Re: FW: [QUAD-L] occupational identity following traumatic injury survey

2008-12-18 Thread John S.
You silver toungued devil. you can make anything sound all Christmassey. 

--- On Thu, 12/18/08, dav...@aol.com  wrote:

From: dav...@aol.com 
Subject: Re: FW: [QUAD-L] occupational identity following traumatic injury 
survey
To: quad-list@eskimo.com
Date: Thursday, December 18, 2008, 1:42 PM



Right on W.  I really worry that info about how devastating and degrading an 
SCI can be might actually get out.  How it kept from being the butt kicking 
super athelete, wall street guru, or all around good father I would have 
otherwise been.  I dread thinking people might find out about catheters, bed 
pans, bowel programs, endless pains and aches, frustrations of inadequacy, 
dependence, shortened life spans, bed sores, deformed bodies and depression.  I 
would just hate it if people stole these questionnaires and flooded the 
populace with our answers to "just exactly how screwed up is your life because 
of SCI".  Excuse me while I go close my drapers - the sight of the sky falling 
really depresses me unnecessarily.
AZDAVE
 
Take the world in a love embrace
Fire all of your guns at once
And explode into space
DAVEOCONNELL.COM 
 

In a message dated 12/17/2008 11:27:50 A.M. US Mountain Standard Tim, 
wheelchair writes:

And what happened to your surveys after school?  What assurance do you have 
that online
surveys will be destroyed in the same fashion.  Especially in today's secured 
and unsecured
internet market.  Just ask any bank, credit card company or retailer that had 
their system
breached.  Consider those Gov Agencies who had their computers stolen and lost 
records.
In hospital studies, or clinical surveys offer a better safe support.  The 
internet people can't
warranty the same.
 
Best Wishes
 

In a message dated 12/17/2008 12:22:11 P.M. Central Standard Time, 
dav...@aol.com writes:

ditto.  I was in college once doing my own surveys.  having 'real' people 
responses would have been great - I used other students.
 
Take the world in a love embrace
Fire all of your guns at once
And explode into space
DAVEOCONNELL.COM 
 

In a message dated 12/17/2008 11:10:09 A.M. US Mountain Standard Tim, 
merril...@cox.net writes:


People I had done surveys for usually contacted me to thank me personally.  
Perhaps it is a college paper or other assignment that someone is working on, 
right, who knows, but they are done and people seem to really appreciate my 
time to help.  What do I get out of it mentality is legitimate but look, 
someone has an interest and simply requesting help.
mb
 




From: Lori Michaelson [mailto:lorilivin...@gmail.com] 
Sent: Monday, December 15, 2008 3:36 PM
To: wheelch...@aol.com; quad-list@eskimo.com ; jster...@ithaca.edu
Subject: Re: [QUAD-L] occupational identity following traumatic injury survey
 

Yes, W, I most certainly agree regarding these surveys and always have.   Or 
have leaned - the hard way.  I was once young and green and naïve to actually 
take part in these type of surveys.

 


Over the last 29 yrs of acquiring an SCI - I have done a "several" surveys of 
this sort.  Even via mail.  The last one I did was 11 years ago.  The results 
of all the surveys I've filled out?  Who knows.  But with the questions posed 
as they were - there was nothing they could get out of them.  The questions are 
so objective that no one could get anything out of the survey and most surveys 
are like that.  Those being surveyed are like "test rats."   I have filled out 
one too many.

 


Julia, you are abouth the 20th person who has come to this list in the same 
manner for the same purpose.  I DO understand that you, in your here and now, 
think the survey willl do something helpful.  I've been there on your end (even 
as a person who acquired a severe disability) so I know.  Actually, I am from 
your neck of the woods (45 Minute Drive to Ithaca ) and it was once "my job" to 
attend a two-day seminar/workshop on everything surrounding people with 
disabilities and education and the laws surrounding it.  What a waste of two 
days!  BUT, to the people conducting the seminar, it was supposedly 
meaningful.  But, they thought they had all the answers.  Or, more importantly, 
it made them feel like they were doing something "meaningful."  All able-bodied 
folks don't you know.

 

These "surveys" for people with disabilities or spinal cord injuries have never 
done anything but give the students, universities, organizations (as surveyors) 
to do nothing more than a "project."  Again, in my naïveté, I was once in your 
position as a surveyor as a person with a disability trying to survey "others" 
for myself and to the organization or school, etc, that I was affiliated with.  
To what end?  Nada.  

 

OUR participation in "meaningful activities" is no more different than those 
who are able bodied.  Think about it.  After my injury, and in rehab afterward 
- I had m

Re: [QUAD-L] occupational identity following traumatic injury survey

2008-12-18 Thread Lori Michaelson
I just remembered something.  About two or three years ago I was somehow
contacted (can't remember the specifics) by someone doing a survey on the
local hospitals here in Tucson.  A *phone* survey.  And everyone else taking
the survey (there were about 5 others than myself - all women who had been
in the hospital as an inpatient or outpatient within a certain timeframe)
could all hear what everybody else was saying in response to the questions
posed -- or one could make commentary on their personal experiences in the
local hospitals.

And we were all to be compensated (about $75 I think it was) to take part in
this phone survey which took about two hours with six or seven women
talking!  LOL.  Anyhow, it became clear that the surveyor was a
representative of our "Northwest Hospitals" (and at the end of the survey
she- *the surveyor* told us that) and therefore trying to get firsthand
experience and answers about *their* 2 hospitals in the area compared to the
other hospitals in the area (I think there are about seven or eight total
hospitals in Tucson -- right Tod?).

Beforehand, we were all mailed information packets about the survey and what
to expect, etc..  Then we all got together for the Roundtable survey using
conference calling.  I can't remember what they were going to do with their
results.

But I DO remember that I waited weeks or longer to get a check in the mail
from them.  Ultimately,* I had to call them to get it to me (the money as
promised for participating).*

Something I just forgot.

Lori
On Mon, Dec 15, 2008 at 4:55 PM,  wrote:

>  Amen, Amen, Amen Lori!  LOL
>
> We have a very conservative Baptist College down the road from us.  Each
> Spring the graduating students are required to go out into the community and
> go door to door and practice their beliefs and share it with others.  Over
> the years, we know our door will be knocked on several times and we are
> always prepared.
> After 30 years of this, nothing has changed.  The students come and go and
> we can always expect that knock on the door next spring.
>
> Now the "Monkey Survey" got to me too as I could not imagine any crip
> falling for the "monkey thing."
> But then I'm a big supporter of Pay for Play and Surveys.  Some states have
> right to work laws... Illinois has "Pay to Play" laws, if you get my drift.
> Once you have been paid to do a survey, giving it away seems
> senseless   Or is that me again, lol.
>
> Best Wishes
>
>  In a message dated 12/15/2008 5:36:52 P.M. Central Standard Time,
> lorilivin...@gmail.com writes:
>
> Yes, W, I most certainly agree regarding these surveys and always have.
> Or have leaned - the hard way.  I was once young and green and naïve to
> actually take part in these type of surveys.
>
>  Over the last 29 yrs of acquiring an SCI - I have done a "several"
> surveys of this sort.  Even via mail.  The last one I did was 11 years ago.
> The results of all the surveys I've filled out?  Who knows.  But with the
> questions posed as they were - there was nothing they could get out of
> them.  The questions are so objective that no one could get anything out of
> the survey and most surveys are like that.  Those being surveyed are like
> "test rats."   I have filled out one too many.
>
>  Julia, you are abouth the 20th person who has come to this list in the
> same manner for the same purpose.  I *DO* understand that you, in *your*here 
> and now, think the survey willl do something helpful.  I've been there
> on your end (even as a person who acquired a severe disability) so I know.
> Actually, I am from your neck of the woods (45 Minute Drive to Ithaca) and
> it was once "my job" to attend a two-day seminar/workshop on everything
> surrounding people with disabilities and education and the laws surrounding
> it.  What a waste of two days!  BUT, to the people conducting the seminar,
> it was supposedly meaningful.  But, they thought they had all the answers.
> Or, more importantly, it made them feel like *they* were doing something
> "meaningful."  All able-bodied folks don't you know.
>
> These "surveys" for people with disabilities or spinal cord injuries have
> never done anything but give the students, universities, organizations (as
> surveyors) to do nothing more than a "project."  Again, in my naïveté, I was
> once in your position as a surveyor as a person with a disability trying to
> survey "others" for myself and to the organization or school, etc, that I
> was affiliated with.  To what end?  Nada.
>
> OUR participation in "meaningful activities" is no more different than
> those who are able bodied.  Think about it.  After my injury, and in rehab
> afterward - I had many OTs.  Of all the therapists out there - I have found
> them to be narrowminded and "one-size-fits-all."  PTs are great but single
> OT I had -- thought that if one particular piece of adaptive equipment
> worked for one disabled person - it would certainly work for others.  And
> they were all very "pushy."

Re: FW: [QUAD-L] occupational identity following traumatic injury survey

2008-12-18 Thread Dave0c
Right on W.  I really worry that info about how devastating and  degrading an 
SCI can be might actually get out.  How it kept from  being the butt kicking 
super athelete, wall street guru, or all around good  father I would have 
otherwise been.  I dread thinking people might find out  about catheters, bed 
pans, bowel programs, endless pains and aches, frustrations  of inadequacy, 
dependence, shortened life spans, bed sores, deformed bodies and  depression.  
I 
would just hate it if people stole these questionnaires  and flooded the 
populace 
with our answers to "just exactly how screwed up is  your life because of 
SCI".  Excuse me while I go close my drapers - the  sight of the sky falling 
really depresses me unnecessarily.
AZDAVE
 
Take the  world in a love embrace
Fire all of your guns at once
And explode into  space
_DAVEOCONNELL.COM_ (http://daveoconnell.com/)   

 
In a message dated 12/17/2008 11:27:50 A.M. US Mountain Standard Tim,  
wheelchair writes:

And what happened to your surveys after school?  What assurance do  you have 
that online
surveys will be destroyed in the same fashion.  Especially in  today's 
secured and unsecured
internet market.  Just ask any bank, credit card company or retailer  that 
had their system
breached.  Consider those Gov Agencies who had their computers  stolen and 
lost records.
In hospital studies, or clinical surveys offer a better safe  support.  The 
internet people can't
warranty the same.
 
Best Wishes
 
 
In a message dated 12/17/2008 12:22:11 P.M. Central Standard Time,  
dav...@aol.com writes:

ditto.  I was in college once doing my own surveys.  having  'real' people 
responses would have been great - I used other students.
 
Take the  world in a love embrace
Fire all of your guns at once
And explode into  space
_DAVEOCONNELL.COM_ (http://daveoconnell.com/)   

 
In a message dated 12/17/2008 11:10:09 A.M. US Mountain Standard Tim,  
merril...@cox.net writes:

 
People I had done  surveys for usually contacted me to thank me personally.  
Perhaps it  is a college paper or other assignment that someone is working on, 
right,  who knows, but they are done and people seem to really appreciate my 
time  to help.  What do I get out of it mentality is legitimate but look,  
someone has an interest and simply requesting  help. 
mb 
 
  

 
From:  Lori Michaelson [mailto:lorilivin...@gmail.com] 
Sent: Monday, December 15, 2008 3:36  PM
To:  wheelch...@aol.com; quad-list@eskimo.com;  jster...@ithaca.edu
Subject: Re: [QUAD-L] occupational  identity following traumatic injury  
survey
 
Yes, W, I most certainly agree  regarding these surveys and always have.   Or 
have leaned -  the hard way.  I was once young and green and naïve to 
actually take  part in these type of surveys.
 

 
 
Over the last 29 yrs of acquiring an SCI - I  have done a "several" surveys 
of this sort.  Even via mail.  The  last one I did was 11 years ago.  The 
results of all the surveys I've  filled out?  Who knows.  But with the 
questions 
posed as they  were - there was nothing they could get out of them.  The 
questions  are so objective that no one could get anything out of the survey 
and most 
 surveys are like that.  Those being surveyed are like "test  rats."   I have 
filled out one too  many.

 

 
 
Julia, you are abouth the 20th person who has  come to this list in the same 
manner for the same purpose.  I  DO understand  that you, in your here and 
now, think  the survey willl do something helpful.  I've been there on your end 
 
(even as a person who acquired a severe disability) so I know.   Actually, I 
am from your neck of the woods (45 Minute Drive to Ithaca) and it was  once "my 
job" to attend a two-day seminar/workshop on everything  surrounding people 
with disabilities and education and the laws  surrounding it.  What a waste of 
two days!  BUT, to the people  conducting the seminar, it was supposedly 
meaningful.  But, they  thought they had all the answers.  Or, more 
importantly, it 
made them  feel like they were doing  something "meaningful."  All 
able-bodied folks don't you  know.

 

 
These "surveys" for people with disabilities or  spinal cord injuries have 
never done anything but give the students,  universities, organizations (as 
surveyors) to do nothing more than a  "project."  Again, in my naïveté, I was 
once 
in your position as a  surveyor as a person with a disability trying to 
survey "others" for  myself and to the organization or school, etc, that I was 
affiliated  with.  To what end?  Nada.   
 

 
OUR participation in "meaningful activities" is  no more different than those 
who are able bodied.  Think about  it.  After my injury, and in rehab 
afterward - I had many OTs.   Of all the therapists out there - I have found 
them to 
be  narrowminded and "one-size-fits-

RE: FW: [QUAD-L] occupational identity following traumatic injury survey

2008-12-17 Thread Dan
A well done survey measures change over time so 
it may take several or many years before you see a trend.


Dan


At 02:14 PM 12/17/2008, Steve Oldaker said something that elicited my response:

My take on the vast majority of these 
SCI/disability related surveys is they generally 
result in an extreme grasp of the obvious, i.e. 
people with SCIs/disabilities tend to have lower 
incomes, higher unemployment, more 
physical/pain/health issues, less sex, etc. How revealing… not.


Steve

From: Dan [mailto:d...@unh.edu]
Sent: Wednesday, December 17, 2008 2:03 PM
To: quad-list@eskimo.com
Subject: Re: FW: [QUAD-L] occupational identity 
following traumatic injury survey


Surveys don't usually ask for any type of 
personal info (outside of the usual - age, 
geographical area, etc.). If they keep the 
results, who cares. I too went to college and 
did my share of surveys. It's a part of many 
disciplines. Those who are uncomfortable doing 
surveys, don't have to do them. But to think 
that somehow the results are going to be used in 
a negative way or will hurt us is silly. And why 
demonize those that send out these surveys?


Dan


At 01:27 PM 12/17/2008, wheelch...@aol.com said 
something that elicited my response:



And what happened to your surveys after 
school?  What assurance do you have that online
surveys will be destroyed in the same 
fashion.  Especially in today's secured and unsecured
internet market.  Just ask any bank, credit card 
company or retailer that had their system
breached.  Consider those Gov Agencies who had 
their computers stolen and lost records.
In hospital studies, or clinical surveys offer a 
better safe support.  The internet people can't

warranty the same.

Best Wishes

In a message dated 12/17/2008 12:22:11 P.M. 
Central Standard Time, dav...@aol.com writes:
ditto.  I was in college once doing my own 
surveys.  having 'real' people responses would 
have been great - I used other students.


Take the world in a love embrace
Fire all of your guns at once
And explode into space
<http://daveoconnell.com/>DAVEOCONNELL.COM

In a message dated 12/17/2008 11:10:09 A.M. US 
Mountain Standard Tim, merril...@cox.net writes:
People I had done surveys for usually contacted 
me to thank me personally.  Perhaps it is a 
college paper or other assignment that someone 
is working on, right, who knows, but they are 
done and people seem to really appreciate my 
time to help.  What do I get out of it mentality 
is legitimate but look, someone has an interest and simply requesting help.

mb


--
From: Lori Michaelson [ mailto:lorilivin...@gmail.com]
Sent: Monday, December 15, 2008 3:36 PM
To: wheelch...@aol.com; quad-list@eskimo.com; jster...@ithaca.edu
Subject: Re: [QUAD-L] occupational identity following traumatic injury survey

Yes, W, I most certainly agree regarding these 
surveys and always have.   Or have leaned - the 
hard way.  I was once young and green and naïve 
to actually take part in these type of surveys.


Over the last 29 yrs of acquiring an SCI - I 
have done a "several" surveys of this 
sort.  Even via mail.  The last one I did was 11 
years ago.  The results of all the surveys I've 
filled out?  Who knows.  But with the questions 
posed as they were - there was nothing they 
could get out of them.  The questions are so 
objective that no one could get anything out of 
the survey and most surveys are like 
that.  Those being surveyed are like "test 
rats."   I have filled out one too many.


Julia, you are abouth the 20th person who has 
come to this list in the same manner for the 
same purpose.  I DO understand that you, in your 
here and now, think the survey willl do 
something helpful.  I've been there on your end 
(even as a person who acquired a severe 
disability) so I know.  Actually, I am from your 
neck of the woods (45 Minute Drive to Ithaca) 
and it was once "my job" to attend a two-day 
seminar/workshop on everything surrounding 
people with disabilities and education and the 
laws surrounding it.  What a waste of two 
days!  BUT, to the people conducting the 
seminar, it was supposedly meaningful.  But, 
they thought they had all the answers.  Or, more 
importantly, it made them feel like they were 
doing something "meaningful."  All able-bodied folks don't you know.


These "surveys" for people with disabilities or 
spinal cord injuries have never done anything 
but give the students, universities, 
organizations (as surveyors) to do nothing more 
than a "project."  Again, in my naïveté, I was 
once in your position as a surveyor as a person 
with a disability trying to survey "others" for 
myself and to the organization or school, etc, 
that I was affiliated with.  To what end?  Nada.


OUR participation in "meaningful activities" is 
no more different than those who are able 
bodied.  Think about it.  After my i

Re: FW: [QUAD-L] occupational identity following traumatic injury survey

2008-12-17 Thread wheelchair
I would encourage anyone who wanted to complete a/the survey to do so. And  
if one chose not to,
that was ok too.
 
Best Wishes
 
 
In a message dated 12/17/2008 1:03:52 P.M. Central Standard Time,  
d...@unh.edu writes:

Surveys  don't usually ask for any type of personal info (outside of the 
usual - age,  geographical area, etc.). If they keep the results, who cares. I 
too 
went to  college and did my share of surveys. It's a part of many 
disciplines. Those  who are uncomfortable doing surveys, don't have to do them. 
But to 
think that  somehow the results are going to be used in a negative way or will 
hurt us is  silly. And why demonize those that send out these surveys? 

Dan


At 01:27 PM 12/17/2008, wheelch...@aol.com said something that  elicited my 
response:


And what happened to  your surveys after school?  What assurance do you have 
that  online
surveys will be destroyed in the same fashion.  Especially in  today's 
secured and unsecured
internet market.  Just ask any bank,  credit card company or retailer that 
had their system
breached.   Consider those Gov Agencies who had their computers stolen and 
lost  records.
In hospital studies, or clinical surveys offer a better safe  support.  The 
internet people can't
warranty the  same.

Best Wishes

In a message dated 12/17/2008  12:22:11 P.M. Central Standard Time, 
dav...@aol.com writes:

ditto.  I was in college once doing my  own surveys.  having 'real' people 
responses would have been great -  I used other students.



Take the world in a love embrace

Fire all of your guns at once

And explode into space

_DAVEOCONNELL.COM_ (http://daveoconnell.com/)  



In a message dated 12/17/2008 11:10:09 A.M. US Mountain Standard Tim,  
merril...@cox.net writes:



People I had done surveys for usually  contacted me to thank me personally.  
Perhaps it is a college paper  or other assignment that someone is working on, 
right, who knows, but  they are done and people seem to really appreciate my 
time to  help.  What do I get out of it mentality is legitimate but look,  
someone has an interest and simply requesting help.


mb



 







From: Lori Michaelson [_ mailto:lorilivin...@gmail.com_ 
(mailto:lorilivin...@gmail.com) ] 

Sent: Monday, December 15, 2008 3:36 PM

To: wheelch...@aol.com; quad-list@eskimo.com;  jster...@ithaca.edu

Subject: Re: [QUAD-L] occupational identity following traumatic  injury survey





Yes, W, I most certainly  agree regarding these surveys and always have.   Or 
have  leaned - the hard way.  I was once young and green and naïve to  
actually take part in these type of surveys.





Over the last 29 yrs of  acquiring an SCI - I have done a "several" surveys 
of this sort.   Even via mail.  The last one I did was 11 years ago.  The  
results of all the surveys I've filled out?  Who knows.  But  with the 
questions 
posed as they were - there was nothing they could get  out of them.  The 
questions are so objective that no one could get  anything out of the survey 
and 
most surveys are like that.   Those  being surveyed are like "test rats."   I 
have filled out one  too many.





Julia, you are abouth the  20th person who has come to this list in the same 
manner for the same  purpose.  I DO understand that you, in your here and  
now, think the survey willl do something helpful.  I've been there  on your end 
(even as a person who acquired a severe disability) so I  know.  Actually, I am 
from your neck of the woods (45 Minute Drive  to Ithaca) and it was once "my 
job" to attend a two-day seminar/workshop  on everything surrounding people 
with disabilities and education and the  laws surrounding it.  What a waste of 
two days!  BUT, to the  people conducting the seminar, it was supposedly 
meaningful.  But,  they thought they had all the answers.  Or, more 
importantly, it  
made them feel like they were doing something  "meaningful."  All able-bodied 
folks don't you  know.





These "surveys" for  people with disabilities or spinal cord injuries have 
never done  anything but give the students, universities, organizations (as  
surveyors) to do nothing more than a "project."  Again, in my  naïveté, I was 
once in your position as a surveyor as a person with a  disability trying to 
survey "others" for myself and to the organization  or school, etc, that I was 
affiliated with.  To what end?   Nada.  





OUR participation in  "meaningful activities" is no more different than those 
who are able  bodied.  Think about it.  After my injury, and in rehab  
afterward - I had many OTs.  Of all the therapists out there - I  have found 
them to 
be narrowminded and "one-size-fits-all."  PTs  are great but single OT I had 
-- thought that if one particular piece of  adaptive equipment worked for one 
disabled person - it would cer

Re: FW: [QUAD-L] occupational identity following traumatic injury survey

2008-12-17 Thread Dan
Surveys don't usually ask for any type of 
personal info (outside of the usual - age, 
geographical area, etc.). If they keep the 
results, who cares. I too went to college and did 
my share of surveys. It's a part of many 
disciplines. Those who are uncomfortable doing 
surveys, don't have to do them. But to think that 
somehow the results are going to be used in a 
negative way or will hurt us is silly. And why 
demonize those that send out these surveys?


Dan


At 01:27 PM 12/17/2008, wheelch...@aol.com said 
something that elicited my response:


And what happened to your surveys after 
school?  What assurance do you have that online
surveys will be destroyed in the same 
fashion.  Especially in today's secured and unsecured
internet market.  Just ask any bank, credit card 
company or retailer that had their system
breached.  Consider those Gov Agencies who had 
their computers stolen and lost records.
In hospital studies, or clinical surveys offer a 
better safe support.  The internet people can't

warranty the same.

Best Wishes

In a message dated 12/17/2008 12:22:11 P.M. 
Central Standard Time, dav...@aol.com writes:
ditto.  I was in college once doing my own 
surveys.  having 'real' people responses would 
have been great - I used other students.


Take the world in a love embrace
Fire all of your guns at once
And explode into space
<http://daveoconnell.com/>DAVEOCONNELL.COM

In a message dated 12/17/2008 11:10:09 A.M. US 
Mountain Standard Tim, merril...@cox.net writes:


People I had done surveys for usually contacted 
me to thank me personally.  Perhaps it is a 
college paper or other assignment that someone 
is working on, right, who knows, but they are 
done and people seem to really appreciate my 
time to help.  What do I get out of it mentality 
is legitimate but look, someone has an interest and simply requesting help.


mb



--
From: Lori Michaelson [mailto:lorilivin...@gmail.com]
Sent: Monday, December 15, 2008 3:36 PM
To: wheelch...@aol.com; quad-list@eskimo.com; jster...@ithaca.edu
Subject: Re: [QUAD-L] occupational identity following traumatic injury survey



Yes, W, I most certainly agree regarding these 
surveys and always have.   Or have leaned - the 
hard way.  I was once young and green and naïve 
to actually take part in these type of surveys.




Over the last 29 yrs of acquiring an SCI - I 
have done a "several" surveys of this 
sort.  Even via mail.  The last one I did was 11 
years ago.  The results of all the surveys I've 
filled out?  Who knows.  But with the questions 
posed as they were - there was nothing they 
could get out of them.  The questions are so 
objective that no one could get anything out of 
the survey and most surveys are like 
that.  Those being surveyed are like "test 
rats."   I have filled out one too many.




Julia, you are abouth the 20th person who has 
come to this list in the same manner for the 
same purpose.  I DO understand that you, in your 
here and now, think the survey willl do 
something helpful.  I've been there on your end 
(even as a person who acquired a severe 
disability) so I know.  Actually, I am from your 
neck of the woods (45 Minute Drive to Ithaca) 
and it was once "my job" to attend a two-day 
seminar/workshop on everything surrounding 
people with disabilities and education and the 
laws surrounding it.  What a waste of two 
days!  BUT, to the people conducting the 
seminar, it was supposedly meaningful.  But, 
they thought they had all the answers.  Or, more 
importantly, it made them feel like they were 
doing something "meaningful."  All able-bodied folks don't you know.




These "surveys" for people with disabilities or 
spinal cord injuries have never done anything 
but give the students, universities, 
organizations (as surveyors) to do nothing more 
than a "project."  Again, in my naïveté, I was 
once in your position as a surveyor as a person 
with a disability trying to survey "others" for 
myself and to the organization or school, etc, 
that I was affiliated with.  To what end?  Nada.




OUR participation in "meaningful activities" is 
no more different than those who are able 
bodied.  Think about it.  After my injury, and 
in rehab afterward - I had many OTs.  Of all the 
therapists out there - I have found them to be 
narrowminded and "one-size-fits-all."  PTs are 
great but single OT I had -- thought that if one 
particular piece of adaptive equipment worked 
for one disabled person - it would certainly 
work for others.  And they were all very "pushy."




Also, I take offense (and I think others would 
as well) to have you telling us what to do if we 
feel we are uncomfortable at any point in 
filling out the survey.  Now that takes the 
cake!   As if we would not know what to do - 
which would be to just that - stop.  But that is 
another co

Re: FW: [QUAD-L] occupational identity following traumatic injury survey

2008-12-17 Thread wheelchair
And what happened to your surveys after school?  What assurance do you  have 
that online
surveys will be destroyed in the same fashion.  Especially in today's  
secured and unsecured
internet market.  Just ask any bank, credit card company or retailer  that 
had their system
breached.  Consider those Gov Agencies who had their computers stolen  and 
lost records.
In hospital studies, or clinical surveys offer a better safe support.   The 
internet people can't
warranty the same.
 
Best Wishes
 
 
In a message dated 12/17/2008 12:22:11 P.M. Central Standard Time,  
dav...@aol.com writes:

ditto.  I was in college once doing my own surveys.  having  'real' people 
responses would have been great - I used other students.
 
Take the  world in a love embrace
Fire all of your guns at once
And explode into  space
_DAVEOCONNELL.COM_ (http://daveoconnell.com/)   

 
In a message dated 12/17/2008 11:10:09 A.M. US Mountain Standard Tim,  
merril...@cox.net writes:

 
People I had done  surveys for usually contacted me to thank me personally.  
Perhaps it is  a college paper or other assignment that someone is working on, 
right, who  knows, but they are done and people seem to really appreciate my 
time to  help.  What do I get out of it mentality is legitimate but look,  
someone has an interest and simply requesting  help. 
mb 
 
  

 
From: Lori  Michaelson [mailto:lorilivin...@gmail.com] 
Sent: Monday, December 15, 2008 3:36  PM
To: wheelch...@aol.com;  quad-list@eskimo.com;  jster...@ithaca.edu
Subject: Re: [QUAD-L] occupational  identity following traumatic injury  
survey
 
Yes, W, I most certainly agree  regarding these surveys and always have.   Or 
have leaned -  the hard way.  I was once young and green and naïve to 
actually take  part in these type of surveys.
 

 
 
Over the last 29 yrs of acquiring an SCI - I have  done a "several" surveys 
of this sort.  Even via mail.  The last  one I did was 11 years ago.  The 
results of all the surveys I've filled  out?  Who knows.  But with the 
questions 
posed as they were -  there was nothing they could get out of them.  The 
questions are so  objective that no one could get anything out of the survey 
and most 
surveys  are like that.  Those  being surveyed are like "test rats."   I have 
filled out one  too many.

 

 
 
Julia, you are abouth the 20th person who has come  to this list in the same 
manner for the same purpose.  I  DO understand  that you, in your here and 
now, think the  survey willl do something helpful.  I've been there on your end 
(even  as a person who acquired a severe disability) so I know.  Actually, I  
am from your neck of the woods (45 Minute Drive to Ithaca) and it was  once "my 
job" to attend a two-day seminar/workshop on everything surrounding  people 
with disabilities and education and the laws surrounding it.   What a waste of 
two days!  BUT, to the people conducting the seminar,  it was supposedly 
meaningful.  But, they thought they had all the  answers.  Or, more 
importantly, it 
made them feel like they were doing  something "meaningful."  All able-bodied 
folks don't you  know.

 

 
These "surveys" for people with disabilities or  spinal cord injuries have 
never done anything but give the students,  universities, organizations (as 
surveyors) to do nothing more than a  "project."  Again, in my naïveté, I was 
once 
in your position as a  surveyor as a person with a disability trying to 
survey "others" for myself  and to the organization or school, etc, that I was 
affiliated with.  To  what end?  Nada.  
 

 
OUR participation in "meaningful activities" is no  more different than those 
who are able bodied.  Think about it.   After my injury, and in rehab 
afterward - I had many OTs.  Of all the  therapists out there - I have found 
them to 
be narrowminded and  "one-size-fits-all."  PTs are great but single OT I had 
-- thought  that if one particular piece of adaptive equipment worked for one 
disabled  person - it would certainly work for others.  And they were all  very 
"pushy."
 

 
Also, I take offense (and I think others would as  well) to have you telling 
us what to  do if we feel we are  uncomfortable at any point in filling out 
the survey.  Now that takes  the cake!   As if we would not know what to do - 
which would  be to just that - stop.  But that is another common character 
trait 
of  OTs - TELL people how and when to do things.   
 

 
Sorry I sound so abrasive but it is really more  than my opinion - it is fact 
from personal experience.   
 

 
Anyway, as an individual and not a surveyor --  have a Merry Christmas and a 
prosperous new year!   
 

 
Lori
 



On Sun, Dec 14, 2008 at 1:36 PM, <_wheelch...@aol.com_ 
(mailto:wheelch...@aol.com) >  wrote: 
 
 
Hi Julia,  
 
Not trying to be  disrespectful, but what'

Re: FW: [QUAD-L] occupational identity following traumatic injury survey

2008-12-17 Thread Dave0c
ditto.  I was in college once doing my own surveys.  having  'real' people 
responses would have been great - I used other students.
 
Take the  world in a love embrace
Fire all of your guns at once
And explode into  space
_DAVEOCONNELL.COM_ (http://daveoconnell.com/)   

 
In a message dated 12/17/2008 11:10:09 A.M. US Mountain Standard Tim,  
merril...@cox.net writes:

 
People I had done  surveys for usually contacted me to thank me personally.  
Perhaps it is a  college paper or other assignment that someone is working on, 
right, who  knows, but they are done and people seem to really appreciate my 
time to  help.  What do I get out of it mentality is legitimate but look, 
someone  has an interest and simply requesting help. 
mb 
 
  

 
From: Lori  Michaelson [mailto:lorilivin...@gmail.com] 
Sent: Monday, December 15, 2008 3:36  PM
To: wheelch...@aol.com;  quad-list@eskimo.com;  jster...@ithaca.edu
Subject:  Re: [QUAD-L] occupational identity following traumatic injury  
survey
 
Yes, W, I most certainly agree regarding these  surveys and always have.   Or 
have leaned - the hard way.  I  was once young and green and naïve to 
actually take part in these type of  surveys.
 

 
 
Over the last 29 yrs of acquiring an SCI - I have  done a "several" surveys 
of this sort.  Even via mail.  The last one  I did was 11 years ago.  The 
results of all the surveys I've filled  out?  Who knows.  But with the 
questions 
posed as they were - there  was nothing they could get out of them.  The 
questions are so objective  that no one could get anything out of the survey 
and most 
surveys are like  that.  Those being  surveyed are like "test rats."   I have 
filled out one too  many.

 

 
 
Julia, you are abouth the 20th person who has come  to this list in the same 
manner for the same purpose.  I DO understand that you,  in your here and now, 
think the  survey willl do something helpful.  I've been there on your end 
(even as  a person who acquired a severe disability) so I know.  Actually, I am 
 
from your neck of the woods (45 Minute Drive to Ithaca) and it was once "my 
job" to attend a  two-day seminar/workshop on everything surrounding people 
with disabilities  and education and the laws surrounding it.  What a waste of 
two  days!  BUT, to the people conducting the seminar, it was supposedly  
meaningful.  But, they thought they had all the answers.  Or, more  
importantly, it 
made them feel like they were doing something  "meaningful."  All able-bodied 
folks don't you  know.

 

 
These "surveys" for people with disabilities or  spinal cord injuries have 
never done anything but give the students,  universities, organizations (as 
surveyors) to do nothing more than a  "project."  Again, in my naïveté, I was 
once 
in your position as a  surveyor as a person with a disability trying to 
survey "others" for myself  and to the organization or school, etc, that I was 
affiliated with.  To  what end?  Nada.  
 

 
OUR participation in "meaningful activities" is no  more different than those 
who are able bodied.  Think about it.   After my injury, and in rehab 
afterward - I had many OTs.  Of all the  therapists out there - I have found 
them to 
be narrowminded and  "one-size-fits-all."  PTs are great but single OT I had 
-- thought  that if one particular piece of adaptive equipment worked for one 
disabled  person - it would certainly work for others.  And they were all very  
"pushy."
 

 
Also, I take offense (and I think others would as  well) to have you telling 
us what to  do if we feel we are  uncomfortable at any point in filling out 
the survey.  Now that takes the  cake!   As if we would not know what to do - 
which would be to  just that - stop.  But that is another common character 
trait 
of OTs -  TELL people how and when to do things.   
 

 
Sorry I sound so abrasive but it is really more than  my opinion - it is fact 
from personal experience.   
 

 
Anyway, as an individual and not a surveyor -- have  a Merry Christmas and a 
prosperous new year!   
 

 
Lori
 



On Sun, Dec 14, 2008 at 1:36 PM, <_wheelch...@aol.com_ 
(mailto:wheelch...@aol.com) >  wrote: 
 
 
Hi Julia,  
 
Not trying to be  disrespectful, but what's in it for the members here?  You 
want valuable  info without
 
compensation?   You and those you represent will benefit with a grant or 
study money and those  who complete the survey, receive nothing.   Nada.
 
Getting something in  return like coupons for McDonalds or making a 
contribution to the host of  the
 
Quad List for his  expenses.  Its called, pay for play or.. credible  
facts.
 

 
Best  Wishes
 
W
 
 
 

 
 
In a message dated  12/13/2008 5:43:49 P.M. Central Standard Time, 
_jster...@ithaca.edu_ (mailto:jster...@ithaca.edu)   writes:

Hello,

My  name is Julia Sterman. I 

FW: [QUAD-L] occupational identity following traumatic injury survey

2008-12-17 Thread Merrill
People I had done surveys for usually contacted me to thank me personally.
Perhaps it is a college paper or other assignment that someone is working
on, right, who knows, but they are done and people seem to really appreciate
my time to help.  What do I get out of it mentality is legitimate but look,
someone has an interest and simply requesting help.

mb

 

  _  

From: Lori Michaelson [mailto:lorilivin...@gmail.com] 
Sent: Monday, December 15, 2008 3:36 PM
To: wheelch...@aol.com; quad-list@eskimo.com; jster...@ithaca.edu
Subject: Re: [QUAD-L] occupational identity following traumatic injury
survey

 

Yes, W, I most certainly agree regarding these surveys and always have.   Or
have leaned - the hard way.  I was once young and green and naïve to
actually take part in these type of surveys.

 

Over the last 29 yrs of acquiring an SCI - I have done a "several" surveys
of this sort.  Even via mail.  The last one I did was 11 years ago.  The
results of all the surveys I've filled out?  Who knows.  But with the
questions posed as they were - there was nothing they could get out of them.
The questions are so objective that no one could get anything out of the
survey and most surveys are like that.  Those being surveyed are like "test
rats."   I have filled out one too many.

 

Julia, you are abouth the 20th person who has come to this list in the same
manner for the same purpose.  I DO understand that you, in your here and
now, think the survey willl do something helpful.  I've been there on your
end (even as a person who acquired a severe disability) so I know.
Actually, I am from your neck of the woods (45 Minute Drive to Ithaca) and
it was once "my job" to attend a two-day seminar/workshop on everything
surrounding people with disabilities and education and the laws surrounding
it.  What a waste of two days!  BUT, to the people conducting the seminar,
it was supposedly meaningful.  But, they thought they had all the answers.
Or, more importantly, it made them feel like they were doing something
"meaningful."  All able-bodied folks don't you know.

 

These "surveys" for people with disabilities or spinal cord injuries have
never done anything but give the students, universities, organizations (as
surveyors) to do nothing more than a "project."  Again, in my naïveté, I was
once in your position as a surveyor as a person with a disability trying to
survey "others" for myself and to the organization or school, etc, that I
was affiliated with.  To what end?  Nada.  

 

OUR participation in "meaningful activities" is no more different than those
who are able bodied.  Think about it.  After my injury, and in rehab
afterward - I had many OTs.  Of all the therapists out there - I have found
them to be narrowminded and "one-size-fits-all."  PTs are great but single
OT I had -- thought that if one particular piece of adaptive equipment
worked for one disabled person - it would certainly work for others.  And
they were all very "pushy."

 

Also, I take offense (and I think others would as well) to have you telling
us what to do if we feel we are uncomfortable at any point in filling out
the survey.  Now that takes the cake!   As if we would not know what to do -
which would be to just that - stop.  But that is another common character
trait of OTs - TELL people how and when to do things.  

 

Sorry I sound so abrasive but it is really more than my opinion - it is fact
from personal experience.  

 

Anyway, as an individual and not a surveyor -- have a Merry Christmas and a
prosperous new year!  

 

Lori


 

On Sun, Dec 14, 2008 at 1:36 PM,  wrote:

Hi Julia, 

Not trying to be disrespectful, but what's in it for the members here?  You
want valuable info without

compensation?  You and those you represent will benefit with a grant or
study money and those who complete the survey, receive nothing.  Nada.

Getting something in return like coupons for McDonalds or making a
contribution to the host of the

Quad List for his expenses.  Its called, pay for play or.. credible
facts.

 

Best Wishes

W

 

In a message dated 12/13/2008 5:43:49 P.M. Central Standard Time,
jster...@ithaca.edu writes:

Hello,

My name is Julia Sterman. I am a graduate student in Occupational
Therapy at Ithaca College in Ithaca, NY. I am currently working on my
thesis project, which will investigate traumatic injury and its
impact on meaningful activities. After reading this letter you will
be given the opportunity to complete an online survey regarding your
participation in meaningful activities following your injury. This
survey should take approximately 10 minutes to complete.

I am looking for individuals who are over the age of 18 and have had
a traumatic physical injury between one (1) and five (5) years ago.
Due to the support groups contacted, most participants will have
amputations, burns, or spinal co

Re: [QUAD-L] occupational identity following traumatic injury survey

2008-12-15 Thread wheelchair
Well you are not far from the truth either.  Did you read recently  that 
Alaska and North Dakota beat us out as more corrupt? So did DC, Louisiana,  
Mississippi, Montana and Kentucky.  Goes to prove that it ain't easy to be  the 
bestest mostest corruptist state in the country.  But we try  harder!
(lol)
 
Best Wishes
 
 
In a message dated 12/15/2008 8:21:56 P.M. Central Standard Time,  
sant...@cox.net writes:

Ya know,  W... anyone watching the news lately, or SNL for that matter, is 
beginning to  understand Illinois "Pay to Play" situation.  

Best,
Tod

 wheelch...@aol.com wrote:  
> Amen, Amen, Amen Lori!  LOL
>  
> But then I'm  a big supporter of Pay for Play and Surveys.  Some states  
have  
> right to work laws... Illinois has "Pay to Play" laws, if you get  my  
drift.  
> Once you have been paid to do a survey, giving  it away seems  
> senseless   Or is that me  again, lol.
>  
> Best Wishes
>  
>   
> In a message dated 12/15/2008 5:36:52 P.M. Central Standard  Time,  
> lorilivin...@gmail.com writes:
> 
> Yes, W, I  most certainly agree regarding these surveys  and always  have.  
 Or 
> have leaned - the hard way.  I was  once  young and green and naïve to 
> actually take part in these  type of  surveys.
>  
>  
> Over the last 29  yrs of acquiring an SCI - I have done a  "several" 
surveys 
> of  this sort.  Even via mail.  The last one I did  was 11 years  ago.  The 
> results of all the surveys I've filled  out?   Who knows.  But with the 
questions 
> posed as  they were - there was nothing  they could get out of them.  The  
> questions are so objective that no one  could get anything out  of the 
survey and most 
> surveys are like that.   Those being  surveyed are like "test  rats."   I 
have 
> filled out  one too  many.
>

>  
> Sorry I sound so abrasive but it is really  more than my  opinion - it is 
fact 
> from personal  experience.  
>  
> Anyway, as an individual and not a  surveyor -- have a Merry  Christmas and 
a 
> prosperous new  year!  
>  
> Lori
> 
> 
> On Sun, Dec  14, 2008 at 1:36 PM, <_wheelch...@aol.com_ 
>  (mailto:wheelch...@aol.com) > wrote:
> 
> 
> Hi Julia,  
> Not trying to be disrespectful, but what's in it for the  members  here?  
You 
> want valuable info without
>  compensation?  You and those you represent will benefit with a   grant or 
> study money and those who complete the survey, receive   nothing.  Nada.
> Getting something in return like coupons for  McDonalds or making a  
> contribution to the host of the
>  Quad List for his expenses.  Its called, pay for play or..   credible 
> facts.
>  
> Best Wishes
>  W
>  
> 
>  
> 
>  
> In a  message dated 12/13/2008 5:43:49 P.M. Central Standard Time, 
>  _jster...@ithaca.edu_ (mailto:jster...@ithaca.edu)  writes:
>  

> Hello,
> 
> My name is Julia Sterman. I am a graduate  student in  Occupational
> Therapy at Ithaca College in Ithaca, NY.  I am currently  working on my
> thesis project, which will  investigate traumatic injury  and its
> impact on meaningful  activities. After reading this letter you  will
> be given the  opportunity to complete an online survey regarding  your
>  participation in meaningful activities following your injury.   This
> survey should take approximately 10 minutes to complete.
>  
> I  am looking for individuals who are over the age of 18 and  have had
> a  traumatic physical injury between one (1) and five  (5) years ago.
> Due  to the support groups contacted, most  participants will  have
> amputations, burns, or spinal cord  injuries, but you can  still
> participate if you have other types  of traumatic injury. You do  not
> need to have received  occupational therapy to participate. Those  who
> have been  diagnosed with a traumatic brain injury or  severe
> intellectual  disability are not included in this  survey.
> 
> The results  of this project will be written and presented  in a
> professional  format. I hope to share my results through  publication
> in a  professional journal or presentation at an  occupational therapy
>  conference so that more people may become aware of  this issue.  The
> results may also be useful to guide how occupational   therapists work
> with individuals who have had similar   injuries.
> 
> There is little risk to completing the survey;  however,  if thinking
> about your responses causes you to feel  distress please  contact a
> source of support. If at any time a  question causes you  discomfort
> you may choose to skip that  question. You can stop  completing the
> survey at any time you  choose. All of your answers will  remain
> anonymous and  confidential. If you continue to feel distress I  would
> encourage  you to seek assistance through local counseling  or
> psychological  services.
> 
> If you have any questions about the  survey or  being a participant,
> please contact me at _jster...@ithaca.edu_  (mailto:jster...@ithaca.edu) . 
or 
> contact Dr. Judy Gonyea,
>  my  thesis adviser, at (607) 2

Re: [QUAD-L] occupational identity following traumatic injury survey

2008-12-15 Thread Tod E. Santee
Ya know, W... anyone watching the news lately, or SNL for that matter, is 
beginning to understand Illinois "Pay to Play" situation.  

Best,
Tod

 wheelch...@aol.com wrote: 
> Amen, Amen, Amen Lori!  LOL
>  
> But then I'm a big supporter of Pay for Play and Surveys.  Some states  have 
> right to work laws... Illinois has "Pay to Play" laws, if you get my  drift.  
> Once you have been paid to do a survey, giving it away seems  
> senseless   Or is that me again, lol.
>  
> Best Wishes
>  
>  
> In a message dated 12/15/2008 5:36:52 P.M. Central Standard Time,  
> lorilivin...@gmail.com writes:
> 
> Yes, W, I most certainly agree regarding these surveys  and always have.   Or 
> have leaned - the hard way.  I was once  young and green and naïve to 
> actually take part in these type of  surveys.
>  
>  
> Over the last 29 yrs of acquiring an SCI - I have done a  "several" surveys 
> of this sort.  Even via mail.  The last one I did  was 11 years ago.  The 
> results of all the surveys I've filled out?   Who knows.  But with the 
> questions 
> posed as they were - there was nothing  they could get out of them.  The 
> questions are so objective that no one  could get anything out of the survey 
> and most 
> surveys are like that.   Those being surveyed are like "test  rats."   I have 
> filled out one too  many.
>
   
>  
> Sorry I sound so abrasive but it is really more than my  opinion - it is fact 
> from personal experience.  
>  
> Anyway, as an individual and not a surveyor -- have a Merry  Christmas and a 
> prosperous new year!  
>  
> Lori
> 
> 
> On Sun, Dec 14, 2008 at 1:36 PM, <_wheelch...@aol.com_ 
> (mailto:wheelch...@aol.com) > wrote:
> 
> 
> Hi Julia, 
> Not trying to be disrespectful, but what's in it for the members  here?  You 
> want valuable info without
> compensation?  You and those you represent will benefit with a  grant or 
> study money and those who complete the survey, receive  nothing.  Nada.
> Getting something in return like coupons for McDonalds or making a  
> contribution to the host of the
> Quad List for his expenses.  Its called, pay for play or..  credible 
> facts.
>  
> Best Wishes
> W
>  
> 
>  
> 
>  
> In a message dated 12/13/2008 5:43:49 P.M. Central Standard Time, 
> _jster...@ithaca.edu_ (mailto:jster...@ithaca.edu)  writes:
> 
> Hello,
> 
> My name is Julia Sterman. I am a graduate student in  Occupational
> Therapy at Ithaca College in Ithaca, NY. I am currently  working on my
> thesis project, which will investigate traumatic injury  and its
> impact on meaningful activities. After reading this letter you  will
> be given the opportunity to complete an online survey regarding  your
> participation in meaningful activities following your injury.  This
> survey should take approximately 10 minutes to complete.
> 
> I  am looking for individuals who are over the age of 18 and have had
> a  traumatic physical injury between one (1) and five (5) years ago.
> Due  to the support groups contacted, most participants will  have
> amputations, burns, or spinal cord injuries, but you can  still
> participate if you have other types of traumatic injury. You do  not
> need to have received occupational therapy to participate. Those  who
> have been diagnosed with a traumatic brain injury or  severe
> intellectual disability are not included in this  survey.
> 
> The results of this project will be written and presented  in a
> professional format. I hope to share my results through  publication
> in a professional journal or presentation at an  occupational therapy
> conference so that more people may become aware of  this issue. The
> results may also be useful to guide how occupational  therapists work
> with individuals who have had similar  injuries.
> 
> There is little risk to completing the survey; however,  if thinking
> about your responses causes you to feel distress please  contact a
> source of support. If at any time a question causes you  discomfort
> you may choose to skip that question. You can stop  completing the
> survey at any time you choose. All of your answers will  remain
> anonymous and confidential. If you continue to feel distress I  would
> encourage you to seek assistance through local counseling  or
> psychological services.
> 
> If you have any questions about the  survey or being a participant,
> please contact me at _jster...@ithaca.edu_ (mailto:jster...@ithaca.edu) . or 
> contact Dr. Judy Gonyea,
> my  thesis adviser, at (607) 274-1737 or _jgon...@ithaca.edu_ 
> (mailto:jgon...@ithaca.edu) . The  survey
> tool is encrypted and secure so all information can only be  accessed
> by the researchers. The Institutional Review Board (IRB) at  Ithaca
> College has approved this study.
> 
> Thank you for taking the  time to complete my survey.
> 
> Sincerely,
> 
> Julia  Sterman
> 
> By following the link below you confirm that you agree to  participate
> in this study, although you may discontinue participation  at any

Re: [QUAD-L] occupational identity following traumatic injury survey

2008-12-15 Thread wheelchair
Amen, Amen, Amen Lori!  LOL
 
We have a very conservative Baptist College down the road from us.   Each 
Spring the graduating students are required to go out into the community  and 
go 
door to door and practice their beliefs and share it with others.   Over the 
years, we know our door will be knocked on several times and we are  always 
prepared.
After 30 years of this, nothing has changed.  The students come and go  and 
we can always expect that knock on the door next spring.
 
Now the "Monkey Survey" got to me too as I could not imagine any crip  
falling for the "monkey thing."
But then I'm a big supporter of Pay for Play and Surveys.  Some states  have 
right to work laws... Illinois has "Pay to Play" laws, if you get my  drift.  
Once you have been paid to do a survey, giving it away seems  
senseless   Or is that me again, lol.
 
Best Wishes
 
 
In a message dated 12/15/2008 5:36:52 P.M. Central Standard Time,  
lorilivin...@gmail.com writes:

Yes, W, I most certainly agree regarding these surveys  and always have.   Or 
have leaned - the hard way.  I was once  young and green and naïve to 
actually take part in these type of  surveys.
 
 
Over the last 29 yrs of acquiring an SCI - I have done a  "several" surveys 
of this sort.  Even via mail.  The last one I did  was 11 years ago.  The 
results of all the surveys I've filled out?   Who knows.  But with the 
questions 
posed as they were - there was nothing  they could get out of them.  The 
questions are so objective that no one  could get anything out of the survey 
and most 
surveys are like that.   Those being surveyed are like "test  rats."   I have 
filled out one too  many.

 
 
Julia, you are abouth the 20th person who has come to this  list in the same 
manner for the same purpose.  I DO  understand that you, in your here and now, 
think  the survey willl do something helpful.  I've been there on your end 
(even  as a person who acquired a severe disability) so I know.  Actually, I am 
 
from your neck of the woods (45 Minute Drive to Ithaca) and it was once "my  
job" to attend a two-day seminar/workshop on everything surrounding people  
with disabilities and education and the laws surrounding it.  What a  waste of 
two days!  BUT, to the people conducting the seminar, it was  supposedly 
meaningful.  But, they thought they had all the answers.   Or, more 
importantly, it 
made them feel like they  were doing something "meaningful."  All able-bodied 
folks don't you  know.

 
These "surveys" for people with disabilities or spinal cord  injuries have 
never done anything but give the students, universities,  organizations (as 
surveyors) to do nothing more than a "project."   Again, in my naïveté, I was 
once 
in your position as a surveyor as a person  with a disability trying to 
survey "others" for myself and to the organization  or school, etc, that I was 
affiliated with.  To what end?   Nada.  
 
OUR participation in "meaningful activities" is no more  different than those 
who are able bodied.  Think about it.  After my  injury, and in rehab 
afterward - I had many OTs.  Of all the therapists  out there - I have found 
them to 
be narrowminded and  "one-size-fits-all."  PTs are great but single OT I had 
-- thought  that if one particular piece of adaptive equipment worked for one 
disabled  person - it would certainly work for others.  And they were all very  
"pushy."
 
Also, I take offense (and I think others would as well) to  have you telling 
us what to  do if we feel we are uncomfortable at any point in  filling out 
the survey.  Now that takes the cake!   As  if we would not know what to do - 
which would be to just that -  stop.  But that is another common character 
trait 
of OTs - TELL people  how and when to do things.  
 
Sorry I sound so abrasive but it is really more than my  opinion - it is fact 
from personal experience.  
 
Anyway, as an individual and not a surveyor -- have a Merry  Christmas and a 
prosperous new year!  
 
Lori


On Sun, Dec 14, 2008 at 1:36 PM, <_wheelch...@aol.com_ 
(mailto:wheelch...@aol.com) > wrote:


Hi Julia, 
Not trying to be disrespectful, but what's in it for the members  here?  You 
want valuable info without
compensation?  You and those you represent will benefit with a  grant or 
study money and those who complete the survey, receive  nothing.  Nada.
Getting something in return like coupons for McDonalds or making a  
contribution to the host of the
Quad List for his expenses.  Its called, pay for play or..  credible 
facts.
 
Best Wishes
W
 

 

 
In a message dated 12/13/2008 5:43:49 P.M. Central Standard Time, 
_jster...@ithaca.edu_ (mailto:jster...@ithaca.edu)  writes:

Hello,

My name is Julia Sterman. I am a graduate student in  Occupational
Therapy at Ithaca College in Ithaca, NY. I am currently  working on my
thesis project, which will investigate traumatic injury  and its
impact on meaningful activities. After reading this letter you  will
be given the oppor

Re: [QUAD-L] occupational identity following traumatic injury survey

2008-12-15 Thread Lori Michaelson
Yes, W, I most certainly agree regarding these surveys and always have.   Or
have leaned - the hard way.  I was once young and green and naïve to
actually take part in these type of surveys.

 Over the last 29 yrs of acquiring an SCI - I have done a "several" surveys
of this sort.  Even via mail.  The last one I did was 11 years ago.  The
results of all the surveys I've filled out?  Who knows.  But with the
questions posed as they were - there was nothing they could get out of
them.  The questions are so objective that no one could get anything out of
the survey and most surveys are like that.  Those being surveyed are like
"test rats."   I have filled out one too many.

 Julia, you are abouth the 20th person who has come to this list in the same
manner for the same purpose.  I *DO* understand that you, in *your* here and
now, think the survey willl do something helpful.  I've been there on your
end (even as a person who acquired a severe disability) so I know.
Actually, I am from your neck of the woods (45 Minute Drive to Ithaca) and
it was once "my job" to attend a two-day seminar/workshop on everything
surrounding people with disabilities and education and the laws surrounding
it.  What a waste of two days!  BUT, to the people conducting the seminar,
it was supposedly meaningful.  But, they thought they had all the answers.
Or, more importantly, it made them feel like *they* were doing something
"meaningful."  All able-bodied folks don't you know.

These "surveys" for people with disabilities or spinal cord injuries have
never done anything but give the students, universities, organizations (as
surveyors) to do nothing more than a "project."  Again, in my naïveté, I was
once in your position as a surveyor as a person with a disability trying to
survey "others" for myself and to the organization or school, etc, that I
was affiliated with.  To what end?  Nada.

OUR participation in "meaningful activities" is no more different than those
who are able bodied.  Think about it.  After my injury, and in rehab
afterward - I had many OTs.  Of all the therapists out there - I have found
them to be narrowminded and "one-size-fits-all."  PTs are great but single
OT I had -- thought that if one particular piece of adaptive equipment
worked for one disabled person - it would certainly work for others.  And
they were all very "pushy."

Also, I take offense (and I think others would as well) to have you *telling
us what to* *do* if we feel we are uncomfortable at any point in filling out
the survey.  Now that takes the cake!   As if we would not know what to do -
which would be to just that - stop.  But that is another common character
trait of OTs - TELL people how and when to do things.

Sorry I sound so abrasive but it is really more than my opinion - it is fact
from personal experience.

Anyway, as an individual and not a surveyor -- have a Merry Christmas and a
prosperous new year!

Lori


On Sun, Dec 14, 2008 at 1:36 PM,  wrote:

>  Hi Julia,
> Not trying to be disrespectful, but what's in it for the members here?  You
> want valuable info without
> compensation?  You and those you represent will benefit with a grant or
> study money and those who complete the survey, receive nothing.  Nada.
> Getting something in return like coupons for McDonalds or making a
> contribution to the host of the
> Quad List for his expenses.  Its called, pay for play or.. credible
> facts.
>
> Best Wishes
> W
>
>  In a message dated 12/13/2008 5:43:49 P.M. Central Standard Time,
> jster...@ithaca.edu writes:
>
> Hello,
>
> My name is Julia Sterman. I am a graduate student in Occupational
> Therapy at Ithaca College in Ithaca, NY. I am currently working on my
> thesis project, which will investigate traumatic injury and its
> impact on meaningful activities. After reading this letter you will
> be given the opportunity to complete an online survey regarding your
> participation in meaningful activities following your injury. This
> survey should take approximately 10 minutes to complete.
>
> I am looking for individuals who are over the age of 18 and have had
> a traumatic physical injury between one (1) and five (5) years ago.
> Due to the support groups contacted, most participants will have
> amputations, burns, or spinal cord injuries, but you can still
> participate if you have other types of traumatic injury. You do not
> need to have received occupational therapy to participate. Those who
> have been diagnosed with a traumatic brain injury or severe
> intellectual disability are not included in this survey.
>
> The results of this project will be written and presented in a
> professional format. I hope to share my results through publication
> in a professional journal or presentation at an occupational therapy
> conference so that more people may become aware of this issue. The
> results may also be useful to guide how occupational therapists work
> with individuals who have had similar injuries.
>
> There is little risk 

Re: [QUAD-L] occupational identity following traumatic injury survey

2008-12-15 Thread John S.
Dear Julia,
If you continue to write such sterile letters you will surely manage your way 
into  law. I'm ok with being asked to do a meaningful survey in ten minutes.  

john

--- On Sat, 12/13/08, Julia Sterman  wrote:
From: Julia Sterman 
Subject: [QUAD-L] occupational identity following traumatic injury survey
To: quad-list@eskimo.com
Date: Saturday, December 13, 2008, 6:43 PM

Hello,

My name is Julia Sterman. I am a graduate student in Occupational
Therapy at Ithaca College in Ithaca, NY. I am currently working on my
thesis project, which will investigate traumatic injury and its



impact on meaningful activities. After reading this letter you will
be given the opportunity to complete an online survey regarding your
participation in meaningful activities following your injury. This
survey should take approximately 10 minutes to complete.




I am looking for individuals who are over the age of 18 and have had
a traumatic physical injury between one (1) and five (5) years ago.
Due to the support groups contacted, most participants will have
amputations, burns, or spinal cord injuries, but you can still



participate if you have other types of traumatic injury. You do not
need to have received occupational therapy to participate. Those who
have been diagnosed with a traumatic brain injury or severe
intellectual disability are not included in this survey.




The results of this project will be written and presented in a
professional format. I hope to share my results through publication
in a professional journal or presentation at an occupational therapy
conference so that more people may become aware of this issue. The



results may also be useful to guide how occupational therapists work
with individuals who have had similar injuries.

There is little risk to completing the survey; however, if thinking
about your responses causes you to feel distress please contact a



source of support. If at any time a question causes you discomfort
you may choose to skip that question. You can stop completing the
survey at any time you choose. All of your answers will remain
anonymous and confidential. If you continue to feel distress I would



encourage you to seek assistance through local counseling or
psychological services.

If you have any questions about the survey or being a participant,
please contact me at jster...@ithaca.edu. or contact Dr. Judy Gonyea,



my thesis adviser, at (607) 274-1737 or jgon...@ithaca.edu. The survey
tool is encrypted and secure so all information can only be accessed
by the researchers. The Institutional Review Board (IRB) at Ithaca



College has approved this study.

Thank you for taking the time to complete my survey.

Sincerely,

Julia Sterman

By following the link below you confirm that you agree to participate
in this study, although you may discontinue participation at any



time. You also acknowledge that 18 years or older.

https://www.surveymonkey.com/s.aspx?sm=qv_2bl3EDxw_2fawV6ZcWnW
52A_3d_3d



  

Re: [QUAD-L] occupational identity following traumatic injury survey

2008-12-14 Thread wheelchair
Hi Julia, 
Not trying to be disrespectful, but what's in it for the members  here?  You 
want valuable info without
compensation?  You and those you represent will benefit with a grant  or 
study money and those who complete the survey, receive nothing.   Nada.
Getting something in return like coupons for McDonalds or making a  
contribution to the host of the
Quad List for his expenses.  Its called, pay for play or..  credible 
facts.
 
Best Wishes
W
 
 
In a message dated 12/13/2008 5:43:49 P.M. Central Standard Time,  
jster...@ithaca.edu writes:

Hello,

My name is Julia Sterman. I am a graduate student in  Occupational
Therapy at Ithaca College in Ithaca, NY. I am currently  working on my
thesis project, which will investigate traumatic injury and  its
impact on meaningful activities. After reading this letter you  will
be given the opportunity to complete an online survey regarding  your
participation in meaningful activities following your injury.  This
survey should take approximately 10 minutes to complete.

I am  looking for individuals who are over the age of 18 and have had
a traumatic  physical injury between one (1) and five (5) years ago.
Due to the support  groups contacted, most participants will have
amputations, burns, or spinal  cord injuries, but you can still
participate if you have other types of  traumatic injury. You do not
need to have received occupational therapy to  participate. Those who
have been diagnosed with a traumatic brain injury or  severe
intellectual disability are not included in this survey.

The  results of this project will be written and presented in a
professional  format. I hope to share my results through publication
in a professional  journal or presentation at an occupational therapy
conference so that more  people may become aware of this issue. The
results may also be useful to  guide how occupational therapists work
with individuals who have had  similar injuries.

There is little risk to completing the survey;  however, if thinking
about your responses causes you to feel distress  please contact a
source of support. If at any time a question causes you  discomfort
you may choose to skip that question. You can stop completing  the
survey at any time you choose. All of your answers will  remain
anonymous and confidential. If you continue to feel distress I  would
encourage you to seek assistance through local counseling  or
psychological services.

If you have any questions about the  survey or being a participant,
please contact me at _jster...@ithaca.edu_ (mailto:jster...@ithaca.edu) . or 
contact Dr. Judy Gonyea,
my  thesis adviser, at (607) 274-1737 or _jgon...@ithaca.edu_ 
(mailto:jgon...@ithaca.edu) . The  survey
tool is encrypted and secure so all information can only be  accessed
by the researchers. The Institutional Review Board (IRB) at  Ithaca
College has approved this study.

Thank you for taking the  time to complete my survey.

Sincerely,

Julia Sterman

By  following the link below you confirm that you agree to participate
in this  study, although you may discontinue participation at any
time. You also  acknowledge that 18 years or older.

_https://www.surveymonkey.com/s.aspx_ (https://www.surveymonkey.com/s.aspx) 
?sm=qv_2bl3EDxw_2fawV6ZcWnW   
52A_3d_3d


**Make your life easier with all your friends, email, and 
favorite sites in one place.  Try it now. 
(http://www.aol.com/?optin=new-dp&icid=aolcom40vanity&ncid=emlcntaolcom0010)


[QUAD-L] occupational identity following traumatic injury survey

2008-12-13 Thread Julia Sterman
Hello,

My name is Julia Sterman. I am a graduate student in Occupational
Therapy at Ithaca College in Ithaca, NY. I am currently working on my
thesis project, which will investigate traumatic injury and its
impact on meaningful activities. After reading this letter you will
be given the opportunity to complete an online survey regarding your
participation in meaningful activities following your injury. This
survey should take approximately 10 minutes to complete.

I am looking for individuals who are over the age of 18 and have had
a traumatic physical injury between one (1) and five (5) years ago.
Due to the support groups contacted, most participants will have
amputations, burns, or spinal cord injuries, but you can still
participate if you have other types of traumatic injury. You do not
need to have received occupational therapy to participate. Those who
have been diagnosed with a traumatic brain injury or severe
intellectual disability are not included in this survey.

The results of this project will be written and presented in a
professional format. I hope to share my results through publication
in a professional journal or presentation at an occupational therapy
conference so that more people may become aware of this issue. The
results may also be useful to guide how occupational therapists work
with individuals who have had similar injuries.

There is little risk to completing the survey; however, if thinking
about your responses causes you to feel distress please contact a
source of support. If at any time a question causes you discomfort
you may choose to skip that question. You can stop completing the
survey at any time you choose. All of your answers will remain
anonymous and confidential. If you continue to feel distress I would
encourage you to seek assistance through local counseling or
psychological services.

If you have any questions about the survey or being a participant,
please contact me at jster...@ithaca.edu. or contact Dr. Judy Gonyea,
my thesis adviser, at (607) 274-1737 or jgon...@ithaca.edu. The survey
tool is encrypted and secure so all information can only be accessed
by the researchers. The Institutional Review Board (IRB) at Ithaca
College has approved this study.

Thank you for taking the time to complete my survey.

Sincerely,

Julia Sterman

By following the link below you confirm that you agree to participate
in this study, although you may discontinue participation at any
time. You also acknowledge that 18 years or older.

https://www.surveymonkey.com/s.aspx?sm=qv_2bl3EDxw_2fawV6ZcWnW52A_3d_3d