Re: [QUAD-L] indwelling urinary catheter problems

[toran spencer]

How often should you flush your tube often?

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From: Nichole Rohling 
Sent: Saturday, November 4, 2023 1:02:48 PM
To: 'Danny Hearn' ; quad-list@eskimo.com 

Subject: RE: [QUAD-L] indwelling urinary catheter problems


I just use sterile water. Work fine for me.

Nicki



From: Danny Hearn [mailto:ddh...@sbcglobal.net]
Sent: Saturday, November 4, 2023 2:07 PM
To: Eric Olson; SHIRLEY BELL; Don Price; Jeffrey Gaede
Cc: quad-list
Subject: Re: [QUAD-L] indwelling urinary catheter problems



I have a supra-pubic also..like some of you I have persistant bacteria that 
I live with also, when I flush we just use sterile water, I have read that some 
use saline or a mix of water and 0.25 acetic acid, I have not tried the 
colloidal silver as a flush eitherwhat type flush do most of you use if not 
doing the silver method???  Thanks Dan H>***  26 years post.



On Saturday, November 4, 2023 at 12:03:13 AM CDT, Jeffrey Gaede 
 wrote:





I feel for you, Shirley. I'm right there with you, Don. I really don't have an 
issue with incontinence but I've had my share of UTIs (indwelling catheter). 
I'm 44 years post (C3-4). I've also been told that I have a "resistant bug" 
that's not an issue for the most part. I'm told it's just there. The condition 
has an actual name but I can't recall it at the moment.



I love the list of UTI-solution ideas, Don. Thanks for providing them. Never 
heard of the colloidal silver flush. I'll have to do some research and speak 
with my doctor about that one. Good luck, Shirley. Good luck, All.

Jeff





On Friday, November 3, 2023 at 01:15:06 PM PDT, Don Price 
 wrote:





Shirley,



I hope you get everything figured out and working properly again. UTIs and 
incontinence are such a life-suck. They're just about the hardest part of life 
with SCI.



I'm 41 years post-injury (C5-6, complete) and i've had my share of UTIs. I've 
developed a resistant bladder bug that is probably with me all the time. As 
long as i drink enough fluids I'm not symptomatic of infection, even though if 
i did a urinalysis i'm sure it would come back positive. I try not to use 
antibiotics except as a last resort.



I know a bunch of quads and just about every one has some favorite method of 
treating a UTI without antibiotics. Things I've heard include: cranberry pills, 
d-mannose, large doses vitamin C, probiotics, lime oil, oil of oregano and 
bladder flushes with various solutions. I'm not a doctor, so obviously be 
careful trying any of these.



The thing that has worked best for me (I have a suprapubic catheter) is 
irrigating with a solution of colloidal silver. Silver is a natural 
antiseptic/antifungal, so when i feel i'm getting a UTI symptom (usually 
cloudy/smelly urine) I use a syringe to push the colloidal silver water up my 
catheter into my bladder, then clamp off the catheter for at least 20 minutes. 
i do this twice a day (once morning, once bedtime) for about 3 days at it makes 
a huge difference. I wouldn't consider it a miracle cure, but it seems to take 
out enough bad bacteria that my symptoms clear up for a while with no side 
effects or possibility of resistance



I will be the first to admit that my results are purely anecdotal, and i was 
highly skeptical of this silver stuff when another quad friend of mine told me 
about it. I gave it a try because i was running out of other options, and it 
ended up working for me. I don't have any studies to share--definitely do your 
own research.



You can purchase colloidal silver online. Half gallon of it for about $40. I 
use enough each flush to fill my bladder but not cause A.D. Everyone's bladder 
is different, so i recommend discussing with your urologist first.



If anyone has further questions you can email me directly.

donpric...@yahoo.com



Best wishes,

Don.







On Wednesday, October 25, 2023 at 11:29:30 AM MST, SHIRLEY BELL 
 wrote:





Thanks everyone, My Dr does want a sample when I change the catheter again. I 
just did and this time things are ok, right now. don't want to try to change 
again as that's when it goes south.

On 10/25/2023 1:30 PM EDT Eric Olson  wrote:





just happened to run across this article.  Looks like you have a few of the 
signs of an infection



https://www.hollister.com/en/continencecare/continencelearningcenter/livingwithaneurologicalcondition/7signsthatyoumayhaveaurinarytractinfection



On Wed, Oct 25, 2023 at 10:25 AM SHIRLEY BELL 
mailto:sbell...@cox.net>> wrote:

Hi all, anyone have an indwelling Catheter for 40 or so years and had severe 
issues on and off with spasms and incontinence resulting in changing even new 
catheters until one works? It's hard to explain but not good. I take the max on 
spasm pills. Can't get in to see Dr for a few weeks, wanted to do research 
before. Would a supra pubic help with this? Any help would be appreciated. 
Thanks, Shirley

Re: [QUAD-L] Prolia to treat osteoporosis

[toran spencer]

Hi

Can anybody give me some suggestion on what I can do for my muscles I don’t 
take baclofen or Lyrica because of the side effects. However, I’m having so 
much muscle tension and aching pain. I don’t know what to do. Do anybody have 
any suggestions on any natural supplements or anything?

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From: Ben Mattlin 
Sent: Sunday, December 3, 2023 1:42:27 PM
To: 'Paul Jacobson' ; 'quad-list' 
Subject: RE: [QUAD-L] Prolia to treat osteoporosis


Yup. I've been on it for several years now. One shot every six months. Other 
quads had warned me about bad side effects, but I've never experienced any. My 
latest bone-density scans don't show any improvement, but my osteoporosis has 
not gotten worse, either. My doctor says that's a win.



From: Paul Jacobson 
Sent: Sunday, December 3, 2023 10:28 AM
To: quad-list 
Subject: [QUAD-L] Prolia to treat osteoporosis



Hi,



Has anyone ever tried Prolia or anything similar to treat osteoporosis?

What were your results and concerns.



Thanks,

Paul  c5/6