[QUAD-L] STRONG ABDOMINAL SPASMS

[Paul Jacobson]

I have been having significant abdominal spasms/muscle tightness and am 
considering taking either:

1. Diazepam
2. Gabapentin (Neurontin)
3. Pregabalin (Lyrica)
4. Quinine

If you have taken any of these, please share your experience (side effects, 
effectiveness, dosage, etc.)
Thank you!
Paul c5/6  19 years post

Re: [QUAD-L] Botox for bladder spasms

[Paul Jacobson]

Hi Michelle, I was a bit reticent but realize after the fact how foolish I was.
It absolutely has no effect on the bowel program.  I have been doing it every
5 months for 2 years without any reactions at all.  It is a no-brainer!!

Ask anything you like!!  Good Luck Michelle!
Paul 
c5/6 complete Injured: 11/5/03

From: Michelle Harkness 
Sent: Tuesday, May 4, 2021 5:54 PM
To: Paul Jacobson 
Cc: Lori Michaelson ; quad-list 
Subject: Re: [QUAD-L] Botox for bladder spasms

I have also been thinking about doing bladder Botox, but have so far chickened 
out.  I’m a C5/6 quad, almost 28 years post. I do intermittent catheterization 
approx every 4 - 5 hours. I can’t do the bladder meds anymore, as they give me 
way too many bad reactions. I do get “goosebumps”, my form of AD if I ever void 
before my cath time.  

My biggest worry = it affecting my pooper too!

Were there any adverse reactions Paul?  How long have you been getting it done? 
 

Thanks for the input you’ve already shared!

Michelle



  On May 4, 2021, at 6:31 PM, Paul Jacobson  wrote:


   
  Hi Lori, bladder botoxa dream come true!

  >  no accidents ever
  >  spasms significantly reduced and are very  rare and are never 
disruptive
  >  no AD related to bladder ever
  >  go every 5 monthsprocedure is quick and painless w/anesthesia

  Any questions, let me know.  Good luck!
  Paul

  From: Lori Michaelson 
  Sent: Tuesday, May 4, 2021 3:02 PM
  To: quad-list 
  Subject: [QUAD-L] Botox for bladder spasms

  I never ever thought I would need to consider Botox for these bladder spasms 
I am having even though I know many quads have used it. No one I know though.

  Does anyone on here need to use Botox for bladder spasms? If so, how often?

  Thank you!
  ~Lori

  -- 

  “Petting, scratching, and cuddling a dog could be as soothing to the mind and 
heart as deep meditation and almost as good for the soul as prayer.” ― Dean 
Koontz

Re: [QUAD-L] Botox for bladder spasms

[Paul Jacobson]

Hi Lori, bladder botoxa dream come true!

>  no accidents ever
>  spasms significantly reduced and are very  rare and are never disruptive
>  no AD related to bladder ever
>  go every 5 monthsprocedure is quick and painless w/anesthesia

Any questions, let me know.  Good luck!
Paul

From: Lori Michaelson 
Sent: Tuesday, May 4, 2021 3:02 PM
To: quad-list 
Subject: [QUAD-L] Botox for bladder spasms

I never ever thought I would need to consider Botox for these bladder spasms I 
am having even though I know many quads have used it. No one I know though.

Does anyone on here need to use Botox for bladder spasms? If so, how often?

Thank you!
~Lori

-- 

“Petting, scratching, and cuddling a dog could be as soothing to the mind and 
heart as deep meditation and almost as good for the soul as prayer.” ― Dean 
Koontz

[QUAD-L] Itching Head

[Paul Jacobson]

This head massager is ideal for quads.less than $2!

From: Paul Jacobson 
Sent: Monday, January 25, 2021 1:58 PM
To: Greg ; quad-list 
Subject: Re: [QUAD-L] Itching Head



From: Greg 
Sent: Monday, January 25, 2021 1:43 PM
To: Paul Jacobson 
Subject: Re: [QUAD-L] Itching Head

link did not work or me.


On 1/23/2021 9:26 AM, Paul Jacobson wrote:

  These head massagers are $0.98 and quad friendly.  I love them!
  https://www.aliexpress/item/4001316902482.html 

  From: Lissette Whitehead 
  Sent: Friday, January 22, 2021 9:58 PM
  To: Aaron Mann ; Greg 
  Cc: quad-list@eskimo.com 
  Subject: Re: [QUAD-L] Itching Head

  Drives me nuts too! It's usually the top of my head which I can barely reach. 
I use head & shoulders so I don't have dandruff. The worst is when I get itchy 
when I'm in bed, all tucked in and I have to get my arm out then to get it back 
under the blankets is the hardest thing, or impossible. The hairbrush feels 
exhilarating, wish I could have my hair brushed all day.


  Lissette Whitehead


  416 W. San Ysidro Blvd.

  San Ysidro, CA 92173

  www.lwgripgloves.com



--





--

  From: Aaron Mann mailto:aman...@gmail.com
  Sent: Thursday, January 21, 2021 8:02 AM
  To: Greg mailto:g...@eskimo.com
  Cc: quad-list@eskimo.com mailto:quad-list@eskimo.com
  Subject: Re: [QUAD-L] Itching Head 

  Me too! Hair brush feels best..  It's either one of two things for me; head 
drying out due to sleeping with blanket/pillow/etc over head or scalp not 
producing oils due to injury (like sweating only on one side of my head)


  Aaron Mann


  On Wed, Jan 20, 2021 at 5:28 PM Greg  wrote:

My head itches so bad, all the time.
I have been to docs, dermatologists, etc. I've tried creams, lotions, meds, 
shampoos. I even shaved my head. So far, very short hair works best, but still 
drives me nutz. Finger nails feel best, but I can't reach the top o my head or 
open my hands. 

I wish I could find a hat that had spinning, stiff, brushes, inside it. I'd 
wear it all day long and all night.
Greg

Re: [QUAD-L] Itching Head

[Paul Jacobson]

These head massagers are $0.98 and quad friendly.  I love them!
https://www.aliexpress/item/4001316902482.html 

From: Lissette Whitehead 
Sent: Friday, January 22, 2021 9:58 PM
To: Aaron Mann ; Greg 
Cc: quad-list@eskimo.com 
Subject: Re: [QUAD-L] Itching Head

Drives me nuts too! It's usually the top of my head which I can barely reach. I 
use head & shoulders so I don't have dandruff. The worst is when I get itchy 
when I'm in bed, all tucked in and I have to get my arm out then to get it back 
under the blankets is the hardest thing, or impossible. The hairbrush feels 
exhilarating, wish I could have my hair brushed all day.


Lissette Whitehead


416 W. San Ysidro Blvd.

San Ysidro, CA 92173

www.lwgripgloves.com











From: Aaron Mann 
Sent: Thursday, January 21, 2021 8:02 AM
To: Greg 
Cc: quad-list@eskimo.com 
Subject: Re: [QUAD-L] Itching Head 

Me too! Hair brush feels best..  It's either one of two things for me; head 
drying out due to sleeping with blanket/pillow/etc over head or scalp not 
producing oils due to injury (like sweating only on one side of my head)


Aaron Mann


On Wed, Jan 20, 2021 at 5:28 PM Greg  wrote:

  My head itches so bad, all the time.
  I have been to docs, dermatologists, etc. I've tried creams, lotions, meds, 
shampoos. I even shaved my head. So far, very short hair works best, but still 
drives me nutz. Finger nails feel best, but I can't reach the top o my head or 
open my hands. 

  I wish I could find a hat that had spinning, stiff, brushes, inside it. I'd 
wear it all day long and all night.
  Greg

Re: [QUAD-L] Vaccines for Covid-19

[Paul Jacobson]

AS LONG AS YOU GET IT, YOU’RE FINE...her choice

From: Eric Olson 
Sent: Friday, January 15, 2021 4:19 PM
To: Danny Hearn 
Cc: quad-list@eskimo.com 
Subject: Re: [QUAD-L] Vaccines for Covid-19

After you get the vaccine, you're given the opportunity to have the CDC track 
any symptoms you might develop.  I get a text every day for 7 days with a link 
asking me about my symptoms.  It will happen again when I get the second dose.  
The great thing about this country is that no one is required to get 
vaccinated.  Not even employers in health care organizations   





On Thu, Jan 14, 2021 at 5:01 PM Danny Hearn  wrote:

  Hello Group.I was Wondering how everyone Feels about the Covid-19 
Vaccines. Yes-No  Or going to wait a while and see ? I'm not sure I Trust Them 
Myself.  Thanks !Hope Your All Doing Okay as we head into A New Year !
Dan H***

[QUAD-L] BOWEL PROGRAM ISSUE

[Paul Jacobson]

I do my bowel program every other day. I do take fiber supplements, BeneFiber, 
Miralax D-Mannose 

and other supplements. Recently, the night before I do the bp, my stomach 
bothers me and causes AD 

with sweating, particularly when I lay down. It seems that I am ready to go and 
the AD continues until 

I do the bp the next morning. Anyone ever experience this? If so how did you 
solve? 

Thank you, 

Paul 56 year old healthy c5/6 complete.

Re: [QUAD-L] What Kind Of Pants Do You Wear?

[Paul Jacobson]

Hi Lissete, love to try it.  I play poker with Aaron, Aleyda’s husband, each 
week.  Let me know how I can pay you.
Hope you are well.
pj 

From: Lissette Whitehead 
Sent: Wednesday, September 4, 2019 1:08 PM
To: Paul Jacobson 
Cc: quad-list 
Subject: Re: [QUAD-L] What Kind Of Pants Do You Wear?

Hi Paul,
I think you need to be wearing a more breathable fabric, especially in this 
warm, humid weather. A couple years ago I had a horrible rash due to leaks from 
a UTI, it lasted about 6 months. I tried all kinds of ointments, until a doctor 
told me about Gelmicin. I buy it in Tijuana. It started working almost 
instantly. I could probably send you some with my cousin Aleyda if you still 
see her. Or do you ever cross to T.J.?

Sent from my iPad

On Sep 4, 2019, at 12:49 PM, Paul Jacobson  wrote:


  Hi, I have been getting rashes in  my groin area and buttocks.  I wear blue 
jeans and no underwear.
  What do you guys wear?  Any guys wear boxers?  Any thoughts?

  Thank you,
  Paul
  c5/6

[QUAD-L] What Kind Of Pants Do You Wear?

[Paul Jacobson]

Hi, I have been getting rashes in  my groin area and buttocks.  I wear blue 
jeans and no underwear.
What do you guys wear?  Any guys wear boxers?  Any thoughts?

Thank you,
Paul
c5/6

[QUAD-L] What is the best marijuana to help calm spasms at night?

[Paul Jacobson]

Hi, my spasms are getting stronger and really interfering with my sleep.
Let me know what you think.

Thanks
Paul c5/6

[QUAD-L] Groin rashes from heat/sweat

[Paul Jacobson]

Hi, how do people solve this issue?

Thank you!
Paul c5/6

[QUAD-L] BOWEL PROGRAM: What works best - Magic Bullet/Enemieez/Other?

[Paul Jacobson]

Let me know what you think.
Paul c5/6

[QUAD-L] Self Emptying Leg Bag

[Paul Jacobson]

Does anyone use this?  If so what brand and how do you like it.

Thank you,
Paul  c5/6

[QUAD-L] Botox For Bladder Spasms

[Paul Jacobson]

Hi, anyone done this?  Strongly considering and would love to 
hear your experiences.

Thank you,
Paul c5/6  15 years post
San Diego, CA

[QUAD-L] Baclofen Pump

[Paul Jacobson]

Hi, anyone using his?  Love to hear what you think.  I am considering it.

Thanks,
Paul c5/6

Re: [QUAD-L] Lotto

[Paul Jacobson]

Interesting idea, Greg.  What would any of you do with unlimited money?
Paul c5/6

From: Greg 
Sent: Sunday, October 21, 2018 8:23 AM
To: quad-list@eskimo.com 
Subject: [QUAD-L] Lotto

And still no winner. Might hit 2 billion. Even taking half upfront, 1 
billion... WOW!
Enough to get a plane I can fly in and stay in my chair.

I bet you'd hear from every person you ever knew. Hi Greg, I'm your uncles, 
wifes, cousins, son-inlaw. We met at a wedding 10 years ago. Can I barrow .

Greg

[QUAD-L] self emptying leg bag

[Paul Jacobson]

Hi, anyone use one of these?  If so, can you share your pros/cons and 
thoughts about

different brands.

Thank you so much.
Paul c5/6 

[QUAD-L] abdominal spasms/baclofen pump

[Paul Jacobson]

Hi, I have strong abdominal spasms when I lay down at night.  
Thinking about a baclofen pump, does anyone use one for 
spasms? If so, can you share you experiences.

Thank you.

Paul
c5/6

Re: [QUAD-L] Drinking Enough

[Paul Jacobson]

Forgot to mentionwater is room temperature.  

From: Amy Elizabeth Baldwin 
Sent: Sunday, May 27, 2018 2:46 PM
To: g...@eskimo.com ; quad-list@eskimo.com 
Subject: Re: [QUAD-L] Drinking Enough

Do you get frequent bladder infections?


Sent from Yahoo Mail on Android


  On Sun, May 27, 2018 at 3:51 PM, Greg
   wrote:
  Thats more than I drink in 3 days.
  And never water, I hate water. Coffee, Tea coke, juice.
  I try and dink more than coffee, tea, but anything cold goes to my bones and 
makes me freeze.
  Greg


  On 5/27/2018 10:14 AM, Jim Lubin wrote:

I never feel thirsty either. I drink fluids on a schedule (sort of). One 
full 8 oz glass of water with my pills 4 times a day. A protein drink, 11 oz, 
in the morning. A 16 oz bottle of water with each meal, lunch and dinner. A 
glass of water with Metamucil in the afternoon. 

On Sat, May 26, 2018 at 7:49 PM, Greg  wrote:

  Even though it is almost 100 degree out and I sit outside for hours, I 
just never drink enough. I just don't get thirsty. I don't like drinking. Any 
of you have that prob?

  Greg

Re: [QUAD-L] Drinking Enough

[Paul Jacobson]

I hate drinking water but I do drink 6 16.7 oz. bottles/day (102 oz/day). I 
drink each one 
in about 15 – 30 seconds to get it over with.  It does help a lot.

Paul c5/6 54 yr old

From: Greg 
Sent: Saturday, May 26, 2018 7:49 PM
To: quad-list@eskimo.com 
Subject: [QUAD-L] Drinking Enough

Even though it is almost 100 degree out and I sit outside for hours, I just 
never drink enough. I just don't get thirsty. I don't like drinking. Any of you 
have that prob?

Greg

Re: [QUAD-L] Colonoscopy

[Paul Jacobson]

I did it...45 minutes...was awake for the whole thing and
watched it on the monitor!!  Zero pain, minor discomfort.

Paul
c5/6

From: Eric Olson 
Sent: Tuesday, January 30, 2018 2:26 PM
To: quad-list@eskimo.com 
Subject: Re: [QUAD-L] Colonoscopy

Yes but not by choice.  I had a massive GI bleed so was hospitalized.  No 
problems with AD.




On 1/29/2018 2:10 PM, Derrick Winegardner wrote:

  Has anyone ever had to get a colonoscopy?
  Problems, AD?
  Prep?
  Derek 








 Virus-free. www.avast.com  

[QUAD-L] CRANBERRY SUPPLEMENTS

[Paul Jacobson]

What cranberry supplements do you guys prefer.  
Been getting too many UTI’s.

Thank you!
Paul c5/6  Injured 14 years ago today

[QUAD-L] SCI STUDY IN SOUTHERN CALIFORNIA - $250 COMPENSATION

[Paul Jacobson]

My friend, Todd Astorino, professor of Kinesiology at Cal St. San Marcos,  is 
conducting 
a research study to determine how different types of handcycling can improve 
cardiovascular and influence appetite.  Participants receive $250 in 
compensation.

YOU QUALIFY IF YOU:
  >  Have a SCI at or below C5
  >  Are a male between 18 – 60 years of age
  >  Are free of any medical illness
  >  Exercise 3 to 5 times per week
  >  Are able to attend 5 exercise sessions at Cal. St. San Marcos

IF INTERESTED CONTACT:
  >  Elyse Palumbo   palum...@csusm.edu
  >  Jackie Godinez  godin...@csusm.edu 

Thanks,
Paul

[QUAD-L] Myrbetriq for bladder spasms

[Paul Jacobson]

Has anyone ever used this for bladder spasms?  If so, thoughts?

  Myrbetriq is a once daily pill that mellows bladder spasms but 
doesn’t 
  affect acetylcholine; instead it quiets the bladder by 
stimulating Beta 3 
  receptors in the bladders muscle cells and doesn’t cause 
cognitive or
  other severe side effects that often accompany anticholinergics. 
It 
  received approval by the FDA for treating overactive bladder.

Thanks!
Paul

[QUAD-L] BLADDER MEDS AND COGNITIVE IMPACT

[Paul Jacobson]

Hi, I recently read these 2  articles on Anticholinergic Drugs.

https://www.peoplespharmacy.com/2011/01/17/protecting-brain-power-as-we-age/
https://www.peoplespharmacy.com/2017/05/04/where-can-i-find-a-list-of-anticholinergic-drugs/

Detrol LA, which I take, has been identified as high anticholinergic (AC) 
action.

The greater the AC activity the more worrisome the cognitive impact.

My mom now has dementia, so I am concerned that my bladder meds are an
issue.

Best to all of you.
pj 

[QUAD-L] Botox For Spasms

[Paul Jacobson]

Anyone ever do it or have info on it?  I have strong abdominal 
spasms and would rater not do addictive medicine (baclofen)
or something invasive like a baclofen pump.

Thanks so much!
Paul c5/6  Injury: 11/05/03
53 years old

Re: [QUAD-L] Raining

[Paul Jacobson]

Thermostat:  Keep at 70 all year round

Paul c5/6
San Diego, CA

From: Nichole Rohling 
Sent: Monday, February 20, 2017 11:04 AM
To: 'RONALD L PRACHT' ; 'greg' ; quad-list@eskimo.com 
Subject: RE: [QUAD-L] Raining

Greg I agree and Ronald I’m with you! Oklahoma is bipolar. We had 85 degrees a 
week ago Saturday and it is suppose to be 82 Thursday. I‘m ready for Spring

 

What temperature do you keep your thermostat on? 77 here!

 

Nicki

 

From: RONALD L PRACHT [mailto:r.pra...@sbcglobal.net] 
Sent: Sunday, February 19, 2017 6:44 PM
To: Quad-list Post
Subject: Re: [QUAD-L] Raining

 

Come on down to Missouri(Misery)where a quad has to hibernate between 
Nov-April. Every year I think Im going to be tough, but cant fight below 30 in 
my old quad years.

 

Ron

 

On Sunday, February 19, 2017 5:19 PM, greg  wrote:

 

I hate these rainy days. I get so sore.
Its hard to believe 60 and sunny feels so much bete than 72 and rainy. I'd 
rather 60 and sunny than 80 and clowdy.

I drink hot stuff all day, then feel blah from dinking too much sweet stuff. 
Hot Coco, Coffees, Cider.
rain rain go away...

Greg

 

Re: [QUAD-L] Why keep pushing on

[Paul Jacobson]

Love begins, with you. 

From: Jeffrey Gaede 
Sent: Friday, January 27, 2017 6:54 PM
To: Paul Jacobson 
Subject: Re: [QUAD-L] Why keep pushing on

Love is a good reason to push on, but not all of us have love in our lives




From: Paul Jacobson <pjacob...@san.rr.com>
To: Jeffrey Gaede <jsga...@yahoo.com>; Quad-list Post <quad-list@eskimo.com> 
Sent: Friday, January 27, 2017 9:56 AM
Subject: Re: [QUAD-L] Why keep pushing on


love

From: Jeffrey Gaede 
Sent: Thursday, January 26, 2017 6:34 PM
To: Quad-list Post 
Subject: [QUAD-L] Why keep pushing on

Why do people keep pushing on? I mean it's bad enough to be substantially 
disabled, but it doesn't stop there. People, in general, don't want to be 
around you. It's difficult to go places and do things; average things that most 
people do all the time. And you know from experience that illnesses and such 
can pop up at any moment, much more easily than the average person. You try 
like hell to avoid being dependent on the government but it's nearly 
impossible, even if you work full-time. That means you constantly have someone 
with which to answer. Someone with their own rules, who can't begin to 
understand you and what you go through on a daily basis. I could see where if 
you were recently disabled then maybe you haven't been through enough to 
realize what life is going to throw your way, but what about those of us that 
have been around a while? What keeps you pushing on… Jeff





From: greg <g...@eskimo.com>
To: quad-list@eskimo.com 
Sent: Thursday, January 26, 2017 6:30 PM
Subject: [QUAD-L] Bd


I hate going to bed. I freeze the first half hour no matter how warm I get my 
room.
Shake like I'm convulsing.
I'd stay in my chair 24/7 if I could.
Plus I just hate not being able to move around.
Greg

Re: [QUAD-L] Why keep pushing on

[Paul Jacobson]

love

From: Jeffrey Gaede 
Sent: Thursday, January 26, 2017 6:34 PM
To: Quad-list Post 
Subject: [QUAD-L] Why keep pushing on

Why do people keep pushing on? I mean it's bad enough to be substantially 
disabled, but it doesn't stop there. People, in general, don't want to be 
around you. It's difficult to go places and do things; average things that most 
people do all the time. And you know from experience that illnesses and such 
can pop up at any moment, much more easily than the average person. You try 
like hell to avoid being dependent on the government but it's nearly 
impossible, even if you work full-time. That means you constantly have someone 
with which to answer. Someone with their own rules, who can't begin to 
understand you and what you go through on a daily basis. I could see where if 
you were recently disabled then maybe you haven't been through enough to 
realize what life is going to throw your way, but what about those of us that 
have been around a while? What keeps you pushing on… Jeff





From: greg 
To: quad-list@eskimo.com 
Sent: Thursday, January 26, 2017 6:30 PM
Subject: [QUAD-L] Bd


I hate going to bed. I freeze the first half hour no matter how warm I get my 
room.
Shake like I'm convulsing.
I'd stay in my chair 24/7 if I could.
Plus I just hate not being able to move around.
Greg

[QUAD-L] Bowel Care: Paraflush - Anyone try it?

[Paul Jacobson]

Wonder what folks think of this:
http://www.paraflush.com/

Thanks!
Paul c5/6

[QUAD-L] Pretty Cool

[Paul Jacobson]

https://www.facebook.com/GIGadgets.Fans/videos/1102250816520873/?pnref=story

[QUAD-L] Is this real??? Thoughts?

[Paul Jacobson]

http://theheartysoul.com/stem-cells-cure-paralysis/?t=CE

[QUAD-L] SHOWER CHAIR

[Paul Jacobson]

What types of shower chairs do you use and why do you like it?
I use an Invacare Mariner.  It’s oknot great.

Thanks
Paul  c5/6

Re: [QUAD-L] Dreams

[Paul Jacobson]

Very interestingI have dreams where I am playing softball and am at bat.  
I can hit but can’t run to first.  Another is I am playing basketball but I am 
hurting my team so I take myself out and sit on the bench.  Next to me is 
my wheelchair.

Paul c5/6
13 years post

From: Quadius 
Sent: Friday, September 23, 2016 8:46 PM
To: quad-list@eskimo.com 
Cc: Quad-list Post 
Subject: Re: [QUAD-L] Dreams

Most of the time now I am paralyzed, but never to the extent that I actually 
am. For some reason I'm capable of moving my arms and doing things that I'm not 
able to, but I am somewhat paralyzed in my dreams.

Visions of me walking in my head have pretty much diminished over the last 10 
years or so.
Q


On Thu, Sep 22, 2016 at 12:13 AM, RONALD L PRACHT  
wrote:

  It doesn't happen to often. I was reading something that was trying to say 
that you can get yourself in tune for such a dream. I just simply am having a 
dream but realize its a dream while the dreams going on. I didn't know if such 
a thing had a name. I thing its a lucid dream. Im sure Im not the only person 
on the list to have one. When Im in a lot of pain I dream more.



  On Wednesday, September 21, 2016 9:45 PM, alcibiates2  
wrote:




  Yes, I have had dreams that I seemed to be in control of. I was doing drugs 
at that time.  
  Best Wishes,
  John s 


   Original message 
  From: RONALD L PRACHT  
  Date: 09/21/2016 7:10 PM (GMT-05:00) 
  To: Quad-list Post  
  Subject: Re: [QUAD-L] Dreams 


  Has anybody had a dream that you realized was a dream therefore did what you 
want. I think its called as lucid dream.


  ron



  On Wednesday, September 21, 2016 11:16 AM, Danny Hearn  
wrote:




  Sometimes I dream that I can get up out of my chair and walk but not 
smoothly, I walk like a disabled person but everyone around seems thrilled 
about it, not sure what that dream is about but I have had that type a few 
times.   What do you guys think of the exoskeletons that were originally 
invented for the military but in the future they want to make available to the 
public, when they can get the cost of them down to a more affordable price 
range. Dan H**



  On Wednesday, September 21, 2016 10:42 AM, RONALD L PRACHT 
 wrote:




  Sometimes Im in a chair, sometimes not.but Im always fighting or cant 
keep up. something is always wrong even if a chair isn't involved.


  Ron



  On Wednesday, September 21, 2016 9:22 AM, greg  wrote:




  When you dream, are you paralyzed, walking, or both?

  I go back and forth. I'd say:
  50% of my dreams I walk.
  25% of the time I'm in my chair.
  25% of the time I'm both. Like I'm in my chair, but I can get up and walk, 
but its very hard and I strugle. Like I'm paralyzed, but I get up and strugle 
to get up to go to the bathroom. Very wierd feeling.

  Greg

[QUAD-L] SLEEP APNEA

[Paul Jacobson]

Hi, turns out I need to get the mask for sleep apnea.
Anyone have any recommendations for the most 
comfortable and effective mask?

Thanks!
Paul  c5/6  52 years old

[QUAD-L] Could use some help: Debris in the suprapubic catheter tube

[Paul Jacobson]

Hello SCI people,

I am a healthy 52 yr old using a sp tube for 11 years.  I normally change it
every 3 weeks but in the last few months I have had a good deal of debris
in the tube and am forced to change it once per week.

I have tried to flush using 30 cc of Renacidin solution and distilled water, 
but I get AD from the flushing.  In addition, I get bladder spasms (which I 
take 
4 mg of Detrol LA 1x/day and 8 mg of Cardura 1x/day) throughout the day
which also cause AD.  Trying to get back to normal!

Any input would be so helpful.

Best,
Paul  c5/6 

Re: [QUAD-L] Cold Out

[Paul Jacobson]

It was 27 degrees last night..in San Diego!!


From: Gmail 
Sent: Sunday, December 13, 2015 5:11 PM
To: greg 
Cc: alcibiat...@yahoo.com ; quad-list@eskimo.com 
Subject: Re: [QUAD-L] Cold Out

If anybody sits in the sun or fireplace for a long time, as soon as they move 
away or out of the heat source ... they are going to be very cold. Or 
noticeably cold.
Bobbie

Smile Everyday

On Dec 13, 2015, at 7:03 PM, greg  wrote:


  Hi, thanks.

  I've been cold since 1982, unless I'm in the sun. I moved to Phoenix for that 
reason. Though after hurting my hip about 15 years ago, I've been on strong 
pain meds. Lyrica, 150mg 3x. 60mg MS-Contin, 3 times a day. 30mg instant 
MS-Contin, as needed. My average body temp now is 96.5.

  Though my body is falling apart now. I am just getting over UTI, Yeast, 
Shingles, Infected Shingles, all at the same time. Still getting AD headaches 
so next week I do a kidney and bladder CT scan, bladder scope, prostrate check. 
Then in Jan I go to a rehab specialist, experienced with quads. I've been a bad 
boy, It's been years since I've seen one and had any tests.

  I've always had cold issues. I sit outside for hours when it's 110. Over that 
and it gets to hot. The last few years if I sleep with my head lower than like 
25 degrees, I shake uncontrollably cold. I would swear I'm freezing. But once I 
put my head up, I feel better. No idea what's going on. I can get overheated 
and still shake feeling cold, but put my head up and I warm up. 

  I also have a nerve issue in my left shoulder blade area. Thought is was a 
sensitive mole, they cut it off. But it came back worse. Some days it's fine, 
then for a week it feels like a knife is in my shoulder. Like stabbing pain, 
yet a dead nerve going down my arm though my fingers. I've tried more pain 
meds, lidocaine cream, patches, nothing helps. It hurts just resting there, but 
lots worse when resting on the back of my chair or on my bed. I have to put egg 
crate foam under part of my shoulder to keep it off the bed.

  I'm hoping the rehab doc can find and fix something. Though I'm 51 (Wow, I 
can't believe that) I feel I'm a 25 year old in a 100 year old body.

  Old man Greg



  > Greg if you're freezing and chilling in Arizona at this time of the
  > year I really think you should see a specialist. It sounds to me
  > like you're in pain and you don't know where it's coming from. It
  > is important to find out where it is coming from. Best wishes
  > John s. 
  >
  >
  >  Original message 
  > From: greg 
  > Date: 12/13/2015  11:56 AM  (GMT-05:00)
  > To: quad-list@eskimo.com
  > Subject: [QUAD-L] Cold Out
  >
  > I just can't imagine still living in Seattle, I'm in the Phoenix
  > area now. The highs this next week are 54-66, the lows are 29-38.
  > Yesterday I wore heavy sweats, a shirt, heavy  hoodie, and wrapped
  > in a blanket, fleece hat, and drank hot drinks all day, heat set at
  > 80. And still froze all day. Must be low pressure or something
  > aches my bones. Just shaking cold. I can't imagine you east coast
  > guys. At least here it's only a few months a year. It's not too bad
  > during the day if it's at least sunny out. I hate getting washed up
  > when it's so cold out, no mater what the heats on. I don't know how
  > you guys leave the house.
  > Greg

[QUAD-L] SQUATTY POTTY

[Paul Jacobson]

Anyone ever think to try this?  Squatty Potty:  
https://www.youtube.com/watch?v=H8KcCfw25Xs



Thanks,
Paul c5/6

[QUAD-L] CRANBERRY

[Paul Jacobson]

What are people’s experiences with Cranberry capsules?  Good and bad.

Thanks,
Paul c5/6  11/03

Re: [QUAD-L] pressure

[Paul Jacobson]

I had a stage for in 2009 on my butt.used the wound vac from August through
December only getting out of bed every other day to shower and do the BP.
It healed wonderfully.and I used a continuous air circulating mattress.

I can tell you more, if you like.
Paul

From: ppac...@comcast.net 
Sent: Sunday, May 10, 2015 4:38 PM
To: Quad List 
Subject: [QUAD-L] pressure

Hi Everyone,

My doctor told me one course of action for my stage 4 pressure ulcer might be a 
wound vac.Has anyone have any expierence using this device?

Thank you!
Paul

Re: [QUAD-L] Itchy Head

[Paul Jacobson]

I wonder if the Coconut Oil ill work on me.
I have psoriasis on my scalp and legs.

Thanks
Paul  c5/6

From: Ed Tessier 
Sent: Saturday, March 21, 2015 9:49 AM
To: greg 
Cc: mailto:quad-list@eskimo.com 
Subject: Re: [QUAD-L] Itchy Head

I'm glad somebody brought this up. A lot of us take meds that dry us out and 
leave us itching. Regulate our bladder with ditropan,  pain with Norco, spasms 
with Baclofen? Here comes the dry mouth, dry eyes, itchy skin, flaky scalp, 
etc.   it's not an existential symptom like urethral burning, or social 
sabotage like incontinence. I think I don't complain about it or mention it 
much to my caregivers because compared to everything else it sounds like 
trivial whining. But it is CONSTANTLY there in the background. Perhaps I have a 
predilection for dry and itchy everything independent of anything disability 
related. But, the impact of these essential drugs undoubtedly makes it worse. 
I'll try some coconut oil, I'll try anything. Tea oil seemed to help for a 
while but started causing acne. Sigh.

On Fri, Mar 20, 2015 at 8:34 PM, greg g...@eskimo.com wrote:

  I've had such bad itching on the top of my head, I mean so bad it hurt. Like 
hurt hair.
  My doc suggested Crisco Oil. It helped quite a bit, but I found something 
better... Coconut Oil. In a jar at room temp, it looks like sun tan lotion. But 
in a real warm room it looks like baby oil. I rub it on my scalp, then wait an 
hour. Then I scrub my head with one of those brushes that have little balls on 
the tips of the teeth. Flakes fall off like its snowing. But, wow does my scalp 
feel better.
  And it also helps my dry legs.
  Greg

[QUAD-L] New Approach To Your Health Webinar!!

[Paul Jacobson]

Hello Quad List!!

I wanted to share with you a link to an amazing free webinar on 2/12 at
12:00 pm pst for people living with a spinal cord injury

Register here!   http://0s4.com/r/VO59JH

New Year, New You, New Approach Toward Health.. it all starts in your 
gut!

Paralysis ≠ Permanent.  Ask us about how we help accelerate #thejourneyback.

___

Kay Lathrop
Program Director I Chief Change Agent
Amplified Agility, LLC
4275 Executive Square, Suite 200
La Jolla, CA  92037
Office:  +1-619-501-3752
Email: k...@amplifiedagility.com 

[QUAD-L] Medical Marijuana

[Paul Jacobson]

I am just starting to try this stuff out.  I have spasms(mostly 
bladder/midsection) 
and have heard that applying the liquid form can help a good deal.  You don’t
get the high, but for me, calming the spasms would be huge.  Any thoughts
or recommendations?
Thanks,
Paul c5/6 complete 
11 years post/50 yrs old
San Diego, CA

[QUAD-L] Midsection Spasms

[Paul Jacobson]

Hello, I have noticed an increase in my spasms in my midesctionit is 
getting annoying, actually.
I do not take Baclofen but I do take Detrol LA each day for bladder spasms.

Anyone have any ideas? (medical gonja, acupuncture,massage,etc.)

Thanks,
Paul c5/c6 complete   Otherwise healthy 50 year old
San Diego, CA

[QUAD-L] Balofen?

[Paul Jacobson]

Do people find that Baclofen works?

Side Effects?  Dosage?

Paul  c5/6 complete 
10 yrs post 

[QUAD-L] Speeding Up The Bowel Program

[Paul Jacobson]

Hi, for the past 10 years I have been using the Magic Bullet every other day.   
It has worked very well but it takes between 75 and 90 minutes.  I used a
Fleet Enema the other day for the first time.  It only took 15 minutes and
cleared the most stool in a very long time.  Thinking about switching.

Anyone have any thoughts on this?

Thanks,
Paul  c5/6 complete  50 years old
San Diego, CA

Re: [QUAD-L] When you went to Rehab

[Paul Jacobson]

-Original Message- 
From: Gmail

Sent: Monday, October 14, 2013 2:15 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] When you went to Rehab

Hi All,
  When you all went to
Rehab;
1. How did you get there?  Ambulance from Intensive Care
2. Was family there with you? Yes
3. How long were you in the hospital? 1 month
4. How long were you in Rehab 3 months
5. When you went home, were there minor or major conversions necessary? 
Minor, as major was way major and opted to move

6. Did you go straight home or a nursing home first? Home
7. What was your home waiting for you doable medical equipment wise? Bed, 
w/c

8. How many of your friends were there to be by your side? many
9. How many siblings do you have to help you out when you first got home? 2
10. Did you feel you had enough rehab or did you go on to outpatient rehab? 
outpatient


Smile Everyday 

[QUAD-L] Rejoyce - hand device

[Paul Jacobson]

Anyone know about this?
http://www.apparelyzed.com/forums/topic/11978-device-stimulates-paralyzed-hands-arms-to-move-again/http://www.apparelyzed.com/forums/topic/11978-device-stimulates-paralyzed-hands-arms-to-move-again/
 

[QUAD-L] Renacidin Solution

[Paul Jacobson]

Hi, I use a suprapubic catheter and irrigate it each day with Renacidin 
solution.
The manufacturer has temporarily stopped making it.  There is now a shortage.

Does anyone have any Renacidin they are willing to sell?

Thanks so much.
Paul  c5/6 

[QUAD-L] Supplements

[Paul Jacobson]

Hello, as you can see I take a pile of supplements.  Wonder if any of these 
are linked to increased spasms.

Thanks for your input.
Paul c5/6 complete  10 yrs

MEDS
Detrol LA  4 mg 

Doxazosin8 mg

SUPPLEMENTS

Multi Fiber   

Juice Plus – Orchard   

Juice Plus – Vineyard 

Fish Oil

Vitamin D 



Probiotics  

Magnesium  

Green Caps  
 

ImmunoVen   
  

Noni
   



Adaptogen   
  

B Complex 

Medi-Clay FX
  

Oregano Oil  (1 drop on skin)

Juice Plus – Garden 



Collagenics 

CoQ10 ST-100   

Re: [QUAD-L] going to PT for crooked body

[Paul Jacobson]

Paul Jacobson:  49, San Diego, CA   Car Accident  c5/6 complete 11/05/03

-Original Message- 
From: Joan Anglin

Sent: Friday, April 26, 2013 1:34 PM
To: bobbie...@aol.com ; sbell...@cox.net ; daa...@aol.com
Cc: quad-list@eskimo.com
Subject: RE: [QUAD-L] going to PT for crooked body

Joan Anglin C4 fell 10 feet off scaffolding October 1990 Reno, Reno, Nevada

-Original Message-
From: bobbie...@aol.com [mailto:bobbie...@aol.com]
Sent: Friday, April 26, 2013 12:40 PM
To: sbell...@cox.net; daa...@aol.com
Cc: quad-list@eskimo.com
Subject: Re: [QUAD-L] going to PT for crooked body


Would all of you (if you want to) tell me, and other's on the list who are 
new, your name, level of injury, how injury happened, year of injury and 
what state you live in. Like below.


Bobbie Humphreys - C-4,5,6,7 Motorcycle, 1973 New Jersey



Smile Everyday



-Original Message-
From: shirley bell sbell...@cox.net
To: Dana Wray daa...@aol.com
Cc: quad-list quad-list@eskimo.com
Sent: Thu, Apr 25, 2013 11:45 am
Subject: Re: [QUAD-L] going to PT for crooked body

Hi all, I am c/5/6 37 yrs.
Best,
Shirley Bell

www.ShirleyBellDesigns.com
 - Original Message -
 From:   Dana Wray
 To: jume9...@comcast.net
 Cc: quad-list
 Sent: Wednesday, April 24, 2013 8:47   PM
 Subject: Re: [QUAD-L] going to PT for   crooked body


 Hi Shirley,
I don't remember Your level and how many years post your   injury.


  Think we all feel like we have crooked back. I'll look forward to
hearing about what can be done.


 Thank You,
Dana

Sent from my iPhone

On Apr 24, 2013, at 2:32 PM, jume9...@comcast.net   wrote:


 I didn't know they could do that, please let us know.

Meredith

   From: Nan lt;nlg52...@yahoo.comgt;
To: shirley bell lt;sbell...@cox.netgt;, quad-list@eskimo.com
Sent: Wednesday, April 24, 2013 11:46:58 AM
Subject: Re: [QUAD-L] going to PT for crooked body

   Please keep us posted, Shirley.  I'm crooked too!


   Nan


   From: shirley bell lt;sbell...@cox.netgt;
To: quad-list@eskimo.com
Sent: Wednesday, April 24, 2013 12:17 PM
Subject: [QUAD-L] going to PT for crooked body


To all my fellow crooked comrades, I am going to be
getting some body work done by and advanced PT person. My first
appointment is may 30 for eval. I will let you all know what happens
and if it helps.
   Best,
Shirley Bell

   www.ShirleyBellDesigns.com

[QUAD-L] Poker Tool

[Paul Jacobson]

Has anyone ever heard of a tool that allows quads to view playing cards without 
taking them off the table?

Thanks

Re: [QUAD-L] Here comes 12-16 of snow

[Paul Jacobson]

47 in San Diego!

From: Don Price 
Sent: Friday, February 08, 2013 2:22 PM
To: wheelch...@aol.com ; bobbie...@aol.com ; quad-list@eskimo.com 
Subject: Re: [QUAD-L] Here comes 12-16 of snow


It's supposed to get nasty here in Phoenix too: down to a high of 59 degrees!

I'm sorry; I shouldn't be flippant. I really do hope all of you are safe and 
secure wherever you are. Stay well!

I have no idea how you quads in cold-weather climates survive. I freeze when it 
gets below 70. And if I don't see the sun for several days I can feel my mood 
go downhill. I realize many of us don't have a choice of where to live, but if 
you do 

Don.

Re: [QUAD-L] fingers....

[Paul Jacobson]

Mine are straight, I’m ok with it...easier to type I would think.
And I can do stuff during naked timewith a girlthat
I imagine I can’t do if my fingers were curled.

Paul c5/6

From: donald scott 
Sent: Monday, January 21, 2013 4:52 PM
To: diannal...@aol.com ; quad-list@eskimo.com 
Subject: Re: [QUAD-L] fingers

I'm sorry but the position your hand was in during your spinal injury has 
nothing to do with your hands curling. Your body naturally wants to curl up and 
twist from atrophy. I promise all quads that are c5 or c6 that letting your 
hands close into a fist will be the best thing for you. You will be way more 
independent and be able to do more. Most people think my hands look normal 
until I try to shake hands.

Be safe and independent,
Donald C5 22 years

From: diannal...@aol.com diannal...@aol.com
To: quad-list@eskimo.com; bobbie...@aol.com 
Sent: Monday, January 21, 2013 4:37 PM
Subject: Re: [QUAD-L] fingers


-Original Message-
From: diannal767 diannal...@aol.com
To: bobbie299 bobbie...@aol.com; quad-list quad-list@eskimo.com
Sent: Mon, Jan 21, 2013 7:36 pm
Subject: Re: [QUAD-L] fingers


i'd have to argue that theory given about 90% of quads have curled fingers. :-)
dianna
I was told by my Doctor's that the reason my finger's are curled up is 
because … the position your finger's are in when your nerves are 
severed is how they will stay. I personaly had my fingers wraped 
around motor cycle handles when I broke my neck.
How about the rest of you. What position were your hands when you 
broke your neck and are they in the same position?  Bobbie
-Original Message-
From: bobbie299 bobbie...@aol.com
To: kyparisi kypar...@hol.gr; quad-list quad-list@eskimo.com
Sent: Mon, Jan 21, 2013 2:34 pm
Subject: RE: [QUAD-L] fingers


I was told by my Doctor's that the reason my finger's are curled up is 
because … the position your finger's are in when your nerves are 
severed is how they will stay. I personaly had my fingers wraped 
around motor cycle handles when I broke my neck.
How about the rest of you. What position were your hands when you 
broke your neck and are they in the same position?  Bobbie





-Original Message-
From: Theo Kyparissis kypar...@hol.gr
To: Quad-list quad-list@eskimo.com
Sent: Mon, Jan 21, 2013 11:05 am
Subject: RE: [QUAD-L] fingers

Does anyone know why some Quads fingers are straight and flexible while 
others are curled and stiff?  Theo  From: Joan Anglin 
[mailto:poaj...@sbcglobal.net?]
Sent: Monday, January 21, 2013 17:53
To: quad-list@eskimo.com
Subject: RE: [QUAD-L] fingers  It has never been any kind of option for me 
as my hands are flat and 
not curled up. We do range of motion and work the fingers everyday but 
other than getting partial feeling back in the right hand they haven’t 
changed at all in 22 years. I too never consider a cure for SCI for 
myself as I know that I am too old to be a viable candidate for any 
form of treatment which requires trials and cetera. At least this way I 
will never have to look for a seat anywhere I go! J Have a great day 
everyone. Joan From: donald scott [mailto:rollingl...@yahoo.com?]
Sent: Sunday, January 20, 2013 5:43 PM
To: bobbie...@aol.com; quad-list@eskimo.com
Subject: Re: [QUAD-L] fingers  I agree with bobbie. My hands are closed 
with thumbs out and on my 
left hand (I'm a lefty) my index finger is straighter so I have a 
little pinch when I twist my wrist up. With hands closed I can drive, 
write, ps2 with handles, rc cars, fish, hold stuff, plus lots more. If 
your thinking about a cure for later don't worry they will make your 
hands open again. I personally never think about a cure and could 
careless at this point.   Take care all, Donald   From: bobbie...@aol.com 
lt;bobbie...@aol.comgt;
To: da...@immortaldesigns.co; quad-list@eskimo.com
Sent: Sunday, January 20, 2013 5:30 PM
Subject: Re: [QUAD-L] fingers

Mine have been locked closed like a fist since day on in the 1970s 
Nobody ever tried to straighten them out ever. It has been advantage to 
have them curled up and locked … I'm able to one doors very easily 
along with any other tasks.Bobbie






-Original Message-
From: Danny Espinoza lt;da...@immortaldesigns.cogt;
To: quad-list lt;quad-list@eskimo.comgt;
Sent: Sun, Jan 20, 2013 7:55 pm
Subject: [QUAD-L] fingers

I was wondering what you guys do about your fingers… mine are becoming 
stiff and locked up… obviously I want to be able to use my fingers 
again someday and was wondering if you guys could give me some 
information on how you keep your fingers in good health… right now my 
caregivers stretches them twice a day but its only getting worse and 
I’m getting worried… 


  wlEmoticon-smile[1].png

Re: [QUAD-L] Raw, cold, damp New Jersey Day

[Paul Jacobson]

68 and full sun in San Diego

From: wheelch...@aol.com 
Sent: Wednesday, January 16, 2013 12:25 PM
To: bobbie...@aol.com ; quad-list@eskimo.com 
Subject: Re: [QUAD-L] Raw, cold, damp New Jersey Day

23 this morning with no windchill.  No snow on the ground and no real snow 
expected.  Monday promises to greet us with single digits and windchills.  Hey 
we can't grow oranges or tomatoes either.  We both live in 4 Seasons Country!
Take Care!
Best Wishes

In a message dated 1/16/2013 2:10:22 P.M. Central Standard Time, 
bobbie...@aol.com writes:
  Hi All,
   Last night we got 4 of snow, this morning 1/8 ice now 
  freezing rain all day … tonight back to snow.
  I can't tell you how much I just hurt deep inside, right down to my 
  core. Somebody make me some tea!
  Please tell me some nice warm temp's you guys have outside your door.   
Bobbie

Re: [QUAD-L] Quadriplegic released from prison

[Paul Jacobson]

I actually have thought, if it were cost effective, to sever the convicted 
criminal’s spinal cord as punishment
for significant crimes.

From: wheelch...@aol.com 
Sent: Tuesday, November 27, 2012 4:55 PM
To: nlg52...@yahoo.com ; quad-list@eskimo.com 
Subject: Re: [QUAD-L] Quadriplegic released from prison

Nan, that's a great idea .. except the bracelet might give him a pressure 
sore.  Perhaps a indwelling cath that clogs every month without notice and he 
has to wait until Mondays to change it.

Best Wishes

In a message dated 11/27/2012 6:52:23 P.M. Central Standard Time, 
nlg52...@yahoo.com writes:


--
  From: Nan nlg52...@yahoo.com
  To: Bobbie Humphreys bobbie...@aol.com 
  Sent: Tuesday, November 27, 2012 7:51 PM
  Subject: Re: [QUAD-L] Quadriplegic released from prison



  Ok trying to be reasonable and rational here:


  If he was sentenced to 150 years, he has not paid his debt to society.  I 
think he should be on house arrest - unless that means he would still get 
650,000 dollars a year for care. 


  Could he still be a danger to society?  What level is his injury?  All quads 
are not created equal...  If he could be, shout it to the world - neighborhood 
fliers, local media, national media.


  The pissed off side of me (I've been dealing w/ my ex all day, so I AM 
grumpy) says let anyone and everyone know that he is a  RAPIST  MURDERER!!  
His injury has done nothing to exonerate him.  


  The calmer side of me just says, boy, is he in for a rude awakening when he 
has to live like the rest of us w/ just mama for his pca.  He might end up 
wishing he was still in prison!



  Bottom line... Amen Bobbie! It really yanks my chain to hear that a rapist 
and a murder has gotten what I and most of you have been denied. He needs to be 
retried by a jury of quad peers ... then he might get what he really deserves!





--
  From: Bobbie Humphreys bobbie...@aol.com
  To: John S. alcibiat...@yahoo.com 
  Cc: quad-list@eskimo.com quad-list@eskimo.com 
  Sent: Tuesday, November 27, 2012 6:14 PM
  Subject: Re: [QUAD-L] Quadriplegic released from prison


  Yes they absolutely should tattoo Rapist  Murder on his forehead. Yes, 
I've often felt like I was doing time because I was not sops to be doing what 
I did, riding the dirt bike. But I did. I don't believe I'm being punished, I 
use to, but it sure feels like it sometimes.
 I can't STAND that he's getting THAT much care when I need more and can't 
get it and MANY other's as well. 
  HUGS.  Bobbie 




  On Nov 27, 2012, at 4:50 PM, John S. alcibiat...@yahoo.com wrote:


Is that what we are? Doing life in the electric chair? What was your crime? 
Could't they at least tattoo RAPIST  MURDERER on their face so people know 
they weren't the victim of a trajjic accident. 
How the hell do you get 24/7 attendant care?

BW,
john


From: Larry Willis lwillis82...@msn.com
To: quad-list@eskimo.com 
Sent: Friday, November 23, 2012 9:13 AM
Subject: Fwd: [QUAD-L] Quadriplegic released from prison


I think it is safe to say that he is now in a prison far more secure than 
any bars could provide. Let him go.  Why spend $650,000 to imprison a man who 
is already imprisoned.

Sent from my iPad

Begin forwarded message:


  Resent-From: quad-list@eskimo.com
  From: wheelch...@aol.com
  Date: November 23, 2012, 8:31:45 AM EST
  To: r.pra...@sbcglobal.net, quad-list@eskimo.com
  Subject: Re: [QUAD-L] Quadriplegic released from prison


  As John Callahan once jokingly put it, Don't Worry, He Won't Git Fir
  Is he a danger to society?  Is his present health condition enough 
punishment?  And just how long will it take his Mother, before she realizes 
that she can't take care of him 24 hours a day 7 days a week, without help?

  Best Wishes

  In a message dated 11/23/2012 2:16:02 A.M. Central Standard Time, 
r.pra...@sbcglobal.net writes:
Have any of you guys heard about the man convicted of rape and murder 
and was sentenced to 150 yrs Then six years into the sentence, another inmate 
stabbed him in the neck which resulted in him being a quad. Im not sure how 
many years he was in jail after he became disabled, but it was at a cost of 
650,000 dollars a year to take care of him. The inmates mother agreed to take 
care of him upon his release and thats exactly what the state did, let him go. 
What do you guys think? Should he be allowed to live among the public? should 
the state pay the cost of attendent care because he was hurt on their watch?

ron c7

Re: [QUAD-L] SP / Bowel Sweating

[Paul Jacobson]

I had the spasms to.  My urologist recommended going with a different
catheterI use one that works greatbut they are way expensive.
like $35 each.  It's a  Bard 22 French Bardex Lubricath Hematuria Foley
Catheter 30 cc Ribbed balloon Lubricious coated  REF: 2550H22

This works well for me.  Also consider meds for bladder spams (Detrol LA
and Doxazosin.

Good luck,
Paul

Detrol LA (Tolterodine) Tolterodine is used to relieve urinary difficulties,
including frequent urination and inability to control urination. It works by
preventing bladder contraction.  Side effects:  dry mouth, blurred vision,
upset stomach, headache, constipation, dry eyes and dizziness.

Doxazosin (Cardura)  Doxazosin treats symptoms of an enlarged prostate
which include difficulty urinating (hesitation, dribbling, weak stream, and
incomplete bladder emptying).  It relaxes the muscles of the bladder and
prostate. Side effects: headache, tiredness, swelling of the hands, feet,
ankles, or lower legs, shortness of breath, weight gain, muscle or joint 
pain

or weakness, abnormal vision, runny nose and decreased sexual ability.
-Original Message- 
From: greg

Sent: Friday, November 09, 2012 11:24 AM
To: quad-list@eskimo.com
Subject: [QUAD-L] SP / Bowel Sweating

I've been having sweating issues for like 12 months now. Not sure if it's a 
bowel or bladder issues, but I assume it's one of them. Nothing else makes 
me sweat like this. At first I thought it was my SP incision. It was bloody 
and prouding' (skin folding back on itself.) The sweating starts when I sit 
all the way up. I thought having my abdomen fold right on that area was the 
problem. But it has heeled up and it hasn't stopped the sweating. It really 
got bad this week and this might be from having harder stool. That can cause 
it too. But that's been fine for months and still the sweating. I know my 
stool is not formed together well. I've been trying fiber drinks, but so far 
no help. Anyone have issues with their intestines cramping and causing 
sweating for no known reason? Sometimes it feels like I'm going, but nothing 
is there. Gas can cause this in me and any sweating from a bladder issue 
will cause gas in me. So I just can't find the cause, because any sweating 
bowel or bladder causes the same feeling. I had my bladder scoped months ago 
and everything was fine, but I'm going to ask for another one. I also had a 
colonoscopy around that time and was fine. Though I don't want that again.


One thing about my SP, sometimes I get a very bad stabbing pain in my 
abdomen, like double over pain. Can be stool, gas, but sometimes it's my 
cath. It will be draining fine, move fine, but changing it and the pain goes 
away. Like it's in a sore spot. Anyone else have these issues?


I just don't know why for many months I can only sit about 80%  of the way 
up, or I start pouring sweat. When everything else looks fine.


Thanks, Greg

[QUAD-L] Pressure sores Irritaion From Tape

[Paul Jacobson]

Hi...I have three Stage 2 wounds that are healing but my biggest challenge are 
not
the wounds but the irritation on the surrounding skin from the 3M Micropore 
tape.
I have used paper tape but that, too, caused irritation to the skin.

Any ideas?

Thanks,
pj

From: Monty 
Sent: Monday, April 23, 2012 9:12 PM
To: Larry Willis ; quadriplegic 
Subject: Re: Fwd: [QUAD-L] Pressure sore

That is way too long and have you ever been tested for a bone infection? I have 
successfully conquered  two of them, one of them my bottom and the other one 
just below my elbow. You need to see in infectious disease for this and if it 
shows a negative result. Then get a second opinion from a second specialist 
just to make sure. I had to travel two hours from my place just to find a 
doctor that would listen to me. There's only two wound clinics in my area, so 
after visiting the one two hours away was able to get everything done just 
under six months. The one on my elbow was that one I had to travel for and 
nearly had it for nearly 2 and half years. I had to do my own research on 
locating these doctors because my primary physician would not listen to me! I'm 
on Medicaid and Medicare so I had no out-of-pocket expense for these doctors 
except for my time. So the best thing is to do your homework and don't take no 
for an answer! Take care and good luck
Monty of Indiana
3/4 complete post 18 years
PS once they cleared up the bone infection, then they did a muscle flap to fill 
in that area.




From: Larry Willis lwillis...@yahoo.com
To: quad-list@eskimo.com 
Sent: Monday, April 23, 2012 8:29 AM
Subject: Fwd: [QUAD-L] Pressure sore


Wow, thanks guys. All good advice which I will most definitely follow. I have a 
feeling that if I could stay off it, it might improve as well. However, I stay 
by myself during the day and just can't stay bedfast. There is just no way to 
win in our quad world. God bless all of you.

Sent from my iPad

Begin forwarded message:


  Resent-From: quad-list@eskimo.com
  From: Eric W Rudd c5sc...@gmail.com
  Date: April 22, 2012 7:18:15 PM EDT
  To: quad-list@eskimo.com
  Subject: Re: [QUAD-L] Pressure sore


  I’ve had about a 1” – 1.5” by .25” – 3/8” sore since 2001.  Received after 
seeing the so called wound specialists.  My own self-care has kept it clean  
the same size. My primary doc, whom I see twice a year, is kept up-to-date via 
digital pix.  I clean it w/ tap h2o  gauze, apply a 4x4 folded in half, skin 
prep then Tegaderm...every a.m.

  Eric W Rudd
  c5sc...@gmail.com

  From: Larry Willis 
  Sent: Sunday, April 22, 2012 3:41 PM
  To: quad-list@eskimo.com 
  Subject: [QUAD-L] Pressure sore


  I have a pressure sore on my tailbone that has been the bane of my existence 
for years now.  It is not deep and has never been seriously infected. However, 
I have been fighting it for over six years! I have some feeling in that spot 
and sometimes it feels like a red hot branding iron. Bad! It is about 4in by 4 
in. In the last several days it has begun to bleed profusely. I don't know 
whether this is good, bad, or irrelevant, but it is a first. Any of my buds 
here got any knowledge to share about it? Thanks. Larry Willis
  I use a Roho cushion.


  Sent from my iPad

Re: [QUAD-L] Butt Sore

[Paul Jacobson]

Hi Greg,

If it's a pressure sorethen you are getting pressure.without 
question.  If it's Stage 4
then I recommend...and this sucks..complete bed rest on an air 
circulating mattress, start
drinking protein shakes and use a wound vac (they are amazing).  2 years 
ago, I had a Stage

4was in bed for 5 months but healed completely.

Best,
Paul 47 yo  c5/6  8 yrs post

-Original Message- 
From: greg

Sent: Thursday, October 20, 2011 1:18 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Butt Sore

I got a small sore just next to my tail bone. At first it was dime size and 
shallow. It had that white/gray dead flesh in the center. The wound has 
closed up size, but gotten deeper. We just start to get rid of the dead 
stuff and then it's covered with it again. We pack it with some packing 
strip stuff to keep it from closing. I have had a wound nurse coming out, 
but now I'm going in to a wound clinic to see what's wrong. It's getting 
real deep. we get it looking healthy, but then more dead stuff. I don't have 
pressure on it, and  no idea why it's doing this. It wants to close up, but 
I'm told not to let it while it has dead tissue and is draining.


Greg 

[QUAD-L] Thought Provoking

[Paul Jacobson]

Hello,

We have seen some progress in functionality in individuals with an 
Incomplete SCI but this is the first

I have seen in improvement with someone with a Complete SCI.

http://www.baynews9.com/article/news/ap/may/248041/Paralyzed-man-freely-moves-after-getting-implant?cid=rss

Paul  c5/6 complete 

Re: [QUAD-L] Irrigating catheter

[Paul Jacobson]

Hi Debbie,

For 5 yrs. I flushed w/Renacidin for 20 min. each day.  I changed it
1/mo.  Now the sediment clogs it after a week regardless of the
daily flush.  So now, I change 1/wk.  I now drink 100 oz. of water
a day...it helps.

Best,

Paul  c5/6 complete

From: Debbie Hamilton 
Sent: Saturday, April 23, 2011 3:52 PM
To: Quad-list@eskimo.com 
Subject: [QUAD-L] Irrigating catheter

  I have a suprapubic catheter.  Typically, I don't have problems and I 
change it about every month.  Lately, my catheter has been getting blocked 
about every two weeks or more often with sludge and my husband has to put a new 
one in.  I have irrigated it with normal saline.  Is there a better solution I 
should use to help with the sludge?  I've heard of vinegar, but I'm not sure if 
it is safe or what ratio to dilute it.  I have an appointment with a urologist, 
but not until June, would love some advice before then.  Thanks 



  Debbie
  C4 incomplete/April 2005 

Re: [QUAD-L] mucus in bladder

[Paul Jacobson]

Hi, I have had a similar issueI  just upped my water intake from 40 
ounces/day
to 100 oz./day.  Problem gone 100% and completelyno bladder spasms either!

Paul c5/6  Inj. 11/03

From: nichole rohling 
Sent: Monday, March 07, 2011 12:37 PM
To: 'Lori Michaelson' ; mailto:quad-list@eskimo.com 
Subject: RE: [QUAD-L] mucus in bladder

lori,

i too have dealt with sediment but the mucus thing is new. i've been to a 
urologist only 2 times in almost 13 years so i'm researching who to go to. have 
a call in to dr to order ua but who knows when i'll get called back. 



-Original Message-
From: Lori Michaelson [mailto:lorilivin...@gmail.com] 
Sent: Monday, March 07, 2011 1:51 PM
To: nichole rohling
Subject: Re: [QUAD-L] mucus in bladder



Dear Nicole,

I have always had more sediment or sand in my urine over the years that has 
caused the catheter to block.  If mucus is UNUSUAL FOR YOU... might not be a 
bad idea to have your doctor order a urinalysis first and then a culture 
displayed the results of the urinalysis.  After that is done... a urologist or 
just a doctor would be able to tell you it's something different is going on 
besides the usual bugs that will always remain present for anyone who 
indwelling catheter.



Lori

On Mon, Mar 7, 2011 at 12:06 PM, nichole rohling zoocr...@windstream.net 
wrote:

hello all

i'm having problems with catheter and just wondered if anyone has had mucus in 
their urine? we've had to change my cath twice in 3 weeks - urine has mucus in 
it and it is clogging my cath.

just wondering if you can have yeast in the bladder? i'm not symptomatic of a 
uti. i know i need to go see a urologist :( but thought i'd get your input.



nicki




-- 
Lori 
Age - 46
C4/5 complete quad, 31 years post
Tucson, AZ

Re: [QUAD-L] A fun test.

[Paul Jacobson]

14


From: Debbie Hamilton 
Sent: Friday, August 06, 2010 4:22 PM
To: quad-list@eskimo.com 
Subject: Re: [QUAD-L] A fun test.




  Yeah I feel pretty smart.  I got 13 out of 16.  80% 


  Debbie
  C4 incomplete/April 2005

  --- On Thu, 8/5/10, Eric W Rudd c5sc...@gmail.com wrote:


From: Eric W Rudd c5sc...@gmail.com
Subject: Re: [QUAD-L] A fun test.
To: quad-list@eskimo.com
Date: Thursday, August 5, 2010, 10:22 AM


i only got 11/16

Eric W Rudd
c5sc...@gmail.com
  - Original Message - 
  From: Danny Hearn 
  To: hellodav...@aol.com ; quad-list@eskimo.com 
  Sent: Thursday, August 05, 2010 11:20 AM
  Subject: Re: [QUAD-L] A fun test.


  cool, i got 80 percent right- 12 out of 16   dan h.




--
  From: hellodav...@aol.com hellodav...@aol.com
  To: quad-list@eskimo.com
  Sent: Thu, August 5, 2010 10:08:10 AM
  Subject: [QUAD-L] A fun test.


  Okay, world traveler; these pics were taken from an airplane and you 
have to guess where the location is by marking the little circle.

  There are 16 photos. You probably won't get a perfect score and may 
also miss at least one you'll say you should have nailed! 

Click Here: GuessTheSpot.Com - How Well Do You Know Landmarks
 

[QUAD-L] Alaska Cruise

[Paul Jacobson]

Anyone been?  Going next month.  Excursion ideas appreciated.

THANKS!
Paul c5/6

[QUAD-L] Grant Programs in Sacremento

[Paul Jacobson]

Hi,

Does anyone know of any grant programs or resources in Sacramento
to help a newly injured c5/6 pursue independent therapy?

Thanks!
Paul  c5/6

Re: [QUAD-L] regulatory : (

[Paul Jacobson]

Come back to San Diego!  72 and sunny..again.  :)

Paul
San Diego/ C5/6
  - Original Message - 
  From: Joan Anglin 
  To: 'RONALD L PRACHT' ; quad-list@eskimo.com 
  Sent: Friday, May 07, 2010 7:44 AM
  Subject: RE: [QUAD-L] regulatory : (


  I have to agree with Ron.  If your family is not willing to help you, take a 
fun trip instead.  Don't let longing for what could be cloud your judgment.  
Although I'm very fortunate to have much help with in my family, one of my most 
favorite trips was a week that my favorite attendant and I went by ourselves.  
We did San Diego zoo, animal park, Santa Barbara and whale watching, and lots 
of good food all in April when the weather was beautiful in Southern California 
and snowy and freezing Reno-so just think about where you want to spend your 
time and energy and then go for it and enjoy!  J

  Joan in beautiful sunny in Reno where it got down to 23 last night, my 
tomatoes are not happy.

Re: [QUAD-L] looking for a good trailer for I will

[Paul Jacobson]

Hi Steve,

I had a bad Stage 4 from Aug - Dec..the wound vac healed 100%.  
I now have zero issues.  The key is you can not be in the chair until 
it heals.

Good luck!
Paul c5/6
  - Original Message - 
  From: Steve Crowder 
  To: quad-list@eskimo.com 
  Sent: Tuesday, April 27, 2010 3:03 AM
  Subject: [QUAD-L] looking for a good trailer for I will


  I know there are some great treatments out there for wounds. Who knows of 
some?

  Thanks, Nick 

Re: [QUAD-L] Seeking Good Help

[Paul Jacobson]

Hi Steve,

Try some of the local nursing schools.  A.  You get someone who wants to learn  
B.  It might be cheap and a good trade for you and them  C.  You might get a 
cute 
future nurse!
  - Original Message - 
  From: Steve Crowder 
  To: quad-list@eskimo.com 
  Sent: Tuesday, April 27, 2010 12:10 AM
  Subject: [QUAD-L] Seeking Good Help


  I desperately need to find a good live-in caregiver. The current one is 
ripping me off and doing absolutely nothing, including giving me food or any of 
my medication. IT'S HORRIBLE!!! Any recommendations?

  Thanks, Nick

[QUAD-L] Toe Fungus......fun!

[Paul Jacobson]

Hi,  anyone deal w/this?  If so, what products have you used and with
what success.  I have heard of Fungi Cure and Tineacide.

Thanks,
Paul  c5/6

Re: [QUAD-L] Earthquake

[Paul Jacobson]

In San Diegomajor 25 second shakes7.2...but no
damage, power outages or issues for anyone here!
- Original Message - 
From: greg g...@eskimo.com

To: quad-list@eskimo.com
Sent: Sunday, April 04, 2010 8:51 PM
Subject: [QUAD-L] Earthquake


Interesting Easter. Late afternoon and the house is creaking and pots are 
clanking, lights swinging. Someone upstairs yells down that something is 
making the house shake. It was the earthquake in Baja. I didn't feel it, but 
could see it. I was surprised how much it made our house shake way up in 
Phoenix. Makes you think how bad it would be to be in a bad one. Bad for 
everyone, but in a chair it would really suck.


Greg

[QUAD-L] Obama's New Health Care Plan

[Paul Jacobson]

Does anyone know how it affects Medicare?  SCI population?

Paul  c5/6

Re: [QUAD-L] Obama's New Health Care Plan

[Paul Jacobson]

It's more coverage for everyone.but it dilutes many folks' current plans.
  - Original Message - 
  From: Greg 
  To: quad-list@eskimo.com 
  Sent: Monday, March 22, 2010 5:54 PM
  Subject: RE: [QUAD-L] Obama's New Health Care Plan


  I don't think it will affect Medicare. If anything changes. It will 
unfortunately get rewritten, changed, canceled, soon.

  It should just be Medicare for all. You could opt out if wanted. The best and 
cheapest way I think.

  At least it makes them cover preexisting injuries. Though they mentioned For 
kids so I hope it covers adults too.

  I'd love to get secondary insurance to cover my 20%

   

  I just can't understand the hatred over this, most from those who it would 
help the most. The R's are just so good at scaring people out of their own best 
interest. The big scary government, death panels, killing old people, etc. 
Yesterday as congressmen were walking up the steps they got called Nig., got 
spit on, etc. One R yelled Baby killer as a D was on the floor speaking. I'm 
not happy how this Bill got put together or the Bill itself, but I never yelled 
these things. Nor did I yell them at Bush ( Though I might have in the privacy 
of my own home.)

  Greg

   


--

   

  Does anyone know how it affects Medicare?  SCI population?

   

  Paul  c5/6

[QUAD-L] Why are BLUE Pads better?

[Paul Jacobson]

Why are the blue pads superior to other pads?  Mine are orange.

Thanks!
Paul
  - Original Message - 
  From: Jim Lubin 
  To: gah17...@aol.com ; w...@ptd.net ; quad-list@eskimo.com 
  Sent: Monday, February 15, 2010 10:39 PM
  Subject: Re: [QUAD-L] Blue Pads


  At 03:56 PM 2/14/2010, gah17...@aol.com wrote:

Does anyone know if the blue pads are covered by Medicare?  I understand 
they are not.

  For the first 15 yrs we were buying blue pads and ky ourselves. Mentioned it 
to my case manager
  one day and she said it would be covered by either Medicare or Medicaid with 
a doctor's order.
  Sure enough, checked with a local supply company, they contacted my doctor 
and they have been
  covering the cost the past 5 years. We use them for bowel program in bed.

  I get UNDERPAD 23X36 DISP BLUE 10/PK x 6 monthly. We cut them to get more.

  Also get: 

  50 CATH SELF 14FR 16 (use to clean and reuse now are covered)
  2 KY SURGILUBE LUBRICANT 4.250Z (1 for bowel program, 1 for cathing)
  4 GLOVE MED LATEX PF MEDLINE BX/100 EA

  Whatever Medicare does not cover Medicaid does, zero cost to me.


  
  Jim Lubin   
  jlu...@eskimo.com
  http://makoa.org/jim 
  disAbility Resources: http://www.makoa.org

[QUAD-L] Groin Redness..........fun!

[Paul Jacobson]

Hi,

Anyone experience this skin irritation or rash from being in the chair too long?
How do you combat it?  I'm usually in the chair 12 hours or so.  Want to stay 
in it,too.   Thanks for your help!

Paul c5/6

Re: [QUAD-L] sleep number beds

[Paul Jacobson]

I've had a Cal King Select umber for 4 years.  I love it.  Head and feet
both elevate and it has a multiple vibrate mode which is good for
circulationand it feels great.  I never turn either...never had the bed
cause a sore.

Contact me if ya need more info.

Paul c5/6

  - Original Message - 
  From: Danny Hearn 
  To: quad-list@eskimo.com 
  Sent: Thursday, January 28, 2010 3:23 PM
  Subject: [QUAD-L] sleep number beds


  Hi  all-- I was wanting to know if any of you had a sleep number bed ?? If so 
do you like it ? I have had rotton luck with some regular inner spring 
mattresses--the simmons I have now was very expensive and like sleeping on a 
sack of rocks   lol--it had springs sticking out and was sunk in after only 2 
years on a 10 year warranty---they replaced the mattress with another simmons 
but it is even worse and hard as concrete.(well almost ) lol   So anyway i'm 
going to buy a new bed and many think the sleep number may be good for a 
quad--the sales lady thinks I should get the adjustable sleep number, that 
raises up head or foot---she has one and loves hers..I may try that because 
Then I could sit up if needed,  and I have only had flat regular beds. If you 
have one and like them OR not, please let me know what you guys think on this 
subject?   thanks in advance to everyone !  Dan H.**

Re: [QUAD-L] relationships after injury?

[Paul Jacobson]

Hi,

I was actually married to my OT who I met after my injury and I
have been lucky enough to have learned that there are many
women open to dating someone with an SCI.  
Paul  c5/6


  - Original Message - 
  From: Nancy Pritchard 
  To: quad-list@eskimo.com 
  Sent: Sunday, January 24, 2010 4:06 PM
  Subject: [QUAD-L] relationships after injury?


  Hi,

  I should introduce myself..mother of a 21 yr old 2 yrs post injury tomorrow. 
Just wondering how many have entered into serious relationships/marriage after 
their injury?  



  Peace be with you

  New Dimension

[QUAD-L] Transfer Board

[Paul Jacobson]

Anyone ever use a transfer board like this:

Rows of lacquer-finished hardwood balls allow easy transfer of clients from 
wheelchair 
to car, chair or bed. Requires less strength than standard transfer boards. 
Balls held 
in place by rows of wooden dowel rods. Designed by an OTR. Weighs 3 3/4 lbs. 
Latex free. 

Whadda think?

Paul c5/6





photo_114.jpg

Re: [QUAD-L] Hot vs. Cold Quads

[Paul Jacobson]

I'm in San Diego and I still keep the heat on!  I keep it at 75 minimum.my 
utility bill 
was $350 last month!  This month could be be worse.  Gotta stay warm!

And'Stay Thirsty My Friends'.

Paul  c5/6
  - Original Message - 
  From: Joan Anglin 
  To: 'Don Price' ; quad-list@eskimo.com 
  Sent: Tuesday, December 08, 2009 5:32 PM
  Subject: RE: [QUAD-L] Hot vs. Cold Quads


  Yes drastically.  Our house was always known as the cool place-only 
temperature cool.  JMy grandkids always brought their sweatshirts when they 
came to visit in winter.  After my SCI I could never get warm until summer 
came.  However, the last few years have been much better.  I thought it was 
maybe only in my head, but a friend of mine who was around me a lot during the 
first 4-5 years and then left for 14 years came back and remarked on how much 
better I tolerate the cold now.  I still like it warm, love my wood stove, love 
the fact the Reno has 325 sunny days per year, but now that he mentioned it I 
realize that I very seldom wear my heavy-duty poncho anymore.

   

  I still prefer warm-up to 90° is perfect.  After that temperature I get too 
hot.

   

  No, we lived in Reno before I broke my neck and there is no way I would move 
away from my sunshine here.  My whole house is built around sunshine coming in 
almost all of the year, only in the middle of summer is the house not flooded 
with sunshine.

   

  I just figure my thermostat doesn't work well anymore.  It takes me a long 
time to get warm if I do get cold, and sometimes I will complain that my arms 
or legs are cold when in fact they really are not.

   

  I can tolerate the cold quite well as long as I'm sitting in the sun with the 
sunshine on my face and there's not any wind-I was outside the other day for 
two or 3 hours and it was only 50°, but I was sitting in a corner with the 
sunshine on my face.  We have a wood stove with a glass door so one can see the 
flames, which makes me feel much warmer than just plain heat.  My space heater 
is also a radiant heater and I find that I'm quite comfortable with this setup 
for 400 watts because of the glow.  Mind over matter-or maybe if you don't mind 
it doesn't matter.

   

  Good questions

  Joan

   

Re: [QUAD-L] condom cath

[Paul Jacobson]

Yikes...condom cath!  Get a suprapubicno leaks, no UTI's and very low 
maintenance.  Change once month.  (it takes 5 minutes).  Had it 5 years 
so far so good.

Good Luck!

Paul  c5/6
  - Original Message - 
  From: Quadius 
  To: quad-list 
  Sent: Friday, November 13, 2009 2:14 PM
  Subject: [QUAD-L] condom cath


  What is the best condom/texas cath?
  Q

Re: [QUAD-L] Chair Repair

[Paul Jacobson]

Hi Dianna!

I have found the c500 to be reliable (zero breakdowns in 3
years), fast, versatile.  I have the tilt, recline, elevate and
speed package (which I love,  goes up to 8 mph).  The
turn radius is good but not as good as the TDX.  But,
overall, I would get another c500. Which I can do in 2
more years.

Contact me with more questions, if you like.

Paul
  - Original Message - 
  From: diannal...@aol.com 
  To: pjacob...@san.rr.com ; quad-list@eskimo.com 
  Sent: Sunday, November 01, 2009 6:42 PM
  Subject: Re: [QUAD-L] Chair Repair


  In a message dated 11/1/2009 6:14:12 PM Eastern Standard Time, 
pjacob...@san.rr.com writes:
Go with a Permobil c500.  I like this one better than my TDX.
  thanks paul. i appreciate any feedback. i know i need to do my own homework 
but asking  people who sits in these chairs all day compared to the vender is a 
great plus!
  Diana
  p.s. can you give me a few tips why? your the 2nd who doesn't suggest the 
tdx-sp.

[QUAD-L] Custom molded cushion

[Paul Jacobson]

Hi,

I have a Ride Custom molded w/c cushion.  Has anyone had 
any skin problems or other issues with this system?

Thank you.

Paul c5/611/05/03

Re: [QUAD-L] Chair Repair

[Paul Jacobson]

Go with a Permobil c500.  I like this one better than my TDX.

Best,
Paul c5/6
  - Original Message - 
  From: diannal...@aol.com 
  To: g...@eskimo.com ; quad-list@eskimo.com 
  Sent: Sunday, November 01, 2009 2:33 PM
  Subject: Re: [QUAD-L] Chair Repair


  In a message dated 11/1/2009 5:25:42 PM Eastern Standard Time, 
g...@eskimo.com writes:
It’s always on the weekend…
  I know Greg, uti symptoms always start on Friday, which is what I'm dealing 
with. How old is your chair? I'm thinking about getting a TDX-SP. They're gonna 
drop me a demo Tuesday.
  Dianna

Re: [QUAD-L] Supra pubic

[Paul Jacobson]

Hi..I have a 22fr.  I used to have sludge.  Now
I irrigate with Renacidin for 25 min. each day.  Never
plugs up anymore.  I change it every 25 days.

YOU MUST SEE YOUR UROLOGIST!

Paul c5/6
- Original Message - 
From: Dan d...@unh.edu

To: Quad List quad-list@eskimo.com
Sent: Monday, October 12, 2009 6:23 PM
Subject: [QUAD-L] Supra pubic


how often do you guys change your catheters? I have a supra pubic and I 
always have a lot of sludge running through my catheter and consequently 
it plugs up. I can barely go two weeks without it plugging. I'm using an 
18 French. What is the process of increasing up to a 20?


Dan

Re: [QUAD-L] Supra pubic

[Paul Jacobson]

I am very pro-urologists.   I have a good one.
- Original Message - 
From: Dan d...@unh.edu

To: Quad List quad-list@eskimo.com
Sent: Monday, October 12, 2009 7:20 PM
Subject: Re: [QUAD-L] Supra pubic


I've seen more urologist than I care to. None of them have been any help. 
They just tell me that's the way you are deal with it.


Dan



At 10:12 PM 10/12/2009, Paul Jacobson said something that elicited my 
response:



Hi..I have a 22fr.  I used to have sludge.  Now
I irrigate with Renacidin for 25 min. each day.  Never
plugs up anymore.  I change it every 25 days.

YOU MUST SEE YOUR UROLOGIST!

Paul c5/6
- Original Message - From: Dan d...@unh.edu
To: Quad List quad-list@eskimo.com
Sent: Monday, October 12, 2009 6:23 PM
Subject: [QUAD-L] Supra pubic


how often do you guys change your catheters? I have a supra pubic and I 
always have a lot of sludge running through my catheter and consequently 
it plugs up. I can barely go two weeks without it plugging. I'm using an 
18 French. What is the process of increasing up to a 20?


Dan

[QUAD-L] Gentlemen: Whch Do You Prefer??

[Paul Jacobson]

Viagra, Cialis or Lavitra??

Which do you prefer and why?  Side effects??

Paul  c5/6

Re: [QUAD-L] Medical marijuana

[Paul Jacobson]

I'm in CAworks GREAT on spasms..good for 12 hrs - 24 hrs.

Paul  5/6

  - Original Message - 
  From: Todd Daugherty 
  To: quad-list@eskimo.com 
  Sent: Wednesday, September 23, 2009 6:01 PM
  Subject: [QUAD-L] Medical marijuana


  Does anyone live in a medical marijuana state and have tried this instead of 
muscle relaxers?  I have noticed that the small amount of muscle function that 
I have gotten goes away completely when I take muscle relaxers, but marijuana 
allows me to use the function I have gotten back while keeping my spasms away.  
My right leg has regained movement over the last 20 years and it has become 
instrumental in my independence believe it or not.  I am C-6 and am very active 
with a full time job and a 6 year old son so its necessary that I can get 
around.  

  Todd 

[QUAD-L] You guys wanna see this!

[Paul Jacobson]

Hey Paralyzed People!!

Whadda think of this:
http://today.msnbc.msn.com/id/26184891/vp/32950285#32950285

Re: [QUAD-L] up-to-date wound care

[Paul Jacobson]

Hi..well..I've been in bed for 6 weeks with at least 4 to 
go with a Stage 4 on my right istitial.  I am using a wound vac
which is working great.  I am on an air bed, too.  Regarding the
heelsput a pillow under the lower legs and suspend the
heels in the air at night.

Best of luck,
Paul 45 yr old c5/6 complete 
  - Original Message - 
  From: Meghan O'Keefe 
  To: quad-list@eskimo.com 
  Sent: Saturday, September 12, 2009 7:02 AM
  Subject: [QUAD-L] up-to-date wound care


  i'd just like to hear all the most current home remedies and medical 
cocktails that have been successful with skin sores.  My partner has an open 
sore on one ischial, then the other one looks irritated and delicate.  This 
morning starts his third day in bed and he now has a red spot on one of his 
heels (a pressure sore from being in bed all the time).  Even tho we have an 
air bed.  We have always had great success with Silica Gel, high protein diet 
including meets, eggs, and nuts (limit cheese), a protein shake, and sometimes 
a circulation herbal supplement.

  I'd love to hear what others are doing.

  Much Thanks
  Meghan
-Original Message-
From: KK [mailto:kkba...@yahoo.com]
Sent: Tuesday, September 08, 2009 6:16 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Offset Door Hinges


I only had the front door  a door between my bedroom  living room. All the
others had been taken off a long time ago. This morning I ran my wheelchair
into the door  took it off the hinge. I knew the door was there. I knew I
was going to hit it unless I stopped. But the message never got to my hand. 
At
least I haven't broken any screws in the wheelchair YET.

I am going to request offset hinges but I do not know anyone who has them. 
Does
anyone here have them? The opening door frame to wall is small, only 4 
inches.