Re: [TMIC] TM Question

2006-12-07 Thread Carol E
Cody,
How awful. Sounds like you had a really bad experience, but sure glad you and 
your wife are ok and that there are good people who ran to your assistance.  
I'm am sure the therapy will work wonders.  I just finished 8 weeks of aquatic 
therapy.  I thought I was as good as I was going to get.  Much to my amazement, 
the aquatic therapy helped me even more.
Carol in Culver, IN

  - Original Message - 
  From: Cody Kidwell 
  To: [EMAIL PROTECTED] ; TMIC ; Sally Wilkinson 
  Sent: Wednesday, December 06, 2006 10:56 PM
  Subject: Re: [TMIC] TM Question


  Sally and DebbieWell the Lymphonema Clinic trip was bad. First of all I 
tipped my wheel chair over backwards going down a ramp into the crosswalk. I 
ended up on my back in the middle of the street. People came running to me form 
everywhere. When they lifted me up there were cars parked in the street with 
the doors standing open where they left them coming to my rescue. No damage to 
me or my wheelchair. My wife fell trying to catch me and scraped her knee a 
little. I was pleasantly surprised by the assistance offered by all of the 
strangers passing by. Once in the clinic I found out I will need to go to 
therapy three times a week for four weeks. They will massage and wrap my legs 
to reduce the swellling. Once the swelling is down they will put the support 
hose on them. I will probably have to wear them the rest of my life. I will be 
able to stop taking the Lasix and the coumadin. Then I went to the scales and 
found out I had gained a bunch of weight. When it rains it pours. I am now on 
Effexor and Lyrica as I try to get completely off the Lyrica. Pain level has 
increased some. Will keep you posted on the progress...Cody in Austin
- Original Message - 
From: Sally Wilkinson 
To: 'Cody Kidwell' 
Sent: Monday, December 04, 2006 3:53 AM
Subject: RE: [TMIC] TM Question


Hi my husband had to come off Lyrica as his whole body became swollen 
including his chest which in turn caused him to have breathing difficulties! He 
got off Lyrica ASAP. He then found his legs jumped like mad when he went to bed 
so he started just taking 75mils at night, which did not cause any side effects 
but did help stop the legs jumping! He is now off it completely as he is 
awaiting a spinal implant and was asked to take as little as possible drug wise 
as he has now been taught different  methods to deal with his pain. Hope this 
helps.



Regards



Sally in the UK



-Original Message-
From: Cody Kidwell [mailto:[EMAIL PROTECTED] 
Sent: 01 December 2006 22:43
To: TMIC; [EMAIL PROTECTED]
Subject: Re: [TMIC] TM Question



Debbie Iam going to a Lymphnema Clinic on Tuesday for the swelling. I 
am trying to get off the Lyrica and back on hte Effexor. I did better witht he 
Effexor. I think the Lyrica is affecting my breathing as well. Have you noticed 
any breating problems?Cody 

  - Original Message - 

  From: [EMAIL PROTECTED] 

  To: [EMAIL PROTECTED] 

  Sent: Thursday, November 30, 2006 10:27 PM

  Subject: Re: [TMIC] TM Question



  In a message dated 11/27/2006 9:13:43 P.M. Eastern Standard Time, [EMAIL 
PROTECTED] writes:

Todd and Rogette.I have had a lot of leg swelling since I started 
the Lyrica. I was taking 150mg 2XD and I am now up to 300mg 2XD.  It still does 
not completely control the pain. Today I asked my neurologist about switching 
back to the Effexor. He agreed to switch me back. I had taken Effexor before 
after Lenora from the TMIC list said it had helped her. I switched to the 
Lyrica when it first came out hoping it would be the answer. I think all in all 
the Effexor worked better. I would be interested in hearing about others 
experience with Lyrica and EffexorCody in Austin

  - Original Message - 

  From: Todd Tarno 

  To: [EMAIL PROTECTED] ; tmic-list@eskimo.com 

  Sent: Monday, November 27, 2006 4:03 PM

  Subject: Re: [TMIC] TM Question



  Yes this is part of TM.  I use Lyrica twice a day and Nortriptyline 
once at night time.  It doesn't stop it completely, but it does help a lot.  

  I never got to go to a pain clinic where they could really know what 
medications to give me.  That would be a great place to start.

  Todd in Corpus Christi, TX

  [EMAIL PROTECTED] wrote:

I have had TM for six months. I have it from the waist down and was 
initially paralyed from the waist down. I am now walking on a walker and semi 
on a heme cane. However, I get these strange sensations from the nerves in my 
legs and when I am laying down a burning sensation in my thighs that really 
hurts. Have any of you experienced this and is this medication for it?   



  Hi Cody,



  I also have had extreme leg swelling with Lyrica.  I was on Nuerontin 
initially and then switched to Lyrica.  

[TMIC] December birthdays

2006-12-07 Thread ceckenberg
Sorry to be a little late, but if late, Happy Birthday, re-cycled!

I thought about just skipping it, since I'm late, but thought: that's just
what most folks do to December birthday folks, and I'm not going to.  You
are just as entitled to celebrate as those of us who don't have a birthday
that close to Christmas!   Happy Birthday from Cora!
12-2-74 Meghan
12/2/93 Ashlee Black
12-3 - 53 Wim from Holland
12- 4-34 Jan Burgess
12-8-62 Lori Malloy
12-10-59 Shirley from UK
12-10-77 Lauren in MO
12-11-47 Donna Hodson
12-15-34 Alton
12-15-70 CarolAnn B.L. from South Carolina
12-16-60 Rachael
12-18-57 Rod Jenke
12/23/49 Roger Pratt
  and
12-25 Gilly