[TMIC] low dose naltrexone

2007-02-25 Thread ROBERT DIEHL
my name is robt. diehl Tm since 04/04 i'm74 yrs. old
my dr. gave me a prep. for ldn  4.5 mg  once daily at bed time
been on it for a month now.. the compouding phyrmist that makes it 
for me said that it helps make the immune system stronger...
he said that is a good thing for me...
so far i seem to have better control of my body functions and
my banding and back pain seem to be a little better
prep is for 6 mo. so i'm willing to see what happens...
i have no side effects from it so far
at my age things may go a lot slower so time will tell

have a good day everyone
bob from pa.

Re: [TMIC] numb hand

2007-02-25 Thread Westgold
Call your doctor immediately.  My friend started out slightly numb, and within 
a couple months now she cannot even type or feed herself, she can't hold a 
thing.  I don't know if anything can be done to stop it once it starts, but 
call your doctor immediately.  
  - Original Message - 
  From: [EMAIL PROTECTED] 
  To: tmic-list@eskimo.com 
  Sent: Sunday, February 25, 2007 1:31 PM
  Subject: [TMIC] numb hand


  Has anyone woken up at night with a numb hand? 

  Twice in the last week, I've woken up during the night with my left hand 
numb.  The first time I just chalked it off as being b/c I'd fallen asleep 
laying on my back on an ice pack for a couple of hours.  But when it happened 
again last night, I got a little more concerned.  Part of what makes me more 
concerned is that for the last couple of weeks, my upper spine has been feeling 
a bit weird.  My TM lesion is T6 - T8, but now I'm starting to worry about 
something higher in my back.

  Now that I think about it, when I was jumping (lightly) on the little 
trampoline at PT, I felt this funny feeling in my upper spine (like maybe it 
was sort of jamming together).  Then at water exercise, I've started 
participating in the jumping jacks that sort of does the same thing to my upper 
spine.  Of course, it's not like jumping on the ground b/c the water cushions 
the movement, but maybe my body isn't ready for this.

  Any experiences with these kinds of things?  

  Sally 


RE: [TMIC] low dose naltrexone

2007-02-25 Thread Trudy
Fantastic. ! My neurologist would not prescribe it for me. I hope it
continues working for you! Please  keep us up to date as to how it goes for
you.

Trudy

Virginia 

TM- 02/02 MS - 02/07

 

  _  

From: ROBERT DIEHL [mailto:[EMAIL PROTECTED] 
Sent: Sunday, February 25, 2007 10:30 AM
To: tmic
Cc: jude
Subject: [TMIC] low dose naltrexone

 

my name is robt. diehl Tm since 04/04 i'm74 yrs. old

my dr. gave me a prep. for ldn  4.5 mg  once daily at bed time

been on it for a month now.. the compouding phyrmist that makes it 

for me said that it helps make the immune system stronger...

he said that is a good thing for me...

so far i seem to have better control of my body functions and

my banding and back pain seem to be a little better

prep is for 6 mo. so i'm willing to see what happens...

i have no side effects from it so far

at my age things may go a lot slower so time will tell

 

have a good day everyone

bob from pa.



Re: [TMIC] numb hand

2007-02-25 Thread Sandy Heidel
My TM lesions are in the C3 and C1. I have all kinds of numbness, tingling and 
weird feelings in my hands. None of them are genuine. Things that should cause 
pain do not and so on. But it may be a sign that you are having some lesion 
activity higher up on your cord. I would call and make an appt and get an MRI. 
They should use the contrast dye and it will make any active lesions light up.  
Good luck and don't delay,
Sandy
In snowy, snowy Wisconsin.
  - Original Message - 
  From: [EMAIL PROTECTED] 
  To: tmic-list@eskimo.com 
  Sent: Sunday, February 25, 2007 12:31 PM
  Subject: [TMIC] numb hand


  Has anyone woken up at night with a numb hand? 

  Twice in the last week, I've woken up during the night with my left hand 
numb.  The first time I just chalked it off as being b/c I'd fallen asleep 
laying on my back on an ice pack for a couple of hours.  But when it happened 
again last night, I got a little more concerned.  Part of what makes me more 
concerned is that for the last couple of weeks, my upper spine has been feeling 
a bit weird.  My TM lesion is T6 - T8, but now I'm starting to worry about 
something higher in my back.

  Now that I think about it, when I was jumping (lightly) on the little 
trampoline at PT, I felt this funny feeling in my upper spine (like maybe it 
was sort of jamming together).  Then at water exercise, I've started 
participating in the jumping jacks that sort of does the same thing to my upper 
spine.  Of course, it's not like jumping on the ground b/c the water cushions 
the movement, but maybe my body isn't ready for this.

  Any experiences with these kinds of things?  

  Sally 


[TMIC] Allen Rucker in OKC, OK

2007-02-25 Thread Larry Throne


Allen Rucker, the gentleman who the book abouthis ownbout with TM called "The Best Seat In The House: How I Woke Up One Tuesday and Was Paralyzed For Life."He istouring the country promoting the book and will be in Oklahoma City on Saturday, March 3rd (3 pm) at a bookstore called Full Circle. I am planning on going up there to meet him and would like to invite any of you who might be in the area and can make it to come on up. I hope to be there shortly after 3:00pm. Hope to see you there. The store is called FULL CIRCLE Bookstore, 50 Penn Square, OKC, The store number is 405-842-1840.
Larry in Oklahoma who could bring an extra puppy if someone wanted me too. I only have a few left!

Larry Throne, MSW Don’t miss your chance to WIN 10 hours of private jet travel from Microsoft® Office Live 



Re: [TMIC] numb hand

2007-02-25 Thread Kevin Wolfthal


My hands started getting numb a few years ago.  I've had an MRI of the 
thoracic spine
which didn't show anything, another MRI of the cervical spine which 
showed a lot of arthritis,
in the words of the neurologist.  That neurologist also said that the 
arthritis in my neck has
nothing to do with the numbness in my hands.  She did an EMG and said it 
showed Carpal
Tunnel Syndrome in both hands, and Ulnar nerve damage in my right 
elbow.  I've had
another EMG recently and was told that there is poor conductivity not 
just in the nerves
in my hands, but other nerves coming from my neck.  The doctor doing 
that test said
if I had surgery for the CTS, it might not help.  So I am supposed to 
get tests for
hypothyroid, diabetes, and I don't know what else.  I am fed up with 
doctors, their tests,
and their guessing.  Meanwhile I have trouble buttoning my shirt and 
tying my shoelaces.


I was once told by a neurosurgeon that I had a ruptured disc in my 
neck.  I asked him if
that could be causing the numbness in my feet.  He said:  how could 
that be, your neck
is up there and your feet are down there.  (This was before I had a dx 
of TM.)  Now forgive
me but I think it;s true that if nerves are damaged in the neck, 
anything below that level

can be affected.  But what do I know.

Kevin




Sandy Heidel wrote:
My TM lesions are in the C3 and C1. I have all kinds of numbness, 
tingling and weird feelings in my hands. None of them are genuine. 
Things that should cause pain do not and so on. But it may be a sign 
that you are having some lesion activity higher up on your cord. I 
would call and make an appt and get an MRI. They should use the 
contrast dye and it will make any active lesions light up. 
Good luck and don't delay,

Sandy
In snowy, snowy Wisconsin.

- Original Message -
*From:* [EMAIL PROTECTED] mailto:[EMAIL PROTECTED]
*To:* tmic-list@eskimo.com mailto:tmic-list@eskimo.com
*Sent:* Sunday, February 25, 2007 12:31 PM
*Subject:* [TMIC] numb hand

*Has anyone woken up at night with a numb hand?* 


Twice in the last week, I've woken up during the night with my
left hand numb.  The first time I just chalked it off as being b/c
I'd fallen asleep laying on my back on an ice pack for a couple of
hours.  But when it happened again last night, I got a little more
concerned.  Part of what makes me more concerned is that for the
last couple of weeks, my upper spine has been feeling a bit
weird.  My TM lesion is T6 - T8, but now I'm starting to worry
about something higher in my back.

Now that I think about it, when I was jumping (lightly) on the
little trampoline at PT, I felt this funny feeling in my upper
spine (like maybe it was sort of jamming together).  Then at water
exercise, I've started participating in the jumping jacks that
sort of does the same thing to my upper spine.  Of course, it's
not like jumping on the ground b/c the water cushions the
movement, but maybe my body isn't ready for this.

Any experiences with these kinds of things? 

Sally