Bless your Heart Mimi, Im glad you two still have each other. Galen Falgout
" Focus,Breath,Mindfulness & Love On Sun, Jun 20, 2021 at 12:03 AM Mimi Jasek <mjca...@gmail.com> wrote: > Been quite a while since I let anyone know how he is. Since this was a > milestone day - 80th birthday! - I figured it was time for those who might > wonder or care. > > It has been over a year since his event, and I feel he is so much better > in a number of ways, but not in others. We can actually have semi-regular > conversations now about things. Memory issues still a problem, and some > days I feel his short term memory is getting worse. But he still seems > better communication wise. We found out he is one of those rare individuals > who can not go off blood thinners, for after putting the device in his > heart to prevent clots and get him off these, he had the clot which caused > all this damage within weeks of stopping them. So now he is on the worst > one you can be on, has to get blood draws every two weeks to a month to > check his numbers, and watch certain things in his diet. He started having > weird seizures after the first of this year (Gelastic), made 911 trips in > ambulance twice to the hospital, and did a 72 hour at home brain EEG in > late March. I took my mandatory week off then, for the caregiver is totally > involved in that! Since he never had a seizure during test, they could not > pinpoint location nor definite type, but have to treat symptoms we had. So > back on dosage levels he had right after original event. No more seizures > to date so far. > > Besides simply falling behind in his memory exercises, I have also not > kept up with his PT. I am it, and after working 30-40+ hours a week, coming > home every day at lunch to be with him, plus errands, groceries, bill > paying etc, I just run out of energy. I have begun to worry about physical > changes I have noticed, but at his annual checkup his doc said something > about this. Weight gain can be lack of exercise, but also some of his meds! > Curvature of spine can be stroke related!? He said the brain does not > communicate with the muscles like it used to, so when before Jim could know > to keep his back straight and the muscle memory would do this, that no > longer happens?! I was like oh! So the strength exercises could help, but > in a way his brain would be working against this? I will still try to do > better for both of us - maybe. > > We are both fully vaccinated - doc took care of that as we were on their > list and due to his health issues considered high risk. As his caregiver, I > got bumped up too! I will have some modifications done in our bathroom to > turn our tub into a shower, for I almost could not get him out recently due > to his fatigue level. Safety first. (Retire never?!) > > His use of phone has changed, as some who have tried to call may have > noticed. He watches movies etc on his phone, and will not answer a call > unless I am there for him to ask if he should! He ignores all, which is > tough if I need to check on him. I think after being home he began to feel > safe, and does not need the outside world as much anymore. > > As for me, this last year has taken a toll, and has created some health > issues for me. Am dealing with things, and just keep plugging along. We are > still here, have each other, and take each day as it comes. We’ve got 46 > years now together, and I’ve always told him I want 50 or more if I can get > them! Kind of up to me!! > > Stay safe, be well, and go caving! > > Mimi Jasek > > Sent from my iPhone > _______________________________________________ > Texascavers mailing list | http://texascavers.com > Texascavers@texascavers.com | Archives: > http://www.mail-archive.com/texascavers@texascavers.com/ > http://lists.texascavers.com/listinfo/texascavers >
_______________________________________________ Texascavers mailing list | http://texascavers.com Texascavers@texascavers.com | Archives: http://www.mail-archive.com/texascavers@texascavers.com/ http://lists.texascavers.com/listinfo/texascavers
