[QUAD-L] BACLOFEN PUMP
Hi, anyone using one open to sharing your experience with the pump with me privately? Strongly thinking about it as abdominal/leg spasms have become very disruptive. Thank you, Paul c5/6 complete
Re: [QUAD-L] Baclofen Pump
Hello Paul I have a friend of mine that uses one. He was having problems keeping spasms under control so he switched to a pump. As far as I know he still likes it. Randy On Sun, Nov 4, 2018 at 10:26 PM Paul Jacobson wrote: > Hi, anyone using his? Love to hear what you think. I am considering it. > > Thanks, > Paul c5/6 >
[QUAD-L] Baclofen Pump
Hi, anyone using his? Love to hear what you think. I am considering it. Thanks, Paul c5/6
Re: [QUAD-L] Baclofen pump
Hi Welcome back Sharon & Monty. It's good to hear from you. Hope you get your spasms under control. Lindaf
Re: [QUAD-L] Baclofen pump
I have had great results with pump. It is best thing could have ever happen to me. But last year the incesion did reopen and I was rushed to hospital. I had to replace it, but had to wait two wks. Then i had withdrawels it was awful. I was very scared. But honestly only get it if you can't tolerate the oral stuff. Try not to place close to hip line hard to wear jean,pants, etc. From: Monty To: Sharon Hiatt ; quadriplegic Sent: Wed, March 10, 2010 10:19:49 AM Subject: Re: [QUAD-L] Baclofen pump I am 16 1/2 years post injury at 3/4 complete and take baclofen three times a day with pretty decent results! Another part of spasms is the lack of range of motion and I do range of motions almost everyday and sometimes twice. Being 6 foot tall personal-care would be almost impossible without it and to keep myself in my chair without finding somebody all of the time to put it back up a limb or two. I have gone a few days without them and then takes another 3 to 4 days to get my muscles to relax once again. I think changing positions either in bed or the chair can assist in cutting down the number of spasms. I have a tilt system on my chair and alternating air mattress on my bed. This is what works for me and like always we are all different in many little ways! Your friend of Indiana From: Sharon Hiatt To: quad-list@eskimo.com Sent: Tue, March 9, 2010 2:50:18 PM Subject: [QUAD-L] Baclofen pump Hi everyone. I haven't been on the quad-list for years but am back to get info positive/negative from anyone who has/had a baclofen pump. I'm 10 years post after a run-in with a kangaroo, paralyzed at C5/6 and my spasms have gotten bad enough that pills aren't working anymore. Appreciate hearing from anyone, Rooby
Re: [QUAD-L] Baclofen pump
I am 16 1/2 years post injury at 3/4 complete and take baclofen three times a day with pretty decent results! Another part of spasms is the lack of range of motion and I do range of motions almost everyday and sometimes twice. Being 6 foot tall personal-care would be almost impossible without it and to keep myself in my chair without finding somebody all of the time to put it back up a limb or two. I have gone a few days without them and then takes another 3 to 4 days to get my muscles to relax once again. I think changing positions either in bed or the chair can assist in cutting down the number of spasms. I have a tilt system on my chair and alternating air mattress on my bed. This is what works for me and like always we are all different in many little ways! Your friend of Indiana From: Sharon Hiatt To: quad-list@eskimo.com Sent: Tue, March 9, 2010 2:50:18 PM Subject: [QUAD-L] Baclofen pump Hi everyone. I haven't been on the quad-list for years but am back to get info positive/negative from anyone who has/had a baclofen pump. I'm 10 years post after a run-in with a kangaroo, paralyzed at C5/6 and my spasms have gotten bad enough that pills aren't working anymore. Appreciate hearing from anyone, Rooby
RE: [QUAD-L] Baclofen pump
the only negative we've had: the pump has to be replaced when the battery is old...in the first part of this century the battery/computer had to be replaced every five years. now, they apparently last 7 or 8 years. My husband is on his third pump and it will need to be replaced next year. Each time you replace it, you have to go through the surgery and therefore there's a chance of infection. The infection is not likely but it did happen to us once. That was not a fun experience. The infection was not the result of the pump itself, but rather the infection suceptibility of an incision site. -Original Message- From: wheelch...@aol.com [mailto:wheelch...@aol.com] Sent: Wednesday, March 10, 2010 9:48 AM To: roo...@verizon.net; quad-list@eskimo.com Subject: Re: [QUAD-L] Baclofen pump Only if your doctor believe that you are a candidate for the pump, would I recommend it. Much smaller dosage, directly to the pain/spasm source. That means less drugs in your system and less damage to the liver and kidneys. I know of no complaints, only positive results for those using them. Best Wishes In a message dated 3/9/2010 1:50:49 P.M. Central Standard Time, roo...@verizon.net writes: Hi everyone. I haven't been on the quad-list for years but am back to get info positive/negative from anyone who has/had a baclofen pump. I'm 10 years post after a run-in with a kangaroo, paralyzed at C5/6 and my spasms have gotten bad enough that pills aren't working anymore. Appreciate hearing from anyone, Rooby
Re: [QUAD-L] Baclofen pump
Only if your doctor believe that you are a candidate for the pump, would I recommend it. Much smaller dosage, directly to the pain/spasm source. That means less drugs in your system and less damage to the liver and kidneys. I know of no complaints, only positive results for those using them. Best Wishes In a message dated 3/9/2010 1:50:49 P.M. Central Standard Time, roo...@verizon.net writes: Hi everyone. I haven't been on the quad-list for years but am back to get info positive/negative from anyone who has/had a baclofen pump. I'm 10 years post after a run-in with a kangaroo, paralyzed at C5/6 and my spasms have gotten bad enough that pills aren't working anymore. Appreciate hearing from anyone, Rooby
[QUAD-L] Baclofen pump
Hi everyone.I haven't been on the quad-list for years but am back to get info positive/negative from anyone who has/had a baclofen pump. I'm 10 years post after a run-in with a kangaroo, paralyzed at C5/6 and my spasms have gotten bad enough that pills aren't working anymore. Appreciate hearing from anyone, Rooby
[QUAD-L] Baclofen pump
I received your email on pumps. i was 26 when i got mine, 2 yrs ago and 8 yrs post sci. if i had had that when 1st injured.wow my life would have been so much easier. every move or touch wouldnt have made me spasm everywhere. at night there wouldnt have been spasms ALL night every time i moved to adjust causing me to wake someone and readjust my legs. it is a life-changing small instrument. please tell them to have the baclofen pump trial, if it will work they will notice quickly. best wishes littlequad
Re: [QUAD-L] Baclofen Pump?
Wheels, I'm proud to be a friend of Lil Quad! I see she has posted a health question on the Q-List, so maybe Quadius will be able to get an answer right from the Lil Lady herself! With Love, CtrlAltDel aka Dave C4/5 Complete - 32 Years Post Texas, USA [EMAIL PROTECTED] wrote: Amen Quad, That was Amye of Texas LiL Quad, and a friend of Dave. Maybe he has heard from her Best Wishes In a message dated 7/31/2008 2:37:00 P.M. Central Daylight Time, [EMAIL PROTECTED] writes: The last person I recall having one of these put in on this list was little quad. At least I think that's what her name was. I don't believe I have seen anything from her in quite a while. Anyone know what's going on. Quadius On 7/30/08, [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote: For those who have them or were selected to be candidates for the internal pump, most are pleased for several reasons. Less amount of actual drug used. The drug is presented to the actual site rather than having to be processed first. Its automatic, no forgetting. Those who previously have violent spasms, noticed the difference within the first 24 hours. Keep in mind, this is always a private matter between the candidate and their doctors. Best Wishes In a message dated 7/30/2008 1:26:06 P.M. Central Daylight Time, [EMAIL PROTECTED] writes: i have a boclofen pump it has saved my life honestly except recently it got infected and i was in hospital for 2 wks.bot fun.but i would recommend it to anyone. --- On Tue, 7/29/08, Greg <[EMAIL PROTECTED]> wrote: From: Greg <[EMAIL PROTECTED]> Subject: [QUAD-L] Baclofen Pump? To: quad-list@eskimo.com Date: Tuesday, July 29, 2008, 8:00 PM Are there any on the List who have the Baclofen Pump? I have been corresponding with a lady who¢s son-in-law was just in an accident and paralyzed C/4/5. He has very bad spasms and pain and they want to get a Baclofen Pump and would like to talk to a few people who have been through it. If you could answer a few questions for her could you let me know? Thank you very much, Greg - Get fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today. - Get fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today.
Re: [QUAD-L] Baclofen Pump?
Amen Quad, That was Amye of Texas LiL Quad, and a friend of Dave. Maybe he has heard from her Best Wishes In a message dated 7/31/2008 2:37:00 P.M. Central Daylight Time, [EMAIL PROTECTED] writes: The last person I recall having one of these put in on this list was little quad. At least I think that's what her name was. I don't believe I have seen anything from her in quite a while. Anyone know what's going on. Quadius On 7/30/08, [EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) <[EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) > wrote: For those who have them or were selected to be candidates for the internal pump, most are pleased for several reasons. Less amount of actual drug used. The drug is presented to the actual site rather than having to be processed first. Its automatic, no forgetting. Those who previously have violent spasms, noticed the difference within the first 24 hours. Keep in mind, this is always a private matter between the candidate and their doctors. Best Wishes In a message dated 7/30/2008 1:26:06 P.M. Central Daylight Time, [EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) writes: i have a boclofen pump it has saved my life honestly except recently it got infected and i was in hospital for 2 wks.bot fun.but i would recommend it to anyone. --- On Tue, 7/29/08, Greg <[EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) > wrote: From: Greg <[EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) > Subject: [QUAD-L] Baclofen Pump? To: [EMAIL PROTECTED] (mailto:quad-list@eskimo.com) Date: Tuesday, July 29, 2008, 8:00 PM Are there any on the List who have the Baclofen Pump? I have been corresponding with a lady who¢s son-in-law was just in an accident and paralyzed C/4/5. He has very bad spasms and pain and they want to get a Baclofen Pump and would like to talk to a few people who have been through it. If you could answer a few questions for her could you let me know? Thank you very much, Greg Get fantasy football with free live scoring. _Sign up for FanHouse Fantasy Football today_ (http://www.fanhouse.com/fantasyaffair?ncid=aolspr000520) . **Get fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today. (http://www.fanhouse.com/fantasyaffair?ncid=aolspr000520)
Re: [QUAD-L] Baclofen Pump?
The last person I recall having one of these put in on this list was little quad. At least I think that's what her name was. I don't believe I have seen anything from her in quite a while. Anyone know what's going on. Quadius On 7/30/08, [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote: > > For those who have them or were selected to be candidates for the > internal pump, most are pleased for several reasons. > > Less amount of actual drug used. > The drug is presented to the actual site rather than having to be processed > first. > Its automatic, no forgetting. > Those who previously have violent spasms, noticed the difference within the > first 24 hours. > > Keep in mind, this is always a private matter between the candidate and > their doctors. > > Best Wishes > > In a message dated 7/30/2008 1:26:06 P.M. Central Daylight Time, > [EMAIL PROTECTED] writes: > > i have a boclofen pump it has saved my life honestly except recently it > got infected and i was in hospital for 2 wks.bot fun.but i would recommend > it to anyone. > > --- On *Tue, 7/29/08, Greg <[EMAIL PROTECTED]>* wrote: > > From: Greg <[EMAIL PROTECTED]> > Subject: [QUAD-L] Baclofen Pump? > To: quad-list@eskimo.com > Date: Tuesday, July 29, 2008, 8:00 PM > > Are there any on the List who have the Baclofen Pump? > > I have been corresponding with a lady who¢s son-in-law was just in an > accident and paralyzed C/4/5. > > He has very bad spasms and pain and they want to get a Baclofen Pump and > would like to talk to a few people who have been through it. > > If you could answer a few questions for her could you let me know? > > Thank you very much, > > Greg > > > > > > -- > Get fantasy football with free live scoring. Sign up for FanHouse Fantasy > Football > today<http://www.fanhouse.com/fantasyaffair?ncid=aolspr000520> > . >
[QUAD-L] Baclofen Pump?
For those who have them or were selected to be candidates for the internal pump, most are pleased for several reasons. Less amount of actual drug used. The drug is presented to the actual site rather than having to be processed first. Its automatic, no forgetting. Those who previously have violent spasms, noticed the difference within the first 24 hours. Keep in mind, this is always a private matter between the candidate and their doctors. Best Wishes In a message dated 7/30/2008 1:26:06 P.M. Central Daylight Time, [EMAIL PROTECTED] writes: i have a boclofen pump it has saved my life honestly except recently it got infected and i was in hospital for 2 wks.bot fun.but i would recommend it to anyone. --- On Tue, 7/29/08, Greg <[EMAIL PROTECTED]> wrote: From: Greg <[EMAIL PROTECTED]> Subject: [QUAD-L] Baclofen Pump? To: quad-list@eskimo.com Date: Tuesday, July 29, 2008, 8:00 PM Are there any on the List who have the Baclofen Pump? I have been corresponding with a lady who¢s son-in-law was just in an accident and paralyzed C/4/5. He has very bad spasms and pain and they want to get a Baclofen Pump and would like to talk to a few people who have been through it. If you could answer a few questions for her could you let me know? Thank you very much, Greg **Get fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today. (http://www.fanhouse.com/fantasyaffair?ncid=aolspr000520)
Re: [QUAD-L] Baclofen Pump?
i have a boclofen pump it has saved my life honestly except recently it got infected and i was in hospital for 2 wks.bot fun.but i would recommend it to anyone. --- On Tue, 7/29/08, Greg <[EMAIL PROTECTED]> wrote: From: Greg <[EMAIL PROTECTED]> Subject: [QUAD-L] Baclofen Pump? To: quad-list@eskimo.com Date: Tuesday, July 29, 2008, 8:00 PM Are there any on the List who have the Baclofen Pump? I have been corresponding with a lady who’s son-in-law was just in an accident and paralyzed C/4/5. He has very bad spasms and pain and they want to get a Baclofen Pump and would like to talk to a few people who have been through it. If you could answer a few questions for her could you let me know? Thank you very much, Greg
Re: [QUAD-L] Baclofen Pump?
Its not something you choose first but rather determine if you are a candidate for the pump. Once that is determined, then you can decide if you really want it. Hope your friend is a good candidate for the pump. Best Wishes In a message dated 7/29/2008 8:13:10 P.M. Central Daylight Time, [EMAIL PROTECTED] writes: Are there any on the List who have the Baclofen Pump? I have been corresponding with a lady who’s son-in-law was just in an accident and paralyzed C/4/5. He has very bad spasms and pain and they want to get a Baclofen Pump and would like to talk to a few people who have been through it. If you could answer a few questions for her could you let me know? Thank you very much, Greg **Get fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today. (http://www.fanhouse.com/fantasyaffair?ncid=aolspr000520)
[QUAD-L] Baclofen Pump?
Are there any on the List who have the Baclofen Pump? I have been corresponding with a lady who's son-in-law was just in an accident and paralyzed C/4/5. He has very bad spasms and pain and they want to get a Baclofen Pump and would like to talk to a few people who have been through it. If you could answer a few questions for her could you let me know? Thank you very much, Greg
Re: [QUAD-L] Baclofen pump trial
Hi LQ, Congratulations! I will keep you in my prayers for a successful surgery consult on the 1st! With Love, CtrlAltDel aka DaveC4/5 Complete - 30 Years PostTexas, USA ~LittleQuad~ <[EMAIL PROTECTED]> wrote:I went for my trial today. Went fantastic!!! The nurses were great and the Medtronic lady was phenomoenal! They did the before injection testing of spasms. 45 minutes later, I was put on the table and flipped over for the injection, my legs jumped liked crazy. The prepped and did the spinal tap injection, waited 5 minutes and flipped me back over. NOTHING! Not even a flinch!!! The doc was surprised at quick effect but I had not had m morning pills yet. I was in need of Baclofen! Then they started watching me and testing spams.Each time the spasms were less!! Both doctors were pleased and gave the OK! I go for surgery consult Sept, 1 YAY!!!
[QUAD-L] Baclofen pump trial
I went for my trial today. Went fantastic!!! The nurses were great and the Medtronic lady was phenomoenal! They did the before injection testing of spasms. 45 minutes later, I was put on the table and flipped over for the injection, my legs jumped liked crazy. The prepped and did the spinal tap injection, waited 5 minutes and flipped me back over. NOTHING! Not even a flinch!!! The doc was surprised at quick effect but I had not had m morning pills yet. I was in need of Baclofen! Then they started watching me and testing spams.Each time the spasms were less!! Both doctors were pleased and gave the OK! I go for surgery consult Sept, 1 YAY!!!
Re: [QUAD-L] Baclofen pump
Hello Lori, Yes I do seem to linger here on the quad-list until I got something to contribute to the list like I posted about having a Baclofen Pump. I do not think it is wise to add anymore than you have to to your body to get relief. My Muscle Spazms are really terrible on my Stomach area cause when I have them they contract right around my Belly area and then make my legs shake like a Tuna Fish out of water. But telling someone else what not to do to themselves is buttin in so, I just Hope All goes Well for Amye ( Little Quad ). Chet ( Cquad7 ) Lori Michaelson <[EMAIL PROTECTED]> wrote: Chet, You kind of linger behind the curtain of posting. hehehehe. As you have probably seen ... Dan and I have been battling UTIs for years now and the latest culprit for both of us is Pseudomonas. That particular bacteria or bug is more than difficult to get rid of. It likes to encapsulate itself and hide itself. Even from antibiotics! Do you know what bacteria has caused your ongoing problems? Lori C4/5 Complete Tucson, AZ AGE - 41 ---Original Message--- From: Chet Smith Date: 6/23/2006 5:18:26 PM To: ~LittleQuad~ Cc: Quad-List Subject: Re: [QUAD-L] Baclofen pump Hi Amye, I take it you have troubles with a lot of Spazms as I do as well. I am not interested in having the pump though, I just think that would be another something else having to deal with. I already have enough trying to keep these UTI's I've been having a lot of away. Your Fried Friend, Chet ( oo California is HOT !!! )~LittleQuad~ <[EMAIL PROTECTED]> wrote:i have an appointment this next week to see about getting the pump...i'm excited!! __Do You Yahoo!?Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com __Do You Yahoo!?Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com
Re: [QUAD-L] Baclofen pump
well i'm maxed out on baclofen and doc says more meds similar will just irritatemy liver which i'm having to watch closely! i tried botox, helped some, but not enough! the spasms are waking me up all night long... which makes me wake up mom.can't be independent if doing thatChet Smith <[EMAIL PROTECTED]> wrote: Hi Amye, I take it you have troubles with a lot of Spazms as I do as well. I am not interested in having the pump though, I just think that would be another something else having to deal with. I already have enough trying to keep these UTI's I've been having a lot of away. Your Fried Friend, Chet ( oo California is HOT !!! )~LittleQuad~ <[EMAIL PROTECTED]> wrote:i have an appointment this next week to see about getting the pump...i'm excited!! __Do You Yahoo!?Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com
[QUAD-L] Baclofen pump
Good Luck and Best Wishes LiL Quad. I hope that you have talked or email Karen in Indianapolis, IN who has had a pump for several years after breaking her femurs a couple of times. She could be an excellent reference for you. W
Re: [QUAD-L] Baclofen pump
Hi Amye, I take it you have troubles with a lot of Spazms as I do as well. I am not interested in having the pump though, I just think that would be another something else having to deal with. I already have enough trying to keep these UTI's I've been having a lot of away. Your Fried Friend, Chet ( oo California is HOT !!! )~LittleQuad~ <[EMAIL PROTECTED]> wrote:i have an appointment this next week to see about getting the pump...i'm excited!! __Do You Yahoo!?Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com
Re: [QUAD-L] Baclofen pump
Sorry for the late response... I have a baclofen pump, had the surgery last year. I actually got it for pain relief, to see if it would help my severe nerve pain and so that I would not have to take oral baclofen since I have burning pain in my abdomen and always suspected oral baclofen could be the cause or part of the cause. I have a local anesthetic, bupivacaine, also in the pump with the baclofen to try and get pain relief, but I'm almost at the maximum dosage and it has not helped at all.So far I don't regret getting the pump, especially if I eventually get pain relief from some medication in it. It has been good for my spasms as well. The surgery itself went well, but I ended up getting spinal meningitis from the surgery three weeks later and ended up in the hospital for three days and on a pic line IV for three weeks at home afterwards. Everything has went smoothly since then, except for not getting pain relief like I had hoped. If you have any other questions, feel free to ask. Corie - Original Message - From: ~LittleQuad~ To: Quad-list post Sent: Sunday, May 28, 2006 3:25 PM Subject: [QUAD-L] Baclofen pump How many of you have a baclofen pump? do you like it? regret it? experiences please... thanks, lq
[QUAD-L] Baclofen pump
How many of you have a baclofen pump? do you like it? regret it? experiences please... thanks, lq
