Re: [TMIC] Stem-cell research

2009-01-24 Thread Kevin Wolfthal


Regina,
I was referring to being treated when the trials are (hopefully) 
successfully
completed.  That is what I thought Patricia meant.  I probably mis-read 
what she wrote.
I'm also guessing there will be trials on a wider range of SCI caused 
diseases.

Kevin






Regina Rummel wrote:

Kevin,
I think the trials are on _recently_ injured spinal cord injuries. 
R
 


*From:* Kevin Wolfthal wolft...@optonline.net
*To:* Patricia Cooley patticoo...@wi.rr.com; tmic-list@eskimo.com
*Sent:* Friday, January 23, 2009 4:42:49 PM
*Subject:* Re: [TMIC] Stem-cell research


Patti,
If the trials are successful, and the pharmaceutical company can get the
treatments
approved, I don't see why anyone with an SCI injury wouldn't be
treated.  It will
of course have to prove profitable and we'll see how the insurance 
companies

deal with it.  But it's a hopeful start.

Kevin





Patricia Cooley wrote:
 KEVIN:

 IT SOUNDS WONDERFUL.  I JUST WONDER IF THEY WILL CONSIDER PEOPLE 
WITH TM AND

 NOT JUST ACCIDENT VICTIMS.  ALSO, SINCE I AM ABLE TO GET AROUND WITH A
 WALKER, WOULD PEOPLE LIKE ME EVEN BE CONSIDERED.  IT WILL BE 
INTERESTING.

 THANKS FOR LETTING US KNOW.

 PATTI IN WISCONSIN

 -Original Message-
 From: Kevin Wolfthal [mailto:wolft...@optonline.net 
mailto:wolft...@optonline.net]

 Sent: Friday, January 23, 2009 3:52 PM
 To: tmic-list@eskimo.com mailto:tmic-list@eskimo.com
 Subject: Re: [TMIC] Stem-cell research



 http://news.yahoo.com/s/ap/20090123/ap_on_sc/sci_stem_cells_4







 Kevin Wolfthal wrote:
 
 http://www.whitehouse.gov/agenda/technology/


 Scroll to the bottom.


   




 





Re: [TMIC] Any news on Jude?

2009-01-24 Thread Pieter and Heather
AOL Email  Jude,
   So good to hear from you personally.  My thoughts and prayers are with you 
still.
  Hugs,
Heather in Calgary 
  - Original Message - 
  From: heyjude48...@aol.com 
  To: kimr1...@bellsouth.net ; TMIC-LIST@eskimo.com 
  Sent: Saturday, January 24, 2009 12:51 AM
  Subject: Re: [TMIC] Any news on Jude?


Yes,  I have an update on myself.  But first, thank
you all for the love and prayers sent my way.  
I am sure I could feel the warmth of all of your 
arms around me and the prayers have worked, 
because I am now home.

The doctors still do not know the names of the 
bacteria that has invaded my body.  They have 
sent cultures out to U of M in Ann Arbor (A2), 
but no one can figure out what kind of bacteria 
they are.  I now have several new ones and all the
docs say is that the bacteria is colonic in nature,
meaning they come from the colon, but they have 
not been seen before so no one knows how to treat 
them.  There is no problem with sending me to 
Ann Arbor, but so far it has been sufficient to 
send the labs, and I agree with that.

I am just a tad septic, with an attack of 
autonomicdysreflexia that caused my blood 
pressure to plummet.  I was talking to Gunny at 
the time, so it is his fault!!!   LOL...  My home nurse
had just arrived so when she got in the house, 
Gunny hung up, but he waited online for me, not 
wanting to leave me alone.  The nurse took vitals 
and my blood pressure was 85/54 and she 
immediately called 911.  I remember nothing after 
that, but woke up in the hospital later on.

They didn't do a whole lot for me in the hospital 
because the drugs they were giving me were 
making me feel sick.  Each time they tried a new 
med I would throw it back up at them and so they
quit that after a while.  The wounds,
(pressure sores) are what are infected and  now 
the bones in that vicinity are dx'd as being 
diseased too, so treatment it very difficult.  This 
time, before sending me home, they took deep 
biopsies and lots of blood to send to the various 
labs in the area, including A2.

Umm, I have not had much energy.  All blood 
levels are low, except for the ones that are 
supposed to be low...those are high!  

Well, folks, I am getting tired and sleepy. So 
will go for now and catch you up on the rest
later.

I love and appreciate you all.

Jude, 

RE: [TMIC] Any news on Jude?

2009-01-24 Thread Margaret Monson
So happy to hear you are back home and on the mend, so to speak.

My thoughts are with you, Jude!

 

Margaret 

 

From: heyjude48...@aol.com [mailto:heyjude48...@aol.com] 
Sent: January-24-09 12:52 AM
To: kimr1...@bellsouth.net; TMIC-LIST@eskimo.com
Subject: Re: [TMIC] Any news on Jude?

 


Yes,  I have an update on myself.  But first, thank

you all for the love and prayers sent my way.  

I am sure I could feel the warmth of all of your 

arms around me and the prayers have worked, 

because I am now home.

 

The doctors still do not know the names of the 

bacteria that has invaded my body.  They have 

sent cultures out to U of M in Ann Arbor (A2), 

but no one can figure out what kind of bacteria 

they are.  I now have several new ones and all the

docs say is that the bacteria is colonic in nature,

meaning they come from the colon, but they have 

not been seen before so no one knows how to treat 

them.  There is no problem with sending me to 

Ann Arbor, but so far it has been sufficient to 

send the labs, and I agree with that.

 

I am just a tad septic, with an attack of 

autonomicdysreflexia that caused my blood 

pressure to plummet.  I was talking to Gunny at 

the time, so it is his fault!!!   LOL...  My home nurse

had just arrived so when she got in the house, 

Gunny hung up, but he waited online for me, not 

wanting to leave me alone.  The nurse took vitals 

and my blood pressure was 85/54 and she 

immediately called 911.  I remember nothing after 

that, but woke up in the hospital later on.

 

They didn't do a whole lot for me in the hospital 

because the drugs they were giving me were 

making me feel sick.  Each time they tried a new 

med I would throw it back up at them and so they

quit that after a while.  The wounds,

(pressure sores) are what are infected and  now 

the bones in that vicinity are dx'd as being 

diseased too, so treatment it very difficult.  This 

time, before sending me home, they took deep 

biopsies and lots of blood to send to the various 

labs in the area, including A2.

 

Umm, I have not had much energy.  All blood 

levels are low, except for the ones that are 

supposed to be low...those are high!  

 

Well, folks, I am getting tired and sleepy. So 

will go for now and catch you up on the rest

later.

 

I love and appreciate you all.

 

Jude,



































Re: [TMIC] Any news on Jude?

2009-01-24 Thread Alle111
Sorry guys but I  am glad she wrote. Yesterday I (thought) I had updated you 
but now that I look, I had mistakenly sent it to the request site.
 
Ella
**Know Your Numbers: Get tips and tools to help you improve your 
credit score. 
(http://www.walletpop.com/credit/credit-reports?ncid=emlcntuswall0002)


[TMIC] OT smiles

2009-01-24 Thread Todd Tarno
This is a 16 mins movie, that is cute.
 
http://budurl. com/SmilesYouTub e

--- On Thu, 1/22/09, TODD TARNO toddnbi...@sbcglobal.net wrote:

From: TODD TARNO toddnbi...@sbcglobal.net
Subject: Fwd: Fw: smiles
To: Duane Aubert dauber...@hotmail.com, Joyce Carson 
jycath...@yahoo.com, Ira Duval idu...@austin.rr.com, David Graham 
grahamcracker1...@yahoo.com, Ricky Hayes rhayes...@yahoo.com, Debbie 
Jones jonesdebbi...@yahoo.com, Willy  Angel Kelly 
zacharyb...@sbcglobal.net, Marleen Kennison mkenni2...@aol.com, Kristi 
Mohler kristi2...@hotmail.com
Date: Thursday, January 22, 2009, 3:38 PM






http://budurl. com/SmilesYouTub e

--- On Wed, 1/21/09, April Sadler aprilli...@gmail.com wrote:

From: April Sadler aprilli...@gmail.com
Subject: Fwd: Fw: smiles
To: Andra Goodman andra.good...@gmail.com, Patrick Healy 
tricky...@gmail.com, tat...@aol.com tat...@aol.com, Angel Parker 
thedalscw...@hotmail.com, Kate Gahan gahanor...@gmail.com, kimberly  
billy caylor...@hotmail.com, janelle ligarde schulze 
nellieschu...@gmail.com, Jeff Mirabelle je...@elitefinancinggroup.com, 
Jody Kane jodywi...@yahoo.com, judybeth graceb...@aol.com, JENNIFER 
NICHOLS nichols...@sbcglobal.net, gia gulino giagul...@hotmail.com, CJ 
Schimmels shylos...@gmail.com, Daymon Sadler laughd...@aol.com, lena 
sacco mrslsa...@yahoo.com, sharon gallagher sh...@earthlink.net, 
stanley pearson sp...@hotmail.com, tina cisneros splite...@hotmail.com, 
TODD TARNO toddnbi...@sbcglobal.net, Trevor Hickle 
tre...@folkadelic.com, gwendyliongr...@aol.com, robin hunter 
c_robinh...@yahoo.com, celeste sadler csadler...@aol.com, Carrie 
Williams carriewilliams...@yahoo.com,
 Francine Franklin frans...@gmail.com, Eric Franklin 
franklin.e...@gmail.com, Kevin Schell ksch...@yahoo.com, 
lu...@onedragon.com, Terry Lewis gotmyb...@gmail.com
Date: Wednesday, January 21, 2009, 6:49 AM



good morning everyone this video is long but worth every minute
 
much love
April

















http://budurl. com/SmilesYouTub e







Re: [TMIC] OT smiles

2009-01-24 Thread Lawrence King

Cute it's not just cute! it made my day!

Mindy the Artist

On Jan 24, 2009, at 3:31 PM, Todd Tarno wrote:


This is a 16 mins movie, that is cute.

http://budurl. com/SmilesYouTub e

--- On Thu, 1/22/09, TODD TARNO toddnbi...@sbcglobal.net wrote:
From: TODD TARNO toddnbi...@sbcglobal.net
Subject: Fwd: Fw: smiles
To: Duane Aubert dauber...@hotmail.com, Joyce Carson  
jycath...@yahoo.com, Ira Duval idu...@austin.rr.com, David  
Graham grahamcracker1...@yahoo.com, Ricky Hayes  
rhayes...@yahoo.com, Debbie Jones jonesdebbi...@yahoo.com,  
Willy  Angel Kelly zacharyb...@sbcglobal.net, Marleen  
Kennison mkenni2...@aol.com, Kristi Mohler  
kristi2...@hotmail.com

Date: Thursday, January 22, 2009, 3:38 PM

http://budurl. com/SmilesYouTub e

--- On Wed, 1/21/09, April Sadler aprilli...@gmail.com wrote:
From: April Sadler aprilli...@gmail.com
Subject: Fwd: Fw: smiles
To: Andra Goodman andra.good...@gmail.com, Patrick Healy  
tricky...@gmail.com, tat...@aol.com tat...@aol.com, Angel  
Parker thedalscw...@hotmail.com, Kate Gahan  
gahanor...@gmail.com, kimberly  billy caylor...@hotmail.com,  
janelle ligarde schulze nellieschu...@gmail.com, Jeff  
Mirabelle je...@elitefinancinggroup.com, Jody Kane  
jodywi...@yahoo.com, judybeth graceb...@aol.com, JENNIFER  
NICHOLS nichols...@sbcglobal.net, gia gulino  
giagul...@hotmail.com, CJ Schimmels shylos...@gmail.com,  
Daymon Sadler laughd...@aol.com, lena sacco  
mrslsa...@yahoo.com, sharon gallagher sh...@earthlink.net,  
stanley pearson sp...@hotmail.com, tina cisneros  
splite...@hotmail.com, TODD TARNO toddnbi...@sbcglobal.net,  
Trevor Hickle tre...@folkadelic.com, gwendyliongr...@aol.com,  
robin hunter c_robinh...@yahoo.com, celeste sadler  
csadler...@aol.com, Carrie Williams  
carriewilliams...@yahoo.com, Francine Franklin  
frans...@gmail.com, Eric Franklin franklin.e...@gmail.com,  
Kevin Schell ksch...@yahoo.com, lu...@onedragon.com, Terry  
Lewis gotmyb...@gmail.com

Date: Wednesday, January 21, 2009, 6:49 AM

good morning everyone this video is long but worth every minute

much love
April






http://budurl. com/SmilesYouTub e








Re: [TMIC] Update on Kim

2009-01-24 Thread LadyNotes
Kim, I am so happy to hear that your paralysis is not due to your TM.   And 
that it can be repaired.  I have had the steroid injections and the  disc of my 
C4, C5 and C6 vertebrae.  It did help me for a good while.   I'm hoping that 
if that's the option you choose, that it will help you  also.  I know what you 
mean about sleep deprivation from steroids.   They affect me the same way.  
Good luck with whatever option you  choose.  I will pray for your recovery
 
Naomi
C4 quadriplegicdue to Transverse Myelitis
since July 2,  2005  

 
In a message dated 1/23/2009 10:37:02 P.M. Eastern Standard Time,  
kimr1...@bellsouth.net writes:




First I would like to thank Jenna  for coming to the hospital to help me 
today (and the visit was great)   
Nero  left and good news the paralysis and  stinging in my arms and hands has 
nothing to do with my TM. The MRI’s they did  last night found 3 herniated 
discs on my neck that is causing spinal cord  depression causing my arms and 
hands to go numb. He called neurosurgeon to  come see me tomorrow and let me 
know 
what my options will be. So far a friend  that had the same this said the 
least evasive is to inject steroids directly  into the disc to stop the bone on 
bone rub and release the compression on the  spinal cord this is good news!!! 
So this explains why after receiving the  first dose of IV steroids my arms and 
hand improved 90% within 5 hours.   
If it were TM related the damage  can not be reversed!  But the  herniated 
disc can be repaired! So YIPPIE!!! 
Down side right now is with all  the steroids I have not slept at ALL since I 
go up Wed at 6:30 am, serious  best I have done is a 20 minute nap today! 
They gave me morphine and Ambian  sleep pills tonight so hoping I get some 
sleep 
tonight! I am starting to feel  like a zombie going thru the motions, getting 
harder to focus with sleep  deprivation. 
Will post what Nero-surgeon says  once I hear from them tomorrow 
Again thanks for the one on one  email I have gotten the concern and advice 
mean a lot to  me 
What a great second family we all  have in each other! Note   J 
Note: to the Atlanta TM suport group if I get out of the hospital  by Sunday 
in time for our meeting I will be there!! 




**From Wall Street to Main Street and everywhere in between, stay 
up-to-date with the latest news. (http://aol.com?ncid=emlcntaolcom0023)


Re: [TMIC] Any news on Jude?

2009-01-24 Thread Trudy Ogilvie
Jude,
You are incredible!!! The good thoughts and prayers just keep on coming!!
Love ya
Trudy



On Sat, Jan 24, 2009 at 2:51 AM, heyjude48...@aol.com wrote:

 *Yes,  I have an update on myself.  But first, thank*
 *you all for the love and prayers sent my way.  *
 *I am sure I could feel the warmth of all of your *
 *arms around me and the prayers have worked, *
 *because I am now home.*
 **
 *The doctors still do not know the names of the *
 *bacteria that has invaded my body.  They have *
 *sent cultures out to U of M in Ann Arbor (A2), *
 *but no one can figure out what kind of bacteria *
 *they are.  I now have several new ones and all the*
 *docs say is that the bacteria is colonic in nature,*
 *meaning they come from the colon, but they have *
 *not been seen before so no one knows how to treat *
 *them.  There is no problem with sending me to *
 *Ann Arbor, but so far it has been sufficient to *
 *send the labs, and I agree with that.*
 **
 *I am just a tad septic, with an attack of *
 *autonomicdysreflexia that caused my blood *
 *pressure to plummet.  I was talking to Gunny at *
 *the time, so it is his fault!!!   LOL...  My home nurse*
 *had just arrived so when she got in the house, *
 *Gunny hung up, but he waited online for me, not *
 *wanting to leave me alone.  The nurse took vitals *
 *and my blood pressure was 85/54 and she *
 *immediately called 911.  I remember nothing after *
 *that, but woke up in the hospital later on.*
 **
 *They didn't do a whole lot for me in the hospital *
 *because the drugs they were giving me were *
 *making me feel sick.  Each time they tried a new *
 *med I would throw it back up at **them and so they*
 *quit that after a while.  The **wounds,*
 *(pressure sores) are what are infected and ** now *
 *the bones in that vicinity are dx'd as being *
 *diseased too, so treatment it very difficult.  This *
 *time, before sending me home, they took deep *
 *biopsies and lots of blood to send to the various *
 *labs in the area, including A2.*
 **
 *Umm, I have not had much energy.  All blood *
 *levels are low, except for the ones that are *
 *supposed to be low...those are high!  *
 **
 *Well, folks, I am getting tired and sleepy. So *
 *will go for now and catch you up on the rest*
 *later.*
 **
 *I love and appreciate you all.*
 **
 *Jude,