I think we are talking about AD in a lesser degree is all. That sounds like a
description of how it all begins with me. If you have a sore, well, that can
sure do it. I guess, be glad you can't feel the pain like you would without the
spinal injury. In most cases it is triggered by a full bladder, or bowel, or
pain someplace were you obviously can't feel it but your body is feeling it. I
take pain meds since my doctor had my x-rays done from neck to foot.(head was
empty).
I combine time release synthetic morphine with vicodin. Most days it works
pretty well. I'm thoroughly addicted yet I've never gotten a buzz from any of
it.
I try to get up in my chair each day for six to eight hours. Often, toward the
end of the day, I'm beginning to have the symptoms you described. They slowly
fade after returning to bed and getting my chest raised above my knees. If I
must stay up in my chair longer, I recline and tilt for longer periods. Like
10 minutes after 20 minutes of sitting up straight.
Pot helps when I'm still having problems and I'm in bed. It is the perfect
sleep assist medicine and it helps me not to get nauseas and throw up.
I don't know if you have that trouble. I get other seizures now and again and
they ruin any desire for food. These seizures are not like AD at all. If my
doctor ever hits on a drug that works, I'll sure let you know. We are still
trying different combinations of drugs with very little real results. I think
it's all in my head!
We should all be keeping a journal about the seizures we have. More and more,
mine come with chest pain and that isn't a good thing. Most quads die from AD
seizures that cause strokes and heart attacks. It is not just uncomfortable
sweats.
Definitely discuss it with your doctor and keep some blood pressure pills on
hand.
All my best wishes,
john
- Original Message
From: Lori Michaelson [EMAIL PROTECTED]
To: Paul Jacobson [EMAIL PROTECTED]; quad-list@eskimo.com
Sent: Saturday, February 2, 2008 8:12:15 PM
Subject: [QUAD-L] Re: Weird condition
That, Paul, is most probably your problem and maybe you can pinpoint it better
by when your sore started compared to when your symptoms began. No, no itching
problems for me. Just those awful clammy sweats but, weirdly enough, those
clammy sweats were on the upper left quadrant of my body while my little sore
was on the right side of my right foot.
Nothing new under the sun however... something was wrong and my body was
reacting to it. More strangely however was that a little over two years ago I
had a sore in that same spot but none of the terrible clammy sweats or any
other symptoms from that one. But I think we caught that one quickly and I
went without a right shoe long before any symptoms had a chance to start.
Me no like football. :-)
Lori Michaelson
C4/5 complete quad, 28 years post
Tucson, AZ
On Feb 2, 2008 9:08 AM, Paul Jacobson [EMAIL PROTECTED] wrote:
Hi Lori,
WOW!
That's it..you had exactly what I
have! Right down to the
sweating on just one side of my
body!
What I forgot to say.is that I have
a pressure sore (3 months
now) that is
healing wellon my right
leg...the same side I sweat.
One side of my forehead would be dripping
soaking wet
while the other is bone
dry.
It seems.I have to wait until it
heals.before the 2ndary
symptoms subside.
Did you have any skin
itching?
Thanks so much.
I hope you're going to the game
tomorrow!
pj
- Original Message -
From:
Lori
Michaelson
To: Paul Jacobson ; quad-list@eskimo.com
Sent: Friday, February 01, 2008 5:04
PM
Subject: Re: Weird condition
That happened to me quite recently and it lasted for several
months. I thought for sure that t had to be one of two things... my
spine or my hemorrhoids. Come to find out... there was a tiny pressure
sore just underneath my right foot on the right side (near my pinky toe) but
not visible to either my home health aide (even when she was washing my feet)
or my husband who can usually see and keeps an eye on me for skin problems
all
the time. It was just a quite hidden location so it was
overlooked.
I knew something was wrong but I had no idea
what it could be. And it would do just what you said. Sometimes it
would only last for five minutes and I would have the terrible clammy sweats
on the left side of my body up by my shoulder blade and back-- and the
goosebumps. Other times it would last for an hour. And some days
it did not happen at all. Crazy! One would think that if it
hurt... it would get worse during the day. But nope... it got better as
the day wore on. Nuts!
Sometimes it's the least thing you would
expect so I have no idea what to tell you since it took us months and someone
to sit in the very place where they could see my little pressure sore
directly. So I had to go
