RE: [TMIC] med question - meloxicam and baclofen
Good morning everyone. Sorry to break in like this, BUT, I felt it necessary to alert ya'll to the virus warning for Yahoo,Hotmail, And AOL users. Please check out SNOPES.com virus warning. It is true. Be careful. Cammy From: randy rankin [mailto:[EMAIL PROTECTED] Sent: Thursday, April 03, 2008 5:02 PM To: TM Group Subject: [TMIC] med question - meloxicam and baclofen Ok - what's the scoop on these drugs. Have any of you all taken them? Did they help? Where there any significant side effects? I was sent to a bone doc. to have a look. He wants me to try baclofen for spasms, (i didn't know that I was having them - everyone else says that I'm not have spasms - I'm so confussed on the term spasms. - first neuro talked about my legs being spastic because they wouldn't move - he pick them up and the right leg would stick in mid area lol - he'd have to push it back down. When I mentioned spasm later, everyone would look at me oddly and say that I wasn't having spasms. Now this guy is giving me meds for spasms and says that my right leg shows signs of spasticity) He said my vert was great - mild degeneration in mid T and at L-5 S-1 - which I already knew about. The 'arthritis' is genetic/ getting older he said - but it is unusual for my age. He said my 2001 car accident didn't have anything to do with it - but my chiro told me in 01 that it would come in time because it almost always shows up in a few years after a major collision. Anyway - what's the scoop on all these meds. before I decide to go ahead and take them I just wanted find out if it is worth the time. You rock. That's why Blockbuster's offering you one month of Blockbuster Total Accesshttp://us.rd.yahoo.com/evt=47523/*http:/tc.deals.yahoo.com/tc/blockbuster/text5.com, No Cost.
[TMIC] RE: tmic-digest Digest V2008 #158
Spasms vs Spastic : Spasm: is a sudden, involuntary contraction of a muscle, a group of muscles, or a hollow organ, or a similarly sudden contraction of an orifice. It is sometimes accompanied by a sudden burst of pain, but is usually harmless and ceases after a few minutes. Spasmodic muscle contraction may also be due to a large number of medical conditions, however, including the dystonias. Spastic: The term generally originates from spasticity, a medical condition characterized by hypertonia, or a high degree of muscle tightness. Spasticity underlies spastic diplegia and many other forms of cerebral palsy. Spasms come and go.. being spastic, like your leg means that the muscle DOES not know how to relax at all, when put into action, so to speak. Like when your MD held your leg up and it stays there and/or slowly lowers without you doing any of the work. The baclofen will help with this and can improve your walking ability (if you are able to walk). The most COMMON side effects persist or become bothersome: Constipation; dizziness; drowsiness; fatigue; headache; nausea; sleeplessness. Your body will become accustomed to this and you start at a low dose in any case, and titrate up slowly to be able to adjust. Meloxicam is for your arthritis... it's an NSAID (nonsteroidal anti-inflammatory drug) The most COMMON side effects persist or become bothersome: Constipation; diarrhea; dizziness; gas; headache; heartburn; nausea; stomach upset; trouble sleeping. FYI www.drugs.com for when you want to look up drugs. Marieke Date: Fri, 4 Apr 2008 08:34:27 -0700 From: [EMAIL PROTECTED] Subject: tmic-digest Digest V2008 #158 To: [EMAIL PROTECTED] --Forwarded Message Attachment-- tmic-digest Digest Volume 2008 : Issue 158 Today's Topics: [TMIC] med question - meloxicam and [ randy rankin [EMAIL PROTECTED] ] [TMIC] RE: tmic-digest Digest V2008 [ marieke dufresne [EMAIL PROTECTED] ] --Forwarded Message Attachment-- Date: Thu, 3 Apr 2008 17:02:03 -0700 From: [EMAIL PROTECTED] To: tmic-list@eskimo.com Subject: [TMIC] med question - meloxicam and baclofen Ok - what's the scoop on these drugs. Have any of you all taken them? Did they help? Where there any significant side effects? I was sent to a bone doc. to have a look. He wants me to try baclofen for spasms, (i didn't know that I was having them - everyone else says that I'm not have spasms - I'm so confussed on the term spasms. - first neuro talked about my legs being spastic because they wouldn't move - he pick them up and the right leg would stick in mid area lol - he'd have to push it back down. When I mentioned spasm later, everyone would look at me oddly and say that I wasn't having spasms. Now this guy is giving me meds for spasms and says that my right leg shows signs of spasticity) He said my vert was great - mild degeneration in mid T and at L-5 S-1 - which I already knew about. The 'arthritis' is genetic/ getting older he said - but it is unusual for my age. He said my 2001 car accident didn't have anything to do with it - but my chiro told me in 01 that it would come in time because it almost always shows up in a few years after a major collision. Anyway - what's the scoop on all these meds. before I decide to go ahead and take them I just wanted find out if it is worth the time. You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost.--Forwarded Message Attachment-- Date: Fri, 4 Apr 2008 02:56:50 + From: [EMAIL PROTECTED] To: tmic-list@eskimo.com Subject: [TMIC] RE: tmic-digest Digest V2008 #156 re: Gaylon Nurisng School Hi, I am Marieke, 32 yrs old, TM since 2004 (hit me at T1, so I was totally paralyzed from mid-chest down). I now walk with a cane and a long (full, KAFO) brace. I take meds 4x a day, for spasticity, neuro pain, low BP, bowels, bladder... AND I will be graduating from nursing school in 5 weeks! I have 4 weeks of clinical left (16 days) and a week of exams and then a few weeks off then I start work (cross your fingers I have an interview next week). I will not lie, nursing school is hard, freaking hard! Not just because of the course work, but because of TM and what it's left me with (or without) I get physically exhausted and basically have NO energy for anything else. Especially now that I have had 4 days a week of clinical... My back hurts, my leg (good side) hurts, more so after the 4 days of 8 hr shifts on my feet. While it's true you can choose where you want to work when you are done, you still have to be able to get through school and it's requirements in clinical (skills as well as required hours). When I started I had no idea if I would be able to get through ONE day of clinical a week the first year, let alone 2 days (in 2nd year) and 4 days in 3rd! BUT I made it... somehow... not sure how! LOL If you think that you can get through the clinical days your
Re: [TMIC] queston
Jeanne in Dayton, Congratulations on filling warmth on your butt! We'll take progress whereever we can find it. Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis **Planning your summer road trip? Check out AOL Travel Guides. (http://travel.aol.com/travel-guide/united-states?ncid=aoltrv000316)
Re: [TMIC] QUESTION
Ditto. I have not been physically ill, since my TM onset. I did not even get a flu shot this year, but I have not had a cold or flu, or any of these things since I've had TM (knock on wood). Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis **Planning your summer road trip? Check out AOL Travel Guides. (http://travel.aol.com/travel-guide/united-states?ncid=aoltrv000316)
[TMIC] Jude is back in the nursing home
I just spoke with Jude on the telephone and she asked me to update everyone te with her whereabouts. Jude was moved from the hospital to the nursing home (due to the insurance company's insistance) this morning. (Friday) Jude had been given all the information for a move to the town of Fenton, but while on route received word that a room was available in the nursing home in Flushing where she had been before her hospital stay. I don't know who determines what home she goes to, but we all know she didn't receive good care where she is now. She is in private room this time and already wonders if they are going to let her leave the room or keep her in isolation. Jude slept all afternoon and is now ready for those of you who have been in touch by phone. Patti - Michigan
Re: [TMIC] queston
Thank you, Naomi! You are so right in that we get pretty excited whenever there is a positive change even if it is on one's butt!!! I have fallen so many times sitting somewhere because I can't tell if I'm sitting squarely on the seat. We just laugh about it and go on! When I ride the mower I have to feel off and on to make sure I'm even in the center!! And I am sure not complaining because now I can move! But I do want to know how you are! I truly do!! Jeanne ---Original Message--- From: [EMAIL PROTECTED] Date: 4/4/2008 2:16:27 PM To: [EMAIL PROTECTED]; tmic-list@eskimo.com Subject: Re: [TMIC] queston Jeanne in Dayton, Congratulations on filling warmth on your butt! We'll take progress whereever we can find it. Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis Planning your summer road trip? Check out AOL Travel Guides. BackGrnd.jpg
RE: [TMIC] QUESTION
The TM made that some tissue around the spine is damaged. This damaged tissue is seen by the body as wrong element. The immune system attacs this tissue. The fact that some parts are not working or bad working is proof that the immune system is working. Thats why some people get treatments to bring the immune system to zero, in the hope that when it recoveres, the body is back to normal. At the end, I never heard proof it worked, sometimes for a short period. Fact is when I have a UTI, I have erections , while being heathy, forget it. What ever I tried. Also when I go for a pee, I can empty my bladder complete, normal I have to caterise. So when the immune system let me down at some points, parts will work. Wim from Holland Date: Wed, 2 Apr 2008 13:09:29 -0400From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: [TMIC] QUESTION It is funny after having TM for more than 10 years I still don't truly understand it. Do we have weak immune systems or did we merely have an episode in which our immune system did not work properly…a one time (for many of us) thing? Rob in New Jersey _ De mooiste afbeeldingen van Angelina Jolie vind je met Live Search http://search.live.com/images/results.aspx?q=angelina%20jolieFORM=MIINTM
Re: [TMIC] queston
I think it is so strange that sometimes I feel good and other days I have burning and tingling. What makes us feel so different if there is no change? I cannot understand that at all. I have had MRI's every year for the past 5 years and as far as lesions and spots on my brain goes, nothing has changed. Linda in Pa **Planning your summer road trip? Check out AOL Travel Guides. (http://travel.aol.com/travel-guide/united-states?ncid=aoltrv000316)
Re: [TMIC] queston
Me too Linda. Guess that nerve network has a mind of its own. There are times though that I do find an answer if I take my emotional temperature or remind myself that I did a bit more than usual yesterday. There always seems to be a price to pay for anything I do. Most annoying - like TODAY !! Diane in Canada - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] Cc: tmic-list@eskimo.com Sent: Friday, April 04, 2008 6:48 PM Subject: Re: [TMIC] queston I think it is so strange that sometimes I feel good and other days I have burning and tingling. What makes us feel so different if there is no change? I cannot understand that at all. I have had MRI's every year for the past 5 years and as far as lesions and spots on my brain goes, nothing has changed. Linda in Pa -- Planning your summer road trip? Check out AOL Travel Guides.
RE: [TMIC] RE: tmic-digest Digest V2008 #158
no I contacted tm at the ripr old age of 21. I have had two relapses since then. I am now 60 years young ' have had tmsince 2001. It is progressive. I now have contacted ITP and have to undergo Iv immunglobulin five days a week five hours a day; prior to having my spleen removed on April 29th of this month. Life is full of surprises From: jrushton [EMAIL PROTECTED] To: Gerry Surette [EMAIL PROTECTED] Subject: RE: [TMIC] RE: tmic-digest Digest V2008 #158 Date: Fri, 4 Apr 2008 16:03:42 -0500 (Central Daylight Time) Gerry, you were also a nurse??? Jeanne ---Original Message--- From: Gerry Surette Date: 4/4/2008 2:50:57 PM To: [EMAIL PROTECTED] Cc: tmic-list@eskimo.com Subject: RE: [TMIC] RE: tmic-digest Digest V2008 #158 HI; this is Gerry: I am proud of you; I have been following your progress. with your daily clinical days being on your feet 10 to 12 hiours . I know how you must be feeling. been there done that. don't have the tee shirt though. I am going to have my spleen removed on the 29th of april, at the montreal general hospital. would you by any chance be doing your clinical days at that hospital? if so it would be an honor and privilege to meet you. You are an inspiraation ; I have done what you are doing with your life; I know it is hard but the rewards; as far as I am concerned ; are worth it. please keep in touch sincerely gerry From: marieke dufresne [EMAIL PROTECTED] To: tmic-list@eskimo.com Subject: [TMIC] RE: tmic-digest Digest V2008 #158 Date: Fri, 4 Apr 2008 19:10:59 + Spasms vs Spastic : Spasm: is a sudden, involuntary contraction of a muscle, a group of muscles, or a hollow organ, or a similarly sudden contraction of an orifice. It is sometimes accompanied by a sudden burst of pain, but is usually harmless and ceases after a few minutes. Spasmodic muscle contraction may also be due to a large number of medical conditions, however, including the dystonias. Spastic: The term generally originates from spasticity, a medical condition characterized by hypertonia, or a high degree of muscle tightness. Spasticity underlies spastic diplegia and many other forms of cerebral palsy. Spasms come and go.. being spastic, like your leg means that the muscle DOES not know how to relax at all, when put into action, so to speak. Like when your MD held your leg up and it stays there and/or slowly lowers without you doing any of the work. The baclofen will help with this and can improve your walking ability (if you are able to walk). The most COMMON side effects persist or become bothersome: Constipation; dizziness; drowsiness; fatigue; headache; nausea; sleeplessness. Your body will become accustomed to this and you start at a low dose in any case, and titrate up slowly to be able to adjust. Meloxicam is for your arthritis... it's an NSAID (nonsteroidal anti-inflammatory drug) The most COMMON side effects persist or become bothersome: Constipation; diarrhea; dizziness; gas; headache; heartburn; nausea; stomach upset; trouble sleeping. FYI www.drugs.com for when you want to look up drugs. Marieke Date: Fri, 4 Apr 2008 08:34:27 -0700 From: [EMAIL PROTECTED] Subject: tmic-digest Digest V2008 #158 To: [EMAIL PROTECTED] --Forwarded Message Attachment-- tmic-digest Digest Volume 2008 : Issue 158 Today's Topics: [TMIC] med question - meloxicam and [ randy rankin [EMAIL PROTECTED] ] [TMIC] RE: tmic-digest Digest V2008 [ marieke dufresne [EMAIL PROTECTED] ] --Forwarded Message Attachment-- Date: Thu, 3 Apr 2008 17:02:03 -0700 From: [EMAIL PROTECTED] To: tmic-list@eskimo.com Subject: [TMIC] med question - meloxicam and baclofen Ok - what's the scoop on these drugs. Have any of you all taken them? Did they help? Where there any significant side effects? I was sent to a bone doc. to have a look. He wants me to try baclofen for spasms, (i didn't know that I was having them - everyone else says that I'm not have spasms - I'm so confussed on the term spasms. - first neuro talked about my legs being spastic because they wouldn't move - he pick them up and the right leg would stick in mid area lol - he'd have to push it back down. When I mentioned spasm later, everyone would look at me oddly and say that I wasn't having spasms. Now this guy is giving me meds for spasms and says that my right leg shows signs of spasticity) He said my vert was great - mild degeneration in mid T and at L-5 S-1 - which I already knew about. The 'arthritis' is genetic/ getting older he said - but it is unusual for my age. He said my 2001 car accident didn't have anything to do with it - but my chiro told me in 01 that it would come in time because it almost always shows up in a few years after a major collision. Anyway - what's the scoop on all these meds. before I decide to go ahead and take them I just wanted find out if it is worth the time. You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost.--Forwarded
Re: [TMIC] med question - meloxicam and baclofen
please rember to check with your neuro before discontinuing baclofen. the side effects could be very dangeous please see the instructions on the leaflet; From: [EMAIL PROTECTED] To: randy rankin [EMAIL PROTECTED], TM Group tmic-list@eskimo.com Subject: Re: [TMIC] med question - meloxicam and baclofen Date: Fri, 4 Apr 2008 17:43:29 -0400 Randy I had similar confusion with what I heard from various medical people. Dec 2003 my neuro rx'd baclofen for spasticity and the next day I had physical and occupational therapy. Both therapists told me I didn't have spasticity and wanted permission to talk with my neuro. So there I was in my TM stupor questioning who knew best. I started on the baclofen and have never discontinued it. My Neuro knew best. I am too flexible (rubbery) if I take over 10mg so he moved me to every six hours and that works for me. I couldn't have discribed it at well as Merieke's post, however, it's exactly how both the spasms and spasticity feel to me. Patti randy rankin [EMAIL PROTECTED] wrote: Ok - what's the scoop on these drugs. Have any of you all taken them? Did they help? Where there any significant side effects? I was sent to a bone doc. to have a look. He wants me to try baclofen for spasms, (i didn't know that I was having them - everyone else says that I'm not have spasms - I'm so confussed on the term spasms. - first neuro talked about my legs being spastic because they wouldn't move - he pick them up and the right leg would stick in mid area lol - he'd have to push it back down. When I mentioned spasm later, everyone would look at me oddly and say that I wasn't having spasms. Now this guy is giving me meds for spasms and says that my right leg shows signs of spasticity) He said my vert was great - mild degeneration in mid T and at L-5 S-1 - which I already knew about. The 'arthritis' is genetic/ getting older he said - but it is unusual for my age. He said my 2001 car accident didn't have anything to do with it - but my chiro told me in 01 that it would come in time because it almost always shows up in a few years after a major collision. Anyway - what's the scoop on all these meds. before I decide to go ahead and take them I just wanted find out if it is worth the time. - You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost.
Re: [TMIC] queston
Wow Linda, I wish there were days when I didn't feel the burning and tingling. It has never gone away even with meds. Heather in Calgary - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] Cc: tmic-list@eskimo.com Sent: Friday, April 04, 2008 4:48 PM Subject: Re: [TMIC] queston I think it is so strange that sometimes I feel good and other days I have burning and tingling. What makes us feel so different if there is no change? I cannot understand that at all. I have had MRI's every year for the past 5 years and as far as lesions and spots on my brain goes, nothing has changed. Linda in Pa -- Planning your summer road trip? Check out AOL Travel Guides. -- No virus found in this incoming message. Checked by AVG. Version: 7.5.519 / Virus Database: 269.22.5/1359 - Release Date: 4/4/2008 8:23 AM
[TMIC] urogenital system operation
Hello I would like to ask you to read the news from the following link: http://www.payvand.com/news/07/sep/1256.html And inform me if you know anything about this kind of devices or is anyone using it? If yes how much does it help you? Thank you very much - You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost.---BeginMessage--- Hello I would like to ask you to read the news from the following link: http://www.payvand.com/news/07/sep/1256.html And inform me if you know anything about this kind of devices or is anyone using it? If yes how much does it help you? Thank you very much - You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost.---End Message---
