RE: [TMIC] Walk Aide
I'm doing physiotherapy again right now, one hour per day, I see little improvements, but notthing to shout about yet. I started aqua therapy and it really is enjoyable being in the water again as I was a Scuba diver. From: jan...@centurytel.net To: rumc...@hotmail.com; hwyfli...@yahoo.com; toddtm2...@sbcglobal.net; tmic-list@eskimo.com Subject: Re: [TMIC] Walk Aide Date: Sun, 4 Apr 2010 22:15:18 -0500 Jeron, Can you get into physical therapy? You have probably done that before, but maybe at this point more can be done. Janice From: j ra Sent: Sunday, April 04, 2010 6:55 PM To: hwyfli...@yahoo.com ; toddtm2...@sbcglobal.net ; Transverse Myelytis Subject: RE: [TMIC] Walk Aide Good night everyone, I just out of the hospital for the 6th time in the almost 2 years of TM. I used the walk aide for some time when I was learning to walk again, but found it very difficult too, especially around tight corners. I'm using cruches now, but I still drag my right leg along. I have 20% of mobility in it, which for me is a God given gift considering all that has been taken away by TM. I find the crutches useful, but I still fell I should revert back to the chair because I have dizzy spells from time to time and there are only so many places on my arms and hips left to bruise when I fall/collapse. Does anyone have any advice as to how long I should keep trying the crutches? should I go back on the chair or should I just fo physio until I could walk on my own again. Jeron Date: Sun, 4 Apr 2010 15:41:22 -0700 From: hwyfli...@yahoo.com Subject: Re: [TMIC] Walk Aide To: toddtm2...@sbcglobal.net; tmic-list@eskimo.com Todd, Yeah, I've found after talking with so many people, that the variances in each of us with TM is pretty large as far as what works for one and what doesn't.. I'm coming up on two years pretty soon and if the opportunity ever arises again I'll definitely give the Walk Aide another shot. Who knows how I may respond after two years of walking and using that muscle group, however slight it may be. Quick story reverting back to my PT days...after the Walk Aide experiment, my neuro decided that it wouldn't hurt to add electro stim to my PT regimen so for 15 minutes prior to my PT exercises, my therapist would wire me up to the electro stim machine. This was on my left lower half of my leg since that is what I am having the primary issues with. The very first time she started turning the machine up and told me to let her know when it got uncomfortable...and she kept turning it up..and up..and up..and up.and she kept asking me, are you okay...? I would respond, yeah, I'm fine. I could feel the stim, but it didn't hurt and it wasn't making my muscles contract at all... Anyway, bottom lineshe ended up cranking up the machine all the way up and I still had no response from the machine. Now, I'm assuming the big electro stim machine has the capability to go higher and make a larger contraction than something like the Walk Aideand I was still getting nothing from it. Anyway, I did my electro stim anyway and just tried to make a conscious effort to make my muscles respond in conjunction the stim. Oh well Kevin Weilacher N.E. Ohio (Canton) From: Todd Tarno toddtm2...@sbcglobal.net To: TMIC tmic-list@eskimo.com Sent: Sun, April 4, 2010 3:42:48 PM Subject: Re: [TMIC] Walk Aide Hey Kevin, I'm so sorry that the Walk Aide didn't work for you. I know that each person with TM is different, I too don't understand why you're able move your toes a little bit, that's all I'm able to do also, but it didn't work. Let me tell you a little about my visit. She, the Dr., didn't even bring in her computer into the room with her, because she didn't think she would be able to find a working muscle on a person with TM for eight years with a handheld electric unit. She did see that when I tried to move my toes, the muscles below my ankle was moving a little bit and that was a good sign. It showed that the muscle signal was getting to the brain. The muscle that's needed, need to be very close to the skin. My muscle that did work ( on my bad right leg ), she said is in a weird place, is on the right side back close to the knee. It's two fingers up from one of my moles. lol I would need the next cuff side, next HALF side would be perfect, because the unit needs to be in front of my leg, so it knows where my leg is. So, if when you try to move your toes and the muscles below the outside ankle are moving, that's a good sign. This isn't an exact science, but I believe that as our body heals itself, this unit could work for us. I don't think this unit would had worked a few earlier. I hope everyone tries the
Re: [TMIC] Walk Aide
I am showing my ignorance again.What do they do for/to you with physiotherappy?I was doing water aerobics before TM. Haven't started back again yet. Janice From: j ra Sent: Monday, April 05, 2010 7:27 AM To: jan...@centurytel.net ; hwyfli...@yahoo.com ; toddtm2...@sbcglobal.net ; Transverse Myelytis Subject: RE: [TMIC] Walk Aide I'm doing physiotherapy again right now, one hour per day, I see little improvements, but notthing to shout about yet. I started aqua therapy and it really is enjoyable being in the water again as I was a Scuba diver. From: jan...@centurytel.net To: rumc...@hotmail.com; hwyfli...@yahoo.com; toddtm2...@sbcglobal.net; tmic-list@eskimo.com Subject: Re: [TMIC] Walk Aide Date: Sun, 4 Apr 2010 22:15:18 -0500 Jeron, Can you get into physical therapy? You have probably done that before, but maybe at this point more can be done. Janice From: j ra Sent: Sunday, April 04, 2010 6:55 PM To: hwyfli...@yahoo.com ; toddtm2...@sbcglobal.net ; Transverse Myelytis Subject: RE: [TMIC] Walk Aide Good night everyone, I just out of the hospital for the 6th time in the almost 2 years of TM. I used the walk aide for some time when I was learning to walk again, but found it very difficult too, especially around tight corners. I'm using cruches now, but I still drag my right leg along. I have 20% of mobility in it, which for me is a God given gift considering all that has been taken away by TM. I find the crutches useful, but I still fell I should revert back to the chair because I have dizzy spells from time to time and there are only so many places on my arms and hips left to bruise when I fall/collapse. Does anyone have any advice as to how long I should keep trying the crutches? should I go back on the chair or should I just fo physio until I could walk on my own again. Jeron Date: Sun, 4 Apr 2010 15:41:22 -0700 From: hwyfli...@yahoo.com Subject: Re: [TMIC] Walk Aide To: toddtm2...@sbcglobal.net; tmic-list@eskimo.com Todd, Yeah, I've found after talking with so many people, that the variances in each of us with TM is pretty large as far as what works for one and what doesn't.. I'm coming up on two years pretty soon and if the opportunity ever arises again I'll definitely give the Walk Aide another shot. Who knows how I may respond after two years of walking and using that muscle group, however slight it may be. Quick story reverting back to my PT days...after the Walk Aide experiment, my neuro decided that it wouldn't hurt to add electro stim to my PT regimen so for 15 minutes prior to my PT exercises, my therapist would wire me up to the electro stim machine. This was on my left lower half of my leg since that is what I am having the primary issues with. The very first time she started turning the machine up and told me to let her know when it got uncomfortable...and she kept turning it up..and up..and up..and up.and she kept asking me, are you okay...? I would respond, yeah, I'm fine. I could feel the stim, but it didn't hurt and it wasn't making my muscles contract at all... Anyway, bottom lineshe ended up cranking up the machine all the way up and I still had no response from the machine. Now, I'm assuming the big electro stim machine has the capability to go higher and make a larger contraction than something like the Walk Aideand I was still getting nothing from it. Anyway, I did my electro stim anyway and just tried to make a conscious effort to make my muscles respond in conjunction the stim. Oh well Kevin Weilacher N.E. Ohio (Canton) From: Todd Tarno toddtm2...@sbcglobal.net To: TMIC tmic-list@eskimo.com Sent: Sun, April 4, 2010 3:42:48 PM Subject: Re: [TMIC] Walk Aide Hey Kevin, I'm so sorry that the Walk Aide didn't work for you. I know that each person with TM is different, I too don't understand why you're able move your toes a little bit, that's all I'm able to do also, but it didn't work. Let me tell you a little about my visit. She, the Dr., didn't even bring in her computer into the room with her, because she didn't think she would be able to find a working muscle on a person with TM for eight years with a handheld electric unit. She did see that when I tried to move my toes, the muscles below my ankle was moving a little bit and that was a good sign. It showed that the muscle signal was getting to the brain. The muscle that's needed, need to be very close to the skin. My muscle that did work ( on my bad right leg ), she said is in a weird place, is on the right side back close to the knee. It's two fingers up from one of my moles. lol I would need the next cuff side, next HALF side would be perfect,
Fw: RE: [TMIC] Walk Aide
While I was doing the testing, it was having trouble knowing when I was turning
too. Straight walk did wonderful, but at most corners, it wouldn't turn on and
I was in a small room.
Using crutches is good for weightbaring, but if you're falling a lot, then you
might need more PT until your legs get stronger. It's more for safety than
anything.
Keep up the exercises,
Todd in CC, TX
--- On Sun, 4/4/10, j ra rumc...@hotmail.com wrote:
From: j ra rumc...@hotmail.com
Subject: RE: [TMIC] Walk Aide
To: hwyfli...@yahoo.com, toddtm2...@sbcglobal.net, Transverse Myelytis
tmic-list@eskimo.com
Date: Sunday, April 4, 2010, 6:55 PM
Good night everyone,
I just out of the hospital for the 6th time in the almost 2 years of TM. I used
the walk aide for some time when I was learning to walk again, but found it
very difficult too, especially around tight corners. I'm using cruches now, but
I still drag my right leg along. I have 20% of mobility in it, which for me is
a God given gift considering all that has been taken away by TM. I find the
crutches useful, but I still fell I should revert back to the chair because I
have dizzy spells from time to time and there are only so many places on my
arms and hips left to bruise when I fall/collapse. Does anyone have any advice
as to how long I should keep trying the crutches? should I go back on the chair
or should I just fo physio until I could walk on my own again.
Jeron
Date: Sun, 4 Apr 2010 15:41:22 -0700
From: hwyfli...@yahoo.com
Subject: Re: [TMIC] Walk Aide
To: toddtm2...@sbcglobal.net; tmic-list@eskimo.com
#yiv1705887983 .ExternalClass DIV
{}
Todd,
Yeah, I've found after talking with so many people, that the variances in each
of us with TM is pretty large as far as what works for one and what doesn't..
I'm coming up on two years pretty soon and if the opportunity ever arises again
I'll definitely give the Walk Aide another shot.
Who knows how I may respond after two years of walking and using that muscle
group, however slight it may be.
Quick story reverting back to my PT days...after the Walk Aide experiment, my
neuro decided that it wouldn't hurt to add electro stim to my PT regimen so for
15 minutes prior to my PT exercises, my therapist would wire me up to the
electro stim machine.
This was on my left lower half of my leg since that is what I am having the
primary issues with.
The very first time she started turning the machine up and told me to let her
know when it got uncomfortable...and she kept turning it up..and
up..and up..and up.and she kept asking me, are you okay...?
I would respond, yeah, I'm fine. I could feel the stim, but it didn't hurt and
it wasn't making my muscles contract at all...
Anyway, bottom lineshe ended up cranking up the machine all the way up and
I still had no response from the machine.
Now, I'm assuming the big electro stim machine has the capability to go higher
and make a larger contraction than something like the Walk Aideand I was
still getting nothing from it.
Anyway, I did my electro stim anyway and just tried to make a conscious effort
to make my muscles respond in conjunction the stim.
Oh well
Kevin Weilacher
N.E. Ohio (Canton)
From: Todd Tarno toddtm2...@sbcglobal.net
To: TMIC tmic-list@eskimo.com
Sent: Sun, April 4, 2010 3:42:48 PM
Subject: Re: [TMIC] Walk Aide
Hey Kevin,
I'm so sorry that the Walk Aide didn't work for you. I know that each person
with TM is different, I too don't understand why you're able move your toes a
little bit, that's all I'm able to do also, but it didn't work.
Let me tell you a little about my visit.
She, the Dr., didn't even bring in her computer into the room with her, because
she didn't think she would be able to find a working muscle on a person with TM
for eight years with a handheld electric unit. She did see that when I tried
to move my toes, the muscles below my ankle was moving a little bit and that
was a good sign. It showed that the muscle signal was getting to the brain.
The muscle that's needed, need to be very close to the skin. My muscle that
did work ( on my bad right leg ), she said is in a weird place, is on the right
side back close to the knee. It's two fingers up from one of my moles. lol I
would need the next cuff side, next HALF side would be perfect, because the
unit needs to be in front of my leg, so it knows where my leg is.
So, if when you try to move your toes and the muscles below the outside ankle
are moving, that's a good sign. This isn't an exact science, but I believe
that as our body heals itself, this unit could work for us. I don't think this
unit would had worked a few earlier.
I hope everyone tries the Walk Aide at least once, but if it doesn't work then
maybe try again in a couple / few years.
Todd in CC, TX TM @ T-4 to T-8 on April 1, 2002
--- On Fri, 4/2/10, kevin weilacher hwyfli...@yahoo.com wrote:
From: kevin weilacher
Re: [TMIC] Walk Aide
Hey Kevin, I'm glad you're using the TENS unit before your PT. Yea, I used it on 22 the first two years with little response. That's why I didn't know if the Walk Aide would work for me, but it looks like it's a different muscle group. I'm also glad that in time, you will try the Walk Aide again. You're already doing really good walking with your hand crafted cane. Keep up the great work, Todd --- On Sun, 4/4/10, kevin weilacher hwyfli...@yahoo.com wrote: From: kevin weilacher hwyfli...@yahoo.com Subject: Re: [TMIC] Walk Aide To: Todd Tarno toddtm2...@sbcglobal.net, TMIC tmic-list@eskimo.com Date: Sunday, April 4, 2010, 5:41 PM Todd, Yeah, I've found after talking with so many people, that the variances in each of us with TM is pretty large as far as what works for one and what doesn't.. I'm coming up on two years pretty soon and if the opportunity ever arises again I'll definitely give the Walk Aide another shot. Who knows how I may respond after two years of walking and using that muscle group, however slight it may be. Quick story reverting back to my PT days...after the Walk Aide experiment, my neuro decided that it wouldn't hurt to add electro stim to my PT regimen so for 15 minutes prior to my PT exercises, my therapist would wire me up to the electro stim machine. This was on my left lower half of my leg since that is what I am having the primary issues with. The very first time she started turning the machine up and told me to let her know when it got uncomfortable...and she kept turning it up..and up..and up..and up.and she kept asking me, are you okay...? I would respond, yeah, I'm fine. I could feel the stim, but it didn't hurt and it wasn't making my muscles contract at all... Anyway, bottom lineshe ended up cranking up the machine all the way up and I still had no response from the machine. Now, I'm assuming the big electro stim machine has the capability to go higher and make a larger contraction than something like the Walk Aideand I was still getting nothing from it. Anyway, I did my electro stim anyway and just tried to make a conscious effort to make my muscles respond in conjunction the stim. Oh well Kevin Weilacher N.E. Ohio (Canton) From: Todd Tarno toddtm2...@sbcglobal.net To: TMIC tmic-list@eskimo.com Sent: Sun, April 4, 2010 3:42:48 PM Subject: Re: [TMIC] Walk Aide Hey Kevin, I'm so sorry that the Walk Aide didn't work for you. I know that each person with TM is different, I too don't understand why you're able move your toes a little bit, that's all I'm able to do also, but it didn't work. Let me tell you a little about my visit. She, the Dr., didn't even bring in her computer into the room with her, because she didn't think she would be able to find a working muscle on a person with TM for eight years with a handheld electric unit. She did see that when I tried to move my toes, the muscles below my ankle was moving a little bit and that was a good sign. It showed that the muscle signal was getting to the brain. The muscle that's needed, need to be very close to the skin. My muscle that did work ( on my bad right leg ), she said is in a weird place, is on the right side back close to the knee. It's two fingers up from one of my moles. lol I would need the next cuff side, next HALF side would be perfect, because the unit needs to be in front of my leg, so it knows where my leg is. So, if when you try to move your toes and the muscles below the outside ankle are moving, that's a good sign. This isn't an exact science, but I believe that as our body heals itself, this unit could work for us. I don't think this unit would had worked a few earlier. I hope everyone tries the Walk Aide at least once, but if it doesn't work then maybe try again in a couple / few years. Todd in CC, TX TM @ T-4 to T-8 on April 1, 2002 --- On Fri, 4/2/10, kevin weilacher hwyfli...@yahoo.com wrote: From: kevin weilacher hwyfli...@yahoo.com Subject: Re: [TMIC] Walk Aide To: Todd Tarno toddtm2...@sbcglobal.net, TMIC tmic-list@eskimo.com Date: Friday, April 2, 2010, 3:51 PM While I was going to outpatient PT, I was notified by my therapist and neuro that someone from Walkaide was going to be at the hospital doing demonstrations on people with different disabilities (ie:stroke, spinal cord injury, neurological etc..) and they requested me to be the one that they tried it one with a neurological disability. I was the third person to be demonstrated on and the woman right before me had, had a stroke and she had great success with the walk aide. I was kind of excited but wasn't getting my hopes up... The guy wired me up with the device and started ramping up the electrical charge...nothing at a lower settingstill nothing at a little higher settingstill nothing higher yet... He turned the device all the way up and my left foot still did not respond... Oh well, at least it was a try. The
