Mike and all,
Forgive me to those that think this is not CS related but many are here
for health reasons and so I send this just in case it clicks with
someones symptoms and helps them. Delete now if not interested. Deb
The MS/gluten/casein connection is
> mostly only anecdotal as it has never really been studied. This is what I
> have:
>
> (1) Roger MacDougall was a famous British playwright, who was diagnosed
> with MS in the 1950's. The doctors felt it was best to keep the information
> from him. They thought it was in his best interests not to tell him what he
> had. It was not until he was bedridden that he learned what illness he had.
> When he knew about it, he did some reading, and went on a gluten & casein
> free diet. He recovered almost totally. This is from CAN A GLUTEN-FREE DIET
> HELP? HOW? by Lloyd Rosenvold, M.D., [Keats Publishing, 27 Pine Street (Box
> 876) New Canaan, CT 06840-0876, 1992, ISBN 0-87983-538-9]. MacDougall
> eventually wrote a pamphlet titled "My Struggle Against Multiple
> Sclerosis", pub 1980 by Regenics Inc, Rt. 10, 2660 Touby Road, Mansfield
> Ohio 44903, Telephone (419) 756-2994 (Cost $2). Now an edited version is on
> the web at:
>
> http://aspin.asu.edu/msnews/mac.htm
> http://www.cris.com/~Debwalt/mylife/roger.shtml
>
> Rosenvold also includes some other anecdotes in his book.
>
> (2) In the Oct. 5, 1974, Lancet, Dr. Norman A. Matheson's letter "Multiple
> Sclerosis and Diet" was published on p. 831, wherein he outlined his having
> been diagnosed with MS and subsequently reading Roger MacDougall's story.
> He then described his return to good health and ended with: "I thank Roger
> MacDougall, whose diet made it possible to carry out these observations."
>
> (3) Ashton Embry has written an article "MS - probable cause and best-bet
> treatment" in which he discusses the dietary and food allergy links to MS.
> The paper is available at: http://www.cris.com/~Debwalt/misc/embryess.shtml
> http://www.2cowherd.net/q/embry.htm or
> http://aspin.asu.edu/msnews/emb696.htm (old version)
>
> (4) In _Gluten Intolerance_ by Beatrice Trum Hunter, Keats Publishing Inc.
> New Canaan, CT. ISBN 0-87983435-8 She talks about a Dr. R. Shatin in
> Australia who "has suggested that an inherited susceptibility to multiple
> sclerosis is from a primary lesion in the small intestine resulting from
> gluten intolerance, and that the demyelination is secondary. Shatin
> suggested that the high incidence of multiple sclerosis in Canada, Scotland
> and western Ireland may be related to the predominant consumption of
> Canadian hard wheat, which has the highest gluten content of all wheat
> varieties. In contrast, the incidence of multiple sclerosis is low among
> indigenous Equatorial Africans who mainly consume non-gluten containing
> grains such as millet."
>
> (5) In _Multiple Sclerosis_, by Jan de Vries, Mainstream Publishing,
> (Thorntons?) UK it recommends absolutely no gluten and very high reduction
> of dairy products, refined sugar, and saturated fats. He says that one of
> his most successful case studies, confirm that 'absolutely not one pinch if
> flour' i.e. absolutely no gluten at all... 'otherwise you are deceiving
> yourself.'
>
> (6) According to Dr. Joe Murray at the University of Iowa there is the
> possibility that the MS patient suffers from a neurologic complication of
> undiagnosed celiac disease. About 5% of celiac patients get nerve damage
> that can vary from tingling and numbness in the feet to confusion, memory
> loss, dizziness and loss of balance, visual abnormalities. This sometimes
> happen in the absence of GI symptoms.
>
> (7) Lutz, W.J., "The Colonisation of Europe and Our Western Diseases",
> Medical Hypotheses, Vol. 45, pages 115-120, 1995
>
> Dr. Lutz argues that there is a clear, inverse relationship between
> civilisatory diseases and the length of time the people of a given region
> of Europe have had to adapt to the high carbohydrate diet associated with
> the cultivation of cereal grains that was begun in the Near East, and
> spread very slowly through Europe.
>
> I quote from the first page of the article:
>
> "In over thirty years of clinical practice, I have found, as published in
> numerous papers and several books (3, 4), that diet works well against
> Crohn's disease, ulcerative colitis, multiple sclerosis, heart failure,
> acne and other problems."
>
> donwiss @ panix.com can e-mail a copy of the article text to those
> requesting.
>
> (8) There is a fellow named Dave Q that has "recovered" with a gluten-free
> diet and lots of supplements. He discusses this, along with other recovery
> stories, on his web site found at: http://www.2cowherd.net/q/ms.htm
>
> (9) There is a newsgroup for those interested in "Natural Recovery" of MS.
> It's alt.support.mult-sclerosis.alternatives. Ask your system administrator
> to add it if you can't find it.
>
> (10) A page on MS and Milk is from the Carbondale Center for Macrobiotic
> Studies and blames dairy for the distribution of MS. Visit:
> http://commercial-directory.clever.net/health/msmilk.htm
> If the page isn't available e-mail donwiss @ panix.com for a copy.
>
> (11) The following is a list of articles in medical journals, which were
> published at about the time that prednisone became popular in the treatment
> of MS. They appear to connect MS with celiac-like intestinal morphology.
>
> Cook, Gupta, Pertschuk, Nidzgorski "Multiple Sclerosis and Malabsorption"
> Lancet; June 24, 1978, p. 1366
>
> Fantelli, Mitsumoto & Sebek "Multiple Sclerosis and Malabsorption" Lancet
> May 13, 1978 p. 1039-1040
>
> Davison, Humphrey, Livesedge et al. "Multiple Sclerosis Research" Elsevier
> Scientific Publishing New York, 1975
>
> I find it curious that the connection between malabsorption and MS stopped
> at about the same time that prednisone and other such steroids became
> the treatment of choice for MS. As I'm sure you know, prednisone incites
> the re-growth of the villi despite the ingestion of gluten, in the celiac
> gut. Investigators who did endoscopies on MS patients admit that they have
> not asked about the patients' use of such drugs.
>
> (12) Some literature from the celiac view point:
>
> Drs. Cooke & Holmes in _Coeliac Disease_ 1984; Churchill Livingstone, NY
> say that 10% of celiacs have neuropathic symptoms. Many appear to be
> associated with demyelination. Fineli et. al. echo that figure in "Adult
> celiac disease presenting as cerebellar syndrome" _Neurology_ 1980; 30:
> 245-249.
>
> Cooke & Holmes come right out and express some of their frustration with
> neurologists for ignoring the potiential for neuropathic celiac.
>
> In this article:
>
> Beversdorf D, Moses P, Reeves A, Dunn J "A man with weight loss, ataxia,
> and confusion for 3 months" _Lancet_ 1996 Feb 17;347(8999):446
>
> They discuss the neurological manifestations of adult celiac disease which
> include cerebellar ataxia, sensory neuropathy, myopathy, hyporeflexis, and
> seizures. These symptoms resemble those of Vitamin E deficiency. Patients
> with abetalipoproteinaenemia, who lack the lipoproteins necessary to carry
> fat-soluble vitamins, have similar symptoms. These patients respond to
> water-miscible Vitamin E supplementation.
>
> In this article:
>
> Cooke WT, Neurologic manifestations of malabsorption. In Handbook of
> clinical neurology, volume 28 (metabolic deficiency diseases of the nervous
> system, part II), Amsterdam; North Holland Publishing Company, 1976;
> 225-41.
>
> They discuss the many neurological manifestations that are associated with
> coeliac disease, including ataxia, peripheral neuropathy, myelopathy,
> myopathy, and dementia.
>
> A new school has emerged, on the heels of the following report:
>
> Hadjivassiliou, et. al. "Does cryptic gluten sensitivity play a part in
> neurological illness?" _Lancet_ 1996; 347: 369-371
>
> They found that 57 percent of those with neurological problems of
> unknown cause also had antibodies to gliadin, which is a component of
> gluten. Sixteen percent of them had coeliac disease, a much higher level
> than normally found. Most of the patients with the anti-gliadin antibodies
> did not have other symptoms of coeliac disease such as poor absorption of
> vitamins.
>
> (13) There is supposedly a book on MS written by a Greg Nooney, a fellow
> that has "cured" himself with a gluten-free diet. He may be in Colorado.
>
> ========================================
>
> For more information on avoiding these foods, these pages have annotated
> links points to many resources:
>
> The Gluten-Free Page: http://www.panix.com/~donwiss/
> The No Milk Page: http://www.panix.com/~nomilk/
>
> And this is the diet that I really think people with MS should be on:
>
> The Paleolithic Diet Page: http://www.panix.com/~paleodiet/
>
> Since switching to it, and not wearing my glasses but occasionally, my
> nearsightedness has improved more than 1.25 diopter in each eye (but I am a
> celiac and don't have MS).
>
--
Debbie McDonald
mailto:lullw...@flash.net
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