Re: [QUAD-L] I Wonder Why-starts in the ER
Brien, you are so right. I would be so happy to have back even a little of what I lost. Little things to maybe everyone else but major things to me, like moving my head, moving my lips, etc. I'd be happy to start here. I'd be ecstatic! Sandy
Re: [QUAD-L] I Wonder Why-starts in the ER
Walking again, I would be happy just to have the bowel, bladder and sexual function and the possibility of being able to move my legs, have proprioception and have control and function of some of my core trunk muscles. Brien On Jul 17, 2006, at 4:25 PM, gina wrote:My opinion might not count for much. I feel I'm a pretty positive person and I don't want to pop anyones bubble, but with all the red tape that it takes or is going to take for the US to let stem cells no matter how they get them to operate on us...I do hope they do, but unless you are newly hurt I'm not sure its going to be worth the extensive therapy one would have to endure to walk again, only for the fact Ive heard that astronauts have to have alot of therapy depending on the length of time they spend in space like I think it was for 6 mos in space they had to have 2 yrs of therapy, because like us they arent using their legs, Ive been paralyzed for almost 7yrs and as Mark said " i have more important thing to focus on" I have a 16 yr old to raise and her future and to be there however I can for my family. I do hope one day they find a cure, I'm not saying that, but there is life after the chair or in the chair. However that is said..And I'm happy for I went from a nusing home to my own apartment to getting my daughter back things can be good. As was said try to be positive... negativity doesnt get you very far.. Don't think of the cup Half full or Half empty be thankful you have a cup. Gina[EMAIL PROTECTED] wrote: Someone (stranger) at my accident scene said, "Well, you're sure screwed now buddy." I had no idea what he was talking about. My brother broke his neck ten years earlier, and was not paralyzed (happens about 5% of the time) - so I knew what was in store for me. My doc - same doc as my brother - said, "No, yours is different." I thought, OK I can do 'different.' Well, this is different ok. He got pissed at people telling him how lucky he was as he lay on a Stryker frame for 6 weeks growing bones. Now he pretty much agrees with that comment. I also realize how lucky I am as a partially paralyzed C3 - this list has taught me a few things about paralysis. I had a lot of false-positive things said to me but about 2 months in to my rehab, they sent in Dr. Hatchet who informed me they were going to give up on my walking skills and concentrate on getting me functional in a chrome Cadillac. Ugly but necessary - tough love I guess you call it. Nat many people in the know spent a lot of time telling me I'd be walking again. I'm sure WE will find a procedure to alleviate the current pathetic attempts at repairing nerve damage, however I don't think we'll see a major breakthrough in the next 10 years. 15 or 20 maybe - there's a lot of politicking that needs doing 1st. My hope rides with a foreign country that doesn't have the political stem cell barriers to break that WE do here. You can bet that when that happens, WE will be first to help ride the wave, loudly beating our drums, and wherever I am, I'll have a BIG smile. Dave In a message dated 7/17/2006 2:18:41 P.M. US Mountain Standard Time, [EMAIL PROTECTED] writes: Have you noticed that since day one, in the ER, those around you try to be very positive regarding your injury and one's future. Doctors rarely say anything and work behind the scenes surfacing every once in awhile to let you know that THEY are still alive and breathing. From the ER to CCU to ICU to resident recovery those working with you are so positive always stopping short that you will be walking out of THEIR hospital and may have little need for Rehab. Always Positive. When you are ready to be discharged from the hospital and ready for Rehab, they tell you to be posit vie and do the best you can. Be positive. Always be Positive. Then you get to rehab and meet several others who are just like you... or it looks that way. The rehab hospitals always seem to have those cheerleader OT and PTs that try to make the most out of any success you produce and they tell you to be positive. After 3 months of rehab you are toss'd to the curb and often ordered to perform outpatient therapy and remain positive. Then comes along Superman and tells you to be positive. After hearing all of this for so long, one actually starts to believe it. Waiting for the Cure which seems just out of reach. Oh, and remain positive. We still have so much to learn, and learn and learn, while the masses keep pushing and trying to remain positive. I honestly believe that it will happen in the next 20 years, but then again, I'm positive. Good results can not be announced to the masses until successes happen more than once, or twice. But it will happen in your lifetime. Simple repairs in the beginning and more complex repairs as we learn. There was a time in medicine that a new born baby weighing less than 7 lbs had little change for survival. Today, there are babies being born
Re: [QUAD-L] I Wonder Why-starts in the ER
good for you, sandy. everyone needs hope. everyone has some type of problem and hopee is a wonderful thing. alan - Original Message - From: [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Tuesday, July 18, 2006 12:09 PM Subject: Re: [QUAD-L] I Wonder Why-starts in the ER Ditto for ALS. But for ALS there is ABSOLUTELY NO treatment or medication. I am paralyzed up to my eyeballs and it never stops. But do I love life? Yep! I have an 11 year old son I absolutely love, I'm here for him. And when stem cells start to replace neurons, I'll be there even if rehab takes "forever". Sandy
Re: [QUAD-L] I Wonder Why-starts in the ER
Ditto for ALS. But for ALS there is ABSOLUTELY NO treatment or medication. I am paralyzed up to my eyeballs and it never stops. But do I love life? Yep! I have an 11 year old son I absolutely love, I'm here for him. And when stem cells start to replace neurons, I'll be there even if rehab takes "forever". Sandy
Re: [QUAD-L] I Wonder Why-starts in the ER
I've never been the type to win anything. If I broke ewven at poker I was doing good. When I was told how screwed I was, even with brain damage, I knew the spinal injury was worse. I sure never dreamed I'd live this long. I'n rehab I was soo jealous of the paras. I mean, they have hands. I had been a mechanic with wood working skills. Blind guys would tell us how screwed we were and they got bigger checks from SSDI. Now I watch a film of experiments that have been repeated successfully on rats. Rats walk again! Yet someone stands in the way of medical progress on a device he calls a moral issue. I know this is a device because this is a man with no "morals". I would toss away every moral arguement I've ever heard or read if the only promise stem cell therapy made was that I'd move my pinky finger, much less walk.If I convince one person to change their vote this fall to help a politician that feels morals aren't something bought and sold in backroom deals with fundamentalist christians that hate people for who they love. If one less dryied out putrified, braindead, inbred piece of filth fails to get into office because I worked against them...I'll almost feel like I can move my pinky. john In a message dated 7/17/2006 5:41:00 PM Eastern Daylight Time, [EMAIL PROTECTED] writes: Someone (stranger) at my accident scene said, "Well, you're sure screwed now buddy." I had no idea what he was talking about. My brother broke his neck ten years earlier, and was not paralyzed (happens about 5% of the time) - so I knew what was in store for me. My doc - same doc as my brother - said, "No, yours is different." I thought, OK I can do 'different.' Well, this is different ok. He got pissed at people telling him how lucky he was as he lay on a Stryker frame for 6 weeks growing bones. Now he pretty much agrees with that comment. I also realize how lucky I am as a partially paralyzed C3 - this list has taught me a few things about paralysis. I had a lot of false-positive things said to me but about 2 months in to my rehab, they sent in Dr. Hatchet who informed me they were going to give up on my walking skills and concentrate on getting me functional in a chrome Cadillac. Ugly but necessary - tough love I guess you call it. Nat many people in the know spent a lot of time telling me I'd be walking again. I'm sure WE will find a procedure to alleviate the current pathetic attempts at repairing nerve damage, however I don't think we'll see a major breakthrough in the next 10 years. 15 or 20 maybe - there's a lot of politicking that needs doing 1st. My hope rides with a foreign country that doesn't have the political stem cell barriers to break that WE do here. You can bet that when that happens, WE will be first to help ride the wave, loudly beating our drums, and wherever I am, I'll have a BIG smile. Dave In a message dated 7/17/2006 2:18:41 P.M. US Mountain Standard Time, [EMAIL PROTECTED] writes: Have you noticed that since day one, in the ER, those around you try to be very positive regarding your injury and one's future. Doctors rarely say anything and work behind the scenes surfacing every once in awhile to let you know that THEY are still alive and breathing. From the ER to CCU to ICU to resident recovery those working with you are so positive always stopping short that you will be walking out of THEIR hospital and may have little need for Rehab. Always Positive. When you are ready to be discharged from the hospital and ready for Rehab, they tell you to be posit vie and do the best you can. Be positive. Always be Positive. Then you get to rehab and meet several others who are just like you... or it looks that way. The rehab hospitals always seem to have those cheerleader OT and PTs that try to make the most out of any success you produce and they tell you to be positive. After 3 months of rehab you are toss'd to the curb and often ordered to perform outpatient therapy and remain positive. Then comes along Superman and tells you to be positive. After hearing all of this for so long, one actually starts to believe it. Waiting for the Cure which seems just out of reach. Oh, and remain positive. We still have so much to learn, and learn and learn, while the masses keep pushing and trying to remain positive. I honestly believe that it will happen in the next 20 years, but then again, I'm positive. Good results can not be announced to the masses until successes happen more than once, or twice. But it will happen in your lifetime. Simple repairs in the beginning and more complex repairs as we learn. There was a time in medicine that a new born baby weighing less than 7 lbs had little change for survival. Today, there are babies being born prematurely at less than One Pound that have survived and grown up to be normal healthy humans. Let's continue to be positive and support those with the responsibility to research and provide positive results. Best Wishes W
[QUAD-L] I Wonder Why-starts in the ER
In a message dated 7/17/2006 6:26:02 PM Central Daylight Time, [EMAIL PROTECTED] writes: Don't think of the cup Half full or Half empty be thankful you have a cup. Gina Atta Girl, Gina! You get the drift of the posting. First rule in running a race. Never, but never look back until you pass the finish line. Best Wishes W
Re: [QUAD-L] I Wonder Why-starts in the ER
In a message dated 7/17/2006 6:41:09 PM Central Daylight Time, [EMAIL PROTECTED] writes: MS has been around since the 1400's. They still don't know what causes it, how to fix it, how to prevent getting it. MS, also known as the domesday syndrome. The defense system senses an enemy invader and starts destroying something which is not really there. In the course of trying to destroy the enemy, it reduces the mylin coating of the neuro system that covers the nerves. ABC drugs have slowed that process. 4AP improves the system. Botox and Bee Venom have shown some success. Granted, we have much to learn thru research... and money. W
Re: [QUAD-L] I Wonder Why-starts in the ER
Hey at least with most SCI's you know what happened, the cause of not being able to move. MS has been around since the 1400's. They still don't know what causes it, how to fix it, how to prevent getting it. It would be great to be able to move again but I am not counting on it for me. KK
Re: [QUAD-L] I Wonder Why-starts in the ER
My opinion might not count for much. I feel I'm a pretty positive person and I don't want to pop anyones bubble, but with all the red tape that it takes or is going to take for the US to let stem cells no matter how they get them to operate on us...I do hope they do, but unless you are newly hurt I'm not sure its going to be worth the extensive therapy one would have to endure to walk again, only for the fact Ive heard that astronauts have to have alot of therapy depending on the length of time they spend in space like I think it was for 6 mos in space they had to have 2 yrs of therapy, because like us they arent using their legs, Ive been paralyzed for almost 7yrs and as Mark said " i have more important thing to focus on" I have a 16 yr old to raise and her future and to be there however I can for my family. I do hope one day they find a cure, I'm not saying that, but there is life after the chair or in the chair. However that is said..And I'm happy for I went from a nusing home to my own apartment to getting my daughter back things can be good. As was said try to be positive... negativity doesnt get you very far.. Don't think of the cup Half full or Half empty be thankful you have a cup. Gina[EMAIL PROTECTED] wrote: Someone (stranger) at my accident scene said, "Well, you're sure screwed now buddy." I had no idea what he was talking about. My brother broke his neck ten years earlier, and was not paralyzed (happens about 5% of the time) - so I knew what was in store for me. My doc - same doc as my brother - said, "No, yours is different." I thought, OK I can do 'different.' Well, this is different ok. He got pissed at people telling him how lucky he was as he lay on a Stryker frame for 6 weeks growing bones. Now he pretty much agrees with that comment. I also realize how lucky I am as a partially paralyzed C3 - this list has taught me a few things about paralysis. I had a lot of false-positive things said to me but about 2 months in to my rehab, they sent in Dr. Hatchet who informed me they were going to give up on my walking skills and concentrate on getting me functional in a chrome Cadillac. Ugly but necessary - tough love I guess you call it. Nat many people in the know spent a lot of time telling me I'd be walking again. I'm sure WE will find a procedure to alleviate the current pathetic attempts at repairing nerve damage, however I don't think we'll see a major breakthrough in the next 10 years. 15 or 20 maybe - there's a lot of politicking that needs doing 1st. My hope rides with a foreign country that doesn't have the political stem cell barriers to break that WE do here. You can bet that when that happens, WE will be first to help ride the wave, loudly beating our drums, and wherever I am, I'll have a BIG smile. Dave In a message dated 7/17/2006 2:18:41 P.M. US Mountain Standard Time, [EMAIL PROTECTED] writes: Have you noticed that since day one, in the ER, those around you try to be very positive regarding your injury and one's future. Doctors rarely say anything and work behind the scenes surfacing every once in awhile to let you know that THEY are still alive and breathing. From the ER to CCU to ICU to resident recovery those working with you are so positive always stopping short that you will be walking out of THEIR hospital and may have little need for Rehab. Always Positive. When you are ready to be discharged from the hospital and ready for Rehab, they tell you to be posit vie and do the best you can. Be positive. Always be Positive. Then you get to rehab and meet several others who are just like you... or it looks that way. The rehab hospitals always seem to have those cheerleader OT and PTs that try to make the most out of any success you produce and they tell you to be positive. After 3 months of rehab you are toss'd to the curb and often ordered to perform outpatient therapy and remain positive. Then comes along Superman and tells you to be positive. After hearing all of this for so long, one actually starts to believe it. Waiting for the Cure which seems just out of reach. Oh, and remain positive. We still have so much to learn, and learn and learn, while the masses keep pushing and trying to remain positive. I honestly believe that it will happen in the next 20 years, but then again, I'm positive. Good results can not be announced to the masses until successes happen more than once, or twice. But it will happen in your lifetime. Simple repairs in the beginning and more complex repairs as we learn. There was a time in medicine that a new born baby weighing less than 7 lbs had little change for survival. Today, there are babies being born prematurely at less than One Pound that have survived and grown up to be normal healthy humans. Let's continue to be positive and support those with the responsibility to research and provide positive results. Best Wishes W n a message dated 7/17
Re: [QUAD-L] I Wonder Why-starts in the ER
In a message dated 7/17/2006 4:41:00 PM Central Daylight Time, [EMAIL PROTECTED] writes: My hope rides with a foreign country that doesn't have the political stem cell barriers to break that WE do here. You can bet that when that happens, WE will be first to help ride the wave, loudly beating our drums, and wherever I am, I'll have a BIG smile. Another good positive . and practical note. Never change that attitude and you may be the first one in lines. Best Wishes W
Re: [QUAD-L] I Wonder Why-starts in the ER
Someone (stranger) at my accident scene said, "Well, you're sure screwed now buddy." I had no idea what he was talking about. My brother broke his neck ten years earlier, and was not paralyzed (happens about 5% of the time) - so I knew what was in store for me. My doc - same doc as my brother - said, "No, yours is different." I thought, OK I can do 'different.' Well, this is different ok. He got pissed at people telling him how lucky he was as he lay on a Stryker frame for 6 weeks growing bones. Now he pretty much agrees with that comment. I also realize how lucky I am as a partially paralyzed C3 - this list has taught me a few things about paralysis. I had a lot of false-positive things said to me but about 2 months in to my rehab, they sent in Dr. Hatchet who informed me they were going to give up on my walking skills and concentrate on getting me functional in a chrome Cadillac. Ugly but necessary - tough love I guess you call it. Nat many people in the know spent a lot of time telling me I'd be walking again. I'm sure WE will find a procedure to alleviate the current pathetic attempts at repairing nerve damage, however I don't think we'll see a major breakthrough in the next 10 years. 15 or 20 maybe - there's a lot of politicking that needs doing 1st. My hope rides with a foreign country that doesn't have the political stem cell barriers to break that WE do here. You can bet that when that happens, WE will be first to help ride the wave, loudly beating our drums, and wherever I am, I'll have a BIG smile. Dave In a message dated 7/17/2006 2:18:41 P.M. US Mountain Standard Time, [EMAIL PROTECTED] writes: Have you noticed that since day one, in the ER, those around you try to be very positive regarding your injury and one's future. Doctors rarely say anything and work behind the scenes surfacing every once in awhile to let you know that THEY are still alive and breathing. From the ER to CCU to ICU to resident recovery those working with you are so positive always stopping short that you will be walking out of THEIR hospital and may have little need for Rehab. Always Positive. When you are ready to be discharged from the hospital and ready for Rehab, they tell you to be posit vie and do the best you can. Be positive. Always be Positive. Then you get to rehab and meet several others who are just like you... or it looks that way. The rehab hospitals always seem to have those cheerleader OT and PTs that try to make the most out of any success you produce and they tell you to be positive. After 3 months of rehab you are toss'd to the curb and often ordered to perform outpatient therapy and remain positive. Then comes along Superman and tells you to be positive. After hearing all of this for so long, one actually starts to believe it. Waiting for the Cure which seems just out of reach. Oh, and remain positive. We still have so much to learn, and learn and learn, while the masses keep pushing and trying to remain positive. I honestly believe that it will happen in the next 20 years, but then again, I'm positive. Good results can not be announced to the masses until successes happen more than once, or twice. But it will happen in your lifetime. Simple repairs in the beginning and more complex repairs as we learn. There was a time in medicine that a new born baby weighing less than 7 lbs had little change for survival. Today, there are babies being born prematurely at less than One Pound that have survived and grown up to be normal healthy humans. Let's continue to be positive and support those with the responsibility to research and provide positive results. Best Wishes W n a message dated 7/17/2006 3:58:00 PM Central Daylight Time, [EMAIL PROTECTED] writes: First off I'm not asking anyone to give up hope and I hope it happens asap so then maybe I have a chance, I'm 41 this month not really old but not in my 20's either, hell I wish! I hope it happens for you and don't misunderstand me if the cure came fast enough I'd get in line right behind you but I have other more important things to focus on like my children and their future as long as I'm successful at that then my life's complete. Mark Dave www.daveoconnell.com c3-inc-1967
Re: [QUAD-L] I Wonder Why-starts in the ER
In a message dated 7/17/2006 4:27:17 PM Central Daylight Time, [EMAIL PROTECTED] writes: Well, the alternative to being positive is being a miserable, sorry, negative pessimist. Life is too short. Chose. Sandy Your words have been well chosen. You haven't missed one word that passes thru the mind of anyone injured and asking themselves the very same things. Why Me? Best Wishes and Remain Positive W
Re: [QUAD-L] I Wonder Why-starts in the ER
Well, the alternative to being positive is being a miserable, sorry, negative pessimist. Life is too short. Chose. Sandy
[QUAD-L] I Wonder Why-starts in the ER
Have you noticed that since day one, in the ER, those around you try to be very positive regarding your injury and one's future. Doctors rarely say anything and work behind the scenes surfacing every once in awhile to let you know that THEY are still alive and breathing. From the ER to CCU to ICU to resident recovery those working with you are so positive always stopping short that you will be walking out of THEIR hospital and may have little need for Rehab. Always Positive. When you are ready to be discharged from the hospital and ready for Rehab, they tell you to be positvie and do the best you can. Be positive. Always be Positive. Then you get to rehab and meet several others who are just like you... or it looks that way. The rehab hospitals always seem to have those cheerleader OT and PTs that try to make the most out of any success you produce and they tell you to be positive. After 3 months of rehab you are toss'd to the curb and often ordered to perform outpatient therapy and remain positive. Then comes along Superman and tells you to be positive. After hearing all of this for so long, one actually starts to believe it. Waiting for the Cure which seems just out of reach. Oh, and remain positive. We still have so much to learn, and learn and learn, while the masses keep pushing and trying to remain positive. I honestly believe that it will happen in the next 20 years, but then again, I'm positive. Good results can not be announced to the masses until successes happen more than once, or twice. But it will happen in your lifetime. Simple repairs in the beginning and more complex repairs as we learn. There was a time in medicine that a new born baby weighing less than 7 lbs had little change for survival. Today, there are babies being born prematurely at less than One Pound that have survived and grown up to be normal healthy humans. Let's continue to be positive and support those with the responsibility to research and provide positive results. Best Wishes W n a message dated 7/17/2006 3:58:00 PM Central Daylight Time, [EMAIL PROTECTED] writes: First off I'm not asking anyone to give up hope and I hope it happens asap so then maybe I have a chance, I'm 41 this month not really old but not in my 20's either, hell I wish! I hope it happens for you and don't misunderstand me if the cure came fast enough I'd get in line right behind you but I have other more important things to focus on like my children and their future as long as I'm successful at that then my life's complete. Mark
