Re: [QUAD-L] Fingers crossed that I'm doing this properly. If not just send it back. Thanks.

2022-10-07 Thread Shala Silverstein 
Lissette, also senokot ass has helped me wonders, it's a laxative with a
stimulant so you better be by a toilet after 12 hours! It has the push
behind it to help you go! My doctor told me to try this after 20 years of
doing it by myself! Wtf!

On Sun, Oct 2, 2022, 6:06 PM Lissette Whitehead 
wrote:

> Sorry, I meant to reply to Shala but thanks for your input Carla! 
>
> Lissette Whitehead
> (949)505-8005
> --
> *From:* Lissette Whitehead 
> *Sent:* Sunday, October 2, 2022 3:03:26 PM
> *To:* Carla Aarssen ; Shala Silverstein <
> chopsk...@gmail.com>; quad-list@eskimo.com 
> *Subject:* Re: [QUAD-L] Fingers crossed that I'm doing this properly. If
> not just send it back. Thanks.
>
> Hello Carla, I recently discovered that I have hemorrhoids as well, I
> guess from so much constipation and didge shimming. I also noticed
> increased spasms, especially when I’m in bed, it’s not too bad, it’s
> usually just when I first lay down and then they calm down. I think my
> mattress helps a lot, it’s a gel mattress, however I do have a big butt
> which probably helps too. I can’t sleep on my side because my shoulders
> start hurting after 15-20 minutes, so I sleep on my back all night. I’ve
> tried hemorrhoid creams but didn’t help much. I read that taking an
> anti-inflammatory could help, I haven’t tried it yet but I think the best
> thing to do is to address the hemorrhoids. I think also fiber rich diet
> might help. Also, not sure if the hemorrhoids are obstructing my bowels
> from coming out, because I've been having the hardest time lately. Maybe
> seeing a doctor for the hemorrhoid issue it's not a bad idea.
>
> Lissette Whitehead
> (949)505-8005
> --
> *From:* Carla Aarssen 
> *Sent:* Sunday, October 2, 2022 10:02:23 AM
> *To:* Shala Silverstein ; quad-list@eskimo.com <
> quad-list@eskimo.com>
> *Subject:* Re: [QUAD-L] Fingers crossed that I'm doing this properly. If
> not just send it back. Thanks.
>
> Do you have an air mattress? Because they are awesome for relieving
> pressure. Most of the time I set mine to float but if I have a pressure
> sore I set it to alternate and it will move air side to side kind of like
> you are doing with pillow but more often and while you sleep.
> I also have issues with hemorrhoids I spent 4yrs every 3 months having
> them banded (rubber bands caught off blood supply) and they would fall off
> within 4 days. But Dr told me we would never get ahead this way so he
> finally referred me to a surgeon to have them removed. That was at the
> beginning of Covid unfortunately I am still on waiting list for surgery.
> Anyway I am same level quad as you and my accident was in 2002 so almost
> as many years post injury as well. If you would like to share with
> eachother my email is caars...@hotmail.com. You can also find me on
> Facebook.
> Wishing you all the best!
> Carla Aarssen
>
> Get Outlook for Android 
> --
> *From:* Shala Silverstein 
> *Sent:* Sunday, October 2, 2022 12:28:47 AM
> *To:* quad-list@eskimo.com 
> *Subject:* [QUAD-L] Fingers crossed that I'm doing this properly. If not
> just send it back. Thanks.
>
> Hello my name is Shala & I had a car accident in 1999 that left me a
> complete C-4,5 & 6 quadriplegic. Since then I've had a couple bumps in the
> road but nothing major. Now almost 24 years later, I think some things are
> taking a toll on my body & I've come to a crossroad & am looking for some
> experienced advice. That being said let me tell you about my situation, I'm
> sure most quads will understand when I say that bowel movements can be
> tough, we need assistance. I've heard it referred to as "ditch stem", &
> manual disimpaction. Well after doing things this way for usually 5 days
> out of the week, I've ended up with some hemorrhoids. So when nighttime
> comes I'm unable to lay flat on my back not only because of the hemorrhoids
> but because of my bony coccyx. For the last 10 years I've used a pregnancy
> pillow, and to keep me over on my side I'll use a wedge or a regular
> pillow. After 2 hours I'm awoken in such pain in my back because of either
> the pillow or the wedge, so I will switch sides and it starts all over
> again. I'm wondering if anybody else deals with these two problems and has
> a better way of staying off their coccyx and their butt area. Looking
> forward to any advice, Shala.
>

Re: [QUAD-L] Fingers crossed that I'm doing this properly. If not just send it back. Thanks.

2022-10-07 Thread Shala Silverstein 
Hello Lissette!! Thanks for your advice! Well my butt isn't that big, with
all the atrophy, it's pretty much just bones! Oh how I miss my old ass!!
{RIP LOL!} Anyways, you lay flat on your back all night?? You don't use
anything to get off your backside? I have been alternating with a wedge and
a pillow and yes it kills my shoulders! I sat in a donut for a few years &
my doc said that could have contributed to my roids .. what state are you
writing from? Much appreciated advice, Shala

On Sun, Oct 2, 2022, 6:03 PM Lissette Whitehead 
wrote:

> Hello Carla, I recently discovered that I have hemorrhoids as well, I
> guess from so much constipation and didge shimming. I also noticed
> increased spasms, especially when I’m in bed, it’s not too bad, it’s
> usually just when I first lay down and then they calm down. I think my
> mattress helps a lot, it’s a gel mattress, however I do have a big butt
> which probably helps too. I can’t sleep on my side because my shoulders
> start hurting after 15-20 minutes, so I sleep on my back all night. I’ve
> tried hemorrhoid creams but didn’t help much. I read that taking an
> anti-inflammatory could help, I haven’t tried it yet but I think the best
> thing to do is to address the hemorrhoids. I think also fiber rich diet
> might help. Also, not sure if the hemorrhoids are obstructing my bowels
> from coming out, because I've been having the hardest time lately. Maybe
> seeing a doctor for the hemorrhoid issue it's not a bad idea.
>
> Lissette Whitehead
> (949)505-8005
> --
> *From:* Carla Aarssen 
> *Sent:* Sunday, October 2, 2022 10:02:23 AM
> *To:* Shala Silverstein ; quad-list@eskimo.com <
> quad-list@eskimo.com>
> *Subject:* Re: [QUAD-L] Fingers crossed that I'm doing this properly. If
> not just send it back. Thanks.
>
> Do you have an air mattress? Because they are awesome for relieving
> pressure. Most of the time I set mine to float but if I have a pressure
> sore I set it to alternate and it will move air side to side kind of like
> you are doing with pillow but more often and while you sleep.
> I also have issues with hemorrhoids I spent 4yrs every 3 months having
> them banded (rubber bands caught off blood supply) and they would fall off
> within 4 days. But Dr told me we would never get ahead this way so he
> finally referred me to a surgeon to have them removed. That was at the
> beginning of Covid unfortunately I am still on waiting list for surgery.
> Anyway I am same level quad as you and my accident was in 2002 so almost
> as many years post injury as well. If you would like to share with
> eachother my email is caars...@hotmail.com. You can also find me on
> Facebook.
> Wishing you all the best!
> Carla Aarssen
>
> Get Outlook for Android 
> --
> *From:* Shala Silverstein 
> *Sent:* Sunday, October 2, 2022 12:28:47 AM
> *To:* quad-list@eskimo.com 
> *Subject:* [QUAD-L] Fingers crossed that I'm doing this properly. If not
> just send it back. Thanks.
>
> Hello my name is Shala & I had a car accident in 1999 that left me a
> complete C-4,5 & 6 quadriplegic. Since then I've had a couple bumps in the
> road but nothing major. Now almost 24 years later, I think some things are
> taking a toll on my body & I've come to a crossroad & am looking for some
> experienced advice. That being said let me tell you about my situation, I'm
> sure most quads will understand when I say that bowel movements can be
> tough, we need assistance. I've heard it referred to as "ditch stem", &
> manual disimpaction. Well after doing things this way for usually 5 days
> out of the week, I've ended up with some hemorrhoids. So when nighttime
> comes I'm unable to lay flat on my back not only because of the hemorrhoids
> but because of my bony coccyx. For the last 10 years I've used a pregnancy
> pillow, and to keep me over on my side I'll use a wedge or a regular
> pillow. After 2 hours I'm awoken in such pain in my back because of either
> the pillow or the wedge, so I will switch sides and it starts all over
> again. I'm wondering if anybody else deals with these two problems and has
> a better way of staying off their coccyx and their butt area. Looking
> forward to any advice, Shala.
>

Re: [QUAD-L] Fingers crossed that I'm doing this properly. If not just send it back. Thanks.

2022-10-03 Thread wheelsdw 

Hi,
I have been c/5 since 1996. i've been through the awful "hemmy" years. I 
dreaded bowel days which were every other day. I tried dozens of things 
to help with hemmys. I ended up having surgery to cut them off. And I 
started drinking Mirlax to soften stool. Then use magic bullets & 
Enemezz(sp?) .
I had to strict diet, watch what I ate & when. Couple years ago, i got 
sore by cocyx area. I ended up getting colostomy operation. Wow, what 
relief of doing bowel care.
I got an air mattress and roho air cushion to deal with sores. You can 
get air mattress on Amazon way cheaper than medical supply dealer.


I did get lot pain from laying on my side even on air mattress. I have 
to take pain meds.


There is some cushions that have cocyx are cut out. There alternating 
cushions too. expensive.
I tried different donuts cushions. I would love to develop a cushion to 
keep your scrotum are from touching anything. lay on memory foam with 
cutout. or cushion with cut out.

derrick in getting cold PA


On 10/2/22 1:02 PM, Carla Aarssen wrote:
Do you have an air mattress? Because they are awesome for relieving 
pressure. Most of the time I set mine to float but if I have a 
pressure sore I set it to alternate and it will move air side to side 
kind of like you are doing with pillow but more often and while you sleep.
I also have issues with hemorrhoids I spent 4yrs every 3 months having 
them banded (rubber bands caught off blood supply) and they would fall 
off within 4 days. But Dr told me we would never get ahead this way so 
he finally referred me to a surgeon to have them removed. That was at 
the beginning of Covid unfortunately I am still on waiting list for 
surgery.
Anyway I am same level quad as you and my accident was in 2002 so 
almost as many years post injury as well. If you would like to share 
with eachother my email is caars...@hotmail.com. You can also find me 
on Facebook.

Wishing you all the best!
Carla Aarssen

Get Outlook for Android 

*From:* Shala Silverstein 
*Sent:* Sunday, October 2, 2022 12:28:47 AM
*To:* quad-list@eskimo.com 
*Subject:* [QUAD-L] Fingers crossed that I'm doing this properly. If 
not just send it back. Thanks.
Hello my name is Shala & I had a car accident in 1999 that left me a 
complete C-4,5 & 6 quadriplegic. Since then I've had a couple bumps in 
the road but nothing major. Now almost 24 years later, I think some 
things are taking a toll on my body & I've come to a crossroad & am 
looking for some experienced advice. That being said let me tell you 
about my situation, I'm sure most quads will understand when I say 
that bowel movements can be tough, we need assistance. I've heard it 
referred to as "ditch stem", & manual disimpaction. Well after doing 
things this way for usually 5 days out of the week, I've ended up with 
some hemorrhoids. So when nighttime comes I'm unable to lay flat on my 
back not only because of the hemorrhoids but because of my bony 
coccyx. For the last 10 years I've used a pregnancy pillow, and to 
keep me over on my side I'll use a wedge or a regular pillow. After 2 
hours I'm awoken in such pain in my back because of either the pillow 
or the wedge, so I will switch sides and it starts all over again. I'm 
wondering if anybody else deals with these two problems and has a 
better way of staying off their coccyx and their butt area. Looking 
forward to any advice, Shala.

Re: [QUAD-L] Fingers crossed that I'm doing this properly. If not just send it back. Thanks.

2022-10-02 Thread Danny Hearn 
 I'm looking into getting an air mattress.Do any of you know of a good type 
or kind to buy?? thanks, Dan H***
On Sunday, October 2, 2022 at 10:02:26 PM CDT, Val Cleroux 
 wrote:  
 
 Hi Shala:
I am a C5/6 quad due to a motor vehicle accident in 2000...I had hemorrhoids 
that were bleeding all the time as I also lay on my back.  I am unable to turn 
on my left side and do all my bowel treatments on my right side however, I 
sleep on my back and never get turned. I purchased an air mattress which solved 
my hemorrhoid problem because it allowed me to have air circulation.   
Val Clerouxwww.whyped.ca "Communication is the key to success"   

On Sunday, October 2, 2022 at 12:29:02 a.m. EDT, Shala Silverstein 
 wrote:  
 
 Hello my name is Shala & I had a car accident in 1999 that left me a complete 
C-4,5 & 6 quadriplegic. Since then I've had a couple bumps in the road but 
nothing major. Now almost 24 years later, I think some things are taking a toll 
on my body & I've come to a crossroad & am looking for some experienced advice. 
That being said let me tell you about my situation, I'm sure most quads will 
understand when I say that bowel movements can be tough, we need assistance. 
I've heard it referred to as "ditch stem", & manual disimpaction. Well after 
doing things this way for usually 5 days out of the week, I've ended up with 
some hemorrhoids. So when nighttime comes I'm unable to lay flat on my back not 
only because of the hemorrhoids but because of my bony coccyx. For the last 10 
years I've used a pregnancy pillow, and to keep me over on my side I'll use a 
wedge or a regular pillow. After 2 hours I'm awoken in such pain in my back 
because of either the pillow or the wedge, so I will switch sides and it starts 
all over again. I'm wondering if anybody else deals with these two problems and 
has a better way of staying off their coccyx and their butt area. Looking 
forward to any advice, Shala.

Re: [QUAD-L] Fingers crossed that I'm doing this properly. If not just send it back. Thanks.

2022-10-02 Thread Val Cleroux 
Hi Shala:
I am a C5/6 quad due to a motor vehicle accident in 2000...I had hemorrhoids 
that were bleeding all the time as I also lay on my back.  I am unable to turn 
on my left side and do all my bowel treatments on my right side however, I 
sleep on my back and never get turned. I purchased an air mattress which solved 
my hemorrhoid problem because it allowed me to have air circulation.   
Val Clerouxwww.whyped.ca "Communication is the key to success"   

On Sunday, October 2, 2022 at 12:29:02 a.m. EDT, Shala Silverstein 
 wrote:  
 
 Hello my name is Shala & I had a car accident in 1999 that left me a complete 
C-4,5 & 6 quadriplegic. Since then I've had a couple bumps in the road but 
nothing major. Now almost 24 years later, I think some things are taking a toll 
on my body & I've come to a crossroad & am looking for some experienced advice. 
That being said let me tell you about my situation, I'm sure most quads will 
understand when I say that bowel movements can be tough, we need assistance. 
I've heard it referred to as "ditch stem", & manual disimpaction. Well after 
doing things this way for usually 5 days out of the week, I've ended up with 
some hemorrhoids. So when nighttime comes I'm unable to lay flat on my back not 
only because of the hemorrhoids but because of my bony coccyx. For the last 10 
years I've used a pregnancy pillow, and to keep me over on my side I'll use a 
wedge or a regular pillow. After 2 hours I'm awoken in such pain in my back 
because of either the pillow or the wedge, so I will switch sides and it starts 
all over again. I'm wondering if anybody else deals with these two problems and 
has a better way of staying off their coccyx and their butt area. Looking 
forward to any advice, Shala.

Re: [QUAD-L] Fingers crossed that I'm doing this properly. If not just send it back. Thanks.

2022-10-02 Thread Lissette Whitehead 
Thanks for the input Paul. I’ve never heard of banding but my hemorrhoids are 
on the inside, they don’t really hang. They poke out a little bit every now and 
then but I don’t think banding would work for me. If they do get worse I 
probably will look into surgery. They say soaking them helps too which I 
haven’t tried much but I probably will.

Lissette Whitehead
(949)505-8005

From: Paul Jacobson 
Sent: Sunday, October 2, 2022 4:07:12 PM
To: Danny Hearn ; Carla Aarssen ; 
Shala Silverstein ; quad-list@eskimo.com 
; Lissette Whitehead 
Subject: Re: [QUAD-L] Fingers crossed that I'm doing this properly. If not just 
send it back. Thanks.

Hi Lissette,

I am exactly like youhemorrhoids, back sleeper and spasms when I first lay 
down.
I am in tons of discomfort during the BP.  It always takes me 2 – 3 hours to 
feel
better.  After the BP, it always feels like I still have to go but that 
resolves.

I take Miralax every other day, Benifiber each day, D-Mannose  each day and 
fiber
pills each day. Stay away from using creams for prolonged use, as this can thin 
the
skin, which would make matters worse.

I did look into hemorrhoid banding but decided to pass.  This could be a 
solution.

Wish you well,
pj

From: Danny Hearn
Sent: Sunday, October 2, 2022 3:37 PM
To: Carla Aarssen ; Shala Silverstein ; quad-list@eskimo.com ; Lissette 
Whitehead
Subject: Re: [QUAD-L] Fingers crossed that I'm doing this properly. If not just 
send it back. Thanks.

The method used to help clear bowels is Digital Stimulation, True most Quads 
get hemorrhoids, some need to get them treated or removedso far I have been 
okay with  creams when they get bad. AS far as the problem when doing bowel 
routine...many Quads told me that Miralax can really help and can be taken 
regularly if needed, also was told fiber can help . Dan ***

On Sunday, October 2, 2022 at 05:06:21 PM CDT, Lissette Whitehead 
 wrote:


Sorry, I meant to reply to Shala but thanks for your input Carla! 

Lissette Whitehead
(949)505-8005

From: Lissette Whitehead 
Sent: Sunday, October 2, 2022 3:03:26 PM
To: Carla Aarssen ; Shala Silverstein 
; quad-list@eskimo.com 
Subject: Re: [QUAD-L] Fingers crossed that I'm doing this properly. If not just 
send it back. Thanks.

Hello Carla, I recently discovered that I have hemorrhoids as well, I guess 
from so much constipation and didge shimming. I also noticed increased spasms, 
especially when I’m in bed, it’s not too bad, it’s usually just when I first 
lay down and then they calm down. I think my mattress helps a lot, it’s a gel 
mattress, however I do have a big butt which probably helps too. I can’t sleep 
on my side because my shoulders start hurting after 15-20 minutes, so I sleep 
on my back all night. I’ve tried hemorrhoid creams but didn’t help much. I read 
that taking an anti-inflammatory could help, I haven’t tried it yet but I think 
the best thing to do is to address the hemorrhoids. I think also fiber rich 
diet might help. Also, not sure if the hemorrhoids are obstructing my bowels 
from coming out, because I've been having the hardest time lately. Maybe seeing 
a doctor for the hemorrhoid issue it's not a bad idea.

Lissette Whitehead
(949)505-8005

From: Carla Aarssen 
Sent: Sunday, October 2, 2022 10:02:23 AM
To: Shala Silverstein ; quad-list@eskimo.com 

Subject: Re: [QUAD-L] Fingers crossed that I'm doing this properly. If not just 
send it back. Thanks.

Do you have an air mattress? Because they are awesome for relieving pressure. 
Most of the time I set mine to float but if I have a pressure sore I set it to 
alternate and it will move air side to side kind of like you are doing with 
pillow but more often and while you sleep.
I also have issues with hemorrhoids I spent 4yrs every 3 months having them 
banded (rubber bands caught off blood supply) and they would fall off within 4 
days. But Dr told me we would never get ahead this way so he finally referred 
me to a surgeon to have them removed. That was at the beginning of Covid 
unfortunately I am still on waiting list for surgery.
Anyway I am same level quad as you and my accident was in 2002 so almost as 
many years post injury as well. If you would like to share with eachother my 
email is caars...@hotmail.com. You can also find me on Facebook.
Wishing you all the best!
Carla Aarssen

Get Outlook for Android

From: Shala Silverstein 
Sent: Sunday, October 2, 2022 12:28:47 AM
To: quad-list@eskimo.com 
Subject: [QUAD-L] Fingers crossed that I'm doing this properly. If not just 
send it back. Thanks.

Hello my name is Shala & I had a car accident in 1999 that left me a complete 
C-4,5 & 6 quadriplegic. Since then I've had a couple bumps in the road but 
nothing major. Now almost 24 years later, I think some things are taking a toll 
on my body & I've come to a crossroad & am looking for

Re: [QUAD-L] Fingers crossed that I'm doing this properly. If not just send it back. Thanks.

2022-10-02 Thread Paul Jacobson 
Hi Lissette, 

I am exactly like youhemorrhoids, back sleeper and spasms when I first lay 
down.  
I am in tons of discomfort during the BP.  It always takes me 2 – 3 hours to 
feel 
better.  After the BP, it always feels like I still have to go but that 
resolves.

I take Miralax every other day, Benifiber each day, D-Mannose  each day and 
fiber 
pills each day. Stay away from using creams for prolonged use, as this can thin 
the
skin, which would make matters worse.

I did look into hemorrhoid banding but decided to pass.  This could be a 
solution.

Wish you well,
pj

From: Danny Hearn 
Sent: Sunday, October 2, 2022 3:37 PM
To: Carla Aarssen ; Shala Silverstein ; quad-list@eskimo.com ; Lissette 
Whitehead 
Subject: Re: [QUAD-L] Fingers crossed that I'm doing this properly. If not just 
send it back. Thanks.

The method used to help clear bowels is Digital Stimulation, True most Quads 
get hemorrhoids, some need to get them treated or removedso far I have been 
okay with  creams when they get bad. AS far as the problem when doing bowel 
routine...many Quads told me that Miralax can really help and can be taken 
regularly if needed, also was told fiber can help . Dan ***

On Sunday, October 2, 2022 at 05:06:21 PM CDT, Lissette Whitehead 
 wrote: 


Sorry, I meant to reply to Shala but thanks for your input Carla!  

Lissette Whitehead
(949)505-8005



From: Lissette Whitehead 
Sent: Sunday, October 2, 2022 3:03:26 PM
To: Carla Aarssen ; Shala Silverstein 
; quad-list@eskimo.com 
Subject: Re: [QUAD-L] Fingers crossed that I'm doing this properly. If not just 
send it back. Thanks. 

Hello Carla, I recently discovered that I have hemorrhoids as well, I guess 
from so much constipation and didge shimming. I also noticed increased spasms, 
especially when I’m in bed, it’s not too bad, it’s usually just when I first 
lay down and then they calm down. I think my mattress helps a lot, it’s a gel 
mattress, however I do have a big butt which probably helps too. I can’t sleep 
on my side because my shoulders start hurting after 15-20 minutes, so I sleep 
on my back all night. I’ve tried hemorrhoid creams but didn’t help much. I read 
that taking an anti-inflammatory could help, I haven’t tried it yet but I think 
the best thing to do is to address the hemorrhoids. I think also fiber rich 
diet might help. Also, not sure if the hemorrhoids are obstructing my bowels 
from coming out, because I've been having the hardest time lately. Maybe seeing 
a doctor for the hemorrhoid issue it's not a bad idea.

Lissette Whitehead
(949)505-8005



From: Carla Aarssen 
Sent: Sunday, October 2, 2022 10:02:23 AM
To: Shala Silverstein ; quad-list@eskimo.com 

Subject: Re: [QUAD-L] Fingers crossed that I'm doing this properly. If not just 
send it back. Thanks. 

Do you have an air mattress? Because they are awesome for relieving pressure. 
Most of the time I set mine to float but if I have a pressure sore I set it to 
alternate and it will move air side to side kind of like you are doing with 
pillow but more often and while you sleep.
I also have issues with hemorrhoids I spent 4yrs every 3 months having them 
banded (rubber bands caught off blood supply) and they would fall off within 4 
days. But Dr told me we would never get ahead this way so he finally referred 
me to a surgeon to have them removed. That was at the beginning of Covid 
unfortunately I am still on waiting list for surgery. 
Anyway I am same level quad as you and my accident was in 2002 so almost as 
many years post injury as well. If you would like to share with eachother my 
email is caars...@hotmail.com. You can also find me on Facebook.
Wishing you all the best!
Carla Aarssen

Get Outlook for Android



From: Shala Silverstein 
Sent: Sunday, October 2, 2022 12:28:47 AM
To: quad-list@eskimo.com 
Subject: [QUAD-L] Fingers crossed that I'm doing this properly. If not just 
send it back. Thanks. 

Hello my name is Shala & I had a car accident in 1999 that left me a complete 
C-4,5 & 6 quadriplegic. Since then I've had a couple bumps in the road but 
nothing major. Now almost 24 years later, I think some things are taking a toll 
on my body & I've come to a crossroad & am looking for some experienced advice. 
That being said let me tell you about my situation, I'm sure most quads will 
understand when I say that bowel movements can be tough, we need assistance. 
I've heard it referred to as "ditch stem", & manual disimpaction. Well after 
doing things this way for usually 5 days out of the week, I've ended up with 
some hemorrhoids. So when nighttime comes I'm unable to lay flat on my back not 
only because of the hemorrhoids but because of my bony coccyx. For the last 10 
years I've used a pregnancy pillow, and to

Re: [QUAD-L] Fingers crossed that I'm doing this properly. If not just send it back. Thanks.

2022-10-02 Thread Danny Hearn 
 The method used to help clear bowels is Digital Stimulation, True most Quads 
get hemorrhoids, some need to get them treated or removedso far I have been 
okay with  creams when they get bad. AS far as the problem when doing bowel 
routine...many Quads told me that Miralax can really help and can be taken 
regularly if needed, also was told fiber can help . Dan ***
On Sunday, October 2, 2022 at 05:06:21 PM CDT, Lissette Whitehead 
 wrote:  
 
 Sorry, I meant to reply to Shala but thanks for your input Carla!  
Lissette Whitehead(949)505-8005From: Lissette Whitehead 
Sent: Sunday, October 2, 2022 3:03:26 PM
To: Carla Aarssen ; Shala Silverstein 
; quad-list@eskimo.com 
Subject: Re: [QUAD-L] Fingers crossed that I'm doing this properly. If not just 
send it back. Thanks. Hello Carla, I recently discovered that I have 
hemorrhoids as well, I guess from so much constipation and didge shimming. I 
also noticed increased spasms, especially when I’m in bed, it’s not too bad, 
it’s usually just when I first lay down and then they calm down. I think my 
mattress helps a lot, it’s a gel mattress, however I do have a big butt which 
probably helps too. I can’t sleep on my side because my shoulders start hurting 
after 15-20 minutes, so I sleep on my back all night. I’ve tried hemorrhoid 
creams but didn’t help much. I read that taking an anti-inflammatory could 
help, I haven’t tried it yet but I think the best thing to do is to address the 
hemorrhoids. I think also fiber rich diet might help. Also, not sure if the 
hemorrhoids are obstructing my bowels from coming out, because I've been having 
the hardest time lately. Maybe seeing a doctor for the hemorrhoid issue it's 
not a bad idea.
Lissette Whitehead(949)505-8005From: Carla Aarssen 
Sent: Sunday, October 2, 2022 10:02:23 AM
To: Shala Silverstein ; quad-list@eskimo.com 

Subject: Re: [QUAD-L] Fingers crossed that I'm doing this properly. If not just 
send it back. Thanks. Do you have an air mattress? Because they are awesome for 
relieving pressure. Most of the time I set mine to float but if I have a 
pressure sore I set it to alternate and it will move air side to side kind of 
like you are doing with pillow but more often and while you sleep.I also have 
issues with hemorrhoids I spent 4yrs every 3 months having them banded (rubber 
bands caught off blood supply) and they would fall off within 4 days. But Dr 
told me we would never get ahead this way so he finally referred me to a 
surgeon to have them removed. That was at the beginning of Covid unfortunately 
I am still on waiting list for surgery. Anyway I am same level quad as you and 
my accident was in 2002 so almost as many years post injury as well. If you 
would like to share with eachother my email is caars...@hotmail.com. You can 
also find me on Facebook.Wishing you all the best!Carla Aarssen
Get Outlook for AndroidFrom: Shala Silverstein 
Sent: Sunday, October 2, 2022 12:28:47 AM
To: quad-list@eskimo.com 
Subject: [QUAD-L] Fingers crossed that I'm doing this properly. If not just 
send it back. Thanks. Hello my name is Shala & I had a car accident in 1999 
that left me a complete C-4,5 & 6 quadriplegic. Since then I've had a couple 
bumps in the road but nothing major. Now almost 24 years later, I think some 
things are taking a toll on my body & I've come to a crossroad & am looking for 
some experienced advice. That being said let me tell you about my situation, 
I'm sure most quads will understand when I say that bowel movements can be 
tough, we need assistance. I've heard it referred to as "ditch stem", & manual 
disimpaction. Well after doing things this way for usually 5 days out of the 
week, I've ended up with some hemorrhoids. So when nighttime comes I'm unable 
to lay flat on my back not only because of the hemorrhoids but because of my 
bony coccyx. For the last 10 years I've used a pregnancy pillow, and to keep me 
over on my side I'll use a wedge or a regular pillow. After 2 hours I'm awoken 
in such pain in my back because of either the pillow or the wedge, so I will 
switch sides and it starts all over again. I'm wondering if anybody else deals 
with these two problems and has a better way of staying off their coccyx and 
their butt area. Looking forward to any advice, Shala.

Re: [QUAD-L] Fingers crossed that I'm doing this properly. If not just send it back. Thanks.

2022-10-02 Thread Lissette Whitehead 
Sorry, I meant to reply to Shala but thanks for your input Carla! 

Lissette Whitehead
(949)505-8005

From: Lissette Whitehead 
Sent: Sunday, October 2, 2022 3:03:26 PM
To: Carla Aarssen ; Shala Silverstein 
; quad-list@eskimo.com 
Subject: Re: [QUAD-L] Fingers crossed that I'm doing this properly. If not just 
send it back. Thanks.

Hello Carla, I recently discovered that I have hemorrhoids as well, I guess 
from so much constipation and didge shimming. I also noticed increased spasms, 
especially when I’m in bed, it’s not too bad, it’s usually just when I first 
lay down and then they calm down. I think my mattress helps a lot, it’s a gel 
mattress, however I do have a big butt which probably helps too. I can’t sleep 
on my side because my shoulders start hurting after 15-20 minutes, so I sleep 
on my back all night. I’ve tried hemorrhoid creams but didn’t help much. I read 
that taking an anti-inflammatory could help, I haven’t tried it yet but I think 
the best thing to do is to address the hemorrhoids. I think also fiber rich 
diet might help. Also, not sure if the hemorrhoids are obstructing my bowels 
from coming out, because I've been having the hardest time lately. Maybe seeing 
a doctor for the hemorrhoid issue it's not a bad idea.

Lissette Whitehead
(949)505-8005

From: Carla Aarssen 
Sent: Sunday, October 2, 2022 10:02:23 AM
To: Shala Silverstein ; quad-list@eskimo.com 

Subject: Re: [QUAD-L] Fingers crossed that I'm doing this properly. If not just 
send it back. Thanks.

Do you have an air mattress? Because they are awesome for relieving pressure. 
Most of the time I set mine to float but if I have a pressure sore I set it to 
alternate and it will move air side to side kind of like you are doing with 
pillow but more often and while you sleep.
I also have issues with hemorrhoids I spent 4yrs every 3 months having them 
banded (rubber bands caught off blood supply) and they would fall off within 4 
days. But Dr told me we would never get ahead this way so he finally referred 
me to a surgeon to have them removed. That was at the beginning of Covid 
unfortunately I am still on waiting list for surgery.
Anyway I am same level quad as you and my accident was in 2002 so almost as 
many years post injury as well. If you would like to share with eachother my 
email is caars...@hotmail.com. You can also find me on Facebook.
Wishing you all the best!
Carla Aarssen

Get Outlook for Android

From: Shala Silverstein 
Sent: Sunday, October 2, 2022 12:28:47 AM
To: quad-list@eskimo.com 
Subject: [QUAD-L] Fingers crossed that I'm doing this properly. If not just 
send it back. Thanks.

Hello my name is Shala & I had a car accident in 1999 that left me a complete 
C-4,5 & 6 quadriplegic. Since then I've had a couple bumps in the road but 
nothing major. Now almost 24 years later, I think some things are taking a toll 
on my body & I've come to a crossroad & am looking for some experienced advice. 
That being said let me tell you about my situation, I'm sure most quads will 
understand when I say that bowel movements can be tough, we need assistance. 
I've heard it referred to as "ditch stem", & manual disimpaction. Well after 
doing things this way for usually 5 days out of the week, I've ended up with 
some hemorrhoids. So when nighttime comes I'm unable to lay flat on my back not 
only because of the hemorrhoids but because of my bony coccyx. For the last 10 
years I've used a pregnancy pillow, and to keep me over on my side I'll use a 
wedge or a regular pillow. After 2 hours I'm awoken in such pain in my back 
because of either the pillow or the wedge, so I will switch sides and it starts 
all over again. I'm wondering if anybody else deals with these two problems and 
has a better way of staying off their coccyx and their butt area. Looking 
forward to any advice, Shala.

Re: [QUAD-L] Fingers crossed that I'm doing this properly. If not just send it back. Thanks.

2022-10-02 Thread Lissette Whitehead 
Hello Carla, I recently discovered that I have hemorrhoids as well, I guess 
from so much constipation and didge shimming. I also noticed increased spasms, 
especially when I’m in bed, it’s not too bad, it’s usually just when I first 
lay down and then they calm down. I think my mattress helps a lot, it’s a gel 
mattress, however I do have a big butt which probably helps too. I can’t sleep 
on my side because my shoulders start hurting after 15-20 minutes, so I sleep 
on my back all night. I’ve tried hemorrhoid creams but didn’t help much. I read 
that taking an anti-inflammatory could help, I haven’t tried it yet but I think 
the best thing to do is to address the hemorrhoids. I think also fiber rich 
diet might help. Also, not sure if the hemorrhoids are obstructing my bowels 
from coming out, because I've been having the hardest time lately. Maybe seeing 
a doctor for the hemorrhoid issue it's not a bad idea.

Lissette Whitehead
(949)505-8005

From: Carla Aarssen 
Sent: Sunday, October 2, 2022 10:02:23 AM
To: Shala Silverstein ; quad-list@eskimo.com 

Subject: Re: [QUAD-L] Fingers crossed that I'm doing this properly. If not just 
send it back. Thanks.

Do you have an air mattress? Because they are awesome for relieving pressure. 
Most of the time I set mine to float but if I have a pressure sore I set it to 
alternate and it will move air side to side kind of like you are doing with 
pillow but more often and while you sleep.
I also have issues with hemorrhoids I spent 4yrs every 3 months having them 
banded (rubber bands caught off blood supply) and they would fall off within 4 
days. But Dr told me we would never get ahead this way so he finally referred 
me to a surgeon to have them removed. That was at the beginning of Covid 
unfortunately I am still on waiting list for surgery.
Anyway I am same level quad as you and my accident was in 2002 so almost as 
many years post injury as well. If you would like to share with eachother my 
email is caars...@hotmail.com. You can also find me on Facebook.
Wishing you all the best!
Carla Aarssen

Get Outlook for Android

From: Shala Silverstein 
Sent: Sunday, October 2, 2022 12:28:47 AM
To: quad-list@eskimo.com 
Subject: [QUAD-L] Fingers crossed that I'm doing this properly. If not just 
send it back. Thanks.

Hello my name is Shala & I had a car accident in 1999 that left me a complete 
C-4,5 & 6 quadriplegic. Since then I've had a couple bumps in the road but 
nothing major. Now almost 24 years later, I think some things are taking a toll 
on my body & I've come to a crossroad & am looking for some experienced advice. 
That being said let me tell you about my situation, I'm sure most quads will 
understand when I say that bowel movements can be tough, we need assistance. 
I've heard it referred to as "ditch stem", & manual disimpaction. Well after 
doing things this way for usually 5 days out of the week, I've ended up with 
some hemorrhoids. So when nighttime comes I'm unable to lay flat on my back not 
only because of the hemorrhoids but because of my bony coccyx. For the last 10 
years I've used a pregnancy pillow, and to keep me over on my side I'll use a 
wedge or a regular pillow. After 2 hours I'm awoken in such pain in my back 
because of either the pillow or the wedge, so I will switch sides and it starts 
all over again. I'm wondering if anybody else deals with these two problems and 
has a better way of staying off their coccyx and their butt area. Looking 
forward to any advice, Shala.

Re: [QUAD-L] Fingers crossed that I'm doing this properly. If not just send it back. Thanks.

2022-10-02 Thread Carla Aarssen 
Do you have an air mattress? Because they are awesome for relieving pressure. 
Most of the time I set mine to float but if I have a pressure sore I set it to 
alternate and it will move air side to side kind of like you are doing with 
pillow but more often and while you sleep.
I also have issues with hemorrhoids I spent 4yrs every 3 months having them 
banded (rubber bands caught off blood supply) and they would fall off within 4 
days. But Dr told me we would never get ahead this way so he finally referred 
me to a surgeon to have them removed. That was at the beginning of Covid 
unfortunately I am still on waiting list for surgery.
Anyway I am same level quad as you and my accident was in 2002 so almost as 
many years post injury as well. If you would like to share with eachother my 
email is caars...@hotmail.com. You can also find me on Facebook.
Wishing you all the best!
Carla Aarssen

Get Outlook for Android

From: Shala Silverstein 
Sent: Sunday, October 2, 2022 12:28:47 AM
To: quad-list@eskimo.com 
Subject: [QUAD-L] Fingers crossed that I'm doing this properly. If not just 
send it back. Thanks.

Hello my name is Shala & I had a car accident in 1999 that left me a complete 
C-4,5 & 6 quadriplegic. Since then I've had a couple bumps in the road but 
nothing major. Now almost 24 years later, I think some things are taking a toll 
on my body & I've come to a crossroad & am looking for some experienced advice. 
That being said let me tell you about my situation, I'm sure most quads will 
understand when I say that bowel movements can be tough, we need assistance. 
I've heard it referred to as "ditch stem", & manual disimpaction. Well after 
doing things this way for usually 5 days out of the week, I've ended up with 
some hemorrhoids. So when nighttime comes I'm unable to lay flat on my back not 
only because of the hemorrhoids but because of my bony coccyx. For the last 10 
years I've used a pregnancy pillow, and to keep me over on my side I'll use a 
wedge or a regular pillow. After 2 hours I'm awoken in such pain in my back 
because of either the pillow or the wedge, so I will switch sides and it starts 
all over again. I'm wondering if anybody else deals with these two problems and 
has a better way of staying off their coccyx and their butt area. Looking 
forward to any advice, Shala.