[TMIC]
GlacierI have not seen Jude post in sometime. Have I missed anything? Glacier Bkgrd.jpg
RE: [TMIC]
NO YOU HAVN'T MISSED ANYTHING. I TOO HAVE BEEN THINKING OF HER LATELY. I HOPE IF SHE SEES THESE SHE WILL RESPOND TO LET US KNOW HOW THINGS ARE GOING. I KNOW THAT SHE WAS REALLY THROWN WHEN WE LOST OUR DEAR FRIEND PAM. I THINK WE ALL WERE. I HAVEN'T A LOT OF PAM'S E-MAILS SO I CAN RE-READ THEM. IT MAKES ME FEEL THAT SHE IS STILL WITH US. PATTI - WISCONSIN From: Rebecca [mailto:wrabal...@gt.rr.com] Sent: Saturday, February 13, 2010 9:48 AM To: tmic-list@eskimo.com Subject: [TMIC] I have not seen Jude post in sometime. Have I missed anything? image001.jpg
RE: [TMIC]
Jenna and I were taling the other day that we have not heard from Jude either were also a bit worried about her. Jude if you see this let us know how your doing!! we all miss you!--- On Sat, 2/13/10, Patricia Cooley patticoo...@wi.rr.com wrote: From: Patricia Cooley patticoo...@wi.rr.comSubject: RE: [TMIC]To: "'Rebecca'" wrabal...@gt.rr.com, tmic-list@eskimo.comDate: Saturday, February 13, 2010, 11:10 AM NO YOU HAVN’T MISSED ANYTHING. I TOO HAVE BEEN THINKING OF HER LATELY. I HOPE IF SHE SEES THESE SHE WILL RESPOND TO LET US KNOW HOW THINGS ARE GOING. I KNOW THAT SHE WAS REALLY THROWN WHEN WE LOST OUR DEAR FRIEND PAM. I THINK WE ALL WERE. I HAVEN’T A LOT OF PAM’S E-MAILS SO I CAN RE-READ THEM. IT MAKES ME FEEL THAT SHE IS STILL WITH US. PATTI - WISCONSIN From: Rebecca [mailto:wrabal...@gt.rr.com] Sent: Saturday, February 13, 2010 9:48 AMTo: tmic-list@eskimo.comSubject: [TMIC] I have not seen Jude post in sometime. Have I missed anything?
RE: [TMIC]
I JUST RE-READ MY E-MAIL. I REALLY MEANT TO SAY THAT I HAVE SAVED A LOT OF PAMS E-MAIL SO I CAN RE-READ THEM. From: Patricia Cooley [mailto:patticoo...@wi.rr.com] Sent: Saturday, February 13, 2010 10:11 AM To: 'Rebecca'; 'tmic-list@eskimo.com' Subject: RE: [TMIC] NO YOU HAVN'T MISSED ANYTHING. I TOO HAVE BEEN THINKING OF HER LATELY. I HOPE IF SHE SEES THESE SHE WILL RESPOND TO LET US KNOW HOW THINGS ARE GOING. I KNOW THAT SHE WAS REALLY THROWN WHEN WE LOST OUR DEAR FRIEND PAM. I THINK WE ALL WERE. I HAVEN'T A LOT OF PAM'S E-MAILS SO I CAN RE-READ THEM. IT MAKES ME FEEL THAT SHE IS STILL WITH US. PATTI - WISCONSIN From: Rebecca [mailto:wrabal...@gt.rr.com] Sent: Saturday, February 13, 2010 9:48 AM To: tmic-list@eskimo.com Subject: [TMIC] I have not seen Jude post in sometime. Have I missed anything? image001.jpg
Re: [TMIC] TM and Pilates
Randy, So you are telling us that you have absolutely no symptoms and you feel great? If so, I am thrilled for you, but am wondering why you are on this website. Janice -- From: rj_ran...@yahoo.com Sent: Friday, February 12, 2010 5:39 AM To: I Whiddett i.whidd...@sky.com; tmic-list@eskimo.com Subject: Re: [TMIC] TM and Pilates I had the event in 2005. - was told 'looks like early m s' and treated. Told I probably would never use right leg again - told pt would not help. Struggled to walk and pee for years - went for pt anyway (after 2nd opioin) - given a transverse mylophy - ediopathic 'explantation' in 06. Now, no symptoms, tests all perfect, and I am told that I don't have ms or tm and they don't know what happened or why. --Original Message-- From: I Whiddett To: tmic-list@eskimo.com Subject: [TMIC] TM and Pilates Sent: Feb 12, 2010 6:32 AM I was diagnosed with transverse myelitis in May 2009. My symptoms developed over a few days and I was discharged from hospital after 6 weeks with partial recovery in my right arm but have residual numbness and tightness through most of my body. I have progressed to getting about with a wheely walker and am wondering whether a Pilates class could be beneficial. Another suggestion has been accupuncture. Once the initial flurry of interest in me as an 'unusual' case had died down, I felt abandoned and left to my own devices by the British National Health. Any recommendations on the above would be welcome. Iris Sent from my Verizon Wireless BlackBerry
Re: [TMIC] TM and Pilates
I went back to the neuro a few weeks back for the most recent check ups. I joined this websight after I was diagnosed in 05. Spent 3 years trying to get walking back. I still can stand up quickly and I can't run. I guess I should just leave the site now that my neuro says I'm fine. --Original Message-- From: Janice Nichols To: rj_ran...@yahoo.com To: I Whiddett To: tmic-list@eskimo.com Subject: Re: [TMIC] TM and Pilates Sent: Feb 13, 2010 2:14 PM Randy, So you are telling us that you have absolutely no symptoms and you feel great? If so, I am thrilled for you, but am wondering why you are on this website. Janice -- From: rj_ran...@yahoo.com Sent: Friday, February 12, 2010 5:39 AM To: I Whiddett i.whidd...@sky.com; tmic-list@eskimo.com Subject: Re: [TMIC] TM and Pilates I had the event in 2005. - was told 'looks like early m s' and treated. Told I probably would never use right leg again - told pt would not help. Struggled to walk and pee for years - went for pt anyway (after 2nd opioin) - given a transverse mylophy - ediopathic 'explantation' in 06. Now, no symptoms, tests all perfect, and I am told that I don't have ms or tm and they don't know what happened or why. --Original Message-- From: I Whiddett To: tmic-list@eskimo.com Subject: [TMIC] TM and Pilates Sent: Feb 12, 2010 6:32 AM I was diagnosed with transverse myelitis in May 2009. My symptoms developed over a few days and I was discharged from hospital after 6 weeks with partial recovery in my right arm but have residual numbness and tightness through most of my body. I have progressed to getting about with a wheely walker and am wondering whether a Pilates class could be beneficial. Another suggestion has been accupuncture. Once the initial flurry of interest in me as an 'unusual' case had died down, I felt abandoned and left to my own devices by the British National Health. Any recommendations on the above would be welcome. Iris Sent from my Verizon Wireless BlackBerry Sent from my Verizon Wireless BlackBerry
Re: [TMIC] OT Prayer Request
Kevin, I hope by now that your mom is doing really well for both of your sakes. We all support and pray for both of you. Janice -- From: Kevin Wolfthal wolft...@optonline.net Sent: Friday, February 12, 2010 9:47 AM To: tmic-list@eskimo.com Subject: [TMIC] OT Prayer Request Dear Friends, My Mom had a stroke on Sunday. She is in the hospital. She has weakness on her right side and speech deficits. We have been each others support and caregivers for years. I feel more scared and alone than I have ever felt. Please say a prayer for her recovery. Her name is Olga. Thank you. Prayers to you all, Kevin
Re: [TMIC] TM and Pilates
I DIDN'T MEAN THAT IN A NEGATIVE WAY.IT IS GREAT TO HAVE AS MANY AS POSSIBLE TO GIVE INPUT.I WAS JUST CURIOUS AS TO THE STATE (PHYSICALLY) HE WAS IN. PLEASE DON'T TAKE IT THE WRONG WAY. jANICE From: Grace M. Sent: Saturday, February 13, 2010 1:26 PM To: rj_ran...@yahoo.com Cc: Janice Nichols ; tmic-list@eskimo.com Subject: Re: [TMIC] TM and Pilates Randy, You're like family here at the site and have a lot of good input to offer. I think that you and I came around the same time. Janice, we don't have to currently be ill in order to participate here. ALL are welcome. It's not an exclusive club. Respectfully, Grace
RE: [TMIC] TM and Pilates
Randy you are still part of the TM family. You spent 3 hard years to get where you are now, and you give us all inspiration that maybe we too will improve. Please don't leave. You can always give input after what you went through. I hope you continue to do well in the future. Patti - Wisconsin -Original Message- From: rj_ran...@yahoo.com [mailto:rj_ran...@yahoo.com] Sent: Saturday, February 13, 2010 1:20 PM To: Janice Nichols; I Whiddett; tmic-list@eskimo.com Subject: Re: [TMIC] TM and Pilates I went back to the neuro a few weeks back for the most recent check ups. I joined this websight after I was diagnosed in 05. Spent 3 years trying to get walking back. I still can stand up quickly and I can't run. I guess I should just leave the site now that my neuro says I'm fine. --Original Message-- From: Janice Nichols To: rj_ran...@yahoo.com To: I Whiddett To: tmic-list@eskimo.com Subject: Re: [TMIC] TM and Pilates Sent: Feb 13, 2010 2:14 PM Randy, So you are telling us that you have absolutely no symptoms and you feel great? If so, I am thrilled for you, but am wondering why you are on this website. Janice -- From: rj_ran...@yahoo.com Sent: Friday, February 12, 2010 5:39 AM To: I Whiddett i.whidd...@sky.com; tmic-list@eskimo.com Subject: Re: [TMIC] TM and Pilates I had the event in 2005. - was told 'looks like early m s' and treated. Told I probably would never use right leg again - told pt would not help. Struggled to walk and pee for years - went for pt anyway (after 2nd opioin) - given a transverse mylophy - ediopathic 'explantation' in 06. Now, no symptoms, tests all perfect, and I am told that I don't have ms or tm and they don't know what happened or why. --Original Message-- From: I Whiddett To: tmic-list@eskimo.com Subject: [TMIC] TM and Pilates Sent: Feb 12, 2010 6:32 AM I was diagnosed with transverse myelitis in May 2009. My symptoms developed over a few days and I was discharged from hospital after 6 weeks with partial recovery in my right arm but have residual numbness and tightness through most of my body. I have progressed to getting about with a wheely walker and am wondering whether a Pilates class could be beneficial. Another suggestion has been accupuncture. Once the initial flurry of interest in me as an 'unusual' case had died down, I felt abandoned and left to my own devices by the British National Health. Any recommendations on the above would be welcome. Iris Sent from my Verizon Wireless BlackBerry Sent from my Verizon Wireless BlackBerry
Re: [TMIC] TM and Pilates
Randy, Of course you should stay on the website - why not? Again, please do NOT take my statement the wrong way. I think I am getting gun shy about responding.It all seems to come out wrong. Janice -- From: rj_ran...@yahoo.com Sent: Saturday, February 13, 2010 1:19 PM To: Janice Nichols jan...@centurytel.net; I Whiddett i.whidd...@sky.com; tmic-list@eskimo.com Subject: Re: [TMIC] TM and Pilates I went back to the neuro a few weeks back for the most recent check ups. I joined this websight after I was diagnosed in 05. Spent 3 years trying to get walking back. I still can stand up quickly and I can't run. I guess I should just leave the site now that my neuro says I'm fine. --Original Message-- From: Janice Nichols To: rj_ran...@yahoo.com To: I Whiddett To: tmic-list@eskimo.com Subject: Re: [TMIC] TM and Pilates Sent: Feb 13, 2010 2:14 PM Randy, So you are telling us that you have absolutely no symptoms and you feel great? If so, I am thrilled for you, but am wondering why you are on this website. Janice -- From: rj_ran...@yahoo.com Sent: Friday, February 12, 2010 5:39 AM To: I Whiddett i.whidd...@sky.com; tmic-list@eskimo.com Subject: Re: [TMIC] TM and Pilates I had the event in 2005. - was told 'looks like early m s' and treated. Told I probably would never use right leg again - told pt would not help. Struggled to walk and pee for years - went for pt anyway (after 2nd opioin) - given a transverse mylophy - ediopathic 'explantation' in 06. Now, no symptoms, tests all perfect, and I am told that I don't have ms or tm and they don't know what happened or why. --Original Message-- From: I Whiddett To: tmic-list@eskimo.com Subject: [TMIC] TM and Pilates Sent: Feb 12, 2010 6:32 AM I was diagnosed with transverse myelitis in May 2009. My symptoms developed over a few days and I was discharged from hospital after 6 weeks with partial recovery in my right arm but have residual numbness and tightness through most of my body. I have progressed to getting about with a wheely walker and am wondering whether a Pilates class could be beneficial. Another suggestion has been accupuncture. Once the initial flurry of interest in me as an 'unusual' case had died down, I felt abandoned and left to my own devices by the British National Health. Any recommendations on the above would be welcome. Iris Sent from my Verizon Wireless BlackBerry Sent from my Verizon Wireless BlackBerry
[TMIC] Dragon NaturallySpeaking (ot)
I am having a problem with the hot key on my Dragon NaturallySpeaking 10. I am using Windows Vista and it has a voice recognition program for use, but I prefer to use the Dragon. My problem , I believe, is the hot key for the coma key must be used for the Windows Vista program, because when I sign on to Dragon, I get an error message regarding the hot key and I am unable to use it when speaking in Dragon. Once before, someone made a statement stating that I can change the hot key if I wanted to. I cannot remember who it was, but I hope they will read this and be able to help me out. Naomi
Re: [TMIC] TM and Pilates
Hi Janice, No offense taken. Just wanted to make sure that Randy doesn't leave us. He's been a really good friend to all of us and has always been very positive and supportive. No harm. No foul. Grace
Re: [TMIC] TM and Pilates
Hi Randy, we all know those neuro's are wrong a lot and I bet you have some residual TM left. There foreStay with the group. We value your input and I bet you still learn from other TMIC folks. Cindy McLeroy - Original Message - From: rj_ran...@yahoo.com To: Janice Nichols jan...@centurytel.net; I Whiddett i.whidd...@sky.com; tmic-list@eskimo.com Sent: Saturday, February 13, 2010 11:19 AM Subject: Re: [TMIC] TM and Pilates I went back to the neuro a few weeks back for the most recent check ups. I joined this websight after I was diagnosed in 05. Spent 3 years trying to get walking back. I still can stand up quickly and I can't run. I guess I should just leave the site now that my neuro says I'm fine. --Original Message-- From: Janice Nichols To: rj_ran...@yahoo.com To: I Whiddett To: tmic-list@eskimo.com Subject: Re: [TMIC] TM and Pilates Sent: Feb 13, 2010 2:14 PM Randy, So you are telling us that you have absolutely no symptoms and you feel great? If so, I am thrilled for you, but am wondering why you are on this website. Janice -- From: rj_ran...@yahoo.com Sent: Friday, February 12, 2010 5:39 AM To: I Whiddett i.whidd...@sky.com; tmic-list@eskimo.com Subject: Re: [TMIC] TM and Pilates I had the event in 2005. - was told 'looks like early m s' and treated. Told I probably would never use right leg again - told pt would not help. Struggled to walk and pee for years - went for pt anyway (after 2nd opioin) - given a transverse mylophy - ediopathic 'explantation' in 06. Now, no symptoms, tests all perfect, and I am told that I don't have ms or tm and they don't know what happened or why. --Original Message-- From: I Whiddett To: tmic-list@eskimo.com Subject: [TMIC] TM and Pilates Sent: Feb 12, 2010 6:32 AM I was diagnosed with transverse myelitis in May 2009. My symptoms developed over a few days and I was discharged from hospital after 6 weeks with partial recovery in my right arm but have residual numbness and tightness through most of my body. I have progressed to getting about with a wheely walker and am wondering whether a Pilates class could be beneficial. Another suggestion has been accupuncture. Once the initial flurry of interest in me as an 'unusual' case had died down, I felt abandoned and left to my own devices by the British National Health. Any recommendations on the above would be welcome. Iris Sent from my Verizon Wireless BlackBerry Sent from my Verizon Wireless BlackBerry
Re: [TMIC] TM and Pilates
Janice its ok. I've actually been wondering if I should stay. I feel very awkward these days. I've been told more than once that I had all the textbook signs for ms and I did loose my left foot followed by my right leg then my bladder was told I had tm and went through the most unbelievable facial pain. Had several doc all with different ideas and one that got me on my feet and another that got me in pt and walking again I've been hospitalized 4 times and now suddenly I am told that I don't have ms and show no signs of tm. I pray to God nothing comes back. I spent an entire summer pushing myself on a tread mill trying to rebuild my strenght but that was after the years of trying to cross my legs and do odd excercises on the bed floor and chair that the pt taught me. It sure has been a mentally brain warping experience. Tx grace for calling me fam. This is a great group of people and have helped me get through a lot of challenges as well as put up with my venting from time to time. I think we all have to vent. --Original Message-- From: Grace M. To: rj_ran...@yahoo.com Cc: Janice Nichols Cc: tmic-list@eskimo.com Subject: Re: [TMIC] TM and Pilates Sent: Feb 13, 2010 2:26 PM Randy, You're like family here at the site and have a lot of good input to offer. I think that you and I came around the same time. Janice, we don't have to currently be ill in order to participate here. ALL are welcome. It's not an exclusive club. Respectfully, Grace Sent from my Verizon Wireless BlackBerry
Re: [TMIC] TM and Pilates
Randy, I think it is imperative that you stay in touch with us. You are not 100% anyway and may still need us as much as we need you as an active participant. You have been through the same thing as many of us have.nuff said? Janice -- From: rj_ran...@yahoo.com Sent: Saturday, February 13, 2010 3:18 PM To: Grace M. grace...@gmail.com Cc: Janice Nichols jan...@centurytel.net; tmic-list@eskimo.com Subject: Re: [TMIC] TM and Pilates Janice its ok. I've actually been wondering if I should stay. I feel very awkward these days. I've been told more than once that I had all the textbook signs for ms and I did loose my left foot followed by my right leg then my bladder was told I had tm and went through the most unbelievable facial pain. Had several doc all with different ideas and one that got me on my feet and another that got me in pt and walking again I've been hospitalized 4 times and now suddenly I am told that I don't have ms and show no signs of tm. I pray to God nothing comes back. I spent an entire summer pushing myself on a tread mill trying to rebuild my strenght but that was after the years of trying to cross my legs and do odd excercises on the bed floor and chair that the pt taught me. It sure has been a mentally brain warping experience. Tx grace for calling me fam. This is a great group of people and have helped me get through a lot of challenges as well as put up with my venting from time to time. I think we all have to vent. --Original Message-- From: Grace M. To: rj_ran...@yahoo.com Cc: Janice Nichols Cc: tmic-list@eskimo.com Subject: Re: [TMIC] TM and Pilates Sent: Feb 13, 2010 2:26 PM Randy, You're like family here at the site and have a lot of good input to offer. I think that you and I came around the same time. Janice, we don't have to currently be ill in order to participate here. ALL are welcome. It's not an exclusive club. Respectfully, Grace Sent from my Verizon Wireless BlackBerry
[TMIC] That all be well
Kevin, I wish and yours the best now and always. I know it's been a rough road and how hard it's been to find some grace, some reprieve and relief, and find the right people. Knowing these challenges I join in prayer that you are strengthened and supported through this latest trial. Blessings, Akua --
Re: [TMIC] TM and Pilates
Well put, Janice Jeanne
Re: [TMIC]
GlacierI received a very nice email from Jude Jan 26th. She said it was about time she got out of her bed again and sit in her chair for a while. And even go for a drive with Dave. I immediately sent her an email back, but have heard nothing since. But she did seem to be feeling better. Linda - Original Message - From: Rebeccamailto:wrabal...@gt.rr.com To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Saturday, February 13, 2010 8:47 AM Subject: [TMIC] I have not seen Jude post in sometime. Have I missed anything? Glacier Bkgrd.jpg
Re: [TMIC]
GlacierI heard from Jude a couple of weeks ago and she thought she may have broken an ankle. I don't think she gets on the computer much now, but we need to ring her chimes a little and see if she is doing better now. I will send her an email. Janice From: L T CHERPESKI Sent: Saturday, February 13, 2010 10:09 PM To: tmic-list@eskimo.com ; Rebecca Subject: Re: [TMIC] I received a very nice email from Jude Jan 26th. She said it was about time she got out of her bed again and sit in her chair for a while. And even go for a drive with Dave. I immediately sent her an email back, but have heard nothing since. But she did seem to be feeling better. Linda - Original Message - From: Rebecca To: tmic-list@eskimo.com Sent: Saturday, February 13, 2010 8:47 AM Subject: [TMIC] I have not seen Jude post in sometime. Have I missed anything? Glacier Bkgrd.jpg
[TMIC] forwarding from Jude
Hi all, I got this from Jude last week, so sending it on. I'm sure Jude won't mind. I'm sure she'd love to hear from anyone who is interested in writing to her. Hugs, Barbara A in Auburn CA -Original Message- From: heyjude48...@aol.com To: balmat...@aol.com Sent: Sat, Feb 6, 2010 11:50 pm Subject: Re: [TMIC] Re: Lynn (Roseofreno) Hey rhere girlfriend, It has been a bear getting used to this new computer. Why do things have to be so complicated? What is going on with everyone? I hope that I haven't missed anything important I pray that the majority of the members are well and getting along with their lives. I bought my husband, Dave, a young dog to give him some company and something to enjoy outside of our illnesses. Now it's not so depressing around here. I have been bad with pain and Dave has come down with a nasty case of Shingles and that scares me because many times shingles are a precurser to cancer. Do you know anything about Dave's illness? I am going to go now and do some research on it. I guess that is the best way to find out about Shingles, but I also find that there is nothing better than personal experience. With this new computer I cannot figure out how to get my address book. And, there doesn't seem to be directions to set one up. Maybe someone can edit there book so that there are only members in it Would that be impossible? Love you girl, Jude, in Michigan Practice Random Acts of Kindness -Original Message- From: Barbara Alma balmat...@aol.com To: jan...@centurytel.net; cherp...@msn.com; tmic-l...@eskimo.net Sent: Sun, Feb 7, 2010 1:46 am Subject: Re: [TMIC] Re: Lynn (Roseofreno) I've corresponded with Rose several times and she's doing well. It's just very cold and she doesn't do really well with the cold. She may be laying low these days like many of us. She'll most likely write in soon, once she sees this message. As I remember, Rose came home from the hospital several days before Christmas. She made cookies for her grandchildren and dinner for her family for Christmas, so came through the heart attack pretty well. Hugs, Barbara A in Auburn CA -Original Message- From: Janice Nichols jan...@centurytel.net To: L T CHERPESKI cherp...@msn.com; TMIC-LIST tmic-l...@eskimo.net Sent: Sat, Feb 6, 2010 8:11 pm Subject: Re: [TMIC] Re: Lynn (Roseofreno) No, haven't heard anything about her and I don't have an address on her. Hopefully, someone will come up with some info on her. Janice From: L T CHERPESKI Sent: Saturday, February 06, 2010 9:44 PM To: TMIC-LIST Subject: [TMIC] Re: Lynn (Roseofreno) Has anyone heard from Lynn (Roseofreno)? Her husband posted that she was in the hospital but it's been 2 or 3 months ago, I think. I tried to send her an email and it was returned mailbox full I'm a little concerned about her thanks Linda
[TMIC] My exercise regime
The pros and cons of exercise have long been debated on this list and I very rarely enter into any of it because I just seem to march (no, not literally) to a very different drummer. I decided from my first moments in hospital that I wouldn't spend my life on doctors' appointments of any kind, including physio. I pretty much have looked after myself with the help of this marvellous group. Yes, I do go to the doctor, about every two months to get prescriptions filled. While I was in hospital, the physios there, who I believe had had no experience of tm, told me to walk, just walk, as much and as often as I could. I did that to the point of exhaustionI know, in the early days that doesn't take much. Since I'm lucky enough to be one of the walking wounded, walking is what I need to keep doing, so I do. I don't do any exercise because I need my energy to just live as normal a life as possible. Normal of course being normal in a tm sense. The point of this little rant is that I have been doing something that I would have never thought possible in the early days. I've been actually making a swale on our farm. For those of you on facebook, I have posted photos and you will find them in the album Gilly the Excavator. I hope that it will give encouragement to many and especially our newer members.
Re: [TMIC] TM and Pilates
Hi Randy and all TMIC, I am another one who was originally told that I had TM and am now being told that I don't, and that's by the same doctor and another as well. I've never been talked to about MS though. I had only one attack, was paralyzed from waist to toes within 15 minutes, at lesion T8-10. I even went to 2 different hospitals, as I wanted a second opinion, both with a TM diagnosis. After about 3 yrs I was told by my first Neuro, who became my treating Neuro that I didn't have TM. He didn't know what caused the paralysis and no other information as to why. Not a spinal infarction or stroke, or anything else. I had trouble with my disability claim and he was the cause so I changed Neuro's a few of years later and she had MRI's done and told me the same thing. MRI's have come a long way and the lesion is not there any longer and they can't see any cause, like a bleed or anything. She looked for evidence of a bleed because she wanted to rule out the possibility of it happening again and couldn't find it. So guys, since I've had 2 Neuro's both tell me that I don't have TM, I really don't care. I'm sticking with it, and you are just stuck with me. I'm happy here, I get the support that I need, I give it when I can, and I'm not going anywhere. I really don't know what caused my problems, and I really don't care at this point. It is what it is. I've had this crap for over 10 years and it's not going away. I had TM symptoms and that's where I started, so I'm sticking with it. Hugs, Barbara A in Auburn CA -Original Message- From: rj_ran...@yahoo.com To: Grace M. grace...@gmail.com Cc: Janice Nichols jan...@centurytel.net; tmic-list@eskimo.com Sent: Sat, Feb 13, 2010 1:18 pm Subject: Re: [TMIC] TM and Pilates Janice its ok. I've actually been wondering if I should stay. I feel very wkward these days. I've been told more than once that I had all the textbook igns for ms and I did loose my left foot followed by my right leg then my ladder was told I had tm and went through the most unbelievable facial pain. ad several doc all with different ideas and one that got me on my feet and nother that got me in pt and walking again I've been hospitalized 4 times and ow suddenly I am told that I don't have ms and show no signs of tm. I pray to od nothing comes back. I spent an entire summer pushing myself on a tread mill rying to rebuild my strenght but that was after the years of trying to cross my egs and do odd excercises on the bed floor and chair that the pt taught me. It ure has been a mentally brain warping experience. Tx grace for calling me fam. his is a great group of people and have helped me get through a lot of hallenges as well as put up with my venting from time to time. I think we all ave to vent. -Original Message-- rom: Grace M. o: rj_ran...@yahoo.com c: Janice Nichols c: tmic-list@eskimo.com ubject: Re: [TMIC] TM and Pilates ent: Feb 13, 2010 2:26 PM Randy, ou're like family here at the site and have a lot of good input to offer. I hink that you and I came around the same time. anice, we don't have to currently be ill in order to participate here. ALL are elcome. It's not an exclusive club. espectfully, race Sent from my Verizon Wireless BlackBerry
Re: [TMIC] TM and Pilates
Barbara you helped restore some of my sanity. Do you still have residual problems? My same neuro suggested that it have been auto immunine disorder. I didn't know if he was suggesting a virus and when I asked I think that he might have thought that I just don't have enough background knowledge to understand. I know that I have been checked for a lot of pathogens and each time it was always negative. I did get eatten up by mosqiutoes in the deep woods of a national forrest 2 weeks before the tm experience set in. Sent from my Verizon Wireless BlackBerry -Original Message- From: Barbara Alma balmat...@aol.com Date: Sun, 14 Feb 2010 00:39:33 To: rj_ran...@yahoo.com; tmic-list@eskimo.com Subject: Re: [TMIC] TM and Pilates Hi Randy and all TMIC, I am another one who was originally told that I had TM and am now being told that I don't, and that's by the same doctor and another as well. I've never been talked to about MS though. I had only one attack, was paralyzed from waist to toes within 15 minutes, at lesion T8-10. I even went to 2 different hospitals, as I wanted a second opinion, both with a TM diagnosis. After about 3 yrs I was told by my first Neuro, who became my treating Neuro that I didn't have TM. He didn't know what caused the paralysis and no other information as to why. Not a spinal infarction or stroke, or anything else. I had trouble with my disability claim and he was the cause so I changed Neuro's a few of years later and she had MRI's done and told me the same thing. MRI's have come a long way and the lesion is not there any longer and they can't see any cause, like a bleed or anything. She looked for evidence of a bleed because she wanted to rule out the possibility of it happening again and couldn't find it. So guys, since I've had 2 Neuro's both tell me that I don't have TM, I really don't care. I'm sticking with it, and you are just stuck with me. I'm happy here, I get the support that I need, I give it when I can, and I'm not going anywhere. I really don't know what caused my problems, and I really don't care at this point. It is what it is. I've had this crap for over 10 years and it's not going away. I had TM symptoms and that's where I started, so I'm sticking with it. Hugs, Barbara A in Auburn CA -Original Message- From: rj_ran...@yahoo.com To: Grace M. grace...@gmail.com Cc: Janice Nichols jan...@centurytel.net; tmic-list@eskimo.com Sent: Sat, Feb 13, 2010 1:18 pm Subject: Re: [TMIC] TM and Pilates Janice its ok. I've actually been wondering if I should stay. I feel very wkward these days. I've been told more than once that I had all the textbook igns for ms and I did loose my left foot followed by my right leg then my ladder was told I had tm and went through the most unbelievable facial pain. ad several doc all with different ideas and one that got me on my feet and nother that got me in pt and walking again I've been hospitalized 4 times and ow suddenly I am told that I don't have ms and show no signs of tm. I pray to od nothing comes back. I spent an entire summer pushing myself on a tread mill rying to rebuild my strenght but that was after the years of trying to cross my egs and do odd excercises on the bed floor and chair that the pt taught me. It ure has been a mentally brain warping experience. Tx grace for calling me fam. his is a great group of people and have helped me get through a lot of hallenges as well as put up with my venting from time to time. I think we all ave to vent. -Original Message-- rom: Grace M. o: rj_ran...@yahoo.com c: Janice Nichols c: tmic-list@eskimo.com ubject: Re: [TMIC] TM and Pilates ent: Feb 13, 2010 2:26 PM Randy, ou're like family here at the site and have a lot of good input to offer. I hink that you and I came around the same time. anice, we don't have to currently be ill in order to participate here. ALL are elcome. It's not an exclusive club. espectfully, race Sent from my Verizon Wireless BlackBerry
Re: [TMIC] My exercise regime
Thanks, Gilly. You are such dear one...
