Re: [QUAD-L] Hypothermia, Preasure Sores, Skin Flaps, Losing your s/o
I stay hot all the time. I have a floor fan blowing across me, and will open the window a little if it's cool outside. When I start to run a fever, I do get the shakes and feel cold, but that's the only time I feel cold. With Love, CtrlAltDel aka Dave C4/5 Complete - 32 Years Post Texas, USA --- On Thu, 3/19/09, t crook wrote: From: t crook Subject: Re: [QUAD-L] Hypothermia, Preasure Sores, Skin Flaps, Losing your s/o To: quad-list@eskimo.com Date: Thursday, March 19, 2009, 9:39 AM I go from one extreme to the other with my body temp; but generally I am freezing, unless I am in the heat too long and then it takes me forever to cool off. I had a full muscle flap in'01 on my right ischium that was a result from the wound getting osteomyelitis (that nearly frickin' killed me). I spent a month in the hospital and 5 weeks off of my bottom at home; gradually getting up in my chair for short duration's until my skin could handle 8 to 10 hrs. Now these days to make sure I maintain good skin integrity, my nurse checks my skin every 6 to 7 hours (just during the day) and applies a thin layer of bag balm on the bum, then I am good to go for another 6 to 7 or even 10 to 12 hrs. if I had to. I sleep in a water-bed, and have for 20 yrs. and it has worked great, plus it is warm and toasty! Ruth I am sorry to hear of you losing spouse and the life you had; peer groups may be of some help (a place to vent), when things are bad I look around and see that it could be worse. If I can't bring myself up I ask the Lord for some help! ~peace~ Tim c5-c6, 20 yrs. post www.geocities.com/onemofortom WhoopieKat.com --- On Thu, 3/19/09, Wendy Sell wrote: From: Wendy Sell Subject: Re: [QUAD-L] Hypothermia, Preasure Sores, Skin Flaps, Losing your s/o To: quad-list@eskimo.com Date: Thursday, March 19, 2009, 4:30 AM my name is wendy and i have a hospitol bed, but i use a camping mattress. the air-filled kind. i stay in bed all winter. so far, knock wood, no sores. they really work for me. and they are cheap too.been using them for about 4 years now. - Original Message - From: ANTHONY and RUTH To: quad-list@eskimo.com Sent: Wednesday, March 18, 2009 2:58 AM Subject: [QUAD-L] Hypothermia, Preasure Sores, Skin Flaps, Losing your s/o I'm a C 4-6 quad, auto accident 30 yrs ago, female. My normal temp. all year long is 96-97 degrees. Below 96 I'm physically cold, when my temp is 99 or higher I'm too hot. I drink very weak hot decaf tea all year long [my nephrologist calls it colored water]. I am usually cold, but this last winter I just slept with a very light blanket. I wear shorts all year long to make getting dressed and undressed easier on my helpers. I wear long socks, leg warmers and a blanket on my lower half and a coat, shawl like scarf over and around my head, I make sure my ears, nose and mouth is covered when I go out in the cold. I do have issues when it gets hot. I only drink hot tea indoors. [I'm a sun person], I use a cold wet towel around the back of my neck, I constantly keep wiping my face with a cold cloth, when possible I ask whom ever is around to use a spray bottle to mist me down and I drink cold Propel water. I don't drink plain water, my Dr. has me drink Propel to help me keep from getting dehydrated and it helps keep me from getting light headed and too low blood pressure [I run low normally anyway]. I've been a quad since 10/27/1978, I was in the hospital for 3 months got sores on both on my heels, tailbone and both shoulder blades. I then went into rehab for 3 months, the sores got healed within 1/2 of the time there [hubbard tank w/ betadine added]. My 2nd sore I got was in 1983 at my tailbone [not caused by sitting], it required surgery [skin-flap no. 1] 2 weeks in hosp. back up in w/c 16-18 hrs. a day. In 2000 I got 2 p/s one under each butt check at the underwear line, the one on right side healed; the left had to be operated on [May 2001 skin-flap no. 2] 2 weeks in hosp. and I was gradually aloud up in w/c 6-10 hrs. a day [I'd push it a couple of extra hrs. on special occasions]. 2003 p/s on tailbone wound care Dr. said he could get me healed no surgery, unless the tailbone has gotten infected. MRI done [May 2003 skin-flap no. 3], but this time they removed my coccyx [tailbone] and sacrum [bone above tailbone] had to be removed, was given 2 units of blood, in the hosp. 17 days and in nursing home for 18 days. I was aloud up in w/c gradually up 20 mins a day to no longer than 8 hrs. [on special occasions maybe 1-2 hrs. longer]. 2008 I got a p/s under left butt check [again] went to wound care center from Feb. to Sept.. On Sept. 24th I had surgery [skin-flap no. 4] I was in the hosp. 5 days allowed to come home, stay in bed, get turned frequeintly [yawl right] I've been given permission to get up in my w/c 3 t
Re: [QUAD-L] Hypothermia, Preasure Sores, Skin Flaps, Losing your s/o
I go from one extreme to the other with my body temp; but generally I am freezing, unless I am in the heat too long and then it takes me forever to cool off. I had a full muscle flap in'01 on my right ischium that was a result from the wound getting osteomyelitis (that nearly frickin' killed me). I spent a month in the hospital and 5 weeks off of my bottom at home; gradually getting up in my chair for short duration's until my skin could handle 8 to 10 hrs. Now these days to make sure I maintain good skin integrity, my nurse checks my skin every 6 to 7 hours (just during the day) and applies a thin layer of bag balm on the bum, then I am good to go for another 6 to 7 or even 10 to 12 hrs. if I had to. I sleep in a water-bed, and have for 20 yrs. and it has worked great, plus it is warm and toasty! Ruth I am sorry to hear of you losing spouse and the life you had; peer groups may be of some help (a place to vent), when things are bad I look around and see that it could be worse. If I can't bring myself up I ask the Lord for some help! ~peace~ Tim c5-c6, 20 yrs. post www.geocities.com/onemofortom WhoopieKat.com --- On Thu, 3/19/09, Wendy Sell wrote: From: Wendy Sell Subject: Re: [QUAD-L] Hypothermia, Preasure Sores, Skin Flaps, Losing your s/o To: quad-list@eskimo.com Date: Thursday, March 19, 2009, 4:30 AM my name is wendy and i have a hospitol bed, but i use a camping mattress. the air-filled kind. i stay in bed all winter. so far, knock wood, no sores. they really work for me. and they are cheap too.been using them for about 4 years now. - Original Message - From: ANTHONY and RUTH To: quad-list@eskimo.com Sent: Wednesday, March 18, 2009 2:58 AM Subject: [QUAD-L] Hypothermia, Preasure Sores, Skin Flaps, Losing your s/o I'm a C 4-6 quad, auto accident 30 yrs ago, female. My normal temp. all year long is 96-97 degrees. Below 96 I'm physically cold, when my temp is 99 or higher I'm too hot. I drink very weak hot decaf tea all year long [my nephrologist calls it colored water]. I am usually cold, but this last winter I just slept with a very light blanket. I wear shorts all year long to make getting dressed and undressed easier on my helpers. I wear long socks, leg warmers and a blanket on my lower half and a coat, shawl like scarf over and around my head, I make sure my ears, nose and mouth is covered when I go out in the cold. I do have issues when it gets hot. I only drink hot tea indoors. [I'm a sun person], I use a cold wet towel around the back of my neck, I constantly keep wiping my face with a cold cloth, when possible I ask whom ever is around to use a spray bottle to mist me down and I drink cold Propel water. I don't drink plain water, my Dr. has me drink Propel to help me keep from getting dehydrated and it helps keep me from getting light headed and too low blood pressure [I run low normally anyway]. I've been a quad since 10/27/1978, I was in the hospital for 3 months got sores on both on my heels, tailbone and both shoulder blades. I then went into rehab for 3 months, the sores got healed within 1/2 of the time there [hubbard tank w/ betadine added]. My 2nd sore I got was in 1983 at my tailbone [not caused by sitting], it required surgery [skin-flap no. 1] 2 weeks in hosp. back up in w/c 16-18 hrs. a day. In 2000 I got 2 p/s one under each butt check at the underwear line, the one on right side healed; the left had to be operated on [May 2001 skin-flap no. 2] 2 weeks in hosp. and I was gradually aloud up in w/c 6-10 hrs. a day [I'd push it a couple of extra hrs. on special occasions]. 2003 p/s on tailbone wound care Dr. said he could get me healed no surgery, unless the tailbone has gotten infected. MRI done [May 2003 skin-flap no. 3], but this time they removed my coccyx [tailbone] and sacrum [bone above tailbone] had to be removed, was given 2 units of blood, in the hosp. 17 days and in nursing home for 18 days. I was aloud up in w/c gradually up 20 mins a day to no longer than 8 hrs. [on special occasions maybe 1-2 hrs. longer]. 2008 I got a p/s under left butt check [again] went to wound care center from Feb. to Sept.. On Sept. 24th I had surgery [skin-flap no. 4] I was in the hosp. 5 days allowed to come home, stay in bed, get turned frequeintly [yawl right] I've been given permission to get up in my w/c 3 times a day for 1 hr. at a time [you bet ya]. I couldn't get turned as often as I should of and there wasn't anybody around to get me in and out of bed and w/c, so... I got a p/s on my right butt check close to the tailbone was, plus a small spot close to the groin area [the opening the size of a q-tip top, but it's 4cm deep]. I haven't been up in my w/c except maybe once every 10-14 days for abt. an hour since I've been home. Well to cut this a little shorter, skin-flap no. 5 and 6 is
Re: [QUAD-L] Hypothermia, Preasure Sores, Skin Flaps, Losing your s/o
my name is wendy and i have a hospitol bed, but i use a camping mattress. the air-filled kind. i stay in bed all winter. so far, knock wood, no sores. they really work for me. and they are cheap too.been using them for about 4 years now. - Original Message - From: ANTHONY and RUTH To: quad-list@eskimo.com Sent: Wednesday, March 18, 2009 2:58 AM Subject: [QUAD-L] Hypothermia, Preasure Sores, Skin Flaps, Losing your s/o I'm a C 4-6 quad, auto accident 30 yrs ago, female. My normal temp. all year long is 96-97 degrees. Below 96 I'm physically cold, when my temp is 99 or higher I'm too hot. I drink very weak hot decaf tea all year long [my nephrologist calls it colored water]. I am usually cold, but this last winter I just slept with a very light blanket. I wear shorts all year long to make getting dressed and undressed easier on my helpers. I wear long socks, leg warmers and a blanket on my lower half and a coat, shawl like scarf over and around my head, I make sure my ears, nose and mouth is covered when I go out in the cold. I do have issues when it gets hot. I only drink hot tea indoors. [I'm a sun person], I use a cold wet towel around the back of my neck, I constantly keep wiping my face with a cold cloth, when possible I ask whom ever is around to use a spray bottle to mist me down and I drink cold Propel water. I don't drink plain water, my Dr. has me drink Propel to help me keep from getting dehydrated and it helps keep me from getting light headed and too low blood pressure [I run low normally anyway]. I've been a quad since 10/27/1978, I was in the hospital for 3 months got sores on both on my heels, tailbone and both shoulder blades. I then went into rehab for 3 months, the sores got healed within 1/2 of the time there [hubbard tank w/ betadine added]. My 2nd sore I got was in 1983 at my tailbone [not caused by sitting], it required surgery [skin-flap no. 1] 2 weeks in hosp. back up in w/c 16-18 hrs. a day. In 2000 I got 2 p/s one under each butt check at the underwear line, the one on right side healed; the left had to be operated on [May 2001 skin-flap no. 2] 2 weeks in hosp. and I was gradually aloud up in w/c 6-10 hrs. a day [I'd push it a couple of extra hrs. on special occasions]. 2003 p/s on tailbone wound care Dr. said he could get me healed no surgery, unless the tailbone has gotten infected. MRI done [May 2003 skin-flap no. 3], but this time they removed my coccyx [tailbone] and sacrum [bone above tailbone] had to be removed, was given 2 units of blood, in the hosp. 17 days and in nursing home for 18 days. I was aloud up in w/c gradually up 20 mins a day to no longer than 8 hrs. [on special occasions maybe 1-2 hrs. longer]. 2008 I got a p/s under left butt check [again] went to wound care center from Feb. to Sept.. On Sept. 24th I had surgery [skin-flap no. 4] I was in the hosp. 5 days allowed to come home, stay in bed, get turned frequeintly [yawl right] I've been given permission to get up in my w/c 3 times a day for 1 hr. at a time [you bet ya]. I couldn't get turned as often as I should of and there wasn't anybody around to get me in and out of bed and w/c, so... I got a p/s on my right butt check close to the tailbone was, plus a small spot close to the groin area [the opening the size of a q-tip top, but it's 4cm deep]. I haven't been up in my w/c except maybe once every 10-14 days for abt. an hour since I've been home. Well to cut this a little shorter, skin-flap no. 5 and 6 is Mar. 25th. I'm not happy, I'm scared, I'm afraid I'm not going to make it and if I do they want to put me in a nursing home indifinently. I lost the love of my life Dec. 30, 2007. His name is Anthony. We were together for almost 20 yrs. He took great care of me. He always told me that nobody could ever take care of me as good as he did. He was so right. I lost my best friend, lover and caregiver... my life. We have 3 grandkids [he had a daughter 10 yrs. before we got together] and his daughter won't let them be in contact with me because she never liked me and I wasn't a woman to take care of him, he did everything for me. I tried. I keep getting told that I handle everything going on in my life very well. I feel like I'm about to explode. I hope it's not on anybody I love or care about or somebody I depend on whether I care about them or not. How do you all deal with the crap thrown at you? Ruth C 4-6 quad since 1978 [MO]
[QUAD-L] Hypothermia, Preasure Sores, Skin Flaps, Losing your s/o
I'm a C 4-6 quad, auto accident 30 yrs ago, female. My normal temp. all year long is 96-97 degrees. Below 96 I'm physically cold, when my temp is 99 or higher I'm too hot. I drink very weak hot decaf tea all year long [my nephrologist calls it colored water]. I am usually cold, but this last winter I just slept with a very light blanket. I wear shorts all year long to make getting dressed and undressed easier on my helpers. I wear long socks, leg warmers and a blanket on my lower half and a coat, shawl like scarf over and around my head, I make sure my ears, nose and mouth is covered when I go out in the cold. I do have issues when it gets hot. I only drink hot tea indoors. [I'm a sun person], I use a cold wet towel around the back of my neck, I constantly keep wiping my face with a cold cloth, when possible I ask whom ever is around to use a spray bottle to mist me down and I drink cold Propel water. I don't drink plain water, my Dr. has me drink Propel to help me keep from getting dehydrated and it helps keep me from getting light headed and too low blood pressure [I run low normally anyway]. I've been a quad since 10/27/1978, I was in the hospital for 3 months got sores on both on my heels, tailbone and both shoulder blades. I then went into rehab for 3 months, the sores got healed within 1/2 of the time there [hubbard tank w/ betadine added]. My 2nd sore I got was in 1983 at my tailbone [not caused by sitting], it required surgery [skin-flap no. 1] 2 weeks in hosp. back up in w/c 16-18 hrs. a day. In 2000 I got 2 p/s one under each butt check at the underwear line, the one on right side healed; the left had to be operated on [May 2001 skin-flap no. 2] 2 weeks in hosp. and I was gradually aloud up in w/c 6-10 hrs. a day [I'd push it a couple of extra hrs. on special occasions]. 2003 p/s on tailbone wound care Dr. said he could get me healed no surgery, unless the tailbone has gotten infected. MRI done [May 2003 skin-flap no. 3], but this time they removed my coccyx [tailbone] and sacrum [bone above tailbone] had to be removed, was given 2 units of blood, in the hosp. 17 days and in nursing home for 18 days. I was aloud up in w/c gradually up 20 mins a day to no longer than 8 hrs. [on special occasions maybe 1-2 hrs. longer]. 2008 I got a p/s under left butt check [again] went to wound care center from Feb. to Sept.. On Sept. 24th I had surgery [skin-flap no. 4] I was in the hosp. 5 days allowed to come home, stay in bed, get turned frequeintly [yawl right] I've been given permission to get up in my w/c 3 times a day for 1 hr. at a time [you bet ya]. I couldn't get turned as often as I should of and there wasn't anybody around to get me in and out of bed and w/c, so... I got a p/s on my right butt check close to the tailbone was, plus a small spot close to the groin area [the opening the size of a q-tip top, but it's 4cm deep]. I haven't been up in my w/c except maybe once every 10-14 days for abt. an hour since I've been home. Well to cut this a little shorter, skin-flap no. 5 and 6 is Mar. 25th. I'm not happy, I'm scared, I'm afraid I'm not going to make it and if I do they want to put me in a nursing home indifinently. I lost the love of my life Dec. 30, 2007. His name is Anthony. We were together for almost 20 yrs. He took great care of me. He always told me that nobody could ever take care of me as good as he did. He was so right. I lost my best friend, lover and caregiver... my life. We have 3 grandkids [he had a daughter 10 yrs. before we got together] and his daughter won't let them be in contact with me because she never liked me and I wasn't a woman to take care of him, he did everything for me. I tried. I keep getting told that I handle everything going on in my life very well. I feel like I'm about to explode. I hope it's not on anybody I love or care about or somebody I depend on whether I care about them or not. How do you all deal with the crap thrown at you? Ruth C 4-6 quad since 1978 [MO]
