Re: [QUAD-L] Quality of Life and SCI ~~ Huh?
In <[EMAIL PROTECTED]>, on 07/07/06 at 06:14 PM, [EMAIL PROTECTED] said: >On and off I participate in studies regarding my SCI. Often I'm asked > something like "...how would you rate your quality of life since your >SCI"? This question gets SO deep under my skin, I could scream. > How do you all feel about your quality of life since your injury? Thanks to the blasted central pain syndrome, I have no quality of life. Torture 24/7 is not quality. Alan -- --- Posted by alanh77[at]comcast.net using MR/2 ICE Newsreader #564 Proudly using eComstation 1.21 (OEM OS/2) BBS - The Nerve Center Telnet FidoNet 261/1000 tncbbs.no-ip.com ---
Re: [QUAD-L] Quality of Life and SCI ~~ Huh?
In some ways my quality of life is better, in other ways it has declined. For example: going from an ironman triathlete to a very quiet, patient lifestyle is much appreciated by my sig other and family/friends and me. I have slowed down and I stop and smell the roses, pardon the cliche. So, in my case, the quality of life remains the same..Excellent Enjoy Summer, Brien On Jul 7, 2006, at 3:14 PM, [EMAIL PROTECTED] wrote: Hi All, On and off I participate in studies regarding my SCI. Often I'm asked something like "...how would you rate your quality of life since your SCI"? This question gets SO deep under my skin, I could scream. How do you all feel about your quality of life since your injury? Bobbie
Re: [QUAD-L] Quality of Life and SCI ~~ Huh?
Hey Stunt, I think you can get UPS to come by and pick it up for free depending on their route. Mark ---Original Message--- From: Tim Thompson Date: 07/10/06 15:35:49 To: [EMAIL PROTECTED] Cc: quad-list@eskimo.com Subject: Re: [QUAD-L] Quality of Life and SCI ~~ Huh? I've found it to be a "mind over matter" issue. If you think about that which you can no longer do, instead of trying to find ways to do new things or just enjoy the things in life all around you, then you create your own purgitory, somewhere between life and death but not living. As long as you don't mind what you can no longer do, then it really doesn't matter. One of my biggest pet peeves is waiting on procastinating AB's who said they'd help you with something but keep "forgetting". IE I've had a DVD waiting to be sent to Amy for ~6mo. MAYBE my sister will remember to stop by before going to the Post Office a qtr mi from my place SOMEDAY... Got a list of things that keeps growing faster than getting checked off. Some been waiting 5yrs Of well.. maybe I'll develop telekenesis soon ;^P Stunt On 7/9/06, [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote: > > I have found you can't live in the past. You can't dwell on what could have > been or you will die of depression and a broken heart. In the short time I > have been part of this group, I have made some interesting observations. At > first I sat back and listened to everybody. I found all of us have strong > convictions and strong opinions and strong personalities. And I believe > that's why all of us successfully survive and LIVE with our severe > disabilities. Others simply give up and die. About the infamous "quality of > life" question everyone seems so interested in asking us, they should live > in our chair for a day, a week, a month, a year. For me the key is all > attitude and keeping busy. We must all keep fighting and searching for what > makes us satisfied and content. It's out there somewhere! > Sandy .
Re: [QUAD-L] Quality of Life and SCI ~~ Huh?
I've found it to be a "mind over matter" issue. If you think about that which you can no longer do, instead of trying to find ways to do new things or just enjoy the things in life all around you, then you create your own purgitory, somewhere between life and death but not living. As long as you don't mind what you can no longer do, then it really doesn't matter. One of my biggest pet peeves is waiting on procastinating AB's who said they'd help you with something but keep "forgetting". IE I've had a DVD waiting to be sent to Amy for ~6mo. MAYBE my sister will remember to stop by before going to the Post Office a qtr mi from my place SOMEDAY... Got a list of things that keeps growing faster than getting checked off. Some been waiting 5yrs Of well.. maybe I'll develop telekenesis soon ;^P Stunt On 7/9/06, [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote: I have found you can't live in the past. You can't dwell on what could have been or you will die of depression and a broken heart. In the short time I have been part of this group, I have made some interesting observations. At first I sat back and listened to everybody. I found all of us have strong convictions and strong opinions and strong personalities. And I believe that's why all of us successfully survive and LIVE with our severe disabilities. Others simply give up and die. About the infamous "quality of life" question everyone seems so interested in asking us, they should live in our chair for a day, a week, a month, a year. For me the key is all attitude and keeping busy. We must all keep fighting and searching for what makes us satisfied and content. It's out there somewhere! Sandy
Re: [QUAD-L] Quality of Life and SCI ~~ Huh?
My quality of life is as good as I can make it being a quad. What a ridiculous question though! Mark ---Original Message--- From: [EMAIL PROTECTED] Date: 07/07/06 17:24:48 To: quad-list@eskimo.com Subject: [QUAD-L] Quality of Life and SCI ~~ Huh? Hi All, On and off I participate in studies regarding my SCI. Often I'm asked something like "...how would you rate your quality of life since your SCI"? This question gets SO deep under my skin, I could scream. How do you all feel about your quality of life since your injury? Bobbie
Re: [QUAD-L] Quality of Life and SCI ~~ Huh?
So true Sandy. I think the secret is keeping busy, and a good attitude. I rarely think about the past. Enjoying doing everything you can in this new life, that we are newly given at the time of our injury. I enjoy having friends online and getting out as much as I can to do the things and go places I enjoy. Having contact with persons who know nothing about your disability, but may be interested being new friends. I have a lot of fun going places with my little Yorkie, it enjoyed is amazing how so many people talk to you, because they love your dog. Ha ha. It makes people of all ages and sexes feel unconscious about your physical differences..Dana. Nicely put Sandy. I ditto it! .. Tim [EMAIL PROTECTED] wrote: I have found you can't live in the past. You can't dwell on what could have been or you will die of depression and a broken heart. In the short time I have been part of this group, I have made some interesting observations. At first I sat back and listened to everybody. I found all of us have strong convictions and strong opinions and strong personalities. And I believe that's why all of us successfully survive and LIVE with our severe disabilities. Others simply give up and die. About the infamous "quality of life" question everyone seems so interested in asking us, they should live in our chair for a day, a week, a month, a year. For me the key is all attitude and keeping busy. We must all keep fighting and searching for what makes us satisfied and content. It's out there somewhere! Sandy How low will we go? Check out Yahoo! Messenger’s low PC-to-Phone call rates.
Re: [QUAD-L] Quality of Life and SCI ~~ Huh?
Nicely put Sandy. I ditto it! .. Tim [EMAIL PROTECTED] wrote: I have found you can't live in the past. You can't dwell on what could have been or you will die of depression and a broken heart. In the short time I have been part of this group, I have made some interesting observations. At first I sat back and listened to everybody. I found all of us have strong convictions and strong opinions and strong personalities. And I believe that's why all of us successfully survive and LIVE with our severe disabilities. Others simply give up and die. About the infamous "quality of life" question everyone seems so interested in asking us, they should live in our chair for a day, a week, a month, a year. For me the key is all attitude and keeping busy. We must all keep fighting and searching for what makes us satisfied and content. It's out there somewhere! Sandy How low will we go? Check out Yahoo! Messengers low PC-to-Phone call rates.
Re: [QUAD-L] Quality of Life and SCI ~~ Huh?
Great reply Sandy, you go girl Silas - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] Cc: quad-list@eskimo.com Sent: Sunday, July 09, 2006 11:52 AM Subject: Re: [QUAD-L] Quality of Life and SCI ~~ Huh? I have found you can't live in the past. You can't dwell on what could have been or you will die of depression and a broken heart. In the short time I have been part of this group, I have made some interesting observations. At first I sat back and listened to everybody. I found all of us have strong convictions and strong opinions and strong personalities. And I believe that's why all of us successfully survive and LIVE with our severe disabilities. Others simply give up and die. About the infamous "quality of life" question everyone seems so interested in asking us, they should live in our chair for a day, a week, a month, a year. For me the key is all attitude and keeping busy. We must all keep fighting and searching for what makes us satisfied and content. It's out there somewhere! Sandy
Re: [QUAD-L] Quality of Life and SCI ~~ Huh?
LOL. Funny!!! Silas - Original Message - From: "KK Batte" <[EMAIL PROTECTED]> To: <[EMAIL PROTECTED]>; Sent: Sunday, July 09, 2006 12:18 PM Subject: Re: [QUAD-L] Quality of Life and SCI ~~ Huh? This same question should be asked of everyone - injured or not. All we have is today. That's it. Make the best of the moment you have. Worrying just gives you wrinkles. Then you have to buy a cream & make someone else rich. Don't worry in the first place & keep your own pennies! KK
Re: [QUAD-L] Quality of Life and SCI ~~ Huh?
This same question should be asked of everyone - injured or not. All we have is today. That's it. Make the best of the moment you have. Worrying just gives you wrinkles. Then you have to buy a cream & make someone else rich. Don't worry in the first place & keep your own pennies! KK
Re: [QUAD-L] Quality of Life and SCI ~~ Huh?
that is by far, the dumbest question I've heard in ages. When asked a question that stupid I often reply with an answer equally as stupid. In this case, I wouldn't answer it. I'd run over their foot and while they cried I'd ask, "Did it hurt?" Before my injury I could have dope slapped them. john In a message dated 7/8/2006 5:12:42 PM Eastern Daylight Time, [EMAIL PROTECTED] writes: Hi All, On and off I participate in studies regarding my SCI. Often I'm asked something like "...how would you rate your quality of life since your SCI"? This question gets SO deep under my skin, I could scream. How do you all feel about your quality of life since your injury? Bobbie
Re: [QUAD-L] Quality of Life and SCI ~~ Huh?
I have found you can't live in the past. You can't dwell on what could have been or you will die of depression and a broken heart. In the short time I have been part of this group, I have made some interesting observations. At first I sat back and listened to everybody. I found all of us have strong convictions and strong opinions and strong personalities. And I believe that's why all of us successfully survive and LIVE with our severe disabilities. Others simply give up and die. About the infamous "quality of life" question everyone seems so interested in asking us, they should live in our chair for a day, a week, a month, a year. For me the key is all attitude and keeping busy. We must all keep fighting and searching for what makes us satisfied and content. It's out there somewhere! Sandy
RE: [QUAD-L] Quality of Life and SCI ~~ Huh?
Physically, my quality of life since my SCI is definitely worse. In all other aspects, my quality of life is decidedly better. Steve From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Friday, July 07, 2006 5:15 PMTo: quad-list@eskimo.comSubject: [QUAD-L] Quality of Life and SCI ~~ Huh? Hi All, On and off I participate in studies regarding my SCI. Often I'm asked something like "...how would you rate your quality of life since your SCI"? This question gets SO deep under my skin, I could scream. How do you all feel about your quality of life since your injury? Bobbie
Re: [QUAD-L] Quality of Life and SCI ~~ Huh?
Tough question that's for sure. Lets be realistic. Compared with before it sucks. Can you enjoy it anyway? That's up to the individual. I don't fault people for wanting to check out. Not everyone can enjoy this life. I just hope people try it for awhile before making any rash decisions. Personally, I enjoy it. I find pleasure in things I didn't before. Eric [EMAIL PROTECTED] wrote: Hi All, On and off I participate in studies regarding my SCI. Often I'm asked something like "...how would you rate your quality of life since your SCI"? This question gets SO deep under my skin, I could scream. How do you all feel about your quality of life since your injury? Bobbie
Re: [QUAD-L] Quality of Life and SCI ~~ Huh?
Glad your taking SCI in stride, being so young when you were injuryed must be hard. I was 42 when I broke my fool neck, so I had a lot that you've missed. Stay strong! Silas - Original Message - From: "Angelique Novak" <[EMAIL PROTECTED]> To: <[EMAIL PROTECTED]>; "Quad List" Sent: Saturday, July 08, 2006 10:55 AM Subject: [QUAD-L] Quality of Life and SCI ~~ Huh? I would've rather, (by far), lived the life I feel was stolen from me by a negligent man. Being a normal adolescent would've been fun, I think, and was something I wanted to experience, among the other countless things. It was very difficult adjusting to this way of life, (at times I felt I was just existing), especially when I saw people my age living their lives. After a lot of emotional anguish for many years, (occasionally I hit a patch of that, still), I've finally somewhat accepted being damned. However, I make the best out of each day. It feels better to not dwell on everything that's wrong, missed, my future, etc. That's helped. Before my nephew was born, my mindset was very stagnant. I didn't care about living, and was completely ok with the thought of my death. Even though I've lived with my parents since the injury, (I was 13), and they have every intention of keeping me, (as long as they can, I've thought about when they won't be able to, they don't discuss that, but I have to think about it), times still got rough. Especially when I was in bed for four months with two pressure sores. That was terrible for all of us. My sister and brother-in-law's son has greatly increased my interest in living, and I want to stick around so he'll know me. Also, the man who introduced me to this list means just as much to me. We probably wouldn't have "met" if not for our SCI. Well, maybe. It wouldn't have been very likely, but you never know. Without my nephew, that wonderful man, and my family, I wouldn't care if I died. I probably wouldn't try keeping myself around. I still miss the life I should've had, but it's not all I think about anymore. Maybe someday they'll figure out how to fix us. For now, I've got reasons to stay. -Angelique
Re: [QUAD-L] Quality of Life and SCI ~~ Huh?
Hi Bobbie, In every area of my life that really matters, the quality of my life is at 100%. The rest of it I'm doing the best I can with what I have to work with! With Love, CtrlAltDel aka DaveC4/5 Complete - 30 Years PostTexas, USA [EMAIL PROTECTED] wrote: Hi All, On and off I participate in studies regarding my SCI. Often I'm asked something like "...how would you rate your quality of life since your SCI"? This question gets SO deep under my skin, I could scream. How do you all feel about your quality of life since your injury? Bobbie
Re: [QUAD-L] Quality of Life and SCI ~~ Huh?
The explanation below pretty much sums it up for me as well! Angie and I were approximately the same age at the time of our injury and we both were injured by a negligent individual. Fortunately, I have never really been "down" in my 26 years of being a quad but I can attribute that to the people coming into my life and staying busy, busy, busy! Lori ---Original Message--- From: Angelique Novak Date: 7/8/2006 10:56:44 AM To: [EMAIL PROTECTED]; Quad List Subject: [QUAD-L] Quality of Life and SCI ~~ Huh? I would've rather, (by far), lived the life I feel was stolen from me by a negligent man. Being a normal adolescent would've been fun, I think, and was something I wanted to experience, among the other countless things. It was very difficult adjusting to this way of life, (at times I felt I was just existing), especially when I saw people my age living their lives. After a lot of emotional anguish for many years, (occasionally I hit a patch of that, still), I've finally somewhat accepted being damned. However, I make the best out of each day. It feels better to not dwell on everything that's wrong, missed, my future, etc. That's helped. Before my nephew was born, my mindset was very stagnant. I didn't care about living, and was completely ok with the thought of my death. Even though I've lived with my parents since the injury, (I was 13), and they have every intention of keeping me, (as long as they can, I've thought about when they won't be able to, they don't discuss that, but I have to think about it), times still got rough. Especially when I was in bed for four months with two pressure sores. That was terrible for all of us. My sister and brother-in-law's son has greatly increased my interest in living, and I want to stick around so he'll know me. Also, the man who introduced me to this list means just as much to me. We probably wouldn't have "met" if not for our SCI. Well, maybe. It wouldn't have been very likely, but you never know. Without my nephew, that wonderful man, and my family, I wouldn't care if I died. I probably wouldn't try keeping myself around. I still miss the life I should've had, but it's not all I think about anymore. Maybe someday they'll figure out how to fix us. For now, I've got reasons to stay. -Angelique
Re: [QUAD-L] Quality of Life and SCI ~~ Huh?
How do you all feel about your quality of life since your injury? In short, I would say my life is still very well worth living because of the people I love so dearly. Without them, I would be ready to check out anytime. My care is great because of some of them. I miss the same things in life as everyone else, running, swimming, dancing, etc. but if this is as good as it gets, well then I'm in it for as long as the good Lord allows! Diane
[QUAD-L] Quality of Life and SCI ~~ Huh?
I would've rather, (by far), lived the life I feel was stolen from me by a negligent man. Being a normal adolescent would've been fun, I think, and was something I wanted to experience, among the other countless things. It was very difficult adjusting to this way of life, (at times I felt I was just existing), especially when I saw people my age living their lives. After a lot of emotional anguish for many years, (occasionally I hit a patch of that, still), I've finally somewhat accepted being damned. However, I make the best out of each day. It feels better to not dwell on everything that's wrong, missed, my future, etc. That's helped. Before my nephew was born, my mindset was very stagnant. I didn't care about living, and was completely ok with the thought of my death. Even though I've lived with my parents since the injury, (I was 13), and they have every intention of keeping me, (as long as they can, I've thought about when they won't be able to, they don't discuss that, but I have to think about it), times still got rough. Especially when I was in bed for four months with two pressure sores. That was terrible for all of us. My sister and brother-in-law's son has greatly increased my interest in living, and I want to stick around so he'll know me. Also, the man who introduced me to this list means just as much to me. We probably wouldn't have "met" if not for our SCI. Well, maybe. It wouldn't have been very likely, but you never know. Without my nephew, that wonderful man, and my family, I wouldn't care if I died. I probably wouldn't try keeping myself around. I still miss the life I should've had, but it's not all I think about anymore. Maybe someday they'll figure out how to fix us. For now, I've got reasons to stay. -Angelique
Re: [QUAD-L] Quality of Life and SCI ~~ Huh?
Great Attitude, Stacy. Maybe, just maybe that is a major key to survival... W -Original Message-From: Stacy Harim <[EMAIL PROTECTED]>To: quad-list@eskimo.com; [EMAIL PROTECTED]Sent: Sat, 8 Jul 2006 08:01:28 -0400Subject: Re: [QUAD-L] Quality of Life and SCI ~~ Huh? I miss the things I used to do like snow skiing. I also live at the ocean so I miss that in a big way. I also waited tables and had time off in the winter to go skiing and visited my Mom in Florida for a month or so in the winters. Since, I haven't traveled and went 4 years without seeing her. Neither of us had the money and her health isn't that great. She's moving in with me now. Anyhow aside from that, like lil quad, I wouldn't have gotten one degree and work towards my bachelor's because I got caught up in what I was doing before. I don't regret that either though because if it wasn’t for one of my customers, I wouldn't even be alive today. No one wanted me because I didn't have insurance. I went to the two local hospitals here that couldn't figure out what was wrong with me. Philly would have taken me but the medivac wanted 5 grand up front that no one had. One of my customers overheard my co workers talking about me being in the hospital and it so happened that he lived next door to one of the heads of neurology at John's Hopkins and look at me now. 5 years later and living on my own. Aside from the sore my life is good. Pre sore, I was going to school. I've only since started driving after the sore so I don't know total freedom yet as far as driving to school and all of that but I am able to count on myself to go anywhere. The sore will heal since this one isn't the same sore but the incision opened so I have faith it will year and wont be a year long problem again (I pray). I will get back to school and finish my degree and get back to work, off of the system, get my Mom back on her feet and out on her own again and life will be great if my future goes the way I would like. Stacy - Original Message - From: [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Friday, July 07, 2006 6:14 PM Subject: [QUAD-L] Quality of Life and SCI ~~ Huh? Hi All, On and off I participate in studies regarding my SCI. Often I'm asked something like "...how would you rate your quality of life since your SCI"? This question gets SO deep under my skin, I could scream. How do you all feel about your quality of life since your injury? Bobbie Check out AOL.com today. Breaking news, video search, pictures, email and IM. All on demand. Always Free.
Re: [QUAD-L] Quality of Life and SCI ~~ Huh?
That question had to be part of the thought process of a TAB rather than a DAB, lol. Yes, it is a very complex question that doesn't consider the, moment by moment, second by second, minute by minute, hour by hour, day by day, week by week, year by year in the life of a person with a SCI. How does one measure the peaks and valleys without a digital chart graph. Kinda like whacking someone in a very sensitive part of their bodys and asking, "At what point did the pain begin and how long was it before it ended." Science questions rarely consider the emotional element of the question itself. Oh Well. W -Original Message-From: [EMAIL PROTECTED]To: quad-list@eskimo.comSent: Fri, 7 Jul 2006 18:14:52 EDTSubject: [QUAD-L] Quality of Life and SCI ~~ Huh? Hi All, On and off I participate in studies regarding my SCI. Often I'm asked something like "...how would you rate your quality of life since your SCI"? This question gets SO deep under my skin, I could scream. How do you all feel about your quality of life since your injury? Bobbie Check out AOL.com today. Breaking news, video search, pictures, email and IM. All on demand. Always Free.
Re: [QUAD-L] Quality of Life and SCI ~~ Huh?
I miss the things I used to do like snow skiing. I also live at the ocean so I miss that in a big way. I also waited tables and had time off in the winter to go skiing and visited my Mom in Florida for a month or so in the winters. Since, I haven't traveled and went 4 years without seeing her. Neither of us had the money and her health isn't that great. She's moving in with me now. Anyhow aside from that, like lil quad, I wouldn't have gotten one degree and work towards my bachelor's because I got caught up in what I was doing before. I don't regret that either though because if it wasnt for one of my customers, I wouldn't even be alive today. No one wanted me because I didn't have insurance. I went to the two local hospitals here that couldn't figure out what was wrong with me. Philly would have taken me but the medivac wanted 5 grand up front that no one had. One of my customers overheard my co workers talking about me being in the hospital and it so happened that he lived next door to one of the heads of neurology at John's Hopkins and look at me now. 5 years later and living on my own. Aside from the sore my life is good. Pre sore, I was going to school. I've only since started driving after the sore so I don't know total freedom yet as far as driving to school and all of that but I am able to count on myself to go anywhere. The sore will heal since this one isn't the same sore but the incision opened so I have faith it will year and wont be a year long problem again (I pray). I will get back to school and finish my degree and get back to work, off of the system, get my Mom back on her feet and out on her own again and life will be great if my future goes the way I would like. Stacy - Original Message - From: [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Friday, July 07, 2006 6:14 PM Subject: [QUAD-L] Quality of Life and SCI ~~ Huh? Hi All, On and off I participate in studies regarding my SCI. Often I'm asked something like "...how would you rate your quality of life since your SCI"? This question gets SO deep under my skin, I could scream. How do you all feel about your quality of life since your injury? Bobbie
Re: [QUAD-L] Quality of Life and SCI ~~ Huh?
yes the independence and mobility is gone, but i love my life... i have a degree i never would have gotten, out of the crummy town and relationship i was in, and met some fabulous people along the way.. littlequad, mva 7.5 yrs post[EMAIL PROTECTED] wrote: Hi All, On and off I participate in studies regarding my SCI. Often I'm asked something like "...how would you rate your quality of life since your SCI"? This question gets SO deep under my skin, I could scream. How do you all feel about your quality of life since your injury? Bobbie
Re: [QUAD-L] Quality of Life and SCI ~~ Huh?
My quality of life after SCI sucks compared to before. Bill age 55C6 Incomplete since 7/20/68Leesburg, FLProcrastinate now, don't put it off. - Original Message - From: [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Friday, July 07, 2006 6:14 PM Subject: [QUAD-L] Quality of Life and SCI ~~ Huh? Hi All, On and off I participate in studies regarding my SCI. Often I'm asked something like "...how would you rate your quality of life since your SCI"? This question gets SO deep under my skin, I could scream. How do you all feel about your quality of life since your injury? Bobbie
[QUAD-L] Quality of Life and SCI ~~ Huh?
Hi All, On and off I participate in studies regarding my SCI. Often I'm asked something like "...how would you rate your quality of life since your SCI"? This question gets SO deep under my skin, I could scream. How do you all feel about your quality of life since your injury? Bobbie
