Re: [TMIC] Medications
Bernie, I have only had the baclofen in pill form.I wonder what that would do for you? I am so sorry this happened. Janice - Original Message - From: Catherine To: Butcher, Bernie (SFS) ; Transverse Mylitis Group Sent: Friday, July 24, 2009 11:57 AM Subject: Re: [TMIC] Medications Bernie, I am sorry you had such an unfornutnate experience. I hope you did not hurt yourself further when you fell. Take care. Catherine From: Butcher, Bernie (SFS) bernie.butc...@honeywell.com To: Janice jan...@centurytel.net; lynne myers lynnemye...@yahoo.com; tmic tmic-list@eskimo.com Sent: Friday, July 24, 2009 9:15:23 AM Subject: RE: [TMIC] Medications I had my Baclofen trial on Wednesday, and I have to say it was not a pleasant experience. The spinal tap was quite painful, and after an hour, They had me walking with walker OK, but an hour later, I could hardly stand – after that, all I could do is stay in bed in the hospital. No spasms, but I did get leg cramps. They got me into the car at the end of the day like a 190 lb, sack of potatoes. When I got home, my brother had to do the same, and also got me into bed. The next day, which they said I would b e back to normal, I wasn’t. I could stand take a few steps, but on my way to the bathroom, my legs gave out I fell. Today, Friday, I am back to normal, spasms all. This whole ordeal has gotten me down on Baclofen and the pump idea. Bernie From:Janice [mailto:jan...@centurytel.net] Sent: Monday, July 20, 2009 7:36 PM To: lynne myers; tmic Subject: Re: [TMIC] Medications Lynne, Mine were almost that bad at the beginning. The baclofen really saved my sanity! Janice - Original Message - From:lynne myers To:tmic Sent:Monday, July 20, 2009 7:27 AM Subject:Re: [TMIC] Medications My spasms are worse the lower in my body you go. Lower part of legs give me the most problems. They used to be so bad my husband would tell me it looked like I was trying to ride a bicycle. A couple of times when I was laying on the sofa they actually flipped me off onto the floor. Muscles in legs use to always be reall tight all the time too, so much so that when they would try to test my reflexes nothing moved. Now things have gotten much better, I still have spasms off and on all day (worse when I have been overdoing it) but not nearly as severe when they occur. Yes they have always been worse at night or when I try to lay down to relax. Lynne --- On Sun, 7/19/09, Janice jan...@centurytel.net wrote: From: Janice jan...@centurytel.net Subject: Re: [TMIC] Medications To: lynne myers lynnemye...@yahoo.com, tmic tmic-list@eskimo.com Date: Sunday, July 19, 2009, 11:31 PM What are your spasms like? Are they mostly at nite? Also, is it located from bottom of feet to hip?Janice - Original Message - From:lynne myers To:Janice ; tmic Sent:Friday, July 17, 2009 6:51 AM Subject:Re: [TMIC] Medications The pump is for the spasms. It works the same as oral Baclofen but uses much less medication to get the same results. The actual pump is inserted just above and to the left side of my belly button. Then the tubing runs from there around my left side and into the lower part of my spinal column. The pump is about 4 across and sticks out about an inch and a half. Its not really noticable under looser fitting tops, but real noticable in the summer, especially in my bathing suit. No more clingy fabrics for me lol. Lynne --- On Thu, 7/16/09, Janice jan...@centurytel.net wrote: From: Janice jan...@centurytel.net Subject: Re: [TMIC] Medications To: lynne myers lynnemye...@yahoo.com, Bernie (SFS)Butcher bernie.butc...@honeywell.com, tmic tmic-list@eskimo.com Date:
Re: [TMIC] Friendships
Thanks, Lynn. That was quite an experience for you. You make a wonderful friend - too bad your friend blew it!! Janice - Original Message - From: roseofr...@aol.com To: camoa...@yahoo.com ; rj_ran...@yahoo.com ; tmic-list@eskimo.com Sent: Friday, July 24, 2009 12:04 PM Subject: Re: [TMIC] Friendships WellI guess since I resubscribed to the list recently I may as well weigh in on this one. Pre TM my best friend had to have wrist replacements on both of her arms.one at a time. Her surgery was performed two hours from home. So I drove her there, spent the night in a motel, drove her home after surgery.all at my own expense. She couldn't even open a can of soda so I loosened the jars in her fridge, did her laundry, cooked for her, cleaned her house, stripped her bed, etc., etc. and took care of her 12 Australian puppies on a daily basis for approx. 6 weeks..I did all of that twice since only one wrist could be replaced at a time. Her healing time took about six weeks. I also did her grocery shopping and put everything away for her. AndI paid for the groceries because she was totally broke. Eventually I left the state of California and moved to Nevada thenD-Day came for me and I was paralyzed by TM. She came up here to visit me once..borrowed $3,000. from me... a year later she sent me a Christmas card with a check for $500. enclosed..and I haven't heard a word from her since. She stopped returning my calls which I don't understand because I never once pressed her for the money. I figured when she had it she would pay me back. Guess not. I learned a good lesson from her. now if someone wants to borrow money from me I don't lend it to them.I GIVE it to them with no expectations of getting paid back. And if I don't have it to loan, I just say Sorry...don't have it. I've made some really good friends since TM.people that really care... they treat me like gold so I feel very fortunate and don't miss my best friend at all any more. I'm amazed at the people in Reno.. whenever Bill takes me anywhere he has to take me in the wheelchair.people always open doors for us... had to testify at the court house one day and the security guard came down the stairs, gave me his hand, and walked me up the steps. these things happen every time I go out. No one has ever been cold and uncaring in my 12 years with TM. Maybe all of you should just move to Reno! :-) Love, Lynn -- An Excellent Credit Score is 750. See Yours in Just 2 Easy Steps!
Re: [TMIC] Friendships
Tracey!!! All those steps! Wonderful All praises! akua --
Re: [TMIC] TM
*Hello Janice,* ** *Yes, a small lesion can affect a relatively small part of the body. Myelitis simply means inflammation of the spinal cord. Transverse, means *across*.* ** *Grace*
Re: [TMIC] Friendships
Well said!Janice - Original Message - From: Lawrence King To: tmic-list@eskimo.com Cc: Lawrence King Sent: Thursday, July 23, 2009 12:41 PM Subject: Re: [TMIC] Friendships I've not lost any friends and in fact, with the addition of all of you and the other groups I have joined on line as a result of this disease, my list of friends has increased tenfold. Major life changes always cause a shift in focus and friends who no longer have similar understandings often fade away. I left the craft word for the Antique restoration world and both lost and gained dozens of friends. As an extreme Introvert my definition of friendship is a little different than many; I find frequent contact taxing even with the people I love most, but I am grateful for the knowledge that there are a great many people who would be there for me should I need them. You encourage each other, You pray for each other; I have seen some of you actually make the effort to meet in person and I have watched as some of you even support each other financially in times of need. The new reality is that best friends can now meet and never see each others face. I meet people all the time who are too busy to consider having a new friend an I bet if we take an inventory of these internet friends many of us can say we have gained more than we have lost. Mindy the Artisan On Jul 23, 2009, at 1:10 PM, Janice wrote: I have another question that has been rolling around in my head. Have any of you lost/gained friendships after developing TM/MS? Are some maybe solicitious about giving you a call periodi-cally, but you don't really see much of them? Or, are some of your friends from before TM becoming even better and closer friends. I am talking about emotional support, visits, outings, etc. I am wondering how many have stuck with you or traveled on after the initial onset and de-hospitalization period. Maybe it has stayed the same. Janice
