Re: [TMIC] They're baaack

[Dalton Garis]

Well, the cramping-spasticity-contractions‹whatever-yoy-wanna-call-them,
came back this morning.

The first sign was that I knocked over a perfectly good, and totally full,
cup of coffee all over the kitchen table, including on my meds.  By the time
I got to work my limb coordination was diminishing.

But I got through the lecture‹barely!  Then informed my reassuring, but
write-it-all-down-for-future-reference boss that I was heading home early.

OK now, just sore and embarrassed.  It is hard to be better than normal as
worse than normal as both situations land me in trouble.

Dalton

Abu Dhabi, United Arab Emirates
Office: +971-02-607-5070/5297
Mobile: +971-50-668-5760

From:  James Berg 
Date:  Tue, 26 Apr 2011 09:51:27 -1000
To:  john snodgrass 
Cc:  transverse myelitis 
Subject:  Re: [TMIC] revisiting an old issue
Resent-From:  
Resent-Date:  Tue, 26 Apr 2011 12:52:04 -0700

thanks for the input

On Tue, Apr 26, 2011 at 9:08 AM, john snodgrass  wrote:
> ativan along with hydrocodone use to ease the banding but that does not have
> much effect anymore for me
> 
> --- On Tue, 4/26/11, James Berg  wrote:
>> 
>> From: James Berg 
>> Subject: Re: [TMIC] revisiting an old issue
>> To: "john snodgrass" 
>> Cc: "transverse myelitis" 
>> Date: Tuesday, April 26, 2011, 2:28 PM
>> 
>> 
>> I am having a bad day--the thrumming is at its worst and the banding has
>> gotten wider and tighter--to the point I couldn't eat dinner or breakfast
>> this morning.  Baclofen does nothing.  It took four glasses of red wine and
>> two alergy pills to get me to sleep.  Being in the chair now is making the
>> banding pain worse.
>>  
>> any suggestions?
>> 
>> On Tue, Apr 26, 2011 at 1:11 AM, john snodgrass >  > wrote:
>>> I remember hearing the concern of thrumming in the legs.
>>> You know,,like the sound that a power transformer makes except it's a
>>> feeling,a buzzing or even sometimes like energy going up and down your leg
>>> or legs.
>>> 
>>> I gert this a lot and when it is real bad it is from the top of my head to
>>> the bottom of my feet.
>>> 
>>> sometimes it even feels like something poking at the bottom of my feet from
>>> the inside trying to get out.
>>> 
>>> perhaps i could harness it and drive a car with it!
>>> 
>>> I am taking the maximum dosage of baclofen and neurontin and was wondering
>>> if anyone ever ran across something to either slow this part down or even
>>> stop it.
>>> 
>>> sometimes it will last all day and can go from irritating to depressing.
>>> 
>>> most of the time when this does stop that's when the burning begins.
>>> 
>>> this on top of the wast banding and pain can drive me to thinking thoughts
>>> that are not normal for me.
>>> 
>>>  thoughts like,,perhaps i should find some marijuana and smoke it or perhaps
>>> i should drink enough to pass out or maybe i should punch someone and they
>>> will knock me out!
>>> 
>>> my Doc's know about it but have no answer.
>>> 
>>> losing insurance on may 5th.
>>> 
>>> 
>> 
> 

Re: [TMIC] They're baaack

[john snodgrass]

hate to hear that Dalton.
I'm having an extremely bad day myself
wondered if it was the weatherbut your way over there?
hows the weather?

--- On Wed, 4/27/11, Dalton Garis  wrote:

From: Dalton Garis 
Subject: Re: [TMIC] They're baaack
To: "James Berg" , "john snodgrass" 
Cc: "transverse myelitis" , 
"tmic-digest-requ...@eskimo.com" 
Date: Wednesday, April 27, 2011, 12:40 PM

Well, the cramping-spasticity-contractions—whatever-yoy-wanna-call-them, came 
back this morning. 
The first sign was that I knocked over a perfectly good, and totally full, cup 
of coffee all over the kitchen table, including on my meds.  By the time I got 
to work my limb coordination was diminishing.
But I got through the lecture—barely!  Then informed my reassuring, but 
write-it-all-down-for-future-reference boss that I was heading home early.
OK now, just sore and embarrassed.  It is hard to be better than normal as 
worse than normal as both situations land me in trouble.
Dalton
Abu Dhabi, United Arab Emirates

Office: +971-02-607-5070/5297

Mobile: +971-50-668-5760 

From:  James Berg 
Date:  Tue, 26 Apr 2011 09:51:27 -1000
To:  john snodgrass 
Cc:  transverse myelitis 
Subject:  Re: [TMIC] revisiting an old issue
Resent-From:  
Resent-Date:  Tue, 26 Apr 2011 12:52:04 -0700

thanks for the input

On Tue, Apr 26, 2011 at 9:08 AM, john snodgrass  wrote:
ativan along with hydrocodone use to ease the banding but that does not have 
much effect anymore for me

--- On Tue, 4/26/11, James Berg  wrote:

From: James Berg 
Subject: Re: [TMIC] revisiting an old issue
To: "john snodgrass" 

Cc: "transverse myelitis" 
Date: Tuesday, April 26, 2011, 2:28 PM

I am having a bad day--the thrumming is at its worst and the banding has gotten 
wider and tighter--to the point I couldn't eat dinner or breakfast this 
morning.  Baclofen does nothing.  It took four glasses of red wine and two 
alergy pills to get me to sleep.  Being in the chair
 now is making the banding pain worse. any suggestions?

On Tue, Apr 26, 2011 at 1:11 AM, john snodgrass  wrote:
I remember hearing the concern of thrumming in the legs.
You know,,like the sound that a power transformer makes except it's a feeling,a 
buzzing or even sometimes like energy going up and down your leg or legs.
I gert this a lot and when it is real bad it is from the top of my head to the 
bottom of my feet.
sometimes it even feels like something poking at the bottom of my feet from the 
inside trying to get out.
perhaps i could harness it and drive a car with it!
I am taking the maximum dosage of baclofen and neurontin and was wondering if 
anyone ever ran across something to either slow this part down or even stop it.
sometimes it will last all day and can go from irritating to depressing.
most of the time when this does stop that's when the burning begins.
this on top of the wast banding and pain can drive me to thinking thoughts that 
are not normal for me.
 thoughts like,,perhaps i should find some marijuana and smoke it or perhaps i 
should drink enough to pass out or maybe i should punch someone and they will 
knock me out!
my Doc's know about it but have no answer.
losing insurance on may 5th.



 

Re: [TMIC] They're baaack

[john snodgrass]

HOTTER HERE ALSO ,GETTING READY TO STORM

--- On Wed, 4/27/11, Dalton Garis  wrote:

From: Dalton Garis 
Subject: Re: [TMIC] They're baaack
To: "john snodgrass" 
Date: Wednesday, April 27, 2011, 1:10 PM

Getting hotter but still bearable.
Abu Dhabi, United Arab Emirates

Office: +971-02-607-5070/5297

Mobile: +971-50-668-5760 

From:  john snodgrass 
Date:  Wed, 27 Apr 2011 09:47:03 -0700 (PDT)
To:  James Berg , Dalton Garis 
Cc:  transverse myelitis , 
"tmic-digest-requ...@eskimo.com" 
Subject:  Re: [TMIC] They're baaack

hate to hear that Dalton.
I'm having an extremely bad day myself
wondered if it was the weatherbut your way over there?
hows the weather?

--- On Wed, 4/27/11, Dalton Garis 
 wrote:

From: Dalton Garis 
Subject: Re: [TMIC] They're baaack
To: "James Berg" , "john snodgrass" 
Cc: "transverse myelitis" , 
"tmic-digest-requ...@eskimo.com" 
Date: Wednesday, April 27, 2011, 12:40 PM

Well, the cramping-spasticity-contractions—whatever-yoy-wanna-call-them, came 
back this morning. 
The first sign was that I knocked over a perfectly good, and totally full, cup 
of coffee all over the kitchen table, including on my meds.  By the time I got 
to work my limb coordination was
 diminishing.
But I got through the lecture—barely!  Then informed my reassuring, but 
write-it-all-down-for-future-reference boss that I was heading home early.
OK now, just sore and embarrassed.  It is hard to be better than normal as 
worse than normal as both situations land me in trouble.
Dalton
Abu Dhabi, United Arab Emirates
Office: +971-02-607-5070/5297

Mobile: +971-50-668-5760 

From:  James Berg 
Date:  Tue, 26 Apr 2011 09:51:27 -1000
To:  john snodgrass 
Cc:  transverse myelitis 
Subject:  Re: [TMIC] revisiting an old issue
Resent-From:  
Resent-Date:  Tue, 26 Apr 2011 12:52:04 -0700

thanks for the input

On Tue, Apr 26, 2011 at 9:08 AM, john snodgrass  wrote:
ativan along with hydrocodone use to ease the banding but that does not have 
much effect anymore for me

--- On Tue, 4/26/11, James Berg  wrote:

From: James Berg 
Subject: Re: [TMIC] revisiting an old issue
To: "john
 snodgrass" 
Cc: "transverse myelitis" 
Date: Tuesday, April 26, 2011, 2:28 PM

I am having a bad day--the thrumming is at its worst and the banding has gotten 
wider and tighter--to the point I couldn't eat dinner or breakfast this 
morning.  Baclofen does nothing.  It took four glasses of red wine and two 
alergy pills to get me to sleep.  Being in the chair
 now is making the banding pain worse. any suggestions?

On Tue, Apr 26, 2011 at 1:11 AM, john snodgrass  wrote:
I remember hearing the concern of thrumming in the legs.
You know,,like the sound that a power transformer makes except it's a feeling,a 
buzzing or even sometimes like energy going up and down your leg or legs.
I gert this a lot and when it is real bad it is from the top of my head to the 
bottom of my feet.
sometimes it even feels like something poking at the bottom of my feet from the 
inside trying to get out.
perhaps i could harness it and drive a car with it!
I am taking the maximum dosage of baclofen and neurontin and was wondering if 
anyone ever ran across something to either slow this part down or even stop it.
sometimes it will last all day and can go
 from irritating to depressing.
most of the time when this does stop that's when the burning begins.
this on top of the wast banding and pain can drive me to thinking thoughts that 
are not normal for me.
 thoughts like,,perhaps i should find some marijuana and smoke it or perhaps i 
should drink enough to pass out or maybe i should punch someone and they will 
knock me out!
my Doc's know about it but have no answer.
losing insurance on may
 5th.




 

Re: [TMIC] revisiting an old issue

[Akua]

I too had to wait two years.  I applied immediately, too. The wait 
for disability is 6 months, the wait for medicare is two years from 
onset

(or approval). My"approval" was on the first application. I was still
without money for six months and health care for two years while
I was paralyzed and in a manual wheel chair. (I had started a new job 
two months before TM crippled me and there was no health insurance...)



--

Re: [TMIC] They're baaack

[Barbara Alma]

Hi Dalton,

I'm so sorry that you are having problems again.  You just never seem to get a 
break for long.  Hang in there and pray for better days ahead, and a break 
again soon.  You deserve it.

Good notes can get you through a multitude of things.  Man, we started out when 
we were kids taking notes in class, then making notes to get through an oral 
presentation.  And it goes on and on from there.  Then we become disabled.

Notes can be your best friend, for tasks to do ourselves, things to remember to 
tell others, have others help with, etc.  It's something that we all will 
eventually need to get in the habit of doing, or should get used to doing.  
It's like a to-do list, and who of us haven't done one of those at one time or 
another.  Oh boy!!!

Hugs, Barbara A 


-Original Message-
From: Dalton Garis 
To: James Berg ; john snodgrass 
Cc: transverse myelitis ; tmic-digest-request 

Sent: Wed, Apr 27, 2011 9:41 am
Subject: Re: [TMIC] They're baaack



Well, the cramping-spasticity-contractions—whatever-yoy-wanna-call-them, came 
back this morning. 


The first sign was that I knocked over a perfectly good, and totally full, cup 
of coffee all over the kitchen table, including on my meds.  By the time I got 
to work my limb coordination was diminishing.


But I got through the lecture—barely!  Then informed my reassuring, but 
write-it-all-down-for-future-reference boss that I was heading home early.


OK now, just sore and embarrassed.  It is hard to be better than normal as 
worse than normal as both situations land me in trouble.


Dalton



Abu Dhabi, United Arab Emirates
Office: +971-02-607-5070/5297
Mobile: +971-50-668-5760 




From: James Berg 
Date: Tue, 26 Apr 2011 09:51:27 -1000
To: john snodgrass 
Cc: transverse myelitis 
Subject: Re: [TMIC] revisiting an old issue
Resent-From: 
Resent-Date: Tue, 26 Apr 2011 12:52:04 -0700



thanks for the input


On Tue, Apr 26, 2011 at 9:08 AM, john snodgrass  wrote:



ativan along with hydrocodone use to ease the banding but that does not have 
much effect anymore for me

--- On Tue, 4/26/11, James Berg  wrote:


From: James Berg 
Subject: Re: [TMIC] revisiting an old issue
To: "john snodgrass" 
Cc: "transverse myelitis" 
Date: Tuesday, April 26, 2011, 2:28 PM




I am having a bad day--the thrumming is at its worst and the banding has gotten 
wider and tighter--to the point I couldn't eat dinner or breakfast this 
morning.  Baclofen does nothing.  It took four glasses of red wine and two 
alergy pills to get me to sleep.  Being in the chair now is making the banding 
pain worse.
 
any suggestions?


On Tue, Apr 26, 2011 at 1:11 AM, john snodgrass  wrote:



I remember hearing the concern of thrumming in the legs.


You know,,like the sound that a power transformer makes except it's a feeling,a 
buzzing or even sometimes like energy going up and down your leg or legs.


I gert this a lot and when it is real bad it is from the top of my head to the 
bottom of my feet.


sometimes it even feels like something poking at the bottom of my feet from the 
inside trying to get out.


perhaps i could harness it and drive a car with it!


I am taking the maximum dosage of baclofen and neurontin and was wondering if 
anyone ever ran across something to either slow this part down or even stop it.


sometimes it will last all day and can go from irritating to depressing.


most of the time when this does stop that's when the burning begins.


this on top of the wast banding and pain can drive me to thinking thoughts that 
are not normal for me.


 thoughts like,,perhaps i should find some marijuana and smoke it or perhaps i 
should drink enough to pass out or maybe i should punch someone and they will 
knock me out!


my Doc's know about it but have no answer.


losing insurance on may 5th.

Re: [TMIC] They're baaack

[Roger & Terese Pratt]

It all depends on the weather.  Weather I hurt or weather I don't.  (But I 
usually do.) - Roger in Kennewick, WA

- Original Message -
From: "john snodgrass" 
To: "James Berg" , "Dalton Garis" 
Cc: "transverse myelitis" , tmic-digest-requ...@eskimo.com
Sent: Wednesday, April 27, 2011 9:47:03 AM
Subject: Re: [TMIC] They're baaack

hate to hear that Dalton. 


I'm having an extremely bad day myself 


wondered if it was the weatherbut your way over there? 


hows the weather? 

--- On Wed, 4/27/11, Dalton Garis  wrote: 



From: Dalton Garis  
Subject: Re: [TMIC] They're baaack 
To: "James Berg" , "john snodgrass"  
Cc: "transverse myelitis" , 
"tmic-digest-requ...@eskimo.com"  
Date: Wednesday, April 27, 2011, 12:40 PM 





Well, the cramping-spasticity-contractions—whatever-yoy-wanna-call-them, came 
back this morning.  


The first sign was that I knocked over a perfectly good, and totally full, cup 
of coffee all over the kitchen table, including on my meds.  By the time I got 
to work my limb coordination was diminishing. 


But I got through the lecture—barely!  Then informed my reassuring, but 
write-it-all-down-for-future-reference boss that I was heading home early. 


OK now, just sore and embarrassed.  It is hard to be better than normal as 
worse than normal as both situations land me in trouble. 


Dalton 


Abu Dhabi, United Arab Emirates 
Office: +971-02-607-5070/5297 
Mobile: +971-50-668-5760  



From: James Berg < molokai...@gmail.com > 
Date: Tue, 26 Apr 2011 09:51:27 -1000 
To: john snodgrass < jcs...@yahoo.com > 
Cc: transverse myelitis < tmic-list@eskimo.com > 
Subject: Re: [TMIC] revisiting an old issue 
Resent-From: < tmic-list@eskimo.com > 
Resent-Date: Tue, 26 Apr 2011 12:52:04 -0700 


thanks for the input 


On Tue, Apr 26, 2011 at 9:08 AM, john snodgrass < jcs...@yahoo.com > wrote: 


ativan along with hydrocodone use to ease the banding but that does not have 
much effect anymore for me 

--- On Tue, 4/26/11, James Berg < molokai...@gmail.com > wrote: 



From: James Berg < molokai...@gmail.com > 
Subject: Re: [TMIC] revisiting an old issue 
To: "john snodgrass" < jcs...@yahoo.com > 
Cc: "transverse myelitis" < tmic-list@eskimo.com > 
Date: Tuesday, April 26, 2011, 2:28 PM 






I am having a bad day--the thrumming is at its worst and the banding has gotten 
wider and tighter--to the point I couldn't eat dinner or breakfast this 
morning.  Baclofen does nothing.  It took four glasses of red wine and two 
alergy pills to get me to sleep.  Being in the chair now is making the banding 
pain worse. 
  
any suggestions? 


On Tue, Apr 26, 2011 at 1:11 AM, john snodgrass < jcs...@yahoo.com > wrote: 


I remember hearing the concern of thrumming in the legs. 


You know,,like the sound that a power transformer makes except it's a feeling,a 
buzzing or even sometimes like energy going up and down your leg or legs. 


I gert this a lot and when it is real bad it is from the top of my head to the 
bottom of my feet. 


sometimes it even feels like something poking at the bottom of my feet from the 
inside trying to get out. 


perhaps i could harness it and drive a car with it! 


I am taking the maximum dosage of baclofen and neurontin and was wondering if 
anyone ever ran across something to either slow this part down or even stop it. 


sometimes it will last all day and can go from irritating to depressing. 


most of the time when this does stop that's when the burning begins. 


this on top of the wast banding and pain can drive me to thinking thoughts that 
are not normal for me. 


 thoughts like,,perhaps i should find some marijuana and smoke it or perhaps i 
should drink enough to pass out or maybe i should punch someone and they will 
knock me out! 


my Doc's know about it but have no answer. 


losing insurance on may 5th. 

Re: [TMIC] revisiting an old issue

[James Berg]

I checked out the web sites today and unless you have Lou Gherigs disease
you have the two year wait from approval which takes 6 months if you are
lucky.

On Wed, Apr 27, 2011 at 11:04 AM, Akua  wrote:

>  I too had to wait two years.  I applied immediately, too. The wait for
> disability is 6 months, the wait for medicare is two years from onset
> (or approval). My"approval" was on the first application. I was still
> without money for six months and health care for two years while
> I was paralyzed and in a manual wheel chair. (I had started a new job two
> months before TM crippled me and there was no health insurance...)
>
>
> --
>
>