Re: [QUAD-L] Vent ?

2021-07-24 Thread Eric Olson
Wait - when did you have a trach put in?  I feel for you.  I remember
people on the vent users list complaining that too much air was leaking out
from the mask.  I think I remember someone going to a dentist, if I'm
remembering correctly, and having a mask custom molded to his face.  I
remember someone saying they switched to nasal pillows.  It sounded like it
was a constant struggle with the masks.  Wish I had better news.  You said
you were having trouble breathing around the trach.  You really need to
talk to your doctor about this . Do you have a pulse oximeter?  You can get
one on Amazon.  They are not very expensive.  That will allow you to check
your O2 levels at any time.  People with sleep apnea have a hard time
getting used to the mask.  Maybe you'll just get used to it with time?
Like Jim, I lost the ability to breath instantaneously so there was never a
getting used to it phase.  Good luck

On Thu, Jul 22, 2021 at 1:39 PM Greg  wrote:

> you guys on vents ever get use to it?
> I have to use one at night, I use a face mask not trach. I just can't get
> the breathing to match mine good enough. Plus the face mask is just too
> much. I keep trying different kinds.
>
> I dont want the trech, when its not on, just the trech tube in the throat
> blocks too much air.
>
> Greg
>


Re: [QUAD-L] Vent ?

2021-07-22 Thread Jim Lubin
I can't breathe at all on my own the vent is breathing for me so the
experience is different.

On Thu, Jul 22, 2021 at 11:39 AM Greg  wrote:

> you guys on vents ever get use to it?
> I have to use one at night, I use a face mask not trach. I just can't get
> the breathing to match mine good enough. Plus the face mask is just too
> much. I keep trying different kinds.
>
> I dont want the trech, when its not on, just the trech tube in the throat
> blocks too much air.
>
> Greg
>


[QUAD-L] Vent ?

2021-07-22 Thread Greg

you guys on vents ever get use to it?
I have to use one at night, I use a face mask not trach. I just can't 
get the breathing to match mine good enough. Plus the face mask is just 
too much. I keep trying different kinds.


I dont want the trech, when its not on, just the trech tube in the 
throat blocks too much air.


Greg


[QUAD-L] Vent

2021-05-10 Thread Greg
At the hospital I was on a bipap, but I guess they sent me home with a 
full vent. No idea of the difference. I use a face mask.

I just can't get the settings right. Too fast, too strong,etc
Cant get to my lung doc until thur.
Any advice?

Greg


[QUAD-L] Vent and Chin control

2009-06-08 Thread cullenc2c3
Is anyone on the list on a vent and also use a chin control? Is there any 
conflict between the two?

Cullen
C2/3



  

Re: [QUAD-L] Vent and Chin control

2009-06-08 Thread Quadius
I knew one quadriplegic, who is no longer with us, who was on a ventilator
and used a chin control without any difficulty whatsoever.  I will,
however,  deferred to anyone on a ventilator regarding this question.


On Mon, Jun 8, 2009 at 1:13 PM, cullenc...@yahoo.com wrote:

 Is anyone on the list on a vent and also use a chin control? Is there any
 conflict between the two?

 Cullen
 C2/3




-- 
Quadius
C2-3 incomplete
13 years post injury


Re: [QUAD-L] Vent and Chin control

2009-06-08 Thread Jim Lubin


I am on a vent and have tried chin control but decided it
wasn't going to work for me. It had nothing to do with the ventilator, my
problem is that I have very neck movement. It was hurting my jaw and neck
muscles. I found sip and puff easier to operate since no head movement is
required.
At 10:13 AM 6/8/2009, cullenc...@yahoo.com wrote:
Is anyone on the list on a vent
and also use a chin control? Is there any conflict between the
two?
Cullen
C2/3



Jim
Lubin

jlu...@makoa.org
Home Page:
http://makoa.org/jim

disAbility Resources:
http://www.makoa.org






[QUAD-L] [VENT-L] LP10 mounting pictures needed

2007-09-25 Thread Dan

Hi Kimberly,

Have you considered the Newport HT-50?

http://www.newportnmi.com/HT50.asp

http://www.amethyst-research.com/ht50/starthere.html.

Dan


To: vent [EMAIL PROTECTED]
Subject: [VENT-L] LP10 mounting pictures needed

Would you all please send me some pictures showing the various ways 
you've managed to attach a LP10 to your standing wheelchair?  I'm 
having some issues with the LTV and will likely be returning it, so I 
need to look into my options with the LP10.  Because of tracking and 
weight-distribution concerns, I know DMEs usually prefer keeping a 
vent of that size close to the floor - but I don't like the small 
cart-type attachment that Permobil has available because it adds 
length to the chair.  My current vent tray won't work because it will 
interfere with the chair's positioning functions.  I would like to 
have my LP10 mounted in a way similar to how the LTVs hang on the back 
of the chair, and then stabilize it with bungee cords.  One of you 
told me a long time ago that you had been able to do that with your 
chair using a LP10.  I forgot who it was but I'm hoping that person 
will read this again be able to help - but I would appreciate pictures 
from anyone.  Thanks for you time.


Kimberly





Re: [QUAD-L] vent users

2006-06-06 Thread Eric Olson
I am.  I have family and outside nurses.  My mom, sister, and wife are 
all nurses.  I've also trained old drinking buddies from high school in 
the past to care for me too. 


Eric

Amy Davis wrote:

Just curious as to who among you are vent dependant. How do you manage 
for full time care? Do you have nurses or family members that help 
you? How often do you go out to dinner or shopping or just for fun?

Amy

__
Do You Yahoo!?
Tired of spam? Yahoo! Mail has the best spam protection around
http://mail.yahoo.com





[QUAD-L] vent users

2006-06-05 Thread Amy Davis
Just curious as to who among you are vent dependant. How do you manage for full time care? Do you have nurses or family members that help you? How often do you go out to dinner or shopping or just for fun?   Amy __Do You Yahoo!?Tired of spam?  Yahoo! Mail has the best spam protection around http://mail.yahoo.com