RE: [QUAD-L] Hello, encouragment please
Don is right, you won't get much sympathy from us high quads, for myself I would like to be able to feed myself and get a drink whenever I want to, and most of all be able to scratch my nose when inches or get that damn off my neck because I can actually feel that. J The very best advice that I can give you is the same advice that was given to me at the Santa Clara rehab: don't let your disability control you, you control your disability. Good luck and just go for it Joan
Re: [QUAD-L] Hello, encouragment please
Ian, You probably won't find much sympathy here from all of us who have much less physical movement than you have. I'm a c5-6 complete and if I could walk "40 or 50 steps," as you can I'd be doing it every waking minute of the day. I'd be dancing a quad jig! But, we're not in your situation, so can't really know the obstacles and difficulties you face. So, I encourage you to do WHATEVER it takes to strengthen what you have! -go to your local gym and see if there's a trainer willing to help. -check out your nearest university... are they doing any medical/sci studies? -any OT or PT schools near you? -post an ad on craigslist for a workout partner/trainer. -talk to your local newspaper/television station about doing a story about you. Take control, Ian--you can walk! Don. - Original Message - From: Ian Sands To: quad-list@eskimo.com Sent: Wednesday, June 30, 2010 11:09 AM Subject: [QUAD-L] Hello, encouragment please I always have good intentions of exercise / intense strengthening, whatever you might call it to reach my full potential. But intentions are easier than actually being consistent. Two of my obstacles are 1 - a full time job (not complaining) and 2 needing someones help for me to actually do / get to where I know I can get to. Neither are an excuse, just obstacles that I need to figure out. I was injured at 15, now 33. Much time has passed but I know it's still not too late to be in all reality at least 10x better / physically able than I am now. I'm c2 incomplete, right side strongest, use a power chair, with a left afo and walker and help standing I can walk between 40 and 50 steps at a time. But can't stand myself or transfer myself / but the potential is clearly there, much more potential that I can put into words, and too much potential to just let go. There's a gym near my home that I know would benefit me greatly but I would need someone willing to invest their time and energy to help me and for me it's difficult to ask for that kind of help. A friend who'm I've only know a few weeks said he would help (I asked him) Still it's difficult for me to go forward with the gym. Things like him being married gand having kids and make taking time from his family make it difficult for me to really go through with it. On the other end I have a single friend who I asked and he said yes but he was obviously not interested at all. Anyway. I know there's a way. But I don't know where to start - my legs work - my arms work - my abs and back work - but everything needs to and can be strengthened. But where do I start? Right now I try to walk once a day (usually 5 days a week) just to maintain that ability. I have to improve everything, if it was just biceps or quads or 1 or 2 things it would be less overwhelming. But I know that if I can put it together, the rewards will greatly be worth the time effort and pain that I invest. I have a new fes device that I haven't used yet. I hope to make use of it soon. Any suggestions? Where should I start? I don't have access to the internet alot so I can't look up / post as often as I'd like. Would it help if I videoed my ability and limitations and posted them? Would anyone be willing to tell me what and how I should work on things? Anyway, thank you for listening, thank you for your help, please give me your advice. Ian
Re: [QUAD-L] Hello, encouragment please
Ian, So you have a c2 sci, legs, back, arms, abs, trunk muscles all work and you don't exercise because nobody will tell you how or what to do? That's pretty amazing. Did you finish school? Do you have a job? What exactly do you do? Your story is pretty baffling to me. AZDAVE _DAVEOCONNELL.COM_ (http://www.users.qwest.net/~daveoc/) In a message dated 6/30/2010 11:16:14 A.M. US Mountain Standard Time, iansandsphotogra...@yahoo.com writes: I always have good intentions of exercise / intense strengthening, whatever you might call it to reach my full potential. But intentions are easier than actually being consistent. Two of my obstacles are 1 - a full time job (not complaining) and 2 needing someones help for me to actually do / get to where I know I can get to. Neither are an excuse, just obstacles that I need to figure out. I was injured at 15, now 33. Much time has passed but I know it's still not too late to be in all reality at least 10x better / physically able than I am now. I'm c2 incomplete, right side strongest, use a power chair, with a left afo and walker and help standing I can walk between 40 and 50 steps at a time. But can't stand myself or transfer myself / but the potential is clearly there, much more potential that I can put into words, and too much potential to just let go. There's a gym near my home that I know would benefit me greatly but I would need someone willing to invest their time and energy to help me and for me it's difficult to ask for that kind of help. A friend who'm I've only know a few weeks said he would help (I asked him) Still it's difficult for me to go forward with the gym. Things like him being married gand having kids and make taking time from his family make it difficult for me to really go through with it. On the other end I have a single friend who I asked and he said yes but he was obviously not interested at all. Anyway. I know there's a way. But I don't know where to start - my legs work - my arms work - my abs and back work - but everything needs to and can be strengthened. But where do I start? Right now I try to walk once a day (usually 5 days a week) just to maintain that ability. I have to improve everything, if it was just biceps or quads or 1 or 2 things it would be less overwhelming. But I know that if I can put it together, the rewards will greatly be worth the time effort and pain that I invest. I have a new fes device that I haven't used yet. I hope to make use of it soon. Any suggestions? Where should I start? I don't have access to the internet alot so I can't look up / post as often as I'd like. Would it help if I videoed my ability and limitations and posted them? Would anyone be willing to tell me what and how I should work on things? Anyway, thank you for listening, thank you for your help, please give me your advice. Ian
Re: [QUAD-L] Hello, encouragment please
In your example, working with a Physical Therapist in the beginning is great and then with a strength coach at the gym. You have to establish a baseline and a goal. Best Wishes In a message dated 6/30/2010 1:29:13 P.M. Central Daylight Time, iansandsphotogra...@yahoo.com writes: I always have good intentions of exercise / intense strengthening, whatever you might call it to reach my full potential. But intentions are easier than actually being consistent. Two of my obstacles are 1 - a full time job (not complaining) and 2 needing someones help for me to actually do / get to where I know I can get to. Neither are an excuse, just obstacles that I need to figure out. I was injured at 15, now 33. Much time has passed but I know it's still not too late to be in all reality at least 10x better / physically able than I am now. I'm c2 incomplete, right side strongest, use a power chair, with a left afo and walker and help standing I can walk between 40 and 50 steps at a time. But can't stand myself or transfer myself / but the potential is clearly there, much more potential that I can put into words, and too much potential to just let go. There's a gym near my home that I know would benefit me greatly but I would need someone willing to invest their time and energy to help me and for me it's difficult to ask for that kind of help. A friend who'm I've only know a few weeks said he would help (I asked him) Still it's difficult for me to go forward with the gym. Things like him being married gand having kids and make taking time from his family make it difficult for me to really go through with it. On the other end I have a single friend who I asked and he said yes but he was obviously not interested at all. Anyway. I know there's a way. But I don't know where to start - my legs work - my arms work - my abs and back work - but everything needs to and can be strengthened. But where do I start? Right now I try to walk once a day (usually 5 days a week) just to maintain that ability. I have to improve everything, if it was just biceps or quads or 1 or 2 things it would be less overwhelming. But I know that if I can put it together, the rewards will greatly be worth the time effort and pain that I invest. I have a new fes device that I haven't used yet. I hope to make use of it soon. Any suggestions? Where should I start? I don't have access to the internet alot so I can't look up / post as often as I'd like. Would it help if I videoed my ability and limitations and posted them? Would anyone be willing to tell me what and how I should work on things? Anyway, thank you for listening, thank you for your help, please give me your advice. Ian