[QUAD-L] anxiety
Hi Greg, YES I had the same thing happen. I got help from a PT who was trained in Cranial sacral therapy she opened up my chest and I was able to breath better especially in bed when its worse. I still see her once a month she helped with posture as well. Google it. it changed my life as I was just like you with it all. vit b also helps with anxiety. I practice deep breathing as well. ask me more if you want. I know it sucks what you experiencing. shirl
[QUAD-L] Anxiety
Any of you guys have anxiety issues? I went through a bad spell a few year ago. It would hit any time, for no reason. Like I could not get enough air. It was really bad if it happened in bed. I would start to feel like I had to get up right then, even if it was 2am. It started happening 3 or 4 times a week. I ended up staying in my chair all night, knowing it was going to happen that night. It was the fear of it happening that really got to me. Not even sure what the fear was. Mostly worrying about getting old I think. Greg
Re: [QUAD-L] anxiety
I did have one of the best wound nurses from a home health agency in the area that would take care of my sore when it would get out of hand, but it's in a spot that don't have much meat. She took a job at a hospital wound clinic and was consulting for the agency but they sent out a nurse (I'll call her Ms. know it all) and after a personal call to the wound consultant, I got a bone scan and spent 5 days in the hospital and 8 weeks of vankomyacin.. After the hospital Ms. know it all was back and I went to the Kaiser outpatient clinic once a month, they knew less then me. After a few tries I got rid of Ms. Know not much when she took two weeks vacation and her replacement who knew more after one visit agreed to take over my case, things are progressing slowly but in the right direction. I sleep on a low airloss matterass and use a roho cushion on my chair. Don From: Monty To: Don Smith ; quadriplegic Sent: Thursday, October 17, 2013 12:54 PM Subject: Re: [QUAD-L] anxiety I speak from experience of having a bone infection on my bottom! I had this old bag of bones nurse that thought she knew everything and went months before getting a wound clinic appointment. Discovering that I had a bone infection, a round IV antibiotics started to turn it around and then failed. So after researching myself on my activity level and trying everything else surgery was the next option. It's absolutely necessary to take those six weeks after surgery not get up for any amount of time! What kind of mattress are you sleeping on? I have an alternating air overlay on my bed and no issue with skin integrity for many years now. I have spent the last five weeks in bed because of a broken leg and hoping to get liberated next week during my doctors appointment. Are you going to a wound clinic on a regular basis? What kind of treatments have they tried? I would make sure you don't have a bone infection first and getting a second opinion is another perfect option also. I had a bone infection in my arm just below the elbow and that was nearly a four-year battle before leaving town and finding doctors that knew what they were talking about two hours from me. Anxiety I've had a few different times but for the most part it's not been an issue. Any other questions feel free to ask. Monty of Indiana 3/4c nearly 20 years post injury On Thursday, October 17, 2013 2:47 PM, Don Smith wrote: I sleep in my living room because I cant get into the bedroom because my wheelchair is to big, I also live alone but have a pca twice a day. I'm also dealing with a ischeal tube pressure sore, it's small but chronic. When I have an issue with anxiety I turn on my fan and if that don't help I take 10mgs of Valium which I keep in reach, it doesn't happen often but can be scary. Don From: greg To: quad-list Sent: Thursday, October 17, 2013 9:04 AM Subject: [QUAD-L] anxiety I'll try this again. It got sent before I was done. I am considering surgery on my pressure wound on my butt. But that would mean 4 to 6 weeks in bed absolutely not getting up. I'm not sure I could do that. Right now I'm trying to stay in bed most of the time, only getting up for a couple hours. My biggest concern is anxiety. It rarely happens, but if I get really overheated or really constipated, I get A.D. Not only do I sweat, headaches, claustrophobic, I get this really bad anxiety. Where I just can't stop worrying about little things. It's only happens about once or twice a year. If that even. Though it happened the other night. Actually two times this week. I think being stuck in bed has helped cause it. I started worrying about my pressure wound, and then I start worrying about totally unrelated things. Then I start to worry about what if I start to worry. What if a week after the surgery it happens again. When it happens nothing seems to help unless I get up. Once I get over it I think to myself how foolish it was to worry about that. The Dr. gave me something for anxiety once, but by the time I needed it it had expired. It may take two or three times longer to heal up, but I can get up for one or two hours a day. Or do I just risk it, have the surgery, and hope I don't have any issues. My wound was on its way to being healed up when the cushion went flat, then when I had my ostomy surgery it took twice as long as it was supposed to and being on the surgery table caused the wound to be set back a little more. It's hard to figure out what to do. Greg
Re: [QUAD-L] anxiety
blood tests and I think it's an MRI? It's been some time so I don't remember but a good infectious disease specialist doctor will know what test do. On Friday, October 18, 2013 6:53 AM, "daa...@aol.com" wrote: Hi Bobbie, I am so sorry dancing caused a sore. Was your cushion not inflated enough. I wish they had some kind of warning signal if OUR wheelchair cushions are going flat, because we cannot always tell. I remember reading something about a cushion that did that but I do not remember the name. This was a number of years ago. I remember we were talking about the cushion that is like an alternating mattress but costs about USD4000. I cannot quite remember the name of it now. I was thinking about getting one when the power cord of my laptop got under my bottom and I was in bed for six months. I think you can dance again but just in a different way. It might need to be on slow speed, with no rapid movements. It takes so little to cause skin break down. It takes us so long to heal. I still sleep in a waterbed, which never causes any problems. My brother built a frame underneath so I can use my Hoyer to go under the bed, so I can get out of bed and I use my sliding board to get in bed. I have only had to replace the mattress two times in 25 years. It is so warm also. If you have a sore on one side, you can stay longer on the other side without hurting your skin. Does anyone else use a waterbed? I am anxious to hear everyone's stories about rehab coming home. That was a great question. Dana In a message dated 10/17/2013 2:41:26 P.M. Central Daylight Time, bobbiehumphre...@gmail.com writes: >I know what you mean Dan. I just got a brand new power chair with center >wheel drive (my first one) and after having it 6 weeks+ I decided to practice >dancing. Pete and I like to go to jazz concerts and dance. But by putting the >chair in high Greer and going extreme right then left then right again ... I >got a super fiscal sore on my butt. Yesterday was 3 weeks and I'll probably be > in for another 3 weeks. > So, now I can't dance : (. Bobbie > >Smile Everyday > >On Oct 17, 2013, at 12:31 PM, Danny Hearn wrote: > > >When things are going wrong for a quad it does cause worry and anxiety, my >roho lost air under my rear causing a pressure soreman now I feel sick, >because little things like that can be a big problem and take tons of time to >get better.(plus trying to get it replaced with insurance red tape and etc.) >Greg have your doc write a script for a low dose of zanex when getting >anxiety, that will help you. good luck, Dan H** >> >> >>From: greg >>To: quad-list >>Sent: Thursday, October 17, 2013 11:04 AM >>Subject: [QUAD-L] anxiety >> >> >> >> >>I'll try this again. It got sent before I was done. >> >>I am considering surgery on my pressure wound on my butt. But that would >>mean 4 to 6 weeks in bed absolutely not getting up. I'm not sure I could do >>that. Right now I'm trying to stay in bed most of the time, only getting up >>for a couple hours. My biggest concern is anxiety. It rarely happens, but if >>I get really overheated or really constipated, I get A.D. Not only do I >>sweat, headaches, claustrophobic, I get this really bad anxiety. Where I >>just can't stop worrying about little things. It's only happens about once >>or twice a year. If that even. Though it happened the other night. Actually >>two times this week. I think being stuck in bed has helped cause it. I >>started worrying about my pressure wound, and then I start worrying about >>totally unrelated things. Then I start to worry about what if I start to >>worry. What if a week after the surgery it happens again. When it happens >>nothing seems to help unless I get up. Once I get over it I think to myself how foolish it was to worry about that. The Dr. gave me something for anxiety once, but by the time I needed it it had expired. >> >>It may take two or three times longer to heal up, but I can get up for one >>or two hours a day. Or do I just risk it, have the surgery, and hope I don't >>have any issues. >> >>My wound was on its way to being healed up when the cushion went flat, then >>when I had my ostomy surgery it took twice as long as it was supposed to and >>being on the surgery table caused the wound to be set back a little more. >> >>It's hard to figure out what to do. >> >>Greg >> >> >>=
Re: [QUAD-L] anxiety
Hi Bobbie, I am so sorry dancing caused a sore. Was your cushion not inflated enough. I wish they had some kind of warning signal if OUR wheelchair cushions are going flat, because we cannot always tell. I remember reading something about a cushion that did that but I do not remember the name. This was a number of years ago. I remember we were talking about the cushion that is like an alternating mattress but costs about USD4000. I cannot quite remember the name of it now. I was thinking about getting one when the power cord of my laptop got under my bottom and I was in bed for six months. I think you can dance again but just in a different way. It might need to be on slow speed, with no rapid movements. It takes so little to cause skin break down. It takes us so long to heal. I still sleep in a waterbed, which never causes any problems. My brother built a frame underneath so I can use my Hoyer to go under the bed, so I can get out of bed and I use my sliding board to get in bed. I have only had to replace the mattress two times in 25 years. It is so warm also. If you have a sore on one side, you can stay longer on the other side without hurting your skin. Does anyone else use a waterbed? I am anxious to hear everyone's stories about rehab coming home. That was a great question. Dana In a message dated 10/17/2013 2:41:26 P.M. Central Daylight Time, bobbiehumphre...@gmail.com writes: I know what you mean Dan. I just got a brand new power chair with center wheel drive (my first one) and after having it 6 weeks+ I decided to practice dancing. Pete and I like to go to jazz concerts and dance. But by putting the chair in high Greer and going extreme right then left then right again ... I got a super fiscal sore on my butt. Yesterday was 3 weeks and I'll probably be in for another 3 weeks. So, now I can't dance : (. Bobbie Smile Everyday On Oct 17, 2013, at 12:31 PM, Danny Hearn <_ddh247@sbcglobal.net_ (mailto:ddh...@sbcglobal.net) > wrote: When things are going wrong for a quad it does cause worry and anxiety, my roho lost air under my rear causing a pressure soreman now I feel sick, because little things like that can be a big problem and take tons of time to get better.(plus trying to get it replaced with insurance red tape and etc.) Greg have your doc write a script for a low dose of zanex when getting anxiety, that will help you. good luck, Dan H** From: greg <_greg@eskimo.com_ (mailto:g...@eskimo.com) > To: quad-list <_quad-list@eskimo.com_ (mailto:quad-list@eskimo.com) > Sent: Thursday, October 17, 2013 11:04 AM Subject: [QUAD-L] anxiety I'll try this again. It got sent before I was done. I am considering surgery on my pressure wound on my butt. But that would mean 4 to 6 weeks in bed absolutely not getting up. I'm not sure I could do that. Right now I'm trying to stay in bed most of the time, only getting up for a couple hours. My biggest concern is anxiety. It rarely happens, but if I get really overheated or really constipated, I get A.D. Not only do I sweat, headaches, claustrophobic, I get this really bad anxiety. Where I just can't stop worrying about little things. It's only happens about once or twice a year. If that even. Though it happened the other night. Actually two times this week. I think being stuck in bed has helped cause it. I started worrying about my pressure wound, and then I start worrying about totally unrelated things. Then I start to worry about what if I start to worry. What if a week after the surgery it happens again. When it happens nothing seems to help unless I get up. Once I get over it I think to myself how foolish it was to worry about that. The Dr. gave me something for anxiety once, but by the time I needed it it had expired. It may take two or three times longer to heal up, but I can get up for one or two hours a day. Or do I just risk it, have the surgery, and hope I don't have any issues. My wound was on its way to being healed up when the cushion went flat, then when I had my ostomy surgery it took twice as long as it was supposed to and being on the surgery table caused the wound to be set back a little more. It's hard to figure out what to do. Greg =
Re: [QUAD-L] anxiety
I wouldn't go to the wound Center to check on .They can refer you to the proper doctor. Dana Sent from my iPhone On Oct 17, 2013, at 6:04 PM, Fragile wrote: > What are the symptoms indicating a bone infection? > > > On Thu, Oct 17, 2013 at 1:54 PM, Monty wrote: >> I speak from experience of having a bone infection on my bottom! I had this >> old bag of bones nurse that thought she knew everything and went months >> before getting a wound clinic appointment. Discovering that I had a bone >> infection, a round IV antibiotics started to turn it around and then failed. >> So after researching myself on my activity level and trying everything else >> surgery was the next option. It's absolutely necessary to take those six >> weeks after surgery not get up for any amount of time! What kind of mattress >> are you sleeping on? I have an alternating air overlay on my bed and no >> issue with skin integrity for many years now. I have spent the last five >> weeks in bed because of a broken leg and hoping to get liberated next week >> during my doctors appointment. Are you going to a wound clinic on a regular >> basis? What kind of treatments have they tried? I would make sure you don't >> have a bone infection first and getting a second opinion is another perfect >> option also. I had a bone infection in my arm just below the elbow and that >> was nearly a four-year battle before leaving town and finding doctors that >> knew what they were talking about two hours from me. Anxiety I've had a few >> different times but for the most part it's not been an issue. Any other >> questions feel free to ask. >> Monty of Indiana 3/4c nearly 20 years post injury >> >> >> >> >> >> >
Re: [QUAD-L] anxiety
What are the symptoms indicating a bone infection? On Thu, Oct 17, 2013 at 1:54 PM, Monty wrote: > I speak from experience of having a bone infection on my bottom! I had > this old bag of bones nurse that thought she knew everything and went > months before getting a wound clinic appointment. Discovering that I had a > bone infection, a round IV antibiotics started to turn it around and then > failed. So after researching myself on my activity level and trying > everything else surgery was the next option. It's absolutely necessary to > take those six weeks after surgery not get up for any amount of time! What > kind of mattress are you sleeping on? I have an alternating air overlay on > my bed and no issue with skin integrity for many years now. I have spent > the last five weeks in bed because of a broken leg and hoping to get > liberated next week during my doctors appointment. Are you going to a wound > clinic on a regular basis? What kind of treatments have they tried? I would > make sure you don't have a bone infection first and getting a second > opinion is another perfect option also. I had a bone infection in my arm > just below the elbow and that was nearly a four-year battle before leaving > town and finding doctors that knew what they were talking about two hours > from me. Anxiety I've had a few different times but for the most part it's > not been an issue. Any other questions feel free to ask. > Monty of Indiana 3/4c nearly 20 years post injury > > > > > -- > ** > >
[QUAD-L] anxiety
At first I was put on the Clinitron in my bedroom. After putting my big TV in their, between the TV and the bed both being so warm is when I got my first anxiety thing. So I put my regular bed in the front room and put my TV back. Now I sleep in the Clinitron at night and I stay in the front room during the day. I have a low air loss overlay on my bed in the front room. If I have the surgery I would put the Clinitron in the front room. It's just uncomfortable, I'm always sliding down, and it's so loud. I go to the wound Dr. says surgery would be recommended, but says to really think about it if I have any doubts about the anxiety thing. He says it still okay to try and wait though it will take longer. Greg
Re: [QUAD-L] anxiety
I speak from experience of having a bone infection on my bottom! I had this old bag of bones nurse that thought she knew everything and went months before getting a wound clinic appointment. Discovering that I had a bone infection, a round IV antibiotics started to turn it around and then failed. So after researching myself on my activity level and trying everything else surgery was the next option. It's absolutely necessary to take those six weeks after surgery not get up for any amount of time! What kind of mattress are you sleeping on? I have an alternating air overlay on my bed and no issue with skin integrity for many years now. I have spent the last five weeks in bed because of a broken leg and hoping to get liberated next week during my doctors appointment. Are you going to a wound clinic on a regular basis? What kind of treatments have they tried? I would make sure you don't have a bone infection first and getting a second opinion is another perfect option also. I had a bone infection in my arm just below the elbow and that was nearly a four-year battle before leaving town and finding doctors that knew what they were talking about two hours from me. Anxiety I've had a few different times but for the most part it's not been an issue. Any other questions feel free to ask. Monty of Indiana 3/4c nearly 20 years post injury On Thursday, October 17, 2013 2:47 PM, Don Smith wrote: I sleep in my living room because I cant get into the bedroom because my wheelchair is to big, I also live alone but have a pca twice a day. I'm also dealing with a ischeal tube pressure sore, it's small but chronic. When I have an issue with anxiety I turn on my fan and if that don't help I take 10mgs of Valium which I keep in reach, it doesn't happen often but can be scary. Don From: greg To: quad-list Sent: Thursday, October 17, 2013 9:04 AM Subject: [QUAD-L] anxiety I'll try this again. It got sent before I was done. I am considering surgery on my pressure wound on my butt. But that would mean 4 to 6 weeks in bed absolutely not getting up. I'm not sure I could do that. Right now I'm trying to stay in bed most of the time, only getting up for a couple hours. My biggest concern is anxiety. It rarely happens, but if I get really overheated or really constipated, I get A.D. Not only do I sweat, headaches, claustrophobic, I get this really bad anxiety. Where I just can't stop worrying about little things. It's only happens about once or twice a year. If that even. Though it happened the other night. Actually two times this week. I think being stuck in bed has helped cause it. I started worrying about my pressure wound, and then I start worrying about totally unrelated things. Then I start to worry about what if I start to worry. What if a week after the surgery it happens again. When it happens nothing seems to help unless I get up. Once I get over it I think to myself how foolish it was to worry about that. The Dr. gave me something for anxiety once, but by the time I needed it it had expired. It may take two or three times longer to heal up, but I can get up for one or two hours a day. Or do I just risk it, have the surgery, and hope I don't have any issues. My wound was on its way to being healed up when the cushion went flat, then when I had my ostomy surgery it took twice as long as it was supposed to and being on the surgery table caused the wound to be set back a little more. It's hard to figure out what to do. Greg
Re: [QUAD-L] anxiety
I know what you mean Dan. I just got a brand new power chair with center wheel drive (my first one) and after having it 6 weeks+ I decided to practice dancing. Pete and I like to go to jazz concerts and dance. But by putting the chair in high Greer and going extreme right then left then right again ... I got a super fiscal sore on my butt. Yesterday was 3 weeks and I'll probably be in for another 3 weeks. So, now I can't dance : (. Bobbie Smile Everyday > On Oct 17, 2013, at 12:31 PM, Danny Hearn wrote: > > When things are going wrong for a quad it does cause worry and anxiety, my > roho lost air under my rear causing a pressure soreman now I feel sick, > because little things like that can be a big problem and take tons of time to > get better.(plus trying to get it replaced with insurance red tape and etc.) > Greg have your doc write a script for a low dose of zanex when getting > anxiety, that will help you. good luck, Dan H** > > From: greg > To: quad-list > Sent: Thursday, October 17, 2013 11:04 AM > Subject: [QUAD-L] anxiety > > > I'll try this again. It got sent before I was done. > > I am considering surgery on my pressure wound on my butt. But that would mean > 4 to 6 weeks in bed absolutely not getting up. I'm not sure I could do that. > Right now I'm trying to stay in bed most of the time, only getting up for a > couple hours. My biggest concern is anxiety. It rarely happens, but if I get > really overheated or really constipated, I get A.D. Not only do I sweat, > headaches, claustrophobic, I get this really bad anxiety. Where I just can't > stop worrying about little things. It's only happens about once or twice a > year. If that even. Though it happened the other night. Actually two times > this week. I think being stuck in bed has helped cause it. I started worrying > about my pressure wound, and then I start worrying about totally unrelated > things. Then I start to worry about what if I start to worry. What if a week > after the surgery it happens again. When it happens nothing seems to help > unless I get up. Once I get over it I think to myself how foolish it was to > worry about that. The Dr. gave me something for anxiety once, but by the time > I needed it it had expired. > > It may take two or three times longer to heal up, but I can get up for one or > two hours a day. Or do I just risk it, have the surgery, and hope I don't > have any issues. > > My wound was on its way to being healed up when the cushion went flat, then > when I had my ostomy surgery it took twice as long as it was supposed to and > being on the surgery table caused the wound to be set back a little more. > > It's hard to figure out what to do. > > Greg > > >
Re: [QUAD-L] anxiety
I sleep in my living room because I cant get into the bedroom because my wheelchair is to big, I also live alone but have a pca twice a day. I'm also dealing with a ischeal tube pressure sore, it's small but chronic. When I have an issue with anxiety I turn on my fan and if that don't help I take 10mgs of Valium which I keep in reach, it doesn't happen often but can be scary. Don From: greg To: quad-list Sent: Thursday, October 17, 2013 9:04 AM Subject: [QUAD-L] anxiety I'll try this again. It got sent before I was done. I am considering surgery on my pressure wound on my butt. But that would mean 4 to 6 weeks in bed absolutely not getting up. I'm not sure I could do that. Right now I'm trying to stay in bed most of the time, only getting up for a couple hours. My biggest concern is anxiety. It rarely happens, but if I get really overheated or really constipated, I get A.D. Not only do I sweat, headaches, claustrophobic, I get this really bad anxiety. Where I just can't stop worrying about little things. It's only happens about once or twice a year. If that even. Though it happened the other night. Actually two times this week. I think being stuck in bed has helped cause it. I started worrying about my pressure wound, and then I start worrying about totally unrelated things. Then I start to worry about what if I start to worry. What if a week after the surgery it happens again. When it happens nothing seems to help unless I get up. Once I get over it I think to myself how foolish it was to worry about that. The Dr. gave me something for anxiety once, but by the time I needed it it had expired. It may take two or three times longer to heal up, but I can get up for one or two hours a day. Or do I just risk it, have the surgery, and hope I don't have any issues. My wound was on its way to being healed up when the cushion went flat, then when I had my ostomy surgery it took twice as long as it was supposed to and being on the surgery table caused the wound to be set back a little more. It's hard to figure out what to do. Greg
Re: [QUAD-L] anxiety
When things are going wrong for a quad it does cause worry and anxiety, my roho lost air under my rear causing a pressure soreman now I feel sick, because little things like that can be a big problem and take tons of time to get better.(plus trying to get it replaced with insurance red tape and etc.) Greg have your doc write a script for a low dose of zanex when getting anxiety, that will help you. good luck, Dan H** From: greg To: quad-list Sent: Thursday, October 17, 2013 11:04 AM Subject: [QUAD-L] anxiety I'll try this again. It got sent before I was done. I am considering surgery on my pressure wound on my butt. But that would mean 4 to 6 weeks in bed absolutely not getting up. I'm not sure I could do that. Right now I'm trying to stay in bed most of the time, only getting up for a couple hours. My biggest concern is anxiety. It rarely happens, but if I get really overheated or really constipated, I get A.D. Not only do I sweat, headaches, claustrophobic, I get this really bad anxiety. Where I just can't stop worrying about little things. It's only happens about once or twice a year. If that even. Though it happened the other night. Actually two times this week. I think being stuck in bed has helped cause it. I started worrying about my pressure wound, and then I start worrying about totally unrelated things. Then I start to worry about what if I start to worry. What if a week after the surgery it happens again. When it happens nothing seems to help unless I get up. Once I get over it I think to myself how foolish it was to worry about that. The Dr. gave me something for anxiety once, but by the time I needed it it had expired. It may take two or three times longer to heal up, but I can get up for one or two hours a day. Or do I just risk it, have the surgery, and hope I don't have any issues. My wound was on its way to being healed up when the cushion went flat, then when I had my ostomy surgery it took twice as long as it was supposed to and being on the surgery table caused the wound to be set back a little more. It's hard to figure out what to do. Greg
[QUAD-L] anxiety
I'll try this again. It got sent before I was done. I am considering surgery on my pressure wound on my butt. But that would mean 4 to 6 weeks in bed absolutely not getting up. I'm not sure I could do that. Right now I'm trying to stay in bed most of the time, only getting up for a couple hours. My biggest concern is anxiety. It rarely happens, but if I get really overheated or really constipated, I get A.D. Not only do I sweat, headaches, claustrophobic, I get this really bad anxiety. Where I just can't stop worrying about little things. It's only happens about once or twice a year. If that even. Though it happened the other night. Actually two times this week. I think being stuck in bed has helped cause it. I started worrying about my pressure wound, and then I start worrying about totally unrelated things. Then I start to worry about what if I start to worry. What if a week after the surgery it happens again. When it happens nothing seems to help unless I get up. Once I get over it I think to myself how foolish it was to worry about that. The Dr. gave me something for anxiety once, but by the time I needed it it had expired. It may take two or three times longer to heal up, but I can get up for one or two hours a day. Or do I just risk it, have the surgery, and hope I don't have any issues. My wound was on its way to being healed up when the cushion went flat, then when I had my ostomy surgery it took twice as long as it was supposed to and being on the surgery table caused the wound to be set back a little more. It's hard to figure out what to do. Greg
