Re: [TMIC] Stem-cell research
Regina, I was referring to being treated when the trials are (hopefully) successfully completed. That is what I thought Patricia meant. I probably mis-read what she wrote. I'm also guessing there will be trials on a wider range of SCI caused diseases. Kevin Regina Rummel wrote: Kevin, I think the trials are on _recently_ injured spinal cord injuries. R *From:* Kevin Wolfthal wolft...@optonline.net *To:* Patricia Cooley patticoo...@wi.rr.com; tmic-list@eskimo.com *Sent:* Friday, January 23, 2009 4:42:49 PM *Subject:* Re: [TMIC] Stem-cell research Patti, If the trials are successful, and the pharmaceutical company can get the treatments approved, I don't see why anyone with an SCI injury wouldn't be treated. It will of course have to prove profitable and we'll see how the insurance companies deal with it. But it's a hopeful start. Kevin Patricia Cooley wrote: KEVIN: IT SOUNDS WONDERFUL. I JUST WONDER IF THEY WILL CONSIDER PEOPLE WITH TM AND NOT JUST ACCIDENT VICTIMS. ALSO, SINCE I AM ABLE TO GET AROUND WITH A WALKER, WOULD PEOPLE LIKE ME EVEN BE CONSIDERED. IT WILL BE INTERESTING. THANKS FOR LETTING US KNOW. PATTI IN WISCONSIN -Original Message- From: Kevin Wolfthal [mailto:wolft...@optonline.net mailto:wolft...@optonline.net] Sent: Friday, January 23, 2009 3:52 PM To: tmic-list@eskimo.com mailto:tmic-list@eskimo.com Subject: Re: [TMIC] Stem-cell research http://news.yahoo.com/s/ap/20090123/ap_on_sc/sci_stem_cells_4 Kevin Wolfthal wrote: http://www.whitehouse.gov/agenda/technology/ Scroll to the bottom.
Re: [TMIC] Any news on Jude?
AOL Email Jude, So good to hear from you personally. My thoughts and prayers are with you still. Hugs, Heather in Calgary - Original Message - From: heyjude48...@aol.com To: kimr1...@bellsouth.net ; TMIC-LIST@eskimo.com Sent: Saturday, January 24, 2009 12:51 AM Subject: Re: [TMIC] Any news on Jude? Yes, I have an update on myself. But first, thank you all for the love and prayers sent my way. I am sure I could feel the warmth of all of your arms around me and the prayers have worked, because I am now home. The doctors still do not know the names of the bacteria that has invaded my body. They have sent cultures out to U of M in Ann Arbor (A2), but no one can figure out what kind of bacteria they are. I now have several new ones and all the docs say is that the bacteria is colonic in nature, meaning they come from the colon, but they have not been seen before so no one knows how to treat them. There is no problem with sending me to Ann Arbor, but so far it has been sufficient to send the labs, and I agree with that. I am just a tad septic, with an attack of autonomicdysreflexia that caused my blood pressure to plummet. I was talking to Gunny at the time, so it is his fault!!! LOL... My home nurse had just arrived so when she got in the house, Gunny hung up, but he waited online for me, not wanting to leave me alone. The nurse took vitals and my blood pressure was 85/54 and she immediately called 911. I remember nothing after that, but woke up in the hospital later on. They didn't do a whole lot for me in the hospital because the drugs they were giving me were making me feel sick. Each time they tried a new med I would throw it back up at them and so they quit that after a while. The wounds, (pressure sores) are what are infected and now the bones in that vicinity are dx'd as being diseased too, so treatment it very difficult. This time, before sending me home, they took deep biopsies and lots of blood to send to the various labs in the area, including A2. Umm, I have not had much energy. All blood levels are low, except for the ones that are supposed to be low...those are high! Well, folks, I am getting tired and sleepy. So will go for now and catch you up on the rest later. I love and appreciate you all. Jude,
RE: [TMIC] Any news on Jude?
So happy to hear you are back home and on the mend, so to speak. My thoughts are with you, Jude! Margaret From: heyjude48...@aol.com [mailto:heyjude48...@aol.com] Sent: January-24-09 12:52 AM To: kimr1...@bellsouth.net; TMIC-LIST@eskimo.com Subject: Re: [TMIC] Any news on Jude? Yes, I have an update on myself. But first, thank you all for the love and prayers sent my way. I am sure I could feel the warmth of all of your arms around me and the prayers have worked, because I am now home. The doctors still do not know the names of the bacteria that has invaded my body. They have sent cultures out to U of M in Ann Arbor (A2), but no one can figure out what kind of bacteria they are. I now have several new ones and all the docs say is that the bacteria is colonic in nature, meaning they come from the colon, but they have not been seen before so no one knows how to treat them. There is no problem with sending me to Ann Arbor, but so far it has been sufficient to send the labs, and I agree with that. I am just a tad septic, with an attack of autonomicdysreflexia that caused my blood pressure to plummet. I was talking to Gunny at the time, so it is his fault!!! LOL... My home nurse had just arrived so when she got in the house, Gunny hung up, but he waited online for me, not wanting to leave me alone. The nurse took vitals and my blood pressure was 85/54 and she immediately called 911. I remember nothing after that, but woke up in the hospital later on. They didn't do a whole lot for me in the hospital because the drugs they were giving me were making me feel sick. Each time they tried a new med I would throw it back up at them and so they quit that after a while. The wounds, (pressure sores) are what are infected and now the bones in that vicinity are dx'd as being diseased too, so treatment it very difficult. This time, before sending me home, they took deep biopsies and lots of blood to send to the various labs in the area, including A2. Umm, I have not had much energy. All blood levels are low, except for the ones that are supposed to be low...those are high! Well, folks, I am getting tired and sleepy. So will go for now and catch you up on the rest later. I love and appreciate you all. Jude,
Re: [TMIC] Any news on Jude?
Sorry guys but I am glad she wrote. Yesterday I (thought) I had updated you but now that I look, I had mistakenly sent it to the request site. Ella **Know Your Numbers: Get tips and tools to help you improve your credit score. (http://www.walletpop.com/credit/credit-reports?ncid=emlcntuswall0002)
[TMIC] OT smiles
This is a 16 mins movie, that is cute. http://budurl. com/SmilesYouTub e --- On Thu, 1/22/09, TODD TARNO toddnbi...@sbcglobal.net wrote: From: TODD TARNO toddnbi...@sbcglobal.net Subject: Fwd: Fw: smiles To: Duane Aubert dauber...@hotmail.com, Joyce Carson jycath...@yahoo.com, Ira Duval idu...@austin.rr.com, David Graham grahamcracker1...@yahoo.com, Ricky Hayes rhayes...@yahoo.com, Debbie Jones jonesdebbi...@yahoo.com, Willy Angel Kelly zacharyb...@sbcglobal.net, Marleen Kennison mkenni2...@aol.com, Kristi Mohler kristi2...@hotmail.com Date: Thursday, January 22, 2009, 3:38 PM http://budurl. com/SmilesYouTub e --- On Wed, 1/21/09, April Sadler aprilli...@gmail.com wrote: From: April Sadler aprilli...@gmail.com Subject: Fwd: Fw: smiles To: Andra Goodman andra.good...@gmail.com, Patrick Healy tricky...@gmail.com, tat...@aol.com tat...@aol.com, Angel Parker thedalscw...@hotmail.com, Kate Gahan gahanor...@gmail.com, kimberly billy caylor...@hotmail.com, janelle ligarde schulze nellieschu...@gmail.com, Jeff Mirabelle je...@elitefinancinggroup.com, Jody Kane jodywi...@yahoo.com, judybeth graceb...@aol.com, JENNIFER NICHOLS nichols...@sbcglobal.net, gia gulino giagul...@hotmail.com, CJ Schimmels shylos...@gmail.com, Daymon Sadler laughd...@aol.com, lena sacco mrslsa...@yahoo.com, sharon gallagher sh...@earthlink.net, stanley pearson sp...@hotmail.com, tina cisneros splite...@hotmail.com, TODD TARNO toddnbi...@sbcglobal.net, Trevor Hickle tre...@folkadelic.com, gwendyliongr...@aol.com, robin hunter c_robinh...@yahoo.com, celeste sadler csadler...@aol.com, Carrie Williams carriewilliams...@yahoo.com, Francine Franklin frans...@gmail.com, Eric Franklin franklin.e...@gmail.com, Kevin Schell ksch...@yahoo.com, lu...@onedragon.com, Terry Lewis gotmyb...@gmail.com Date: Wednesday, January 21, 2009, 6:49 AM good morning everyone this video is long but worth every minute much love April http://budurl. com/SmilesYouTub e
Re: [TMIC] OT smiles
Cute it's not just cute! it made my day! Mindy the Artist On Jan 24, 2009, at 3:31 PM, Todd Tarno wrote: This is a 16 mins movie, that is cute. http://budurl. com/SmilesYouTub e --- On Thu, 1/22/09, TODD TARNO toddnbi...@sbcglobal.net wrote: From: TODD TARNO toddnbi...@sbcglobal.net Subject: Fwd: Fw: smiles To: Duane Aubert dauber...@hotmail.com, Joyce Carson jycath...@yahoo.com, Ira Duval idu...@austin.rr.com, David Graham grahamcracker1...@yahoo.com, Ricky Hayes rhayes...@yahoo.com, Debbie Jones jonesdebbi...@yahoo.com, Willy Angel Kelly zacharyb...@sbcglobal.net, Marleen Kennison mkenni2...@aol.com, Kristi Mohler kristi2...@hotmail.com Date: Thursday, January 22, 2009, 3:38 PM http://budurl. com/SmilesYouTub e --- On Wed, 1/21/09, April Sadler aprilli...@gmail.com wrote: From: April Sadler aprilli...@gmail.com Subject: Fwd: Fw: smiles To: Andra Goodman andra.good...@gmail.com, Patrick Healy tricky...@gmail.com, tat...@aol.com tat...@aol.com, Angel Parker thedalscw...@hotmail.com, Kate Gahan gahanor...@gmail.com, kimberly billy caylor...@hotmail.com, janelle ligarde schulze nellieschu...@gmail.com, Jeff Mirabelle je...@elitefinancinggroup.com, Jody Kane jodywi...@yahoo.com, judybeth graceb...@aol.com, JENNIFER NICHOLS nichols...@sbcglobal.net, gia gulino giagul...@hotmail.com, CJ Schimmels shylos...@gmail.com, Daymon Sadler laughd...@aol.com, lena sacco mrslsa...@yahoo.com, sharon gallagher sh...@earthlink.net, stanley pearson sp...@hotmail.com, tina cisneros splite...@hotmail.com, TODD TARNO toddnbi...@sbcglobal.net, Trevor Hickle tre...@folkadelic.com, gwendyliongr...@aol.com, robin hunter c_robinh...@yahoo.com, celeste sadler csadler...@aol.com, Carrie Williams carriewilliams...@yahoo.com, Francine Franklin frans...@gmail.com, Eric Franklin franklin.e...@gmail.com, Kevin Schell ksch...@yahoo.com, lu...@onedragon.com, Terry Lewis gotmyb...@gmail.com Date: Wednesday, January 21, 2009, 6:49 AM good morning everyone this video is long but worth every minute much love April http://budurl. com/SmilesYouTub e
Re: [TMIC] Update on Kim
Kim, I am so happy to hear that your paralysis is not due to your TM. And that it can be repaired. I have had the steroid injections and the disc of my C4, C5 and C6 vertebrae. It did help me for a good while. I'm hoping that if that's the option you choose, that it will help you also. I know what you mean about sleep deprivation from steroids. They affect me the same way. Good luck with whatever option you choose. I will pray for your recovery Naomi C4 quadriplegicdue to Transverse Myelitis since July 2, 2005 In a message dated 1/23/2009 10:37:02 P.M. Eastern Standard Time, kimr1...@bellsouth.net writes: First I would like to thank Jenna for coming to the hospital to help me today (and the visit was great) Nero left and good news the paralysis and stinging in my arms and hands has nothing to do with my TM. The MRI’s they did last night found 3 herniated discs on my neck that is causing spinal cord depression causing my arms and hands to go numb. He called neurosurgeon to come see me tomorrow and let me know what my options will be. So far a friend that had the same this said the least evasive is to inject steroids directly into the disc to stop the bone on bone rub and release the compression on the spinal cord this is good news!!! So this explains why after receiving the first dose of IV steroids my arms and hand improved 90% within 5 hours. If it were TM related the damage can not be reversed! But the herniated disc can be repaired! So YIPPIE!!! Down side right now is with all the steroids I have not slept at ALL since I go up Wed at 6:30 am, serious best I have done is a 20 minute nap today! They gave me morphine and Ambian sleep pills tonight so hoping I get some sleep tonight! I am starting to feel like a zombie going thru the motions, getting harder to focus with sleep deprivation. Will post what Nero-surgeon says once I hear from them tomorrow Again thanks for the one on one email I have gotten the concern and advice mean a lot to me What a great second family we all have in each other! Note J Note: to the Atlanta TM suport group if I get out of the hospital by Sunday in time for our meeting I will be there!! **From Wall Street to Main Street and everywhere in between, stay up-to-date with the latest news. (http://aol.com?ncid=emlcntaolcom0023)
Re: [TMIC] Any news on Jude?
Jude, You are incredible!!! The good thoughts and prayers just keep on coming!! Love ya Trudy On Sat, Jan 24, 2009 at 2:51 AM, heyjude48...@aol.com wrote: *Yes, I have an update on myself. But first, thank* *you all for the love and prayers sent my way. * *I am sure I could feel the warmth of all of your * *arms around me and the prayers have worked, * *because I am now home.* ** *The doctors still do not know the names of the * *bacteria that has invaded my body. They have * *sent cultures out to U of M in Ann Arbor (A2), * *but no one can figure out what kind of bacteria * *they are. I now have several new ones and all the* *docs say is that the bacteria is colonic in nature,* *meaning they come from the colon, but they have * *not been seen before so no one knows how to treat * *them. There is no problem with sending me to * *Ann Arbor, but so far it has been sufficient to * *send the labs, and I agree with that.* ** *I am just a tad septic, with an attack of * *autonomicdysreflexia that caused my blood * *pressure to plummet. I was talking to Gunny at * *the time, so it is his fault!!! LOL... My home nurse* *had just arrived so when she got in the house, * *Gunny hung up, but he waited online for me, not * *wanting to leave me alone. The nurse took vitals * *and my blood pressure was 85/54 and she * *immediately called 911. I remember nothing after * *that, but woke up in the hospital later on.* ** *They didn't do a whole lot for me in the hospital * *because the drugs they were giving me were * *making me feel sick. Each time they tried a new * *med I would throw it back up at **them and so they* *quit that after a while. The **wounds,* *(pressure sores) are what are infected and ** now * *the bones in that vicinity are dx'd as being * *diseased too, so treatment it very difficult. This * *time, before sending me home, they took deep * *biopsies and lots of blood to send to the various * *labs in the area, including A2.* ** *Umm, I have not had much energy. All blood * *levels are low, except for the ones that are * *supposed to be low...those are high! * ** *Well, folks, I am getting tired and sleepy. So * *will go for now and catch you up on the rest* *later.* ** *I love and appreciate you all.* ** *Jude,