Display Notification: [TMIC] Sarcoidosis

2008-10-20 Thread Rita Asbury
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RE: [TMIC] (no subject)

2008-10-20 Thread jrushton
Trudy, I just changed providers and clinics because of the nurse.  I could
not get return calls on labs, cultures, prescriptions, nothing  I would
be waiting all day for a call back and then when I would call at the end of
the day, she hadn't even listened to her morning messages!  I had to wait 6
months for Lamisil (yes, 6 months) where the fungus was 'in my system' per
the provider and I was the one that had to take care of finally getting the
insurance approval and all of the paperwork done that the nurse normally
takes care of.  Having been a lead nurse, this is totally unacceptable and
lacks total patient care!  I even tried to talk to the doctor but couldn't
even get through to her!  Not too many of us can pay for an office call just
to go in and discuss a provider's incompetent nurse.  SO frustrating!!!

I had a horrible UTI which can be bad for a non-TM person but some of us can
t even feel it when we have the symptoms so they often times will be really
bad before we even know we have it!  I made an appt. with the new clinic and
one of the doctors from the first clinic saw me and when he said he would
send a copy of the culture to Dayton, I quietly told him I was not going
back.  He looked up and asked me if I would mind telling him why and I did. 
I was very nice and explained the facts and he patted my hand and thanked me
saying I was not the first to do this.  I told him a nurse could make or
break a provider which he agreed.  He said he was going to have a 'closed
door' talk with my provider when he got back to his clinic.

WHEW!!!  Was that a bit of venting, or what???  I even surprised myself!!

Jeanne in Dayton


 
---Original Message---
 
From: Trudy OGILVIE
Date: 10/16/2008 9:28:07 PM
To: jrushton;  [EMAIL PROTECTED];  tmic
Subject: RE: [TMIC] (no subject)
 
 
It's been a miserable week for me also. Still waiting on the results of a CT
scan of the kidney, which was done because something was seen on the
ultrasound and he needed a better look and that was last Friday. Finally, I
called today and was told the nurse would definitely get back to me tonight.
I also asked for a copy of the ultrasound and the CT scan. yes, of
course said the kind receptionist I'll mail it tomorrow! No phone call
and I'll let you know when the mail arrives! I hate to be so cynical but I
think with the economic situation the way it is things could get worse! But
you never know. things could get better!
Have a nice day!
Trudy
 
 

 Date: Thu, 16 Oct 2008 06:41:29 -0500
 From: [EMAIL PROTECTED]
 To: [EMAIL PROTECTED]; tmic-list@eskimo.com
 Subject: Re: [TMIC] (no subject)

 I know, Linda..in fact we all do. Trying to find a provider that can even
take the time to sit down and talk to you, let alone figure out all of these
symptoms and findings is almost impossible! They can treat our symptoms with
meds but answering all of our questions is another things. I do find the
specialists do have more time but we would have to go to a different one for
each of the 'things' we have going on!! Plus, I don't know about you but we
just don't have the money to pay what the insurance doesn't cover!! You've
got all of us with prayers and encouragement, Linda...

 Jeanne in Dayton

 ---Original Message---

 From: [EMAIL PROTECTED]
 Date: 10/16/2008 6:44:51 AM
 To: [EMAIL PROTECTED]
 Cc: tmic-list@eskimo.com
 Subject: Re: [TMIC] (no subject)

 I don't know Jean, I am just very frustrated. I had a cat scan done last
month and I have an enlarged lymph node in my lung along with 1 cyst in my
spleen, a few in my liver, and a few in my kidneys. I have had a lot of
wheezing and coughing. I was on prednisone and an antibiotic again and felt
great for a few weeks, but seem to be declining again I was looking at
nuerosarcoidosis and other types of sarcoidodsis and I seem to have a lot of
what I was reading. I just wish some doctor could explain to me what the
heck is wrong with me!!

 Linda in Pa



 
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